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Their Stories

What v-safe registrants wrote to the CDC after their Pfizer or Moderna shots, in their own words. Each card is one person, with all of their free text. This page shows only the longer stories: the 116,000 people who wrote at least 400 characters in all. The text is as the CDC released it, except that email addresses and phone numbers are hidden. You get a random set of these people on every visit.

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Bone swelling, Nodule and Bone pain

YZX-69594-50784

– I have noticed a small inflammation/nodule on my left collar bone (same side as I got the shot) which is tender and a bit swollen. I have never experienced this exact thing before so assuming its tied to the vaccine. Its mild unless you touch it, as its tender.

– Collar bone issue is much better but still lightly there.

– Bump on L collarbone still present & tender.

– Collar bone site still slightly swollen and tender.

– Bump on collar L bone still present.

Rash morbilliform, Hemoptysis and Productive cough

YZX-99478-67908

– Soreness in my left arm that got the vaccine. Been taking tylenol

– severe fatigue, and im at work, drinking more coffee!

– migraine

– day 2 of a migraine

– Last night had a rash all over my body that looked like measles, terrible fatigue& muscle aches last night. All good today! Feel great today!

– migraines

– Coughed up (once) last Sunday a glob of brown mucus with blood. Had a 2 day migraine on Monday & Tuesday.

– Last night I think I had a fever w/chills & body aches. Today, I feel much better, not 100%, but much better!!

– migraine headache last night & this morning

– migraine headaches

– persistent migraine headaches, runny nose, diarrhea

Oral mucosal eruption, Rash pruritic and Dysgeusia

YZY-14741-81252

– Bad taste in my mouth. Feeling very weak no energy

– Weird taste in mouth and rash on mouth and chin area that itches. Call 800 number and call my Dr

– Sweating a lot feeling very weak face itches

– Once I eat my body and face starts itching.

– Dizziness, very nauseous, headache and the itching on my body that comes all of a sudden. Also this strange medicine taste in my mouth since 2/13 doesnt go away. Dont want to get 2nd shot.

– Dizziness and nauseas dont seem to go

– Getting dizzy a lot

– Lately getting headaches and feeling very dizzy.

– I am still experiencing lots of dizziness and cramping on my left side of my stomach. Lack of energy. Im a very hyper person with lots of energy. Dont feel like that for a couple of weeks now.

– For over a month and a half I have been experiencing very strong headaches, nausea and dizziness. This is every day. Some days so bad I have to call out.

Neoplasm, Chronic lymphocytic leukemia and Lymphoma

YZY-21297-63427

– Nope feel fine, the soreness is comparable to a tetanus shot

– I was diagnosed with CLL lymphoma about 3 years ago but I have no symptoms or problems, it was discovered during my colonoscopy I get every 5 years. Im not sure if its related but I have a swollen lymphnode in my groin about the size of a golf ball so Im being scheduled for a pet scan on 2/10/21

– My first vaccination was January 27 and on Saturday, January 30 I found a very enlarged lymph node in my groin area the size almost of a small golf ball. I was diagnosed with CLL 3 years ago but no symptoms, Going for a cat scan on 2/13/21 Face to face at the office

– Cat scan showed the original large tumor that we knew was there to the left of my groin but displayed very small tumors in my abdomen now, diagnosed in 2018 with CLL Lymphoma but I had no symptoms, 3 days after the 1st shot the large tumor appeared Appointments at the (b)(6) cancer center, next step a biopsy and a pet scan

– Just received the shot 10 minutes ago so feeling fine

– Just a headache and soreness at the injection point

– I have Chronic Lymphocytic lymphoma

– I reported this back in February... after my 1st shot on 1/27 on the morning of 1/30 I woke up with swollen lymph nodes for the 1st time ever since my diagnosis of CLL/SLL lymphoma 3 years ago Visited my primary and then my lymphoma doctor and they did pet scans and biopsys of my lymph nodes

– CLL lymphoma 3 days after my first moderna shot I woke up with swollen lymph node in my groin Doctor visit and did a biopsy and pet scan

Cold sweat, Muscle twitching and Balance disorder

YZY-56967-91894

– Slight trickle/cough and a little clammy

– Enlarged lymph noded on mammogram on left side (suspect due to vaccine). Feelings of disequilibrium that likely had to do with my sinuses, resilved after 1 week.

– Chills and low grade fever that resolved

– Left side facial twitching and numbness that was transient after a few hours

– Head cold

– Flu like covid like illness started on 2/9/22. Myalgias, headache, fever, cough, sore throat. Negative covud antigens and pcr

Polymenorrhea, Dysmenorrhea and Heavy menstrual bleeding

YZY-88685-36871

– Hives

– Diarrhea, severe-dull stomach pain all day.

– Shortened period cycle since first dose in March, then very heavy & painful period as cycle returned to normal. Always had a regular cycle before vaccine for my entire life except pregnancy. Planning a diagnostic test.

– Heavier periods post vaccine. Originally had a shorter cycle post vaccine, but it has returned to normal length. Bleeding is still much heavier and odd since getting vaccine, making it hard to work on first day of period.

Rash macular, Loss of personal independence in daily activities and Tenderness

YZZ-16938-81863

– A few days after vaccination injection area about 3x3 inches very red no pain. A few days later many bright red dots on arm between elbow and hand. Sent picture to doc who said it not unusual even after almost 2 weeks and suggested benadryl.

– Arm has egg sized very tender area. Some motions hurt. Good day to rest.

– Could not sleep the next night pain headache. Cancelled nect day appointments

– Lightheaded or faint until afternoon

– This past couple days i notice a similar but smaller rash to left forearm which is the one i got first mederna in. Does not itch. No other symptoms or concerns.

Pneumothorax, Psoriatic arthropathy and Psoriasis

YZZ-60352-13450

– Fever of 100 degrees yesterday discovered after check in. Very tired

– Chest pressure

– Asthma

– Psoriatic arthritis, Osteoarthritis and Bursitis due to weather conditions

– Asthma and shortness of breath requiring Prednisone and chest X-ray Doctor visit

– Acute asthma. Lower lobes of both lungs collapsed. Steroids caused sugar to rise which in turn caused UTI. This is my ninth day of fever. Covid-19 test is negative. Drs office

– Psoriasis and Psoriatic Arthritis flare and hip pain In house visit

– Asthma requiring three rounds of steroid pills injections and steroid breathing treatments Multiple doctors visits

Body temperature decreased, Pain of skin and Hypersomnia

YZZ-77674-45335

– Slept 11 hours second night after shot.

– My cheeks are bright pink

– These were symptoms that I had yesterday. I have only some achiness and tiredness today.

– The pain is in my right hand and wrist so I dont know whether or not its related to the shot. I thought that my hand or wrist might have a broken bone because the pain woke me up at night. Tylenol helps it a lot.

– Headache

– My skin hurt until I took Tylenol at 9 am and I feel fine now. Last night my skin hurt and my temperature was 95.3. I took Tylenol and went to sleep.

– Skin hurt until I took Tylenol

– Back pain

– Had Covid August 25 And tested negative September 5.

Micturition disorder, Bladder catheterization and Urinary retention

Z22-26570-97196

– Possibly unrelated : I had urine retention causing me to seek an ER yesterday - I now have a catheter inserted.

– UTI

– Urinary issues that may be unrelated to the vaccine.

– Urinary issues. Have appointment with urologist tomorrow.

– I've gotten a long lasting tension headache that might be related to sinus issues. I'm dont believe it's related to the vaccine booster, but it goes away with hot water and relaxation like most tension headaches, but comes back quickly.

– I've been experiencing some chest tightness that could be attributed to seasonal allergies.

Breast tenderness, Injection site swelling and Influenza like illness

Z22-82916-65304

– Breast tenderness on right breast

– Rt breast sentinel lymph nodes swollen including tenderness and pain.

– Actually on & off light headed and dizziness since 1st and second vaccination but it's intermittent. I hadn't previously mentioned it other than the initial day.

– After receiving 5th Moderna bivalent and flu vaccine i experienced moderate to severe flu-like symtoms and severe swelling, redness and itching at injection sites. Covid vaccine symptoms of redness, swelling and itching lasted 2 weeks. Flu 3 weeks.

Injection site discoloration, Poor quality sleep and Balance disorder

Z23-10630-69421

– This is the second reaction I've had. The first one occurred on the first day and lasted 4-5 days. The swelling and pain were much worse then and my skin was very hot to the touch for days. A few days after the swelling and pain went away (around day 8) my skin began to itch like crazy and turned into this second reaction. The area of redness is about twice the size as the first time, and covers an area about the size of my hand from wrist to fingertip. My skin is warm but less hot than the initial reaction, swelling is less bad, and there is very little pain at all, but the itching and rash are new.

– Dizziness, brain fog, and a metallic taste within 20 minutes of injection. Faded after a few hours.

– Chest pain directly behind my sternum and to either side.

– The area i had redness and swelling from my first shot is still slightly discolored and the skin feels a little papery. I hope this improves over time.

– Fatigue, chest congestion, sneezing, coughing, sore throat, etc. Tested negative for covid, diagnosed with upper respiratory infection.

– Cough, chest congestion, sinus congestion, runny nose, body aches, headaches, sudden loss of balance without vertigo, temporary loss of taste and smell, spike in depression, inability to sleep well. I'm still recovering from covid as of today

Gastrointestinal disorder, Abdominal pain and Muscle spasms

Z23-35688-00305

– Not sure if related but have a muscle spasm that developed on same side as injection

– Same as yesterday not sure if related to the vaccine but am having a muscle spasm on same side I received the vaccine

– Some tummy troubles. Nothing crazy. Light diarrhea about 5-6 days ago.

– Congestion and a sore throat

– Covid symptoms after my husband and oldest son tested positive. My first two tests were negative but had congestion/ sore throat and fatigue. Symptoms were mild.

Mixed connective tissue disease, Adrenal insufficiency and Cataract

Z24-16961-48806

– I have adrenal insufficiency and RA, along with a lot of other AI diseases.

– My other symptoms aside from the site pain are likely due to my RA and adrenal insufficiency.

– Fatigue likely due to my adrenal insufficiency, not my vaccine.

– I am having an RA and adrenal insufficiency flare today and I do not believe my symptoms are related to my COVID shot.

– RA, adrenal insufficiency, asthma, MCTD

– RA, adrenal insufficiency, asthma

– RA, adrenal insufficiency, MCTD, Asthma

– RA, adrenal insufficiency, asthma, MCTD (all likely causing current symptoms, not the vaccine)

– Ra, adrenal insufficiency, asthma, MCTD

– Dehydration issue. Cause unknown, but likely to be related to AI disease or hormone issue.

– Cataracts

Musculoskeletal pain, Sciatica and Pain in extremity

Z24-17586-34013

– Mo

– From the back of my calfs to my back of my thighs to my butt cheeks I have had severe pain. I have had this for over a month Just now wondering if it is because of the COVID shots?

– I have sciatica down both sides of my body from my waist down the backs of my legs to my ankles. Been going to a physical therapist for about 2 months now. Not much relief. Been that way for about 3 months. I hope its not from the shot.

– None

– Really bad sore throat.

– Bad virus(?). Pretty sick. Went to Urgent care twice.

– The backs of my legs are aching badly

– I have a cough that won't go away! Lung Dr.

Injection site rash, Injection site swelling and Injection site pruritus

Z24-18351-65625

– Approximately 1 week after injection, had rash, itching, and mild swelling at injection site. No other symptoms, no pain. Resolved within 48 hours without any medications or other interventions.

– Had fever, chills, myalgias, fatigue, headache from 12 hours post-vaccine until ~36 hours post vaccine. Treated at home with tylenol, supportive care; no presentation to medical care needed. Symptoms now completely resolved.

Stress, Hypertension and Lymphadenopathy

Z24-19747-81424

– My right lymph node is swollen. But it was like that before injection. My blood pressure it's high but it was like that before injection due to my helping to provide 24 seven care to my elderly mother I talk to my doctor today but it wasn't as a result of the vaccination it was due to ongoing stress with caring for my mom

– Ive been diagnosed with and being treated for Lyme disease which makes me feel ill and fatigued . Unrelated to vaccination .

Chronic paroxysmal hemicrania, Trigeminal nerve disorder and Brain neoplasm

Z24-26798-60072

– April 25, 2021: woke up feverish with some pain on the site of the vaccine injection upper left arm (no visible inflammation tho). Stomach upset and light diarrhea in the morning before eating or taking meds (only drank water throughout the night).

– Severe pain attacks, vertigo, anxiety, fatigue from preexisting brain tumor, nerve damage and autoimmune disease -not from vaccine Specialists

– Pain from brain tumor

– Severe pain attacks from brain tumor/chronic paraxysmal hemicrania/nerve damage pain plus vertigo, lichen sclerosus/varicoceles, anxiety and depression NOT FROM VACCINES

– From brain tumor: headache attacks, trigeminal nerve pain, vertigo, nausea, diarrhea, skin inflamation THESE SYMPTOMS ARE NOT FROM THE VACCINE

– *Symptoms from Brain Tumor: chronic paroxysmal hemicrania, trigeminal nerve damage, cluster headache attacks, vertigo attacks, lichen sclerosus flares, nausea, chronic acid reflux, constant coughing *THESE SYMPTOMS ARE NOT FROM THE COVID VACCINE

– Symptoms from Brain Tumor: pain attacks, chronic paroxysmal hemicrania, trigeminal nerve damage, vertigo attacks, diarreah, coughing, nausea, extreme fatigue NO SYMPTOMS FROM THE VACCINE

– Symptons from brain tumor NOT FROM VACCINE: head and face pain attacks, anxiety attacks with vertigo and nausea, fatigue, skin rashes

– Head pain attacks, vertigo, body pain from brain tumor, skin irritation, cough, sore throat, diarrhea

Bruxism, Tooth fracture and Bladder pain

Z24-26806-50461

– Had difficulty breathing at 12:30am. Took two puffs of albuterol and antihistamine for allergies and side effect subsided

– Swollen lymph nodes in armpit and left breast near injection site that are very tender.

– Lymph nodes under armpit and into left breast swollen and tender.

– Underarm swelling in lymph nodes

– Clammy chills, irritability, new lymph node issues on other side of my body (non-vaccinated side), general malaise.

– Pre-existing PTSD is being triggered.

– I developed walking pneumonia.

– Intermittent lymph node swelling on armpit where vaccine was given, low grade fever that shows in evening and resolves. I also have bladder pain. Tooth (molar) cracked and half broke off from teeth grinding. PTSD increased.

Neck mass, Abdominal pain and Hypersensitivity

Z24-29040-78352

– Small lump at base of neck to chest. Cscan indicates soft tissue. Dr visit with primary care provider. Cscan at (b)(6).

– Since the vaccine I had a significantly more difficult spring allergy season than usual. I have a lump at the base of my neck which appeared within a month of the vaccine. I have ongoing abdominal pain since July 11. I have ongoing shoulder pain. Doctor office visit. CScan. MRI. Endoscopy. Upcoming gastroenterologist visit.

Memory impairment, Neck pain and Myalgia

Z24-83075-83280

– To Kaiser-P do muscle relaxer,ketorolac (toradol) injection could barely turn head left to right. 4 hours later much better but not 100% more like 65%

– 1. Annoyance: yesterday I waited 4 hours to respond and a was told the survey was closed. Today same message but my wife figured out the workaround. Tech should make this easier. Health. Yesterday I could turn my head 25 degrees left or right. Today 50 degrees. Estimate. Less fatigue.

– Muscle pain is neck pain behind left ear over to behind right ear, pain is lessening but still present. Down from severe to moderate- severe. NOT moderate yet.

– Minor forgetfulness.

Upper respiratory tract congestion, Confusional state and Upper-airway cough syndrome

Z25-15394-48505

– Its been 30 days since I got my 2nd dose of the Pfizer vaccine. 3 days ago I started having a runny nose & post nasal drip. Minor cough producing phlegm, sore throat, no fever. Today throat is sore red with white spots, stuffy head. No fever

– In May 2021 I experienced a dry cough, really bad sore throat, extreme fatigue & confusion. I stayed. I didnt think it could be covid because I was fully vaccinated. I didt get a test. In retrospect, I do think I had it. I was better in 7 days.

Exostosis, Middle insomnia and Abdominal discomfort

Z25-24585-17709

– Throbbing sensation on head wakened at 3:00 am

– Lots of achiness in mornings, more tiredness too.

– Recurring muscle soreness in right upper arm. Pain similar to the pain after injections but more severe. Doctor felt it was associated with arthritic bony spurs in neck but it is uncanny how it feels exactly like post-vaccination pain.

– Severe rash with shortness of breath. Aching in neck, swollen glands. Continued tiredness. Lab work normal. Abdominal discomfort. All starting within 3-4 days after booster.

Cyanosis, Hyperacusis and Hypoacusis

Z25-80261-89711

– dizziness

– slight runny nose

– bloodshot eyes

– bluish fingertip and RT leg numbness

– Numb fingertips which turn blue.

– New: bruise on left thigh and discomfort below left rib cage and left of belly button.

– Fatigue and dull pain left of bellybutton area. Though the weekly questionnaire is appreciated, I respectfully suggest that you request a blood sample. It's much more quantitative than these minimally invasive questions. Thank you.

– Left of bellybutton discomfort and dizziness.

– Left of belly button - dull painHeartbeat in right earOccasional dizziness

– Chest pain (twice - once on Father's Day and another about a week after ). I'll gladly accept it if it means my Mom's Mom's Pfizer symptoms of congestion and joint pain subsides. If it occurs again I'll need to contact my PCP.

– Hearing is intermittent in RT ear and dull pain in lower left side (above pelvis area). Not sure having 'the blues' is from the vaccine. When you are deemed an essential employee it doesn't matter how you are feeling today.

– not at this time but will have to look out for renal concerns

– stiff neck, left arm numb and slight angina.

– lower left side of abdomen; numb left arm and angina are better.

– blood shot eyes

– muscke ache in neck area; more frequent urination

– Swollen ankles

– Itchy skin on swollen left ankle.

– Left ankle swelling that does not go down as usual when elevated .

– Left ankle remains more swollen than normal (i.e. I can elevate my ankles to reduce the swelling).

– Don't recall if ear ringing was mentioned; right ear is muffled. NEVER had loss of hearing prior to pandemic and vaccinations. Still am dealing with puffy ankles more often . Primary care physician - I am to inform him of an audiologist to request a referral.

Delusion, Joint noise and Middle insomnia

Z26-15978-77341

– Under left arm (injection side) lymp node pain

– Eye twitching, arm and under vaccine arm pain/stiffness, chest pain, nasal congestion, coughing

– Still pain in left arm & under arm near shot. Rotor cough area now clicks with I assume bones touching. Did not input first 2 days because I was extremely ill. Started coughing yesterday. First & 2nd days became semi delusional. Whole body went numb, & painful, fell walking. I was freezing had 3 thick winter coats on inside and still cold. My temperature changed constantly, 101.9 then 97., fell going up steps. Could not breath. This app does not allow you to add previous days. During 1st shot, had major chills, pain at site and lymph nodes under shot arm, clicking rotator cuff area, and major nasal congestion. Please edit my file with this info. Question this data everyone inputs has no sortation for people on certain medications . For example i take a biologic that affects certain IL and affects my immune function.

– Chronic left arm and underarm stiffness on shot side, twitching eyes, head fog/confusion, nose congestion, ear blockage feeling, & entire numbness.

– Same arm pain but getting better, last night I threw up a minut amount (but not from stomach pain, I rarely throw up). I am starting to feel healthier, but during this entire vaccine phase have been sad/depressed & lethargic (not normalfor me).

– Extensive, excruciating pain in area where shot was given. This past week my whole body felt numb & have been extremely exhausted & sleeping daily.I took biologic Tremfya & am concerned it may have interacted with the Moderna covid-19 vaccine.

– Still sharp/severe pain in injection site, wakes me up when aspleep. Taking meds for pain. Very tired. Felt much worse after taking Tremfyia biologic (original problems that arose after vaccine shots all came back).

Eructation, Abdominal distension and Flatulence

Z27-14642-51022

– Abdominal pain is more gas pain. Burping and a gassy feeling.

– Abdominal pain is not as bad as previous days. Not so much gas . But because I can point to a particular spot where the original pain started, I made an appointment with my Primary Doctor.

– Abdominal pain still persists. Only bothers me after eating.. I also have bloating and gas after eating. Will schedule an appointment with Primary Doctor

– Still experiencing abdominal pain, but not as much .

– Abdominal pain comes and goes

– Contracted COVID19 from my Grandson.

– Runny nose, and tiredness.

Swelling, Peripheral swelling and Erythema

Z27-19164-21516

– Last night, the front part of my right foot swelled up and was quite pink. Better this morning; in between now. Very slightly swollen and slightly tingly.

– Sore lymph node under arm in which shot was given

– Still have a sore lymph node under same arm where I receive the shot. Less sore than it was yesterday

– Very slight soreness in lymph node under the arm where shot was given. Thought it was gone yesterday, but not quite, I guess.

– Got my third Covid booster and a Fluzone flu shot on 10 1122. I had a difficult aftermath and, though I have improved, I am still having a bit of difficulty.

Hemoptysis, Mobility decreased and Productive cough

Z27-24220-25089

– Scratchy throat

– Constant coughing and sore throat

– Scratchy throat, persistent cough and joint pain in wrist and shoulders

– Persistent cough and shoulder area still sore without full motion. Cough has lessened as j drink more hot beverages and water.

– Sore throat

– Soreness in abdomen and shoulder where shot was taken. Small cough with phlegm getting better.

– Persistent cough and red tinged mucus

– Consistent cough that goes away for a day or two and then comea back.

Mobility decreased, Limb discomfort and Respiratory tract congestion

Z27-28516-28510

– Congestion Drive up covid testing

– Ever since I got the vaccine. I experience a feeling of heaviness that starts at my head and goes down my entire body- my arms feel extremely heavy and difficult to lift. This happens maybe every other day or sometime twice a day, lasting 10-20 sec

– On Sunday evening I experienced tgat same feeling of heaviness throughout my body X3 the longest lasted 35 seconds- I could not lift my arms

Conjunctival hemorrhage, Blood pressure increased and Dyspepsia

Z27-45470-75959

– I noticed that where I usually give blood on the same arm I received a Covid-19 vaccine shot was more red. It eventually faded, but I thought that was strange. Otherwise, I feel fine.

– I've had some tenderness around my left arm, shoulder and neck area part of yesterday and today.

– I had a sour stomach earlier, but it could have been something I ate.

– I had a subconjunctival hemorrhage in my right eye, but my Optometrist said that nothing looked majorly wrong other than I showed signs of slight high blood pressure. My blood pressure has been normal lately. office visit

– Bronchitis

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