Their Stories

Psoriatic arthropathy, Skin warm and Arthralgia

2.20.2021 – I have psoriatic arthritis which was mostly in remission. I am now flaring. Wrists and ankles are warm and tender. Shoulders are just tender.

3.10.2021 – I have psoriatic arthritis which was in remission. I had a moderate flare that started the day after my first vaccine. Its better, but not gone. Using topical diclofenac 3-4x/day which helps.

3.17.2021 – I have psoriatic arthritis which was in remission. It flared after my first vaccine & has flared again starting yesterday.

3.18.2021 – Psoriatic Arthritis mentioned yesterday still flaring though perhaps a little less.

3.19.2021 – I reported a flare of my psoriatic arthritis after my first dose and it is flaring after the second. The flare is not as severe as after the first, but is also not easing either.

3.20.2021 – See previous reports from me

3.24.2021 – See my previous reports. Overall symptoms are slowly improving.

9.13.2021 – I had Covid. Cough and fever. + test on 9/2Monoclonal Antibodies in 9/3

3.15.2022 – I've been flaring with psoriatic arthritis since getting my initial Pfizer vaccines in early 2021. Symptoms wax and wane. I've had a difficult month both with my skin and my arthritis

Weight bearing difficulty, Breast discomfort and Urinary incontinence

9.17.2021 – The day before i couldn't control my bladder after waking up once only

9.18.2021 – I have been being hot and cold at same time for days after shot and still am having that problem

9.19.2021 – I have been ice cold and other half of my body hot very hot still

9.21.2021 – I have lupus and I'm in the worst flare I've ever had.

9.28.2021 – Worse kind of headache and jaw pain ever had and ever since the vaccine my heart has been beating really faster than it use to due to my health problems with lupus and other autoimmune diseases.

10.5.2021 – The arm i got the shot in has been in the worst pain in my hands, wrists and shoulder, neck and all my joints. Actually all my joints are in worst pain.

10.12.2021 – I have Lupus and 1st vaccine put me in a bad flare, just got the 2nd shot today.

10.14.2021 – I have either broken my ankle or foot and don't know how i can get to doctor cause I can't put any weight on it.

10.15.2021 – I now have a big rash all over my upper arm where the shot was given, and now have a blister on my lip. I am now in a flare from my lupus, one worse than ever.

10.16.2021 – In bad lupus flare and have a broken ankle

10.17.2021 – Been thrown into the worst flare I've ever had, and still need to go somehow to get my knee x rayed to see how bad broken.

10.19.2021 – Still in lupus flare and my joints are hurting pretty badly

11.2.2021 – My heart still hurts and my chest has been hurting and don't know why til i can get to a doctor.

4.11.2022 – Its also swollen and red n hurts at the injection site.

4.12.2022 – The redness keeps getting bigger n more swollen and there's a swollen under my breasts that feels wrong

4.13.2022 – This has to be a adverse reaction and never getting another one.

4.14.2022 – Had a adverse reaction, never again

Hordeolum, Dyspnea exertional and Bone pain

10.20.2021 – A lot of coughing especially at night. The cough presses on my lower diaphragm causing gas or nearly making a wetting accident They gave me albuterol

10.25.2021 – Coughing chest conjestion

1.3.2022 – Joint and bone aches and a sty or irritation in my left eye. Slightly blurred vision. Hard to see dr due to all the new covid testing being sought but it is difficult to work with pain in my eye

4.6.2022 – I have continued shortness of breath I thought initially it was my asthma but it was never like this. Right after I had my first bout with CoVid for a few weeks I could not breathe well enough to walk and talk and had to rest frequently. That is over

Ocular discomfort, Head discomfort and Epistaxis

4.25.2021 – Not sure has anything to do with the shot seeing Im prone to nose bleed when blowing my nose but they stop within a few minutes I have woke up to go to the bathroom the last three day at like 1 am when I sit up I have an I stent headache but go to bed after Im fine except last night got up at 1 had the headache and felt very hot went to the bathroom back to sleep and woke back up at 3:45 to a blood pouring out of my nose and pressure in front and back of my head couldnt get the bleeding to stop until 4:15 went back to bed and have been nauseous and head pressure and eye pressure all day

Lyme disease, Pain of skin and Oral herpes

1.21.2021 – Day 8 post vaccine: dime sized red spot at injection site along with pain/ ache in both axillary regions, left worse than right. 5/10 on pain scale. Lasted about 24 hours.

2.5.2021 – Lightheaded

2.6.2021 – Surface of my skin feels painful

2.9.2021 – Swelling on upper left arm below level of deltoid to elbow, pain in tricep muscle and elbow, right axillary pain and tenderness

2.10.2021 – Bilateral axillary tenderness; pain and swelling above left elbow

2.11.2021 – Left elbow pain, bilatetal axillary pain and tenderness, left worse than right

2.18.2021 – HSV blister on lip

11.28.2021 – Tingling in both hands/fingertips, right greater than left

12.9.2022 – Asthma flare up 1 week ago. No COVID or febrile illness.

Urinary straining, Lower urinary tract symptoms and Therapeutic response unexpected

2.1.2021 – No

2.2.2021 – Allergy type symptoms that I usually have, blowing nose and cough seemed intensified this morning. Have light cough all day

2.3.2021 – just dont feel like myself, doing ok at home but dont want to leave home

2.4.2021 – No, ended up going on errand yesterday afternoon after all plus this morning. Did fine

2.8.2021 – Im starting to wonder if the increased congestion I've had for awhile isnt related to vaccine. I'm blowing my nose and seeing small clots of blood daily . Not terrible but seems more than usual winter symptoms Trying humidifier.

3.5.2021 – I thought yesterday was my turnaround day but Im still tired and depressed today. Just had bldwrk done at regular dr appt though Already scheduled. Cab there. Walked home 1 mile. Looked at feet almost whole way without realizing till end. Very tired & left purse on bench, had to return for. Not thinking clearly

3.6.2021 – feel same normal as I did 3rd day

3.8.2021 – walked close to a mile roundtrip with no problems

8.30.2021 – uti type symptoms and lots of pressure but clear urine test so referral to urology. Appt next weekAlso unvaccinated person in my apt bldg is positive for covid & quarantined to apt.

Pulmonary embolism, Palpitations and Chest discomfort

12.21.2020 – Muscle soreness from working a 12-hour nursing shift yesterday unrelated to the vaccine. Thank you!

1.3.2021 – Back pain that feels muscular Left wrist pain (flare-up of a chronic condition)

1.10.2021 – Occasional heart palpitations and intermittent mild right-sided chest discomfort.

1.11.2021 – Right-sided chest pain similar to when I had pulmonary embolism. Worried that I'm having an autoimmune response to the vaccine. I've had elevated anticardiolipin antibodies.

1.13.2021 – I had dizziness last night.

9.29.2021 – Brief episode of dizziness while seated 24 hours post injection

9.24.2022 – I had covid.

Injection site pruritus, Injection site erythema and Headache

3.5.2021 – The headache reported above was actually yesterday (3/4/2021) after my first daily v-safe check-in. It was of moderate severity and resolved on its own (no meds) a few hours after onset. No headache today (3/5/2021).

4.22.2021 – Slightly reddish round patch (not raised), ca. 30mm in diameter. Periodically mild to intense itching in this area. Not 'on', but directly adjacent to injection site (upper-right arm). No idea if related to vaccine.

Diverticulitis, Sleep disorder and Constipation

3.15.2021 – Seasonal allergies symptoms have commenced

4.12.2021 – Developed a severe headache overnight that subsided by 10-11am

4.13.2021 – Heartburn

11.12.2021 – Bout of diverticulitis and coughing for 24 hours

5.13.2022 – Gut health issues, had bout of what may have been diverticulitis with four days of pain, difficulty with stool (constipation) and ran a fever for one day. Also fatigue due to sleep issues because of pain. Doctor appt made for May 20 due to wait list Still waiting, long wait list so appt is May 20

10.14.2022 – Active bout of diverticulitis and diarrhea for a full 6 days.

Cellulitis, Loss of personal independence in daily activities and Muscle twitching

3.26.2021 – My lip on the lower right side has started to twitch intermittently throughout the day today. Not sure if its related to the vaccine.

4.23.2021 – Few weeks of some mild constipation following vaccine. Had a mail in colon screening in December 2020. All good. Not sure if related to vaccine. Seems to be improving slowly.

10.31.2021 – Swelling in armpit area under arm of injection site was worse first few days after vaccine.

11.4.2021 – Yesterday I had a migraine headache that impacted my daily routine. That is not common for me.

11.18.2021 – Cellulitis from a thorn in my thumb

Amenorrhea, Poor quality sleep and Menstruation irregular

4.15.2021 – Joint aches & muscle aches, especially in my hips, quadriceps & lower back. Body feels very dense & heavy. Restless nights sleep too.

4.16.2021 – My symptoms lasted for approx 36-48 hours

12.17.2021 – So I've had asthma for 40 years, it's under control, I'm aware of my body & I noticed that I was a little shortness of breath the day I got the Booster, the day after, & today. Very mild. But present nonetheless. I thought I should report it.

1.11.2022 – A week after booster, started having consistent "heat episodes" mostly at night, sometimes daytime. Very hot. I take off layers of clothing, sheets, to expose my skin to cool off. Happening regularly, never before. Also missed my menstrual period.

1.18.2022 – In addition to my last check in with symptoms, only two "heat sweat" short episodes (compared to so many before) but I still have not gotten my period :(

6.14.2022 – I got COVID. Tested positive on 5-12-22. First (very slight) symptoms were 5-10-22. I traced it to back, must have contracted virus @ an OUTDOOR gathering in a small backyard, 40 people. I got PAXLOVID 5-12-22. It dramatically helped!!!

Skin disorder, Skin burning sensation and Pain of skin

3.31.2021 – Rash been wrapping around my back, stomach and legs red an warm to touch..

4.3.2021 – I'm bruising if I scratch my rash

4.19.2021 – Just not feeling well!!!

4.21.2021 – This is the 3rd time of breaking out with Rash

4.22.2021 – Went to my Doctor's office.

4.29.2021 – Rash all over my body...Hurts!!!!! My Doctor

5.1.2021 – My skin burns an has blustering...Not feeling well...

5.21.2021 – My skin still looks Bad. GETTING Headaches alot.Always tired.

5.28.2021 – Bad headaches, Chills,Joints hurt, Sweats, Skin hurts from Rash, Feel sick to stomach alot.

Appetite disorder, Visual impairment and Taste disorder

2.9.2021 – SOB w/ Asthma flare up. partial loss of taste. Lasted only one day over the weekend. But, it was odd since my asthma has been controlled for years.

3.4.2021 – Shortness of Breath. Elevated with Albuterol inhaler.

7.19.2021 – I am not sure if related but it is new and does not seem to apply to anything else. My appetite has changed drastically as well as there are times my taste is off or nonexistent. I also have vision changes

Skin warm, Injection site swelling and Peripheral swelling

3.13.2021 – After being ok for a few days, the arm that I got my injection became red, swollen, hot & itchy. Started at the 1 week mark, right after my last check in. Got worse, and is now better.

3.27.2021 – Just received in the last hour.

3.29.2021 – Weird taste in my mouth. Tastes like saccharine, which I have not had. I had this after 1st shit, too, but thought it wasnt related. But now that Ive gotten it again, I fo.

3.30.2021 – Pins& needles in hands & feet. This happened last 2 days but I forget to report that.

3.31.2021 – Pins & needles in hands

4.10.2021 – The itchy swollen and red upper arm on the arm I got the injection is back and seems slightly worse

Cardiac disorder, Respiratory disorder and Anxiety

3.30.2021 – Chest feels a little heavy like a cough is developing

4.16.2021 – Increasing headache and fatigue

4.30.2021 – Peridioc bouts of anxiety. I also had pretty severe anxiety symptoms about 30 minutes after each of my vaccinations. 2nd was worse. Prior to the vaccination I was not anxious or fearful.

9.24.2021 – Sore throat and congestion.

3.26.2022 – Developed chest pains, stress test shows" cold spots" in my heart. Currently have some type of rather severe respiratory illness that tested negative for COVID. Chronic fatigue.

Oral discomfort and Lip swelling

2.11.2021 – Im unsure if its related but approximately 90 minutes after the injection I ate my first meal of the day which was a salad. It was a basic salad with spring mix lettuces, chicken, avocado, sunflower seeds, and Caesar dressing. All of the ingredients are regular for me except for the seeds which Ive had before sparingly and with no reactions. This time however, shortly after eating the salad my lips were swollen. The mucus lining in my mouth was also reacting. I knew I was having a reaction to something...I believe it was the seeds...I took some benadryl and was fine the next morning. I considered my symptoms as mild.

Arthralgia, Pain in extremity and Headache

1.30.2021 – Severe headaches. Joint pain radiating from right to left side of body.

2.7.2021 – Severe joint pain in hands, fingers, wrists, and legs especially knees. Employee health says this is normal and symptoms should lesson. However, mine have not. I want to make a doctor's appointment but I'm not sure what the doctor can do.

2.13.2021 – I continue to experience severe joint pain in my knees, wrists, and hands.

2.19.2021 – I continue to experience severe joint pain since my 2nd dose vaccination. I have an appointment with my doctor for next week. I have spoken with CDC and NIH about my joint pain.

2.28.2021 – I continue to have joint pain after receiving the 2nd dose. I am under the doctor's care.

Spinal stenosis, Injection site hypoesthesia and Frequent bowel movements

1.30.2021 – Slightly numb feeling at injection site.

2.27.2021 – Frequent BMs, abdominal cramping, epigastric pain

2.28.2021 – Abdominal discomfort much improved today

10.24.2021 – Severe back pain diagnosed as spinal stenosis accompanied by leg pain, hip pain, knee pain and numbness in ball of feet, right worse than left. Orthopedic Dr. and Spine Clinic will have a steroid injection into spine this week followed by Physical Therapy 2-3x/week for 4-6 weeks.

Breast cyst, Breast cancer and Lymph node pain

3.22.2021 – Lymph node Pain in my armpit on injection arm

3.23.2021 – Still armpit pain in lymph nodes on injection arm

3.24.2021 – Just the lymph node in my arm pit, not as painful now

6.19.2021 – Last week was Diagnosed with small breast cancer on my right breast and also a cyst on my left. I had a very painful lymph node in my left arm pit area that lasted 4 days after 2nd shot They cyst on my left breast was diagnosed last week also

9.18.2021 – Breast cancer, stage 1, lumpectomy in late July, now chemo. Good outcome expected In office Dr appts, day surgery infusion clinic

Initial insomnia, Lymph node pain and Lymphadenopathy

2.19.2021 – Glands in my neck just below jaw bone a little sore and puffy 3 hours after shot. 28 hours after shot, soreness of glands almost disappeared.

2.20.2021 – Day 2 after shot, still some soreness to glands in my neck left side below jawbone. It is reducing in time and almost gone.

3.12.2021 – Similar to 1st shot had trouble sleeping night of vaccine. This is unusual for me, normaly I sleep well. I had no other side effects during the night to prevent sleeping.

Retinal tear, Psychomotor hyperactivity and Hyperthyroidism

12.24.2020 – after injection several of the people i work with experienced hyperactivity. that lasted for me till morning then followed by moderate fatigue

1.7.2021 – I ORIGINALLY WAS HYPERTHYROID HAD RADIATIONBUT A SMALL PIECE WAS NOT KILLED. SINCE INJECTION IT ACTIVATED THAT PIECE OF THYROID CAUSING ME TO BE VERY JITTERY, 4 POUND WEIGHT LOSS IN 2 WEEKS, EXTREMELY TIRED PHYSICALLY.

1.21.2021 – rapid heart rate, heart flutters, chest pain, jitters for 1 month which is why i declined 2nd vaccine. the first one interferred with my thyroid and i am unable to make my normal dose without above complications so im now taking a much lower dose endocrinologist

1.28.2021 – ISTILL CANNOT TAKE MY NORMAL DOSE OF SYNTHROID BECAUSE IT MAKES ME JITTERY AND CHEST PAIN. I WANT TO KNOW HOW LONG THIS VACCINE STAYS IN YOUR SYSTEM ESP TROMETHAMINE. CAN SOMEONE PLEASE CALL ME AS IM NOW NOT THE ONLY ONE HAVING SYMPTOMS

12.25.2021 – i at 3 months out got blurred vision, tears in retina and joint pain. i have graves disease and high pressure in eyes and am on glaucoma drops. i did not get the 2nd shot but now will be forced to and im scared. i cont to have joint pain

Neutrophil count decreased, White blood cell count decreased and Platelet count decreased

1.16.2021 – Overall not feeling well but ok. Dizzy upon awakening.

2.16.2021 – Legs weak and muscle tenderness similar to sensation have after intense workout. Has subsided.

3.11.2021 – Since the last Pfizer vaccine, my routine CBC has changed from normal to abnormal values.WBC, neutrophils, and platelets are low. Doctor is rechecking in a month and hopefully returns to normal levels.

5.7.2021 – Extreme fatigue, energy level decreased significantly, requiring more sleep. Lab work shows continued declining neutrophils at 1.3 and 31.9 %. Platelets now normal and WBC normal. All other labs are now normal. Expected to resolve.

9.6.2021 – Weakness

6.30.2022 – Bacterial infection

Spinal pain, Tonsillar hypertrophy and Secretion discharge

3.3.2021 – Sore muscle on left arm injection site. It might be due to resuming exercise and use of arm again.

3.10.2021 – Continued pain in muscle at injection site

5.5.2021 – I have had dizziness for a month. Doctor said its vertigo and now taking meclizine. Im not sure it has anything to do with Pfizer vaccine.

8.5.2021 – Sore throat, enlarged tonsils, ear infection, sinus problems, coughing and sneezing, dry cough first then cough with mucus. Dr prescribed otc cough medicine and antibiotics for bronchitis. Symptoms lasted three weeks.

9.13.2021 – Dry coughing

9.27.2021 – Sore throat, dry cough

10.3.2022 – I don't know that my lower spine, back hip and leg pain is related to my latest booster shot. I have also experienced dizziness and fatigue but it may be due to nerve ablation and epidurals. Treatment by my I internest and pain management doctor.

Skin warm, Flushing and Erythema

1.4.2021 – The arm that received the injection had episodic itchiness for an entire week. The itchiness moved around all over the arm. After that week, I had itchy spots all over the body and lasted for a few hours.

1.18.2021 – 24 hours post vaccine, had major aches and pains for 1 day. Chills for a few hours. Tired. Felt much better 48 hours post vaccine.

7.19.2021 – Occasional tingling that starts in my jaw and face, and sometimes spreads to my entire upper body. This is accompanied by face flushing, appears red and feels hot. This is very similar to the sensation i had about 8-9 hours after second vaccine.

Carpal tunnel syndrome

2.27.2021 – Approx 2/1 I had an exacerbation of carpal tunnel syndrome. Had sx 20 yrs ago, intermittent since then, then flare ~2/1 with no known trigger. Never thought of sx as linked to vaccine, so didnt report previously.

3.6.2021 – Flare of carpal tunnel symptoms that onset acutely about a week after my 2nd vaccine dose and continue. Im being evaluated, in 2 weeks for surgery.

4.24.2021 – Flare of carpal tunnel syndrome that started a week or so post vaccination continues (decreased intensity of symptoms). Having bilateral hand surgery to treat it on 4/27

Menopausal symptoms, Allergic respiratory symptom and Dysphonia

3.14.2021 – The pain at injection was last night after I reported no symptoms yesterday.

10.5.2021 – I keep having moments of feeling really cold and then other hot flashes but no fever when I check. Could just be post menopause symptoms.

12.31.2021 – Scratchy throat and allergy symptoms.

4.1.2022 – I had some challenges in January/February with asthma likely due to heavy allergens. I needed antibiotics and 2 rounds of steroid treatments. I tested for COVID both at home and at a lab and results were negative.

5.15.2022 – I have asthma.

5.29.2022 – Head cold / sinus illness.

8.14.2022 – I contracted COVID-19 testing positive on 7/18. My symptoms started with a hoarse voice and scratchy throat evolving into a low grade fever, cold symptoms, coughing and fatigue.

11.13.2022 – Head cold -congestion, fatigue, scratchy throat but COVID negative.

Heavy menstrual bleeding, Migraine and Rhinorrhea

5.17.2021 – Very heavy menstrual bleeding

6.5.2021 – My boys and I missed the second vaccination since we were sick. Tested for covid but tests were negative so must have been another virus. We have lowgrade fevers, runny nose, cough, fatigue. We will reschedule for second dose when better.

6.26.2021 – Extremely heavy bleeding during period. Went through 2 boxes , totalling 64 super absorbency tampons in one week. Dizzy and lightheaded.

9.11.2021 – Migraines

Cyanosis, Skin discoloration and Chills

3.29.2021 – Yesterday I had 101.5 fever all day and chills even with Tylenol. Then it vanished and I feel fine today.

3.30.2021 – I had a 99 degree fever and tired the day after first shot. I had strong reaction 101.5 fever, chills, tired, arm pain the day after second shot. But it went away by the next day.

4.9.2021 – 5 days and 11 days after second shot noticed blue fingers. The first time it was ring finger if left hand purple bruise like at knuckle. Hurt but was gone next day. On day 11 the index and ring finger on right hand looked bruised suddenly, purple .

Paranasal sinus inflammation, Respiratory tract infection and Influenza like illness

3.18.2021 – Feeling very slightly feverish with a mild headache a few hours after the injection, but my temp shows as normal

3.19.2021 – Classic "flu-like" symptoms, but they seem to be lessening a little just now

3.20.2021 – Still had lingering symptoms in the morning but mostly gone by noon today

4.8.2021 – Starting yesterday I felt milder versions of the flu like symptoms that I felt in the two days following the second vaccine. Throat feels a little sore, general inflammation, slight headache, fatigue.

4.15.2021 – It feels like a mild respiritoy infection, starting a week ago or so. Maybe getting better the past couple of days.

4.29.2021 – Cough, congestion, fatigue, very slight fever

6.17.2021 – I've had a cough and sinus inflammation for a few weeks, which is possibly allergies, but I don't know.

5.1.2022 – Light cough for a long time, congested. I took home Covid tests twice and result was negative, so assuming it's just an infection.

Injection site pain, Pain in extremity and Headache

1.5.2021 – Sore arm where vaccination was giving (I expense that when I had my flu vaccination as well).

2.4.2021 – Yesterday the third of the second shot I had a little headache I meant to put that on yesterdays update and I thought it couldve been looking at screens all day from working with three monitors screens I like that I have and today the pain is just as sore but not bad but I need any Tylenol anything but I thought Ill let you know have a blessed day

10.13.2022 – No just on the first and second day in my arms are sore but I had a flu shot in my right arm and cover in the left but all is well today