Their Stories

Oral mucosal blistering, Polymenorrhea and Stomatitis

1.1.2021 – Palpitations since yesterday, today moderate sore throat

1.3.2021 – Sores on the roof of my mouth, sore throat, runny nose

1.4.2021 – Blisters on roof of mouth, sore throat. Both now mild.

1.5.2021 – Sore throat, sores on roof of mouth

1.6.2021 – Sore throat, sores on roof of mouth

1.14.2021 – Vertigo intermittently moderate for two days

1.28.2021 – Athsma attack, mild

4.26.2021 – Have been having mt period every two weeks since vaccines Plan appt when insurance kicks in at new job

7.24.2021 – Joimnt paon, sore throat, short of breath, headaches,

Aura, Quarantine and Migraine

9.26.2021 – Had COVID November 2020. First week following vaccine. Nausea. Fever. Headache. Fatigue. Better after ten days. Now have had headache for past ten days.

9.30.2021 – I have had a migraine since September 17. It is just now resolving. My daughter tested positive for Covid on September 26. She was symptomatic on the 25th. I have been in quarantine. Eye exam since had ocular aura. Migraine clinic. Urgent care clinic to be tested for Covid.

Eye irritation and Parosmia

3.15.2021 – I had covid in November and then the vaccine a couple weeks ago. Over the past few days I have had persistent smell distortion: I smell gasoline strongly when it is not present. Its not debilitating but certainly annoying.

3.22.2022 – I have been smelling exhaust fumes pretty constantly for the past days, which happened before (like last spring??) only last time, I smelled gasoline (but couldn't smell a natural gas leak) and this is exhaust. Sometimes it's so intense, my eyes burn

Mobility decreased, Injection site bruising and Headache

5.13.2021 – (headache might be my usual migraine, since it's only 7 hours since 2nd dose rec'd.)

5.15.2021 – Arm still bruised at injection site. Headache MAY be more my usual Migraines, but Thurs night after the vacc2, it got progressively worse until I finally took Sumatriptan (100 mg). After extra-long night's sleep, I felt much better Friday afternoon But today headache's back. So I took another Sumatriptan--helps but still feel the headache a little.

5.16.2021 – Headache might be my Barometric-Pressure-triggered Migraines . . .

5.6.2022 – 12/29/21 through 01/14/22 had COVID-19 (diagnosed by test at clinic, 01/14/22). NOTE: this form won't allow me to put these dates in, though my last documented Checkin was 11/13/21! So BELOW I have to answer falsely. Sorry! Hibernated under lots of covers and cats. No Power the week I was sick, roads too bad to go out!

Renal pain, Sinus headache and Epistaxis

3.30.2021 – Ringing noise in ears. Sinus headache

4.20.2021 – Had the night sweats last night

4.21.2021 – Light headed

4.22.2021 – I Felt depressed

5.3.2021 – Left kidney aches off and on.

5.18.2021 – Stuffed up nose. I don't have allergies but I visited my sister at (b)(6) hospital for several days in a row last week. Thought about getting a covid test.

5.25.2021 – Had a bloody nose for the first time in my life. Had a stuffy nose & congested sinuses for a few days before the bloody nose occurred. The congestion started a week after visiting my sister at (b)(6) hospital. I'm glad I had my vax. I was not tested

Cold-stimulus headache, Hemiparesis and Bladder disorder

9.16.2021 – I have had left side weakness my left hand was drawing in or having difficulty walking have like a brain freeze, I have difficulty walking I have a lot of fatigue I can't accomplish activities as before, I have bladder problems, having accidents .

11.2.2021 – Still having difficulty with my walking, also having problems being off balance, memory problems, bladder problems which has gotten better my doctor has up my bladder medication the headaches are now gone, nausea is gone. Went to see two of my Physicians about the problems.

Cardiac dysfunction, Decreased appetite and Chest pain

4.21.2021 – Out of breath easy

5.13.2021 – I feel sick and nausea and very tired. I felt this way for about four days now. Missing with my appetite also. Not hungry

5.25.2021 – None any more so for

10.14.2021 – I have a mis fictioning heart that doctor put a heart monitor on for thirty days to see why I get chest pains and difficulty breathing... I have never smoked ... I am dietetic . But not saying it is related to the vaccine.... But thought I mintion it Heart monitor.. and cardiac cath. Was done.

Hyperesthesia, Photopsia and Pelvic pain

2.25.2021 – Intermittent itchiness of hands, feet, and low back/sacrum area. This started about 3 or 4 days ago. It is mild and Im not sure if it is a Covid symptom or just dry skin. However, it is not something that I normally have.

6.3.2021 – I get tired more easily than before covid diagnosis/vaccine. March/April I felt fragile ...never felt that way before. I started having a bit more energy and felt stronger in May. In April I developed a floater and flashes in my right Optometrist

9.3.2021 – Since June: exacerbated hip joint pain, thigh muscles intermittently painful and cramping, shoulder more painful with less ROM than normal, recovery from exercise, or a day of work, takes longer than normal (due to fatigue and muscle/joint pain).

10.6.2021 – My shot was on 10/01, and the above symptoms lasted for 2 days including: Constipation, light cough, eye sensitivity to light, sensitivity to fabric touching my skin and stiff neck.

10.15.2021 – Enhanced joint pain on Left side : shoulder, hip, knee

10.29.2021 – Left pelvis/hip still hurts. Feels better when standing but gets stiff if I walk or stand too long.

11.5.2021 – Joint pain-hips/shoulders Taste is still about 75% of normal some foods I can only taste about 50% or less

4.3.2022 – Joints (especially hips/knees)

Periorbital swelling, Abnormal dreams and Seasonal allergy

3.26.2021 – Joint and muscle pain are pre existing but feels a little worse maybe?

3.28.2021 – Possibly pre existing but cant tell if its worse

4.19.2021 – Runny nose, sore throat, itchy and puffy eyes - I believe this is seasonal allergies but its worse than is usual for me

4.21.2021 – Seasonal allergies, worse than usual but improved after taking Flonase

4.28.2021 – Have been experiencing very vivid and somewhat memorable dreams, which is unusual. Not a problem, but its new, and Ive since read about others with similar experiences.

12.27.2021 – Runny nose, some congestion, headache

2.21.2022 – Cold symptoms. Sore throat, headache, congestion

5.25.2022 – Covid 19 - headache, malaise, runny nose, cough, congestion, sore throat; seasonal allergies - runny nose, eye irritation

Parosmia, Dysgeusia and Palpitations

12.21.2020 – Right aftet I received the first dose. I had racing heart rate for about 10 minutes. I thought it was just nerves. But after seeing reports on the news i felt i should report it. My heart rate got up to 130 bpm, but came down to 95 bpm within 10 minutes. My resting heart rate did not return until 1 hour after the shot. I had my fit bit on and it tracks my heart rate. No instances after that first one.

7.18.2022 – Positive for Covid. Sore throat, headache, body aches, fever, vomiting, diarrhea metal taste and smell. Fatigue. Chills/sweats. Monoclonal antibody infusion in home.

Guillain-Barre syndrome, Muscular weakness and Anosmia

6.19.2021 – Loss of smell

7.14.2021 – Pain and numbness in legs and feet

7.20.2021 – Been having progressively worse numbness and tingling in my feet and legs for the last few days. My legs and feet feel very weak as well.

7.27.2021 – Numbness and weakness of feet and legs getting worse almost daily

8.3.2021 – Continuing worsening numbness and tingling of my legs and hands.

8.10.2021 – Increasing numbness and tingling with loss of strength in legs and arms

7.13.2022 – Have had another episode of guilliam barre syndrome after my booster in January.

Ehlers-Danlos syndrome, Colitis ulcerative and Fibromyalgia

2.21.2021 – No

2.23.2021 – Taking long naps each of 3 days since shot

2.26.2021 – I have fibromyalgia and Ehlers-Danlos Syndrome so its hard to sort out various muscle & joint pain.

3.22.2021 – My neck is stiff. I dont know if its from the vaccine or not.

3.25.2021 – Its hard to sort out fatigue and muscle aches from my chronic conditions of fibromyalgia and Ehlers-Danlos Syndrome. I have had a hard time sleeping at night and have to take about 2 naps daily.

4.30.2021 – I had a mild stroke that affects my vision. At the time I was also trying to lower my blood pressure because it had been high.

5.5.2022 – My abdominal pain is most likely related to my ulcerative colitis because I've had trouble getting my prescription refilled. So it probably doesn't have anything to do with the booster shot. My medicine for UC is often on back order.

10.11.2022 – Just warm

10.17.2022 – Symptoms may be related to chronic diseases

Weight decreased, Dysphonia and Depression

4.22.2021 – Arm was sore

5.27.2021 – Joint pain, light headed. Injection site and arm pain.

6.17.2021 – Joint pain on ankles, knees, hips, wrist and shoulders. This is unexplained, I do not suffer from any diagnosed illnesses and never had this problem before until the day after taking the second dosage of the Moderna.

6.25.2021 – Joint pain and discomfort

11.13.2021 – Congestión, headache, lack of energy, coughing, sore throat, scratchy vohce for 6+ weeks

5.15.2022 – Extreme anxiety, depression. Diarrhea, weight loss. Can't sleep. Very vulnerable to viruses.

Injection site joint pain, Joint range of motion decreased and Injected limb mobility decreased

12.26.2020 – I was injected in the upper (and more posterior) area of my right arm. I experienced significant pain in the anterior shoulder joint. I was unable to addictive across my body, abduct to the right, and couldn't reach above my head. These symptoms began the morning after injection and continued for approximately 60hours.

1.12.2021 – My arm pain has returned. Decreased range of motion, pain.

1.19.2021 – Feeling woozy about 20min after injection

1.20.2021 – Slept AWFUL night of injection

11.17.2022 – Congestion, cough, fatigue

Periorbital pain, Asthenopia and Rash pruritic

3.29.2021 – Specifically, I have been having continued ocular soreness and heaviness in my eyelids that hasnt gone away since getting the shot

3.30.2021 – Still experiencing ocular soreness and eyelid/upper eye heaviness that wont go away with ibuprofen use

3.31.2021 – Soreness and heaviness in one eye socket

4.1.2021 – Still experiencing eye soreness in one eye

6.24.2021 – Small bumpy rash that was itchy appeared in and around armpit of arm that I got the shot in, and spread to/appeared in other places. Caused prickly/crawling feeling over entire body periodically Primary care office visit first and they treated empirically because not sure what cause was, so when rash continued to get worse, went to dermatologist

3.25.2022 – Underarm rash that is bumpy and itchy which comes back in the days/weeks after Covid shots but has persisted since getting first shot last year. Have talked to others who have experienced the same ongoing rash, so please evaluate this side effect

Rheumatoid arthritis, Myalgia and Nausea

1.3.2021 – I woke up this am with no symptoms. I took 400 mg IB & 500 Tylenol last night.

1.22.2021 – Mild nausea

1.25.2021 – 4 days post vaccine. Unsure if they are vaccine related. Fairly sudden onset in joint & muscle pain. Mild aches for about & high moderate for about 3 hrs.

3.3.2021 – About 2 weeks after my last vaccine, I have had intermittent pain across my arm toward my collarbone. I thought it wasnt related since it began 2 weeks post but a neighbor just told me she started having pain all down the vaccine side 3 wks post.

7.21.2021 – Rheumatoid arthritis outbreak & new sx of Sjogern Syndrome.

Sensitization, Tension headache and Allergic respiratory symptom

3.18.2021 – Fatigue, low energy, headache/migraine.

4.1.2021 – None as of about 90 minutes after injection.

4.3.2021 – Muscle ache seems to be from overuse of arm muscles when moving the arm after injection to aviod injection site pain.

4.29.2021 – Continuing migraine and pro-migraine, headache, fatigue.

5.6.2021 – Fatigue, difficulty focusing on tasks, headache, sensitivity to scents and sound

7.1.2021 – Headache, menstrual cramps (despite hormonal birth control), menstrual spotting (despite hormonal birth control and no periods for years).

1.21.2022 – Increased frequency and severity of headache, migraine

9.29.2022 – Allery-like sinus symptoms, including sore throat, running nose, sneezing, cough. Also increased migraine frequency.

10.7.2022 – Increased incidence of migraine, missing two days of work/school in one week (usual occurrence is approximately once per month).

10.21.2022 – Significant tense muscles and soreness in neck and shoulders, leading to tension headaches and migraine.

12.9.2022 – Tested positive for COVID, mild symptoms, had symptom relapse after initial improvement and medication (Paxlovid, Prednisone). Included headache, head congestion, cough, slight fever on day 1 that did not relapse. Today is day 10, still symptomatic

Dysphagia, Dry eye and Eye pain

3.2.2021 – For a few days I Was having difficulty sleeping at night, tossing and turning and having low energy. Not sure if vaccine related.

3.16.2021 – Fever

3.17.2021 – A bit of runny nose

3.24.2021 – Weakness

4.21.2021 – Having issues with My throat, solid foods getting stuck and I have to drink so much water to get the foods that got stuck out. Sometimes I have to eat banana or avocado to get them out. Not sure if this is related to the COVID19 shot just reporting

2.14.2022 – I tested positive for COVID on Feb 8th

5.16.2022 – My eyes has been very dry and at times hurting.

Gastric pH decreased, Ear inflammation and Gastric ulcer

1.7.2021 – Disturbed sleep, increase in stomach acid

1.8.2021 – Disturbed sleep because of cough.

1.9.2021 – Itching on and off

1.11.2021 – Occasional itching

2.2.2021 – First 2 days lots of chills and aches, dizziness and off balance when up and about

2.3.2021 – Dizziness, out of balance when moving, standing up

2.4.2021 – Neck pain, ear inflammation, dizziness

2.5.2021 – Little dizzy, off balance. ear ache and pressure

5.4.2021 – IBS worsened. Stomach ache, gas, belching , indigestion increased. Does not respond to provide ac, protonix. Apt with doctor scheduled after a week.

2.4.2022 – Stomach ulcers , inflammation since June 2021. , cold, sinus, asthma, bronchitis, Jan 2022, eye infection 3-4 months ago,

4.27.2022 – Sciatica pain, acid reflux.

5.14.2022 – Flare up of stomach ulcers, inflammation of gastric passage,acid reflux developed year ago. Elevated liver enzyme than year ago.

7.2.2022 – COVID infection. Needed to take plaxovid. Recovery after 10 days

10.1.2022 – Sept 12th, another Covid episode , cold, congestion , head aches, cough etc . Lasted for a week. Covid - ve home test after / weeks. 10 days later, stomach issues. Upset stomach, severe acid reflux, stomach ache Gas etc. , sinusitus,

Idiopathic interstitial pneumonia, Helicobacter gastritis and Salivary hypersecretion

2.5.2021 – Very stiff neck and shoulders night and all day. One hour of runny nose and excess saliva for one hour in middle of night.

2.6.2021 – Muscle from shoulder to neck to head still tight on left arm where i got shot. Tightness on back or right side of neck is not so tight anymore.or

2.7.2021 – Neck muscle into head aches, but no headache.

2.18.2021 – H Pyloriprobably not related to 2nd Pfizer shot Biopsy via Endoscopy. Meds prescribes by telephone

3.11.2021 – I am getting over h pylori. Outpatient @ hospital for endoscopy due to my IPF

5.6.2021 – I had H. Pylori Endoscopy and colonoscopy doe at hospital due to my lung condition

9.30.2021 – NSIP lung disease 3 (GP, Hemologist, Pulmonologist)

2.13.2022 – Diarrhea. HIDA test in two days

8.15.2022 – Under care of Gastroenerologist. Drs. Office

Adverse drug reaction, Cystitis and Rheumatoid arthritis

3.6.2021 – Shortness of breath.

3.19.2021 – I feel cold and I have been sweating. It stops and a few minutes it comes back.

3.27.2021 – Sweating

10.3.2021 – Sweating a lot

10.4.2021 – I'm always tired because I have sjogren's

10.20.2021 – Bladder cystitis

11.3.2021 – I took my 2nd dose of Enbrel. I have a rash and swollen tongue. The area where I took the shot is really red. The size is a little bigger than a 50 cent coin. I have an epi pen in case my reaction gets worse.

11.11.2021 – Rash. Reaction to the medicine Enbrel. Spoke to my drs nurse who will relay the info to the dr.

3.30.2022 – Change of medicine has made my stomach hurt with diarrhea.

9.13.2022 – I have RA

Uterine dilation and curettage, Vaginal hemorrhage and Intermenstrual bleeding

4.16.2021 – My period came 2 weeks early, and it was different than normal. There were clots, and I would bleed for a day, then stop for a day, and then it would start again. I've also had more headaches than normal.

5.17.2021 – I got food poisoning over the weekend (vomiting and diarrhea).

11.21.2021 – My menstrual cycle started 2.5 weeks early

11.22.2021 – I'm experiencing unusual menstrual spotting (2.5 weeks early)

2.18.2022 – Menstrual irregularity. My period has gone on for 2.5 weeks and shows no signs of abating.

5.20.2022 – Constant menstrual bleeding and pain Discussed with doctor at previously scheduled appointment

11.19.2022 – I'm having menstrual problems and recently had a hysteroscopy and D&C.

Vulvitis, Hernia and Peripheral coldness

1.31.2021 – Teeth and jaws hurt

2.1.2021 – Dry/scratchy eyes, mild nose bleeds

2.2.2021 – Dry burning eyes, mild nose bleeds

2.3.2021 – Pain in left ear

2.4.2021 – Left ear pain ENT

2.5.2021 – Left ear pain Office visit, ENT

2.13.2021 – Ear pain, swollen glands in neck

2.20.2021 – Silent reflux from paraesophageal hernia: burning throat, ear ache, post-nasal drip. Hernia large and causes shortness of breath. Surgery in 4 weeks

2.28.2021 – Shortness of breath

3.1.2021 – Cold feet/toes

4.3.2021 – Surgery for paraesophageal hernia

9.20.2021 – Extreme shaking

9.23.2021 – Woke up with red nose like a sunburn, but had not been outside

9.25.2021 – Red nose again today

10.16.2021 – Vulvar vestibulitis In office consultation and labs

Emotional distress, Nightmare and Restlessness

2.21.2021 – Pain in jaws, burning eyes, restless and anxious

2.24.2021 – Redness and swelling on injection arm is moving down my arm toward the inside. More redness & swelling & rash today on injection arm.

3.13.2021 – Frequent headaches, mild nausea and fatigue

3.20.2021 – More knee & joint pain than usual. Strange, but I keep feeling like I want to cry for no reason at all. This is totally new for me.

4.3.2021 – More leg cramps and bad dreams

5.24.2021 – More headaches, UTI, upset stomach virus, dizziness

Crohn's disease, Muscle spasms and Chest discomfort

3.11.2021 – The Moderna arm has gone away already fortunately. I felt poorly today tired and crampy but I have Crohns so hard to tell whats causing what.

3.31.2021 – Feeling of chest tightness intermittently.

4.7.2021 – Have Crohns feel poorly often before vaccine.

5.3.2021 – The outside of my right wrist is hurting again. This is a symptom I had in the week after my 2nd dose and went away. I have had wrist problems before (after childbirth) but that was the inside.

Dyspnea, Respiratory tract congestion and Cough

4.9.2021 – I had long hauler symptoms since I had covid February 7 th, which included congestion, fatigue, and some shortness of breath , which are all getting better slowly.

4.16.2021 – Still have congestion and fatigue , and some shortness of breath since having covid feb 7 th 2021

4.28.2021 – Still suffering congestion fatigue and shortness of breath from positive test in February, but much better

5.3.2021 – Sinus and chest congestion, still have from covid in February, was feeling better , but after vaccination its gotten worse

6.4.2021 – Shortness of breath, coughing, congestion Doctor primary

4.30.2022 – Allergies

Constipation, Gastrointestinal disorder and Abdominal pain

3.8.2021 – not sure if fatigue/tiredness is from vac or series of days short on sleep

3.30.2021 – too early for any of these symptoms, just got shot 4.5 hrs ago

4.14.2022 – had chills, diarrhea, and body aches , mostly 1st day after 4th shot, but also the body aches continued tho lessened for at least anoth 3 or 4days,would have preferred 4th shot to be pfizer as it's side effects are not as bad but pfizer is hard to ge

4.23.2022 – Constipation, diarrhea, abdominal cramping off and on for several days since last shot, tiredness

10.1.2022 – Feeling of impending diarrhea that never happened, body aches, sore arm at injection site... All of these over the 1st 48 hours after vaccination.

Premenstrual pain, Postmenopause and Lipoma

1.21.2021 – Nasal congestion

1.30.2021 – Itching at site of injection

2.18.2021 – Nose bleeds

3.16.2021 – Dizziness yesterday for no reason. Covid shot? I'm not sure. I don't get dizzy usually

10.30.2021 – Swollen lymph nodes at edge of right breast that really hurts. I got my shot in my LEFT arm. Feel like I'm having menstrual cramps and I'm post-menopause. Abdominal pains

10.31.2021 – Lymph nodes under right arm still a bit sore, but nothing like yesterday! Haven't had to take any meds today

11.8.2021 – Enlarged lymph nodes are hurting on both sides. I have 1 under my 1st rib on the left side that is swollen, painful to touch and hard. I believe that's what it is. I took Aleve and it helped some.

11.15.2021 – Pre-menstrual cramps and I'm post menopause! Very unnerving

11.22.2021 – I'm still having issues with my swollen lymph nodes. They hurt!

11.29.2021 – My lymph nodes under both arms and around my breasts still hurt; sometimes terribly. I have to take Aleve for it. I sometimes sleep with a heating pad across my chest. Also, I feel like I'm getting my period with pre-menstrual cramps and I'm post men

12.6.2021 – My lymph nodes are still swollen and hurt.

1.24.2022 – Right after my booster shot, I developed a lipoma on my left upper chest. It hurts at times. An ultrasound confirmed it. I'm also experiencing pre-menstrual cramps and I'm post menopausal! That started right after the booster. No bleeding though. My family doctor sent me for an ultrasound

5.18.2022 – I got Covid

Eyelid rash, Dermatitis contact and Ocular discomfort

4.15.2021 – My eyes were light sensitive and itchy about a week before I got my Covid vaccine. I had some perscription eye drops with predesone and antibiotic in them. I used for two dsys then stopped and my eyes cleared up. Two days later I got my Covid shot. Three days ago my eyes started bothering me agsin, but this time it feels different. Almost like I have poison ivy in and around my eyes. Can this be caused by either Covid or by the vaccine?

4.22.2021 – Eyes became light sensitive and the skin on my eye lids got a rash. Now the skin on one of my forearms has a rash. Looks a little like poison ivy but cant think where I could have gotten it.

4.29.2021 – Poison Ivy

5.20.2021 – Like a bad cold or allergies. Cough and tired. A little short of breath.

Poor quality sleep, Insomnia and Lymph node pain

4.4.2021 – Hard to sleep since got shot

4.11.2021 – Still not sleeping good since shot

2.8.2022 – Lymph node in neck swollen and hurting as same side of booster

2.12.2022 – Lymph node in neck on side of booster still swollen

2.20.2022 – My lymph node on left side of neck same side i got booster , pain had calmed down a couple days then started hurting again and hurts more when turning head a certain way. It is also still swollen .

3.2.2022 – My leff arm i got shot in hurts still !!