Their Stories

Stomatitis, Dry eye and Dysphonia

3.31.2021 – Feeling of chest heaviness but not difficulty breathing

4.12.2021 – Sore throat worsened and voice is scratchy, similar to allergies. Or is allergies, but throat has been somewhat sore since initial onset of fever the Weds after the first shot.

4.22.2021 – Vertigo

7.17.2021 – Pain at times from 2nd injection site. Illness similar to that experienced after 1st vaccine cough, fatigue, nasal pressure/congestion with runny nose at times, but lacking fever. Did not get tested due to sites closing/not convienient.

10.16.2021 – Dry mouth, dry eyes, recurrent uti, recurrent sore throat with mouth sores. Worsening hypothyroidism

Mole excision, Breast cyst and Bradycardia

1.23.2021 – Feeling light-headed, heart palpitations (condition I already have but havent felt in a number of weeks)

1.29.2021 – Developed livable but significant pain/soreness in lymph node in underarm of injection arm

2.5.2021 – Red, raised, hot rash at injection site, slightly itchy; swollen underarm (on injection-site arm)

2.20.2021 – Underarm soreness/pain, mild

2.22.2021 – Swelling of both underarms Text consult with friend who is an ER physician

2.23.2021 – Underarms remain swollen, both right and left Consulted with MD friend

2.25.2021 – Swelling of both underarms continues

2.26.2021 – Swollen swollen underarms

3.14.2021 – Fatigue, feeling run down, unable to perform at peak athletically, past two or so weeks

3.26.2021 – New lumps in both breasts, growth in existing lumps in both breasts Awaiting appt.

8.22.2021 – Vertigo

12.31.2021 – Sore throat, head congestion. In addition I am now 15 weeks pregnant. I'm awaiting COVID test results for my current sick symptoms.

9.30.2022 – Initial herpes simplex 1 outbreak, unknown source, shingles, bradycardia, high blood pressure, breast cysts requiring follow up mammograms in 6 months, 2 moles with atypical cells excised

Constipation and Nausea

1.23.2021 – Im recovering from surgery so the nausea could be pain meds but they havent made me nauseated in the past

2.9.2021 – Im constipated but also non weight bearing after foot surgery but havent had digestive issues until yesterday

3.21.2021 – I should have indicated this before but Ive definitely been more nauseated in the weeks since my vaccine. Not sure if its the vaccine or recent surgery or something else. I am happy to report my children got Covid and I did not. The vaccine wor

Myelitis, Nasal pruritus and Groin pain

3.6.2021 – Pain in armpits, some asthma and palpitations subsided with relaxation breathing, sinus itching, light headed for a while

3.9.2021 – Sinus issues, runny itchy nose and eyes

3.20.2021 – Palpitations, blood pressure spike, pain in armpits

3.29.2021 – Armpit pain

3.31.2021 – Armpit and groom pain

4.10.2021 – Pain in armpits, breasts, groin, head, sinus, cough, fatigue

9.25.2021 – Diagnosed with possible pneumonia, treated with antibiotics. COVID t at negative at ER but did not follow up with additional test so could have been false negative.

10.23.2021 – Chest and head congestion, fatigue, aches

11.6.2021 – Congestion, cough, headache, fatigue

11.13.2021 – Pain nausea diarrhea congestion fatigue

1.1.2022 – Cough headache congestion asthma

10.2.2022 – Acute myelitis

B-cell small lymphocytic lymphoma, Chronic lymphocytic leukemia and Abdominal distension

2.20.2021 – Red patch below injection site for a few days. Sore underarm for 2 days (no lump).

5.8.2021 – Bloat and gas pain. FYI: I also have SLL/CLL and am in the watch and wait period.

8.7.2021 – Ive learned the Covid-19 vaccine may not have been effective for me because I have blood cancer: SLL/CLL.

9.30.2021 – Soreness and weakness in arms & legs first 24 hours. Next day developed red rash and burning covering 3/4 of shot arm. Axillary lymph nodes swelled up huge on shot underarm. Underarm and upper arm were very sore. Lymph nodes still swollen.

Tendon discomfort, Mast cell activation syndrome and Myositis

3.14.2021 – Brain Fog

3.16.2021 – Brain fog, flushing

3.19.2021 – Brain fog, itching

3.20.2021 – Reflux, MCAS aggravation

3.31.2021 – My autoimmune disease (Crohns) seems to be aggravated slightly. My POTS is as well.

4.3.2021 – Brain fog, flushing, photosensitivity, sore throat

4.5.2021 – Flushing, hot flashes, brain fog, tendon/ligament/muscle tightness - feels light tight about to snap rubber bands (the same sensation as fluoroquin antibiotic rxn in hEDS)

4.6.2021 – Worsening MCAS symptoms, lower Sp02 (91-95) with cyanosis noted around the lips

4.7.2021 – Brain fog

4.9.2021 – Muscle spasm

4.10.2021 – Flushing, sore throat

4.18.2021 – So much fatigue. My PT says my muscles are inflamed. Inflammatory conditions seem to be flaring more.

4.28.2021 – My Crohns has been flaring pretty badly, my period was almost twice as long as normal, my MCAS and POTS are still re stabilizing.

5.15.2021 – Worsening vomiting/nausea. Flushing. Headache.

Increased upper airway secretion, Musculoskeletal discomfort and Paranasal sinus hypersecretion

12.24.2020 – Sinus draining more

1.6.2021 – Constipation

1.27.2021 – On the night after the vaccine around 12 midnight I experienced severe shivering, feeling very cold for about 30 minutes. Stopped than another2-3 minutes. I took( 2 )500mg tylenol and eventually went back to sleep.

10.6.2021 – Sinus drainage, sometimes make me cough more,allergies.

2.22.2022 – I continue to have a sinus drip and phlegm in my throat daily.

4.14.2022 – Sometimes cough with sinus drainage.

4.20.2022 – Feeling more tired. Sleep pattern a little off.

5.11.2022 – Cough periodically. Nasal drip and chest conjestion. Little joint discomfort.

9.29.2022 – Having a lot more knee pain.

10.8.2022 – Within 24 hours of vaccines I experienced chills for 45 minutes. Feverish also.

10.13.2022 – Right hand gets numb.

10.27.2022 – Continuous sinus drainage.

11.3.2022 – Bilateral knee pain more.

Pharyngeal disorder, Premenstrual syndrome and Menopause

2.26.2021 – Feel a little short of breath and throat congestion.

3.4.2022 – Tingling in hands and burning sensation in face. Then diahrea.

3.8.2022 – Throat bothering me.

3.15.2022 – Menopause. Suddenly my Hot flashes stopped and I have symptoms when I would get my period. Haven't had it in almost a year. Last one was right after second covid vaccine.

3.24.2022 – I am in menopause and experiencing pms symptoms the past week.

3.29.2022 – Although I am in menopause I was getting pms symptoms shortly following the vaccine booster. Now I have my period. It is extremely heavy for 3 days now. The same thing happened after my second vaccine.

Dental restoration failure, Palatal swelling and Lip pain

4.24.2021 – Roof of my mouth is tender, but I might have burned it on lunch. Right hand unexpectedly itchy (shot in left arm)

4.25.2021 – My temperature is consistently 96.9, so 99.9 is high for me.

4.26.2021 – A little fuzzy-headed

4.29.2021 – Mowed the lawn last night - no problem!

5.29.2021 – My lips got puffy and sore on Tuesday, however it might have been a food allergy. Much better now.

7.24.2021 – Lost a tooth crown and will need root extracted. Visited dentist.

10.25.2021 – I had pinkeye (conjunctivitis).

4.24.2022 – Tested positive for COVID on April 19. Congested and fatigued, though more energetic daily.

Adverse drug reaction, Infection and Sinusitis

10.5.2021 – I have a sinus infection which is probably responsible for the headache and feeling lousy.

10.6.2021 – I currently have a sinus infection but I am being checked for Covid as of this a.m.

10.13.2021 – Sinus infection week before last. I took one round of Antibiotic which helped immediately. However infection is back and I have elected to take another round of anabiotic's.

10.20.2021 – Prolonged sinus infection I took a round of azithromycin that my doctor had given me at my annual check up to have on hand if I were out of town and got a serious sinus infection.

Oral pustule, Adenovirus infection and Oropharyngeal discoloration

4.9.2021 – Had muscle aches & site pain 1st 2 days

10.26.2021 – Burning throat, white spots in throat & side of tongue. Body aches. (Reverse??) Fever 95.2-96.2 several days at that time. Given Z-Pak. When not feeling much better after about 7 days, did PCR test, was negative.

11.7.2021 – Pain in upper arm & shoulder of injection

11.27.2021 – Painful throat; chills; not sleeping much this week despite being tired; fever (for me) of 96.0 (I tend to run low rather than high).

12.4.2021 – Many favorite foods taste weird. Has been going on for a while, but didn't realize just how many.

2.5.2022 – Omicron

11.6.2022 – Sore throat, headache, body aches, very slight fever, chills, diarrhea.

12.1.2022 – Joint & upper arm pain in injected arm.

12.3.2022 – Ended up sleeping the entire day

12.14.2022 – Don't think it's related to vaccine but may have Viral Gastroenteritis.

Sweat gland infection, Urinary bladder rupture and Skin hemorrhage

2.25.2021 – The night of vaccine I had chills & sweats. I had a headache for 12 days. Bruising of my arm occurred 1 week after.

3.4.2021 – I have a couple of spots on my hands that felt like a insect bite, swelled up, turned purple, then bruised. It looks like broken vessels. Happened after 1st shot too. Gums are bleeding bad.

3.5.2021 – Itchy blisters that turn into bruises on my hands. Like vessels bursting

3.3.2022 – Extreme pain in both hips. Could be inflammation.

Iron deficiency, Sleep apnea syndrome and Specialist consultation

1.2.2021 – Chest tightness shortness of breath lightheadef

1.3.2021 – easily winded

1.4.2021 – Chest pressure/tightness, get winded easily

1.6.2021 – Chest tightness/heaviness, get winded easily

1.7.2021 – Chest tightness/pressure, get winded easily

1.8.2021 – Chest pressure/tightness, get winded easily Allergist

1.9.2021 – Chest pressure/tightness & get winded easily especially on exertion

1.16.2021 – increased chest pressure/tightness, shortness of breath, lightheaded, clammy

2.13.2021 – Worsening SOB/chest tightness yesterday

1.2.2022 – Sleep apnea, iron deficiency Persistent fatigue, chest pressure, shortness of breath, palpitations

Cartilage injury, Rotator cuff repair and Endometriosis

4.24.2021 – Sleep disturbance, extreme aura & vision change, everything is so loud, extreme sweating, feels like a fever dream, slow motion,

4.25.2021 – At least 50% better overall then yesterday,

4.30.2021 – Nothing not related to my autoimmune disorders

5.29.2021 – Ive had night sweats/hot flashes (which are not typical) (not severe but consistent) and Ill wake up hot and/or sweaty I generally do not sweat in my sleep ever unless its sweltering out. After 2nd dose was first time I sweat in sleep in 6+

11.27.2021 – Complex Ovarian cyst. Right arm rotator cuff problems Regular doctors visit with appointment

2.26.2022 – I had Covid-19. I also was diagnosed with unrelated supraspinitus & labrum tears in my right shoulder

8.20.2022 – I had rotator cuff surgery and other procedures related to my chronic pain conditions It was surgery in a hospital Stayed one night

Rotator cuff syndrome, Food poisoning and Gastroenteritis viral

3.12.2021 – However, always tired on Fridays.

3.15.2021 – Heart palpitations last night for about 20 minutes

3.25.2021 – My arm started hurting and my rotator cuff started freezing up. It was from a fall from several weeks ago. Not really related to the vaccine, I believe. Doctor prescribed prednisone. All is well now.

4.15.2021 – One knee really hurts as does my upper arm near my shoulder. I cant seem to get the dull pain to get better. It has been ongoing for a couple of weeks.

11.13.2021 – I either had food poisoning or a stomach bug.

12.4.2021 – Sore throat

10.13.2022 – Very tired for a month after actually having COVID in late August. My COVID VIRUS did not cause a fever, but I had a sore throat, lots of coughing and a general miserable feeling for several days.

Inflammatory pain, Spinal pain and Flank pain

1.28.2021 – A funny smell in my nose, metalish ?

1.31.2021 – Sore throat

2.1.2021 – Mild sore throat

2.11.2021 – Stomach upset

2.27.2021 – Glands in neck and arm pits hurt

3.2.2021 – Arm hurts that I got my shot in and my glands

3.4.2021 – Feeling better today finally!!

3.11.2021 – Pain in back and left side.

3.25.2021 – Still Aching in my spine, joints, fingers, knees, muscles and left side. Ugh

4.1.2021 – Joint and muscle aches, nausea, weakness

4.10.2021 – Kidney creatinine doubled, joints and muscles still aching and hurting

5.29.2021 – Still having inflammatory pain and problems and severe constipation.

Oxygen consumption increased, Rash vesicular and Skin warm

3.4.2021 – Swelling of the face. Foggy head very little. Tired medium achey shoulders and burning feeling along the top back and shoulders. This is my second vaccine Pfizer 3-3-2021 . I register 1st vaccine date 2-12-2021. Pfizer vaccine.

3.4.2021 – Concerned mostly swollen face.

3.6.2021 – Face still swollen not severe ankles swollen not severe I would guess it's is moderate ankles could be due to arthritis. Was so tired yesterday I fell asleep talking reading ang playing a game.

3.8.2021 – Swelling of the face.

3.9.2021 – Swelling in face not gone but better

3.10.2021 – Little swelling let side of face

3.18.2021 – Sore throat slight. Chills moderate at times. Foster son came home with cold/allergy symptoms not vaccinated. Day 6 he's almost better. Yet I feel like he did. Dr said if he is positive Covid then I should be tested. And report. Arm itchy. Little

3.25.2021 – Double Pneumonia.Chills since last Vac. Mar 3 actually since 1st Vac.

4.2.2021 – I have double pneumonia. On O2. test neg for Covid 19highest fever was 102.4°

4.8.2021 – Still trying to recover from double pneumonia.

4.15.2021 – Using more oxygen. Double pneumonia lingering

6.3.2021 – Developed a spotty, blistering rash. I don't know if this related to the vax. 3wk after 2 vax had pneumonia.

3.4.2022 – I dont know if it has anything to do withe the vaccine. I have been gett real hot at times . My forheadis hot and i am tired . It does not last . I have no fever and i past menopaues. There is no pattern to when the hotness comes it only lasts for a

Sciatic nerve neuropathy, Complex regional pain syndrome and Gastrointestinal pain

12.27.2020 – Not sure but seems my crps has become more problematic a few days after shot and rehabs today better but other factors could als influence but?

2.19.2021 – Hi issues but I have such but just last been worsening. Do not think related to shit.

4.9.2021 – Tired more. More irritable. Rash still there and got a little worse. Sciatic nerve issues. CRPS has worsened some. Intestinal pains.

1.11.2022 – Rash issues continue. Had symptoms of covid recently but tested negative. Medical and dermatology

Polymenorrhea, Menstrual disorder and Injection site warmth

2.8.2021 – I experienced itching at the injection site. I guess I scratched it in my sleep so I awakened to a hot, reddened, and swollen arm. This lasted for a few days them subsided.

5.26.2021 – Ive been having a menses cycle twice per month. My provider is looking in to this. In person visit

11.26.2021 – It feels like I am experiencing pain and tenderness to my axillary lymph nodes in the arm I received the injection.

12.30.2021 – My menstrual cycle has changed so much. I'm wondering if the vaccinations has played a role in that. Besides that I've been feeling fine.

Skin papilloma, Eye pruritus and Ear pain

12.30.2020 – yesterday 40 min after the injection I have moderate itching scalp, cheeks, eyes ears I had to take benadryl after 3 hours it was still causing itching

1.2.2021 – itching scalp, neck, warts upper arms for 1 hour. The same sx I had 40 min after the injection day one. It was not as intense and only lasted 1 hour.

1.3.2021 – itching again this am scalp,neck only lasting 10-15 min less intensity than yesterday

1.4.2021 – scalp itchy, upper arms. Intermittent

1.6.2021 – Intermittent upper arm itching and scalp

7.26.2021 – sore throat congested ear ache

Thyroid disorder, Urticaria and Pain in extremity

3.25.2021 – Just exhausted

3.27.2021 – Lightheaded. Feeling not myself. Cold not feeling to well

3.28.2021 – Still feel light headed was off and on. Tired. Runny nose Head hurts off and on. Runny nose

3.29.2021 – Lightheadness still there. Just less Hives have gone.

4.5.2021 – After my vaccination I have developed brain fog off and on and somelightheadness. I had hives for a week or so after. Lessened as time went on. My tsh also went up from 0.67 to almost 5.0 I am very tired as well

5.4.2021 – My legs still hurt since vaccine. Some days they are better then it comes back

Restlessness, Rash erythematous and Oral herpes

3.1.2021 – Off and on I have had very dizzy spells. Also the red rash and the itching are back on my vaccination site.

3.16.2021 – Tired but unable to sleep I feel very restless.

3.19.2021 – Not sure if this is related to the coven 19 vaccination but this morning my entire nose area and lip were all cold sores

11.23.2021 – Yesterday my arm that I received my covid booster in swelled up and over the next few hours I developed a very itchy rash on that arm near my vaccination site.

Facial pain, Ear pain and Abdominal pain upper

8.10.2021 – Day after for 5 days I felt a heaviness in my ichest

8.11.2021 – Sharp pain in my neck rt side ear to chin started last night

8.12.2021 – Cough

8.21.2021 – Severe headache

8.27.2021 – Very bad headaches but I don't work so your questionnaire is not a valid test report

8.31.2021 – Terrible headache since last Fri,Sat,Sun,Mon and today. Arm was very sore too until today.

9.2.2021 – Stye in my left eye is starting again. I only had a stye once in my life and it was about 2months ago.

9.3.2021 – Stomach ache

9.10.2021 – Headaches

9.17.2021 – I usually never get headaches but have had ferocious ones with each shot. Today, its been on and off.

10.10.2021 – Severe headaches and before these shots I never got headaches. I don't work or go to school so your test questions are inaccurate each time. I'm a Senior, so no I'm not Pregnant!!

Poor quality sleep, Injection site swelling and Abdominal pain upper

2.9.2021 – When I got the shot, it swelled, for just a few minutes

2.10.2021 – Very tired, pain in my left arm.

2.11.2021 – Mild nausea, mild arm pain, but I went to work today

2.12.2021 – I've had mild nausea, for a few days. But was able to go to work.

2.13.2021 – I have had mild nausea, for a few days now. My left arm has some pain, but not like last time. This pain is is below the injection site. But it comes and goes.

2.15.2021 – I've had a headache for most of the day, and my right, side of my stomach has hurt off an on today. My headache has been frontal lobe.

2.16.2021 – Still have a headache

2.24.2021 – Just a headache since my 2nd shot. Not sleeping real well. The headache is a full one.

8.10.2021 – I had a brain and Neck and shoulder MRI. I still have headache's. Still going to the doctor every month. Have MRI done very recently

Vomiting, Pruritus and Rash

4.8.2021 – Dizziness, felt better after I vomited. As day went on I felt like the symptoms became mild.

4.9.2021 – Itchy skin arms & legs

4.22.2021 – Periodically I get headaches that feel like the same headache as when I had covid and the vaccine, however, they are no where near as severe. More of a nuisance.

5.6.2021 – Headache went away shortly after getting out of bed.

5.25.2021 – Rash and itchiness on arms and legs but not sure if its related to vaccine.

Sluggishness and Pain in extremity

2.12.2021 – I periodically have an IT band issue- about once every 3 months- so I dont really think it is related

2.13.2021 – Less pain than yesterday in the arm

2.25.2021 – I got a massage, and though she didnt touch it directly, it was deep fissile on the other parts of my arm, and the next day, it was red and not- not huge, but something I noticed- that did not stop me from doing anything regular- just got worried

3.12.2021 – Sluggish

3.13.2021 – My temp is normally 97...

3.14.2021 – Much better than yesterday

Dysstasia, Gait disturbance and Hypertension

11.28.2021 – I have a cough and am congested.

11.30.2021 – Congestion

12.1.2021 – Congestion, sore throat, cough Private doctor

12.2.2021 – I tested positive for COVID yesterday by my primary doctor. Office visit with my primary care physician.

12.10.2021 – Shortness of breath

12.17.2021 – High blood pressure

2.25.2022 – I've been noticing that I have a runny nose daily. I'm not sure if it started after I was vaccinated or since diagnosed with COVID.

5.27.2022 – Runny nose and congestion. High Blood pressure has been high since vaccination/COVID 19. Primary care doctor and cardiologist

11.26.2022 – Lower back pain and and intermittent severe sharp pains in lower left back make it difficult to impossible stand or walk. Runny Nose - every morning

Viral upper respiratory tract infection, Loss of consciousness and Eye irritation

3.14.2021 – 29 hours after getting the injection I passed out for a few minutes and was immobilized by nausea and vomiting for an hour. I went to bed and for the next 24 hours was tired. Today, Sunday, 72 hours after the injection I feel ok.

3.18.2021 – The headache is a sinus headache and therefore I assume not related to my vaccination reaction

3.25.2021 – Headaches have become common. I usually do not have headaches. They are concentrated in my sinuses

7.19.2022 – Upper respiratory virus symptoms, stuffy nose, irritation in sinuses and eyes

Red blood cell sedimentation rate increased, C-reactive protein increased and Disturbance in attention

1.29.2021 – Minor arm discomfort on the arm of the injection

2.1.2021 – Minor bruising at injection location that has increased in size from yesterday. Minor brain fog / focus issues but have had this occur in the past before receiving the vaccine.

2.3.2021 – Bruise at injection site diminishing in size and starting to return to normal colour.

2.4.2021 – Bruise at injection site has continued to decrease. Colour slowly returning to normal at location.

8.20.2021 – Believed to be two really bad sinus infections. Tested multiples for C-19 and all were negative.

10.23.2021 – Sore throat (mild)

11.12.2021 – Overall body inflammation seems worse over the last week. Do have history of it, but seems more than usual. Otherwise, feel fair.

11.21.2021 – General inflammation, worse in knee and joints overall.

4.22.2022 – Increase in body inflammation, or at least that is what it feels like. Currently seeing doctors to figure out exact issue.

10.22.2022 – Knee inflammation and achy body. Currently undergoing testing for issues due to elevated ESR and crp.

Hypertension, Migraine and Headache

5.13.2021 – Daily migraines since vaccine on 2/11. Ended up in ER 8 days after vaccine with very high blood pressure. ER had no answers. The kast day i had no headaches was over one month ago. MRI showed nothing unusual. Migraines are new since vaccine.

8.12.2021 – Ongoing daily migraine headaches. Only 9 headache free days since Feb 11th when i got vaccine.

2.11.2022 – Continuing headaches. It has been 1 year ago today i got the vaccine. Headaches not as bad as they were and do come and go now rather than almost constant