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Their Stories

What v-safe registrants wrote to the CDC after their Pfizer or Moderna shots, in their own words. Each card is one person, with all of their free text. This page shows only the longer stories: the 116,000 people who wrote at least 400 characters in all. The text is as the CDC released it, except that email addresses and phone numbers are hidden. You get a random set of these people on every visit.

Shuffle

Wrist fracture, Fall and Alopecia

ZH6-98490-18791

– Shooting pains throughout mmh y body

– Leg cramp in the middle of the nite

– Unusual leg pain that wakes me up. Not like a leg cramp

– Unusual pain in my leg that wakes me up during the nite

– achy body. Maybe arthritis?

– Diarrhea & extreme upper stomach pain

– Extreme pain in the shoulder when moving arm .

– Shooting pains kept me awake all nite

– Forgot to mention previously that I have insomnia since first vaccinated

– After booster, I noticed hair loss!

– Severe stomachs pain last nite; better now; just weak & shaky

– Stomach ache

– Broken wrist from falling S urgeon

Bronchoscopy, Organising pneumonia and Fistula

ZH7-10266-97173

– Excessive thirst

– Dizzy

– Fever to 101 - resolves with Tylenol but returns every 6 hours. For 8 days straight now No other infection. Had tests that were normal so no other illness (including negative COVID test)

– I was diagnosed with right upper lobe pneumonia on 2/15/21 (by chest x-ray).

– Cryptogenic Organizing Pneumonia - started (2/5/21) right after 2nd dose (1/30/21). Initially thought bacterial pneumonia but didnt resolve. Have Crohns Disease & on Humira so unsure if related to vaccine or those underlying conditions Bronchoscopy 4/29/21

– Episodes of low heart rate - worse at night or after eating. Believed to be related to low magnesium levels

– Crohn's disease flare up with abscess & fistula requiring surgery on April 12, 2022 and May 23, 2022

– Crohn's disease related abdominal pain

Skin warm, Toothache and Hot flush

ZH7-23997-54510

– Surprising/unexpected tooth pain but likely unrelated.

– Last night -- about 24-25 hours after the shot -- I felt myself get unexpectedly warm to the point that I nearly started to sweat and then I changed into a T-shirt and cooled off. I think it all happened pretty quickly in the space of 30 minutes maybe. Otherwise, I feel the same as I did after the first shot. In the spirit of full disclosure, i did boost my immune system about 90 minutes before both shots by taking 2,000-3,000 mg of Vitamin C and 100 mcg of Vitamin D which I believe helped a lot.

– Yesterday, I got multiple hot flashes throughout the day (nothing today yet) and went to bed at 7:45 pm. Woke up at 2:30 am -- worked for a few hours and then went back to sleep -- extremely rare for me not to sleep through the night.

Asthenopia, Gastroesophageal reflux disease and Vision blurred

ZH7-26350-15512

– I felt heaviness on my eyes about 25 minutes after vaccination on Saturday but did not worry. Today in the morning I felt a little bit if blurry eyes. It went away.

– I have had some abdominal GERD discomfort in the last two weeks. I don't know if it is the result of my covid vaccines

– I have some stomach discomfort

– This week I felt really weak tights. Also around 6 pm I feel very tired wanting to go to bed. Early this week I felt some abdominal pain and stomach upset.

Tooth abscess, Ear disorder and Specialist consultation

ZH7-27588-67078

– Lump under my left arm. Received shot in same arm.

– Lump under arm and soreness remains

– I had headache, chills, body aches, dizziness... woke up today feeling fine.

– Lump under arm... Uncomfortable... discomfort is not constant Made an appointment with my gynecologist for Monday

– Sinus and ear issues, upset stomach diarrhea and nausea. Headache may have been due to severe dehydration. In total the sickness lasted about six days. I tested negative for Covid twice during that time.

– Sinus infection

– Rash on left side of back

Oral discomfort, Palpitations and Insomnia

ZH7-33019-17232

– 03/11/21 my heart was racing for about 4 hours. Then I got really tired but could not sleep. Areas where I have had previous trauma had pain.

– This is day 3 after second shot. I had diarrhea each of the 2 previous days. As well as pain like thrombosis or something in the forearm of the arm that got the shot (right). Had some chills over the last 2 days as well as being tired.

– Not new. Continuing. Lower lip still has strange feelings. Started maybe an hour after shot #1. It's not there all the time, but it comes and goes regularly. Hard to describe sensation. Like it's trying to swell up but I don't notice it swelling.

Pneumonitis, Pulmonary mass and Blood pressure increased

ZH8-21785-96651

– Elevated blood pressure.

– Elevated blood pressure

– Burning pain in my chest, slight cough, muscle aches, tired ever since I had the vaccine on 9/30/21. I did an at home rapid Covid test on 10/21/21 which was negative. I also had my flu vaccine two days after my Covid booster vaccine on 10/2/21.

– Not new or worsening since my last check in. Just still very tired and I have joint and muscle pain ever since I received my Covid booster vaccine and my flu vaccine.

– I had a chest x-ray that now shows I have hyperinflated lungs. This was compared to a chest x-ray I had done in 5/2020 that was clear. Waiting for a follow up visit with my pcp to discuss lab & x-ray results. Waiting for followup visit with my pcp

– I would like to discuss over the phone if you could have someone give me a call.

– Still have issues with breathing when double masked with an N95 & a surgical mask at work for extended periods of time. Disappointed that the CDC does not think this is of concern, and doesn't seem to have any interest in investigating. Being referred to a Pulmonologist

– Having difficulty breathing. Raspy cough. I had a chest X-ray (for another reason) in May 2021 which was clear. Then I had another chest X-ray in November 2021, and have since had a CT Scan, showing nodules in the lower lobes of both of my lungs.

Myalgia, Arthralgia and Pain in extremity

ZH8-22142-51537

– The muscle pain comes along , is intense for several hours and then it goes away. Since Saturday. Hurts to move arm when it comes on. Have left message for my doctor about an hour ago.

– Muscle aches in arm that received the vaccine still comes and goes daily but not as frequently. So theres some progress!

– Muscle pain in arm almost gone. Only one minor flare up today.

– Late last night had a intense muscle pain again in arm that was used for vaccine. So far, no flare up today.

– Just got the shot at 3:30 today...

– Happy that my 2nd shot hasnt caused the pain & frustration that the first shot did!!

– Yay!!

Cardiac discomfort, Anger and Mental disorder

ZH8-23315-94143

– Slight flushed feeling, head pressure

– Slight headache

– Odd gastrointestinal sensations that come & go. Nothing bad though eating ok.

– Had mild body aches for 2 days. Nothing serious.

– Felt flushed after shot. Warm in my chest & face. Probably just adrenaline or nervousness

– Frequent urination

– Existential crisis, anger, anxiety, (b)(6)

– Unusual tiredness, dizziness, fatigue, body aches one night that went away, heart palpitations. Taking ibuprofen almost everyday.

– Headaches (and I never get headaches) fatigue, difficulty breathing, heart palpitations & discomfort, stomach issues.

– Trouble breathing, extremely tired, stomach issues & heart palpitations. Home test was negative for Covid.

Pernicious anemia, Listless and Swelling face

ZH8-24045-40921

– A little swelling of face, lymph nodes, no appetite, taste med on tongue

– For the first time, slight wheezing upon waking only.

– Pernicious Anemia. Feels like my cyancobalamin shot administered on the 10th depleted after vaccine. Tired.

– Tired, listless, lethargic. I think vaccine weakened my cyanocobalamin shot. Taken to Emer Rm evening of vaccine. Video conference today due to continued symptoms..

– Actually, tendonitis flare-up in hand and hot flashes came back after vaccine. I didn't think to mention it all week.

– Bad headaches.

– Just tired. Tried moving about more. Took my B12 shot, but still more tired than usual. Will try walking more.

– BP is consistently high Emergency room, PCP, Cardiologist.

Feeling hot, Decreased appetite and Sinusitis

ZH8-45675-54498

– The first day my arm was sore and hurting and I felt as though I had a slight fever and the shot area was very warm. The second day my arm was very sore and warm around shot area. I felt nausea but I also took meds on empty stomach so not sure if it was related. I also experienced pains on my side for several hours so I took BCs to help prevent pain and the thought of possible clotting since I work 12 hours and thats when the strange pains were occurring. Today I dont feel any pain in my arm no headaches or pains in my sides.

– None

– Lack of appetite

– Sinus infectionHeadache

Phantom limb syndrome, Atrial fibrillation and Body temperature increased

ZH9-23272-45365

– Light vertigo. Slight temp elevation. ALL of these began last night. Reduced today.

– Minor vertigo last night

– Some mild vertigo.

– Vertigo & sleepy

– Light vertigo

– Increased edema in lower legs. Soaked in bath salts and seems to have/be resolved.

– Ive been having phantom leg pain in left lower leg. Edema and fluid build up in in ankle & foot. I am treated for a-fib, under control w regular rhythm. I take furosemide daily. Relief only thru epsom soak & low dose steroid. Worried about DVT. ID

Neck mass, Mass and Nodule

ZH9-28401-76498

– I developed a large lump Friday morning a day after shot. It is located in my neck above the collarbone and is painful. Ultra sound scheduled for this Friday. Normal in office visit on 4/9/21 day after 2nd shot

– Lump has not changed

– I still have lumps in my lymph glands and currently taking antibiotics Normal pcp

– Been sick to stomach off and on since vaccines... I feel like I always have a cold Normal family doctor

– I have a lumps in my lymph node glands! They were visible after my 2nd vaccine and had to see doctor. I just got a flu shot and again it was painful where the lump is. Doctor said its from my Covid 19 vaccines. I followed-up with multiple appt Testing center and a specialist

Paranasal sinus discomfort, Feeling hot and Anosmia

ZH9-32836-11843

– Been experiencing over the last few days some leg tingling, warmth and dull pain. Primarily in upper thigh area/quadriceps on both legs. I've not started any exercise program or anything so it's just weird. Ibuprofen seems to help, Tylenol did not.

– My symptoms were purely related to my COVID 19 diagnosis refenced below. Those symptoms were headache, coughing, chest congestion, sinus pressure, temporary loss of smell and exhaustion.

Peritonsillar abscess, Dysphonia and Sinus congestion

ZH9-37711-00192

– Sinus congestion

– Sinus congestion/allergies: itchy, stuffy now with runny nose

– Sudden onset of hoarseness, sore throat with a few pus pockets on tonsils, head congestion, cough and low grade fever of 100.5 on 2/24/21 My husband is a physician & he advised me to refill a prescription for amoxicillin that I had on hand.

– Slight cold like symptoms: scratchy throat, runny nose, nasal congestion

– Tested positive for coronavirus

Blood urine present, Pain of skin and Dehydration

ZH9-97239-05702

– I ran fever for 3 days weak and blood tinged urine. Believe it was a virus and I was dehydrated because I was negative for covid beg for flu and beg for strep so think it was just a bug so they are holding off my 2nd vaccine for a little longer Employee health and we doc ordered flu,strep ans covid test all were negative

– Covid 19 positive 2 weeks ago. Fever skin hurt body aches desat and weak. I'm better now but it lasted 9 days

Vein disorder, Vasodilatation and Tenderness

ZHA-11601-41855

– About 2 weeks after second vaccine, started having trouble with the veins in my calves swelling up and leg pain. Went to the heart doctor and he ordered some tests.

– A week after the second vaccine, I started seeing that the veins in my calves were swollen and tender. They are better but never recovered completely. My mother delveloped a massive bloodclot hours after the second vaccine and died from it. Went to see a heart doctor.

Epistaxis, Eye pain and Pneumonia

ZHA-12933-01887

– Bloody nose

– Swelling and pain in an old injury, a tendon sprain that occurred following an antibiotic known to cause that side effect.

– Migraine, muscle ache

– Eye pain. Like an ache or fatigue and dryness in one eye, followed by a bit of a headache.

– Have an infection in my lung that I'm being referred to Pulmonology to review. Have been sick with infections for 4 months. Antibiotics and prednisone have not improved my conditions.

Throat clearing, Brain fog and Muscle spasms

ZHA-20300-20113

– Cramps in my legs this morning. All symptoms started after going to sleep except being tired which started at 5 pm

– Some lightheadedness and brain fog

– I have had a sore throat develop about three different times. It seems to go away by the end of the day after gargling with salt water at least 2-3 times. I do wear a dental device for sleep apnea but have not experienced these sore throats before.

– I have a sore throat today and some clearing of my throat. I am better after gargling with salt water. But was notified that a person I sat with at a shower developed Covid. I had my Covid booster 7 days before the shower.

Orthopnea, Injection site coldness and Otitis externa

ZHA-23535-35025

– Muscle spasms and stiffness in neck and face.

– Tingling and then an icy sensation where the pain from the injection site gets to my head

– Needle like pain and itching around wrists ankles and neck.

– Acne surrounding injection site, sinus congestion continued since day 2

– Few days of swelling and discomfort in underarm lymph nodes near injection site

– Swimmers ear, headache/face pain

– Tingling on side of face and head. Sharp moving pains. Shortness of breath, chest tightness. Lymph swelling/pain.

– Mild congestion

– Passing tingling, numb sensation in hands and swelling in lymph

– Neck pain and tension, increased headache

– Pounding/painful pulse in head. Checked by provider as okay.

– Pain at injection site, shortness of breath when laying down.

– Pain/pressure on left side. Short illness with cough that left tightness breathing occasionally.

– Dotted rash. Chest and neck pain.

– Appendicitis and appendectomy

Pulse pressure increased, Oxygen saturation decreased and Muscle strain

ZHA-28395-64787

– Pulse has been very high at 120, head feels foggy, ears ringing

– Shortness of breath

– Shortness of breath, headache low oxygen levels for me and high pulse

– High pulse of 120, high blood pressure, low oxygen level 91-94 and very sick

– High pulse low at 1119 oxygen level at 90 and chest pains

– High pulse and low oxygen

– Shortness of breath, high pulse and low oxygen level

– Shortness of breath,LowOxygen levels, high pulse, acute nausea andHeadaches

– Huge swollen lymph odes under my arm where where shot was given as well as a huge swollen lymph node on my shoulder, neck, and down my back. They are all the size of lemons.

– Swelling in lymph nodes in neck shoulder top of spine and down spine

– Swollen lymph nodes in my arm, arm pit, neck, and down my back in three places.

– Swelling in lymph nodes of neck, armpit and back

– Sweats since last vaccine and still have swollen lymph nodes

– I've had horrible cold sweat ask about COVID-19 vaccines.

Extrasystoles, Ventricular extrasystoles and Heart rate irregular

ZHB-18577-80033

– slight dizziness

– vertigo type dizziness (spinning room), extremely long period (march 1-30), uneven heartbeat (got a holter test where they tracked 3,000 abnormal beats)

– in march 2021, i started to get irregular heartbeats diagnosed as PVC. i did a stress test and echo which said that everything seemed normal but was also diagnosed as trigeminy. i have been taking flecanide on and off depending on symptoms

– missed period after booster shot in november

Supraclavicular fossa pain, Abdominal pain upper and Palpitations

ZHB-21700-01716

– Heart felt a little racy, but gone after nap.

– More during our contact that I never attributed to the vaccine. Had pain in collar bone area towards the center. Lasted a few weeks, but finally subsided before I saw news about risk of Myocardia/Pericardia. Took Motrin.

– These symptoms were on injection day 10/21/22. Felt fatigued for a few days, also soreness at injection site.

– Not sure if virus or flu. Vomiting for one day, and stomach cramps since Monday 11/15. No fever.

Limb discomfort, Sinus disorder and Hypersensitivity

ZHB-25512-73837

– The severe pain in my arm and shoulder started in the early evening and lasted theough early morning. I had the injection early yesterday morning. The pain is gone now and Im feeling much better.

– Breathing is more difficult and a cough. I can still catch my breath though. This started last night and has improved now later this afternoon.

– Just normal allergy/sinus

– Just my pre-vacine normalices

– A little light headedness

– Sore arm. Loss of appetite.

Anosmia, Influenza and Ageusia

ZHB-27117-25026

– I worked an overnight shift at a shelter so it is possible my headache is from that

– Extremely swollen and tender lymph nodes on the side I got the vaccine

– I still have extremely swollen and tender lymph nodes near my collar bone and in my neck

– Still have very swollen and tender lymph nodes

– I had 103 fever, cough, chills, loss of taste and smell, sore throat, fatigue, and headaches

– I had the flu a month ago

Urticaria cholinergic, Temperature intolerance and Thyroid disorder

ZHC-13097-78751

– Full body hives, Ive learned that my maternal grandmother experienced the same after her covid vaccine as well.

– Hives, low grade fever, fatigue

– Any physical activity, such as light house cleaning or prolonged standing while doing dishes produces a low grade fever.Any exposure to heat or increased body temp (hot shower, vehicle seat warmer) causes cholinergic urticaria (mostly on legs/arms)

– Thyroid and other autoimmune issues Primary care physician and specialty physicians

Lip blister, Cheilitis and Oral herpes

ZHC-26206-44475

– Blisters on & above my lips.

– Blisters on lip are cold sores, which I have never had.

– I am still dealing with cold sores & wondering if it could be shingles on my left side of lips. I dont know if this is related to the vaccine, but am reporting it just in case.

– I am still experiencing some pain associated with the sores on my lips & left eye & left side of face.

– Sore throat & sinus drainage, symptoms of a cold.

– Sore throat, congestion, cough.

Adnexa uteri mass, Throat clearing and Osteoarthritis

ZHC-33711-25971

– Early morning about 12:20am had a clogged right nostril, Post nasal drip, Throat clearing and slight wheezing

– Headache today, which is not normal for me. Took Advil.

– On the day after the 2nd dose I experienced moderate fatigue muscle aches and an intense headache. All symptoms were helped with Advil. I worked the next day from the bed but did not miss work all together. I did finish earlier than usual. The following day I had sore arm itching and another headache that started around 4pm. Slightly sore and itchy arm lasted for over a week.

– Worsening of Hip arthritis pain Restarted Physical therapy and used Topical pain cream.

– Increased hip pain more than usual

– Arthritis in hip has been worse since the 2nd vaccine.

– Sore throat

– Hip bursitis flare up. Increased hip Pain.

– Diagnosed with osteoarthritis of left hip and Adnexal Mass during a recent MRI MRI

– Shoulder pain. Rotator cuff pain. Physical therapy

Urticaria

ZHD-11506-55427

– I do have hives all over my body

– Hives

– Hives continue

– Hives increasing and spreading to my face.

– Hives had worsened but after several days on Prednisone have been subsiding.

– Hives had increased and I needed to see my physician. I was prescribed additional days of Prednisone and the hives are subsiding.

– Hives had diminished while on prednisone but return once prednisone dose is decreased over time. Hives have been ongoing since March 3rd second dose of the Pfizer vaccine.

Lip swelling, Tinnitus and Injection site pruritus

ZHD-23639-88150

– Itchy injection site

– Ringing in my ears. Persistent mild nausea

– H/A. Ringing in my ears. Some nausea

– Ringing in my ears

– Ringing my my ears. Its constant

– I have had loud ringing in my ears ever since the second shot. Its worse now than two weeks ago

– CONSTANT TINNITUS. LIP SWELLING

– Three times since the vaccine I have had extreme lip swelling. I also have almost constant tinnitus. I had neither of these before the vaccine e

– Severe ringing in the ears

– Extreme tinnitus

– Tinnitus

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