What v-safe registrants wrote to the CDC after their Pfizer or Moderna shots, in their own words. Each card is one person,
with all of their free text. This page shows only the longer stories: the 116,000 people who wrote at least 400 characters in all.
The text is as the CDC released it, except that email addresses and phone numbers are hidden.
You get a random set of these people on every visit.
Decreased activity, Nocturia and Adverse food reaction
I have rheumatoid arthritis that is usually under control with meds but since last week, Ive had inflammation and had to get steroids to calm it down. I take Hydroxychloraquinne 300mg daily, Methotrexate 12.5 mg weekly.
20-45 day heavy periods sometimes back to back, then nothing, it's circling continuously, mostly continuously bleeding. And I'm tired all the time. More than normal, more emotional but just way more tired and less active.
Irregular periods even on the pill, headaches, lots of food sensitivity, some muscle soreness, my kidneys/or that area seems sore when I wake in the morning. I can't sleep through the night from peeing and being uncomfortable. Gynecologist visit
Movement disorder, Fluid retention and Thirst
day after vacc - for 4 days had fever, muscle aches, major headache and 2 more days of fatigue
got the virus in may. had all symtoms except no breathing problems. lasted 5 or 6 days.since then I suffer from fatigue & foggy brain.
Positive for omicron. Headache, cough, sore throat. 1day of nausea. Tired.
Thirst
Brain fog
Leg muscles feel like jello & sometimes non responsive. Major fatigue continues. Muscle cramps. Water retention. Continuing digestive issues.
Joint pain. Pain in injection area. Extreme fatigue
Nasal discomfort, Injection site bruising and Edema peripheral
No symptoms, just a bruise on my injection site
Swollen lymph node in left armpit. Injection was in left arm
Swollen lymph node in left armpit
Swollen and slightly painful lymph node in left armpit
Residual mild pain in left armpit lymph node
Head cold - burning tingling stuffy runny nose, sore throat, cough
Sore armpit on the same side as my injection, left side
Left armpit pain, same side as injection
Armpit pain on injection site side
Head cold! Sore throat, stuffy nose, sneezing, cough. Two Covid tests, both negative
Pain and swelling in left armpit (same side as injection)
Pain in left armpit. Same side as injection.
Stuffy nose
Ligament pain, Diverticulitis and Sinus pain
Neck stiffness and pain last night but better today.
Nauseous
I had nausea and diarrhea for 3 days starting last Sunday.
4th of July weekend I was very sick. 103 fever, runny nose, bad headache, bad cough. I was sick with this for 5 days. I got a Covid test, it was negative.
For about two months I have been getting an almost daily migraine and sinus pain in the afternoon. I have been taking Tylenol when it's really bad. I don't know if it's related but my ligaments and joints have been hurting.
Itchy
Insomnia
Diverticulitis flare.
Heart palpitations
Headache and digestive issues.
Neck pain, Back pain and Arthralgia
Didn't report booster shot for couple days. 1st day, over hours, soreness in arm grew up to my neck. Next day I was very tired, canceled physical therapy appointment I had and appointment for a flu shot.
Believe these symptoms are due to medication I'm taking for intense back pain that came on 4 days after getting the booster.
These aches and pains are probably because i went to the gym yesterday!
Hip pain
Ligament pain, Deafness and Bone pain
5 inch rash around injection site. Appeared about 7 days after the first vaccine. Pain in arm moving to shoulder then neck area
Left shoulder pain on the side of the vaccine. Unusual sharp pain in forearm bone when I rest my arm on desk, almost like the edge of the bone in my forearm is shaved off. Pain is moderate to severe then moderates with massage. Some back pain too
Itching all over 7 days after 2nd vaccine
Sharp pain in left forearm. Started after 1st vaccine. When I lean my arm on a desk I get a bad pain in my forearm lower edge of the bone. Im guessing some nerve damage.
Red spot of blood on vaccine site second vaccine right arm. Looks like an open sore. On original first vaccine left arm still nerve pain in forearm thats severe when I lean on my arm.
Pain in left forearm is still moderate. Along the edge of the bone.
I notice my resting heart rate is now from 6-8 bpm higher than prior to vaccine. Its actually noticeable and measured. From 69-70 to 76-78.
Third COVID-19 booster vaccine today 8/31/2021.
Still fatigue from catching Covid on January 2.
Some hair loss.
Ear pain and loss of hearing ENT doctor visit and hearing test.
Ear infections and ligament problems. Right knee issues with no known cause. Specialist dr visits
Sluggishness, Dyspnea and Diarrhea
very mild
very mild diarrhea
I feel so good compared to after my first dose that I am worried that my second dose was not real and genuine. Thank you
a little short of breath, but just a little. ran 1/2 a mile, felt better
fever, sluggishness, slight headache
these are the symptoms I had April 6-8. I got the shot on 4/5/22
Definite tiredness/exhaustion, not sure if related to latest booster or not. Not debilitating. Could also be from tick bite or something else.
I have a bad cold.
Nasal discomfort, Head discomfort and Feeling cold
I get headaches fairly regularly. Likely not vaccine related.
Congestion, slight head pressure, burning nose and ears
I had a very mild headache when I woke up PRIOR to my vaccine.
Sore throat
A slight feeling of not being entirely well. My sore throat is almost resolved.
For a couple of weeks a was getting sensations of coolness and vague tingling throughout my body.
Sunday thru Weds I had mild nausea, sore throat, fatigue. But had a negative rapid test.
Microcytic anemia, Weight decreased and Stress
Injection site pain
Wrist pain
Fatigue. Could be that I'm working 11 hour days without breaks.
my hands and feet are very cold. So cold they hurt. have Graves disease. My endocrinologist is telling me that I need some more medicine. I think my symptoms are related to my normal underlying health condition and endo agrees
I have Graves disease. I had radioactive iodine four years ago. Therefore I take levithyroxine daily. My TSH is up to seven and I need an adjustment to my dose. My endocrinologist and I do not think this is anything to do with the covid-19 vaccine. H
Mental fog
Mild GERD caused 10blb weight loss. Saw my own PCP who checked me and ordered an Upper GI/fluro with confirmed dx. Feeling better on PPI I think the stress of being a health care provider at a large FQHC with the new Monkeypox thing is stressing me.
Generally unwell
Mentally foggy
Microcytic anemia
Daydreaming, Agitation and Mood swings
Nightmares
Sweats - moderate. Extreme nightmares. Mental mood swings - moderate. Have begun to consider professional help.
High anxiety / panic attacks, nightmares, day-mares
Anxiety / panic attacks
Continued severe anxiety, multiple panic attacks per day, daily nightmares, constant pressure headache. Went to emergency room, primary care doc, and talked with psychiatrist. In-office primary care
Headache is worse 9 of 10 pain. Anxiety remains moderate to severe. 3-5 panic attacks per day. New meds partially help. Terrified to get 2nd Moderna dose.
Headache 9/10, anxiety (moderate to severe), spontaneous panic attacks daily persist. Getting desperate for relief.
Headache, tinnitus, terrifying thoughts/nightmares, off balance. All severe. Doctors are dismissing symptoms. Unsure how long I can withstand these symptoms.
Memory issues, fatigue, piercing headache, panic attacks.
Panic attacks daily
Panic attacks
Spontaneous panic attacks
Spontaneous panic attacks daily
Flu like symptoms increasing in severity. Agitation and anxiety also increasing.
Constant severe headache, daily spontaneous panic attacks.
Palatal disorder, Palatal swelling and Dysphagia
In the middle of eating eggs I retched and was nauseous...Im not allergic or intolerant to eggs.
Slight nausea this morning but better than yesterday and could eat today.
Ive actually been moderately fatigued since the day after the shot
My soft palate and lymph nodes are swollen. It started on my way home where swallowing was difficult. Its slightly better now. Also I feel tightness on my face.
Still slightly swollen lymph glands and soft palate, but better today. I wish I could find out about that reaction. Have felt hot at times but when I take temp, its normal.
The swelling of the lymph and soft palate has decreased more, but is still there.
Weirdly late afternoon yesterday my injection arm hurt, roughly from the injection point to the top of my shoulder
Swelling at injection site minor but still kinda of there; lymph glands on neck still slightly swollen
The arm itching started Friday and only occasionallyI just didnt immediately equate it with the shot
My injection arm and area suddenly hurt again and was slightly sore for about a day and a halfodd, thought I should mention it.
Scleritis, Episcleritis and Autonomic nervous system imbalance
Ive been really sleepy. Im tired all the time.
Congestion
Parosmia increase
Brain fog, blurry vision, parosmia, dysgeusia, wpiscleritis
My episcleritis is coming back. (Started around March 3. I contracted COVID around Dec 21.) Regular doctor appointment.
Still have a bit of a swollen knot at the injection site.
Gas (but it's starting to subside)
I'm having some phantosmia, but I had COVID in DEC 2020 and got parosmia & phantosmia that has mostly resolved, so it could be a relapse.
Possible parosmia last night. Dysautonomia (temp regulation) Headache? forehead feels numb.
Sinus infection (probably unrelated) My post-covid-2020 parosmia and phantosmia have been acting up a lot recently. Brain fog has been worse.
Celiac disease, Immune system disorder and Breast feeding
Nasal congestion
Worsening sharp pressure headache, some nausea
Recurrence of sinus fullness and pressure after treatment for first occurrence (first occurrence was 4 or 5 days after 2nd vaccine injection, with severe headache). No headache yet this time around
Recurrent sinus infections due to change in immune response to basic cold since receiving 2nd covid vaccine dose, requiring endoscopic sinus surgery And ENT visits
Diagnosed with celiac disease in February 2022 and new red spots on skin in a pattern starting June 10, 2022.
Periodic throbbing on top side of head, similar to that experienced for several months after 2nd dose
Pulsing headache on top of head similar to that I newly experienced on and off for about 6 months after my 2nd COVID vaccine injection.
Arm soreness the day off vaccination, headache and feeling a little hot after vaccination. I was breastfeeding at the time also and baby was extra sleepy for 2 days after my vaccination
Umbilical hernia, Weight increased and Memory impairment
Forgetfulness
I noticed a small bruise at the injection site today.
I keep gaining weight despite no changes in diet or excercize.
Today my sinuses hurt and so does my neck
EXTREMELY thirsty
Still VERY thirsty and my upper back hurts from it.
Still very thirsty
I caught a cold, we know where it came from and nobody involved has tested positive for COVID-19.
Umbilical hernia got bad enough for surgery.
I got the flu.
Injection site pain is from the bruise and kiddos hitting it accidentally.
Started Wellbutrin.
Meniere's disease, Dysstasia and Tinnitus
I have Meniere's disorder, the tinnitus has been louder since I received the vaccine
Sweating profusely without exercising
My Tinnitus has been louder again, I have Meniere's disorder and when I had CoVid in December 2020 it was louder than usial.too.
My tinnitus is louder today ann this afternoon I experienced some dizziness
Sweating without exercising
Today I had a Menirère's attack( vertigo, nausea, unable ro stand), I am not sure if it is related or not , but last time I had one was about 7 years ago.
My Tinnitus has been louder than usual in this past week and I had some small episodes of vertigo,since last week big episode ( I have Menére's Disorder)PS: I'm typing this d/t the question about pregnancy: I can't be pregnant, I had a Hysterectomy
I had a few episodes of dizziness, but they have been short in duration, just a few seconds. Last week I did jot have anything and nothing this week so far.I wrote before that I can not be pregnant because I had a histerectomy in 2013
Had the Booster on 1/8/22 Fever × 3 days, arm pai. X 1 week Dizziness on and off x 2 weeks Please stop asking about pregnancy I am almost 52 and I had a Hysterwctomy at 43, I wrote ot on my previous reports.
Feeling jittery, Heart rate increased and Palpitations
I experienced faster heartbeat and jittery feeling about an hour after being vaccinated. That stopped about 1 1/2 after I first noticed the faster heartbeat
Rapid heartbeat about an hour after being vaccinated. Heartbeat returned to normal after around 45 min
Congestion, sneezing, runny nose, slight body aches, general malaise. Worse yesterday, feeling much improved today.
heart palpitations, chest pressure, rapid heart beat, fatigue that doesnt go away.
Blood immunoglobulin M increased, Genital herpes and Post procedural complication
Joint pain is normal for me. Not new
Bad g. Herpes outbreak past days. Stress?
Very stressed family situation and taking sleep meds but had tachycardia. Also valtrex stopped working for ongoing herpes infection. May have nothing to do with vaccine. I had a blood test mar 11 and have high IgM but I had IgMs high to chemicals b4.
Palpitation increase. Itchy bra line.
Feet getting numb at night but then wake up. Feet feel more cold when sitting. Bad insomnia too.
Post nasal drip
Very tired from trip. Got an exposure notification most likely from plane with most people without masks ( bad) Some minor cough but could be allergy and sinus condition from snorkeling and flying. Haven't tested yet.
Back problem due to fall
Pigment dispersion syndrome, Corneal dystrophy and Eye allergy
Muscle weakness in arm and neck and left TMJ
Slightly dizzy
Fatigue
Coughing last night, not today.
Stiff neck
6 hours of cold sweats not associated with a high temperature, my body was just sweating lots (soaking wet) from 5AM till 11AM
Grateful to have received this vaccine. I feel less anxious.
Irregular heart beats and shortness of breath.
Tonsillitis & ear infection
Ocular migrane
My eyes have been hurting and blurry and I have been diagnosed with Fuchs Dystrophy, a progressive Corneal disease.
Diagnosed with pigment dispersion syndrome but. Both eyes. Decreasing vision and dry allergic eyes. Too much reading while being staying home being COVID Cautious is taking a toll on my eyes. Opthamologist
Oral herpes, Gastrointestinal disorder and Nasopharyngitis
I had a small cold sore before my vaccine which was basically healed, but since then its gotten a lot worse and spread to another area. Its getting better but much slower than Ive ever experienced.
A while back, I felt like Ive been fighting something off (tired, slightly achy, slight sore throat). I cant pinpoint the timeline, but coincidentally my son had to be tested for Covid due to an exposure at daycare and he tested negative.
I've had 3 bouts of cold-like symptoms. 2 of those times I tested negative for Covid. Didn't bother testing the third time (I work from home).
GI problems, a cold (separate events)
Musculoskeletal pain, Chest pain and Nasal congestion
The past 2 days I've had pain in the area of my right scapula with some radiation down the right arm. I have history of cervical radiculopathy on the right but wanted to mention the flare since it's within a week of getting the vaccine
Developed URI symptoms on 1/13/21 (nasal congestion, sore throat, mild cough). Home based Pixel LabCorp COVID-19 PCR test negative on 1/15/21
Episodic chest pains, brief, mild
Dermatitis contact, Ophthalmic migraine and Swelling of eyelid
Fever and pain gone today!
I did get a visual migraine today which I have only experienced one other time, lasted 10 or 15 minutes
Red swollen eyelids happened last evening, this also happened during the first vaccination but did not think it was a reaction from the vaccine until it happened again. Teeth pain. Family doctor and dentist. Both said it was probably vaccine related.
Still have the redness on eyelids and dry and scaling, but swelling around the eyelids has went down.
My eyelids are getting better still a little scaly
Abnormal EKG
Still have the contact dermatitis which has surfaced periodically.
I just got the shot about an hour ago at 6:30 pm I suppose I won't have any symptoms yet.
So far so good with the Pfizer booster
When I receive the Moderno vaccine on both doses about a week to two weeks later I got contact dermatologist around my eyes. This is now starting to happen with the Pfizer booster vaccine also.
Once again I contracted contact dermatologist around my eyes. This happened with both other vaccines.
I started again with the contact dermatitis on the right eye
Hyperchlorhydria, Gastroesophageal reflux disease and Somnolence
Took antihistamine before I got vaccinated and daily as is my usual for my allergies. Day 1 I was so drowsy. Day 3 I was drowsy and had a slight headache which was resolved with Tylenol. Unlike Day 1 where neither Tylenol or Advil worked for the headache and injection site pain
Tenderness in injection site when massaged
Nasal congestion
Hyperacidity, acid reflux, fatique, difficulty sleeping
Fatigue, scratchy throat
Head discomfort, Sinus pain and Sleep disorder
Sinus pressure, congestion and ear pressure
Congestion,chest and sinus pressure
Congestión and a sore throat
Congestión,chest pressure, sore throat
I am still experiencing pressure on my chest, sinus and sore throat. My head feels heavy. Just not feeling myself.
I have been experiencing pressure on my upper chest. My doctor believes it is inflammation on my ribs. Not sure if this is related to the vaccine or not.
Upper abdominal pain, pressure on my chest and numbness on my head. Waking up too much throughout the night.
Fatigue, headache and joint pain
Behcet's syndrome, Gastrointestinal infection and Autoimmune thyroiditis
I have (b)(6), rhuematoid arthritis and hashimotos disease (thyroid condition), high blood pressure, hypoglycemia, COPD, asthma and sleep apnea.
Yesterdays wasnt done because my daughter was sick with a GI bug, but yesterdays symptoms were worse especially fatigue stiffness and achey feeling. Not the same kinda pain i have with my auto immune conditions: behcets syndrome, rhuematoid arthritis, copd, thyroid issues hashimotos disease, there might be more but i cant think to straight today i feel really out of it since this shot.
I also forg on previous check ins you can check my records for my other health conditions. My heads a little clearer today thankfully. If you arent aware of my other conditions please check this section on my previous check ins.i forgot to mention before that i am not able to work due to my auto immune conditions.
As mentioned in my first couple updates i have auto immune conditions check those for info on what Had to reschedule appointment with doctor because of how i feel
I have a few auto immune conditions and other health problems check first few v safe check ins to see what ones.
On my first shot in this section i included my auto immune diseases and other health issues please check those records to see all my health issues
The first time I had the Covid Shot my eyelid twitched a lot for a couple weeks then settled down. It's started again with this shot too. I have never had lasting eyelid twitching till I got the shot
Bladder diverticulum, Dry eye and Nephrolithiasis
Last night itchy dry eyes couple hours apart. Clear today.
Just saying, have been having lot of kidney stones and recurring UTI. Been ongoing for nearly a year. Not gotten worse since shots so had not even thought to mention here. Blood & urine tests. CT
Wolf last night very hot and rash from my head to shoulders. It continued down to my belt line as time progressed. Took a Benadryl and that eased and stopped the symptom. No airflow restrictions.
UTI due to diverticulum of the bladder. Has caused many similar flu like symptoms.
Arthritis, Blood pressure increased and Upper-airway cough syndrome
Water diarrhea
Arthritis Seems To be worsened not sure if it is related that's why I am just mentioning it earlier
Injection site swell & itching about the size of a small egg
Cough, headache and feeling tired
A little foggy mentally Not sure if it is from the vaccine
Head ache, mental Fogginess
Sinus congestion allergies? Post nasal drip Joint pain
Worsting of lt shoulder pain from severe arthritis
Chills, joint pains, headaches and elevated blood pressure
Hypoesthesia and Paresthesia
Tingling in left hand
I STILL have a numbness/tingling in my left hand
STILL have tingling/numbness in my left hand, I got the shit in my left arm and it started about 8 minutes after I got the shot
I am still getting numbness / tingling in my left hand which is the same arm that I got the shot in.
I still have numbness/tingling in my left hand, the same arm I got the shot on
My hand numbness/tingling is continuing. No one has any answers except it should have gone away by now. I don't have insurance and can't afford a doctor. I NEED HELP!
Eyelid irritation, Tendon pain and Exercise tolerance decreased
My VO2 max dropped from 39.5 to 38.1 (via Apple watch) three days after receiving my first dose, and has remained at that level for 4 days. I am 79 2/3, but an active runner @ 30 miles a week including intervals and long run over 10 miles.
No change from previous report.
Slight increase in nasal drip.
My VO2max dropped 3% 3 days after my first shot, and another 9% 14 days after that shot. It has remained constant at that lower level for the last 8 days.
My running pace this morning was a bit on the low side.
Same slightly reduced stamina as last 2 days.
Skin slightly sensitive to touch/cold (Mild)
Follicle infection on eyelid Increased hamstring tendon pain from running Dr office visits
Today, the day after receiving my annual flu vaccine, I am experiencing mild lethargy and mild overall aches. I expect symptoms to be better tomorrow.
3.8% (5 lb) weight gain while traveling, since lost. Slight dizziness. Slightly pinched sciatic nerve on left side while traveling. Otherwise normal.
Mild Sciatica for 8 weeks Visit PCP
Throat congestion, nasal congestion, low-grade fever, lethargy
Caught covid. Recovered from covid, but my covid congestion became a sinus infection, which I have now.
Rash erythematous, Hypersensitivity and Rash
Just general malaise. My netball body temperature is in the low 97s, so with a "normal" 98.6, I know I had a slight fever and I also felt feverish. I have a solid red rash in my armpit that started a couple of weeks ago. The abdominal pain is slight.
I have slight soreness at the injection site and I developed mild upper side/back pain. I am doing great today, otherwise. Thank you!
Ive still got a red rash in my armpit
Just really bad allergies, no fever, no chills or body aches, just the worst allergies Ive had in awhile
Infection, Menstrual disorder and Lethargy
I had terrible deep pain in both legs 12 hours after the first vaccine from knee to hip. It went away after using medical marijuana. Then 8 days after the first vaccine I had Covid arm at injections site that itched and was swollen. Its ok now. I went to (b)(6) urgent care and the doctor told me he thought it was an allergic reaction or infection and put me on antibiotics and a topical and told me not to get 2nd Moderna shot. I now read its normal and my primary care physician Dr (b)(6) said I can get the 2nd vaccine. These urgent care doctors should know about the common reactions and not give false diagnosis or info.
I had a fever and flu like symptoms that subsided 24 hrs after the 2nd vaccine but I am still on and off lethargic.
Sneezing
Feeling great
A terrible cold
Horrible menstruel cycle unlike any before.
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