Their Stories

Impulsive behavior, Aphasia and Mental impairment

3.11.2021 – I could not speak, think clearly, or follow directions 24 hours ago while hospitalized.

3.12.2021 – Extreme forgetfulness

3.13.2021 – Still have brain fog and impulsivity

3.14.2021 – Axillary tenderness on injection side with radiating pain into breast in spasms

3.15.2021 – Right arm weakness/ pain (constant), left axillary pain intermittently Called PCP and scheduled follow up with neurologist

3.16.2021 – Affected arm has pain from shoulder through hand constantly Neurology consult

3.17.2021 – EEG from neurologist

3.31.2021 – I had a headache unlike any past experience, global and more in the back of my head two days ago all day, and bad enough that it woke me during the night that night. It self-resolved.

4.14.2021 – The left side of my neck and left axillary glands are enlarged. Starting three nights ago, I noticed left upper abdominal pressure that worsened while laying down and can no longer sleep on my left side due to pain radiating up through side to my jaw

4.21.2021 – Left sided chest pain, worse with lying down, and palpitations

Gluten sensitivity, Esophageal spasm and Eructation

1.22.2021 – Dizzy

1.24.2021 – Heart racing when I get around much

1.25.2021 – Short of breath, heart racing, dizzy

1.26.2021 – Heart racing short of breath

1.27.2021 – Sore throat short of breath heart beating hard

1.30.2021 – Short of breath

2.4.2021 – Fullness in abdomen, pain in abdomen and left flank, tiredness low grade temperature, belching, uncomfortable in torso, short of breath, heart beating hard occasionally, all seems more present as the day goes on.

2.11.2021 – Stomach pain nausea diarrhea bloating

3.5.2021 – Nausea diarrhea abdominal pain weight loss

3.12.2021 – Nausea trouble swallowing bloatingStomach ache

5.14.2021 – Difficutly swallowing, chest tightness, just found out I have a gluten intolerance out of no where, possible autoimmune issue, and fatigue

8.13.2021 – Esophagus spasms, dysphagia, GERD In person endoscopy and colonoscopy and scans and blood work and looking for celiac disease

Acupuncture, Ocular discomfort and Dry eye

2.12.2021 – body stiffness

2.16.2021 – heart rate abnormal mild

3.11.2021 – legs feel odd

3.25.2021 – My legs continue to feel unusual, not as strong as I expect. It's not really weakness as much as ache or pain behind my knees. My legs are really tired after a 2 to 3 mile walk which I do 4 to 5 days a week.

4.19.2021 – Feel unsteady on my feet. Not dizzy but wonky. Right hip pain.

6.3.2021 – Right hip/leg pain In office with hip specialust , M D. Acupuncture in office treatment.

3.6.2022 – Eye discomfort diagnosed as extreme dry eye. in office doctors,eye specialist, office visit

Hypogeusia, Taste disorder and Ageusia

1.13.2021 – Right after I had the vaccine Jan. 12th I could taste medicine

1.14.2021 – A bit of loosing my taste

1.15.2021 – A loss of some taste but I can smell

1.16.2021 – Some loss of taste but can still smell

1.17.2021 – Still some loss of taste

1.18.2021 – My taste is better today still not 100%

2.3.2021 – Loss my taste but not smell

2.4.2021 – Cannot taste

2.5.2021 – Still cannot taste

2.6.2021 – Taste still not 100%

2.7.2021 – taste not 100%

2.8.2021 – My taste not 100%

2.9.2021 – Still cannot taste 100%

3.16.2021 – Both my legs have been hurting. I may check with doctor

Scar pain, Gastric disorder and Cardiac disorder

3.18.2021 – Slight heavy chest

3.20.2021 – Slight lymph swelling on the right of the neck that is now gone. Dry cough that is also now gone.

5.12.2021 – New stomach issues. Think it is an ulcer. Doctor says nothing to worry about.

5.21.2021 – Searing nerve pain in my back.

5.27.2021 – Some odd heart issues. They have since been decreasing in severity.

10.13.2021 – Athsma and scar tissue pain from a surgury

4.14.2022 – Consistent nausea every few weeks. Headaches from medium to severe off and on making it hard to tell if it is allergies or covid.

Injection site discomfort, Abdominal discomfort and Decreased appetite

2.6.2021 – Migtaine-like headsche for two days easing the third day, fine the fourth day.

5.22.2021 – Daily headache, cough, low grade temperature, fatigue ; negative covid test two+ days after these concerns

10.28.2021 – Soreness at injection site but no pain.

11.1.2021 – The site of the vaccination itches occasionally and has from the beginning.but it's slight and passes quickly. My husband,.(b)(6),.said the same. As a result we have simply been checking 'none' where it's asked.

1.24.2022 – About three days of more than usual fatigue, loss of appetite, unsettled stomach, slight daily headaches.

Facial pain, Sinus headache and Wheezing

3.14.2021 – Not sleeping soundly for past 3 nights since vaccine 2.

4.1.2021 – Headaches

9.9.2021 – Felt nauseated, feverish, fatigue, dry cough, body aches last week.

3.11.2022 – Had a head cold & one day low fever the week after Christmas. Been having headaches and nausea for last 2 weeks, ending March 10.

6.29.2022 – Fever , fatigue , stuffy nose

7.1.2022 – Fever, stuffy nose, fatigue,

8.19.2022 – Sinus congestion, sinus headache, facial pain & pressure, dry cough, fatigue, throat congestion, wheezing, diarrhea, runny nose, sneezing.

Heavy menstrual bleeding, Injection site pain and Nasopharyngitis

1.14.2021 – Dizziness

1.21.2021 – Dizziness, unsure if related

8.5.2021 – I have no idea if this is related (I would have never assumed it was but heard something on NPR) My periods are now weeks to 30-days long. Im also 51 and nearing menopause but heard something about women having altered periods/flow & mentioning

2.6.2022 – Congestion and headaches

12.9.2022 – Pain at injection site. Feels like bruising

12.13.2022 – I think I just have a common cold. Tested negative for covid but it's been going around my workplace.

Adverse drug reaction, Neoplasm malignant and Parosmia

2.7.2021 – Ones marked are side effects of my cancer drug and chemo drug I am taking

2.13.2021 – Cancer side effects joint pain and upset stomach certain smells will upset my stomach!! Tiredness due to 12 he shift lack of sleep up early to drive in snowing weather and very cold windchills

5.10.2021 – Allergic reaction to my cancer meds body rashes break outs on meds and creams for them Family Doctor cancer doctor and dermatologist doctor

8.7.2021 – Side effects of my new cancer meds with rashes throughout my body and legs burning

2.6.2022 – Dealing with my side effects of my cancer drug today! Breaking out in rash that's hurts under my stomach roll! Tired today no energy! My body aches today and I took my pain meds for it!! I did get my Covid booster 2 weeks ago! Using my creams that doctor orders and pain meds that he prescribed for it

Blood pressure decreased, Cardiac flutter and Burning sensation

4.9.2021 – This all could be related to a stomach bug that is going around

10.9.2021 – Stomach Upset

10.11.2021 – Elevated heart rate and lower blood pressure

10.22.2021 – Burning, stinging feeling in my back between my upper spine and right shoulder blade. Also significant conjestion and occasional dry cough going on for some time now.

11.21.2021 – Heart fluttering. Wearing a heart monitor for two weeks for further diagnosis. May not be related to the vaccine at all Cardiologist appointment

Bradycardia, Lyme disease and Cardiac pacemaker insertion

2.25.2021 – Nausea, headaches, fatigue

3.25.2021 – Flu like reaction to 2nd dose for 24 hours

4.15.2021 – Mystery rash on left breast (same side as shot in left arm) had it for about 10 days?? Mammogram

6.10.2021 – Rash on my left breast (same side as vax) dr thinks it could be reaction to breast implants from vaccine My primary care physician and gynecologist

11.15.2021 – Low heart rate dizziness

11.22.2021 – Swollen lymph glands underarms

11.29.2021 – Light rash on the arm injection site

12.6.2021 – Itchy rash on injection site, swollen underarm lymph glands

4.5.2022 – Bumpy red rash has appeared around injection site

5.13.2022 – Tick bite lyme disease Primary care physician

7.1.2022 – Ongoing rash on right arm around injection site

Migraine and Lymphadenopathy

4.22.2021 – Daily migraines, although they may not have been from the shot

4.26.2021 – Swelling in glands in neck and in armpit from arm with injection

9.4.2021 – Swelling of gland in the armpit of the arm with injection

9.5.2021 – Still have swollen gland in the armpit of the same arm of the shot

9.6.2021 – Swelling in glands of armpit on the same arm as the shot

9.7.2021 – Still have swollen gland in armpit of the same arm with the injection

9.11.2021 – Slight swelling of the glands in my armpit of the arm with the injection

Tendon disorder, Pleural effusion and Tendon pain

5.21.2021 – Swelling in Feet, Increased pain in Achilles tendon, Forearm tendinitis elbow to hands (new and severe) Spoke with Pharmacist regarding side effects and am trying to see my doctor asap

5.24.2021 – 7 days after the second covid vaccine I experienced extreme pain in my arms and hands, and leg and foot swelling with extreme pain. I saw an urgent care doctor today.

11.8.2021 – Pneumonia and right pleural effusion, severe bilateral arm to fingertips burning parathesia and cramping muscles, wrist/hand tendons popping causing severe pain. Small dime sized knots in arms and legs. Depression. Anxiety, Exhaustion, and Lethargy.

Histamine intolerance, Skin reaction and Specialist consultation

3.10.2021 – My skin was reacting as though I had lots of contact allergies. It was mostly on my arm(s). It is no liner happenibg, but occured for 7- 19 days I can't help but wonder if it was a reaction to the vaccine.It varied in how it looked.

3.17.2021 – Not new, but returning skin reactions....kind of like a contact allergy

3.24.2021 – Not really new, but skin reactions continue to occur

4.7.2021 – Not new, but rash keeps appearing/ disappearing. This week I kneeled on the grass/weeds in short leggings . Both calves broke out; it really bothered me with itching. I experienced, for the first time, rash on upper chest, w/slight swelling i spot

4.14.2021 – Rash that I have had all along ..still happening; Saw my NP, who said it is a histamine reaction. I went to rule out anything more serious . In person appt.

4.23.2021 – Sporadic rash continues. Appeared on top of my foot for the first time ... yesterday

4.28.2021 – Same reaction, rashes,but this week it appeared on the top of both of my feet This is the first time it has appeared on my feet. But made it uncomfortable to wear my shoes.

6.23.2021 – My ongoing rash is worse. My NP and my Dermatologist agree that it is from the vaccines. I start a new antihistamine (one if three I am/ will be taking. I had a breast biopsy&developed a raging case if the rash in that area. I still see outline 2 scheduled visits each with NP and Dermatologist

9.24.2021 – Not new, but rash since the first immunization ( I've had two) has continued, sporadically, as in the beginning. It appears to come out anywhere something touches my skin ( has always been that way).

10.31.2021 – Not new, still more occasional rash

11.21.2021 – Not new, but have had third vaccination and still have the rash

4.17.2022 – Tiredness _ for 2nd day

4.19.2022 – Rash, which I have since 1st injection of the 4, still appears

7.15.2022 – Nor really new, but vaccine rash, for which I have been prescribed as n additional allergy pill, seems to be occuring with more frequently than previously.

Colitis ulcerative, Lymphedema and Adverse drug reaction

3.10.2021 – Spacey, face a bit numb, slightly disoriented

3.11.2021 – Feverish as well as chills. Felt dehydrated though hydrating well. Bad chills last night.

3.13.2021 – Hot flashes

9.8.2021 – COVID like symptoms. Swab tests negative. I think I just test negative, plus Ibuse a neti pot that could throw the tests. Also bad antibiotics reaction.

2.2.2022 – COVID like symptoms. I REALLY wonder if people on certain meds &/or autoimmune issues aren't testing properly. On & off arm pain at site. Ulcerative Colitis a bit worse.

3.27.2022 – Sore throat, mild congestion feeling

4.13.2022 – Possible cold. Waiting for PCR test. Or allergies, sinus. Headache, sore throat, congestion, exhaustion, nausea. I wonder if due to immune issues I might not test right, though I still wear masks, distance, avoid most people.

4.27.2022 – Allergies, tired. Strange stomach issue over the weekend

5.4.2022 – Seems allergies/sinus

6.22.2022 – Probable cellulitis/dx cellulitis. Itching on my lymphedema arm, no visible skin problems

10.9.2022 – Stomach distress, tired, headache

10.23.2022 – Sinus infection types of things~ headaches, pressure, congestion, nausea. 2 neg COVID tests, so thankful for that!

Ulnar nerve injury, Cubital tunnel syndrome and Radiculopathy

2.5.2021 – I have cubital tunnel syndrome in the injected arm - the ulnar nerve feels a little irritated

2.6.2021 – Sneezing. Ulnar nerve pain in the injected arm

2.9.2021 – Bubble guts - not sure if it's related to the vaccine but I can't think of anything I ate that would cause this

2.10.2021 – Again,not sure if it's related but I can't think of anything weird I ate

2.26.2021 – Ulnar nerve pain again

2.27.2021 – Dizzy, ulnar nerve pain

3.26.2021 – Nausea/stomach cramps today. Don't know if it's related

4.9.2021 – The bicep of the arm that received the shot has been twitching inexplicably. Digestive upset.

12.17.2021 – Got the shot in the same arm that has cubital tunnel, my elbow is unhappy

10.31.2022 – Cubital tunnel pain

11.3.2022 – The past three days I've had gastro issues

Immunodeficiency, White blood cell count decreased and Platelet count decreased

1.10.2021 – Immunocompromised (Lupus). I take azathioprine 50 mg.

1.30.2021 – Today I have body aches and a temperature of 100.8 I may be suffering from a lupus flare up. This happens on occasions.

2.16.2021 РV̩rtigo

3.16.2021 – I have lupus. Vaccine accelerated my immune system. It did what it was supposed to do in order to create antibodies but now lupus has activated. Doctors office

5.4.2021 – About a month ago I had COVID symptoms so I was tested at an urgent care. Test results were negative. Maybe related to lupus. Upper respiratory infection.

1.3.2022 – I have lupus

1.4.2022 – Lupus, low white blood count and low platelet count

1.6.2022 – Lupus

1.15.2022 – Continue to have low grade fever and headache.

11.15.2022 – UTI, fevers

Influenza like illness, Influenza and Nasal congestion

2.4.2022 – Soreness around the injection site

2.5.2022 – The left hand that was vaccinated feels sore and hurts a little

2.6.2022 – In the morning I have fever and I take some Advil and now a better

2.7.2022 – I take Advil until this morning

2.25.2022 – almost every night I have a stuffy nose almost like the flu

3.4.2022 – There are a few flu symptoms and sometimes a stuffy nose

3.11.2022 – The first day I get 2nd vaccine, I have fever and my arm injected with the vaccine hurts

3.25.2022 – I have cold and flu starting Mart 20 until 24 ,but today a little better and just a little have running noise.

4.1.2022 – Yes, I have flu almost 1 week , runny nose, not feel better,

6.3.2022 – Cold and flu, but now is better.

Injection site bruising, Injection site swelling and Injection site pruritus

2.1.2021 – Beginning Thursday, January 28, Ive experienced what appears to be localized reactions at and surrounding the injection site: redness, itching, swelling, bruise-like pain on contact. Area enlarges daily. Covid Arm? Emailed my primary care physician today, but has not yet replied

2.8.2021 – Covid arm lasted for 10 days, so it lasted 4 days after my last weeks checkin. Red/itchy/swollen area kept getting bigger (from injection site downward to 2 above elbow, and entire front & sides of arm-only back of arm stayed clear)

Mobility decreased, Insomnia and Injection site pain

1.25.2021 – Was great up to 48 after vaccine and then extreme pain in the arm vaccinated moving into shoulder.

1.26.2021 – I believe I have had zero symptoms from the vaccine. I fully believe that I have symptoms indicating SIRVA. Pain started approximately 50 hours after injection. The actual injection site has never been an issue. This is a shoulder and arm pain issue and it is so significant I am unable to sleep. On Tylenol. Hopeful it goes away.

1.27.2021 – Better today and not freaking about this being SIRVA because Im better. Please update possible symptoms to indicate that pain may be beyond injection site and move into the shoulder area including mobility issues, challenges with sleep due to the pain. Anything I have read is limited to pain surrounding injection site.

Acne cystic, Neck mass and Gastroesophageal reflux disease

3.17.2021 – Felt flushed all over, general swelling and muscle spasm in pelvic area

3.19.2021 – Nausea started yesterday after i had already completed form lasted till about 11am today

3.22.2021 – lower abdominal on right side

4.2.2021 – swollen lymph node on right side, lump in neck on right side. Soreness in joints and especially feet.

4.9.2021 – Dizzy

4.10.2021 – Pain along tje right side of abdomen

4.12.2021 – Dizzy and racing heart weak all obwr

4.13.2021 – Slight dizzy

4.14.2021 – Hot flashes. Not having previously

5.5.2021 – Skin breakout got worse for awhile

7.11.2021 – Terrible acid reflux and burning in stomach and cystic acne which i've never had before

Multi-organ disorder, Stridor and Visual field defect

4.10.2021 – Each day since the vaccine was administered I have been having different organs affected by the vaccine. 1st within a couple minutes went into anaphylactic taken by ambulance to ED and was there 7+ hours being treated. Placed on steroids and Benadry.

4.17.2021 – Ive been Hospitalized because of the vaccine. Each 24-36 hours a different organ has problems. Started with anaphylactic breathing, strider, red rash, nausea, diarrhea, liver enzymes high, edema,bipap, cardiac changes, muscle cramps visual changes Therapy

4.24.2021 – Vertigo, continue to have GI issues

5.1.2021 – Vision extremely blurry continue to have arches on side of eyes. Peripheral vision worsen Visual check up being done in May

5.8.2021 – Vertigo

6.26.2021 – Fatigue Increase in Vertigo Increase in migraines

3.28.2022 – Extreme fatigue now lasting all the time I never feel good Also have brain fog and memory loss

Ear discomfort, Pneumonia and Anosmia

4.16.2021 – Upper respiratory cough and mucus

4.17.2021 – Upper respiratory cold

5.10.2021 – Pressure and ringing inner ear

6.2.2021 – Skin rash - unexplained, I am tearing at home but if it gets worse I will go to the doctor. And frequent headaches this week

12.7.2021 – Vomiting, nausea and fatigue for about 24 hours on 12/06/2021 until early this morning

12.21.2021 – Fatigue all the time and a dry cough

11.9.2022 – Covid in July 2022, loss of taste and smell, cough, fatigue, then pneumonia in August 2022

Chromaturia, Flushing and Feeling hot

3.30.2021 – Diarrhea and nausea 2 days ago.

11.1.2021 – I have a cough at night. This started after I had the 2nd shot and comes and goes.

11.2.2021 – Feel flush like I have a fever but when I take my temp its normal.

11.4.2021 – My urine has been a dark yellow ever since the booster.

11.5.2021 – Headache and Urine seem to have subsided.

12.10.2021 – My right arm where I got the Booster has been hurt to the touch and movement PCP

5.1.2022 – Mild cold since going without mask.

5.28.2022 – Cough at night

6.4.2022 – Cough at night in and off. May be allergies never had that before. I was exposed to 2 people who have tested positive. I have not gotten sick has of yet. 9 days out now since exposure.

Bursitis, Tendonitis and Photophobia

3.13.2021 – Small cough probably due to reflux

3.24.2021 – Nausea probably from having a mc chicken sandwich for lunch. Was feeling nauseous till about 9pm. No vomiting although the urge was there

4.14.2021 – Intermittent blurry vision

10.9.2021 – Shortness of breath when walking or exherting myself, sensation of hot skin

10.11.2021 – A little tired still

11.12.2021 – Muscle aches

4.8.2022 – Sinus infection, vertigo, muscle and sharp pains in thighs , bursitis in hips, tendonitis in elbows Drs. Office, physical therapy and physical therapy for vertigo

7.16.2022 – Viral infection. Negative covid and strep

10.5.2022 – Sensitivity to light

11.1.2022 – Sore arm again where the injection was given intermittently

Sneezing, Nasopharyngitis and Respiratory tract congestion

2.8.2021 – Sore throat

2.12.2021 – My entire family has a terrible head cold. NO fever.

2.13.2021 – Still have cold symptoms. Cough, runnu nose, just crrl poor. No fever

2.14.2021 – I still have a terrible cold. Congestion. Cough, generalized aching. No fever

10.1.2021 – I think I have a "basic" cold. Started sneezing yesterday, now sore throat and congested. Otherwise all is good.

10.2.2021 – Juzt have a bad bead cold. Congestion, etc. Responding to OTC meds

10.3.2021 – Still fighting a bad head cold. No fever, etc. Responding to OTC meds

Fear, Nervous system disorder and Hypoacusis

9.9.2021 – I'm autoimmune compromised n did have CoVid this past March.

9.10.2021 – My hearing sounds weird...n increased shortness breath.

9.11.2021 – Shortness of breath

9.23.2021 – I had active CoVid in March...n autoimmune compromised but after this vaccine I'm feeling HORRIBLE N SCARED TO DO SECOND!!!!! IVE had hair loss....nerves in legs making hard to walk. High fever entire time staying 101-102. Also nausea diarrhea cramps

10.11.2021 – RT sided chest discomfort/cramping

Epistaxis, Injection site pruritus and Injection site erythema

1.19.2021 – slight shooting pain on left back side of head

2.1.2021 – Itchy redness at site of injection that lasted for about 2 days. Redness was about 5 in diameter. No redness or itchy now.

5.24.2021 – Head cold: no fever; congested; a lot of mucous from nostrils; could bring up mucous from throat thru mouth also. Woke up early morning to discover results of a nosebleed from right nostril 4x; coughed up mucous with clots of blood.. Im now.

Ear congestion, Menstruation delayed and Head discomfort

4.17.2021 – Possibly allergies, but sneezing and congestion

4.27.2021 – Even more congestion in my head and to my ears. Head feels full of pressure. Have some headaches associated with the pressure.

5.11.2021 – Late menstrual cycle. A few days late so far.

6.1.2021 – I had hip/lower back pain after the second shot. It's better than before but I have worsening hip pain from a prior incident. Not sure if it's related, but I haven't done anything to reinjure it, only feels this way since second shot.

Tongue pruritus, Skin burning sensation and Pharyngeal swelling

4.8.2021 – I experienced itching and redness in my face, itchy throat and tongue, chest tightness 30 minutes after receiving the vaccine

4.9.2021 – Had uncontrollable shaking and racing heart last night Also called 911 last night due to the shaking and heart symptoms

4.21.2021 – Widespread faint rash and itching. Throat swelling if I dont take an antihistamine regularly.

4.28.2021 – I have continued to struggle with extreme allergy symptoms that Ive never dealt with before. I have a burning and itching under the skin on my face and my scalp. Eating and cooking foods have also made allergy symptoms flare. Taking Zyrtec daily.