Their Stories

Abdominal pain lower, Hypoesthesia and Nasal congestion

3.24.2021 – Light-headedness plus slight facial numbness

3.28.2021 – Stuffy nose and cough

3.31.2021 – Stuffy nose, just allergies.

4.7.2021 – Sore throat, stuffy nose, cough - but could just be worsening of allergies.

4.15.2021 – Numbness in my whole body for several hours overnight, numbness continued in face and neck all day

7.16.2021 – body aches and fatigue, slight cough and congestion

11.2.2021 – Light-headedness; numbness in face, arms, and hands

11.3.2021 – Slight numbness in face and arms

2.1.2022 – Dizziness and lightheadedness, numbness in feet

Cognitive disorder, Aphasia and Mental impairment

1.4.2021 – Slight warmth/weird feeling muscles/tingly/possible numbness up the left side of my neck and left side of my face(side of injection). About 15 minutes after the injection, lasting about maybe 1-2 hours. Hx of Bell's palsy in about 2010 2 months after H1N1. During the same time i also had molars pulled and a nerve ablation for neck pain. Bell's palsy could have been related to any of the above.

8.2.2021 – Have had memory issues and other cognitive issues like word finding, decision making, balance and headaches. Also had a sinus/sore throat and lost my voice episode about a couple months ago.

Injection site hypoesthesia, Musculoskeletal stiffness and Ear pain

3.15.2021 – Stiff neck, ear ache, headache, severe pain

3.16.2021 – Stiff neck, muscles top of head down into neck very painful

3.18.2021 – Pain from the crown of head to base of the neck

3.20.2021 – Stiff neck

4.5.2021 – Neck and headache connected pain!The frequency of the neck and headaches is problematic

4.26.2021 – My neck is stiff turning is extremely painful! Opening my is painful; moving around is painful. What I dont understand is there very short periods when its okay!

3.18.2022 – Continuing numbness and sometimes pain in the arm where I received shots.

Body temperature decreased, Irritability and Sleep disorder

2.15.2021 – Sleeping issues, irritability

2.16.2021 – Temperature 95.4°F

2.17.2021 – Temperature 95.4

2.18.2021 – Cant sleep through night. Must take nap during day

2.25.2021 – I have been foggy, tired, and lack appetite. I feel the vaccine not as bad as the disease, but the limited space I can type can not allow me to explain what Ive been through in the first dose of the P vaccine or the effects of my mom to the M va

3.5.2021 – Lethargic

3.6.2021 – Swollen Lyohnides under injection armpit

3.18.2021 – Nausea/diarrhea... sleeplessness

4.15.2021 – Migraines

9.5.2021 – Third round of vaccine to pfizer

Mobility decreased, Peripheral swelling and Sinus congestion

5.6.2021 – Mild tingling or numbness in areas

5.8.2021 – Some sinus and chest congestion since the first day but its going away.

5.29.2021 – Diarrhea and joint pain.

6.10.2021 – Swelling of hands and feet. Flexion of hands and feet were impaired for over 12 hours. Intense deep muscle aches and joint pain when I tried to move. Had chills for four hours the first night. Spent entire time shivering really hard.

6.12.2021 – Numbness in hand and foot, same side of body that I received the shot on

Skin irritation, Urticaria and Hyperhidrosis

3.3.2021 – Sweating

3.4.2021 – Itching. I woke up having had scratched myself. On the face, hands, arms. Scratched hard enough for welts and/or broken skin.

3.6.2021 – A couple days ago I woke up having had pretty severely scratched myself in several places. I cannot recall if I have already reported this.

3.16.2021 – Have had several headaches when I typically do not often have headaches.

9.23.2021 – Currently experiencing some shortness of breath and chest tightness that does not completely resolve even with use of my respiratory medication.

3.26.2022 – Consistent joint pain

Pulmonary edema, Cardioversion and Herpes simplex

1.22.2021 – I have IBS & stress triggers it

2.17.2021 – I had a herpes attack but it has now cleared up. It was more severe than usual

3.4.2021 – I had a reaction after my second injection. I had fatigue soreness loss of appetite for about 3 days. No fever

10.25.2021 – Had a very hard time for two days after injection

10.26.2021 – I have Afib & had to do a cardio version today afib with cardioversion

10.27.2021 – Had a cardioversion yesterday for Afib

10.29.2021 – Just out of the hospital with pulmonary edema & on prednisone so doing pretty well

Tongue ulceration, Stomatitis and Tenderness

4.2.2021 – Mid back pain on shot side and arm is still very sore. Lymph nodes under arm and neck area still swollen and a little tender

4.3.2021 – Swollen lymph nodes my collar bone area

4.12.2021 – Yesterday I felt leg pain all day. It was all my leg and my bones, had not experience that before the vaccine. I just took some aleve for some relief. Today I didnt have any leg pain.

4.28.2021 – My lymph node is swollen again and this time causing discomfort.

5.3.2021 – My lymph node is swollen again, mild discomfort

3.31.2022 – I had an allergic reaction in the middle of the night. Had not eaten anything since about 7pm that night. Also have developed sores in my mouth and tongue.

Poor peripheral circulation, Muscle fatigue and Middle insomnia

10.8.2021 – I awoke last night with severe unexplained leg pain in my upper thigh, which I still have. It's the situation I experienced following my first dose of the Moderna Vaccine, which I reported to my doctor at the time.

10.9.2021 – I still have the left leg pain I described yesterday but it's more intense and radiates down my thigh; just like after my 1st Moderna vaccine.

10.10.2021 – Continuing leg pain in my left thigh

10.11.2021 – Same leg pain

10.13.2021 – I'm still suffering the same intense leg pain that I also experienced following my first Moderna vaccine. It's extremely troublesome.

10.14.2021 – Still have same unexplained leg pain

10.25.2021 – Muscle fatigue, especially in my legs, diarrhea, nausea and vomiting

10.29.2021 – My blood pressure has gone up and is staying up Regular doctor

10.11.2022 – PRE-COVID/VAX: Preexisting high BP/Irreg Hrt Rhythm controlled by same Rx beta blocker for years. POST-COVID/VAX: BP Spiked/Freq. Irreg Hrt -Rx dbl +2nd Rx, later dbl +3rd Rx < Syst BP BP uncontrollable,< irreg ryth, now poor feet circulation Frequent Dr. Appts. to monitor BP, Irreg Rhythm, and now poor circulation in feet

Colitis microscopic, Diverticulitis and Sleep disorder

2.9.2021 – Interrupted sleep last night

3.9.2021 – I have arthritis and it varies.

6.2.2021 – symptom of diverticulitis but not formally diagnosed. I have an appointment on Monday the 7th with my MD as my first episodes was in April and it lasted 3 weeks but now the symptoms have recurred so will see my Internist. will be at the clinic

9.1.2021 – Diagnosed via biopsy with Lymphsotic microscopic colitis Clinic and colonoscooy

10.9.2022 – Sore knee caps but better now.

Kidney infection, Nephrolithiasis and Rash erythematous

3.15.2021 – Itchy, Red Rash at injection site that started on 3/10/2021 and was hot to the touch. As of this morning area has grown but is no longer hot to the touch and is lighter in color.

3.31.2021 – Pain under arm where injection was given

4.1.2021 – Pain in armpit area of arm of injection site

4.2.2021 – Pain in armpit of injection arm

4.3.2021 – Pain in armpit of injection site arm

4.4.2021 – Pain in armpit of arm of injection site

4.5.2021 – Pain in armpit of arm where I got injection

3.29.2022 – Kidney stone and infection

Sinus headache, Productive cough and Decreased appetite

4.14.2022 – Mild arm pain day 1 post shot

4.29.2022 – Sniffles. Allergies??

5.6.2022 – Got a full blown head cold as did my wife intense sneezing, intense runny nose, feeling tired..light cough sone sinus headache. Tested twice and NO Covid duration 8 to 10!days start to finish.

5.15.2022 – Very bad head cold with duration 8 to 9 days. Excessive sneezing fur two full days. Very runny nose. Thought it was allergies initially. Not so. Wife had exact same cold. Same duration. Hough probability it was caught from visit with grand children

9.27.2022 – Yes, tested first time today positive for covid

10.3.2022 – Appetite is light, dry cough especially nights, some sputum, improving daily from covid.

10.10.2022 – Increased cough with phlegm at night, early morning and before bed

Vulval ulceration, Diabetes mellitus and Decreased appetite

3.28.2021 – Severe body aches & pain, no appetite, watery diarrhea. SOB

4.9.2021 – Covid diarrhea. Tested positive 3/15, hospitalized until 3/20. Had cough, muscle aches & pain, loss of appetite + the diarrhea. Can't have second dose until I have 2 negative tests.

9.3.2021 – Diabetic ulcers on labia. I've had them since late February/early March but didn't get diagnosed until late April/early May. I am being treated at wound care center in (b)(6). Had to wait about 2 weeks post Covid hospitalization to see doctor in person for diagnosis.

Bone pain, Upper respiratory tract infection and Muscular weakness

3.29.2021 – Ive had a cough w/mucus since last night

3.31.2021 – Had a URI starting last Sunday. Im on a 7day course of Doxycycline and Prednisone. Should I get the second vaccination on April 15 as planned. I usually only get URIs about every three months. This time it was only one month either the first vaccination being the only difference. Treatment for URI , CT scan, X-ray

7.15.2021 – Extreme fatigue, muscle weakness, muscle and bone pain.

10.15.2021 – Extreme fatigue. Muscle and joint pain. Muscle weakness.

Multi-organ disorder, Hepatomegaly and Esophageal spasm

3.1.2021 – Lingering cough from side effects

3.2.2021 – Swollen lymph nodes.

3.26.2021 – Been having fatigue. Currently in hospital for chest pains.

3.31.2021 – I was hospitalized for what was initially a possible heart attack. Something changed in my EKG. no idea if it would be related to my vaccination.

5.28.2021 – Chest spasms. Originally suspected as a possible H/A, my esophagus has been spasming only starting after my vaccination. I have no idea about potential correlation or causation. I have not regained full energy as existed prior to the vaccination.

2.24.2022 – I have started having sporadic problems with my internal organs to include enlarged live r & spleen.

Cardiac flutter, Dehydration and Heart rate increased

1.23.2021 – Palpitations

1.24.2021 – Chest discomfort and palpitations

1.26.2021 – mild aching in my anterior chest, not related to exertion

2.2.2021 – I continue to wake at night with heart palpitations, and sometimes feel my heart flutter during the day. no lightheadedness but it is disconcerting.

2.23.2021 – I keep feeling my heart flutter or just rapid, when at rest. this seems to come and go. no lightheadedness or weakness.

7.20.2021 – Heart rate 120-156 for up to 3 hours after a bicycle ride. it seems I was a little dehydrated but I never had HR stay so high for so long before. I feel fine, now.

12.22.2021 – I had fever to 101.8 and hard shivering, chills, headache within the first 36 hours of the shot. (before I registered for this site. sorry)

6.18.2022 – Had Covid in January

Eye irritation, Head discomfort and Chest discomfort

4.2.2021 – Headache is more like head congestion, irritated eyes, weird feeling in chest & back like it is tight but i can breathe. Have not had much activity this week so dont know if light exertion would make it worse. It was there yesterday too but i didnt report it. Is it just coincidental enviro allergies or should I chat with dr?

4.4.2021 – Normally dont have allergies this time of year but since i had the shot ive had to resort to benadryl for a few days. Maybe coincidental I dont know.

4.8.2021 – Chest tightness

Sputum discolored, Eczema and Bronchitis

1.30.2021 – Brownish sputum

2.1.2021 – May have bronchitis; doctor appt. tomorrow.

2.2.2021 – Bronchitis; probably not related to vac.; treating with antibiotics

2.24.2021 – I have developed a rash and eczema on by shoulders and upper back. Some of it is infected and my dermatologist is treating me with antibiotics and a special cream. The timing of this occurring coincides with my 2nd shot, so I think it may be related.

7.28.2021 – Some shortness of breath. I have tested clear for Covid 19. My issue may be heart or pacemaker related. This will be tested next week. If there is a concern about a late term side effect of my Pfizer vaccination, I will report it. Has not taken place yet.

Hypoesthesia, Neck pain and Insomnia

2.9.2021 – Havent been able to sleep more than 5 hours a night since my shot. I have had a shocking-like pain straight across my shoulder blade from the injection site of my arm and up my neck. It has been excruciating at times.

2.10.2021 – Muscle pain on side I got shot and across back, level with injection site.

5.7.2021 – Numbness of hand and feetDont think it is covid related but because of the back/neck pain I initially experienced, I thought it important to mention. It just started yesterday so I havent sought healthcare yet.

11.7.2021 – Should have said this Friday (2 days ago) but I have had significant swelling in lymph nodes under armpit on same side as injection

11.8.2021 – Armpit lymph nodes are better but still a little swollen on side of injection

Abnormal loss of weight, Lung neoplasm malignant and Weight decreased

2.4.2021 – Coughing

2.16.2021 – Painful muscles and joints. Especially painful in my legs. My MD thinks the vaccine may have caused my poly inflammatory arthritis to flare up. This decreases my ability to do tasks of daily living.

8.3.2021 – 12 lb weight loss in 1 month. Easy bruising Some fatigue PET scan scheduled for 8/5/21

2.4.2022 – 9/15/21 a very small lung nodule that was cancer and was removed. No further treatment is necessary Unintended weight loss of 20 pounds. I am otherwise fine. I do not think any of this is related at all to the vaccinations. A Inpatient robotic surgery

Breast tenderness, Breast pain and Sinus disorder

2.4.2021 – Sinus allergy symptoms

2.18.2021 – Fatigue. Some soreness in my breasts.

2.27.2021 – Shot site still itchy & warm. Some breast tenderness on that side.

3.1.2021 – Random twinges of breast soreness, esp on the shot side. Stomaches issues may be food related.

3.2.2021 – Soreness in neck, armpit & breast lymph nodes

3.6.2021 – Small rash on pinky where antibiotic ointment applied to cold weather split in skin. Have had for 4 days, did not think to mention it before.

Nasal congestion, Chills and Arthralgia

9.30.2021 – Very mild headache. Took acetaminophen twice and headache gone

10.1.2021 – No

10.2.2021 – None

5.5.2022 – Stuffy nose, mild sore throat and chills, but no fever or difficulty breathing. Came on all of a sudden this past Sunday. Because I had just recentlystopped wearing a mask, actually thought I had picked up Covid from someone or somewhere. Okay now Rapid Covid test was negative as was strep throat test.

9.15.2022 – Only the day after the 5th shot did my shoulder where I received the shot hurt just a little bit.

Body temperature fluctuation, Supraventricular tachycardia and Lower respiratory tract infection

3.15.2021 – Shin bones and upper arm bones ache. Started yesterday after already responding to the daily survey. Dont know if bone pain is related to the vaccinne or not

4.10.2021 – Got various readings on temp within a seconds of each other. Ranged from 100.00 on 1st reading and 98.5 and 86.9 and 98.3

4.23.2021 – Sinus infection for aprox 1 week. Probably due to weather. I think it's gone now.

4.30.2021 – Yesterday evening experienced lightheadness and felt like heart palpatations. As long as I laid down and put my feet up, I was ok. Perfectly fine today.

10.8.2021 – Bad sinus headache on Sept 26 & 27. Bad chest cold Sept 30th thru today Oct 8.

4.9.2022 – Approx 1 or 2 weeks after receiving 2nd vaccine I began experiencing racing heart. I have been diagnosed with AFIB and Supraventricular Tachycardia. After ER and being admitted for 1 day, I have seen a cardiologist and an Electrophysiologist.

Symmetrical drug-related intertriginous and flexur, Polyarthritis and Frustration tolerance decreased

1.28.2021 – I have generalized itching, trunk, extremities mostly since about 4 days ago. Ive taken 25 mg Benadryl which helps but itching continues. Ive contacted allergist but no call back for 48 hrs now.

2.8.2021 – Just little bit of pain around base of neck on right side I had injection on

2.10.2021 – Just little shoulder myalgia on right side above vaccine site

2.11.2021 – Just the soreness over R-shoulder where injection was given

2.25.2021 – Very itchy all over body

3.4.2021 – I have hives bilaterally underarm and left side of neck. Ive been itching all along since first vaccine dose, but now hives development. Claritin has not worked and hives exacerbated today, waiting on PCP guidance to take Benadryl now or not. Waiting for PCP to acknowledge portal communication

3.11.2021 – Been itching all along. Now its more pronounced - my PCP tried methylprednisone, Claritin and Benadryl. Not working, so now Singulair was added to Claritin and Benadryl. I now have really bad headaches, in addition to a heavy chest. Help plz Waiting for an appt with allergist and dermatology

3.18.2021 – The itching I sustained from day ONE post Pfizer vaccine, continues and has worsened at this time to extend under both arm pits and left neck. PCP tried m-prednisone and singulair, with no relief. Can someone reach out to me-discuss further, please? Pending derm and allergist consult

5.6.2021 – Both legs developed rash like pettichiae, with itching. Derm stated Pfizer vaccine hosts at derm practice developed same symptoms as me.

8.5.2021 – Diagnosed with SDIFE by Dermatólogist and also evaluated by allergist for exanthem bilateral lymph nodes and pettichia-like spots on both lower estremities. Diagnosis of Symmetrical Drug related Intertriginous Flexural exanthema by Dermatologist.

2.4.2022 – I've been having rashes since second Pfizer vaccine. Since 12/14 I'm in the middle of an inflammatory response with facial and neck rash very itchy. I'm being evaluated at (b)(6) derm/rheum/immunology/neurology at this time. I'm Also having many symto

4.21.2022 – I would like to report that I have developed an autoimmune disease aaa result of covid mRNA vaccine. I have a rash since 3/21 after second dose and now polyarthritic pain, neuropathy severe burning, tingling and numbness on hands, feet, scalp. I also

4.23.2022 – BWH 13 specialists care team

7.21.2022 – I'm frustrated no one follow up from CDC! It's tiring writing same things over and over!

Impaired work ability, Eye pruritus and Paranasal sinus hypersecretion

4.10.2021 – Started on April 5th. Sinus drainage, sore throat, Itchy eyes, cough, congestion. Tired. Could be allergies /hayfever. Missed some work April 8 and 9. Considered seeing Dr.

4.17.2021 – The headache happened 2-3 hours after the shot, and only lasted a couple of minutes. Felt like intense sinus pressure from above the eyes to the cheeks. This happened with the first shot also.

4.23.2021 – Stuffy, clogged nose. Sinus drainage. Could be hayfever.

4.24.2021 – Stuffy nose/sinuses

5.1.2021 – Have had a cough for 3 weeks, and stuffy nose. went to the doctor. She said I was having an asthmatic flare. This has never happened to me before. URI. I'm now on a daily maintenance inhaler and Singulair. Steroid and antibiotic. Regular in office Dr visit

7.17.2021 – Diagnosed Asthmatic - put on daily prevention meds. Tired most of the time. In person Dr. visit

Limb mass, Injection site mass and Axillary mass

4.25.2021 – 4in under the injection sit, I have big round lump 2x2 in size. No pain or redness in the area.

4.26.2021 – The lump on my arm is getting bigger with no pain. It is about 3x3 in size 4 in under the injection site

4.27.2021 – The lump on my arm under the injection site bigger in size 4x4. No pain or redness or discomfort. This started about 3 minutes after the injection. I showed it to the nurse.

4.29.2021 – I noticed that I lost my appetite for 3 days now. I am well and happy. Also the lump on my hand still at the same size as yesterday with no pain.

5.2.2021 – The lump on my arm went away

Injection site rash, Abdominal discomfort and Rash

4.27.2021 – Rash around the site of my injection on my arm.

4.28.2021 – Rash has developed on my face. A little fatigued in general but not sure any of this is related to my covid shot.

7.9.2021 – Approximately 3 weeks ago I developed a low grade fever accompanied by a feeling of nausea and stomach issues. It passed within 24 hours. It felt similar to my symptoms when I got my vaccine. I tested negative for COVID subsequently.

10.8.2021 – Positive covid test on 10/7/21

Nonspecific reaction, Autoimmune disorder and Thirst

2.22.2021 – Dizziness, heavy feeling, dry mouth

2.23.2021 – Dizziness

2.28.2021 – Major pain and some tingling in entire right arm, shoulder to fingertips

3.1.2021 – Still have major pain in entire right arm

3.8.2021 – I had a bad autoimmune reaction to the vaccine. I have had major pain in my entire right arm. My doctor prescribed prednisone. My doctor and I will discuss whether or not I should get the second shot.

3.15.2021 – Autoimmune reaction, doctor prescribed prednisone Primary care physician

4.7.2021 – Dizziness, heavy feeling

4.8.2021 – Extreme thirst

4.9.2021 – Shortness of breath, thirsty

4.11.2021 – Sore throat

Actinic keratosis, Oral hyperesthesia and Plasma cell myeloma

4.22.2021 – Multiple Myeloma, Fibromyalgia, Actinic Kerotosis, Arthritis, Allergies Chemotherapy

4.23.2021 – Multiple myeloma, and the chemotherapy is likely the cause of these symptoms. Actinic Kerotosis, Arthritis, Allergies, Hypertension, Hypercholesterolosis.

4.28.2021 – Chronic pain in the form of Fibromyalgia, arthritis, multiple myeloma, Actinic Kerotosis, allergies, multiple medications cause constipation and I am taking both polyethylene glycol 3350 and ducosate sodium and I have probably overdone the meds but adjustments take a few days to have effect.

4.29.2021 – Fibr and Multiple Myeloma

5.27.2021 – Poor sleep and related issues, due to extended chemotherapy.

10.21.2021 – Chronic pain has gotten worse. However other side effects from chemotherapy are subsiding: I finally got the diarrhea but that quickly turned to constipation and now I am back to needing laxative and stool softener at level about where I was before.

10.9.2022 – I got a tooth infection. I had pain from anything cold. The dentist found a leak under a crown from 2004. He sealed it with bond. 30 hours later I was in a lot of pain and it was getting worse. The dentist prescribed an antibiotic. More info, no room

10.9.2022 – Tooth infection. Dentist wanted it pulled. Oral surgeon said need root canal. Zometa infusions for last 19 months mean I am likely to have complications. Especially since it is lower jaw. 9-12-22 is root canal date. May get 2 root canals.

10.13.2022 – I had a tooth infection. Extraction was bad idea due to Zometa infusions. I had 1 root canal and will be getting a 2nd next week. I was on amoxicillin for 7 days. I restarted acyclovir when it began. 800 mg 2/day, went down to 400 mg 2/day at 8 days.

10.20.2022 – Arthritis is worse due to cold wet weather. Allergies are still bad. I stopped using Flonase because I started getting bloody nose. I did perform an at home COVID test as I have a sibling who thought my symptoms could be a mild case. Negative result.

12.15.2022 – Sick. Likely mild case of RSV. I did not go to a doctor, information said there is no treatment. I never ran a fever. Started Nov 13 with very sore throat. Had very runny nose for a week. No symptoms since Dec 4. COVID test negative Nov 14, 18 & 22.

Energy increased, Injection site rash and Injection site swelling

3.5.2021 – Very slight sore throat. Fatigue noted above came on late yesterday (Mar 4).

3.7.2021 – Lower energy.

3.8.2021 – Slightly more energy and less general fatigue each day. Did have a bout of diarrhea midday, but not uncommon.

4.1.2021 – Took Temp when chilled (intense shivering) but was still below 98.6 F.

4.2.2021 – Joint pain is primarily my injured/arthritic knees that I am NOT trying to control with Aspirin or ibuprofen right now. knees

4.4.2021 – Swelling at injection site is very mild.e

4.5.2021 – Rash at injection site may have been present for several days with me missing it.. Redness already greatly reduced since noticing it this morning.