Their Stories

Complex regional pain syndrome, Respiratory tract irritation and Thrombosis

3.19.2021 – Had a bit of whole body redness & slight swelling initially but benadryl knocked it out

3.20.2021 – Sore throat

4.13.2021 – I'm disabled/have CRPS/RSD in 3/4 of my body, hard to tell if I'm just flared up just because or if the flare up is related to vaccine. I suspect it's unrelated so am going to choose "mild" below, even tho the flare up pain is moderate-severe. Hope that makes sense

4.14.2021 – Again, CRPS/RSD pain slightly flared up but doubt that has anything to do w vaccine so hesitate to click joint pain, muscle/body aches & fatigue as I'm pretty sure it's all unrelated...figure I shld mention just in case tho.

4.15.2021 – CRPS/RSD pain still flared up, likely bc of weather. Otherwise I'm good today

5.7.2021 – Fairly severe pain in LUE/Shoulder, L hip & leg. Unknown cause for either, suspect over use due to CRPS flare up for shoulder/LUE. Suspect possible blood clot or similar in hip/leg (known issue, covid prevented tests/treatmnt last yr, see dr soon)

5.21.2021 – Pain in left (good) arm, so severe I cldnt sleep nor sit still. After approx 15mins it dulled & stopped approx 5mins later - at which point it did the exact same thing in right arm, WTH? SO WEIRD lolBreathings harder, on 02 tho so likely unrelated.

5.11.2022 – Itchy like possibly beginnings of rash, throat and lungs got scratchy for a bit but took benedryl and feel much better now

5.12.2022 – The "pain" is just around injection site, slightly sore. Also, I'm disabled: the question on next part should have an n/a option.

5.13.2022 – I often have migraines so it's likely the headache/migraine is unrelated to vaccine.

5.18.2022 – Had surgery yesterday. Also, the last few days my check in link wouldn't work so I couldn't update.The question on the next page shld be answered NA but if i did work, go to school ext then yes, I'd have missed today

6.22.2022 – idk if it counts but: I'm EXHAUSTED no matter how much I sleep. I'm mostly bed ridden due to unrelated health issues. Every time I try doing things I normally do to pass time I start nodding off before I can start, take a nap & repeat all day/night

8.10.2022 – Exhausted all the time, sleeping a LOT more than usual. I'm disabled so the work/school question doesn't apply to me. I plan to discuss with my dr at next appt but hvnt yet done so. Likely unrelated to vaccine. I haven't gone yet but will discuss with my PCP at next visit

Cardiac sarcoidosis, Sudden hearing loss and Deafness unilateral

2.20.2021 – Teeth pain? May not be related?

5.20.2021 – Persistent nocturnal expiratory lung find crackles

8.19.2021 – Tinnitus and sudden hearing loss verified by a hearing testI noticed it about the time I got the Moderna vaccine and finally got tested and sure enough, hearing loss. Hearing was fine when tested two years ago. Significant hearing loss in R ear.

10.25.2021 РSudden Unilateral hearing loss; ECOG test negative for Meuni̬re

6.7.2022 – Ringing in my ears

Electric shock sensation, Atrial fibrillation and Dysgeusia

4.1.2021 – A strong metallic taste in my mouth occurred and I did not associate it with the shot, but it hindsight, it clearly appear within a Day after the shot and is at about a 2/10 for today. On days 2-6, it was a 9/10 where I thought I should go to the doc

4.15.2021 – Metallic taste in mouth since first shot.

4.17.2021 – I had a metallic taste in my mouth from the first shot. The second shot put an end to that.

4.19.2021 – No, metallic taste has resolved.

7.15.2021 – Afib plus, neurological zings in my legs a face

Specialist consultation, Vertigo and Pain in extremity

3.18.2021 – This past Saturday morning (9 days after vaccination) i worked out, afterwards felt slightly dizzy when looking up. I woke up on Sunday morning with Vertigo. I have never experienced it before then. It passed within 30-45 mins. Happened again Mon eve Visited my primary physician. He said i was his 3rd patient to say that. Neighbor also said she was dizzy around the same time after her first shot. Since Monday, i have felt fine, no other symptoms except sore arm from shot.

10.11.2021 – I had a cold with congestion and coughing, was tested for covid - and it came back negative. I'm feeling better now

Skin warm, Sinus headache and Injection site swelling

2.5.2021 – One week after the injection, I suffered Covid Arm - a bright red, hot to the touch, intensely itch area about 6 in diameter. It took one week and a course of prednisone to disappear.

2.20.2021 – I had pain, redness, swelling, itching at the injection for 5 days but not today. Also fever, chills, fatigue and muscle aches 24 hours after injection lasting 24 hours.

2.13.2022 – Tinnitus Visit to dr

11.3.2022 – Delayed Covid arm symptoms with every Covid shot of intense itching, swelling, bright red hot arm from shoulder to elbow all the way around upper arm.

11.22.2022 – Runny nose, nasal congestion, sinus headache

Body temperature increased, Hot flush and Feeling hot

1.23.2021 – My fever never gave me chills at that temp. Simply felt like I was on fire. These are yesterdays symptoms as I was too ill to check my phone yesterday

1.26.2021 – Sweats this morning but faded by noon

2.25.2021 – Cough

3.4.2021 – Hot flashes through body that emulate the fever that traveled my body after the shot

3.11.2021 – I noticed last time I get sweaty and or hot. It is sporadic. It was similar to when I had a fever post vaccination. I would have hot traveling through my body. As at one pint my feet were the only hot part and I did a temperature and they were 103.8.

Patellofemoral pain syndrome, Eye hemorrhage and Joint swelling

12.22.2020 – Leg and foot cramps.

12.24.2020 – Leg cramps.

1.2.2021 – Had a left ankle sprain 12/21/20 when my joints were swollen and in pain. Sprain got worse after that but now still healing. Doing light duty at work. No weight bearing x2 weeks. Until 1/9/21.

1.10.2021 – Nosebleed.

1.23.2021 – Dizziness. Joint pain continues.

2.5.2021 – Bloody looking inner part of right eye.

2.12.2021 – Pressure headaches.

7.10.2021 – Increased shortness of breath due to previous COVID illness. Started on inhalers. Primary doctor.

1.2.2022 – Right knee pain/patellar femoral syndrome. Using brace. Have physical therapy referral.

10.4.2022 – Severe headaches and increased shortness of breath after covid infection.

Lung cancer metastatic, Inguinal mass and Lung neoplasm

2.6.2021 – Found a complex mass in my inguinal area requiring further evaluation, testing and surgery Had to get ultrasound, xrays and MRI and will need surgery

3.17.2021 – Tumor removed from my leg Inpatient surgery

8.11.2021 – Dx with CAD and also cancer.

11.1.2021 – Excessive urination

11.26.2021 – I have enlarged nodes, severely elevated d-dimer, rapid tumor growth, and lung tumor

12.5.2021 – Metastasis in my lung, node enlargement on side where vaccine given and cancer diagnosis Surgery

12.14.2021 – Unrelenting pain, neuropathic pain, GI distress

4.29.2022 – Blood clots, tumor

6.3.2022 – Cancer is worse. Tumors returned after covid vaccination.

Musculoskeletal discomfort, Injection site discomfort and Feeling cold

11.17.2021 – The chilled feeling was during the night. I am usually get hot when I sleep. This was a cold feeling and I could not get warm. It eventually passed. I was fine when I woke up.

11.26.2021 – I continue to mild discomfort with my arm/ shoulder where the shot was given. I would describe it as tenderness especially when raising my arm above my head. I didn't report this on my last check in because I wanted to give it a little time.

2.11.2022 – Not sure if it's related, but my booster shot seemed to create a lot of discomfort in my shoulder. After a couple of months, it seemed to go into my neck. If this is related to the vaccine, I am still grateful for the protection it's given me. Chiropractor Clinic

Cold-stimulus headache, Cataract operation and Joint swelling

2.27.2021 – Mild headache behind right eye similar to "brain freeze" from eating ice cream rapidly

6.18.2021 – Muscle cramps in lower right leg. As yet undetermined cause. Undergoing testing.000 Ultrasonic scans at diagnostic clinic

9.17.2021 – Muscle cramps in lower right leg.Intermittent swelling in lower legs, feet, and ankles.I had ultrasound tests for clots and other circulation issues. All ok.

4.1.2022 – Cataract surgery, which is unrelated to the vaccine series. Scheduled Outpatient surgery, then a prescribed period of reduced activity. Procedure and follow up were successful.

Hypoesthesia, Paresthesia and COVID-19

1.19.2021 – Tingling in my left leg that was similar to the tingling I had in my L arm post vaccine.

1.20.2021 – Numbess in L leg. If anyone is reading this I have lupus and am happy to share my entire experience! Please contact me!!! (b)(6)

1.28.2021 – Numbness and tingling on my entire left side of my body. Especially my left leg on and off since vaccine administered. Saw doc this AM was prescribed steroids, brain MRI.

2.5.2021 – Paresthesia on L side of body that comes and goes x20 days. On steroids. Saw neurologist last Thursday as was getting scared. MRI showed nothing acute. I have lupus already. Neuro said vax caused a neuro lupus flare.

1.14.2022 – I have covid

Poor quality product administered, Shoulder injury related to vaccine administration and Limb injury

2.13.2021 – Injection site pain, left arm pain

2.15.2021 – I have possibly have shoulder related to vaccine administration (SIRVA). My vaccine was placed way too high and I probably have shoulder bursitis. My brother is an orthopedist and consulted with him

2.17.2021 – Bursitis secondary to shoulder injury related to vaccination administration

2.18.2021 – Shoulder injury related to vaccine administration-bursitis

2.19.2021 – Shoulder injury related to vaccine administration

Abnormal menstrual clots, Polymenorrhea and Muscle tightness

4.20.2021 – Bruising at injection site, sore breast in side of injection

4.26.2021 – Bruising still present green and purple at injection site

5.11.2021 – Headaches, tightness in chest

5.17.2021 – Headaches

5.24.2021 – Chest tightness, headaches

7.19.2021 – Tired, stomach tight most days, more frequent headaches

10.18.2021 – Extremely abnormal periods. Clots, heavy bleeding. Every two to four weeks. Chest pain continues. Headaches continue.

4.19.2022 – Increased headaches and neck soreness, period abnormalities

Defecation urgency, Spinal pain and Pain of skin

2.21.2021 – Painting in the garage. I ran out of energy at 4:00 PM and had to take a nap.

2.22.2021 – About 30 hours after receiving the second dose of the Pfizer vaccine my legs felt heavy as lead and I was completely exhausted. I immediately went to bed. I woke up this morning feeling fine.

9.30.2021 – On day 2 (yesterday): In the morning, stabbing chest pain from sternum to spine. Identical to my heart attack four years ago. Only one jolt this time. Followed by dizziness, nausea, need for bowel movement and to vomit. Blood pressure was 120-ish

10.2.2021 – Mild headache. Went away after drinking electrolytes ( water, salt, lemon).

10.3.2021 – Balance not perfect

10.11.2021 – Swollen lymph nodes in arm pits and chest. Skin painful to touch. 3D day. Normal temperature, blood pressure, & heart rate. Fatigue.

Heart rate irregular, Rash pruritic and Heart rate increased

1.8.2021 – Fast heartbeat yesterday AM

1.9.2021 – Heartbeat irregular for 3rd day in a row but I have that now and then

2.4.2021 – Faster than normal heartbeat

2.9.2021 – Not sure this is related. Ongoing problem with occasional weakness may be heart related. I scheduled an outpatient clinic visit in one week.

8.6.2021 – Sinus infection Swollen glands

1.6.2022 – Rapid heartbeat

1.7.2022 – Elevated heart rate

1.9.2022 – Lightheaded with faster than usual heartrate

2.2.2022 – Itchy rash reported before continues on both arms/ armpits

2.10.2022 – Heart : irregular beats, weakness I've had this condition prior to vaccination but it has become more pronounced Discussed during routine appointment with NP

2.16.2022 – Very fatigued last weekend Monday 13th went to bed mid morning for an hour, felt mild intermittent flashes of pain in my chest

7.16.2022 – Fever

7.19.2022 – Mild fatigue

Hyperthyroidism, Upper respiratory tract infection and Sinus congestion

1.16.2021 – Nasal congestion

6.27.2022 – Nasal congestion, runny nose, sneezing, mild sore throat- home antigen text negative x2 symptoms probably r/t allergies

8.23.2022 – Upper respiratory infection - multiple antigen tests for Covid all negative over 3 week period-had sore throat and sinus/head congestion now resolved- also cough that is decreasing gradually- saw PCP for yearly exam- lungs clear- never had any fever

10.6.2022 – Head and chest congestion; runny nose, sore throat; cough- no fever; Upper respiratory infection- not Covid- caught a cold from exposure to grandchildren with URI's non Covid

11.3.2022 – Diagnosed with hyperthyroidism after routine yearly lab work

12.22.2022 – Upper respiratory infection w/sinus congestion, runny nose and cough. No fever. Negative Covid antigen test x4 over past 8 days. No known exposure to Covid. High exposure to grandchildren who are in pre school and have frequent URI symptoms, nonCovid

Atrial tachycardia, Coronary arterial stent insertion and Injected limb mobility decreased

12.28.2020 – Unable to lift vaccinated arm straight up.

12.29.2020 – Nausea mild in morning

1.30.2021 – I had headache day of vaccine and I had 2 tylenol tablets 2 hours before vaccine given.

1.31.2021 – Nasal congestion

3.18.2022 – Chest pain, SOB, weakness. Cardiac catheterization with 2 stents placed. See above

4.28.2022 – Paroxysmal atrial tachycardia Holter monitor ordered

5.12.2022 – Nausea, headache, fatigue, mild cough

6.30.2022 – Covid positive Monoclonal antibody infusion

11.17.2022 – Fatigue, muscle aches, nausea, night sweats

Energy increased, Sleep disorder and Insomnia

7.21.2021 – Had trouble sleeping all night; woke up every 2-3 hours even though no caffeine; had a weird sort of energy that made my eyes open; also shot area was so in pain that it was hard to find a way to sleep

7.22.2021 – Having issues sleeping at night; too energized not normal to regular routine

8.3.2021 – Been nauseous every day since 3rd day of vaccination

8.10.2021 – Fever

8.12.2021 – There's a rash not at injection site but 90 degrees above/on top the front side of upper arm

8.15.2021 – Rash died down but came back a bit earlier but now seems to be done

9.16.2021 – Nauseous keeps coming up from time to time.

11.12.2021 – Been sick feeling back to back but not sure if from the vaccine or weather change

2.8.2022 – Rash, but unsure if it's from the cold. Nausea pretty much went away, but did come back once a week back. I think my body finally finished fighting the shots

Anxiety, Chest discomfort and Asthenia

2.4.2021 – About 5 minutes after the vaccination I started to feel light headed, got a tightness in the chest, nauseous, and felt weakness and very tired. They kept me about an hour. My symptoms continued to persist but not get worse. I took Benadryl that I stopped and bought on the way home. I took my blood pressure at home. The first reading was 127/90 and the second was 137/118. Its been six hours since I received the vaccination. My blood pressure has returned to a normal reading 113/78. Ive slept since arriving home. Im still exhausted. I have a faint feeling of anxiousness which was also a symptom I had within 10 minutes of being vaccinated.

Tinnitus, Migraine and Chest discomfort

4.30.2021 – Ringing in my ears; sudden and sharp pains in my head.

5.6.2021 – Chest pains

5.13.2021 – Headache that I cant get rid of, feeling like Im coming down with a cold or a virus. Tired.

5.20.2021 – I seem to have a headache every day.

5.27.2021 – Chest discomfort and pain. headaches. The headache seem to be occurring more days than not now. In person visit with two different doctors

6.3.2021 – Chest discomfort. Office visit

12.10.2022 – Sometimes sudden migraines or headaches behind my eyes, which I never experienced before having the Covid vaccine in general.

Pulmonary thrombosis, Pulmonary embolism and Muscle strain

3.17.2021 – Friday March 5-8 hospitalized for pulmonary embolism. Treated with blood thinners and continue to be on blood thinners. Clotting in legs and then both lungs. No health issues or clotting prior to seeing maderna vaccine. Some heart strain.

3.25.2021 – I was hospitalized a week following my second vaccine for pulmonary embolisms. Lucky to be alive!!!! Warning-some folks will have an autoimmune response and develop clotting in legs and lungs like I did. I had the maderna vaccine.

4.1.2021 – I was hospitalized within 5 days of my second vaccine for a pulmonary embolism

8.19.2021 – Many Blood clots in my lungs

2.19.2022 – Pulmonary embolisms after the second Moderna vaccine in both lungs have not gone way

Hangover, Staphylococcal infection and Sputum discolored

7.29.2021 – Uti

8.15.2021 – Due to hangover lol

8.29.2021 – Sinus headache, runny nose, itchy watery eyes, chills and sweats

9.3.2021 – Raw feeling in my throat when I breathe, occasional dry coughs

11.8.2021 – Pain in upper left ribcage and near heart/armpit

8.8.2022 – MRSA (+) UTI culture (late June '22) Swollen& red limbs in following weeks.joint pain, ollowed by congestion and yellow green sputum ,coughing up in mornings usually.Severe exhaustion and fatigue. 7/26 pcp (-). 8/7/22: r. Leg was swollen painful&red

Nerve compression, Chills and Pyrexia

3.1.2021 – The first night of receiving the second dose of the vaccine(Feb26th) I had a two degree fever and chills. I took two Tylenol and everything went back to normal.

8.27.2021 – I entered a clinical trial for a third Moderna vaccine plus a flu shot. I experienced chills, aches and pains. Plus I was fatigued. These symptoms lasted two days. By the third day everything was back to normal.

10.25.2021 – After my third vaccine on July 26, 2021 I experienced chills, slight fever, and a bit tired. I was fine the next day. I did a clinical trial and had a full dose of the Moderna vaccine along with the flu vaccine.

5.14.2022 – Lower back compressed nerves. Doctor visit and PT.

Multiple sclerosis, Sputum discolored and Skin warm

3.18.2021 – After 8 days the injection sight started to itch, got red and became swollen, after 3-5 days it cleared up.

4.3.2021 – Hard to tell, I have MS and Migraines so hard to tell if symptoms not not.

4.4.2021 – Have most symptoms BUT ALSO HAVE MS, so believe they are associated to my disease.

4.6.2021 – Think Migraine from weather as get them during extreme weather changes and we had strong front come thru today and supposed to continue tonight and tomorrow.

5.6.2021 – My left shoulder started itching again where they put the needle in from my 1st Covid shot and 2nd vaccination was in my right arm on April 1st. So the March 4th one is that stated itching again.

5.13.2021 – My left arm from the first dose is still itchy and noticed today little swollen, warm, and kind of mimics a mosquito bite.

1.19.2022 – ?? On heart palpitations, did not have cked as was at work

1.21.2022 – I have arthritis and feels like the booster sent my arthritis into overdrive. I'm not one to call in sick, just use pain killers, creams and keep moving and working. I also have MS, so I know moving is the best.

1.22.2022 – ? If getting Migraine which I get. Short day at work, but never call in unless on death bed.

1.23.2022 – Congestion, cough. THINK THE 3RD SHOT GAVE ME COVID

1.24.2022 – Joint pain not as bad as even yesterday, leathered up knees with Icy Hot and headed to work. With my MS I'm used to dealing with pain so until I start getting sick to stomach it must not be that bad.

2.2.2022 – I have a bad cold that won't leave. Keeps lingering around. Coughing up green/yellow stuff and blowing same from nose when not completely plugged.

2.15.2022 – Was feeling realing tired for some reason today

Feeling jittery, Hot flush and Insomnia

3.8.2021 – had very bad reactions day of my shot and that nigh t and next day.Rapid heart beat 3 different times about 3hrs after shot. That evening and night had labored breathing to the point i almost went to hospital. Was very gittery all night and could not go to sleep.Got maybe 2hrs sleep.Next day had headache off and on.Had a few hot flashes Thursday and a fever later that night...finnally started feeling better late Friday March 5th

Kidney infection, Vaginal hemorrhage and Intermenstrual bleeding

4.14.2021 – Unexpected Spotting - About 8-10 hours after my vaccine I started spotting which was unexpected because I had finished my period the week prior. The next day (the day after my vaccination) I spotted throughout the entire day and then today (two days after my vaccine) I slightly spotted. This is definitely abnormal for me.

4.15.2021 – Continued and increased unexpected spotting

7.12.2021 – Had a cold for a few days

10.12.2021 – I had a sore throat, congestion, runny nose, and sneezing. I got tested for COVID but it was negative so I assume it was just a regular old cold.

6.28.2022 – Two UTIs/kidney infections

Thyroid cancer, Generalized edema and Swelling

3.20.2021 – General body swelling. Brain fog

3.22.2021 – It is difficult to report accurately because I have cfs/me and symptoms are very very similar

4.22.2021 – Day of vaccine I had a metallic taste in my mouth for about an hour. I also had swelling of my left arm (vaccination site) that went from my shoulder to my fingertips. That subsided mid day on the 21st. Tintinnitis also occurred days one and two

10.28.2021 – Symptoms very mild and also intermittent

1.26.2022 – Excessive fatigue but due to my chronic fatigue syndrome, the exceptional fatigue may be cfs rather than my having another virus

5.4.2022 – Thyroid cancer surgery

10.4.2022 – I entered an incorrect date of my last booster. The correct date of my moderna booster is September 26, 2022

10.31.2022 – Mild Covid symptoms. I have been exposed to covid

11.8.2022 – Fatigue, slight sore throat. Husband tested positive for Covid 12 days ago. I have tested negative 3 times in 2 weeks

Fetal death, Pregnancy and Anxiety

4.13.2021 – I was actually broken out in hives before I got the vaccine and my hives seemed to clear up almost immediately after I received it. Very weird.

4.15.2021 – No fever but felt very feverish. Constant chills, migraines all day, and so extremely tired.

5.4.2021 – Not long after i got the vaccine, my fetus stopped developing. Not sure if related. Triage

5.11.2021 – Im pregnant as well but the fetus stopped developing. It gets removed friday. But was very very sick from shot today. Considered even calling an ambulance at one point.

8.9.2021 – I had some major chest pains. When I went to the doctor, they asked if I got the vaccine. Everything seemed normal. Could have been anxiety. Lasted 3 weeks. But we dont know for sure.

11.8.2021 – I had a swollen armpit since the shot on same arm but thought it was caused by possible breast cancer. Doctor said its likely from the vaccination as the other reason was ruled out as i dont have breast cancer. Rather have swollen armpit than Covid.

Vulvovaginal mycotic infection, Pneumonitis and Road traffic accident

1.22.2021 – Did not sleep well last night but fatigue today seems more than expected

2.25.2021 – Headache is a tension headache

3.6.2021 – Diarrhea - think it was anxiety related

5.21.2021 – Increased anxiety and depression. Very likely situation-related.

10.26.2021 – Was in a minor car accident this morning, so symptoms could be secondary to that

10.28.2021 – Joint and muscle pain are likely from the car accident I was in two days ago

10.29.2021 – Fatigue and aches may be from a car accident earlier in the week and limited sleep last night

11.8.2021 – Vaginal yeast infection

11.15.2021 – A cold - congestion, runny nose, cough, sneezing GI pain

11.29.2021 – Hip joint pain (probably from a hike yesterday)

4.25.2022 – Upper respiratory virus, fever, cough, chills, aches, pneumonitis

Deep vein thrombosis, Pulmonary embolism and Fatigue

3.11.2021 – On Feb 23rd I was diagnosed with an extensive blood clot in my leg (DVT) and some pulmonary embolisms (blood clot in the lungs), the doctors told me it was due to a knee surgery I had Feb 1st, my birth control pills and I have May-Thurner syndrome, but I wondered if the vaccine could also of contributed since I had my blood clot less than a week after my 1st vaccine and I read about links between vaccines and blood clots in the news

3.12.2021 – Symptoms likely due to recent DVT and PE

3.16.2021 – Fatigue may be due to dvt and pulmonary embolism recovery