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Their Stories

What v-safe registrants wrote to the CDC after their Pfizer or Moderna shots, in their own words. Each card is one person, with all of their free text. This page shows only the longer stories: the 116,000 people who wrote at least 400 characters in all. The text is as the CDC released it, except that email addresses and phone numbers are hidden. You get a random set of these people on every visit.

Shuffle

Chest pain

ZYP-22891-46781

– Chest pain last night before bed

– I have hair all over my body and face and I started to howl at the moon when it is full!

– I have been growing hair all over and howling at full moons

– I have recently started growing fish gills in my neck. I now am able to swim underwater and speak with all the sea creatures.

– I have recently started to self levitate and fly and have developed superhuman strength. The only issue is that I lose all control and have no strength if exposed to kryptonite.

Renal impairment, Diabetes mellitus and Seasonal allergy

ZYQ-10472-53724

– Yesterday my arm was really sore, had a low fever, and was cold, and slept alot.. you did not text me yesterday.

– Pressure in forehead,nose,under left ear, and neck. It is probally sinus issues I am dealing with.

– Still some sinus pressure in head and ears..

– Sinus issues with pressure in head and behind the nose. Slight dizziness.. it might be just pollen allergy..

– Just pressure in my head, nose, and ears probally due to allergies . We have pollen alerts lately..

– Had the chills at night and through the middle of the night on Saturday May 15 thru Sunday early morning May 16. Sunday May 14 felt really tired and chills were gone..

– Stomach pain is gone now.

– Soreness in my left hand for the past few days in the palm and thumb area. Even went up the left arm for a little while. Doing better today. Don't know if that has anything to do with the vaccine . The shots were in my left arm though.

– Muscles and joints sore last few days. Might because of the rainy and humid weather that has been going on here in Illinois. Usually feel better in the middle of the day. Had a little bit of coughing and little bit of a runny nose but I believe it al

– Having sinuses issues again. Kidney function went down a little. I have kidney disease anyway. Having slight little headaches . Stomaches sometimes. This all could be from the kidney disease though.

– I found out I am diabetic now. Having a little more joint pain. I have chronic stage 4 kidney disease and my kidney function has gone down now.

Hemoperitoneum, Ovarian hemorrhage and Lymphocytosis

ZYQ-45744-01385

– I have MS and got my monthly Tysabri infusion yesterday, these are common side effects with that treatment.

– worsening of existing MS symptoms

– Dizziness, I have MS so not sure if its that

– JC Virus positive, previously indeterminate Monitoring with q4week labs for PML risk

– Shingles reactivation

– Dizziness

– Slight exacerbation in MS symptoms, but remain functional

– New MS symptoms

– Bleeding ovary with mild hemoperitoneum

– Had Covid in January. CBC shows mild lymphocytosis one month later, following with PCP

– Have had MS for 7 years, new onset mild left thigh and calf atrophy and weakness. Awaiting appt with treating neurologist 2g corticosteroid IV x 2

Osteoporosis, Joint swelling and Arthritis

ZYQ-76117-05209

– Headache

– Back pain and small area of rash on my chest

– GI uu

– Loss of appetite

– Covid

– Headache, left forehead and left base of neck

– Mild vertigo

– Swollen feet and ankles

– Feet swelled. Dr. yesterday said it was due to a new medication, ehich is being discontinued. Office visit

– Foot and hip pain Dr. Visit

– Diagnosed with severe osteoporosis in both hips and arthritis in the Lisfranc joint of my left midfoot Doctor's visits

Conjunctivitis, Flatulence and Brain fog

ZYQ-84950-47641

– Not sure if exercise induced, left trapezius hurts consistently. No other body aches. PMH: HTN stage 2, OSA, ADD,

– Sore throat, back pain.

– I have a sore throat, excessive flatulence, conjunctivitis, shortness of breath.

– Had exposure to covid patient on 2/6 and I developed headache and sore throat that resolved 48 hours later.

– Headache new onset.

– Headaches and memory fogginess

– Shortness of breath, palpiatations

Joint swelling, Swelling and Injection site warmth

ZYQ-95737-31229

– The swelling hasn't gone down since the 1st day. The redness around the injection is larger than a silver dollar.

– The injection area was warm to touch the first 4 days

– After 4 days of no redness or swelling around the injection area it came back again and worse. This has lasted 3 days now.

– The swollen red area got bigger and hurt more. Its gone now

– swelling of all joints causing extreme pain. primary care doctors office.

Tonsillar cyst, Scalloped tongue and Tongue discoloration

ZYR-14785-31837

– Post 2nd vaccine tongue has been orangish in color. Does come and go. I didn't notice any major change in joint pain which I experience regularly. Felt possible swelling in my hands.

– One week post 1st vaccine delevoped a tonsil cyst. Took cylidmycin for 7 days during then developed metal taste. Post 2nd vaccine developed a orange/ yellow tongue. Still have after 4days, does decrease and the increases. Joint pain typical normal pain for me.

– Orange tongue. Cyst in throat.

– Slight discolored tongue/side of tongue has noches

– Still yellow tongue still notches on tongue.

– Still having orange/yellow discoloration of tongue and notches on sides of tongue. No change with tonsil cyst.

– Sore throat, Swollen tonsil, tonsil cyst , tongue still orange. At doctor's offices

– Develop tonsil cyst...still having orange yellow tongue. Put on clindamycin 2nd time. Doctor's office

– Tingling tongue and in my mouth throat it feels like a gaseous feeling/burning. Not burping but feels like when you clean with a stong chemical and you breathe it in. Drs office

– Diagnosed with breast cancer had a right mastectomy starting tsxol and herceptin on 8-23-21

Hypotension, Tachycardia and Hypersensitivity

ZYR-19653-05203

– Blood pressure got low

– Yesterday tachycardia 122 bpm, hypotension 80/53, resulting in heart palps. Resolved after 7 hours. Almost went to ER.

– High blood pressure for 2 hours/anxiety

– Doctor advised me NOT to take second shot due to my cardiovascular reaction to first shot. Was hypotensive with tachycardia. Will report to vaers.

– Doctor says i had an allergic reaction and NOT to get second shot. Filing a VAERS report.

– Filed VAERS report allergic reaction to vaccine.

– Sore joints in feet, maybe rheumatoid arthritis.

– Foot pain and problems. Left arm lymph node still tender 6 months later.

Sinus tachycardia, Respiratory rate increased and Asthenopia

ZYR-27372-14516

– Gastrointestinal upset

– I had eye pressure/ pain on just the left side for a couple of days .

– I think I have some sort of cold. Sinus and ear pressure, extreme fatigue, cough, difficulty breathing, muscle aches.

– I keep getting weird asymmetrical headaches sort of behind my eyes. My eyes feel overly tired and sometimes bruised or feel under pressure.

– My vision seems to be frequently blurry. GP

– Got covid like symptoms at the end of March. Since April first I have been in Sinus Tachycardia and unable to even walk around without dizziness, lightheadedness, shaking, increased respiration and headache.

Peripheral swelling, Neck pain and Back pain

ZYR-28023-58614

– Was incredibly fatigued the first evening after receiving the shot.

– Neck and shoulders are a bit achy, but nothing major. My finger is swollen and hurts but I can't see anything wrong with it. Had a zap of pain throughout my back last night.

– Have had diarrhea on and off last week. Am feeling a bit dizzy this week and just generally off. Sharp pain in my head woke me up at 3am this morning, but it subsided after a few minutes.

– Sharp pain (similar to a brief, intense headache) and slight dizziness, on and off.

– Feeling better today, yesterday evening was the worst. Second dose is going better than the first! Only dizzy the first day.

– Weekly diarrhea, same as the first shot. Occurs about two days, every 6 days for a couple of weeks.

– Once a week diarrhea ( lasts a day, for about a month or so after the vaccine;happened last time too)

Dystonia, Myoclonus and Seizure like phenomena

ZYR-28619-18512

– Dystonic reaction

– Assumed dystonic reaction (uncontrollable body Jeriking)

– Dystonic reaction Doctor office visit with primary

– Uncontrolled twitching and muscle spasms

– Muscle spasms

– Muscle jerking

– Muscle spasms and jerking

– Muscle jerking twitching and locking. Causes trouble catching breath during more severe episodes Two medications to limit symptoms and referral to neurology

– Myclonus Neurologist

– Myoclonus

– Myoclonus, blurred vision and other vision changes that come and go Three medications to control myoclonic jerks

– Myoclonus vision changes

– Myoclonus has worsened and I am now have more seizure like episodes. I am seeing a neurologist but these started after the vaccine. In office visit with neurologist, MRI test and EEG test

Body temperature fluctuation, Ear infection and Bronchitis

ZYR-33319-17691

– Temperature is fluctuating.

– Period just started

– Im just feeling blech cause of my period. Im fine.

– None today, but last night, felt feverish with no fever.

– The fever was late last night and was gone when i woke up, but now i have an ear infection and ringing in the ears, so that's nice. I'm on antibiotics now, yayyy.

– Pretty sure this is all connected to the antibiotics I'm on for the ear infection

– Just the ear infection and ringing in the ears.

– Stopped taking the antibiotics.

– Period started yesterday

– Ringing in the ears past couple days. Forgot to document it, sorry

– Just a bad cold, i think. Covid tests were all negative.

Rash papular, Psoriasis and Upper respiratory tract infection

ZYR-85387-16533

– Cough

– Cough, Sore Throat

– Cough, Trail of raised bumps on back of arm opposite of injection site

– Cough. Raised bumps on back of upper arm, opposite injection site

– Hives around joints; Cough

– Hives; Cough

– Cough; Rash distal to injection site

– Rash to face/ears; Cough

– COVID exposure & actively symptomatic; Fever started 1 hour ago; Not yet testedRash-face & ears

– Severe headaches, sore throat, congestion, extreme fatigue, increased heart rate, and cough COVID test scheduled

– Headache; Sore throat; Runny nose/Congestion; Extreme Fatigue; Exertion with ADLs

– I had unconfirmed Delta variant COVID-19, based on clinical presentationI also was treated for a bacterial URI, a UTI and have developed psoriasis

– Long COVID-19 symptoms; Sore throat; Fever intermittently; Cough; Severe fatigue; Cough; New onset Psoriasis; Severe headaches intermittently, but on regular basis

Exfoliative rash, Petechiae and Injection site swelling

ZYS-10112-91460

– The injection site became swollen and red again.

– The petechiae rash that appeared approximately 2 days after the 1st dose continues to spread but isnt causing any discomfort.

– Rash continues to spread slowly. It covers about 50% of my body.

– Rash (that is separate from the injection site) continues to spread and change of skin texture (small bumps and scaly) noted. I sought medical advice for this and have seen 2 physicians who were unable to diagnose this condition.

– Full body rash continues to spread

Urinary tract infection, Paranasal sinus discomfort and Sinus congestion

ZYS-13483-38285

– Soreness in my underarm on the side I got the vaccine

– Soreness in my armpit on the side I got my vaccine

– The armpit on the arm I got the injection is very sore but no swollen gland as far as I can tell

– Pain in armpit on side where I got the vaccine

– Headache for the past 2-3 days

– Soreness in the armpit on the side I got the injection (same occurred w dose 1 as well)

– Headache, some congestion

– Swollen underarm gland

– Sinus pressure and congestion

– Recurrent UTI COVID in Aug 2022

Joint instability, Alopecia areata and Breast swelling

ZYS-31478-93691

– I had dental work today and take antibiotics before it- therefore the diarrhea ( I think) The preparation for 2 crowns caused the headache.

– Slept for most of day after taking Tylenol and drinking water

– Right arm is just a bit sore and itchy at site of second injection

– Before being vaccinated, in February/March 2020, I believe I had Covid. Various systems occurred after recovering, heart rate increasing with slight exercise, fatigue, and various rashes. Recently itching and slight swelling around breast. All improv

– Arthritis- knee gave way. Alopecia areata Dr.'s office

– I believe the two symptoms are not related to the vaccine. Knees frequently ache. This time of day, I feel a bit chilly.

– palpations, probable related to my current medication saw primary Dr

Oligomenorrhea, Abnormal dreams and Intermenstrual bleeding

ZYT-17651-94206

– Constantly running nose (unrelated??)

– Redness and itching had increased since yesterday but still mild

– Still having and remembering very vivid dreams nightly. May not be connected or related to vaccine but timing seems semi-causal.

– Vivid dreams last night 11/20

– Vivid dreams

– Vivid dreams (I don't have these often but seem to correlate with each vax dose)

– Still irregular menstruation (peri menopause?). Went 49 days once between cycles. And spotted at 16 days in between other cycles.

Mobility decreased, Arthritis and Tenderness

ZYT-21131-67617

– Soreness of the muscle at the injection site.

– Arm is still tender; mild symptoms.

– Arm is getting better. I can bump up against it and not jump.

– Arm is just about normal. Bumping the arm produces no reaction.

– Just want to go to sleep.

– Arm is tender and sore at the injection site.

– Cannot lift my arm above my head. Took 200 mg of Tylenol to ease the pain.

– Injection site is still tender, but I can raise my arm above my head.

– Arm does not feel tender and I can raise it up fully extended. But if I press up against the injection site, it is still tender.

– Just felt that I couldnt stop scratching the area of the injection site.

– Injection site is no longer itching.

– Painful arthritis in left shoulder and elbow. On May 17 my doctor prescribed Tylenol Arthritis and physical therapy. Physical therapist has not called to schedule an appointment.

Vessel puncture site phlebitis, Antinuclear antibody and Inflammatory marker increased

ZYT-28727-85197

– Increased mucus secretions

– Sleeplessness

– Hiccups

– Generalized body and joint pain and swelling. Lower back pain constantly

– Sore throat, cough

– Muscle aches and pain, joint pain and swelling, elevated inflammatory markers, positive smooth muscle and ANA.

– Muscle weakness and swelling in right arm, right eye dryness, twitching, crusting at night, and abnormal labs. Positive ANA, elevated sed rate, crp, and smooth muscle Allergy doctor, with new referral to rheumatologist and neurologist

– Generalized muscle pain and swelling, phlebitis with venipuncture

Electrotherapy, Respiratory tract irritation and Balance disorder

ZYT-50936-92765

– A little lack of balance in the morning, but it is gone.

– Fatigue

– Some lung irritation at night.

– Possibly some tinnitus when it is very quiet. I noticed it at 1:30 am today, when I was up and it was very quiet outside.

– The pain is in my neck, which has been a problem for years, but it was especially problematic today despite: norco, aspirin, ice pack, and electic shock therapy.

– My cervical spondylitis has been bothering me more than usual.

– Teeth chattering at night.

– Minor teeth chattering.

Lip pain, Toothache and Oral herpes

ZYT-99397-45687

– I had a headache preceding the vaccine and did not take OTC Med so it is likely my symptoms were not from the vaccine

– 1 week plus 1 day after the vaccine I developed a lip coldsore. I was not sick and I attribute it to the migraine that I had following the vaccine (had a headache before the vaccine that turned into a migraine after the vaccine).

– I had a slight headache before the vaccine- I am prone to them. A few days ago I got a second lip fever blister which is extremely unusual for me

– Feel great! #2 was better than #1 vaccine

– Dental pain - I dont think there is any connection to the vaccine as the same molar was a problem several months before the vaccine Dentist office

– Sorethroat episode and a second diarrhea/vomiting episode

– A bout of sore throat, runny nose, some aches

– Slight sore throat, headache, body aches for part of one day. I did a home COVID test and it was negative. Took Med for headache and felt fine next day.

– I have had 3 occasions of a small lip coldsore in the last month which has never happened before

Cardiovascular symptom, Hot flush and Feeling hot

ZYU-11615-63011

– I noticed my heart rate was elevated when I was driving home from my vaccination appointment yesterday. But not since then.

– Body aches, hot flashes, chills, & joint pain returned and lasted approximately 3 days.

– One evening I had an episode where I truly feared I might be having a heart attack. My chest hurt, hands were tingly, I was short of breath, and my heart was racing. I was very hot and uncomfortable. It has not happened since.

Cataract, Injection site joint pain and Costochondritis

ZYU-22684-55854

– I forgot to mention a stuffy nose and mild coughing

– The headache is mild. The muscle ache radiates out from shoulder upto neck area. That's how it was for the first shot. No real pain but achy ness from neck down to shoulder area.

– I still wake up each morning with a slight headache. Thr shoulder and neck pain is almost completely gone. But it does hurt when i try to swing my arm back and forth.

– I have COPD. I take Trelegy which prevents coughing. Yet, since I've had the second dose, i wake up coughing, which i have never done. The headache is mild, but i wake up with a mild headache every day.

– Very, very slight headache and minor muscle/joint aches in shoulder and neck area

– The muscle aches are mild, mostly in the shoulder and neck area.

– I still have a cough, and shoulder ache especially when I lift my arm.

– The arm I received my shots in is aching. Particularly the shoulder joint. Can't reach, etc, without some pain..

– Extremely bad cold with terrible cough. Very fatigued. I'm much better after a week. But cough remains. If it doesn't get better soon, will go to my doctor. Shoulder joint aches.

– Constant ache in shoulder joint.

– My shoulder joint still aches. I also was diagnosed with costochondritis 3 weeks ago. Very painful, however I recovered quickly. Follow up with my primary doctor.

– Symptoms of a cold coming on and ear ache

– Same aches and pains (muscles and joints in hips and back) for the last few months. Will meet with doctor soon

– Still experiencing joint pain, also weight gain. Have been to the doctor. Waiting for test results.

– Vision problem. Was diagnosed with cararacts. On Friday I have dermatologist appointment. I'm pretty sure I have psoriasis. In person visit with ophthalmologist

– These problems may have occurred whether i received the booster or not. I now have a cataract which came on suddenly. Also, my psoriasis flared. Have terrible joint pain and must see a rheumatologist. Eye doctor visit and saw a dermatologist

– Definite psoriasis, possible rheumatoid arthritis, and a cataract. Appt with dermatologist and eye doctor

– Ended up in the hospital with pneumonia. Was there for 5 days.

Vocal cord paralysis, Vocal cord disorder and Dysphonia

ZYV-20422-05266

– Itchy skin during last night

– I have a lazy vocal cord. About 10 days after the first dose, I began to have more trouble speaking. After the second dose on 3/10/21, I got much worse with also having some trouble drinking and catching my breath. Saw my ENT 3/15/21. Vocal cord barely moving. Went to the Emergency Dept. last night. Im on steroids and will be starting voice therapy. The Emergency doctor wondered possibly the vaccine couldve affected the vocal cord.

– Paralyzed vocal cord.

– My voice, drinking water and breathing is better but going through that tense and scary time has affected my stomach.

Respiratory tract infection, Bronchitis and Asthenia

ZYV-23106-91819

– Soreness around the injection site

– Sore throat, runny nose and sneezing

– Fatigue and low energy, body aches

– Fever, body aches, headache (but It was within 24 hours after I took the 2nd dose of the shingles vaccine Shingrix so I think the symptoms were side effects of that vaccine).

– Occasional headache, sore throat, coughing

– Headache, nausea

– Sore throat

– Respiratory infection (runny nose, sneezing, coughing)

– Persistent deep cough due to acute bronchitis

Varicose vein, Poor peripheral circulation and Skin discoloration

ZYW-28138-39643

– This is actually my 2nd vaccine. I entered wrong date & cant fix it.

– Right foot swelled up for no reason then turned black. 6 days later. Went to ER. Took xrays & checked platelets then said i dont have a blood clot not to worry or do anything. My booster was given in right arm. My neighbor had same issue but also st

– Turns out my circlation in my right leg has gone bad h i have vericose veins that hat havent popped out yet so standing for long hours at work is what caused my foot & ankle to swell up then turn black.

Impaired quality of life, Bed rest and Bronchiectasis

ZYX-18799-90485

– Cough, congestion, short of breath

– Scratchy Sore throat

– Extreme fatigue. On Tuesday i was bedridden and just very fatigued the rest of the wek. Move slower, got less done

– I was sick 2 weeks with cough, body ache, headache, congestion in sinuses. Got better for acouple days and then had sinus infection In person with primary care

– For 5 days after shot i had increase body aches, headaches and fatigue Beginning oct 22 i am having Bronchiecstasis exacerbation

– Increased bronchiecstasis symptoms. Cough due to increased mucus

Mental impairment, Fibromyalgia and Rash macular

ZYY-12131-81145

– My thinking is kind of fuzzy.

– No appetite, my eyes ache and the light bothers them, I feel like I have a very bad flu, even my skin hurts.

– No appetite, memory and thinking is fuzzy.

– No appetite, anxiety, hard to think, depressed,

– I have had a circular shape, about an inch in diameter, that has a dark red rash made up of red pin point size spots that has been there for three days. It is on my left calve.

– Still have a round area of rash on the back of my left leg.

– I have a migraine headache every day. I take my medication for my headaches which help take it away but it comes back the next day. They have increased since my last Moderna shot.

– My arthritis and Fibromyalgia has flaired up. My hands hurt so bad i can hardly use them. I have had an increase in headaches since my last vaccine. I was given Plaquenil for my arthritis. Saw the Rheumatologist.

Restless legs syndrome, Breast swelling and Restlessness

ZYY-26447-04849

– Ears turned red for 2 days after shot. My face became flush.

– I have had watery eyes and watery nose.

– Leg cramps and restless knees when trying to sleep

– I've been experiencing knee pain. Pains in my knees that I've never experienced before in my life. I don't know whether or not it's from the shot but it seems like my knees and the area around my knees have been very sore for the past 6 weeks. Dr visit

– Continued joint stiffness, especially in the knees... I also get a sun-burn faster than I did before the Covid Shot. Dr. Visit for knee pain.

– Graver, swollen lifnoids that are painfully under my are, where I received my booster, in my breast and in my neck. I also had chills & 102 fever 12/24, 12/25, 12/26, 12/27 & 101 fever an 12/28. Low energy. I was extremely I'll after my booster shot Over the phone.

– left breast swelling

– Upper back pain

– The booster shot really took a toll on me. I haven't been ok since I had it. I have restless anxiety & pain in booth my knees at night.

– Swollen lymphnoids. Visiting my doctor today at 4:30

– Swollen lymphnoids and restless leg syndrome. Visit to my doctor's office. He subscribed immediate blood work to be done.

– I still have swollen lymphnoids in my chest and neck and under my arm, where I received my moderna booster. Office visits and blood work. I have been diagnosed with anemia

Telemedicine, Bronchitis and Dyspnea

ZYY-42237-85294

– It seems I have bronchitis. Have used in home Covid tests sent by gov and show negative. Cough sore throat persistent for 5 days now. Had virtual dr visit. Using otc meds at present. Will go to dr in person if not better tomorrow.

– slight sore throat

– I was tested at work in a nursing home and I tested NEG for Covid. My husband had a cold this weekend. I believe I caught his cold.

– Some congestion and shortness of breath. I have taken CV test and am testing negative. I believe I have a cold.

– Sore throat ? tested positive for Covid this morning and again this evening to confirm

– Sore throat - today is second day after confirmed positive cv test

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