Their Stories

Bedridden, Oral discomfort and Spinal pain

6.17.2021 – Slight fullness of lips (+mouth/nostrils!). Wed rt aft dose: had slight swelling in lips, tongue, throat. It was relatively less than prior rxns to other medications, but same thing. I did take quercetin prior to vaccine, only. No breathing problems.

6.18.2021 – Still, daily since vac: weak, strange feeling, lightheaded. No fever but temp higher than usu: 97.9 vs 97.2.Yesterday: I actually felt fair for the smiley, not at all normal self! (But I (I think wrongly) I answered good- as improved since Wed )

6.19.2021 – The day after vaccine I felt (moderate) pain right along a large segment of spine (and breifly also in lower back) - both never before experienced (an no other triggers). Seemed gone the next day- but I feel it again today! Though much more slight.

6.21.2021 – Strangely winded from stairs; unusually weak/tired and unusually out of it. (even walking in house feels strange.) No idea why; if still related to vaccine. Only other poss. cause (only 6h sleep) doesnt usu cause this.

6.23.2021 – *New last night: multiple hives discovered last night; 1 on prior day. Most on torso, some arm. Yesterday and Monday, had pain along spine. (Since vaccine; never prior.) =Slight today. (Mon super/strangely weak/fatigued, and hard to walk straight.)

7.1.2021 – New hives on torso- but dont remember if 1st noticed just after last report, or just prior, or if reported this already. Hives either just after last, or second to last report. Still much more fatigued than normal +very slight swelling inj site, t

7.8.2021 – (All below moderate selections are the severe end of moderate. Chills were only severe early a.m.; then mild to moderate rest of day.) Extremeley slow. Hard to even sit up, or walk. Napped throughout most day. Only eating fruit and drinks, mostly.

7.9.2021 – Note for below section: nausea (and lightheadedness) severe when stand/walk; otherwise mild-moderate (but also no appetite, for more than fruit/water/juice, for second day) ; bedridden 2nd day as result (slept most of first).

7.11.2021 – In case I cant go back: Fri night discovered new significant rash/discoloration around injection site. Headache severe all FRI. Symptoms/fever improved Sat. Today: not sure if Fever or not- but normal temp is always 97, never 98, as it is today.

7.21.2021 – Ive been having pressure in chest/short breath -possibly after both vac doses; Ive had some issues with this in past year- but it returned, definite increase/more noticeable in past week or 2 (+aft 1st dose). Possibly/or in part costrochondriti ECG Stress test ordered.

Eructation, Flatulence and Herpes zoster

7.18.2021 – sneezed a few times

8.11.2021 – Itchiness and skin rash. Diagnosed as Shingles. Itchiness began in right armpit before the first vaccine but has spread to other armpit, upper arms, back, testicle sac, and chest. Feel slight ache spasms in area of kidneys on my back.

5.4.2022 – Allergies that led to chest congestion and cough that lasted for nearly 4 weeks. Also had sinus infection. Zpac lessened symptoms but then came back when I finished course. 3000 units daily of Vit D seems to have helped of late.

11.3.2022 – Excessive gas - belching and flatulence - for the last 6 weeks

Rhinalgia, Fluid retention and Colitis

3.18.2021 – I have a mild amount of irritable pain behind my right cheek, below my eye, and near my nose. Slight pressure that started 14 hours ago and hasnt let up or gotten worse

3.19.2021 – Still have that feeling around my right sinus.

9.15.2021 – Last 3 days i had real sore muscles in my legs. Today 9-15 i have headache, sinus pressure, stuffy nose, congestion, a tickle in my chest and throat. Some mucous in back of my throat. Keep sneezing and i cough every so often

3.16.2022 – Ive been retaining and barely losing up to 45 lbs of fluid with bad swelling and now i have colitis in my leg. I have bad fatigue and my blood pressure is either 170/116 or 107/70. All since getting covid a 2nd time in Sept. I also lost my job My family Dr visits

Alopecia scarring, Lichen planopilaris and Eustachian tube obstruction

4.13.2021 – I have had sinus pressure since the second day. My head hurts, pressure in my face and ear. Probably a sinus infection coming on and not related to the shot but my husband had the same symptoms after his first shot and had a severe sinus infection a few days later

4.15.2021 – Congested

5.7.2021 – Went to the dr today with dizziness, pressure in ear and just not feeling good. Figured it was an ear infection, sinus infection or allergies. He said my Eustachian tube was clogged . I definitely dont think the vaccine had anything with t Family Dr office visit

10.8.2021 – I have been diagnosed with Frontal Fibrosing Alopecia. This is where u lose hair it is a scarring alopecia. It does not grow back. Probably not vaccine related but had symptoms same month as vaccine. Just didn't know I should be concerned at that tim

1.26.2022 – I was diagnosed with frontal fibrosing alopecia last summer. I had both vaccines around 4 months before diagnosing. I started getting little bumps in my frontal hairline. Probably not related to vaccine today before booster no issues present

1.27.2022 – Back pain,had before booster seems worse today

4.27.2022 – I was diagnosed yesterday with Covid. I have a headache and congestion. I thought I had a sinus infection so I went hoping I'd get an antibiotic

Insulin resistance, Transfusion and Gastric ulcer

4.17.2021 – Tiredness and Fatigue

5.15.2021 – Pre-diabetes, insulin resistance

10.2.2021 – Cough, nasal congestion, headache, mild fever, fatigue, and decreased appetite. But i think it was because i had received a flu shot before I got sick. But everything is better now.

1.16.2022 – GI bleeding, vomiting, defecating blood, and very low hemoglobin. with endoscopy procedure.

3.27.2022 – GI Bleed from a stomach ulcer, treated with a blood transfusion. Admitted

6.26.2022 – Bronchitis with fever.

Weight decreased, Dry throat and Vision blurred

5.27.2021 – Dray throut

5.28.2021 – None

6.2.2021 – Tired

6.10.2021 – No energy to move everything hurt dizzy is hard to stay awake feel safe all the time now. I thought I was okay the first days of the shot but now I feel weak

6.18.2021 – Sleepy

6.20.2021 – I'm different before more tired sleepy at weakness I'm breathing in it's hard when I breathe little difficult catch My breath

7.1.2021 – Soreness in my throat difficulty to breathing tiredness aching body

7.8.2021 – joying pain

7.22.2021 – So tired so weak

9.16.2021 – Shores throat tireless penis Glory vision fast heart beating weak lost appetite headache all these come and go very sleepy most of the time

12.16.2021 – Weak sleepy tired loss appetite lose weight headaches can't sleep at night my arm were they shot it was put it on it hurts

General symptom, Respiratory symptom and Rhinorrhea

1.12.2021 – I experience the above symptoms most days anyway.

1.16.2021 – I'm always "fatigued", not related to vaccine.

1.18.2021 – I am always fatigued, not vaccine related.

1.26.2021 – Bad headache today

2.2.2021 – Flair up of joint issues, left wrist and hands. Continuing non-productive cough

2.14.2021 – Fatigue is not unusual for me even before vaccination.

8.10.2021 – Runny nose, coughfor a couple of days. No fever. No loss of taste or smell.

2.9.2022 – Severe headache, upper respiratory symptoms with cough, fatigue

Osteoarthritis, Aphthous ulcer and Joint stiffness

7.17.2021 – Arthritis is stiffer today.

7.18.2021 – Osteoarthritis acting up a little more that normal.

7.19.2021 – Back to original arthritic pain and stiffness.

7.20.2021 – Back to normal arthritic pain

7.21.2021 – Normal arthritis

8.6.2021 – Nothing yet. Only been 3 hours since shot.

8.7.2021 – Slight headache, arthritis a little stiffer than normal. Note: take turmeric daily. Hope it did not affect the effectiveness of the shot.

8.12.2021 – Normal arthritis stiffness and pain.

8.27.2021 – Cancer sore on lips.

9.17.2021 – Fatigue

11.5.2021 – Soar throat.

Respiratory tract infection viral, Depressed mood and Muscle twitching

2.18.2021 – I have had minor twitching in my upper lip, beneath my nose. I do, however, experience muscle twitching occasionally.

2.19.2021 – Wry mild twitching of my upper lip continues, but it is much less frequent today.

3.16.2021 – My tinnitus has been constant and more prominent since the second dose.

3.17.2021 – Tinnitus continues

3.18.2021 – The tinnitus continues.

3.19.2021 – The tinnitus seems to be improving.

5.6.2022 – Sadness

12.30.2022 – I developed a respiratory virus a couple weeks w.

Arthritis, Respiratory tract congestion and Oropharyngeal pain

5.12.2021 – I have arthritis and it is raining.

5.13.2021 – Arthritis,

5.14.2021 – I have arthritis-that accounts for some symptoms.

5.16.2021 – Arthritis-and it is raining.Pain probably not associated with the vaccine.

6.2.2021 – I have arthritis.

6.3.2021 – I have arthritis so some symptoms come from that.

6.4.2021 – I also have a sore throat. I have arthritis too.

6.5.2021 – I have arthritis-could cause some of the symptoms.

6.8.2021 – I have arthritis and it is still raining.

11.30.2021 – Coughing, congestion, fatigue, etc.

Drainage, Paranasal sinus hypersecretion and Upper-airway cough syndrome

1.28.2021 – A little post nasal drip

1.29.2021 – Nasal drainage

2.10.2021 – Major headache all day yesterday starting above my right eye next to the bridge of my nose.

3.18.2021 – Very bad migraines on Sunday, 3/14; Wednesday, 3/17, and Thursday, 3/18.

3.25.2021 – Terrible migraines...4 in the last 10 days (3/14, 3/17-3/18, and 3/23). Tylenol would not work to ease it. My Butalbital (Fioricet) barely worked. They lasted all day long. I couldnt hardly sleep at all the night of 3/17.

Hordeolum, Injection site discoloration and Rash erythematous

4.18.2021 – Injection site is small, round and dark (there was blood there after the injection). Rash is below injection site and itches (just annoying, distracting).

4.19.2021 – Rash is still visible below injection site; itching has been relieved somewhat by a topical anti-itch cream rubbed into the rash site.

4.20.2021 – Rash itching a bit less today; have applied a topical anti-itch cream. Still redness at rash site.

4.21.2021 – Rash below the vaccination site is less itchy today. A good sign that its going away. Rash site also much less red. Im good.

4.22.2021 – Rash redness has lessened, no itching today.

7.15.2021 – UTI

6.22.2022 – Fatigue is less.

6.23.2022 – Slight tiredness; just not my usual energy.

6.24.2022 – Feeling much better than earlier in week.

Esophagitis, Nodule and Pharyngeal swelling

4.22.2021 – Sinus pressure headache, some congestion

4.24.2021 – Small red bumps on back

4.25.2021 – Minimal on back and is reduced

5.19.2021 – Inflamed throat and esophagus for 2-3 days, possibly from a food sauce irritation.

7.21.2021 – Rash on sides and heel of feet and palms of both hands. PA Dr. at primary practice

4.25.2022 – New-Sinus congestion, low fevers, sore throat. Continued rash on foot but lesser. Primary care doctor

5.6.2022 – Mild sinus congestion, teeth pain, no fever Dentist

Thought blocking, Hyposmia and Psoriasis

4.9.2021 – Brain fog

4.15.2021 – Very stiff neck

4.16.2021 – Stiff neck

4.23.2021 – Fatigue is overwhelming

5.6.2021 – Face numbness, sore throat

5.7.2021 – Sore throat and right facial numbness from under eye to chin and from ear to mid nose

5.8.2021 – Sort throat and, facial numbness, tingling fingers

5.9.2021 – Face is still numb and right sided tingling of fingers and toes

5.10.2021 – Face is still numb

5.27.2021 – Fatigue and depression are overwhelming, face still has areas of numbness, there has been a significant worsening in my eyesight, I get a pounding headache daily, and my body and mind are just off...

6.3.2021 – Sore throat, runny nose, chest tightness, no taste and limited smell. Achy, tired, blurry vision, diarrhea, nausea,...

6.10.2021 – Constant cough and short of breath

8.5.2021 – Psoriasis has worsened a great deal, I have no appetite and when I do eat everything is vey bland. More fatigue and worsened depression as well. Brain fog has not really improved, I constantly lose my train of thought and am very forgetful.

5.6.2022 – Sore throat, dry cough, more brain fog

Skin infection, Specialist consultation and Gastroesophageal reflux disease

2.12.2021 – I had to go to the doctor. I got a skin infection and doctor gave me penicillin. Red spot at injection site on the 8th day started to grow and creeping down and under my arm. Itching and stinging/burning. After 4 days on meds /resolved. Lymph node in

3.2.2021 – Soreness under right arm Injection was in right arm. A bit dizzy.

3.3.2021 – A little trouble focusing my eyes befor 9:30 am then it was gone.

3.5.2021 – Sweating more than usual

3.13.2021 – GERD started 3/8/2021 and am still experiencing heartburn with dry cough

Cheilitis, Migraine with aura and Rash erythematous

2.2.2021 – Gland in armpit of injected arm is swollen and painful

2.3.2021 – Swollen armpit gland on same arm as injection

2.4.2021 – Swollen and painful gland in armpit of same arm that was injected

2.18.2021 – Just a headache

3.18.2021 – Swollen lymph node on left arm out, side of injection

3.27.2021 – Lymph node swollen in left arm

4.10.2021 – Random headache on one side of head that shoots down face, and soon disappears

8.28.2021 – Migraine aura without headache 8/21/21

12.10.2021 – Red bumps around inside of lips

1.7.2022 – Covid positive Email

Hematochezia, Parosmia and Dysgeusia

3.26.2021 – Stabbing chest pain, went away after 20 minutes

5.19.2021 – Persistent headaches since last vaccination

10.20.2021 – Have had sore throat since booster on 10/14

11.6.2021 – Had covid booster four days before flu shot. Have been feeling ill but getting better slowly. Had covid in september, feels like im still recovering in little ways.

11.25.2021 – Copper smell in nose, blood in stool, not sure if covid related. I think its my diet.

1.13.2022 – Dairy and coffee taste and smell metallic now

Body temperature increased, Musculoskeletal stiffness and Diarrhea

1.4.2021 – My left arm was somewhat stiff/sore when I first woke up. It loosened up fairly quickly.

2.1.2021 – I had one loose stool that I would not classify as diarrhea.

4.24.2022 – The day following my shot (each time) I experienced a mild sore arm around the injection site, and mild aches, chills and fatigue for 12-24 hours. I had a fever around 100 degrees after the last shot.

10.14.2022 – I had my third COVID booster (new one) late yesterday, and I have mild achiness, possibly low grade fever, etc. today. This is same reaction I've had after each dose/booster.

Blood pressure diastolic increased, Gastroesophageal reflux disease and Hypertension

4.21.2021 – I JUST got it an hour ago so too soon to tell

4.22.2021 – Bad acid reflux/GERD. I have it but its controlled with meds. Not today! Noisy

7.21.2021 – Probably unrelated. Sharing, just in case. Had a migraine for the first time in many years two nights ago. Even threw up. Cant remember the last time I did that. Was really tired and weak that day after. Went to bed early and All good now!

4.21.2022 – High blood pressure - especially diastolic

8.19.2022 – Caught Covid in July.

Endometrial thickening, Pancreatic failure and Colitis microscopic

2.18.2021 – Strangely the 1st injection site was itchy on the opposite arm last night 5 hours after receiving the second dose in the other arm.

2.19.2021 – Postnasal drip, mild sore throat and mild congestion

2.21.2021 – Cold symptoms-runny nose, sore throat

2.22.2021 – Runny nose, slight weakness/fatigue, diagnosed/treated for UTI 3 days after 2nd vaccination/Bactrim-kidney pain

5.3.2022 – Mild dizziness

10.20.2022 – Dizziness right after vaccine for 18 hours, severe bodyaches chills and fatigue for 30 hours post vaccine

11.29.2022 – Micro colitis worse, ear ringing

Appetite disorder, Increased appetite and Irritable bowel syndrome

1.9.2021 – IBS

1.12.2021 – Itching skin last few days no rash

1.13.2021 – Low garage fever and allergy attack

1.14.2021 – Gas . Appetitive is increasing today

1.22.2021 – Off and on chest pain off and on Irritable bowel

1.29.2021 – Cold sores broke out this am

2.6.2021 – Another break out cold sores and diarrhea and head ache yesterday not sure if its related to the shot

2.12.2021 – Upset stomach today . IBS

2.22.2021 – Noticed loss of smell the past few weeks not sure of related to vaccine or just allergies

4.9.2021 – Check pressure pain maybe asthma allergies not sure

7.11.2021 – Chest pain irregular heart beat low energy leg pain arm pain

Shock symptom, Bladder discomfort and Bladder disorder

3.12.2021 – Tiny electric like shocks in legs and arms/hands

3.13.2021 – Same electric like stings occasionally

3.15.2021 – Continue to have those little electric like stings occasionally through my body

3.16.2021 – Still electric like stings occasionally

4.8.2021 – Electric like stings every so often

4.13.2021 – Tiny electric like stings every so often

4.14.2021 – Electrical like stings occasionally

4.21.2021 – Actually the injection site started to hurt couple days ago and still every so often it flares up

5.12.2021 – Electric like stings/shocks throughout the body

7.11.2021 – Flank pain and bladder pressure Regular GP and urologist

10.6.2021 – Discomfort in the region of my bladder. Had a whole bladder and kidney work up and everything is normal. Went to urologist

Blepharospasm, Bronchitis and Anosmia

12.26.2020 – Sore throat, slight cough

12.27.2020 – Forgot to report I Had a rash the day after the injection. Today I have sore throat, ear pain, and my cough is increasing and heaviness in my chest.

1.6.2021 – Fatigue, unsettled GI tract

1.20.2021 – R Eye twitching started on 1/14

1.27.2021 – R eye twitching is persisting; started on 01/14, day after 2nd dose.

4.14.2021 – Cough and achy chest

7.14.2021 – Bronchitis & sinusitis

9.28.2021 – Loss of taste & smell; runny nose after 3rd dose

9.2.2022 – Pins & needles in my 3 middle toes.

Somnolence and Dizziness

4.16.2021 – I was very drowsy on the Monday after taking the jab.

4.25.2021 – I have been having dizziness which started last Tuesday 4/20/21 that day was worse i could not get out of bed each day after that it would happen once or when i go bed at night and change my sleeping position.

5.2.2021 – Dizziness on the left side of my head when i lie down in my bed it has caused me not to get my second dose today it was recommended i speak to my doctor

Appendicitis perforated, Intestinal obstruction and Electric shock sensation

3.18.2021 – Last night felt like I'd been zapped. Got really cold, had a bad headache. I took some tylenol, put on long johns and covered up. I feel really worn out today

8.26.2021 – Ruptured appendix, and lower bowel obstruction. I don't know if it has anything to do with vaccine though

2.25.2022 – July 2021-appendix ruptured; August 2022-lower bowel obstruction. I have pain in my right foot on my heel, and my right leg near my crotch (at times) don't know if any of it's related to my Covid vaccine!

Hypersensitivity, Asthenia and Nausea

3.6.2021 – What I'm reporting happened last night 10 hours after the injection and after the v-safe check in yesterday. When i woke up today if did not have a fever or body aches and still feel a little fatigued. I just checked and my temp is slightly elevated at 99, at 18 hours after the shot

3.7.2021 – Again, i am reporting a fever from last night, after the check in. I had a slightly lower fever from the night before but it dissipated before i went to sleep so i did not take Tylenol. No body aches or chills like night before.

3.8.2021 – Again, the fever spike I reported was from last night but it dissipated before I went to sleep.

3.19.2021 – Fatigue

3.26.2021 – Today I felt under the weather like I was getting sick. Congested, fatigue. Could be allergies.

4.2.2021 – Last Saturday March 27th I had some nausea and dizziness on saturdy and then some fatigue on Sunday. Lasted until Monday I am fine now

4.16.2021 – I continue to feel tired or fatigued since the shot. Not debilitating but just noticing slightly less energy.

9.4.2021 – Periodically have felt congested and like I'm getting sick and after a day it passes. This has happened 2 or 3 times. Also you need to start addressing efficacy and boosters for those of us who had no choice and got J&J . We are being ignored.

10.28.2021 – To be clear, this was my 2nd shot. I had J&J before. I had moderna this time. Headache was vague. Tiredness was vague. Headache

10.29.2021 – Since I didn't seem to mount much of a response and J&J should have been a 2 shot regimen originally , maybe we should be allowed to get a 3rd shot by having a 2nd booster of Moderna within a few months.

11.2.2021 – For those of us who took the Moderna booster after one shot of J and J , it would be a good idea to now allow us to have a second modern booster half dose which would be our 3rd shot since J & J should have been a 2 shot regimen.

1.27.2022 – Please allow those of us who had one J&J and then a Moderna booster to get a 3rd shot meaning a second booster of moderna so we are on equal par with everyone else who had 3 shots as you, the CDC said J&J should have been a 2 shot regimen originally.

4.4.2022 – Delayed reaction of extreme fatigue 27 hours after shot

4.16.2022 – Yesterday had an hour or so of light-headeness. Maybe related to typical low blood pressure that I have but has never lasted more than a minute. Its not likely related to the vaccine. Called advice nurse. Ran down a list. Not concerned.

7.2.2022 – Covid

Tension headache, Blood glucose increased and Tinnitus

2.8.2021 – Had headache about an hour after shot, but subsided after a couple of hours

2.22.2021 – Bad headaches at night & morning, dizzy in the morning & high resting glucose levels last Sun, Wed -Sat. Head felt tight & ringing ears. Also had heart palpitations w/dizziness on Sun 2/14 for a few min. As of yesterday, 2/21 feel normal w/no issue

3.1.2021 – Headaches, ringing in ears and light headed.

3.8.2021 – Continued headaches, lightheaded and ringing in ears.

Postmenopausal hemorrhage, Ear infection and Decreased appetite

5.14.2021 – did not geel like eating for 2 days

6.2.2021 – Today I have a headache, feel tired.Also, i ve been going through menaupose for the pas few years. I havent have my period for 9 month and I started it 2 weeks after vaccine. Not sure if this is relevant

6.9.2021 – I had a headache again, but Im prone to migraines, so not sure if it is related to vaccine or the qeather changing.

11.10.2021 – I had a second rhis year ear infection. The first one ws in January this year.

Mast cell activation syndrome, Anaphylaxis treatment and Anaphylactic reaction

2.25.2021 – 10 After vaccine developed mast cell /anaphylaxis

2.27.2021 – Itching

2.28.2021 – Turned bright red on face , arms and chest . Swelling of lips , Face and neck Mother is a nurse . Administered Benadryl and Epi Pen and Resemic Epi and Albuteral breathing treatments

3.1.2021 – Edema from her mast cell disease

3.3.2021 – Large amount of edema from mast cell disease

3.4.2021 – None that are related to the shot

3.11.2021 – Sinus issues

3.18.2021 – Nausea and vomiting from autoimmune disease

3.25.2021 – Nausea, Vomiting , diarrhea, bloated stomach , loss of appetite . Unable to eat or drink for 3 days

4.1.2021 – Anaphylactic teaction

5.29.2021 – Chest pain snd rapid heart rate

8.26.2021 – Increased anaphylactic reactions from my mast cell disease . Also decreased mobility from Ehlers Danlos disease

Rales, Joint dislocation and Nerve injury

1.12.2021 – Arm just a little sore.

1.18.2021 – These marked above I felt last night after I turned in this survey but it went away and I feel fine today.

3.1.2021 – Lower abdominal cramps

3.22.2021 – Dislocated my shoulder, went to ER, nothing virus related.

8.9.2021 – Dislocated shoulder, tore rotator cuff and auxiliary nerve damage. Have had surgery Surgery after ER as an outpatient. Have been going to PT since March 2021

8.25.2021 – Ran 99.9 fever yesterday with aches and pains. Fever gone, still have some aches.

8.28.2021 – Normally my temperature is 97°

4.1.2022 – Fever day 1, 99.3, fever day 2 100.9 all other doses was reaction only day 2, low fever. This was the first time I had a reaction six hours from the shot. Chills all the rest of the time until the fever sometime in the middle of the night.

9.16.2022 – These symptoms are from first and second day. Fever came on within 4 hours. Second day same way. Gone by day three. All prior vaccines, was feeling fine until night of day 2.