Their Stories

Lymph node pain, Back pain and Lymphadenopathy

3.6.2021 – I had a random dizzy spell for about 10 minutes. I felt like I was room spinning drunk. It passed quickly and is the only time it happens but it was definitely noticeable.

3.8.2021 – No, just that my headache and a fatigue lasted about 36 hours even with 3 doses of Tylenol.

10.9.2021 – Specifically lower back pain out of nowhere.

10.10.2021 – Just a little bit sore still. But significantly less

10.11.2021 – Sore at my lymph nodes under my injected arm

10.12.2021 – The swelling under my arm where the lymph nodes are is still slight, but definitely improved

Bronchitis, Nasopharyngitis and Pyrexia

9.19.2022 – You didn't contact me when I got the shot. I ran a fever 101 for about 36 hours, beginning about 12 hours after shot. This is same reaction I had with all five shots. You never ask during that window

12.12.2022 – I had bad cold, bronchitis. Two visits to urgent care and two doctor visits. I Tested negative for Covid and influenza twice and negative for rsv. Two rounds of different antibiotics, breathing treatment and inhaler. Coughing minimum now.

Injection site rash, Erythema and Injection site pruritus

2.13.2021 – On day 8 after vaccine. Got a big red itchy hard spot at vaccination point. Took benedryl...today is day14 and its getting better spreading out more and getting lighter but developed pain which moved from shoulder to neck.. still taking benedryl.

3.4.2021 – Rash by injection site is getting larger and spreading out around my arm

3.5.2021 – Redness keeps getting lower on my arm like its spreading down

3.6.2021 – Redness moving lower on arm

11.13.2021 – Fatigue

Oxygen consumption decreased, Oxygen saturation decreased and Pneumonia

1.31.2021 – I tested for Covid19 Saturday 30th 2021

2.1.2021 – Cough started

2.2.2021 – Cough started steroids today 20mg

2.11.2021 – Shortness of breath

2.18.2021 – I got Covid19 and have been working at (b)(6). I got phenomena and loss of my oxygen! I have been here a week. Im getting ready to go home. My oxygen has stayed up and my lungs are clearing out. So very good news.

3.4.2021 – Cough

3.5.2021 – Some shortness of breath

3.14.2021 – Covid19 lung, saw lung Doctor

3.28.2021 – Shortness of breath,

5.30.2021 – Shortness of breath MD

Oral mucosal erythema, Peripheral vascular disorder and Poor peripheral circulation

3.21.2021 – I expected pain in my arm but my normal lower back and knee pain is exaggerated

3.22.2021 – Pain andSwelling in knees going down. Still pain in lower back and knees able to tolerate with pain medication. Worked from home.

3.23.2021 – Pain mainly in lover back and knees. Swelling going down in knees. Pain medication required activities limited

3.24.2021 – Pain limits activities. Lower back pain. Pain and little swelling in the knees.

4.3.2021 – I had very lite headaches that went right away but then I started having them daily. Now its fading away again.

4.14.2021 – I believe its just a continuation from the first shot and the knees and back was aggravated. Its slowly calming down.

5.2.2021 – I was feeling tired before but Im still feeling tired. I thought i needed more sleep but thats not helping.

5.9.2021 – Blue circular spot on my right arm no pain it just appeared. I thought maybe a vein. It stayed there for days blue but its fading. I feel fine

10.10.2021 – I had spontaneous burning in my legs around JuneJuly but it was so mild I didn't report it. it's getting more pronounced and my lower back pain has not recovered My doctor is watching it. my knees were swollen and back was in pain after 1st shot (b)(6) pain center Doc visit

12.18.2021 – Some Increase in knee pain

12.19.2021 – Red spots on injection arm fading and inside mouth, joints some pain/ a little swelling.

12.20.2021 – Last night my pain was so bad my body was shaking. I thought I might need medical attention but got better through the night and still getting better

12.21.2021 – Arm still hurts but my pain is decreasing

12.22.2021 – Getting better , sweating, shakes, red spots on my injection arm and extreme pain gone

12.23.2021 – Pain/ aches and injection arm Decreasing daily

12.25.2021 – Everything is getting better with pain, aches

1.1.2022 – Since last year I've been dealing with blood flow problems in my legs. At first I thought it was the vaccine. I had my booster and my legs especially right feels worst. I was told to wear compression by a specialist for blood flow. I'm monitoring Saw a vein specialist

1.29.2022 – Blood flow in legs last saw doctor in December

Loss of personal independence in daily activities, Arthritis and Hyperhidrosis

3.4.2021 – Joint pain & fatigue from arthritus

3.5.2021 – Joint pain & fatigue from arthritis

3.6.2021 – Joint pain & fatigue

3.25.2021 – Worse arthritis pain due to wet weather

4.6.2021 – Sweaty

4.22.2021 – I stay exhaused all the time no matter how much sleep i get

5.6.2021 – My right upper arm where I got the vaccines ache in the muscle whenever I raise or use the arm feels like I over exercised it

5.13.2021 – Shoulder and knee joints aching (did before from arthritis but much worse now) exessive sweating.

4.1.2022 – I'm constantly tired no matter how much I sleep no energy cannot do even housework

Abnormal menstrual clots, Restlessness and Intermenstrual bleeding

5.5.2021 – Never had a check in so wanted to report that I had an early menstruation 2 days after the shot and it lasted exactly 2 weeks and all but last day were regular flow with clots, not the normal menstruation. I also got chills 54 hours after shot.

5.24.2021 – Had bad headaches last week mid week, Wednesday and Thursday and felt thirstier than normal. I had to take Advil and when when it didnt get better after an hour I had to take Tylenol. I was also still a little fatigued.

11.21.2021 – Menstrual-spotting even though last period was 3 weeks ago

11.22.2021 – Menstruation fully now, with abdominal discomfort, very tired and fatigued due to lack of sleep, restless night.

2.19.2022 – Have a rash on upper back. Likely not related.

6.1.2022 – Mild Dry cough - negative Covid test

6.2.2022 – Mild dry cough persists

6.3.2022 – Dry cough and restless night

6.12.2022 – Just tired and a slight sore throat and runny nose and occasional dry cough

Swelling, Hot flush and Lymph node pain

1.17.2021 – Hot flashes

2.8.2021 – Swollen armpit lymph nodes. Same side as injection only.

2.9.2021 – Swollen armpit lymph nodes. Same side as injection.

2.10.2021 – Swollen armpit lymph nodes. Same side as injection

2.11.2021 – Swollen armpit lymph nodes. Same side as injection. Swelling and pain are very mild today!

2.12.2021 – Swollen armpit lymph nodes. Same side as injection. Swelling and pain are VERY mild today!!!

10.10.2021 – Painful/swollen lymph nodes left side (same side as injection) breast - armpit fat area

10.11.2021 – Still have lymph node pain

9.17.2022 – Very swollen lymph node under my left arm pit

9.18.2022 – Swollen lymph nodes below my armpit

12.13.2022 – Positive for covid

Cardiac discomfort, Exercise tolerance decreased and Parosmia

6.21.2021 – POUNDING IN EAR / TINNITUS

6.22.2021 – My last entry was for 6/8. I've been experiencing headaches, pounding in right ear, tightening of heart & fatigue.

7.1.2021 – Phantom smells - like chemicals that no one else smells but me.

7.6.2021 – Unexoected severe lack of stamina / endurance while doing normal strenuous exercises. Unusually high heart rate. Difficulty bringing heart rate down & catching breath. Racing heart rate.

9.9.2021 – Still have pounding in right esr but less intense. Still have intermittent soikes in heart rate but less frequent or severe.

Fetal monitoring, Uterine contractions during pregnancy and Pre-eclampsia

8.16.2021 – Itchy throat Just to monitor the itchiness on my throat they end up having me take Claritin

8.17.2021 – Dizziness

8.18.2021 – Anxiety, hot flashes and sweats, dizziness

8.19.2021 – Dehydration , braxon Hicks ( Im 25 wks pregnant ) was delevoping contractions every 3-5 mins They where monitoring the baby but they mentioned it was the covid 19 moderna side effect .. no preterm labor

8.30.2021 – Chest pain

10.18.2021 – Dry throat

10.20.2021 – Vertigo

10.22.2021 – Contractions Labor and delivery

11.1.2021 – Pain in the injection site , headaches, virtigo

12.1.2021 – Highblood pressure High blood pressure

1.17.2022 – Highblood pressure Developed post preeclampsia and chronic high blood pressure , ocular migraines

6.27.2022 – Lower back pain on my left side and radiates towards front Lower left back pain and front level of pain 8

7.14.2022 – Migraine aura

7.31.2022 – Worse migraines aura and high blood pressure

Impaired driving ability, Dizziness postural and Gait disturbance

10.16.2021 – Disequilibrium, vertigo, I'm holding on to furniture to walk through the apartment. I'm not driving.

10.18.2021 – I am still experiencing dizziness when I standup from laying down and lay down from standing up. I feel the same dizziness moving from one machine to the next at the gym. I hope this goes away.

10.24.2021 – I still live with dizziness, lack of balance, room spinning when I stand up, sit down, lay down, sit up from laying down, and between exercises at the gym. It's been weeks. Im now concerned this condition is permanent.

Suffocation feeling, Dysstasia and Electric shock sensation

3.20.2021 – Nausea, shortness of breath, weakness, lethargy, migraines, cramping, loss of taste

4.10.2021 – Hair loss. Coughing persistent. Cant take deep breath. Hurting so bad I cant stand, walk, etc.

8.28.2021 – Daily frequent deep coughing. Extreme fatigue & weakness. Daily headaches. Trouble breathing/smothering PCP

2.27.2022 – Hoarseness, constant dry hacking cough, loss of taste & smell completely, mucus won't go away, total body ache/pain, forgetfulness, confusion, electrical impulses shoot thru my left leg Pcp visit

Tenderness, Edema peripheral and Lymph node pain

1.12.2021 – Lower and middle back tenderness. But could be completely not do to the vaccine.

1.14.2021 – Back tenderness, but again it sure if it's vaccine related

1.15.2021 – Back pain was sharp and hurt to breath for almost 15 hrs. Has gotten better as day has progressed

5.8.2021 – Joint/muscle aches

1.29.2022 – Sore and swelling in lymph nodes in injection arm armpit

1.30.2022 – Yesterday a splitting headache!!!!

1.31.2022 – Arm pit swelling

2.19.2022 – Shot arm tenderness and up into my neck with headache.

2.24.2022 – Dull headache

3.3.2022 – Head ache

3.10.2022 – Headache

Sinus arrhythmia, Inner ear disorder and Palpitations

4.21.2021 – I've noticed that after the 1st and 2nd covid shot a slight pressure in ears that you feel when you get sick with congestion but not sick.

4.16.2022 – Diagnosed with sinus arrhythmia. Heart palpitations begin about 6 weeks after my 2nd covid shot. I have no other health conditions and very healthy. Introducing something viral like a covid shot can impact immune system which can effect the heart. Cardiologist

Croup infectious, Respiratory syncytial virus infection and Seasonal allergy

4.13.2021 – Minor sore throatHeadacheI believe both are related to seasonal allergies.

4.21.2021 – Heart burn

7.21.2021 – Cold like symptoms likely RSV based on my kids pediatrician as the kids most likely had RSV. It was not COVID as the kids and we (parents) got tested. Kids tested twice at first symptoms then 3 days later both negative for Covid.

10.19.2021 – Sore throat, fatigue my kids cause something that caused croup (per his doctor) he and I tested negative for Covid.

Ear discomfort, Body temperature increased and Edema peripheral

1.1.2021 – Arm pit of injected arm is VERY tender...assuming lymph node involvement

1.2.2021 – Moderate pain and minor swelling in left armpit (injection arm)

1.3.2021 – Still have armpit pain

1.4.2021 – Pain in armpit...more mild today

10.3.2021 – Swollen lymph node in armpit of arm that received shot

9.30.2022 – I tested positive for Covid Sept. 1st. Sinus congestion, constant fever, ear pressure, ringing, popping and vertigo. I still to this day have a low grade fever every day, sometimes it gets as high as 102 but normally stays around 99.4.

Antinuclear antibody increased, Immunodeficiency and Muscle strain

2.9.2021 – Constipation more than usual

2.10.2021 – Moderate constipation

2.12.2021 – Severe constipation

2.22.2021 – Cramps and feeling of pulling my muscles in my calf

2.27.2021 – You wont follow up! Why do you check-in daily and weekly. I wrote my concern last week and did not get any one on the phone with CDC; very disappointed with this kind of follow up.

4.3.2021 – Muscle aches come and go.

4.10.2021 – I still struggle with muscle aches including buy cake and pain in my calves, knees and upper legs. New symptoms is severe constipation and heart burns. Some bruises on my legs. Will do blood test next week.

4.17.2021 – Moving pain in legs and back and bruises on legs Had blood tests done

6.5.2021 – My immune system is compromised. Having ANA detected higher than normal. Rheumatologist & GI specialist

3.6.2022 – Anxiety and still see some bruises (smaller spots) Visited rheumatologist

Atrial fibrillation, Injection site swelling and Injection site pruritus

1.25.2021 – In retrospect, I realize that I had a vague headache on the day after given the vaccine. It was not severe enough to take anything for it.

2.3.2021 – Starting 1/28 there was slight swelling @ vaccination site and a red blotch approximately 2x4 inches below vaccination site. It became itchy on 1/29, faded to pink on 1/31 and is no longer itchy.

10.21.2022 – Right foot pain, possibly plantar fasciitis

12.12.2022 – A. Fib Cardiology referral

Skin burning sensation, Hypersensitivity and Pruritus

2.25.2021 – Yes, I had a severe allergic reaction to the shot I broke out in a hot firey rash all over my body and felt like could itch right out of my skin . It is now day 3 and I still have the feeling of itchy news but it is not as severe as it was the day I got the shot. The firey rash did go away after taken Benadryl after consulting with my allergist and primary doctor. But the feeling of itchy news I still have.

Eye movement disorder, Feeling jittery and Visual impairment

3.5.2021 – Brain fog and Vision affects. Severe chills were last night, gone today. Severe Headache and moderate muscle aches started today.

3.6.2021 – Feeling moderately jittery in body and sight in morning . Mostly gone now.

3.7.2021 – Mild sore throat and swollen gland

4.8.2021 – Moderate headaches and slight nausea, both of which are VERY rare for me, with no apparent reason or cause. Resolved with aspirin

6.3.2021 – Intermittent brief periods of pain between my front teeth where I already have some fillings, but the dentist says there is nothing wrong with my teeth or gums, and that its likely nerve pain originating else. /Ive developed 1 or 2 planters w Dentist checkup/Dermatologist

Injection site dryness, Psoriasis and Injection site swelling

4.4.2021 – Insomnia

4.22.2021 – Very minor thing. I suffer from psoriasis. The area where my second shot swelled weeks ago has now become dry and itchy. It is the exact size of the swelling. Its not painful. This didnt happen with the first shot.

4.28.2021 – A couple nights ago, I was overcome with chills. I could not stop extreme shivering even under all kinds of blankets. I was also run down, achy, had diarrhea and a slight headache. I took my temp multiple times but it was normal. I feel better now.

5.14.2021 – I suffer from psoriasis. Since receiving the shot, I developed guttate psoriasis which in the past, Ive only developed when I have been sick. It seems to be fading now but I have an appointment with my doctor next week. Made a regular appointment with my dermatologist

Sciatica, Mobility decreased and Arthralgia

7.3.2021 – I have sciatica and it has been bothering me since the day after the first vaccine. I can usually treat it myself and it will dissipate in a week or so but I havent been able to this time. Dont know if its relevant or not.

7.17.2021 – Its been 8 days since the 2nd injection. Approx. 10-12 hours later I had body aches and began a fever. The following day I was so fatigued and aching I could barely get to the bathroom and had to stay in bed. This lasted through the following day.

8.20.2021 – Joint pain aches, mostly knees, ankles

Facial discomfort, Skin tightness and Joint stiffness

3.30.2021 – My muscles are a bit stiff the face numbness and swelling has gone down about 60% since injection 5 days ago.. I today is day 5 from 1st vaccine shot of Moderna Covid-19, I feel almost exactly like I did when on a med for Schizophrenia in 2011 that I was forced to take to make the judge happy in Los Angles and the drug was a monthly injection of.... Risperidone ....done by my Psychiatrist one in (b)(6) CA , and the other the county psych Dr. I was not ever violent or nonfunctional before or after drug. Also neck Pain from a auto accident in 2005.

3.31.2021 – Joint stiffness and 40 percent face swelling.

4.4.2021 – facial stiffness and light tight rubber

6.26.2021 – Got mild sore throat around 6-16-21...and a bit more tiredness...

Stress, Flatulence and Gastrointestinal disorder

4.20.2021 – Soreness in my arm (injection site) the day of (4/17/21) and day after (4/18/21) 1st vax. I slept from 6pm to 4am after rcvng injection.

5.16.2021 – Sunday: Slight runny nose. Saturday (immediately after vaccination): my face and cheeks became slightly numb.

12.27.2021 – Stomach problems. Gas & diarrhea.

1.3.2022 – Some diarrhea... stress related.

7.3.2022 – The day I recvd my 4th dose I felt tired, light-headed, and I had a slight numb sensation along my jawline.

11.6.2022 – Cold-like symptoms (slightly runny nose & sneezing)

Immunodeficiency, Chronic lymphocytic leukemia and Loss of consciousness

2.26.2021 – Had energy in the morning and walked dog over a mile but just didnt feel like myself in the afternoon.

2.28.2021 – At hospital in observation for chest pain. Most likely unrelated.

3.20.2021 – Pain in ears

3.21.2021 – Pain in left armpit and a little in left shoulder. Injection was on left.

9.1.2021 – I have indolent non-Hodgkins lymphoma

9.2.2021 – Felt very clammy and cold when I woke up. I was nauseous and briefly passed out.

9.4.2021 – Rash at injection site has spread

9.5.2021 – Forgot to report pain under arm that received injection for 2 days.

12.1.2021 – Severe pain in legs, especially at night. Doppler ultrasound, ultrasound for circulation, X-ray

3.2.2022 – Pain in legs Primary care and Vascular Dr

9.1.2022 – I was diagnosed with Chronic Lymphatic Leukemia. Have also been told I have low immunity and will receive IVIG monthly. Oncology office visits

Skin injury, Skin disorder and Breakthrough COVID-19

5.6.2021 – No

5.27.2021 – Heavy abdominal cramps. Diarrhea Daily, Body and bone aches.

6.3.2021 – Pain all over body. Colorectal dr visit

6.10.2021 – Diarrhea is still present.im on medications prescribed by my dr. Every night skin itching all over my body. Body aches pains still present.

6.17.2021 – Major diarrhea still with medication from dr to stop it. Under the skin itching and on top of skin all over body itching thst occurs in evening.

5.3.2022 – Caught covid-19(breakthrough) April 14th 2022. This is 2nd time I had Covid-19. The 1st Time was Nov. 2020. Getting these shots had really damaged and radhed my skin.

7.31.2022 – Continual sore dry throatoy of nosebleeds.

Lymph node pain, Axillary pain and Lymphadenopathy

1.14.2021 – Congestion, low grade fever, headache, fatigue

10.26.2021 – Swelling and soreness of lymph nodes under armpit, same side as injection

10.27.2021 – Swollen lymph nodes in armpit of arm where I received shot.

10.28.2021 – Swollen lymph nodes in armpit on side of injection

10.29.2021 – Swollen lymph nodes under armpit. Not as sore as previous days.

12.5.2021 – Dizziness

5.1.2022 – Swollen lymph node under armpit on side of injection

5.2.2022 – Soreness under arm on side with injection

5.3.2022 – Ache under armpit on side of injection

10.14.2022 – Swollen lymph nodes in armpit on side with COVID booster

Blood lactate dehydrogenase increased, Excessive exercise and Repetitive strain injury

1.6.2021 – Supraclavicular lymph nodes is a little swollen and tender, left side, same side as injection.

1.7.2021 – Supraclavicular node still swollen and tender.

1.14.2021 – Had swollen supraclavicular lymph node and elevated LDH in blood. Now having back pain but its typical back pain I get intermittently so dont think is vaccine related.

2.11.2021 – PVCs on EKG. Palpitations. Some persistent headaches daily.

2.25.2021 – PVCs, heart palpitations, bigeminy on EKG

11.3.2022 – I have overtraining syndrome

Histamine intolerance, Otorrhea and Ear discomfort

2.2.2021 – Brain fog

2.5.2021 – I was having an issue with fluid in my right ear and I am not sure if it is the shot or my ear that is making me feel run down and tired

2.7.2021 – Still having issue with ear pain and drainage.

2.8.2021 – Still having issues with ear and sinus pressure. Went to dr and had second negative Covid test. Treating with Claritin, Flonase and saline and feel better. Do not think related to vaccine but wondering if I was run down.

2.22.2021 – I still have slight pain in left arm in one area/spot when I move or stretch my arm a certain way from 1st shot.

2.25.2021 – Scratchy throat with dry cough. I have been taking Claritin and it starts as soon as it wears off. Switching to Zyrtec today.

2.26.2021 – Dry cough

2.27.2021 – Still having histamine reaction with cough/tickle. Taking Zyrtec.

2.28.2021 – Dry cough. Got testednegative.

3.1.2021 – Lingering tickle or dry cough. Negative for Covid had test as precaution

3.15.2021 – Rash on abdomen

5.26.2021 – My SIBO has come back. Small intestinal bacterial overgrowth. Waiting for tests to be set up

9.18.2022 – Pain in armpit (lymph gland) of injection side

9.19.2022 – Pain in armpit/ lymph gland of injection arm

10.28.2022 – My SIBO (small intestinal bacterial overgrowth) symptoms have relapsed. Patient gateway

12.16.2022 – UTI

Neuralgia, Somnolence and Brain fog

4.13.2021 – Today is the first day without a headache

5.21.2021 – Severe fatigue/tiredness slept for most of 2 days.I already deal with chronic nerve pain, but all of it was enhanced (at the same time) numbness in fingers, severe dull ache in wrists, elbows, shoulders, ankles, and right sacroiliac joint/leg

7.10.2021 – Acute pain and numbness in feet & hands when I wake up EVERY MORNING. Nerve conductivity study came back inconclusive. If it werent for my kids, Id jump off a bridge because I simply can NOT take the chronic pain any longer, and doctors dont

10.8.2021 – Long COVID debilitating fatigue, severe brain fog, chronic nerve and joint pain, among others.

4.9.2022 – The chronic muscle pain has migrated primarily to my hips & legs. I AM IN SEVERE PAIN EVERY DAY!!!! And worse yet, NO doctors are willing to treat me (or even acknowledge that I have Long-COVID). Doctors are unwilling to help me