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Their Stories

What v-safe registrants wrote to the CDC after their Pfizer or Moderna shots, in their own words. Each card is one person, with all of their free text. This page shows only the longer stories: the 116,000 people who wrote at least 400 characters in all. The text is as the CDC released it, except that email addresses and phone numbers are hidden. You get a random set of these people on every visit.

Shuffle

Pustule, Skin exfoliation and Injected limb mobility decreased

6KK-15369-45123

– Very large rash in my armpit of vaccinated arm and along inner arm. Day 1 of 2nd dose I was immobile and could not move my arm at all. Regained range of motion, but still having muscle spasms and weakness in the left arm.

– Rash in the armpit improving, still some pain and intermittent numbness in shoulder joint

– Rash in armpit has lightened but still itchy. Still have a weird numbness in the arm, and pain if I use the arm to prop myself up while lying down

– The rash has started peeling like a sunburn

– Pustules in my armpits and a return of the rashy flaking. This has never happened before the vaccine rash, but could be entirely unrelated to that first rash

– Chronic fatigue, nerve pain, cervical instability

– I had covid in May 2022 with stiff neck (severe, could not get out of bed on my own) joint pain, fatigue, inability to stay awake

Oligomenorrhea, Cold sweat and Dysmenorrhea

6KK-19440-92669

– Swollen lymph node at base of neck

– Swollen lymph node at base of neck on injection side still

– Swollen lymph node at base of neck on injection side

– Heavier and more painful than usual period which came 2 weeks late

– Swollen lymph nodes in armpit on injection side

– Swollen lymph node under the arm on injection side

– Swollen lymph node under the arm as well as Covid arm

– Swollen lymph node under the arm injection side and covid arm

– Swollen lymph nodes

– Swollen lymph node under the arm

– Rapid heart rate

– Cold sweats

Body temperature increased, Swelling and Erythema

6KK-22796-27459

– I have a soreness in my upper arm and aching through the upper right arm and upper right back area. It is a constant ache. Last night was bad, better today.

– I had very moderate aching and pain and stiffness in my upper arm near the top of the humerus/ next to the clavicle for two straight days and could not sleep for the extensive aching. Today, I took one Advil and have no pain. This is my third day from the vaccination date of 2/3/2021. I did not take any pain meds till this one Advil today. I am back to normal activities.

– After the first 12 hours, I experienced achy feeling and fatigue, no pain or soreness this time.

– VAMS has not put my 2nd dose in system. 3-3-2021 Moderna

– I had a large 3-5 inch red swollen area for 4 days After the shot, chills/ 99.7 fever on second day, chills for 1 day.

Allergy to chemicals, Pulmonary pain and Secretion discharge

6KK-28683-34810

– Allergies. My nose ran and I sneezed profusely for about 4 days. Mucus was clear like water. Since having chemo two years ago this happens from time to time when exposed cleaning chemicals. I had no exposure to anything this time.

– Lower back where Ive had two surgeries has been pretty sore. Probably not related to the vax

– Had a painful lymph node on rib cage on shot side. Also painful spot inside my lung for one day. Lymph node was sore to touch and without touch. Was completely better after 36 hrs.

Enterocolitis, Enterovirus infection and Lung opacity

6KK-37646-60042

– Lymphnodes are a bit swollen and tender

– Earache, swollen lymphnodes in neck

– Swollen gland in neck, mild sore throat

– Full body numbness decreased sensation, heart palpitations, feelings of passing out, strange rushes of heat with pin-needle feel to multiple areas of the body for extended periods x2 days now, to ER for CT scan and labs all normal As above in conditions section

– Headaches daily, still lack of feeling, specially in the legs

– Headache, everyday

– Caught Rhino Entero, i still have 'covid lung' in my right mid and lower lobe per CT 14 day recovery

– Continues issues with right lung. CT shows moderate ground glass throughout the right lung, started with a Pulmonary doctor on inhaled steroids follow ul October 1st.

Infection, Sinusitis and Back pain

6KL-12837-64595

– Right shoulder and upper arm sore and achy.Arm

– Mild but consistant pain on my left upper shoulder blade/ back area

– Sinus infection started 1/22/21. I was put on antibiotics on 1/25/21.

– Had infection and had to have oral surgery on 3/15/21.

– My left arm stays very soar and is painful when I stretch it out. It seems like arthritis maybe, just not sure. Breathing is different lately. Also, my nose feels like it is stuffed up all the time.

Bruxism, Panic attack and Pain in jaw

6KL-31846-79087

– My jaw hurts, the right side. I also had my injection on the right shoulder. My right elbow hurts as well

– My jaw still hurts like I've been grinding my teeth.

– Jaw soreness, teeth grinding.

– I found it hard to breathe at night for a few nights almost like a panic attack.

– Shingles, at least shingles like symptoms. My Dr. prescribed Valacyclovir.

– I again have severe and long-lasting muscle aches from the shot location. This time the booster.

Anal abscess, Endometrial ablation and Post procedural infection

6KM-17625-12462

– Extreme sensitivity to light and touch.

– I've had a few dizzy periods over the past 24 hour. BP was normal. Ear ache.

– Still a bit lightheaded or dizzy without cause.

– Sudden hormone imbalance issues. UTI, headache and muscle aches.

– Early menses that has lasted over 2 weeks. 1 urgent care visit and a follow up visit with my obgyn and I am scheduled for an US& biopsy with possibly a ablation

– Still having irregular periods with heavy clotting and in-between bleeding. Tests run and blood work was okay although anemic. US showing little explained reasons. US and uterine biopsy

– Had to go on progesterone for 2 months to stop uterine bleeding and then under go endometrial ablation surgery.

– I had a hysterectomy.

– I developed a perianal abscess. I have no history of GI disease that the ER doctors experience with this. Surgery was done and now I have a second infection at the open site and then I tested positive for C-diff a week and a half post-op.

Muscle disorder, Joint range of motion decreased and Injection site reaction

6KM-18535-06620

– Bad cramping in abdomen In person appointment

– Pain in muscle where injection was given, when lifting arm.

– About 2 months after vaccine, injection site started hurting deep into muscle. May be due to administration of shot. Still gets aggravated when i stretch my arm.

– My right arm muscle ( around injection site) has been having issues since 2nd shot, range and motion is limited. Area is between shoulder and bicep

Specialist consultation, Restlessness and Sluggishness

6KM-23730-69983

– Tender scalp

– Back pain.

– I have a heavy heart beat. I cant get comfortable. My heartbeat is so strong I cant rest. I feel pressure in my chest. Trouble resting I went to visit my cardiologist. My ins denied approval of a procedure he recommended

– Sluggish

– Heart ruthenium

– Tired - sleepy all the time. No energy.

– I am tired all the time now. I sleep longer hours and require a nap every day. I have constant constipation and have sniffles every day. I have accelerated heart rate from just minor activity. I have muscle aches and frequent headache.

– Constipation

Scleritis, Autoimmune hepatitis and Uveitis

6KM-23961-35265

– Uveitis and scleritis. These are new inflammatory conditions related to an previously diagnosed autoimmune disorder. I dont think it is related to the vaccine.

– Panuveitis of both eyes. Doctors believe it is a result of a previously diagnosed autoimmune condition.

– Scleritis, uveitis and pain in both eyes. I do not believe this is connected to the vaccination. Additionally I am being screened for my third autoimmune disease. Ill take this over COVIDeven if they are connected. Multiple doctor appointments

– Autoimmune hepatitis. Most likely related to my other two autoimmune diagnoses. Rheumatologist appt x 2 & labs x 2

Menopause, Tooth infection and Postmenopausal hemorrhage

6KM-25360-50929

– I'm having what seem like bad allergies and I don't know if that's related to the vaccine or not.

– Tooth ache, infection, in need of root canal

– Right after my first shot and right after this one, I started menstruating even though I've been in menopause for over two years.

– Tooth and jaw pain. Vaginal bleed (I've been in full menopause for 2.5 years).

– I'm still having trouble with my jaw and my shoulder. They are incredibly painful. I don't know if that's related, but it's definitely new.

Thrombophlebitis, Joint warmth and Osteoporosis

6KM-30057-30794

– Neck Pain, Toe cramps BOTH feet

– Toe cramps left foot

– Feels like Hot Flash type temp but no temp on thermometer

– The temp is like in my joints, not in forehead

– Woke with hot flash like symptoms which havent had for years, but only getting since vaccine (NO Temp)

– Both knee joints seem to be hurting morethats one of the places felt hot after vaccine

– Both knees getting more painful and hasnt gone away since got 2nd dose vaccine. Had Doctor phone Appt 5/17getting Labs & Knee Xrays which results will be reviewed at Appt on 9/8/21

– Rashpossibly from medication Hydroxychloroquine

– Thrombophlebitis In person office visit

– Been ~4hrs since vaccine - whole vaccination arm just feels slightly weak

– Pain in left collarbone, Temperature was in joints, not forehead

– Muscle pain only on injection side shoulder/neck

– Hot Flash, Cramps in feet last 3 days late PM/early AM

– Rheumatologist In-person Appt tomorrow

– Hands/arms joints pain, dry eyes

– Right hand bone pain around thumb & wrist area-will be checking on at Followup doc appt

– Hands and knees (joints hurt/inflamed) and eyes being checked after taking Hydroxychloroquinenot sure if issues related to vaccinations or not In Person Appts

– Yesterday Had pain in neck area inbetween right ear and chin

– I'm diagnosed w/Osteoporosis Have appt w/PCP

– Diagnosed with Osteoporosis In person PCP Visit

– Random leg nerve pain, calf cramps both legs

– Fri 11/18 weird tightness left forearm/hand-got day before too

– Vision not clear

– YESTERDAY started with cough/phlegm, then eyes watering, headache, nose started runny, fatigued tested COVID NEGATIVE. Today same symptoms plus temp 100.5. Will do COVID test tomorrow

Therapeutic response unexpected, Fungal infection and Throat tightness

6KN-24017-56377

– Oddly feel like my sinuses are clearing and my head feels lighter, less inflammation, I feel very happy, clearer thinking? Less pain than my normal days. Day 1 I did have slight tightness in my throat, very mild.

– Sinus pain, eye pressure, hot neck, migraine, tingling face

– Tenderness under arm on side of injection, hot neck, eye pain, migraine

– Tenderness under arm on side of injection, migraine, sinus pressure

– Upper back tremors middle of night at 4am, hot neck, yucky taste

– Yeast infection two weeks after the second injection, not sure if its related, I often get them when taking antibiotics. Dr office visit

– I experienced increased rapid heartbeat and shortness of breath walking hills and intense exercise.

Urinary tract infection, Back pain and Arthralgia

6KN-64386-80642

– Had a really bad cold right after Fathers Day weekend when we had eaten at a Mexican restaurant. It lasted about 3 or 4 weeks. Cough was terrible. Got tested for covid but it was negative.

– UTI Primary Health Care

– Feeling fair is because of pain in my hip and leg not from the Covid vaccine.

– I have had two serious back surgeries and am having pain again in my back, hip and leg but it is not caused because of the Covid shot.

– I have Covid. Tested positive on Tuesday 9/13/2022

– I had Covid. Diagnosed on sept 13. Very mild case. Took Paxlovid for 5 days. Tested negative on Sept. 18.

Staphylococcal infection, Bacterial infection and Tendonitis

6KP-10155-07063

– Staph infection in the nasal area. Possible fungal skin infection.

– Facial rash-but may be ongoing battle with a condition that started prior to vaccination

– Sinus infection, likely allergy related. In person visit with my ENT

– Sinus pain, congestion, heaviness in chest, fatigue.

– Tightness in chest - but I have asthma and was outdoors all day yesterday so suspect allergies are responsible.

– Heavier menstruation than normal. Created extreme fatigue.

– Tendinitis

– Viral infection, shortness of breath, bacterial infection, fungal infection, loss of voice

Gastroenteritis viral, Arthritis and Limb discomfort

6KP-16573-99455

– My arm felt heavy and my hand tingled the minute I got the shot. My hand still tingles.

– Moving my shoulder in a particular direction has hurt due to the muscle being unhappy about the shot. But now at the end of the day it's much better than it was this morning.

– Still have pain in my shoulder (not the injection site)

– First, I got pain and stiffness in my neck. About 4 days later, my left sacral joint he came inflamed. 3 Chiropractic treatments

– Stomach flu

Lip pain, Lip blister and Limb discomfort

6KP-22966-20538

– Slight light headedness

– Slight soreness and discomfort in the arm where I had the injection

– Headache for three days, intermittent nausea for five days.

– Saturday 4/30 into Sunday 5/1, I had diarrhea and threw up during the night. I experienced chills but no fever. I had a headache the 4/28. 5/1 and 2, I was somewhat fatigued. Today I am feeling better. Fatigue not as prevalent. Did not Covid test.

– I feel pretty good but I have a white circular blister on the outside of my upper lip. It has been mild to moderately painful. No tingling like a fever blister. I have applied Abbreva.

Paralysis, Cyst and Back disorder

6KP-36671-66195

– Lymph nodes

– Felt like I was getting a cold

– My whole arm still feels swollen and hurts to the touch at times.

– Bloated stomach. Gas.

– Very bad headaches and allergies. I dont usually have allergies. My doctor recommended that I go but I decided not to. Im in pain but I dont think its a hospital visit.

– Unrelated to my COVID-19 vaccine but I started chemotherapy last week so my body has a lot of side effects.

– Headache and dizziness

– I have lymphoma so Ive had chemotherapy treatment

– I have lymphoma and have chemotherapy treatments every 3 weeks. As far as I know none of my symptoms are related to the COVID-19 vaccine.

– Rash

– Headache and fatigue

– Headache, fatigue and backache but I was still able to do my normal daily activities just with pain.

– Stomach pain

– Mainly bad headache

– Headache and stomachache.

– Fatigue and cysts

– I had COVID-19 and you never contacted me.

Lip pruritus, Nasal pruritus and Ear infection

6KP-72851-62494

– Dizziness

– I feel spacy and my nose and lips are a bit itchy. I took Benedryl.

– My face, lips, nose and body are itchy so Ive taken Benedryl since thaw shot yesterday.

– Itchy ness. I am taking Allegra, Claritin and Pepcid Telephone call

– Itchy and taking 3 diff anti-Histamines daily. Regular clinic

– Hives. Taking steroids from Dr and antihistamines

– On Steroids for hives

– On steroids still for hives. Bruising where shot was given on thigh.

– Steroids wore off after 5 days and I had more hives, chills and fatigue so back on steroids for an additional 5 days.

– Influenza, ear infection, sinus infection

Laryngeal pain, Excessive cerumen production and Psoriasis

6KQ-18590-53407

– Coughing

– Tired, small coughing fits about once a day, through voice box slightly in pain-more likely related to coughing sneezing during vacation perios

– Rash on legs. May be psiriorious or sub dermic psirorious.

– Psiorsis that was very mild came out. Scalp, legs, groin and buttocks started to have mild signs. Talked to dermatologist and Im now taking Otezla due to the clobestinal foam would have to cover my body. Ears now affected causing much earwax to fo In person consults

– Increased psoriasis on body. Ever since I took the first Pfizer shot, it seemed to accelerate my symptoms a bunch. Now taking higher level medications to combat it.

Rash pruritic, Gastrointestinal disorder and Urticaria

6KQ-20838-78088

– Ive never had arm soreness like this!

– Light headed

– Severe cough and chest congestion. Shortness of breath. COVID test was negative.

– Severe itching and random welps all iver my body. Headaches.

– Unexplained, all over body itching that produces welts. Severe headaches. Gastrointestinal issues. Multiple visits with family doctor

– I am having weird rashes pop up and itching all over my body. Awful muscle and joint aches. Severe gastrointestinal issues.

Lip swelling, Taste disorder and Parosmia

6KQ-28789-98143

– Metallic taste in my mouth, very profound and odd... sterile or medication smell

– Felt like I got hit by a bus when I woke up... Sore and stiff when early morning

– Muscle spasms and whole body stiffness

– Hot to the touch where injection was given. Swelling of lips (injection site of previous lip filler) felt like the start of a fever blister.

– Extreme fatigue, sinus pressure/sore throat

– Upper Back/Muscle Pain

Muscle fatigue, Photophobia and Disturbance in attention

6KQ-29297-90894

– light vertigo

– Dizziness mod to severe

– Dizziness

– Muscle fatigue is sporadic, midday dizziness, increased head aches, and occasional to rare joint pains

– Phantom injections in varying locations

– The last few days experiencing dizziness, nausea, loss of appetite, muscle fatigue, increased light sensitivity Spots appeared on base of shaft around last check in, with no cause as have engaged in no initimate contact for over a year

– Fatigue, sporadic headaches, joint n muscle pain then that area is fatigued, loss of concentration and focus

– Headaches, muscle fatique stayed consistent, joint pain vary by day, increased sensitivity to light visually

– Residuals still left over. Tiredness and light sensitivity are varied and sporadic, increased headaches

– Persistent headaches, sporadic weakness, random sharp pain in head and/or torso, ears ringing a few momths ago maybe once or twice now increased to every day to every other day

Telemedicine, Abdominal pain lower and Secretion discharge

6KQ-32595-25810

– Chills are just occasionally. Headache is slight.

– Some days I experince a bit of a fever and am tired, othrr days not. It's not consistent.

– Dry cough, with some mucus.

– Still have a dry cough which won't go away. Again, sometimes with mucus and sometimes not. No other symptoms, such as fever, aches or pains, headache, chills nausea, etc. After a ZOOM visit with my PCP, I had a chest xray, and will have a CT scan on Monday.

– Still a dry cough with some mucos, but also a pain in my lower abdomen. Related or not, it is new.

– Still have the cough I've had for over 4 weeks, which showed up after the first shot.

– The cough I picked up after my first Moderna shot has never gone away. Some days my lungs act better than others. Today the coughing has been bad and the mucus coming up in bigger globs and darker color. Suggestions?

Muscle disorder, Visual impairment and Arthritis

6KR-46284-51931

– Problems with my hip flexors 12 sessions of physical therapy

– My arthritis has flared considerably w/every vaccination. Also coordinating w/the vaccines is increased problems w/my vision. So much so that I doubt I will get any additional shots as I won't have much of a life left w/o use of my hands & am blind.

– Worsening vision Have an upcoming Dr appt

– Escalating arthritis. Had been getting worse very slowly over time, but since the 3rd vaccine (Moderna booster) it is getting worse very rapidly. Also since that vaccine my eye sight is getting worse fast too.

Lip disorder, Muscle twitching and Sinus headache

6KR-78003-63200

– Muscle twitching in my lower lip, starting late yesterday.

– Lower lip still twitching, not as bad as yesterday.

– Lower lip twitching continues, worse at night.

– Lower lip trembling continues, not as bad as yesterday.

– Lower lip twitching last night, much better today.

– Lip twitching has stopped. Feeling much better now.

– Stuffy head and light headedness

– Stuffy head and mild dizziness continues. May or may not be related to the vaccine.

– Stuffy head persists. May be a sinus infection unrelated to the booster.

– Stuffy head and sinus headache persists.

Joint range of motion decreased, Skin discoloration and Blepharospasm

6KS-15423-48445

– Light headed

– Foggy

– Sneezing, runny nose, cough

– White spots on my skin, headache, Diarrhea, extremely tired

– Sneezing, plugged up nose

– Can't smell or taste, plugged up nose sometimes runny

– Lightheaded, eye lid twitching , dizziness, nose plugged up

– Eyelid twitching, stuffed up nose

– Eye twitching, bloody nose

– No smell or taste

– Eyelid is twitching, muscles are freezing up and painful, joints are not moving fully and pain

– My muscles and joints are sore and stiff. My eyelid twitch is still active.

– Muscular and joint pain, headaches blurry vision.

Ankylosing spondylitis, Upper respiratory tract infection and Brain fog

6KS-19181-08446

– Ears ringing

– Rash/hives past 3 days. Not suspected to be from vaccine but new, nonetheless. Unknown cause and resolving with multiple antihistamines and prednisone dose pack.

– Broke out in hives but think it was an allergy to a bush.

– Some off and on dizziness

– Aches, exhaustion, fever, congestion

– Congestion aches headache sore throat fever cough

– Fever, cough, congestion, aches, you name it I got it

– Ringing in my ears, foggy head

Relapsing fever, Telemedicine and Dry throat

6KS-22177-99968

– Tired, but doubt it is due to vaccine.

– Throat dry and scratchy; could be due to dry air in house as wind-chill is -27 outside. Also last Wednesday I was irritable, which is not like me.

– Re fever, may not be due to vaccine.

– I have symptoms of a cold; scratchy throat, a little stuffy, a little tired.

– Had a bad rash. I had a virtual doctor appointment. Possibly cellulitis. Was in antibiotic and also Prednisone. One week after end of meds, rash returned. Currently on Prednisone again. Today I felt dizzy and tired.

– I had a rash that spread to other areas of my body.

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