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Their Stories

What v-safe registrants wrote to the CDC after their Pfizer or Moderna shots, in their own words. Each card is one person, with all of their free text. This page shows only the longer stories: the 116,000 people who wrote at least 400 characters in all. The text is as the CDC released it, except that email addresses and phone numbers are hidden. You get a random set of these people on every visit.

Shuffle

Lung disorder, Muscle tightness and Sinus pain

ZTF-29194-70345

– Mild headache, on and off since Friday.

– Real headache today, butcI get these about twice a month anyway....

– The evening of the second booster I felt very tired, and had chills that night, and very tired and achy until 11:30 A.M the next day, when I suddenly felt fine.

– Headaches, but these are not unusual for me.

– A bit more lung difficulty than normal, but I do have asthma. I've had to use Albuterol twice.

– Migraine today. (Stopped taking Flovent last week, with fairly rapid decrease in headaches, sinus pain, and muscle tension. Hope today is an outlier.)

– Headache following 3rd booster 9/15/22

Intestinal operation, Fibrocystic breast disease and Abdominal operation

ZTG-11129-14886

– Skin irritation on the underside of my wrist maybe a rash.

– About the time you stopped asking daily I was having some pain in my arm and that lasted about 3 days aching arm& down into my hand sometimes a dull ache -sometimes it was a sharp jab I couldn't explain it any other way than the vaccine arm.

– shot on Monday. Tuesday night fatigue&fever in night. Wednesday night again fatigue& fever in the night

– Fatigue at dinner time temperature 98.7 late evening night sweats headache in the night this temperature is high for me I run a degree to a degree and a half lower than normal people.

– Late afternoon headache. Night time period of warmness.

– Knot where shot was. Breasts also "thick feeling

– Knot at shot sight on hip. Only feel it when lying on that hip at night

– 5 days ago Headache Massive all day &sore into next day3&2 days ago no energy & head felt big ..thick.. yesterday and today felt like fever. registered one today. 99.3past 4 days left waist hurts. Hip muscle kidney? UnknownNeg Covid test 4 days ag

– Left arm shot, left leg body ache, knee joint, shin.calf. ANKLE pain enough to get Tylenol

– Much less than yesterday/Aches in left leg.

– Got this shot 4 days ago most of my symptoms and side effects are gone. It's a little late to be asking me about things

– Unrelated to vaccine as far as I'm concerned. Kidney stone and intestinal surgery two unrelated situations. I will answer the questions within this survey based on covid symptoms

– I had surgery so I'm not sure if it's from surgery or from covid but extreme fatigue is an issue. This survey no longer asks about people within our community and within my immediate circle that have covid. My husband has covid

– Everything medical since May has been non-covid related. I attribute being current on my boosters for avoiding covid within my own house (husband) one week post surgery And not contracting covid from hospitalization and multiple doctor visits abdominal surgery & unrelated kidney stone issue

– Mild acke in arm of shots

– Stiff arm of shot

Helicobacter infection, Sinus pain and Sleep disorder

ZTG-13913-72751

– Very tired

– swollen gland in armpit

– Swollen gland in armpit

– Itchy, inflamed rash on right hand and fingers. Symptoms relieved with hydrocortisone cream and improved with Benadryl. Repested intermittent bouts of diarrhea in the past week.

– Diarrhea, Vomiting, body aches, fever, tiredness, itchiness on hand

– Headache, fever, painful sinuses, congestion, runny nose, fatigue. Covid test on 3/25/22 Negative.

– Swollen glands in shot arm. Armpit area.

– Swollen glands in underarm area

– Swollen glands under arm

– Sneezing, runny nose

– Few hives on back of hands/fingers

– High blood pressure have an appointment

Systemic lupus erythematosus, Head discomfort and Rash

ZTG-14876-50185

– Headaches and pressure still present and seems a little worse. Its been over three weeks since my first shot. All my muscle and joints aches still. I am tired ALL the time.

– Lupus flare from vaccine, dr. Confirmed

– Previous Covid infection detected on bloodwork. I had tested during the time I thought Obwas sick and it was falsely negative. I was convinced the vaccine caused my Lupus Flare but it was the combination of the infection and then vaccine too soon.

– I have a terrible rash on my scalp. Ive never experienced this in my life. I think its from having Covid Itself or from getting the shot not knowing I had previously had Covid.

– Nausea, stuffiness, headache

Toe operation, Nail operation and Spondylitis

ZTG-20367-23294

– Very slight headaches Comes and goes

– Insomnia intermittent

– Insomnia/headaches/some loss of smell

– Sudden headaches that I had to lay down and sit still

– Some insomnia

– Insomnia slight loss of smell

– Insomnia

– Ongoing pain from top of my chest from shoulder to shoulder especially in the neck front area. Insomnia and slight loss of smell PCP

– Chest discomfort A need to make medical appointment

– High BP. Visited ER. Minor surgery on right big toe. Removal of ingrown toe nail. Still in pain.

– B12 Rx Sleep apnea Urinalysis

– Arthritis lower back; right hip

Erythema and Lymphadenopathy

ZTG-29659-04124

– swollen lymph node on injection side under the arm

– slightly swollen lymph node on injection side under the arm

– redness under the arm towards the chest and slightly swollen lymph node on injection side, swollen lymph node is getting better

– lymph node swelling under the arm on the injection side and the redness is gone

– swollen lymph node on the injection side in arm pit

– swollen lymph node on injection side under the arm pit

Abnormal menstrual clots, Injection site hemorrhage and Hyperesthesia

ZTG-85175-47790

– I have an odd line shaped bruise on my foot that appeared out of nowhere in my sleep. It is dark purple.

– I feel a little panicky. Sometimes dizzy, heart racing.

– Sensitive to touch, chest tightness (mild), dizzy

– Some very, very minor petechiae on upper arm near injection site.

– Tinnitus (mild), odd dreams, racing heart in sleep, stuffy nose, sore throat

– Very minor petichae near injection site

– I have swelling in hands and feet mainly, and really all over.

– Thick, sticky, black menstruation

Diplopia, Cold sweat and Sleep disorder

ZTH-11870-83299

– Body aches so bad I couldnt sleep and I was crying, even after taking tylenol

– Sore throat

– Dizziness, feeling very out of it

– Sweating/clamminess, feeling very hot (for a person who normally feels very cold)

– Felt very very hot, sometimes feverish, but never had a fever (also I am someone who is always cold)

– Dizziness- like the room is spinning, sometimes almost seeing double

– Heart palpitations, dizziness/lightheadedness, sometimes shortness of breath

Oropharyngeal discomfort, Breast tenderness and Throat tightness

ZTH-25902-44794

– Increased heart rate

– Breast tenderness and soreness

– Body aches. Just back and chest pain

– Odd throat reaction where I felt my throat closing

– Odd throat swelling but still can breathe and swallow

– Throat concerns with swelling inside throat still going on.

– Throat swelling

– Throat still bothersome but progressing well

– Still having throat problems. Progressing and getting better.

– Dizziness and extreme fast heart rate occasionally

Blood pressure fluctuation, Hypersensitivity and Heart rate increased

ZTH-27891-84723

– Elevated heart beat. Blood pressure 121/68/89 the last its the heart beat . I do have hi blood pressure and wen my blood pressure goes done like this one then my heart beats elevates I lay down and its better . I just checked my blood pressure and it is 124/72/82 I am okay

– I experienced some body itching, but I had this in the passed because I have food allergies and trees, and environmental and I stopped gating my allergies shots once a week . Because I New I wanted to get the COVID vaccine and didnt want to interfere with the symptoms. Today I taken 1/2pill of Zyrtec and got better. I want to know if I can take Zyrtec for allergies?

Pleuritic pain, Nasal disorder and Post-acute COVID-19 syndrome

ZTH-29700-64600

– I just got vaccine 4 hours ago.

– The FIRST vaccine dose side effects was worse than this second dose.

– 2 weeks ago, had a 6 day illness of extreme fatigue, 2 day headache & a couple days of 101° fever, muscle weakness, sore throat & nasal congestion; no coughing. Then ok.

– Increasing joint pain--maybe a flare-up of my autoimmune illness (Sarcoid Arthritis). Had a steroid injection to left knee at Dr's office yesterday & talked to him about this. However, today i seem to be feeling better.

– Pleurisy type pain to left chest/ lung area...pretty severe since last night. I've had pleurisy years ago with pneumonia so i know the feeling. I've tried coupke different meds for the pain...Advil works best. Started 5 days after booster occasionall

– Upper respiratory infection ×4 days...temp was 101 for 2 days & coughing and wheezing has been constant. Ugh i feel sick lol.

– Am better now, but last week i had awful cough, 101° temp, congestion, problems with sense of taste & smell etc. I had a Covid test 2 days ago and it was NEGATIVE.

– Flare-up of Sarcoid Arthritis (autoimmune illness) again...happened also after one of vaccines or last booster.

– Starting about a little over 3 weeks ago, i began having a bad flare-up of my autoimmune illness, Sarcoid Arthritis. It is especially affecting my hips & thigh muscles, besides main joints. Much weakness in thigh muscles...hard to walj at times.

– October 4, 2022, tested positive for Covid. Almost 2 months later i'm still experiencing some symtoms (GI & nasal). Per Dr, long-Covid.

Exercise tolerance decreased, Dyspnea exertional and Hot flush

ZTH-31694-54313

– Chest discomfort, hot flashes

– Mild soreness at the injection site with exercise

– Pain at the injection site when exercising

– I run out of breath easily and have low energy, since the vaccine. I am not able to keep up with the exercise I was used to, pre vaccine.

– Difficulty breathing when exercising since receiving the shot.

– Still running out of breath easily and difficulty breathing with activity (walking and exercise).For the following response my normal activities such as walking and exercise did not cause me to run out of breath as they do now.

– Out of breath easier, joint pain.

– Shoulder joint pain

– Shortness of breath remains, more sensitive to outdoor allergies.

Lethargy, Lymph node pain and Myalgia

ZTH-71596-62733

– Lymph node in my right armpit is really sore, I got the injection in my right arm. On March 6, the day after my vaccination, I was very lethargic. Only two side effects I've noticed so far.

– Painful lymph node in the right armpit. This is the arm I got the injection in.

– Swollen lymph node above clavicle on side I got the injection

– Continued tenderness in a lymph node above my clavicle on the side of my body I got the injection in. Less swelling than previously though.

– Lymph node on the side I got the injection is still swollen

Cold sweat, Ear infection and Ear discomfort

ZTJ-15352-93857

– Ear/sinus infection

– Sinus pressure

– Ear pressure/Tinnitus

– Possible high glucose reaction. Clammy, ear pressure, chest pain.

– Approximately 3 weeks after 2nd covid shot, I had some chest pain, sweating that prompted me to go to the ER. Ultimately saw a cardiologist, had nuclear stress test, EKG. Nothing definitive found. Dr prescribed meds in event of a blockage. Follow up visit with a cardiologist.

– Typical cold symptoms. Scratchy throat, stuffy nose, body aches.

– Tested positive for COVID on 1/11/22

Bursitis, Mobility decreased and Flushing

ZTK-13087-71651

– I had what I would describe as an adrenaline rush about 1/2 hr after my injection while driving home. Got hot and flushed. Didn't feel well for about an hour.

– No

– Congestion headache x 2 days Covid swab required by work as I am a nurse-out of work tomorrow

– Covid swab neg from yesterday. Cold sx resolving

– Past two days feel like getting a cold. Nasal congestion, runny nose, mucousy throat. Had second vaccine 7 days ago. This happened after first vaccine too. Same time frame. Prompted a covid test. Had mucousy throat when I had covid back in April.

– My right arm has continued to bother me since I got my first covid shot in January. Almost feels like bursitis. Trouble with movement. Made a drs appt in 2 weeks. Only scheduled appointment

– Continued right shoulder pain since first vaccine in January. Started physical therapy thee weeks ago. Pain is not in my deltoid but in my biceps. No imaging done. Reassessment is Monday Physical therapy.

Panniculitis, Ejection fraction decreased and Implantable defibrillator insertion

ZTK-14139-07325

– Phone call with Doctor regarding fever. She prescribed ibuprofen for fever and headache

– Lower back pain, constipation

– Bump on left leg

– Still have bump on left leg

– Panniculitis flae

– Headaches come and go

– Migraines seem more frequent.

– Sore throat

– Throat upper respiratory infection .on antibiotic

– Cold sore on lip. Dr prescribed valtrex.

– Swelling under arm on side shot was given. Resolved after a few days

– Off and on fatigue

Proctitis, Eye symptom and Lichen sclerosus

ZTK-17935-73928

– I have covid arm! About 10 days after my vaccine I woke up in the middle of the night with pain to the injection site. Since then my upper arm is warm to touch and today it is redder and more achy.

– its not new, but I STILL have covid arm. it has faded, and for the most part is not as warm, but just when I think its better, it starts getting warm and redder again. Today it is less red, so I am hopeful it will go away.

– my arm which had covid arm got hot and painful and itchy again last nite. its better now

– I had a weird bout of really rapid HR (134 on mt oximeter) and dizziness that I never had. Not sure if its related or not but it resolved.

– first, I had minor covid arm reaction this time (I had extensive covid arm for tree weeks last time) just increased pain, heat and very localized small rash for 2 days. But I have also noticed what appears to be LS. which is concerning.

– 10 days after my second vaccine I have had a cascade of autoimmune issues. Whether or not related to the vaccine is a good question. Im pro vaccine but concerned

– 9 days after receiving the second vaccine I got proctitis (had in past button for almost two years) and new onset lichen sclerosis. as my doctors have retired, I have a new GP and seeing new docs this month. also have a few other weird skin stuff.

– Eight eye pain and blurry outer vision. Same problem after second Moderna that I reported to vers. It was just resolving but came back. Unsure if related but suspicious.

– R eye problem persists that I described yesterday. Not sure if it's related to vaccine or not.

– R eye issue remains.

– My r eye still has distortions but improving.( unsure if connected to vaccine or coincidental?!?)

– Eye much improved but sone distortion .

– Unrelated to vaccine joint issues in knees .

Essential tremor and Tremor

ZTK-25451-15029

– Essential Tremors for the day after dose 1 and the following day increased to levels not experienced before.

– Essential Tremors, which were highly agitated over day 1 and 2 AFTER the shot were less on day three and remain elevated (but much less than Days 1 and 2 after the shot.

– Essential Tremors, which severally increased after the shot, have begun to even out.

– Essential Tremors have increased after vaccination.

Injection, Sciatica and Back pain

ZTK-30191-40337

– No

– I have sciatica so most of my ss related to this.

– Sciatica pain as usual Pain clinic as usual

– Sciaticia worse. Getting epidural stetoid inj next week. Headaches slightly. Sch treatment

– My sciatica worsening today

– My sciatica continues to be painful at times, depending on my position

– Still have sciatica discomfort

– Sciatica left hip, backache, and left leg

– Sciaticia

– Sciatica left hip

– My sciatica is worse. Had lumbar steroid injection today. Im hurting worse now.

– Had surgery, aspirated. After week in hospital back home on oxygen.

Mass, Skin burning sensation and Burning sensation

ZTL-13560-94749

– I forgot to check in on 12/24/20 - felt fine through the day, but had nausea and felt like I was going to have diarrhea for awhile after I ate dinner. I felt fine the next day though. Today, temp was 99.1, but never turned into actual fever

– I have been feeling fatigue, like it's hard to wake up, but it might just be work and holidays. I did forget to report that on 12/25 I noticed a lump on my head, I'm guessing an occipital lymph node

– I still have a swollen lymph node on the back of my head

– Covid sx started on 01/09/22: sore throat, cough, fever, body aches/headache/chills, heavy chest, burning feeling through face/head/down back of neck

Septic shock, Sepsis and Nephrolithiasis

ZTL-17577-58390

– Upper respiratory infection. Runny nose, cough, chest congestion.

– I have an upper respiratory infection, which accounts for the fatigue. A Covid test for this on 2/14 was negative.

– URI with coughing, chest congestion, and runny nose.

– URI that began 4 days before the shot.

– URI that began before the shot. Cough, runny nose.

– URI.

– Upper Respiratory Infection

– Mild cough.

– Upper respiratory infection, wit three negative rapid Covid tests.

– Kidney stone with sepsis and septic shock.

Testicular pain, Blister and Rash macular

ZTL-27934-47684

– I missed my April 10 check-in. On night of April 9, my head was foggy and I was very anxious, and I was able to sleep on hour that night going into the morning of April 10.

– A bump on my hand, another on back of my thumb, and two between by toes. All itched. The latter looked like poison ivy, but I've not been walking barefoot. The former two could be bug bites, but they are unusual spots to get bitten. All resolving.

– Testicular pain: Since the onset of symptoms (Thursday morning) I have had sore testicles. Though most of the rest of the symptoms have disappeared, the soreness of the testicles has not.

– Testicular soreness was much less than previous post-shot days, but still present.

– Like after my first shot, I yesterday found an itchy bump/blister on my right foot that looks/feels like poison ivy and is nearly translucent. I haven't been near poison ivy, and I have no other such bump on my body. This one hasn't yet resolved.

Gastric disorder, Specialist consultation and Balance disorder

ZTL-31935-72025

– Felt like legs were a bit unsteady.

– Not sure headache or fatigue is Covid vaccine related.

– Exhaustion. Stomach problems. Very possibly unrelated that is why I hadnt mentioned before but just since second shot havent felt 100% My GP Dr

– Do not know if related or mot. Have not had same energy level since second shot. Started having pain in side and tummy 2 days later and now worse. Again do not know if related but the energy thing is disturbing.

– Arms itchy to the point hard to sleep. Dr gave me cortisone shot. Seems to have helped. Also the Stomach problem persists that began two days after second shot.

Mental impairment, Seizure and Infection

ZTL-33885-58274

– A little bit of chest pain for about half hour after getting the injection

– Irritable

– Called Covid testing negative test results

– Unsure if theres anything to do with the vaccine

– After the first shot my seizures started after not having them since 2018. I got really sick like a cold on steroids to the point the had me get a Covid test. I havent beenAble to work because of being sick.

– Headaches, still having seizures, congestion and runny nose it switches up, very clouded mind cant focus or think right I wont get the second one

– Still having seizures and still sick either congestions, infection, bad allergies, cloudy head

Breast mass, Breast pain and Menstrual disorder

ZTL-44837-91461

– Lightheaded

– Menstrual cycle came early and heavy with lots of clotting.

– Blurry eyesight.

– Blurry vision off and on.

– Period is heavier than normal and clots are larger than normal. More stomach issues.

– Blurry vision and lots of migraines.

– Lumps in breasts

– I had a breast biopsy a few weeks ago. All of a sudden that location has a burning sensation.

– My menstrual cycle started a week early.

– Muscle aches

– Issues with period

Confusional state, Gastroenteritis viral and Abdominal discomfort

ZTL-44936-31204

– Runny nose, sneezing

– Fatigue, body pain, gastrointestinal symptoms. Was tested for Covid-19 and inflenza. Both negative. Diagnosed with stomach flu

– Can't sleep, diarrhea, fatigue, sore throat, sniffles

– Cannot sleep, pain all over, loose bowels, mental confusion, extreme fatigue

– Sharp pains in my chest, get out of breath, fatigue Checked my heart, everything is fine there, further testing to be done Saw my cardiologist, had a lexiscan

– Pain in chest and back, difficulty breathing, especially when I exert myself. I have consulted my cardiologist, been referred to a pulmonologist, both who have done a variety of tests. My rheumatologist is now caring for me as well My

– Fatigue, breathing problems, chest oain

Troponin, Mucous stools and Bowel movement irregularity

ZTL-57421-46374

– Mild tenderness when I touch the injection site, it feels swollen but does not look swollen.

– Mild tenderness when I touch the injection site.

– Mild tenderness when I touch the injection site

– On the 8th day after my vaccine injection I was sneezing and had a runny nose, it only lasted 1 full day. Since that day I feel fine.

– The injection site was slightly swollen and painful to touch, and painful when I contracted my deltoid muscle.

– Loss of apitite

– I'm not sure the symptoms I reported the last 2 days are a Covid-19 booster reaction, will have my cardiac consultation tomorrow.

– 1 week after booster had to go to ER, difficulty breathing, low blood pressure, high troponin level in blood, they thought I was having cardiac problems, sent me to ICU (CCU) wher they diagnosed me with pneumonia, in CCU 4 days, home now, improving s

– I'm having sporadic sharp pain, it feels like I'm getting an injection, at the site of my last Covid booster on Oct. 13th. It sometimes happens when I'm using my deltoid &/or biceps muscle, but it does not happen every time I'm using those muscles.

– I now have developed intestinal issues, diarrhea. I have had abnormal health since my last Covid-19 booster on Oct. 13, related to booster???

– I now have some intestinal issues, abnormal bowel movements, tested negative for c-dyf, think antibiotics while in the hospital caused intestinal problems.

– Intestinal issues, producing above normal amount of gas with mucous coming out with the gas and semi soft stool. Have an appointment with my primary care Doctor in 3days. Do not know if this is related to the last Covid-19 booster I received on 10/

Cardiac flutter, Hypoesthesia oral and Paresthesia oral

ZTM-17762-44068

– First day of shot felt headache and had tingling of my mouth and lips; second day had facial numbness around nose lips and

– Lip tingling hasnt fully gone away. Better than earlier this week but not fully gone.

– Still slightly noticeable tingling lips and slight headache.

– Face still numb like Novocain nose, mouth/lips, chin area and tingly.

– Numbness, lips, mouth, face

– Numbness face; dizzy

– Dizzy

– Dizzy; face numbness; face tingling

– Still slight numbness in face and tingling today.

– Slightly dizzy; vertigo

– Not sure if related but have started having fluttering heart palpitations. EKG, chest X-ray, Zio heart monitor, pulmonary function tests and bloodwork

Vulvovaginal pain, Pollakiuria and Flank pain

ZTM-20593-20402

– Vaginal pain around my labia, tenderness in my left armpit, nexk pain, the taste of medicine innthe back of my throat before taking tylenol to alieviate pain. Called my Drs ofc and spoke with nurse

– Frequent utination today too

– Tiredness most likely due to late night studies

– Feeling ver warm inside and need to be near the fan

– Ive had headache severalndays. Difficulty sleeping past theee nights

– Labored breathing during fast paced walking. Tired a lot. Blood pressure reading sent me to urgent care. Experiencing blurred vision difficulties, headaches, tiredness, severely high pressure readings

– Soreness on my left side

– Difficulty sleeping. Tiredness

Bladder operation, Trismus and Blood sodium decreased

ZTM-26919-34596

– Last night, dizzy, clammy, just off, but all gone this morning.

– One slightly, sore swollen lymph node in armpit area

– The lymph node swelling/pain reported yesterday

– Lymph node under arm still a bit tender

– Twitching muscle spasms in right leg and foot

– Resting heart rate elevated to about 110 bpm

– Swollen tender right armpit

– Lymph node swelling and pain

– Lymph node and breast swelling

– Swollen lymph nodes and breast

– Lymph node and breast swelling and pain.

– Nothing Covid related. But had a procedure/surgery on bladder and obtained a STUBBORN UTI, having a hard time getting rid of it. So tired. Sure it is post op related.

– Low sodium blood levels.

– The sciatic I had about 4 days after the vaccine has spread to nerve pain in the arms, legs and very bad in the neck/shoulder area. Muscle spasms and severe nerve pain as well as swelling in the neck and throat area. Difficult to swallow, open mouth 2 negative home Covid tests. Waiting on PCR. Doc prescribed Prednisone, ibuprofen and a muscle relaxer. I did have a positive Covid contact May 6-8 unknowingly. PCR.

– Continued lymph node swelling and neck swelling. More fatigue and nerve pain. 3 negative Covid tests. Office visit with my family doctor

– Email

– Swelling in mouth and neck but decreasing on prednisone

– Swollen lymph nodes ? actually doctor identified Friday

– Lymph node swelling

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