Their Stories

Multiple sclerosis relapse, Multiple sclerosis and Sinus headache

2.17.2021 – MS

2.18.2021 – Just MS problems

2.20.2021 – Its MS symptoms

2.21.2021 – A lot of the symptoms I had before the vaccine from MS I had headaches before vaccine from MS Im fine with injection

2.22.2021 – Sinus headache

2.23.2021 – Just depressed over medical health conditions

2.24.2021 – I had MS injections today causing migraine thats all

3.18.2021 – Severe headache

3.20.2021 – My neurologist said its MS related Im having a flare up due to vaccine reactions

3.22.2021 – Vision

3.23.2021 – I have MS and has been in a flare up since I got the vaccine its not the vaccine that caused it it was some of the reactions that did .

3.24.2021 – MS flare up continuously

4.21.2021 – Migraines from occipital neuralgia and my neck probably my MS flaring up

Dyspnea exertional, Eye swelling and Injection site rash

4.2.2021 – Sore throat

4.4.2021 – Unusual allergic reaction on Thursday. I have no food allergies but both eyes swole up as though I had been in a fight. A rash of bumps of different siges appeared on the left arm where both shots were given. The last shot was on the 29. This happened 72 hours after the shot. I went to emergency the next day. kept overnight

6.28.2021 – Red, swollen calves and feet for about a week; with hampered breathing and cough. Presently on my way to emergency.

9.28.2021 – Lymphodema and respiratory problems have worsened

3.30.2022 – Very short of breath with any movement. Swollen legs. More than usual. Doctor visit in office.

Musculoskeletal pain, Throat tightness and Pain in jaw

4.5.2021 – Sudden onset of Hives, heavy weight on chest, pain between shoulder blades, high blood pressure, pain in right side of neck into jaw and ear

4.8.2021 – Pain between shoulder blades, anxiety, chest tightness, minor throat constriction

4.16.2021 – Severe headache x1 day; anxiety x3 days; nighttime cramps involving calves and feet x3 nights

10.1.2021 – I will not take 2nd shot. After 1st I had 2 days nausea followed by sudden onset of: hives, interscapular pain, pain in neck&jaw, throat constriction, dry mouth, high BP (162/109), chills & shaky hands. 2nd wave of same 3 days later. CT scan: No PE.

Rash erythematous, Injection site reaction and Rash pruritic

2.23.2021 – 10 hrs after the vaccine I felt very nauseous for 3 hours and had chills. 9 days after I got a red, hot, and itchy swollen rash on my arm about 5 below injection site. It grew and remained for a week until it gradually went away.

3.12.2021 – About 10 hours after the 2nd dose I started developing that covid arm rash at injection site. The next day I felt tired and had a headache. 2nd night I had a fever and chills for about 4 hours. The rash lasted a week.

Red blood cell transfusion, Red blood cell count decreased and Transfusion

4.18.2021 – Shortness of breath. Coughing. Fine if I do nothing, but if I get up and do anything, I start coughing. Did lab work. Red blood low, platlets low. Several others low. Olan to call dr tomorrow.

4.23.2021 – Had to get 2 units of blood. Was very fatigued and short of breath. My hemoglobin and red blood count was very low as well as my platletts.

4.30.2021 – Red, white, cells very low and continue to get lower. Had 2 units of red blood. Platelets ver low also. Have had bone marrow biopsy and cat scan. Severe anemic with no known reason to be anemic. Very weak.

5.7.2021 – Looks like I will need a bone marrow transplant very soon. Getting into (b)(6) cancer on the 17th. My bone marrow is not producing red, white or platletts. Not in good health at all right now. Cancer center

6.26.2021 – Carol passed away 6/15/21. Blood cancer unrelated to covid or vaccine.

9.30.2021 – My wife carol passed away from cancer

Sleep paralysis, Paranoia and Tenderness

2.7.2021 – my hands are itchy, not sure if related

2.8.2021 – itchiness, mostly in hands/arms and some other random spots. I havent changed my routine in any way so not sure if it is related at all

2.9.2021 – head is mostly itchy now but probably not related to the vaccine

3.2.2021 – itchiness on head, some fingers/toes and spots where I have tattoos (wrist/ankle)

3.4.2021 – woke up the past two nights with weird chill/tiredness. also weird sense of paranoia last night, probably not related and maybe sleep paralysis, but definitely did not sleep through the past two nights

Edema peripheral, Lymph node pain and Nasal congestion

5.3.2021 – Swollen lymph node underarm (L) // minimal pain

5.5.2021 – underarm lymph node (L) still slightly swollen and mild pain

5.6.2021 – Swollen lymph node under (L) arm - minimal pain

7.3.2021 – Stuffy nose and sore throat that is most likely unrelated to my Covid vaccine

10.5.2022 – Possible swollen lymph node under injection arm (L)

10.6.2022 – Underarm lymph node still swollen on injection arm (L)

10.7.2022 – Underarm lymph node still swollen (L)

10.8.2022 – Underarm slightly swollen (L)

Dermatitis, Breast feeding and Irritability

2.5.2021 – Breastfeeding - 17m/o with diarrhea & increased irritability x2days, but may be cutting canines

2.10.2021 – Scalp dermatitis worsening since vaccine but confounding variables, likely unrelated to vaccine itself

2.25.2021 – Mental fog

2.27.2021 – Swollen axillary lymph node

2.28.2021 – Axillary lymph node swelling

3.1.2021 – Unilateral axillary lymph node swelling

3.17.2021 – Posterior cervical lymph node swelling (opposite side of injection) - noting bc of unilateral axillary lymph node swelling s/p injection, though likely unrelated

3.31.2021 – Ongoing mild lymphadenopathy

12.11.2021 – Unilateral lymphadenopathy

12.12.2021 – Unilateral axillary lymphadenopathy - improving

12.13.2021 – lymphadenopathy, improving

12.16.2021 – Very very mild lymphadenopathy, continuing to improve

12.30.2021 – Rhinorrhea, postnasal drip

12.10.2022 – 1st (and only known to date) COVID infection on 8/5/2022. Return of unilateral axillary lymphadenopathy after most recent booster 3 wks ago which has since resolved.

Injection site warmth, Hypoesthesia and Neck pain

2.18.2021 – Injection site warm to touch, thermometer on forehead 97.5 on arm at inject site 98.6. (My normal range is 97.5 or lower).

3.2.2021 – Swollen lymph node on left clavicle, same side as vaccinated.

3.18.2021 – Continued swollen lymph node from 1st vaccine, 2nd vaccine aggregated area; feels sore.

3.19.2021 – Swollen lymph node collar bone, pain going neck.

3.21.2021 – Swollen lymph node, collarbone left side (same side as shot).

3.22.2021 – Swollen lymph node, left collarbone (shot left arm).

3.23.2021 – Swollen lymph node left collarbone (shot left arm)

4.30.2021 – Swollen lymph node, left side neck. Numbness in face and areas of left leg.

9.16.2021 – Numbness and tingling on head, face, neck, and legs that come and go.Continue to have swollen lymph node on neck. (Left side)

Immunodeficiency, Mobility decreased and Pneumonia

1.21.2021 – Arm that was injected oddly flared up for a good 48 hours. I experienced soreness not as extreme when I first got the shot, but was tender in the area that the shot actually took place and it was swollen could not raise arm as well.

2.12.2022 – Caught Covid during holidays with all symptoms and pneumonia. Was almost hospitalized due to immuno compromised state. Recovered from antibiotics, steroids and other meds

12.17.2022 – Coughing and congestion

Agitation, Mood altered and Nervous system disorder

3.4.2021 – Have Multiple sclerosis, asthma, and often have alergic reactions, but no problems so happy about that.

3.5.2021 – Feel sort of disoriented

3.6.2021 – Since I have MS I am not surprised since my body is in a small war.

3.11.2021 – My MS is flared from vaccine, I did expect that. not routine, leg cramps, weird nerve sensations

3.18.2021 – I have MS. When I took my Beta-1a interferon shot a week after which resets my immune system, fever over 101 that would not go down, skin burning off feeling, spasms in spine, legs very swollen painful neck glands. 36 hrs later started to subside

4.3.2021 – I believe the vaccine has stirred up my MS, I have had a bit of an exacerbation since the first vaccine and I am usually very steady about not having them.

4.9.2021 – Had lots of leg cramps over night. Been rather agitated, mood sorta altered I think from the shot.

5.20.2021 – Fatigue

7.7.2021 – Had a horrible sinus, ear and lung infection for three weeks. Going to dr tomorrow again, two rounds of antibiotics and maybe again

Joint injury, Arthropathy and Sinus headache

10.15.2021 – Muscle aches all over, today after getting booster shot yesterday.

5.23.2022 – Today I've had a bit of a sinus headache and felt a little tired. Could be allergies.

7.18.2022 – Something has happened to my right knee. Has bee painful, especially whenever I lie down, for several weeks. Working with sports medicine doc very little relief so far.

10.17.2022 – Bashed my right knee causing bone-on-bone contact between patella and left side of joint. Have had a shot of Duraline and a shot of steroids.

Pulmonary edema, Edema and Discharge

5.2.2021 – Sniffles, runny nose, mild sore throat

5.3.2021 – Cough

5.4.2021 – Night sweats (last night)

5.15.2021 – Chills

5.29.2021 – Back ache, sniffles, soar throat

5.30.2021 – Slight cough and soar throat

6.2.2021 – Irritating cough

6.3.2021 – Cough, sniffles popover shortness of breath

6.5.2021 – Cough,possible shortness of breath

6.12.2021 – Hospitalized w/adema, shortness of breath, fluid tapped (lining R lung) Paramedics

11.30.2021 – I received the booster shot on 11/22/21 because I am immunocompromised, the next day I felt pain at the site and had chills for a few days

12.7.2021 – Had cough/chills

12.20.2021 – Dizziness, cough, chills

Laryngeal edema, Adverse food reaction and Swollen tongue

12.21.2020 – Very mild lips tingling, back of tongue, each side. Gone in 30 min.

12.22.2020 – Lip and tongue swelling. Very mild, but a little concerning. Comes in waves, last 30 min to the second, the swelling gone. Any information on this?? How long will last? Will it get worse? Does it need to be treated??? Call to pcp, no response. May go to ED.

12.26.2020 – Intermittent mild swelling of lips tongue larnyx x 6 days

12.27.2020 – Very mild period swelling of lips, tonque and throat persist. Comes on quick, only last fir few minutes now. Am still on prednisone and antihistamines.

12.28.2020 – Continued very mild swelling, starts in the afternoon, very short lasting. Tapering prednisone. Any feedback on what others with anaphylactic reactions are experiencing, what to expect, would be helpfull.

1.11.2021 – Aches chills x days, day 14 & 15 after vaccine. Now, fatigue, slight headache off and on. Covid test 1/6, negative.

1.18.2021 – Day 28, first day since vaccine with almost no symptom. Mild afternoon fatigue, better than previous days. One short ting of neck pain. No mental fuzziness. 3pm my time, hoping this nightmare is coming to an end.

12.21.2021 – Since the first vaccine i now seem to have similar mimd symptoms when eating shrimp and a type of indian carrot dish- lip swelling, cheek swelling, throat tightening, with carrot dish only, immediate nausea.

Autoimmune thyroiditis, Eructation and Sensation of foreign body

1.27.2021 – During the day I had stomachache and lose stools. I also had sore thighs and arms. I had chills all day and my body felt flush or internally warm maiming in the evening. At 4 pm I became nauseous. At 6 pm my nausea went away, my throat and nasal cavity felt warm and odd like I had talked a lot and my throat felt odd. I also got a bad ear ache on the left side which felt as if it was draining to my left lymph node. My headache increased to moderate. I took one Tylenol extra strength 500 mg which helped with the headache, ear ache and my throat feels almost back to normal along with my nasal cavity.

1.31.2021 – Prior to the vaccine I was getting heart palpitations due to my hormone therapy. I feel that the vaccine exacerbated the anxiety causing what felt like heart palpitations. I did get my harmon pellet three days later and the palpitations pretty much went away.

2.23.2021 – My left ear kinda hurts but that was before the vaccine.

2.27.2021 – Sore throat, I think due to allergies.

3.1.2021 – I feel a lump in my throat and if feels as if my thyroid is now irritated. I also feel like a have reflex but without the reflex. I have also been burping a lot and I also had a sore throat after I got the shot. My lymph nodes feel like they are draining and feel weird. I do have Hashimotos.

3.2.2021 – My Hashimotos is now an issue. I have felt a lump in my throat due to goiter being swollen. I have had to increase my thyroid medication. I also had stomach aches and my left leg was achy. I have also had a mild sore throat that is getting better.

3.24.2021 – Fever blisters on lip more often than usual and eczema more often than usual. I also had itching around the arm site that went away.

2.23.2022 – I want to report that literally 24 hours after I had my Moderna booster I had a kidney stone flare up.

Edema peripheral, Lymphadenopathy and Respiratory tract congestion

3.19.2021 – Left arm pit swollen bad

3.20.2021 – Left armpit still swollen and filled with fluid

4.17.2021 – My collarbone lymph nodes are swollen on each side

4.18.2021 – My lymph nodes are swollen in my collarbone on both sides

4.19.2021 – Lymph nodes on both sides collar bone still swollen the size of marbles

4.20.2021 – Collarbone lymph nodes not as swollen

4.22.2021 – Bad head and chest congestion... took rapid spit Covid test at county health dept today. Sent in and should have results back in 24 hours.

Sensitive skin, Bronchitis and Migraine

3.17.2021 – Yesterday, my skin (not at the injection site) felt very sensitive, like my towel was extra rough. Nothing painful, just sensitive, like I had a mild sunburn.

3.29.2021 – I think all it is a a spring cold. Stuffy/runny nose, slight cough, but not worsening. I dont think its covid or vaccine related.

7.5.2021 – Ive had a runny nose, slightly scratchy throat, and headaches, on and off for a week or so. Generally feeling healthy, but also have something recurring and bothering me.

4.26.2022 – I just haven't felt great for a while. I've experienced two migraines in 5 days, after around 4 years with no migraine worse than those needing advil and a bit of rest.

5.17.2022 – I have a terrible cold, but have done two home covid tests and they are negative. I've forgotten what it's like to have a common cold!

7.7.2022 – A very bad cold that turned into bronchitis. I was surprised it wasn't covid. A chest X-ray and CT scan

Aphonia, Sinus congestion and Throat irritation

4.2.2021 – I have lymphedema after lymph node removal and radiation for breast cancer. My LE therapist today found that I had much more congestion and fluid than normal for me. Im 4 days post second shot.

4.26.2021 – Swollen lymph nodes (mild) under jaw on vaccination side. Maybe three days so far.

10.23.2021 – Sinus congestion, coughing

7.14.2022 – Upper respiratory, coughing, Small amt chest congestion, very fatigued. No fever. Negative at-home Covid test twice. Did not feel horrible, except for coughing (then scratchy throat) and fatigue. Lasted 2 wks. Lost voice at 1 week.

Wheezing, Swelling and Asthma

4.9.2021 – I needed 2 puffs of albuterol but I don't know if it's related.

4.21.2021 – Periodic headache requiring tylenolPeriodic wheezing requiring albuterol

4.28.2021 – Numb, tingling in leg and foot. Slightly swollen.

11.4.2021 – Wheezing, cough, runny nose. Needed to use Albuterol

11.5.2021 – Same as yesterday - cough, runny nose, need to use Albuterol

11.7.2021 – Continue to have wheezing, cough, running nose. Still need to use Albuterol

11.8.2021 – Continue wheezing, cough, running nose, need Albuterol

11.9.2021 – Continue with wheezing, cough, runny nose, need Albuterol

11.16.2021 – Had to see doctor for asthma flare and added steroid inhaler to manage

9.10.2022 – Wheezing so needed Albuterol

Arrhythmia, Heart rate irregular and Upper-airway cough syndrome

1.29.2021 – Had irregular heart beat. Escape beat every 2 an 3 beats occurring every 15 and 45 sec. felt dizzy from sitting to standing. Started around 2 pm. Slept at 9 pm w/ arrythmia. Woke up at 5am. Symptoms gone

2.5.2021 – Chills

9.28.2021 – Pain injection site

3.18.2022 – Debilitating pain in right shoulder since February . Occasional shooting pain in right upper extremity. Productive cough and nasal drip for 3 day now. Taking TylenolPM 500 mg prn q 4 hr.

Edema peripheral, Rash and Lymphadenopathy

2.22.2021 – Headache last night - only lasted 2 hours

12.19.2021 – headache started 6 hours after vaccination and only lasted 6 hours

12.21.2021 – noticed swollen underarm lymph area in arm that was vaccinated

12.22.2021 – slight swelling in armpit lymph area in vaccinated arm

12.23.2021 – mild swelling in armpit lymph area of arm that was immunized

12.24.2021 – slight swelling in armpit lymph area in the vaccinated arm

12.25.2021 – slight swelling in armpit lymph area in inoculated arm

6.4.2022 – Swelling in underarm area of arm that was vaccinated

6.6.2022 – swelling in armpit lymph area in the arm that was vaccinated

11.3.2022 – swelling in underarm lymph area of vaccinated arm

11.5.2022 – slight swelling in armpit lymph area of vaccinated arm

Disease progression, Aortic thrombosis and Living in residential institution

2.2.2021 – Wheeze

3.20.2022 – Progressing dementia and fractured hip- nothing related to the vaccine

5.23.2022 – Worsening peripheral vascular disease- but it's been longstanding

5.30.2022 – Thoracic and abdominal aorta thrombus- progression . Unable to heel heel sore but not surgical candidate

6.20.2022 – Nothing to do with COVID or the vaccine. Fell and broke hip, one UTI after another , progressing dementia, and bed sores not healing bec of thoracic and abd thrombus and not a surgical candidate Presently in skilled nursing

Dyschezia, Head discomfort and Sinusitis

2.28.2021 – Last night (after responding to your survey) my temperature went up to 101 and I felt achy all over. I took 2 Tylenol, slept well, and was fine this morning (temp 97).

3.1.2021 – I have a migraine, but its not related to the shot. I usually get a migraine each month around this time.

10.29.2021 – Sharp pain when have bowel movement

5.28.2022 – Congestion, pressure in head, general aches. No fever. Took two rapid tests that were negative. Went to Urgent Care and was told it's sinusitis. Got a PCR test at Urgent Care but no results yet.

Sinus pain, Rash pruritic and Injection site swelling

4.23.2021 – The 1st day and 2nd day headache, took tylenol, also had a pain like on my right side sinus straight line going up and down like a line until i took Tylenol with the headache. I was pretty achy in my joints and my arthritis elbow Thursday, Wednesday night I noticed one small itchy bump near the injection area, the next day at 5 pmi had several itchy bumps, similar to a poisen oak rash, they were not very visible to me. I could only feel them. But tiday there are tiny spots but they are no longer itchy and are almost gone and flat not bumpy. No more headache like the 2nd day, and 3rd day was the worst.

4.26.2021 – I take 1.5 trulicity shot 1 time weekly, and 1000mg metformin daily, i also take levothyroxine as i no longer have a thyroid, and had 1 parathyroid removed in 2016, and I take a blood thinner for blood clotting disorders.

Abdominal distension, Taste disorder and Somnolence

1.30.2021 – Feeling loopy since yesterday. Very sleepy.

2.5.2021 – Pain in left arm and shoulder where shot was administered.

2.20.2021 – Dizzy

2.21.2021 – Sleepy

8.20.2021 – About two weeks ago - Severe earache; had slight body aches and lost taste for a few day. Maybe 5-6 days. My taste is still off. Tested but was negative.

10.1.2021 – Shot in L arm. Pain from neck to fingers. Left leg too.

10.4.2021 – Arm still hurts and feels stiff at times.

10.6.2021 – Just stiffness on my upper left arm

10.7.2021 – Earache but I think it's related to having to wear face mask longer during the date.

12.31.2021 – Slight body aches; allergy symptoms; took home rapid test = negative

4.1.2022 – Loss of taste; mild headaches

4.16.2022 – Can't tell if the nausea is from me being diabetic or the vaccine.

5.20.2022 – Diarrhea and bloating; nausea

10.3.2022 – Loss of taste

10.4.2022 – Taste has been affected

10.5.2022 – Taste is affected

10.6.2022 – Taste is still affected

10.7.2022 – Taste still affected

10.14.2022 – Headaches and taste still affected

12.30.2022 – Swollen nodes in neck. Ear ache.

Polyarthritis, Sjogren's syndrome and Hyperthyroidism

12.30.2020 – Lightheadedness

3.5.2021 – Never had problems with thyroid before; now diagnosed with subclinical hyperthyroidism (low TSH).

4.25.2021 – Migratory polyarthritis involving hips, ankles, wrists, and fingersAbdominal pain, worsening acid refluxPlan is to see doctor beginning of May

7.26.2021 – Polyarticular migratory joint pains - found to be SSA positive and diagnosed with Sjogren syndrome. Additionally had subclinical hyperthyroidism which resolved.

Gout

2.1.2021 – I selected joint because I had an acute attack of gout. Im vegetarian but gout attacks arent abnormal for me. I get an attack every 8 or 9 months. Just odd that it came on after the vaccination.

3.27.2021 – Another gout attack. Im vegetarian so its odd that it happened after the first vaccine and now the second.

4.10.2021 – I continue to have gout attacks almost weekly. As a vegetarian that typically would only occur once to twice a year, this has become a concern.

Tendon pain, Gait disturbance and Joint swelling

5.8.2021 – On the date I received the shot, in the late night hours, my surgically repaired Achilles began to ache and got progressively worse. Today Saturday, May 8th I am limping because of the pain and soreness. Is this vaccine telling my body to mount an attack on the foreign object in my body.

5.10.2021 – Same pain in my Achilles but seems to be easing

5.11.2021 – Achilles is better but still swollen and sore. Less painful.

5.12.2021 – Still experiencing some pain and discomfort with my Achilles but seems to be easing. Though I would rather deal with this over flu symptoms from the vaccine. I hope my second shot does not aggravate this area more than what my experience was from this first shot. Scheduled visit with my PCP

5.13.2021 – Achilles finally has some relief and swelling is subsiding. Finally. PCP visit scheduled

5.20.2021 – Dull Headache, Left leg pain above the Achilles area, but swelling in the Achilles has went down

6.23.2021 – My arms are sore, my back hurts and I have a headache.

9.3.2021 – Lower left dull abdominal pain thats persist for about a couple weeks

12.1.2021 – Same back pain which began some time after the second shot but it's now intermittent as it comes and goes.

6.4.2022 – Old

Irritable bowel syndrome, Thirst and Decreased appetite

2.3.2021 – Irritable bowl drank apple cider vinegar and honey. All good now.

3.10.2021 – Feeling tired, no appetite, low energy for the last three days slowly feeling better by the day.

3.24.2021 – Had 3 days of low energy, no appetite, aches in energy.

3.31.2021 – Had same as last week. Three days of week, tired, no appetite etc.

4.8.2021 – Continued waves of nausea, lack of appitite, extreme lack of energy etc

5.26.2021 – @every other week I have 3 to4 days of low energy, loss of appetite, episodes of sweats, my body throbbing and craving protein and thirsty. Dr office visits and acupuncture

Throat tightness, Contusion and Limb discomfort

2.25.2021 – Mild cough tightness in chest

3.7.2021 – Nausea, stomach ache vomiting and then on Saturday explosive diarrhea from 8am til 5pm. Stomach cramps today. Will call doctor tomorrow

3.14.2021 – Over the last few months Ive had some nausea and muscle joint pains not related to vaccine. If they worsen in the next few days I will assume it is vaccine related.

3.17.2021 – Tenderness underarm of same arm as injection

6.13.2021 – A huge bruise on my calf. No previous injuries

3.16.2022 – I developed severe hives all over body including throat closing up. Had to go to ER