Their Stories

Abnormal feces, Testicular pain and Multiple sclerosis

1.31.2021 – I have MS so fatique is a normal daily occurrence. Discomfort of shot was not noticeable compared to my daily Copaxone sight a. The very temporary headache/light sensitivity was new.

2.5.2021 – A little tenderness at the injection site. It could be just my MS.

2.6.2021 – Very mild redness around the injection site, that where itching became a couple of days ago.

2.20.2021 – Muscle spasms for last 3 days and migraines probably due to MS desease. Copaxone site reactions more severe than usual. I've skipped a few Copaxone shots due the last week to let my skin recover a little. Mainly I feel it is probably not due to vacc.

2.25.2021 – Testicular pain

3.1.2021 – Dry eyes

3.2.2021 – Eye strain

3.30.2021 – Mild constipation and tiredness and stomach bloating, could just be MS symptoms especially the latter two. Very large stools and mild constipation are new symptoms.

5.8.2022 – I had abdominal pain before the shot so I don't think it's related.

5.9.2022 – Abdominal pains began before the shot.

5.11.2022 – Rash on both ankles, left ankle & foot bright pink, not itchy simply noticed in shower..

6.3.2022 – Abdominal pains Lower leg soreness In person GP visit, blood work resolved to normal now but still having less painful symptoms.

Body temperature increased, Sinusitis and Chills

3.10.2021 – Last night had chills and one degree temp elevation. Today just felt "off" but no temp elevation or chills.

3.29.2021 – 3/22 had severe headache from 7pm - 12am. I do not get headaches. Been fine since.

4.14.2021 – 4/8 @ 10am started chills and low grade temperature elevation. Chills lasted approximately 6 hours and temp elevation lasted 36 hours. No other issues. I went to bed for one day.

10.21.2022 – Sinus infection and allergies last two weeks.

Extrasystoles, Atrial fibrillation and Tenderness

3.6.2021 – Heart palpitations, exhausted, skipped heart beats.Diagnosed atrial fibrillation.

3.13.2021 – Afib

10.28.2021 – Swelling in armpit of the arm I received my vaccine.

10.29.2021 – Tenderness and slight swelling in armpit.

11.9.2021 – I experienced a 3 hour episode of afib this past week. Two weeks after my 2nd dose I experienced afib for the first time. Now once again after my booster. I'm concerned it may be connected to the vaccine.

11.25.2021 – Afib has reoccurred this week lasting a day.

7.15.2022 – I went into AFib 5 hours after my 2nd booster. This was my most concerning episode to date. Rapid heart rate and beat, beat, skip, beat beat, skip. My first Afib happened one month after my 2nd vaccine.

Hyperventilation, Restless legs syndrome and Musculoskeletal discomfort

3.6.2021 – Itchy upper body but no visible rash

3.7.2021 – Scratchy throat

4.5.2021 – Itching all over, but no visible rash

4.6.2021 – Dizziness, wobbliness, weakness in legs; still some itching all over, but no rash; unclear thinking, probably related to dizziness

4.7.2021 – Dizziness, weakness (especially in legs), tension/restlessness in legs

4.8.2021 – Weakness, dizziness

4.9.2021 – Dizziness, weakness

4.24.2021 – My legs have gotten weaker again and Im having to lie down more. Sometimes I find myself involuntarily taking extra deep breaths.

5.8.2021 – Legs weaker, knee joints more uncomfortable, hard to concentrate, tired

12.3.2021 – Starting to feel a little off. It's only been about 4 hours.

12.17.2021 – Arm was mildly itchy at injection site starting on Day 8 after booster. Haven't felt anything today.

12.24.2021 – The discomfort I felt in both knees after my second shot of Moderna had returned, though in milder form.

1.7.2022 – Mild sore throat, slight congestion, mild fatigue mobile COVID test (negative)

7.25.2022 – Discomfort in knees

7.27.2022 – Mild congestion and sore throatI think I've come down with a cold!

White matter lesion, Alanine aminotransferase increased and Incontinence

4.29.2021 – Shortness of breath and coughing

4.30.2021 – Tachycardia

5.7.2021 – Large Hives and rash down L and R arms left leg and back that is getting worse Weakness Tachycardia Coughing Shortness of breath Fatigue Higher than normal BP Anxiety Elevated liver ALT in blood test

5.14.2021 – Fatigue hives neurological symptoms

5.21.2021 – Menstrual cycle 2xs since vaccine Nerve painNausea Hives Cough shortness of breath Fatigue

5.28.2021 – Chest pain Fatigue Cough

6.6.2021 – Shortness of breath chest pain and fatigue neurological pain

7.23.2021 – ER chest pain Dr gave referral to cardiologist

10.22.2021 – Chronic cough respiratory infection Rapid heart rate Incontinence Fatigue Neurological symptoms White matter disease

Gastrointestinal pain, Flatulence and Vertigo

3.18.2021 – I had a migraine today, not a headache. I get migraines all the time, so it may not be related.

3.20.2021 – Another migraine. Not sure if it's related to the vaccine or one of my regular ones.

4.15.2021 – I was super gassy along with my gut hurting, but it's gone this morning.

4.16.2021 – Migraine, not headache

4.27.2021 – Had a bought of diarrhea. My husband who also got the same shot as I did on the same day also had diarrhea, but his was for a couple of days. We eat the same food but our diarrhea was not on the same days as each other. Maybe vaccine related?

10.12.2021 – Neck pain, vertigo, dizziness. Have had the neck pain for a while. A pillow a week ago made the pain, vertigo, dizziness much worse. I don't know if this has anything to do with the shot or Covid-19. I put no on the answer below, but I'm unsure.

Regurgitation, Impaired driving ability and Respiratory disorder

3.24.2021 – Itching on arms

4.13.2021 – My breathing is different

4.29.2021 – On Sunday I regurgitated about 10xs them because excessively sleepy like I did when I had the 2nd shot. A sting weird sleepiness... I couldnt drive without pulling over. When I arrived home at 1 pm; after sleeping earlier all day... I slept aga

5.20.2021 – Im not sure... but 2xs when I was around what seems to be some germs... I started regurgitating a lot, fever, and then a sever sleepiness... so sleepy I had to pull over from driving... I thought I would sleep for 15 minutes and it was 1:15min

Irritability, Sinus disorder and Paranasal sinus discomfort

5.28.2021 – On Monday 5/24 I had lumpectomy surgery and sentinel node biopsy. I believe my feelings today are related only to that. I dont think Ive had significant effects from the Pfizer second dose COVID vaccine at all. See above. Cancer surgery, unrelated to COVID.

6.18.2021 – Achy pain at previous bone fracture locations

9.21.2022 – Bit of sore throat

9.22.2022 – Sinus pressure

9.23.2022 – Sinus concerns that are likely allergies

9.24.2022 – Sinus pressure and slight headache, likely due to allergies

9.25.2022 – Congestion, possibly due to allergies. Irritability.

Blood magnesium decreased, Blood potassium decreased and Herpes simplex

4.15.2021 – A few days after vaccine I had an outbreak of Herpes!

4.21.2021 – Very tired, likely due with ongoing diarrhea as my potassium and magnesium can get low but am aware that since I have LingQT syndrome stay on top of this. Started two days after vaccine but how to know if is the cause?

5.7.2021 – Tachycardia of -165 bpm for hours at a time.

5.8.2021 – Tachycardia for several hours on and off ~150-175 since the day after receiving this shot.

5.11.2021 – Tachadardia since day after shot on and off for hours at a time ~175 bpm max sustained. It is exhausting but slowly improving. Dont feel it is emergent so not contacting Dr. since it is just a fast heartrate so assume not dangerous.

6.16.2021 – Have a cold

Bladder pain

4.1.2021 – Severe pain in bladder. I have 300 units of Botox in my bladder

4.2.2021 – Pain in bladder (history of Botox shots in bladder)

4.3.2021 – Pain in bladder. History of Botox in bladder.

4.4.2021 – Bladder pain. History of Botox injections in bladder

4.20.2021 – I have an interstim device in my spine connected to nerves of bladder. After shot had severe pain there. After 3 weeks we turned device off and pain subsided. Have never had pain in 5 years until shot Doctors office

Synovial cyst, Basal cell carcinoma and Upper respiratory tract infection

4.11.2021 – The pain, swelling and itching I'm experiencing are in the lymph glands in my armpit of the arm I received the vaccine in.

4.12.2021 – Itchy, pain and swelling in my armpit, lymph nodes of arm I got the injection in.

4.13.2021 – Still some slight soreness under my armpit, lymph nodes of arm I got the injection in.

5.6.2021 – Dizziness

6.3.2021 – I had symptoms of a blood clot but ended up being a popliteal cyst.

8.5.2021 – BCC.

11.4.2021 – Upper respiratory infection.

11.9.2021 – Persistent cough

11.11.2021 – Respiratory

11.13.2021 – Dizzy

2.7.2022 – Cold symptoms, wasn't tested for Covid so I don't know what it was.

5.9.2022 – Knee injections.

7.14.2022 – Runny nose

7.15.2022 – Lymph node swelling

7.26.2022 – Excessive phlegm

8.2.2022 – Feeling like a cold is coming on with short breath and runny nose.

8.16.2022 – Congestion, runny nose, a bit of a sore throat

Epstein-Barr virus infection reactivation, Cholecystitis and Gastrointestinal pain

1.15.2021 – Firm welt at injection site

1.16.2021 – Firm lump at injection site.

1.17.2021 – Firm swelling at injection site.

1.28.2021 – The redness at injection site returned and spread out to a larger diameter than before and I had lymph node swelling and pain in my armpit on the same side. This started around day 10 and is now resolving on day 14.

2.12.2021 – Calf muscle cramp

2.16.2021 – Difficulty concentrating

3.11.2021 – Gastrointestinalnausea, diarrhea, irritable bowel

3.25.2021 – Urinary tract infection

8.12.2021 – Reactivation of Epstein Barr virusfatigue, myalgia, back and neck pain, tinnitus, headaches

12.5.2021 – Fatigue, cough

10.7.2022 – Gastrointestinal, muscle pain, headaches , fatigue

10.28.2022 – Gastrointestinal pain, cramps, nausea.

Impaired driving ability, Injection site nodule and Nodule

8.31.2021 – Dizziness

9.2.2021 – Sleeplessness

9.3.2021 – Sleeplesness

9.4.2021 – Insomnia

9.14.2021 – I now have a rash on my chest and foot.

9.24.2021 – Feel sleepy for no reason in the middle of doing things.

9.26.2021 – The swelling has gone down but there is a knot at the injection site.

9.27.2021 – Still have knot but it is receding. Drop off without warning. Makes driving hard.

9.28.2021 – Still have knot at injection site. Pain radiates to wrist when arm used for innoculation.

10.5.2021 – Drozy and fall asleep with little warning.

3.16.2022 – Fatigue and pain at injection sight.

Frustration tolerance decreased, Dry eye and Disturbance in attention

5.8.2021 – It looks like Im getting shingles.

5.15.2021 – I had a breakout of shingles and my fatigue still is an issue

5.22.2021 – Still have sings of shingles and fatigue.

7.24.2021 – I have broken out in shingles twice! I have problems with dry eyes and I am experience times of cloudy thoughts or problems focusing. I have never had any of they symptoms before getting the vaccine.

10.25.2021 – Depression, anxiety frustrations that I've told you all this on the stupid thing and you've never done anything about it.

Eye swelling, Skin warm and Breast pain

3.21.2021 – Got really warm on arm next and cheek right after the vaccine

3.26.2021 – Blowing my nose- lots of drainage.

4.19.2021 – Breast pain In person appointment

4.26.2021 – Dizzy

5.17.2021 – I feel like I have a cold. It started yesterday. I also have that really hot sensation all through my body like the one I had when I first received my shot. Its very similar to when you get die put into your body when you were getting an MRI and y

5.22.2021 – Swollen eyes. Lots of coughing. Hopefully allergies

Hypervolemia, Ophthalmic migraine and Epistaxis

3.5.2021 – had a bad cough about 25 minutes after the vaccine lots of fluid felt like i was choking on the fluid. it went away. Then had ocular migraine. In middle of night had a nose bleed this was all on the day of injection

3.11.2021 – I have been cold and shiver its been since after 1st Vaccine. Strange for me Im in menopause so I have been hot and thats not the case other than that Im good

3.29.2021 – elevated heart rate above 100 resting. Same as the day I go the vaccine

4.9.2021 – head cold cough phlegm sinus pressure and super fatigued

4.16.2021 – pretty sure just allergies

5.7.2021 – body stiffness my arm neck and legs.hard time sleeping also anxiety

Injection site infection, Urticaria and Injection site swelling

2.13.2021 – Started with redness and swelling at the injection site on 2/9. On 2/11 I started to break out in hives on my right arm and back shoulder as well as on my lower left arm.

2.17.2021 – I needed to take antibiotics for the infection in my arm at the injection site. Two days later I broke out in extensive hives for three days. Also, my second vaccine is scheduled for March 1. I have surgery scheduled for March 8. I have major concern

Dysphonia, Taste disorder and Somnolence

2.17.2021 – Lack of energy and a sort of malaise

8.4.2021 – I have broken out in spots in the last week. So has my husband, so we don't know what that is. Some of the rest of the family that was on vacation together at (b)(6) Jul 3-10 also broke out in spots in the last week. Don't know cause.

9.29.2021 – Yesterday I felt awful. Today is better.

10.3.2021 – I've needed a nap every day since my booster. I didn't realize it might be related to the booster.

10.4.2021 – I just feel tired every day but still trying to keep busy

12.27.2021 – Cold symptoms. Runny nose, scratchy throat, no headache or fever. Spent time with family members who had similar symptoms. They tested negative for Covid.

3.28.2022 – Scratchy throat last few days. Feeling better today

7.22.2022 – Sore throat, hoarse voice, slight cough, no fever. Tested negative for covid.

10.22.2022 – I got Covid on August 19, had a fever of 101.4, and took Paxlovid for 5 days, and then got rebound Covid. The whole thing lasted about a month. I had an off taste even after stopping the Paxlovid and I had brain fog and fatigue for a month.

Hematochezia, Skin exfoliation and Acne

1.27.2021 – Blood clot in stool this morning. Not sure if related (this hasnt happened to me before)

1.28.2021 – Ear pain (maybe infection) also pain level noted above was first 3-4 days after injection, but anymore.

1.29.2021 – Right ear infection

2.23.2021 – Muscle spasms in my legs (with stabbing pains)

2.25.2021 – Im not sure if I was sent a day 2 check in. I missed two days of work, fever of 102.5 for about 18 hours intermittently, fluctuations assuming due to use of ibuprofen. Rash across sensitive skin areas on arms, neck, face, back, chest. Use of inhaler more frequently since shot.

3.31.2021 – Increased muscle ache/ fatigue. Increase scaly/dry/ painful skin, increase acne, decrease sleep each night

2.24.2022 – Pregnancy, possible covid (positive at home test, negative PCR (they barely touched the inner membranes of my nose)

Breast pain, Tenderness and Swelling

7.30.2021 – Under my left armpit between my armpit and breast it is swollen. Very tender and sore.

7.31.2021 – left side between armpit and breast is swollen and tender I contacted my Doctor

8.1.2021 – between my armpit and breast it is still swollen and tender.

8.2.2021 – Between my armpit and breast it is still sore swollen and tender. I am keeping my doctor posted of the situation too.

8.3.2021 – Between my left armpit and breast it is still tender and sore

Rash macular, Epistaxis and Sinus disorder

3.13.2021 – I did have a low grade fever of 99.4 yesterday evening after submitting my survey

3.15.2021 – Slightly tired this morning. By noon I was good to go.

3.27.2021 – Last check in was 3/18. Next day i got a red bullseye circle, red blotches inside and out my right arm. Swollen lymph nodes underneath my right arm.

7.12.2021 – I contracted the flu from my oldest son.

2.17.2022 – Bad sinus problems. Sneezing, congestion, bloody nose. I think its the dryness in the air.

Liver tenderness, Hepatic pain and Temperature intolerance

1.17.2021 – Bloating/distention/general abdominal discomfort

1.18.2021 – Moderate abdominal distention and liver tenderness

1.19.2021 – Mild tenderness around the liver area

7.15.2021 – Feel heat intolerant most days and have problems with mental fog. Difficulty with short term memory. Reduced energy.

2.13.2022 – Chronic inflammation- body aches and fatigue

7.6.2022 – Since receiving 3 vaccines in the right arm. Developed pain and stiffness like arthritis type ache chronically with limited mobility. Fatigue and mental fog continues to be prominent daily- dx of anemia continues

Injection site urticaria, Vision blurred and Injection site warmth

1.30.2021 – The rash was down near the inside of arm right above my elbow. It started about 40 min after the injection. Its gone now

2.1.2021 – Last night I had a very large red swollen hot welt on my arm running from the injection site down. And a temp of 99.8. It was hot and painful to the touch. Its better today but still there.

2.2.2021 – Some redness on chest and collar bone area last night and still on arm below injection site. Temp last night after yesterdays check in of 99.5.

3.1.2021 – Blurred vision for both distance and close up.Also some dizziness.

3.21.2021 – HeadachesRash on arm right below where vaccinated and then a few hours later down near wrist. Took an antihistamine and used cortaid and that helped after awhile. Gone after a few hours.

4.4.2021 – Rash on forearm at elbow area on arm of injection. Lasted a couple of hours until antihistamine worked. Also headache in temples continues off and on.

3.1.2022 – Dizzy nauseous headache tired

Abscess limb, Abscess and Blister

3.14.2021 – The itchy hurting rash on my arm grew to 4x the original size. It is almost completely gone now on day 12 after the start of the rash.

3.31.2021 – Shortness of breath

4.16.2021 – Large blisters on the underside of my arm that received the vaccination.

5.9.2021 – Large abscess in armpit of the arm where I received my second shot.

6.25.2021 – 2 more abscesses, making a total of 3, in the armpit of the arm where I received my second vaccination. I have never had an abscess before anywhere including my mouth. Surgery to lance one of the abscesses

Spinal pain, Fibromyalgia and Sinus pain

3.23.2021 – Chronic migraines, fibromyalgia-moderate symptoms present before vaccine

3.24.2021 – Fibromyalgia and chronic migraines, symptoms fairly typical

3.25.2021 – Fibromyalgia, chronic migraines seem to be flaring post-vaccination

3.26.2021 – Fibromyalgia, chronic migraines flare

3.27.2021 – Fibromyalgia, chronic migraines

3.28.2021 – Pain in the spine, fibromyalgia and chronic migraines flare

3.30.2021 – Fibromyalgia, chronic migraines (flare abating)

4.13.2021 – Arthritis and migraine flare

4.22.2021 – Migraines have been more frequent and less responsive to medications

4.26.2021 – All symptoms from waiting in line for almost 2 hours and pre-existing conditions

4.28.2021 – Dry cough, tachycardia, possible potassium deficiency (underlying renal tubule disorder, possibly aggravated by vaccine response?), fibromyalgia symptom flare

5.1.2021 – Fibromyalgia and migraines flare from shot waning

5.2.2021 – Chronic condition flares largely subsiding. Headaches remain somewhat worse than normal

5.3.2021 – Headaches still above my normal, but fibromyalgia is returning to my non-flare normal

7.26.2021 – Stiffness/pain in toes, possibly related to increased immune activity post-vaccination (w/prior history of autoimmune disease that had been largely in remission). Rheumatologist prescribed hydroxychloroquine, which had worked with prior MCTD flares

5.5.2022 – Sinus pressure and pain, runny nose, cough (negative home COVID tests)

7.12.2022 – Sore throat, chest heaviness, cough, tachycardia

10.17.2022 – Sore throat, fatigue, pain

Pyelonephritis, Nasal discharge discoloration and Respiratory tract infection

3.23.2021 – Arm is a bit sore but not awful

3.24.2021 – All this may be seasonal allergies I get in spring

3.29.2021 – Swollen lymph nodes in the underarm and clavicle

4.12.2021 – Was a bit sick before the shot I think

4.15.2021 – Swollen lymph nodes same side as shot. Good immune system ???

10.11.2021 – I got COVID-19 DELTA VARIANT. Currently have a kidney stone have a UTI pyelonephritis. Being worked up for kidney FAILURE came on in past 3-4 months. Severe fatigue. Fevers off and on. Internal medicine doctor. My usual doc.

10.21.2022 – Joint pain is severe. Injection site is sore still

11.5.2022 – Cold symptoms green discharge in nose Conjunctivitis Malaise Cough

11.21.2022 – Cold like symptoms. Respiratory infection.

Telemedicine, Alopecia and Eye pain

3.19.2021 – Runny nose stiff neck blurred vision

3.20.2021 – Dizziness I pain in the sockets of my eyeballs

3.21.2021 – Blurred vision, massive migraine massive eyesocket pain, stiff neck still Telephone call To get migraine medication

4.16.2021 – Blurred vision

4.30.2021 – My arm where I received the vaccine started hurting

5.21.2021 – So tired just sleepy all the time

7.16.2021 – My hair is falling out a lot.

4.16.2022 – Still losing a lot of hair. Therefore I'm not excited to have the booster shot I've had zero so far. Also I had a second Covid, so now I've had Covid twice

Sensitive skin, Tenderness and Paresthesia

2.21.2021 – Pain in armpit of injection arm

2.24.2021 – Sometimes Itchy sorta here n there skin prickly feeling in places for which I would normally take a Zertec or prescription Cetieizine Hydrochloride 10mg - once in a while before bed but I have not been taking them as to not interfere with the vaccine

3.18.2021 – Under my armpit has hurt since my first shot like my lymph node sorta area But Very Mild and merely Noticeable

4.21.2021 – The lymph node under my left armpits STILL really bothering me. Slightly swollen and tender to slight pain. Really bothering me still. Ever since first injection.

4.28.2021 – Sensitivity under left armpit. Lymph node kinda area still tender boarderline painful. Really bothering me.

Acute myeloid leukemia, White blood cell count decreased and Platelet count decreased

2.22.2021 – I have rheumatoid arthritis so I take tylonel for pain. It seems to be less effective since my covid 19 vaccination. Is there a connection?

3.1.2021 – My tylenol isn't working as well as before my covid vaccination. It's getting worse.

3.9.2021 – Called rheumatologist. Will call him again if not feeling better in a couple of days

10.13.2021 – Ra and ostio arthritis flare ups. Additional prednisone

10.20.2021 – All over pain. Its better after 3 week treatment of prednisone.

10.27.2021 – I have a terrible upper respiratory infection which started 10/26/2021. I'm coughing uncontrollably and bringing up greenish yellowish mucus. I don't seem to have a temperature but my nose won't stop running. I feel awful!!!!!!@

12.15.2021 – I have mds and I take 5 mgs revlimid orally daily. On my last visit to my doctor 12/10/2021, my platelets and my white blood cells were down a good bit. I go back to my doctor on 12/17/2021 to learn what treatment he will direct me on.

3.16.2022 – Acute myeloid leukemia.

Tinnitus, Decreased appetite and Insomnia

1.17.2021 – Insomnia last night, which is common for me but was a bit worse.

1.20.2021 – Very bad insomnia last night with slight dizziness and intermittent tinnitis

1.21.2021 – Dizzyness

9.30.2021 – Low appetite. Gradual improvement in all symptoms throughout day.

10.1.2021 – Chills and headache worse first thing this morning.

10.2.2021 – Insomnia- worse than usual but chronic problem for me.

10.4.2021 – Insomnia

4.11.2022 – Insomnia last night.

7.8.2022 – Sore throat Get Covid test

10.7.2022 – Woke up with sore throat today. Home Covid test negative.