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Their Stories

What v-safe registrants wrote to the CDC after their Pfizer or Moderna shots, in their own words. Each card is one person, with all of their free text. This page shows only the longer stories: the 116,000 people who wrote at least 400 characters in all. The text is as the CDC released it, except that email addresses and phone numbers are hidden. You get a random set of these people on every visit.

Shuffle

Cardiac ablation, Weight decreased and Atrial fibrillation

6KA-31290-04838

– Relief!

– Onset of Afib. I'm in the ER. Also my heart has been racing for hours. It's serious. I'm being admitted to (b)(6) Center.

– I'm hospitalized dealing with what has become constant Afib, maybe brought on, but at least triggered by my Moderna booster Monday morning.

– Surgical procedure to correct Afib possibly caused by Moderna booster

– Afib returned for 2hrs last night. Also, more importantly, I filled out a complete report re: my negative reaction to the booster, but the form didn't let me put in my age, nor the hospital test results. I requested a phone call to fill in the blanks

– Afib and weight loss continue. I'm now forced to take 4 different meds that were not in my life before the booster shot: Metoprolol, Eliquis, Famotidine, and Ranexa. Post hospital cardiologist and GP visits and lab tests.

– Afib is again nearly constant. I'll likely have cardiac ablation in the next few days in the hope of stopping it. Again, I attribute the Afib as a negative side effect of my Moderna booster 3 wks ago. Thorough exams and blood tests at both GP and Cardiologist offices.

– Afib returned. I will need a surgical procedure called Ablation. For now I'm taking meds to alleviate the Afib, which saps my energy, sense of balance, and visual acuity up close; I need reading glasses. Doctor office visit.

– Afib came back. The drugs are working to control it, but this past week has been all about Ablation education. Gonna have that procedure. Office consult; ECG and other tests.

– Afib, until having an Ablation procedure March 3. See above.

Angina pectoris, Dysgeusia and Tinnitus

6KB-10636-80871

– Metallic taste in mouth

– Metallic taste is finally gone

– Metallic taste, woke up frequently with pain and nausea.

– Having a lot of pain.

– Brain fog and coordination issues. Those have been present since the first day. I've spoken to others that have the same issues even 2 weeks after second vax.

– Increased pain in legs and sharp pains in toes on left foot. Return of heartache which fluctuates between moderate and severe.

– Increased pain in legs. Continued fatigue. Worse headache.

– This is bullshit. I had my last vaccine on 4-16. I shouldn't be suffering from fatigue, headaches, tinnitis, muscle and joint pain. I wish I'd never gotten your vaccine.

Dressler's syndrome, Acute myocardial infarction and Coronary artery occlusion

6KB-18041-69875

– CARDIAC STEMI 07/27/2021

– Status post myocardial infarction as of 07/27/2021 date of last covid vacine 06/26/2021

– Myocardial infarct of left anterior desending cardiac artery 100% blockage leading to emergency stent placement status post 7/27/2021

– 07/27/2021 Myocardial Infarct 100% occlution of Left Anterior Desensing cardiac artery leading to emergent cardiac stent placement at Saint Charlse Medical Center and admission to I.C.U.

– Heart attack 4 weeks after second dose of Pfizer vaccine. Seeing cardiologist 08/31/2021 for follow up visit after cardiac stent placement.

– I already have several times

– Follow up echo-cardiogram in two weeks. Follow up EKG done yesterday 08/31/2021. Follow up appointment with cardiologist 12/07/2021.

Gastric disorder, Skin warm and Poor quality sleep

6KB-20990-55068

– The arm pain came back at day 8-9 after shot. It eased last night. In hindsight I should have noted moderate pain causing disruption to normal arm movement in daily activities. I wasnt unable but had to accommodate due to pain with daily movements

– No

– Skin is hot to touch but no fever per temp check

– Night sweats past 2 nights, restless sleep past 3 nights but improving

– A few minor gastric symptoms today-not really to diarrhea level

– Middle Back and side muscle and/or nerve aches-pains. Persistent and worse at night causing sleep interruptions. Im calling my doctor tomorrow as it still persists

– Shingles Went to my Regular doctor.

– head fog along with above symptoms that came in waves of different degrees; had to push through given work

Joint noise, Pruritus and Diarrhea

6KB-33507-22037

– My neck has been making a popping sensation since my first vaccine.

– Still have the popping sensation in my neck.

– Neck is still popping

– Neck popping

– May not be related, but I noticed hat the weekend after I got my booster shot, my head was itching like crazy. It took me a bit to make the correlation. Again, may not be related, but it did happen within two days of the shot and lasted about 2 weeks

– I had nausea and diarrhea a week ago today.

– I had Vovid in June.

Impaired work ability, Rash pruritic and Ear pain

6KB-64957-41978

– Rash turned into bruise and back into an itchy rash for two days and not just a rash now

– Contacted pharmacist to find out if symptoms are still okay. Was told that everyone has didn't experiences are different on how it effect each person. Was told not to go into work if symptom/symptoms are present next time scheduled to work if I get worse contact PCP. When I return to work come and see the pharmacist when better to return to work. Hopefully my symptoms will be gone tomorrow or the next day.

– Headache today cod be allergies

– Headache ear pain

Epiglottis ulcer, Oral herpes and Productive cough

6KB-84956-01475

– This is my 1st check in so: I felt arm soreness days 2-4 after vaccine. Days 6-11 experienced swollen/tender axillary lymph node on left arm, chills, diarrhea and stomach cramps, and fatigue. Lymph node is still slightly swollen now but nothing else.

– Dizziness

– Dizziness, mental fog, head spinning

– Starting to have outbreak of cold sores around mouth

– Hives elevated heart rate

– Faster heart rate, daily body temperature in general has been slightly raised (from 97.5 to 98.2 on average)

– Throat pain, productive cough, ulcer of the epiglottis

– Diarrhea, stomach pain, cough (went through 2 rounds of antibiotics)

Quarantine, Hypersomnia and Peripheral swelling

6KC-11342-46146

– Stomach pains and diarrhea for about 4 days

– Friday night I had vomiting for about an hour. Are nothing unusual it just came on all of a sudden then it went away.

– Still get headaches and nausea

– A bad hacking cough

– Let's and feet swelling snd hurt!

– Had another round of Covid! Home tested positive. Self quarantined. Bad cough, fever, loss of taste, slept a lot! Tested again 8 days later with a negative result.

Adnexa uteri pain, Ovarian cyst and Cyst

6KC-12768-40038

– Nausea within 5 min. Had headache prior.

– Mostly experienced overnight sleeping.

– Ovarian pain. Definitely a cyst. Occasionally had them but this one has been more severe than others. I do not have PCOS.

– Mental health

– Anxiety. Probably not correlated with the vaccine though.

– Anxiety. Have been seeing counselor for 1.5 years now.

– Ovarian cyst (have occasionally gotten before vaccine). Extreme fatigue occasionally.

Irritable bowel syndrome, Burning sensation and Myalgia

6KC-13584-52305

– Enlarged lymph nodes - neck

– Significant increase in joint and muscle pain, especially back, shoulders, hips and knees.

– Congested most of the time. Not sure if its related to the vaccine or just coincidental.

– Flare-up of chronic pouchitis

– I started having a "burning sensation" in my toes the day after I rec'd my booster and I've had episodes of this every day since then.

– Worsening of my chronic pouchitis and IBD

– Recurrent sinusitis

Arthritis viral, Arthritis reactive and Hypoesthesia oral

6KC-15520-88217

– Itchy all over, exhaustion, slightly numb tongue, weak, chills, some loss of taste & smell, low grade fever, aches all over, brain fog

– Tongue numbness, lack of taste & smell, exhaustion

– Had a very severe reaction to Pfizer vaccine #1

– itchy all over body

– Severe reaction to first shot (not this one so far). Would love to talk with someone to report.

– Sinus infection, as I think my resistance is down.

– Fatigue

– Reactive, post-infectious arthritis

Fear, Dysgeusia and Erythema

6KC-49879-39234

– Periodic Pain in the top left part of left foot

– I had a bad cold that I feared was covid thanksgiving 2021. A binax home test showed negative results and I still hosted dinner. None of my guests became sick so I guess it really wasn't covid though I was coughing with congestion for several weeks.

– After the 2d booster 5/5/22, my arm was red and sore for nearly 2 weeks. Then 5/18/22, I started to have a metallic taste in my mouth which is still present.

– Scratchy throat, coughing, sneezing and positive pcr test on day 2 of symptoms. Phone consult

CD4 lymphocytes decreased, Taste disorder and Dysgeusia

6KD-11956-81116

– A taste in the mouth

– Ever since receiving my third dose of moderna I have noticed that I have a continuing taste in the back of my throat and I have not had this symptom until receiving my covid vaccinations. I do have a compromised immune system CD4 count under 200

– Since my 3rd shoot, I have noticed a bitter taste in my mouth since about an hour after receiving 3rd shoot. And still experience it I believe it's been over around 4 weeks or so since receiving shot.

– I'm still having that bitter taste in the back of my throat since the third vaccination it seems like constantly having a bitter taste in the back of my mouth

Thunderclap headache, Breast pain and Arthritis

6KD-21339-11604

– Random itching at infection site. Strange rash pattern at the injection site too.

– Pain in my underarm area on the side vaccine was administered

– I still have the pain in my right breast which is the same arm that I got the vaccine in.

– Brain fog

– My lymph nodes have been swollen on the same side I had my booster. Same thing happened with the second moderna shot. Very painful.

– Negative COVID test though I had COVID symptoms. Diagnosed with Bronchitis

– Arthritis in hips. Thunderclap headache.

– More frequent headaches.

Tongue geographic, Nail disorder and Onychoclasis

6KD-30958-27947

– I did have to get up at 4:00 AM to take Advil for a headache. That is very unusual.

– Geographic tongue

– Abdominal cramps, diarrhea, fever.

– Abdominal cramping and diarrhea, night coughing.

– Congestion, slight headache and fatigue.

– Covid

– I cannot grow fingernails since I had COVID the first week in July. They split and tear. My toenails are also not growing at a normal rate. My feet sweat and I still have geographic tongue.

Ear pruritus, Atrial fibrillation and Lethargy

6KD-31344-17227

– 1st checkin. Lethargic later in day I received 1st dose. 1 wk later very lethargic & tired that day. Past Thurs. experienced some vertigo & today I am very tired & had some minor dizziness possibly due to other medical conditions.

– Fatigue & lightheadedness due to atrial fibrillation.

– Injection site area that is red also feels warm & has for the last couple days although I didn't think to note it previously.

– Starting 11 days after booster, itchy head wrists, palms, ears, some hives on forehead & around hairline at back of neck. Some other areas of itchiness but mostly as aforementioned. This is the 3rd day. Fexophenadine & cortisone cream, some relief.

– Covid

– My palms itch

– Neck & lower back pain. I don't relate this to my booster.

Toothache, Tachycardia and Diarrhea

6KE-16392-67780

– Teeth hurt

– My normally fine resting heart rate of 55 to 60 has shot up to 141. Sleeping or awake heartbeat 141 that's just not right. I don't think it has anything to do with the vaccine but I'll report this. Also had violent diarrhea for no apparent reason.

– I got my second booster Monday 7/11/22. I was so horribly sick I almost went to the ER. And I certainly couldn't have picked up a phone to answer these questions. It was the worst vaccine reaction I have ever had in my life. I don't think I want to

Telemedicine, Injection site discoloration and Body temperature increased

6KE-24897-47060

– My upper arm was getting sore last night (after I answered the survey), but it was less sore when I woke up this morning, and I don't feel any pain right now.

– Headache, joint and muscle sore, and higher temperatures than usual (usually 97.88F, now 98.96F) for last 3 days.

– I got my arm pain right after I got the 2nd shot, then I immediately took Tylenol. After that, my arm is fine but I feel sleepy now.

– The spot I got first shot is redness, and the spot for second shot is bruise.

– The spot I got the vaccine is still blue.

– Fever and sore throat. Took home Covid test twice, results were negative for both time. But virtual health doctor said I had Covid because my husband had it and his test result was positive.

Gastrointestinal bacterial overgrowth, Major depression and Feeding disorder

6KE-25464-05755

– Sore throat

– 48 hours of extreme fatigue, body aches, headache. No fever, headache likely due to not having caffeine for a day.

– Currently sick. Cough, headache, fatigue, chest pain. Symptoms started Saturday night with sore throat. Had progressed to body aches and brief fever of 99.6 for about two hours on Tuesday. Covid test Tuesday was negative. Drive through Covid test

– Bad stomach bloat, led me to not eat and I was in so much pain I had to lay down, could not do anything. Lasted about 8 hours, then residual sore stomach and cramping. I took some gas relief meds, alka seltzer, and smoked weed, and used a heating pad

– Likely SIBO

– Morning sore throat d/t colder temps

Therapeutic response unexpected, Rash pruritic and Rash

6KE-28619-99450

– No, I feel great, and so thankful to be halfway vaccinated!

– I have had a small amount of soreness at the site of my vaccination.

– Yes. This is not a bad thing, but I feel that since my vaccine I have had a keener sense of smell. More acute. Ive noticed this several times.

– I have had a slight rash on my back since around the time of the first shot but I did not connect it with the vaccination and Im not at all sure it is related. It is slightly itchy. I had quit using the same fabric softener thinking it was probably that, but thought I would mention it.

Breast pain, Mobility decreased and Musculoskeletal stiffness

6KE-28899-46970

– Pretty sore in area of injection

– Sore neck, very sore under armpit extending out towards side of breast making it difficult to lift arm

– Breast, underarm and shoulder pain maked it impossible to lift that arm

– I still have pain that is invite shoulder and goes to the underneath of my arm pet making it very difficult for me to raise my arm

– I have pain under armpit and on side of breast....i will never do this again

– Sore armpit, breast and back of neck stiffness

– Infrequent waves of dizziness when i bens over or move too quick... I also still have swollen live nodes by my chest by my collar bone and by my neck I went directly to my doctor's office

Injection site muscle weakness, Hypoacusis and Injection site reaction

6KE-33466-41693

– Lethargic

– Joints still sore from first shot. Muscles in legs feel weak.

– Brain fog

– Headache and fatigue

– Feeling of soreness but mainly not as much power in top part of arm where shot was given.

– Tenderness and a feeling of little muscle power in injection area of arm.

– Off and on abdominal pain with this shot

– Breathless

– Very tired with a heavy feeling.

– Shot area in arm sore and not full power in addition to redness and itching in shot area and entire arm.

– Extreme pain in joints after shot for48 hours, fever, exhaustion

– Relapses of severe aching, headache and low fever.

– Bouts of same symptoms I had after booster. Extreme joint pain and shivers. It passed once again after 24 hours.

– Stuffy nose Throat irritation Heavy feeling Sore joints

– Sinus congestion, cough, sore joints, low fever

– Very sensitive to hear, diarrhea and nausea. Headache with nausea. Stuff around injection site

– Indigestion issues

Weight decreased, Impaired work ability and Thirst

6KE-64862-86360

– Increased heart rate. Increased thirst

– Elevated heart rate

– Still thirsty

– Had to go on s beta blocker due to heart rate issues HR was 166

– Tired, headache. Anxious

– Had ekg with irregularities Outpatient tests on multiple days

– Hospitalized since 2/14/21 due to increase HR and BP, which began after the first shot. I began medication metoprolol 25 mg to help on 1/21 and an increase on 2/5 to 50 mg. I just finished my 5th iv fluid bag.

– Hospitalization with heart issues. Appointment with cardiologist in neighboring city tomorrow. I was instructed by my team of doctos to not get the second shot due to all these symptoms occurring aftwr the first. Specialist appoimtments

– First react was vac going in L arm, it felt like it was trying to push it out (nurse verify because she felt it on her end, she said I guess your body didnt want that and we laughed (get my flu shots yearly and never an issue). Not so much this time

– I am no longer able to work. I went to (b)(6) clinic and saw restorative neurology, gastro, allergyband internal medicine. I developed a severe rash and had a skin biopsy done as well as upper and lower scopes with biopsies. I have lost over 40 #

Anaphylactic reaction, Throat tightness and Pharyngeal swelling

6KE-98696-01044

– Throat closure - administered an epi pen shot on site.

– Throat swelling

– Continued throat swelling (Went to ER day of shot, not today)

– Continued throat swelling For throat swelling day of first vaccine.

– Throat swelling (continuing from anaphylactic/allergic reaction post- shot) Emergency room visit directly after getting shot. Not since.

– Throat swelling Went to ER directly after shot due to throat swelling/allergic reaction

– Continued throat swelling

– Allergic reaction - throat closure

– Rash on arm and stomach pain.

Arteriosclerosis coronary artery, Implantable cardiac monitor insertion and Lung opacity

6KF-24528-52031

– Had chest fluttering blacked out for a few seconds and a cardiac loop recorder was implanted Implant of recorder

– Getting over a really bad cold, possibly a sinus infection. No fever

– Chills fever plugged head fatigue tested COVID positive

– Very mild tenderness in arm by injection

– Mar 2022 CT of lungs show normal heart but a new opacity on lung. June 2022 CT lung opacity is gone but now heart is enlarged and moderate coronary artery atherosclerosis. Have appointment with cardiologist on July 11

– Scratchy throat, runny nose headache

– Tested positive again late July with Covid

Nerve block, Facial nerve disorder and Trigeminal nerve disorder

6KF-31065-95237

– Ear pain, pain in my facial nerve that has been affected by shingles in the past, problems with hearing in that affected ear

– I still have some inflammation of the nerves that were once affected by shingles on the right side of my face--eyelid is a bit droopy, ear has some pain and tinnitus with some hearing loss, and some decreased sensation of the right cheek and right side of my mouth.

– Still pain and problems with facial nerves once affected with shingles. Also, eyes are really red, scratchy, and painful.

– Scratchy, red, painful eyes, and still having issues and pain in the facial nerves once affected by shingles.

– Trigeminal nerve pain, ear pain and whooshing in my ear, drooping eyelid, eye pain, headache. Ulnar nerve pain, also where I had previous shingles virus.

– Trigeminal nerve pain and ear pain

– Anorexia--not hungry, no appetite

– Nerve pain from base of skull, down arm, elbow, wrist, hand, and pinky finger. Also, right side of face showing some drooping of eyelid.

– Rash on face, scalp, chest, neck, back. Looks like measles but dry and itchy.

– I had shingles where I developed Bell's Palsy. Drs say when I had the Bell's Palsy with the first vaccine on March 18th, it was shingles with no rash.

– Occipital Neuralgia from shingles after the 2nd and 3rd vaccinations I received an Occipital nerve block

Stomatitis, Confusional state and Injection site bruising

6KF-92296-89067

– I am concerned the second doze Will be worse Yesterday I had confusion and anxiety and could not understand why. Is that a normal response?

– Migraine

– 6 weeks of sores in mouth, running nose and sinus and sore throat and tested positive for covid 19

– Shoulder painful, bruise where shot injected, no redness or swelling near injection

– High blood pressure my husband and i both had booster and now both have very high blood pressure readings is there any reports of this

Dizziness

6KG-12757-62252

– The day i received the vaccine I had two, very brief (1-2 seconds) of woozineess in my head, very mild. Difficult to describe as I wasnt dizzy and completely aware of my surroundings, but there was definitely a wave of something. I have not had the feeling again since.

– I have Lupus and consider my symptoms to be mild (currently unmedicated). However, the 2nd week after 1st shot I noticed symptoms increase (medium). Could be coincidence but thought I'd share in case there's a correlation.

– Since receiving vaccine lupus symptoms have accelerated significantly in the past 2 weeks. Prior to receiving vaccine my condition was very mild, but much more profound now.

Discharge, Mobility decreased and Paranasal sinus discomfort

6KG-26486-88868

– I did great, then woke up today with pain from my shoulder to the tips of my fingers.

– I could not lift my arm this morning. Not sure if its a rotator cuff problem, or shot. I saw my pcp, and she gave a decadron shot and prescribed steroids. Ive been alternating heat and ice. This has helped quite a bit. Primary care physician in office

– Soreness not as severe as yesterday. Can lift my arm today and much less pain.

– Stuffy nose, sinus pressure, drainage, headache Phone call to family dr

– Palms itching

Blood thyroid stimulating hormone decreased, Arthropod bite and Thyroid disorder

6KJ-21642-98623

– I thought I had bug bites from working in the yard Saturday. Today I realized its a rash from the vaccine.

– My thyroid TSH level has declined rapidly but I dont assume its connected to the COVID vaccine.

– Fatigue and achiness, but I dont think its related to the vaccine.

– I have been diagnosed with Achalasia and have surgery on Monday. My thyroid level is also extremely low and I have an appointment with an endocrinologist in August. Doctor appointment

– Doctors still trying to get my thyroid in the normal range. Not connected to vaccine.

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