Their Stories

Brain fog, Erythema and Hypoesthesia

3.9.2021 – General redness in my extremities. (Could be associated with Dermatomyositis. It was not accompanied by heat or itchiness)

3.22.2021 – I am having an autoimmune disease flair. Symptoms include: stiff joints, swelling and skin changes including redness, broken capillaries, and ulcers. I am also experiencing numbness and tingling in my toes.

3.30.2021 – Autoimmune disease flare - continued from prior week.

4.20.2021 – Intermittent numbness and tingling in my wrist and hand on the arm I received the shot.

3.2.2022 – After contracting COVID: Extreme fatigue/brain fog and autoimmune flare.

Joint swelling, Injection site reaction and Injection site swelling

3.1.2021 – Fever 102.4 day after shot, severe headache, chills, severe joint pain and body aches, severe arm pain, extreme fatigue. Yesterday, day 2, fever 100.3, moderate headache, body aches, fatigue, arm pain.

3.2.2021 – On the second day after shot, forgot to include joint swelling with body aches and joint pain

3.3.2021 – Just surprised arm still a bit sore, but definitely better. Also surprised by lingering fatigue this far post shot, hard time shaking it, but better.

10.28.2021 – Not at this time

10.31.2021 – This is the most intense reaction I have had at the injection site of the three shots. Antihistamine helped some

11.4.2021 – Redness still present at injection site, fading slowly. Swelling and itching gone

Irritability, Joint swelling and Menstruation irregular

5.1.2021 – My period came two weeks early but nothing else. I was more irritable than usual.

1.13.2022 – Vaccine made my period come. My period ended on Saturday. I got my vax shot on Monday. Restarted my period on Tuesday. This happened when I got my second vax shot too.

1.14.2022 – My period that was brought on by the vax (started tues.) ended last night (thurs.)

7.11.2022 – Random rash? On my left ankle and now my ankle has been swollen for 2 months and I have joint pain. I don't think it's related to the vax.

Peripheral swelling, Throat irritation and Chest pain

5.10.2021 – Pain around injection site randomly came back. I jogged a little the night before, so that may be why? It lasted a couple days, with mild to moderate achiness depending how i moved my arm.

5.19.2021 – Itchy nose & scratchy throat

5.20.2021 – Hands/fingers seem to be a little swollen

5.22.2021 – Yesterday (day 4) my hands and feet still really hurt and felt swollen, but i think I forget to do the check on yesterday. They feel ok now.

6.2.2021 – I've been getting some sharp chest pains that come and go quickly. They don't last a super long time, but are pretty intense & make it hard to breathe. I've gotten them several times starting a few days after my vaccine. Other than that, I feel fine.

Musculoskeletal discomfort, Limb discomfort and Muscular weakness

1.9.2021 – It feels like my lymph nodes near my throat are swollen, and my throat is irritated, possibly from post nasal drip. I had a bad cold 2 weeks ago (negative covid test) so maybe it's back. This is my assumption.

1.27.2021 – Regarding muscle ache: my bicep muscles of injection are got extremely weak last night. It was as if with I had zero strength OR as if my arm alone weighed over 100 lbs. It was literally hard to move my arm- not paralyzed but immensely heavy because my muscles in the bicep area just didnt want to work. I often used my good arm to help move my affected arm. The joint and muscle pain then made it hard to sleep. By noon today Im still sore and that arm is tired but I can move it much more easily. Lastly after the 1st injection I was more tired midday for a whole week. I was blaming something else but now I wonder if it was a side effect. Well see how next days go.

1.28.2021 – Muscle soreness in my bicep area of my injected arm is still present. Im also achy in both of my shoulder joints.

1.29.2021 – My shoulder joints still have a mild ache. My right bicep area is still mildly tender only with certain movements. Im getting fatigued in the afternoons.

1.30.2021 – Very mild in shoulder joints only

2.9.2021 – I get allergy shots &Im still building up to my maintenance level. Since my 2nd Covid vaccine,my allergy injection site itches&turns red w/each shot. It may be coincidence but thought Id share in case the new covid antibodies could be causing t

3.9.2021 – My right shoulder, which ached immediately after the vaccine, is aching again.

4.27.2021 – I have had mild restless leg syndrome for 2 years. It recently became much worse and my usual treatment isnt working. Waiting for an appt with a neurologist.

1.26.2022 – I started getting dizzy spells 1 week after getting Moderna booster shot. Had a few short spells over 3 wks time & then longer spells after 12/29/21 requiring medical interventions. I've heard of at least 3 others who got this after their booster.

Periarthritis, Back disorder and Arthropathy

3.21.2021 – Chest tightness; throat itching

3.27.2021 – Sore throat and congestion

3.28.2021 – Bruise at injection site still

4.4.2021 – Achy neck/shoulders, back, joints

4.11.2021 – Itchy throat, phlegm

4.12.2021 – Cough, chest tightness

4.14.2021 – Swollen painful lymph nodes

4.15.2021 – Swollen lymph nodes

4.25.2021 – Cough, achy neck/shoulders on opposite site of injection.

5.16.2021 – Cough

11.10.2021 – Swollen lymph nodes on right side of body

11.11.2021 – Painful swollen lymph node on right side of body

12.3.2021 – Heart palpitations have returned

5.9.2022 – Occasional cough and diarrhea; joint pain Doctor visit for joints

10.7.2022 – Cough, phlegm

10.9.2022 – Back and joint problems

Blood pressure systolic decreased, Presyncope and Renal pain

4.18.2021 – I got really light headed right after the injection, felt way too hot (usually Im freezing), nearly passed out on the way to the observation room and threw up twice, the nurse said my blood pressure was 60 systolic. Im still in observation while writing this Nurse had to take care of me and check in frequently between injection and observation (Im still in observation for a few more minutes)

4.19.2021 – My kidneys feel a little sore, kinda similar to menstrual pain (not nearly as intense) even though Im on birth control and dont menstruate

4.22.2021 – Not sure if this is related to the shot or my celiacs disease

4.24.2021 – My chest was super itchy last night, not sure why or if it had anything to do with the injection but it was certainly unusual

Asthma prophylaxis, Gallbladder disorder and Joint range of motion decreased

1.13.2021 – Cannot lift my left arm

1.14.2021 – Injection arm pain, loss of range of motion for approx 18 hrs.

1.15.2021 – Swollen glands/no sore throat today..

1.18.2021 – Mild sore throat

1.19.2021 – Swolen glands, sore throat is gone

1.26.2021 – Recurrent sore throat

2.4.2021 – Deep cough

2.5.2021 – Deep cough,swollen glands

2.6.2021 – Swollen glands in throat Cough, chest tightness, Asthma exacerbated

2.8.2021 – Mild congestion/cough

2.9.2021 – Mild cough

2.16.2021 – Extreme fatigue

5.4.2021 – Blurry vision. Checked by Ophthalmologist. No problem. Ophthalmologist

8.5.2021 – Depression. Taking Celexa 10mgs, qHS

2.5.2022 – Gallbladder disease Gallbladder removed 2/4/22

Menometrorrhagia, Menopause and Postmenopausal hemorrhage

4.6.2021 – In menopause and my menstrual cycle started again heavy yesterday

4.7.2021 – My menstrual cycle is still here since after getting the vaccine and I was in menopause before getting the moderna vaccine

4.8.2021 – Menstrual cycle still here. I'm concerned about that vaccine now that it brought me out of menopause. I hope someone is actually listening to all the women composing of menstraul issues after this vaccine was received

4.9.2021 – Menses is still here! So weird that the vaccine made the menses start after being in menopause for over a year

4.16.2021 – My menstrual cycle is still here and fairly heavy. I dont think Im getting the second vaccine after the first one has caused me to bleed after I was in menopause for over a year before the first moderna vaccine. There is definitely a connection

4.23.2021 – Still having prolonged menses after vaccine on 4/2/21. Was postmenopausal prior to vaccine. So now I have been bleeding since 4/4/21. Still have fatigue.

7.4.2021 – I have already advised about the excessive menses bleeding that began after my first vaccine. I wont get a second vaccine as I hadnt had a period in a year before this! Now Im scheduled for hysterectomy

Plantar fasciitis, Heart rate irregular and Atrial fibrillation

4.15.2021 – I was diagnosed with arthritis in my left foot, where I also have planter fasciitis. It seems this condition has been worse recently. I cant say its related to the shot. I have been trying to walk/exercise more which may be contributing to the

9.25.2021 – Diagnosed with AFib / irregular heartbeat. No one indicated such a condition is in any way related to the Covid vaccine

3.29.2022 – I was diagnosed with A Fib during my annual physical Visit to heart and vascular center

Abdominal pain lower, Joint swelling and Ear infection

3.13.2021 – Swollen left hand and left wrist at wake up time at 8am. LastedAbout 30 to 45 minutes after waking up.

4.19.2021 – Had a low abdominal pain in the left side. Lasted a couple of days and then had been in and out. Feels like an inflammation in the abdomen with a stabbing pain. During the initial episode also was constipated (about 3 days)

4.23.2021 – Tiredness, inflammation and pain in articulations: right and left wrists and ankles.

7.2.2021 – Ive had a couple of times ear infections, for the first time in my life.

Psychomotor hyperactivity, Muscle discomfort and Feces discolored

5.19.2021 – Tiredness, cough with sore throat, and upper nose sharp pain (im guessing its the sinuses).

7.30.2021 – Higher than usual feelings of sleepiness and lack of concentration. Random muscular discomfort.

10.29.2021 – Most recently, 1) my stool came out green, 2) i had diarrhea for a day (very different weeks), some discomfort around the eyes, some discomfort in the joints of my hands.

4.28.2022 – Sudden periods of hyperactivity, lack of focus, and/or drowsiness. Note: I have no way of identifying the cause. It does not last long and does not occur many times.

Hypotension, Tachycardia and Tinnitus

2.21.2021 – Dizzy during bathroom break last night

9.29.2021 – Armpit lymph node swelling, low blood pressure, weakness, shortness of breath that lasted about 1 week after my 3rd Pfizer shot (lymph swelling lasted about 14 days). I'm fine now.

11.24.2021 – Exacerbation of pre-existing orthostatic intolerance and tachycardia lasting 3 weeks. But also had a flu shot since last check-in and these episodes occurred after I got the flu shot. Probably 4 vaccines amped up my immune system too much. Ok now. Labs ruled out thyroid

5.29.2022 – Tinnitus and lymph nodes swollen in armpit

5.30.2022 – Tinnitus

5.31.2022 – Tinnitus (milder)

6.1.2022 – Tinnitus a little worse than yesterday

6.2.2022 – Tinnitus mild

Weight decreased and Blood glucose increased

3.3.2021 – 6 pounds weight loss from water.

3.23.2021 РI hav̬ been seeing changes in my blood sugar levels since the second shot. I was recording 100-110 and now I'm fluctuating between 115-135.I have also noticed that my reaction to alcohol has changed also and a beer or wine puts me to sleep.

3.31.2021 – still experiencing higher levels of blood sugar. my average has gone from 105 in morning to 122 in morning with no change in diet. I have also dropped several piunds.

4.6.2021 – continuing spikes in blood sugar levels since 2nd shot. 125-135 one day and then 105-110 the next.

8.31.2021 – My average blood sugar levels went up about 10 points after 2nd Moderna and now it's gone up another 10 points average with the same diet.

Fluid retention, Osteoarthritis and Fibromyalgia

3.22.2021 – I have fibromyalgia and osteoarthritis. I can't tell if the aches and joint pain is from that. It is definitely more pronounced since getting the vaccine.

4.15.2021 – Irritability?

5.7.2021 – Overall fatigue again. Body and muscle aches

7.9.2021 – Extremely fatigued. Water retention more than usual. I see my primary next week to get checked out

10.8.2021 – Fluttery feeling in my chest. Extreme fatigue Went to my primary Dr. He referred me to the cardiologist

4.9.2022 – I caught covid in January 2022. Was super tired. Congested. Headache.

Hand fracture, Carpal tunnel syndrome and Fall

12.30.2020 – I have pulled a muscle in my back, 2 days before I received the vaccine. That is the only thing bothering me.

2.9.2021 – Carpal tunnel pain

2.23.2021 – Chest pain fir one dayWrist and hand pain

7.20.2021 – Vomiting and diarrhea, nausea

1.19.2022 – Cough, slight congestion

4.27.2022 – Broken finger after a fall. I also had a severe sore throat and sinus infection about 3 weeks ago. Lasted about 5 days. Took antibiotics and was good. The ER visit was for the fall

6.16.2022 – Joint pain in right shoulder

7.8.2022 – Runny nose, post nasal drip, sore throat, cough

7.13.2022 – I got Covid and my symptoms are severe sore throat, cough, post nasal drip

8.31.2022 – I had Covid in early July

Impaired work ability, Joint swelling and Peripheral swelling

1.13.2021 – Wrist/hand swelling

1.18.2021 – Arthralgia in my wrist. The discomfort has improved significantly, andI am able to do my work if I wear a wrist brace. The rash on my arm worsened from day 8-11, and is now resolved.

1.25.2021 – Arthralgia on wrist is still present but improving. I am able to do my work while wearing a brace

2.9.2021 – On the day following my 2Nd shot: fever, chills, difficulty sleeping, backache.

2.2.2022 – Covid

2.28.2022 – Swollen lymph nodes underarm/armpit

3.1.2022 – Tenderness swollen lymph nodes in armpit

Superficial vein thrombosis, Blood pressure increased and Heart rate increased

2.4.2021 – I get chronic headaches, so probably not related to vaccine.

9.25.2021 – Mildly to moderately elevated blood pressure and heart rate that felt like palpitations (but wasn't)

9.25.2021 – Heart palpitations, light headed starting 5 minutes after jab, lasting 4 hours.

9.27.2021 – Lymph node under injection side armpit has been very swollen and moserately painful since yesterday.

9.28.2021 – Lymph node under injection arm is still midly swolen and sore

9.29.2021 – Lymph node under injection side armpit still swollen, mildly sore, but getting better.

10.9.2021 – I have a 15cm long blood clot in a superficial vein in my right calf. I'm reporting it just in case it's related to the vaccine, but I had a similar blood clot in my genital area 21 years ago when I was 17, so it's probably not due to the vaccine.

10.29.2021 – Headache

3.25.2022 – Another superficial thrombophlebitis, this time in my arm.

10.17.2022 – I get chronic headaches, may be coincidental.

Dry skin, Flushing and Hypersensitivity

2.11.2021 – Possible trigger of my rosacea-like allergy symptoms. Face is hot and red - feels like a bad sunburn. Usually triggered with my food allergy 2-4 days after exposure. Started last night, heat is gone today but face is still red.

2.12.2021 – Still experiencing heat and flushing of my face, dryness and rash on backs of hands consistent with my allergy reaction to foods I am allergic to. No new foods to trigger these things. In the appropriate time frame to be triggered by vaccine.

2.14.2021 – Rash is still the same from my typical allergic reaction to foods

3.9.2021 – Sore throat yesterday - forgot to mention it. It was moderate.

Hyperkeratosis, Joint warmth and Grip strength decreased

4.8.2021 – Severe spring allergies and my usual allergy medication is ineffective this time.

4.15.2021 – Spring allergies - itchy throat and eyes. Usual antihistamine isnt working this time around. Energy at 80%.

4.28.2021 – Thumbs swollen and slightly painful

4.29.2021 – Thumbs slightly swollen still

5.21.2021 – Joint pain both thumbs. Corn on sole of foot.

5.28.2021 – Corn developed in foot

6.4.2021 – Joint warmth, pain, reduced strength and range of motion in thumbs, pain in heels

Joint swelling, Mobility decreased and Swelling

4.28.2021 – I still cannot raise my arm past my shoulder. I have a rash. Im still in pain physically all over on top of my arm. I have seen my Dr. twice for this and she is at a loss. Please help! Dr. Appointment tomorrow morning. Dr. (b)(6)

5.12.2021 – Serious swelling of my hands, wrists, ankles, knees, and feet. Specialist

5.20.2021 – Severe swelling of my hands and feet. The Dr put me on steroids again.

5.26.2021 – Still dealing with swollen hands and feet.

7.14.2021 – Swollen hands, feet, neck, under arms, and are extremely painful

10.17.2021 – Pain in arms and legs, hands and feet.

4.14.2022 – Pain in hands and feet

Feces soft, Hypersomnia and Somnolence

3.25.2021 – Loose stool, not quite diarrhea

3.26.2021 – Not as tired today, but yesterday, after saying I wasnt tired, I took a long nap.

3.28.2021 – Just napping more than usual

3.30.2021 – Stool is still very soft

4.2.2021 – Soft stool

4.15.2021 – Just feeling blah

5.12.2021 – Both my wife and I felt very fatigued two weeks and a few days after our second shot. Just lousy all day.

5.19.2021 – Not new or worsening, but still fatigued and my stool is still loose.

5.27.2021 – My stool is even softer than it was.

Pleural effusion, Bradycardia and Pleurisy

3.2.2021 – Sore throat

3.4.2021 – I feel relieved and less worried now that I have #1 vaccine!!

3.15.2021 – Pain in arm (vaccination site). Heart palpitations. Malaise. Dry cough. Sore throat.

3.22.2021 – Terrible diarrhea. Heart palpitations.

5.2.2021 – My skin, all over my body itches. It was oneof the symptoms I had when I had Covid in July.

5.9.2021 – Itching skin!! This was one of my most frustrating symptoms when I had covid last July. Also heart palpitations are back with a vengeance

6.27.2021 – I have tachycardia AND Bradycardia so I will get a pacemaker July 1st

9.26.2021 – Had a pacemaker inserted in my chest and ended up in the ER twice. No additional Covid symptoms thankfully.

11.29.2021 – Pleurisy and Pleural Effusion

12.6.2021 – Pleurisy

1.24.2022 – Diagnosed with Lupus and continued problems with pleurisy. Not sure if these are related to my Covid infection July 2020 or not.

5.25.2022 – I feel a weight on my chest. It's hard to take a deep breath, but it's tolerable.

11.21.2022 – Deep depression and confusion from long Covid. Grief counselor

Sciatic nerve neuropathy, Sacroiliac joint dysfunction and Sciatic nerve injury

3.2.2021 – Nerve pain upon walking or standing

3.18.2021 – Sciatic nerve pain left hip and leg

3.19.2021 – Sciatic nerve problem left leg & hip

3.20.2021 – Sciatic nerve problem: left leg, across sacrilumbar

3.21.2021 – Sciatic nerve pain left leg & hip!

3.22.2021 – Sciatic nerve prob left leg& sacroiliac both hips

4.12.2021 – L4, L5,S1 epidural for back pain, didnt take this time, have a hard time sweeping. Standing for longtime,

4.26.2021 – Hyperparathyroidism disease diagnosed. Sciatic nerve problem fromL4/L5/S1. Pain from L4/L5 ..

9.13.2021 – Cracks in right shin.Surgery to remove 2 parathyroid glands. Visit dr office

3.16.2022 – Diarrhea, probably from eating different food than usual. Am staying with daughter in CA for another week then back to MO.

Open angle glaucoma, Immunosuppression and Eye operation

1.27.2021 – I slept EIGHTEEN (18) hours straight from last night at 11pm. Jan 26 11pm - Jan 27 5 pm. My neighbor woke me up after children couldnt reach me. I feel fine though

2.17.2021 – I feel a little dizzy....just a little off

2.20.2021 – Vertigo

3.1.2021 – My eyesight has changed. I have wavy vision and pain behind my left eye. Both eyes have blurred vision that is present even when I put on my glasses. I headaches from the wavy and blurred vision.

3.22.2021 – Fracture left hip.Surgery To pin hip 3/15/21

2.26.2022 – Immunosuppresed

10.7.2022 – Whole body Itching esp palms of hands, under chin, ears, back & both arms

10.9.2022 – NO

Acupuncture, Transient ischemic attack and Nerve compression

3.5.2021 – Developed a welt in my vaccination arm about 10 days after after receiving the dose, and then severe bruising appeared in that spot. It also itched for a few days.

3.24.2021 – My teeth have been hurting today.

9.18.2021 – One day I experienced what seemed like almost total body inflammation which seemed to come out of the blue, mainly affecting my joints, most prominently my lower back/hipsI could barely walk. The next day I had some residual pain, but it had ended

3.19.2022 – Upper arm soreness of the arm in which I received my Covid vaccinations, sometimes intense pain, usually just mild but exacerbated when I reach for something.

6.10.2022 – 2 days ago I experienced overwhelming exhaustion and overall body soreness, though mostly in my legs. Felt like I was coming down with something, but had no fever. Much better the next day, completely recovered today.

12.9.2022 – Excruciatingly painful sciatica down the right hip and leg. Chiropractor and acupuncture.

Lip swelling, Joint swelling and Hypersensitivity

1.13.2021 – Face feels extremely hot but don't have fever

1.14.2021 – Rash on my chest, hives, tightness in chest

1.15.2021 – Hives on neck and upper chest, swollen ankles. Please check - I read that similar reaction were reported in people who had a history of dermal fillers

1.22.2021 – Swelling of lips - seems like an allergic reaction

1.27.2021 – Still concerned about the mild allergic reaction I had. My doctor is worried whether I should take the second dose.

Lip dry, Dry skin and Loss of personal independence in daily activities

3.2.2021 – Tightness in neck muscles

3.3.2021 – Right side neck muscle stiffness

3.23.2021 – Pain at vaccination site and shoulder, chills, muscle ache in back, increased post nasal drip, slight sore throat and tiredness. It was all mild. It lasted 2-3 hours on 3/18/21.

6.1.2021 – Vertigo for past 2 weeks. Still having problems with balance and cant drive safely. In person visit to doctor.

11.8.2021 – I have a cold: occasional sneezing, post nasal drip, occasional mild sore throat.

9.1.2022 – Covid with mild symptoms that lasted about 7 days. Some symptoms still seem to come for a few hours- all of this is very mild.

11.7.2022 – Skin around my lips and lips are very dry. Cheeks are flushed.

Respiratory tract irritation, Weight increased and Chest discomfort

5.14.2021 – Slightly irritated breathing, fatigue, sudden significant weight gain (5 lbs) since first vaccination dose after having very stable weight for over a year. I know this could be air quality and overwork, not necessarily vaccine related.

5.21.2021 – Chest tightness, weight gain, fatigue,

11.20.2021 – Chest tightness (occasional; blood oxygen is fine and the tightness passes; I'm continuing cardio / aerobic exercise without trouble).

Underweight, Malabsorption and Mouth injury

10.5.2021 – Intense itching, and general malaise/ennui in re: doing tasks

10.6.2021 – Loss of appetite

10.18.2021 – Terrible fatigue and disrupted sleep

10.25.2021 – Sore throat, difficulty swallowing

10.26.2021 – Inside mouth painful sores and "cuts" ~ like sensation. Crippling insomnia, sore throat difficulty swallowing

10.27.2021 – Painful Sores & cuts inside mouth which make it really difficult to eat; Swollen throat with hoarseness, difficulty swallowing,

10.28.2021 – Loss of appetite, mouth sores inside, sore throat,

10.30.2021 – Loss of appetite, inside of mouth sores/cuts, depression

10.31.2021 – Sore throat, raw sores in mouth, dizziness

11.1.2021 – Sores inside mouth, sore throat, loss of appetite, tinnitus

11.8.2021 – Crazy itching, Shingles, vertigo, general lethargy, insomnia, sore scratchy, hoarse throat, dehydration, fatigue worsening

11.15.2021 – Dry coughing, hacking, poor sleep/ insomnia, itchy arm, sore throat (on one side mostly), hoarse, weight loss

11.22.2021 – Continued weight loss, sore/hoarse throat/voice, general weakness and an odd clumsiness (I'm a trained dancer, so this is very unusual), vertigo, shortness of breath doing minor tasks

11.30.2021 – Run down, fever, sore fhroat, hoarse throat, dry cough, nausea, no energy, weight loss, diarrhoea when eat, of appetite, fatigue & easily fatigued

12.8.2021 – Chest pain w/rumbly breathing~ also past few weeks but forget to mention, continued hoarse/raspy voice & sore throat, GI upset, continued weeks of dry/hacking cough, abdomen pain, loss of appetite, weight loss (I'm already V underweight so this=bad)

1.24.2022 – Fever, malabsorption, body aches, increased vertigo and dizziness to the point i cannot stand or have fallen. Chest pain. Loss of appetite (I'm already v underweight), depression (This is completely new)