Their Stories

Dermatitis atopic, Rash and Dizziness

5.21.2021 – The very day I received the vaccine I had a major headache & dizziness. I have atopic dermatitis & it reacted my skin. I just took my medicine for the atopic dermatitis & an Advil for my headache. 3 days after May 16th the day of my vaccine I felt back at 100%

5.22.2021 – Gained a rash soon after the injection. I have atopic dermatitis.

5.30.2021 – I continue to have a rash.

6.28.2021 – Rash all over my body Got refills on ointments

7.5.2021 – Continued rash & bumps all over my skin.

7.14.2021 – Rash all over

7.19.2021 – Rash

Skin reaction, Panic attack and Flushing

3.2.2021 – Face and neck have looked and felt flush today. It has felt like a sunburn.

3.3.2021 – Still dealing with rash on neck but it went away after noon when I took Allegra D

4.5.2021 – Started experiencing panic attacks after my vaccine due to the fact I was still experiencing red skin reactions sporadically for weeks after my vaccination. It was scaring me that nobody knew why it was happening and nobody could help me. In person doctor visit

8.30.2021 – Have inflammation in my body that seems to have sparked a fibromyalgia flareup. Clinic visit

Dysphagia, Lower respiratory tract infection and Gastroesophageal reflux disease

4.15.2021 – Acid reflux

10.22.2021 – Lymph nodes very enlarged/swollen in left armpit. Received booster in left arm. Lymph nodes very sore.

10.23.2021 – Still have soreness and enlarged lymph nodes in left armpit. I got my booster in left arm. My blood type is A neg if you need that

10.24.2021 – Still have swelling in left armpit lymph nodes

10.25.2021 – Still swollen lymph nodes left armpit but less now

10.26.2021 – Nasal Congestion /possible cold starting?

11.2.2021 – Caught a head/chest cold last Tuesday just now getting over it.

5.30.2022 – 3 At home tests positive for Covid , PCR tomorrow

5.31.2022 – Sneezing and nasal congestion

6.1.2022 – Congestion, sneezing

6.18.2022 – Tested positive again for Covid at home. Possible Paxlovid rebound according to my PCP

Dyschromatopsia, Paresthesia oral and Sleep disorder

3.28.2021 – Hotspot and redness in bicep area

4.21.2021 – I forgot to mention my vision changed a few days ago temporarily. IDK if its related or eyestrain.It was kinda strange like all of a sudden with my glasses on.

5.1.2021 – Little tingling in upper lips for last few days that comes and goes.Little tingling in index&pointer that comes and goes in the last few days.Sleep patterns have changed this week. Less sleep however wanting more sleepNausea started this am.

Ophthalmic migraine, Toothache and Flatulence

2.9.2021 – I just like my husband had seen diamonds that went only to the left! Thought I was having a eye problem but went away after 15 minutes! We cant get a appointment for our second shot can u help?

2.17.2021 – My toes are feeling numb

2.18.2021 – All my teeth hurt

8.17.2021 – Feeling like I have the flu! It comes about twice a week! All my whole body hurts! Never felt like his in my entire life! Have diarrhea when I feel this way! Fell like I am also in a brain fog!

8.30.2021 – Cough, gas

8.31.2021 – Coughing gas

Blood estrogen increased, Middle insomnia and Oral herpes

5.27.2021 – After the vaccine and the morning of the second day waking up, my fingers felt slightly numb briefly but went away after few minutes. Since then some muscle pain near spine, thigh pain when stretch, but it seems today finally Ive recovered from bo

6.3.2021 – earlier period/waking up with a night sweat

6.11.2021 – mouth upper inner lip cold sore, some headaches

6.18.2021 – back pain between the neck/left shoulder today

11.28.2021 – Prior to the first vaccination, I had a sonogram left underarm nodule. This month the module may have gotten slightly bigger/tender. Is this related to increased estrogen levels? Also I have a cold today: running nose, sneezing.

Energy increased, Knee arthroplasty and Hypoacusis

5.9.2021 – Feeling super. Had Covid already got the vaccine now the masks are history! Thanks

5.11.2021 – Feeling great. Going maskless

5.12.2021 – Thanks for asking, doing great. Going maskless.

11.6.2021 – Tinnitus and hearing deficits

2.1.2022 – Sinus infection

5.26.2022 – Just walked and biked 5 miles. Also cut the grass. Weight lifted. Ten weeks post op from a total knee replacement surgery. Feeling strong.

5.28.2022 – Feeling great. Working out, walking. No problems.

5.29.2022 – One hour workout with weights and biking. Feeling great!

5.30.2022 – Exercised one hour. Feeling great . Blessings to the heroes that gave it all.

5.31.2022 – Worked out over an hour this morning. Now getting set to walk. High energy!

Hypermobility syndrome, Periorbital swelling and Autoimmune disorder

4.6.2021 – Woke up with puffy allergy eyes, not my usual seasonal allergy response

4.7.2021 – Joint pain possibly due to RA flare

4.9.2021 – Due to RA flare.

4.10.2021 – Mild RA flair

4.11.2021 – Severe RA flare

4.12.2021 – RA flare

2.9.2022 – Tested positive for Covid and had light symptoms. Cough, congestion, tiredness. Plus autoimmune issues.

5.11.2022 – Had bronchitis for two weeks. Shortness of breath, tight chest, constant postnasal drip

10.1.2022 – Joint pain diagnosed as hypermobility. Gets worse with cooler, wet weather. In person specialist visit and physical therapy

12.31.2022 – Combo bronchitis/pneumonia Wet productive cough, chest congestion, post nasal drip In person primary care physician

Pemphigus, Foot fracture and Localized infection

3.4.2021 – Last night, I had chills as well. They resolved today

3.5.2021 – Last night, I had some muscle aches and chills, but it was better than the night before

6.2.2021 – Broken toes, which then got infected and led to cellulitis

9.1.2021 – Infected broken toe and flare of autoimmune disease, pemphigus vulgaris. Now on prednisone and cellcept.

11.8.2021 – Cough, runny nose, sneezing, hoarseness

1.3.2022 – Cough, body aches, sore throat, lethargy in context of known flu exposure

10.4.2022 – Started rituximab for my autoimmune disease, pemphigus vulgaris

Tension headache, Muscular weakness and Tenderness

2.5.2021 – I got nauseous and dizzy after taking the first shot, an hour after taking it and also the day after. Arm got swollen a week after getting the first shot. It was swollen, warm, and tender for a week before it went away. No other symptoms since.

2.7.2021 – My head feels tight and like its throbbing. Hurts around the base of my skull and the back towards my neck but around the bone that protrudes out

2.8.2021 – My neck has been extremely painful that its causing headaches.

Intervertebral disc disorder, Sciatica and Arthralgia

3.17.2021 – I had the injection less than 1 hour ago.

3.18.2021 – Hydration, ibuprofen and Tylenol help greatly.

11.9.2021 – Got the shot 15 minutes ago.

11.10.2021 – Headache and joint pain the worst part; aspirin & Tylenol allowed me to do normal activities.

12.21.2021 – Mild fever, cough, body aches, congestion, etc. Just got a Covid test yesterday; no results yet.

2.8.2022 – Covid (Omicron) Jan 8-20, 2022

10.8.2022 – Sciatica right leg

12.30.2022 – A couple of spinal disks have gone bad and I have a cold.

Nasal dryness, Dry eye and Seasonal allergy

3.23.2021 – A diarrhea that was unexpected leaked without my bodily permission. A co- worker had the same shot the same time and her experience was with sudden cramps and she pooped her pants, she could not control it! We both were wondering if it was the shot

3.30.2021 – Severe stomach cramps. Not sure, maybe a stomach bug I think.

4.7.2021 – Dry nasal and dry eyes

4.11.2021 – I have a sore throat and an ear-ache; could be seasonal hay fever.

4.15.2021 – I have noticed an increase of heart palpitations. This was before the news broadcasted Johnson&Johnson blood clot news; so I know the difference.

5.5.2021 – Sniffles, head stuffy. Could have been allergies.

5.11.2021 – New. My left side of my neck hurts, and my left ear. Headache too, on the left side. Could still be allergies.

5.20.2021 – Left arm sore, and left side jaw and gland area sore. I would have gone in to Dr. but other people in our community experienced same symptoms. One other had COVID 18 vacc, the other didnt. Just curious...;(

4.6.2022 – Hmm, well I will see my physician tomorrowmy heart periodically makes a "galumping' sensation. I have had palpitations before, but this is 'galumping heavy thudding if my heart' weird. In office; tomorrow.

Cutaneous vasculitis, Injection site abscess and Blister

3.17.2021 – Horrible pain in upper arm that pulses started 3 hours later

3.19.2021 – I have crohns so that diarrhea is normal

4.7.2021 – Small abcess formed near injection site but may be due to my crohns disease instead

5.4.2021 – Small blisters/sores on feet and lower legs appeared last week

5.11.2021 – The blisters opened and smaller red bumps have spread. Biopsies taken by dermatologist but waiting on results

10.14.2021 – Leukocytoclastic vasculitis on my feet and lower legs it might be caused by my entyvio treatment but its so rare to see that they aren't sure

Neck mass, Mass and Tenderness

3.15.2021 – Starting on Sunday, March 14, I noticed a marble size lump near by left collar bone, I think its swollen lymph node. It is sore to the touch but seems slightly smaller than yesterday.

3.16.2021 – Still small lump by left collar bone, think its swollen lymph node, only sore if pressure applied and reduced in size since yesterday

3.17.2021 – Still have small lump by left collarbone- swollen lymph node

3.18.2021 – still small marble size lump by left collar bone but it is not sore

3.19.2021 – Still lump by left collarbone but continues to shrink, now about size of a pea and it doesnt hurt

Bowel movement irregularity, Cold sweat and Dyspepsia

2.5.2021 – Diarrhea about once per week. I have anxiety and an evil digestive system; however, so Im not sure if this is related to the vaccine or not.

2.13.2021 – Muscle spasms and dizziness

2.26.2021 – 8 days after, my arm became sore again overnight.9 days after, I had severe diarrhea, sweats/clamminess, and vomiting.I have been ok since.

5.14.2021 – Digestive issues related to anxiety

11.19.2021 – Inconsistency with bowel movements

11.26.2021 – I have a bad cold.

10.29.2022 – Stiff neck the last two days.

Pelvic pain, Gait disturbance and Injection site bruising

3.13.2021 – Joint pain sometimes in my shoulder sometimes in my hip sometimes in my ankle

10.29.2021 – It was last night at 4:30 am ( @14 hours after the Moderna booster) that I woke up with a high fever- and took a tyelenol and ginger ale but could hardly walk so weak. Today I am much better no fever now but still a bit fatigued

5.12.2022 – Yesterday after my report to you I had headache and was exhausted for 5 hours then it went away. Ok today

5.14.2022 – Pelvic pain but had a hysterectomy years ago- no cancer- but last night woke up with pelvic pain

12.5.2022 – Tired

12.7.2022 – I still have a bruise at the injection site from 6 days ago

12.8.2022 – Still bruise at injection site

Tendon pain, Injection site discoloration and Contusion

3.17.2021 – Dime sized bruise at injection site is starting to fade. Pain at injection site and sore muscle below injection site to elbow is nearly gone.

3.18.2021 – Bruise is still visible, but all discomfort is gone.

3.19.2021 – Bruise at injection site is fading in color, but spreading out a bit.

3.20.2021 – Bruise at injection site has turned green and is bigger, but no discomfort.

3.21.2021 – Bruise is the same

3.22.2021 – Bruise is the same. No pain.

4.14.2021 – Injection site is warm to touch, but there is no redness or bruising. I suspect I have been experiencing a mild inflammatory response because my left Achilles tendon and my right hand and arm started flaring up yesterday afternoon and I havent engaged in the activities that are normal triggers. Exercising seems to give relief. This morning, it hurt my right hand and forearm to tie my shoes, but that is much better now.

Breast cancer, Breast pain and Hyperhidrosis

2.11.2021 – Pain & swelling under & to the left of left breast due to broken 7th breast. Due to history of breast cancer, PET scan sceduled to see if cancer has metastasized. Pain started 10 days after first vaccine shot in left shoulder probably not related. Also received in office appointment with health car provider

10.29.2021 – Sweating

4.29.2022 – About 20hrs after 2nd booster, I came down with sore arm at injection site, fever, and severe aches and pains in every muscle and joint in my body. Lasted about 24hrs, then gradually subsided.

Cognitive disorder, Disturbance in attention and Eye pain

3.26.2021 – Last night my headache got more intense and was moderate pain- and was debilitating- had to close my eyes and try to go to sleep to get rid of it. The pain was behind my left eye.

3.28.2021 – I still feel a bit of a spacey feeling in my head- not the clarity I know as peak health

3.29.2021 – Yesterday eve I felt dizzy and in the morning I felt a bit spacey - meaning not total mental clarity

3.31.2021 – Still feeling a spacey feeling in my head - like my mind doesnt want to focus

4.15.2021 – A bit spaced out - but still able to focus on studies

4.17.2021 – Some brain fog - hard to focus and concentrate on detailed info

4.19.2021 – Still feel brain fog - spacey quality, cognitive slowness

4.24.2021 – Brain fog

5.20.2021 – I experienced a lot of pain in my solar plexus after eating a large meal. Not something I typically have felt before. And it didnt appear to be food poisoning because others ate the food and were fine.Felt better the next day after finally sleepin

Injection site reaction, Neck pain and Pruritus

3.31.2021 – Soreness in neck/shoulder area above injection point

4.1.2021 – Neck/shoulder area on injection side; also elbow area below injection site.

4.2.2021 – Continued soreness at injection site and in neck muscles above injection side

4.3.2021 – Neck and shoulder area above injection site

4.4.2021 – Slight muscle pain in neck area above injection point

4.13.2021 – Itchy around injection site - nothing dramatic

4.30.2021 – Muscles in neck area on injection side of body continue to be sore since injection

Feeding disorder, Edema peripheral and Lymph node pain

2.17.2021 – Swollen lymph nodes under injected arm is quite painful (couldnt wear an underwire bc it hurt too much!).

2.18.2021 – Swelling of lymph node on injected arm is quite uncomfortable.

2.19.2021 – Swelling under my injected arm. Still!

10.1.2021 – I received the 3rd dose last week. The next day I had a fever of 101° and couldnt eat. The next day my fever broke midday. Please make sure that is noted in this record. Other than that, the lymph nodes in my injected arm were swollen for 4-5 days.

Abnormal sensation in eye, Dry eye and Impaired work ability

2.12.2021 – Immediately after the shot, I felt lightheaded. Then I felt like my face was flushed (though I had no temperature). My eyes also felt hot and dry.

2.19.2021 – Hot feeling eyes

5.15.2021 – I have a persistent fatigue I can't shake. I work long hours as a nurse, and I had been able to do three 12-hour shifts per week without a problem. I asked for a day off last week... and slept 15 hours the first day and 13 hours the next.

Breast hemorrhage, Immune system disorder and Breast feeding

3.25.2021 – Last night I started my first menstrual cycle since March 2020. I had a baby in November 2020 and am still breastfeeding. I had no indicators before getting the COVID vaccine that my periods would soon return. When I had my son in 2015 I breastfed him for over a year and it took nearly 21 months for my period to return. This happening right after getting the vaccine is very shocking. I researched this last night and came across a couple of articles noting that irregular cycles have been found in both COVID patients and those who have received the vaccine.

3.26.2021 – I reported that my menstrual cycle unexpectedly returned yesterday. It is extremely heavy, even worse than after I gave birth to my daughter in (b)(6) 2020. I'm unsure if it's the vaccine or my period but I have had a really bad headache since last night and I feel very "off" in general. My back was also hurting really bad last night while in bed. For the most part of the day today I felt like I was going to throw up. If my period gets heavier or I start passing any larger cloths I will be calling my OB/GYN this weekend.

4.13.2021 – Pain in rib cage, both from of body snd back

4.20.2021 – Severe back pain

4.24.2021 – Itching throughout body but no rash

5.27.2021 – Today I had my first appointment with a neurologist. I have to have an MRI of my brain for my continual ear ringing/pain, numbness on my right side of my body and eye twitching experienced after the 1st COVID vaccine.

7.21.2021 – My immune system is still in overdrive since getting the COVID vaccine. I had to begin taking a medication to slow my system. My blood pressure just recently went back down to normal levels (it was over 140 after getting the vaccine).

4.21.2022 – I still have headaches, chronic inflammation & fatigue. I had a CT scan of my head today. Every aspect of my life has changed as a result of the COVID-19 vaccine. WHAT A MISTAKE!

Therapeutic response unexpected, Musculoskeletal discomfort and Feeling hot

1.18.2021 – Small headache

1.19.2021 – Neck area felt a little strange last night and I felt a little off but it passed

2.9.2021 – Oddly the vaccine helped with the pain i have in a joint on my index finger and tennis elbow. Same arm i had the shot. Happened last shot too.

2.11.2021 – Last night face felt hot especially left side. Was hot all night but no fever. Face feels jyst a little warm on the lft side today

2.15.2021 – Yesterday Feb 14 i noticed a lymph gland in swollen at the base of my neck on the same side I received the second shot on Feb 8. Yesterday it was tender. Today looks still swollen.

Joint range of motion decreased, Nausea and Pain in extremity

3.11.2021 – While I didnt actually vomit, I felt like it. These symptoms started about 10-11 hours after my vaccine.

3.17.2021 – Similar arm pain to immediately after the injection. Its weird that it appeared after 4 days. It was somewhat restrictive to my range of motion. I had a little difficulty doing things with my left arm. I took some ibuprofen and it managed the pain pretty well. Still planning on working out this evening.

Thrombocytopenia, Irritability and Depression

1.4.2021 – Headaches

1.15.2021 – Swollen lymph nodes left axillary & left collar bone, bruising left axillary RN examination at hospital COVID vaccine clinic (I'm an RN at this hospital and received my vaccine here)

1.16.2021 – Swollen lymph nodes

1.17.2021 – Very slightly swollen lymph nodes

2.2.2021 – Swollen lymph node left neck (left collar bone lymph node still slightly swollen), brain fog, fatigue, irritability, depression

2.9.2021 – Ongoing fatigue

2.16.2021 – Seems like I'm catching a cold

2.23.2021 – Diarrhea for 4-5 days, lymph node under collar bone still swollen about the size of a lima bean

11.27.2021 – Seasonal Allergies worsened

12.11.2021 – Cold sore in corner of mouth/lips

1.29.2022 – Gestational thrombocytopenia, threatened preterm labor with positive fetal fibronectin

10.6.2022 – Got a cold

11.3.2022 – Heart rate elevated more than usual during daily walks for exercise. Usually in low 100s to 110s but has been in 120s. Could be a lot of reasons why: breastfeeding, baby still nursing overnight, allergies, went back to work (bedside RN).

External ear pain, Ear swelling and Middle insomnia

1.18.2021 – Slight Sore throat

2.6.2021 – A metallic taste after the shot, stil have it and it's been 8 hours. I gave drainage and i taste it in that. Sniffles, but had them before the shot.

2.8.2021 – Metallic taste

2.10.2021 – Insomnia, worse than usual sleeplessness. Also had heartburn and lots of air, gas not smelly just air, last few days I forgot to mention. Just weird stuff.

3.13.2021 – Fatigue. Mostly that. Also had the stomach pains return waking up in the night with that. Other just seasonal stuff? Runny nose.

2.8.2022 – Chronic cough, some depression

4.25.2022 – Some dizziness going on 2 days now, the fatigue is constant.

4.27.2022 – Several days stomach pain like dry feeling. I didn't list it before but this has been the entire time since day 2

5.11.2022 – Fatigue seems to be back. It wasn't so noticeable for a few days.

5.20.2022 – Having pain in my arms, lower arms and hands. Mostly constant aches with sharp stabbing. About halfway down my forearms to my fingertips. Never had this before.

5.25.2022 – Cramps and aches in my forearms. Wrists and elbows ache something awful. Cramps in my feet. Headaches. Brain fog. Had one day this week temp 99°. My normal 97.4 Vertigo. (? Stress) Generally feel bad all over. Took at home test results negative.

7.20.2022 – Fatigued. Very exhausted and sleepy all day. Headaches.

10.14.2022 – Had a low grade fever several days. My normal runs 97.4 and got 98.8 with up to 99 once. Just felt nauseous and tired.

10.21.2022 – Low fever, up to 99. Almost every day above my normal 97.6 with nausea. Just exhausted and feel yucky. No vomiting but woke in night thinking i was going to vomit. Stayed home monday. Today quarter size painful swollen area behind ear. No bite.

12.30.2022 – Persistent cough, took prednisone and antibacterial but it didn't help.

Corneal transplant, Intraocular pressure increased and Post concussion syndrome

2.4.2021 – My face flushed beet red 20 minutes after when I returned to my car. That subsided in 10 minutes. No fever when I took it 1 hr after the shot

3.4.2021 – Flare up of auto immune lichen schlerosis started flaring up 1 week post vaccine but may not be related.

3.6.2021 – Face flushed bright red at the facility at10 min with temp from 96.8 to 98.2 then lessened but still small amount facial flushing

3.28.2021 – Headaches after hitting my head hard.

4.10.2021 – Bad headaches. Concussion? From hitting my head 3/22(Had neg Covid-19 pre op test on Friday) Will see md Monday

4.17.2021 – Headaches continue/ post concussion syndrome no head bleed Md visit CTand X-rays covid test from 4/9 neg

6.5.2021 – Concussion Office visits

9.4.2021 – Slight Sore throat and slight headache 24 hrs a couple days ago.

11.5.2021 – Worst yesterday after v check in

11.12.2021 – Increased intraocular pressure. (I have had corneal transplantation and take steroid eye drops) Saw ophthalmologists and my corneal specialist will follow up next week after adjusting eyemeds

5.8.2022 – Bad virus 3 weeks with fever neg Covid test

10.28.2022 – Uti

11.11.2022 – Continue to have more fatigue than I expect since booster with activity

Injection site mass, Injection site erythema and Neck pain

1.23.2021 – Swollen, pain in underarm lymph nodes on left side where i had injection.

1.24.2021 – Pain/soreness in underarm on the side the injection was given

1.31.2021 – About 5 days ago the soreness at the injection site returned and i had a large red circle the size of a tennis ball appear. It lasted 2 days and then gradually went away.

2.15.2021 – Sore lymph nodes in armpit on side of injection

2.16.2021 – Swollen/ painful lymph nodes in armpit

2.17.2021 – Neck pain and swollen/ pain in lymph nodes in armpit.

2.18.2021 – Neck pain

Afterbirth pain, Postpartum state and Injection site paresthesia

8.22.2021 – I received the first shot 2 weeks postpartum and immediately felt like I had just given birth again. Perhaps there should be guidance on waiting to receive the vaccine after major surgeries/body trauma?

8.27.2021 – Injection site is still bruised and sore.

9.3.2021 – Tingling down arm from injection site to fingers. I recently had a baby and all wounds from childbirth throb (this pain has been gone for 2 weeks and started back up again about 2 hours after receiving the vaccine)

9.5.2021 – Lymph node swelling under arm, mouth sores

9.7.2021 – Swollen lymph nodes in armpit