Their Stories

Paresthesia, Axillary pain and Pain in extremity

3.3.2021 – Yesterday I reported I was only feeling mild pain. It got much worse as the day progressed, and then it felt like I was coming down with something. I took some Tylenol, and that helped with the sick feeling but not the soreness in my arm.

3.30.2021 – I experienced some pain in my armpit (same side where I go my shot). It felt like I was being poked by a lot of needles. The pain went away after I rubbed the area for a bit.

3.31.2021 – I felt like I was coming down with something. Symptoms are actually less severe than when I had my 1st vaccine. Maybe it's because I kept icing my arm this time.

Purpura, Hyperesthesia and Neuropathy peripheral

3.23.2021 – Neuropathy in my feet. This is probably not related to my vaccine.

3.30.2021 – Neuropathy in lower legs and feet.

4.6.2021 – Solar Purpura on my right arm. Continue to experience neuropathy in both feet and calfs. MRI this Thursday

5.25.2021 – Neuropathy and muscle twitching. This started shortly after my vaccine. Three MRIs to determine my condition. Still searching for diagnoses. Meeting with family doctor and a neurologist.

8.24.2021 – My neurologist is calling it a hyper active nerve disorder. Not sure it was caused by the Covid vaccine or not. Doctor visit.

Central nervous system lesion, Photosensitivity reaction and Dyskinesia

3.18.2021 – Light headedness

3.20.2021 – Lightheadedness

4.1.2021 – Multiple big bruises on the back of my legs. Also still having muscle and joint pain. I emailed my doctor about this and they have advised me to be seen but I haven't done that yet. I emailed my doctor they advised me to be seen

4.24.2021 – Very slight Sore throat

4.25.2021 – Sore throat

5.6.2021 – I started getting bruises again on day 8 just like I did after the first vaccine. However, this time the bruises were much smaller. I also have been having really bad hot flashes several times daily which usually does not occur.

5.20.2021 – Joint/muscle pains

7.22.2021 – More frequent headaches

8.25.2021 – Photosensitivity

9.5.2021 – Worsening nausea, and muscle pain, daily headaches.

9.26.2021 – Lesions on my frontal lobe, still being investigated but believed to be autoimmune related. Jerking head, numbness and tingling, headaches, tremor and speech problems. MRI

10.3.2021 – Hand tremors have worsened.

2.20.2022 – Joint pain Rheumatologist

Limb operation, Trigger finger and Mobility decreased

3.20.2021 – No

3.21.2021 – Nope

3.22.2021 – None

3.24.2021 – Just a little tired.

4.11.2021 – My right foot hurts.

4.16.2021 – Nope, Im just tired today!

10.13.2021 – My shoulders have been giving me trouble. They hurt and sometimes I can barely lift them, especially my left one. On October 26 I have an appointment with the orthopedic doctor.

11.2.2021 – I had a sinus infection and then an asthmatic bronchitis attack yesterday!

4.12.2022 – I had hand surgery for Trigger Finger on my right middle finger on April 1, 2022.

Feeling drunk, Disturbance in attention and Injection site pain

4.11.2021 – I had a bout of intense brain fog. I dont know what else to call it, but I felt like I was high or drunk or mentally impaired. My husband was talking to me and I had a hard time following the conversation. It lasted about two hours and then subsided. It was quite bizarre. Im not on any medication, I eat organic whole foods, I dont smoke. I never felt this way before. I actually felt like I was losing my mind.

4.28.2021 – Minor bouts of dizziness or wooziness. Does not last long.

4.7.2022 – The injection site where I had my booster continues to be tender and sore. I had my booster on 1/7/22. Sometimes it is a thrilling pain. Other times it's a dull ache.

Apnea, Sleep apnea syndrome and Aphasia

3.15.2021 – Cough

3.16.2021 – Sweating, brief ear pain off and on, cough yesterday and today

3.17.2021 – Less coughing

3.21.2021 – Symptoms probably due to new supplements started today and food?

4.4.2021 – No

4.6.2021 – Gas and stomach cramps, unknown cause but possible cause of abdominal pain

4.25.2021 – I had covid related memory issues. After vaccination I was feeling less anxious and less confusion, struggling for words. The confusion, struggling for words and anxiousness seem to have returned. I will probably see a Dr. Yes it is affecting my job.

5.2.2021 – My Covid related memory issues had improved after the vaccine. It has been declining again in the last 1 - 2 weeks. I work but it slows me down and is frustrating and concerning. You may only be concerned with physical health changes.

5.16.2021 – Respiratory

10.3.2021 – There was a 2 to 3 week period in the last 2 months where I could not talk without running out of breath or have difficulty breathing. A friend who had covid previously complained of the same thing at the same time. My Dr said probably from covid.

4.4.2022 – Sleep apnea Equipment to control apnea

Drainage, Loss of personal independence in daily activities and Asthenia

3.26.2021 – All mild symptoms. Pain in injection site

3.27.2021 – Injection site no longer hurts. Still tired

3.28.2021 – Still having the fatigue, but its getting better each day

3.29.2021 – Still tired and I feel run down, but its getting better every day. And the mild nausea has ended.

3.30.2021 – The mild fatigue has finally ended. No more mild nausea either

3.31.2021 – The fatigue is way better...a little low energy today but better each day. I dont have that drained out feeling all day long

4.1.2021 – Side effects are gone. Not overly tired anymore and energy is starting to return to normal

4.13.2021 – Injection pain 8 hrs after shot. Gone by morning. No nausea with the second shot and real mild fatigue with second shot. No headache either. Second shot was better than the first (symptom wise)

4.15.2021 – Very mild fatigue...not enough to limit my day.

4.16.2021 – The fatigue part is mainly gone now

4.17.2021 – The fatigue is totally gone

10.11.2021 – Very mild for 2 days

Monoplegia, Transient ischemic attack and Arthralgia

2.2.2021 – 48 hrs post shot the arm injected became partially paralyzed. I was unable to move ring/little finger and arm was barel able to hold itself up unaided. I was admitted to hospital per recommendation of neurologist and discgarged with dx of TIA as symptoms gradually disappeared. Currently my shoulder is quite painful and some movements give excruciating . My body worker friend says she believes i have SERVA as symptoms certainly fit a nd person who gave shot was not a rn or other trained professional.

Menopausal symptoms, Patient isolation and Induration

2.12.2021 – I had a red raised area 2 days after the vaccine. The heat and redness went away around tuesday. I have a hard knot but it was not painful. Yesterday it started itching and it red again hot again. This is the side I sleep on so it was uncomfortable. I slept with a cold pack on it until the cold pack thawed. Had a off and on dull headache and slight weakness for about 5 days. Did not need tylenol. I have felt fairly fine other than injection site.

3.4.2021 – Temperature has fluctuated during the day. Have a dull headache. Arm sore. But have completed all daily activities without any issue.

3.5.2021 – Felt bad this morning, feeling much better this afternoon. However, it appears I am developing the covid arm as I did with first shot. I believe it is just my sensitive skin and genetic makeup and allergies

3.9.2021 – Was extremely tired last night. Went to bed at 8 slept 10 hours. Felt fine when I woke up. Just seem to need a little more rest past few days

3.17.2021 – Occasionally I have the dull headache like I did right after both vaccines. Still have some soreness in my left arm where I got 1st dose and developed the covid arm. Right arm where I had 2nd dose feels fine.

3.26.2021 – Sore breasts for one week

6.2.2021 – Left arm swelled w 1st shot, after 2nd shot. Breasts were full. Had some breasr underarm soreness for about 2 weeks. Was also taking provera for menapause issues. Soreness has gone away now.

3.14.2022 – Had Covid 2/7 very mild stayed home 5 days. March 3rd developed Bronchitis. Took Steroids and inhaler and was fine. Friday March 12 was tired and woke up sat with congestion. Saw Dr today. Neg. flu &Covid.bad congestion but lungs clear. Guafison w co

Injection site paresthesia, Injection site hypoesthesia and Hypoesthesia

5.17.2022 – Seem to be going away or getting Immune

6.1.2022 – Tingling and numbness on my left arm and hand. It comes and goes though out the day.

6.8.2022 – I saw my doctor because on my numbness and tingling on my arm were I received my booster. The doctor stated that he has seen a few other patients with the same symptoms. It's been a few weeks and the tingling and numbness continues.

6.15.2022 – Tingling and numbness still exist. Not going away!

6.22.2022 – The tingling and numbness still exist. It comes and goes all day and night long. Some days the numbness last 3 to 5 minutes.It starts with the tingling about a minute and ends with the numbness.

Upper respiratory tract irritation, Mucosal discoloration and Tooth extraction

2.10.2021 – I started an antibiotic yesterday for an infected tooth. It will be treated 2/15/21

2.12.2021 – Still taking antibiotics for tooth infection.

2.14.2021 – I do have fibromyalgia.

2.15.2021 – I had a root extraction this afternoon. Not feeling too well. Better tomorrow. ER Dental visit.

2.16.2021 – Very sweaty...

3.9.2021 – Fell yesterday no fracture but very sore Home Heath

3.10.2021 – Recent fall on Monday...

3.12.2021 – Sprain in ankle up side leg and bruised hip. Home visit by PT & Home Health

3.13.2021 – Healing from recent fall. Hone Heath Assistant this morning.

3.14.2021 – Recovering from sprains Home Health

3.15.2021 – Recovering from a Fall 1 week ago Phone calls

3.16.2021 – Recovering from recent fall Home Health Aide

3.23.2021 – Cough sore throat congestion

3.30.2021 – Sore throat congestion colored mucus coughed up

4.13.2021 – Fun to pain and fatigue

4.20.2021 – Upper respiratory irritation

6.8.2021 – Fatigue loss of smell taste continues.. body pain loose stools hard to focus.

9.9.2021 – Diagnosed w/ diabetes and some type of thyroid issue. Doctors office

3.9.2022 – Higher blood pressure

Costochondritis, Sensation of foreign body and Gastritis

1.28.2021 – Dizziness

1.25.2022 – Still ongoing costochondritis, back pain, reflux which is now gastritis. Body fatigue and heart palpitations.

1.25.2022 – Received Moderna booster on 12/28. On 12/30 developed Costochondritis, redlux, back pain and muscle weakness in limbs. Over the 4 weeks since shot, have been to ED twice; once by ambulance. Had EGD, ultrasounds, nothing noted. Still having symptoms.

2.1.2022 – 5 weeks post booster. Still having chest pain, stomach ache, back pain and calf pain with headaches and bouts of limb fatigue. I regret getting the booster and noone will help me.

2.8.2022 – 1 week ago, had onset of silent reflux with globus sensation.

Injection site induration, Injection site rash and Injection site erythema

3.7.2021 – Sx were present on 3/6/21

3.8.2021 – On 2/6 the day after the shot I had a flare of uveitis in one eye. As I am on prednisone drops for control of this the next scheduled drop resolved the problem.

3.9.2021 – On the first injection of 2/5/21 I had intermittent erythema for about 3 weeks.. Initially for the first 3 days there was no erythema . Then on about day 11 there was a 15cm area of erythema and induration. This resolved slowly and then there was erythema with some satellite lesions extending nearly to the ante cubital fossa. Both episodes of erythema seemed to be preceded my me rubbing my arm as it was pruritic.. I think in both cases of erythema I activated a reaction by messaging the arm!

9.3.2021 – At my 3 mos check with my Dermatologist for a h/o melanoma in March my right labia minora disappeared and I had lichen sclerosis. I have a h/o autoimmunity. Modera shots were 2/5, 3/5. A friend developed Pitariasis Rubor Pilaris after #2 inj. Dermatologist

Injection site indentation, Inner ear disorder and Ear pruritus

1.7.2021 – Last night, about 630 I began to get itchy from head to toes, just random places. My face began to get hot and flush. I had a blotchy rash on my face, neck and upper chest area. My inner ears and throat began to get itchy. I took some allegraD and Tylenol.

1.8.2021 – Still have inner ear and throat itchiness from the evening of my injection. Allergy medication helps but it is bothersome and doesn't fully go away.

1.9.2021 – Still have mild inner ear itchiness but the throat itchiness has not returned today.

1.10.2021 – Have mild sinus congestion and still have inner ear itching, but only the right ear today instead of bilateral inner ears.

1.13.2021 – Left axillary lymph node is swollen and slightly tender to the touch. Noticed lymph node swelling on 1/11/21

1.21.2021 – On 1/14 my injection site become very red, hot and swollen about a 4X4inch circle and extremely itchy. The actual injection site was noticeably indented as well. As of today, 1/21 there is no sign of the injection on my left arm &No other reactions

1.27.2021 – Left groin lymph nodes are swollen, again. This presented a few days after my first injection and the lymph nodes became swollen again starting yesterday 1/26/21

2.5.2021 – Inner ear and throat itchiness

2.6.2021 – Still experiencing inner ear and throat itchiness. Taking Benadryl to help.

2.9.2021 – Nasal congestion, itchiness in throat and inner ears

3.11.2021 – Joint pain and swelling, mainly my ankles but had issues with bilateral wrist joint pain.

8.5.2021 – Severe headaches that are not related to allergies or tension, ringing in my ears occasionally.

2.4.2022 – High cholesterol

Cerebrospinal fluid leakage, Pyelonephritis and Clostridium difficile infection

12.30.2020 – Light headed

2.10.2021 – Severe itching

4.28.2021 – Large cervical adenopathy

7.28.2021 – 6/21/21 per liver biopsy had acute rejection. Symptoms started after 2 nd dose of Menactra.Also, had a negative level of the spike protein antibody to COVID 4 weeks after the 2nd dose.

12.18.2021 – C diff infection.

3.19.2022 – C. Diff infection early March and COVID mid- January

4.15.2022 – Increase RA symptoms and C. Difficile infection.

4.19.2022 – C. Difficile infections and worsening RA pain..

6.9.2022 – Recurrent C. Difficille gastroenteritis.

10.7.2022 – Had a surgery and pyelonephritis. Hospitalized for both in September.

Head discomfort, Muscular weakness and Brain fog

4.8.2021 – Dazed

4.11.2021 – Ive didnt say that I had a heavy head from laying down and when I sit up it felt like it was slowly draining down. That happened the first couple days and some sinus stuffiness but it wasnt bad. It is getting better.

5.1.2021 – Just muscle weakness and fatigue

5.6.2021 – Ive been having muscle pain and weakness and fatigue and brain fog every since I got the vaccine. I had been dealing with this stuff on and off before the vaccine so I dont know if its something I already had going on or if the vaccine flare

Nasal discomfort, Feeling of body temperature change and Respiratory symptom

12.28.2020 – Mild pain left fore arm and wrist and back of neck

1.31.2021 – I did have fever pain joints and injection site and headache developer 24 hrs after injection and lasted for 12 hours then went away they were mild in nature and Ive been fine since then

2.8.2022 – Fatigue was yesterday after I'd checked in and was moderate

3.20.2022 – Allergies lots of sneezing and nasal discomfort but home COVID-19 YEDT IS NEGATIVE

9.25.2022 – Sneezing, nasal congestion headache mild body aches..feeling hot and cold

12.4.2022 – Body aches loose stools nasal congestion and sore throat

Amenorrhea, Intermenstrual bleeding and Menstruation irregular

10.15.2021 – My period has stopped since my second shot. I did have about 3 weeks where I had diarrhea and was extremely fatigued. I was also sneezing a lot. I went & they tested for e-coli, Cdif, salmonella & other stomach bugs. She gave me Cipro.

4.16.2022 – My period has been spotty & it stopped after my second shot. Then it came back. I went for my booster & it's now stopped again.

5.23.2022 – Caught Covid in Jan, after being vaccinated & boosted. Which has caused my period to stop, since I got my first shot.

11.24.2022 – Period stopped unexpectedly.

Bronchiectasis, Pleurisy and Chronic obstructive pulmonary disease

1.31.2021 – Short of breath. I have severe COPD, Bronchiectasis...on oxygen at night while sleeping

2.1.2021 – Maybe a bit more shortness of breath.

2.22.2021 – Sore throat

2.25.2021 – I had 2 severe reaction episodes to this 2nd injection, tried to tell you about them in this but not sure if you received them.

3.21.2021 – Pain in left ribcage area, into my back, sometimes stabbing pain. .Pneumonia, finished levaquin today. Had mohs surgery in nose, on antibiotics for that, stitches come out 3/24.

3.30.2021 – Pneumonia, Pleurisy.

Joint impingement, Rotator cuff syndrome and Joint range of motion decreased

1.3.2021 – Burning arm pain from my shoulder to my fingers not associated with injection site

1.8.2021 – Continue to have arm pain with limited range of motion

1.16.2021 – Rotator cuff impingement/tear consistent w/ vaccine inj. Pain began immediately after inj 2 wks ago. Saw physician & now taking 12 days of steroids. Very limiting for my work as a dentist & daily life in general. Im considering forgoing 2nd dose Physician exam

1.25.2021 – Left arm/ shoulder inflammation with hand cramping. Prednisone rx given by pcpIm a dentist and it has been very difficult to work PCP and orthopedic surgeon to evaluate my shoulder

2.9.2021 – Shoulder & arm pain with cramping pinkie continues after 2nd round of steroids. Continuing to consult with physician & orthopedic surgeon . Struggle to work Steroid injection, multiple appointments with physician

2.13.2021 – Shoulder pain with weakness and decreasing mobility. Difficult to work as a dentist and to exercise the way I was prior to my vaccination In person physician exams

Lymph node pain, Injection site pain and Lymphadenopathy

1.16.2021 – I got my shot in my left arm and now the lymph node underneath my left ear is very swollen and tender.

1.17.2021 – Yesterday, an hour after I checked in and felt fine, the injection site started to hurt so badly that it felt like Id been stung by a wasp. It hurt for the rest of the night.

1.21.2021 – The lymph node behind my left ear(I got my shot in my left arm) is still swollen, its very very painful.

1.23.2021 – My left lymph node is still swollen over a week after my shot. Its sore and tender.

3.19.2021 – My lymph node is swollen and painful. This happened when I got my first shot. Im also very tired.

Tonsillitis, Respiratory syncytial virus infection and Heavy menstrual bleeding

1.21.2021 – Period is not stopping. Not sure if related. 15 days now

1.28.2021 – Tonsillitis or possible strep throat. Doctor told me to assume i have covid, i got covid test, negative, unable to get strep swabbed. Cough, mild fever, skin yeast rash in multiple areas likely from antibiotics. Diarea likely from antibiotics.

2.2.2021 – Dizziness

2.2.2022 – Covid positive 1/17/21, high bloop pressure post infection

12.23.2022 – Have had rsv, and the flu, and multiple cold illnesses this season

Breast swelling, Vaginal hemorrhage and Breast pain

3.9.2021 – Not sure if its related to shot, but I have pain below my left underarm are

3.10.2021 – I still have very slight pain under left underarm but it is not as painful as the day before. It is improving.

10.7.2021 – Last night, early evening experienced the following chills, fatigue, pain at the injection site, sorenees/slight swelling near the left breast. Still have the breast pain.

10.10.2021 – Since yesterday (Saturday), I have been experiencing extreme heavy vaginal bleeding

10.11.2021 – Still experiencing heavy vaginal bleeding. It's not quite as heavy as on Sunday, but still significant amount.

10.12.2021 – Still experiencing vaginal bleeding. Not as heavy as previous day.

4.18.2022 – When I got the vaccination I experienced chills, aches, swollen under arm, and stiffness in lower back area

Dermatitis contact, Hypothyroidism and Food poisoning

3.4.2021 – Asthma, stem cell transplant chronic fatigue

3.27.2021 – This might be my end of the week stress headache but I needed to sleep nearly 24 hours and take two whole ativans instead of a half a one to get it to loosen its grip. Its still there but down to a 1 on a scale of 10. It was an 8 before.

6.26.2021 – Learned I have hypothyroidism and medication has done wonders against my fatigue. Also had a really bad cold but it tested negative for COVID

9.23.2021 – Increased tmj.

2.20.2022 – Food poisoning, no biggie.

4.19.2022 – Metallic taste in mouth for days now.

6.14.2022 – Nausea and vomiting last week, large poison Ivy or poison oak rash

Periarthritis, Joint range of motion decreased and Mobility decreased

1.11.2021 – I'm taking 2400 mg of ibuprofen to mitigate the shoulder pain and ROM is 10-20 percent

1.13.2021 – On Monday my shoulder was essentially “frozen”, yesterday I had about 40% ROM; today it was nearly 100 % with about 75% normal strength. I could push the car door open today fairly easily whereas yesterday I couldn't. I've maintained a steady regimen of ibuprofen backing it off to 1200 mg today. As well as using a Rx topical gel diclofenac sodium several times a day

1.10.2022 – Covidmostly sinus and coughing issues

Chronic obstructive pulmonary disease, Cyst and Asthma

3.24.2021 – Extremely tired today

4.5.2021 – Muscle soreness over the weekend

4.23.2021 – I get shingles type rashes under my armpits. Same w first shot. Takes over 10 days to go away.

4.25.2021 – Only one small cyst remaining on each armpit. Healing slowly

5.10.2021 – I have severe full body aching, & cysts under my arms. My dr put me on antibiotics. Both occurred around day 7-14 after my shots. I took pics to show my pcp. Im glad its over though. I have asthma & COPD & I live alone, worth the risk Prescribed 7 days of antibiotics

Mechanical urticaria, Loss of personal independence in daily activities and Urticaria

2.17.2021 – small rash on fingers. could be unrelated to vaccine. they happen to me occasionally.

3.19.2021 – minor skin inflammation on fingers (may not be related)

3.6.2022 – about 10 days after my moderna booster, I developed a systemic rash. The rash morphed into a case of dermatographic urticaria (L50.3). It causes daily discomfort and affects may day to day aspects of my life even the ability to pick up my daughter.

6.8.2022 – Hives (aka chronic spontaneous uricaria) from the booster in December have abated but not yet fully resolved

Urticaria, Lymph node pain and Oropharyngeal pain

4.6.2021 – My lymph nodes in my neck are sore, throat sore. Just don't feel particularly well today. Have had this issue on an off with lymph nodes for the past few weeks. Might be allergies. But is doesn't really respond to antihistimines or Tylenol.

3.16.2022 – In December, I developed hives. I've never had hives before. My dermatologist suggested taking Zyrtec for 4 weeks, then stopping. The hives returned. So I now take Zyrtec daily. My dermatologist- in office cisit

Presyncope, Fibromyalgia and Injection site reaction

12.27.2020 – Severe body aches

1.14.2021 – Tingling and numbness in all extremities

1.25.2021 – Head and nerve and muscle: weakness, numbness, feeling asleep, tingling, pain, all limbs worsening some gbs perhaps Had initial er visit for acute vasovagal reaction minutes after second dose. The feeling in muscles limbs head had not gone away.

2.24.2021 – Since got second covid shot 1/20, all limbs still experience worsening paresthesia/tingling and numbness like falling asleep. Worse on left side and worst at injection site. Worst on lateral 1st-3rd digits.

4.21.2021 – Diagnosed with fibromyalgia

Asthenopia, Head discomfort and Disturbance in attention

3.21.2021 – Hot flashes & sore throat

3.22.2021 – Lack of Focus

3.23.2021 – Lack of focus

3.25.2021 – Headache first thing, but went away.

3.26.2021 – Brain fog/lack of focus

3.27.2021 – Head Fog/Lack of Focus

4.10.2021 – Brain Fog

4.12.2021 – Brain Fog & Hot Flashes

4.17.2021 – Brain Fog & Lack of Focus

5.15.2021 – Headaches

11.5.2021 – Took 3 ibruprofen after vaccination

11.6.2021 – Using ibuprofen 1st - 24 hrs.

11.7.2021 – Taking ibuprofen for both

11.8.2021 – Sore armpit under injection site

11.9.2021 – Sore armpit

11.10.2021 – Eye strain

11.11.2021 – Brain fog

11.12.2021 – Dry cough (infrequent, but present)

2.4.2022 – Allergies, pressure headaches, exhaustion

11.11.2022 – Some coughing, sneezing, sniffles

11.18.2022 – Infrequent, harsh cough