Their Stories

Bronchial secretion retention, Impaired work ability and Wheezing

3.9.2021 – I have sarcoidosis and I am experiencing a typical flare up with itchy shins, swollen glands, wheezy, brain fog, fatigue

3.10.2021 – probably a result of the sarcoid being activated by the vaccine?

3.13.2021 – all this week my lymph nodes have been swollen/remain so.

3.14.2021 – swollen lymph nodes

3.15.2021 – less swollen lymph nodes, DST may be cause of fatigue

3.29.2021 – slight lymph node swelling neck

3.30.2021 – wheezy, heavy chest/lungs feeling

3.31.2021 – lung heaviness, wheezing, swollen lymph nodes

4.1.2021 – wheezy, lungs feel heavy, brain fog, cranky

4.2.2021 – lymph nodes swollen

4.3.2021 – swollen lymph nodes, wheezing is less

4.4.2021 – lymph node swelling, wheezing consistent w/sarcoid flare up

4.19.2021 – I have to say my brain fog continues. I want to be sure to say that after shot 1 I had much worse brain fog that I realized, via a sarcoid flare. I don't remember about 2 weeks of time. Gone. Better but sig flare-up. I did stuff below, just not well.

4.26.2021 – My sarcoid flare-up seems worse - much more fatigue and brain fog. For work I worked, just not that well.

5.3.2021 – I continued to have the brain fog, joint pain and fatigue that was rolling and not stopping. My lungs were having difficulty clearing mucus so I was coughing plugs. I'm now on prednisone.

3.29.2022 – I've gone off the prednisone, making my sarcoid flare. Fatigue is the worst part of it. All of this started w/1st 2 shots then again w/booster.

Defecation urgency, Gastric disorder and Musculoskeletal discomfort

5.1.2021 – Very stiff this morning, but got better as the day progressed.

5.5.2021 – Much better today on all fronts. I didnt mention before but I have had some very odd digestive issues since the shot. All seems to be well now . I experienced very I tense and painful gas which had an extremely strange odor. I had a few episodes of sudden urgency to poop but not diarrhea.

5.6.2021 – I forgot to mention another thing. I had a bloody nose the three days post vaccine. I have no idea if it is related.

12.5.2022 – I didn't report the day after?it hit me hard with fever, headache, body aches, intense discomfort in my groin(lymph nodes??). All symptoms have subsided .

12.7.2022 – I do have redness on my arm about two inches from the injection spot. I noticed the other day but have not mentioned it. No pain or soreness anymore.

Vestibular migraine, Abnormal dreams and Poor quality sleep

2.26.2021 – Vision changes...facial numbness/tingling

3.3.2021 – Is difficulty sleeping something to pay attention to? Its been an unusual thing for me the last several nights.

3.12.2021 – Sore muscles & joints. Problems sleeping & very vivid dreams when I finally do. Waking every couple hours. (Coincidence with timing? But not typical, so am mentioning)

3.19.2021 – Right after leaving site from getting 2nd dose, I experienced vision anomalies & facial numbness.I am having the same things again + odd dizziness.Not fun.

4.10.2021 – Sore throat, tired. Back to not sleeping well.

8.28.2021 – Fogging brain/mind. Headache a lot of the time. Sleep problems some.I dont feel like me. Difficult to explain.(there needs to be a maybe option on these questions)(Im from people who push thru when not fully feeling well)

2.26.2022 – Had Covid in January. Increase/change of brain fog. Wake most days with mild symptoms of vestibular migraine. Every day. Feel like I'm walking a tightropeor along edge of cliff. Change of internal thoughtsrather weird.

Lung disorder, Musculoskeletal pain and Throat irritation

5.7.2021 – Lymph node pain in arm pit near injection site

5.8.2021 – Pain in armpit lymph nodes near injection site

5.9.2021 – Lymph node pain (decreasing)

5.19.2021 – Lungs feel like i swallowed water accidentally, want to cough it up. Could be long term covid effects, i don't know.

5.26.2021 – Chest and back pain

5.27.2021 – Feeling of wanting to cough

5.29.2021 – Back shoulder blade pain

6.9.2021 – Pain at injection site.

11.23.2021 – Chest pain (negative results), lung issues (not yet resolved with practioner) Appointment with cardiologist and testing

Lung neoplasm malignant, Adverse drug reaction and Neck mass

1.19.2021 – Runny nose

2.1.2021 – Stomach cramps with diarrhea

2.19.2021 – Small lump on that (right) side of my neck: aches when I turn my neck or reach a certain direction. I'm not sure if it's related.

2.20.2021 – The lump is still there on right side of my neck.

8.18.2021 – Lung cancer Surgery & chemotherapy

2.17.2022 – Had lung cancer and surgery last February. Had chemo through August, and still on an oral non-chemo med, so I have side effects (not bad though) Due to CHEMO--NOT COVID

Impatience, Stress and Irritability

2.23.2021 – Large bruise

2.24.2021 – Stressed

3.5.2021 – Very very tired. My eyes are heavy. I feel drained.

8.20.2021 – Sore thumb in joints and also sore back/shoulder.Very tired for several days.

10.3.2021 – Yesterday late in the afternoon I had two bouts of diarrhea after doing yesterdays report, I think.

1.1.2022 – Aching joints probably from arthritis, fairly frequent migraines, and occasional lack of patience irritability. Tried to schedule appt w/ therapist but she is on leave or vacation.

Hypersensitivity, Urticaria and Pruritus

2.10.2021 – bad rash on hands

2.17.2021 – Major and expanding diagnosed uticaria rash on torso and extremities. Fatigue due to histamine reaction. Acuity varies throuhout the day and based on activities. Signifcant itching, especially on hands and feet. dermatologist visit

2.24.2021 – allergic reaction doagnosed as uticaria on extremities and torso. Extensive spread requiring prescription anti histamines amd cortisone cream

3.3.2021 – previously reportrd itocaria rash symptoms are reduced. Still taking daily prescribed course of hydroxazine

7.30.2021 – jead cold amd fatigue

Ear discomfort, Anxiety and Rhinorrhea

1.22.2021 – On the evening of the day I was vaccinated I had a runny nose that lasted about two hours, then went away as suddenly as it started.

1.25.2021 – Anxiety about not getting the second dose on time because of the Washington State screwed up registration/appointment system

1.26.2021 – Anxiety continues regarding getting the follow up shot because of the appointment methodology imposed within Washington State

1.27.2021 – Anxiety about being able to obtain follow up dose in the state of Washington remains a concern

2.10.2021 – Anxiety remains high because of the apparent inability of the state of Washington to procure enough vaccine to assure a second dose for those given the first dose

2.19.2021 – My ears feel like they may have fluid, like after swimming

3.1.2021 – Just more tired than usual.

Oral mucosal roughening, Tongue rough and Nasal edema

8.22.2021 – Sore throat, dep coughing and much phlem

8.23.2021 – Throat swollen, trouble breathing

8.24.2021 – Trouble breathing. Throat swollen 50% shut

8.25.2021 – Swollen/closed up dry throat

8.26.2021 – Throat still swollen

8.29.2021 – Swollen coarse tongue and throat

9.3.2021 – My tongue and throat are still coarse and swollen

9.10.2021 – Antiphylactic shock

9.11.2021 – Antiphylactic shock-throat closed. Only breaching through nose. Numbness in face

9.13.2021 – Swollen throat and having trouble speaking Dr wanted me to go to ER over the weekend . I couldn't afford to

9.14.2021 – Swollen throat and nasal passages

9.15.2021 – Nasal and throat swelling where I'm unable to speak clearly

9.16.2021 – Missed work because I can't talk or breathe well still Said i might need steroids from this allergic reaction

9.17.2021 – Throat swollen and voice raspy

9.24.2021 – Throat still swollen and still no voice. Now i have a sore throat on top of the swelling

12.10.2021 – Sore throat and fever due to covid exposure

Carpal tunnel decompression, Hypotension and Injection site discomfort

3.11.2021 – Slight soreness in muscle at injection sore but I would NOT call it pain. Less than other vaccines Ive had

3.30.2021 – Slight arm soreness

5.10.2022 – Had Mammogram on 5/7/22. Results show changes in right breast. More imaging & ultrasound scheduled for 5/12/22. Last vaccine was 3/29/22 in left arm (5.5 weeks prior to Mammogram, met the 4 week requirement)

6.28.2022 – Some episodes (occasional) of light-headedness and low blood pressure. I assume this is NOT related to COVID vaccine boosters. Just started about a month ago. Drinking more water to stay hydrated and made appt with cardiologist in August for checkup.

Neck pain, Dizziness and Headache

3.9.2021 – I should have reported this earlier, but I was quite dizzy on the evening after the injection and slightly dizzy each day sense.

3.10.2021 – Id like to know why five days after my first vaccine I still have a headache and now increasing soreness at the top of my neck at the base of my skull.

3.11.2021 – Still have headache and sore neck 6 days after receiving my first vaccine!

3.12.2021 – Ive said this before, but I cant understand why Ive had a headache and pain in my neck at the base of my skull for a full week since my first vaccination. Ive also been dizzy and felt spacey since about an hour after the injection.

3.26.2021 – Its hard to believe that 3 weeks have passed since my first vaccination and I still have headaches and occasional dizziness.

4.4.2021 – Dizziness

4.5.2021 – Occasional dizziness

10.30.2021 – None

Rheumatoid arthritis, Nasal congestion and Arthralgia

1.25.2021 – My arm, though fine the first two days, is so sore I can barely use it!

3.6.2021 – Intolerable pain from an RA flare. Two episodes after my first shot, and then this excruciating one after my second one. Severe flare from my Rheumatoid Arthritis. Had two episodes after my first vaccine but didnt make the connection. After my second it was excruciating enough to seek emergency care.

8.21.2021 – Cough, stuffy nose, fatigue

Arthritis, Chest discomfort and Arthralgia

2.18.2021 – This survey is a week late. My symptoms lasted 24 hours.

3.18.2021 – The day after my second shot my hands and feet were very achy. It seemed to linger. Im being tested now for rheumatoid just to make sure. I was also lightheaded after both shots. Lab

8.12.2021 – I have had joint pain/arthritis in hands and feet. It was very bad in the first month after my second shot. Its better now but I dont know if I reported that originally. Lab work

12.20.2021 – Have felt a strange feeling in my chest for a few days. Like possible palpitation. Not sure. It could be anxiety.

Esophagitis, Upper respiratory tract congestion and Flushing

1.21.2021 – It appear i have developed some esophagitis, but I have had no changes in my diet. I had one horrible day of heartburn(burning throat) which has now diminished. This is my 3rd day

1.30.2021 – Felt flush, but no fever for appx 1 hour. This was appx 6 hours after shot. Took Tylenol 500 as precaution

2.2.2021 – Upper airway congestion

2.3.2021 – All symptoms from the past couple of days have subsided

8.1.2021 – Have had a tremendous amount of dizziness since the second dose. Not overwhelming, but very annoying

Urethral pain, Pericarditis and Angina pectoris

9.10.2021 – Pain in the urethra, sore throat

9.11.2021 – Sore throat

9.12.2021 – Heart pain, feels like it did when I had pericarditis last year

9.13.2021 – Pericarditis pain, sore throat, sore lymph nodes

9.14.2021 – Pericarditis pain, sore throat, congestion

9.15.2021 – Pericarditis pain, sore throat

9.30.2021 – Itching on my head/forehead

10.1.2021 – Sore throat, sore lymph nodes, pericarditis pain

10.2.2021 – Bloody nose, pericarditis pain

10.3.2021 – Pericarditis pain, swollen lymph nodes

10.4.2021 – Memory problems, Mental confusion, sore throat, congestion

10.6.2021 – Memory problems

10.7.2021 – Pericarditis pain

10.14.2021 – Congestion, sore throat, runny nose, cough, headache, pain in sinuses and lymph nodes in throat, exhaustion

11.4.2021 – I have another cold like illness. Sneezing, sore throat, headache, tired and run down feeling. More heart pain as well.

Anosmia, Ageusia and Sinusitis

6.10.2021 – 5 weeks ago I experinced a head cold, with minor body aches, no fever, no respiratory issues. Lost my sense of smell and taste. I wasn't concerned at the time as sinus infections are not uncommon to me. As of today though I still have minimal both.

9.11.2021 – Covid like symptoms in May, chills, headache, cough, and sore throat. Just had a physical follow up in July with bloodwork. Bloodwork came back poistive for Covid virus antibodies.

1.13.2022 – Runny nose Headaches Sore throat Nausea Fatigue

Skin tightness, Cystitis and Axillary pain

4.9.2021 – Unusual lower back pain for no reason

4.10.2021 – It seems to me that my symptoms are not as severe as though were after my first shot. I felt really bad then and it lasted for 2 weeks with the weakness and fatigue still after that.

10.13.2021 – I have pain in armpits, closer to chest, mostly on shot side. Mildly on other side. It is painful. I noticed it about a day to day and a half after the shot. The first symptom I noticed was a tightening fullness on both sides.

10.14.2021 – Still having pain in armpits.

11.14.2021 – Bladder infection

Acupuncture, Cardiac flutter and Muscle twitching

6.29.2021 – Ive had a headache for the last 3 days but forgot to check in. Every time I stand up my head starts pounding

7.6.2021 – I have occasional heart flutters

7.17.2021 – Acupuncture

8.10.2021 – Twitching toes and what felt like tremors in my leg muscles for several days in a row. Had a scary heart palpitation. Still have the bumps from the rash that started after my vaccine. They dont itch anymore though.

1.11.2022 – I'm feeling a scratchy/raw throat today but I can't find a Covid test anywhere

Osteoarthritis, Musculoskeletal discomfort and Joint swelling

1.14.2021 – The joint pain is only in my left hip lower back(could be from sitting too long on zoom meetings and not related to vaccine.

1.15.2021 – Mild lower back right hip discomfort relieved with ibuprofen and ice

5.6.2021 – Arm where injection was given has had joint tenderness in elbow and cant lift that arm to full ROM reaching behind me without soreness. I thought it was related to the technique of the nurse who administered so I hadnt reported prior.

10.28.2021 – Sinus pressure and asthma flare up. MD ordered Zithromax and prednisone Did self rapid OTC Covid test which was negative

4.3.2022 – My knee and ankle joints are swollen, making it difficult to bend down.

9.30.2022 – My osteoarthritis in my hip worsened and I need a hip replacement.

11.4.2022 – Had a post nasal drip cough on Saturday eve. Tested positive for Covid on 10/31/2022.

Bone pain, Hypersomnia and Sinus disorder

1.12.2021 – 7 days and 9 days following 1st dose I woke up in the night with joint pain in ankles and knees. 17 days following 1st dose I had bilateral thumb joint pain x 3 days.

1.16.2021 – Irritated sinuses and throat

2.3.2021 – Mild muscle aches of bilat distal biceps and distal quadriceps. Lasting 24 hours. Felt deep like the growing pains I had as a kid. No fever. Day 21 post 2nd Pfizer COVID vaccine.

2.16.2021 – Intermittent mild joint and muscle aches or soreness, thumbs, elbows and knees. Usually at night. This is an unusual occurance for me. I am a very active person, but less so this winter. Symptoms remain vague but frequent.

4.13.2021 – Continued transient nocturnal mild muscle and joint aches. I also sleep a lot more. 10 - 11 hours a night. Normal was 8 hours or less.

1.12.2022 – Continued deep muscle or bone pain, some new joint pain. Continues to be mild to moderate not seeming to be related to any physical activity or work.

Impaired work ability, Viral infection and Chills

1.22.2021 – Yes- so the day after I didnt get to report for some reason and so I did a vac adverse as this was my second shot if I could fill out on Thursday I was in sever body aches slight chills and headache and then today it was all gone basically

1.23.2021 – Sorry I meant to put that I called in sick the day AFTEr my 2nd dose due to mod headache severe body aches

1.20.2022 – I got tested for covid was negative but got another little virus on board

Energy increased, Fibromyalgia and Angina pectoris

4.17.2021 – Fuzzy head, racing heard

4.20.2021 – Twinge pains in lower legs

4.22.2021 – Twinge-like little pains in my right lower leg

4.30.2021 – Periods of inexplicably elevated heart rate and mild heart pain; twinge-like pains and sensations in lower legs. Also, some energy surges, which is a nice break, as I have ME/CFS and normally sluggish energy

5.17.2021 – Insomnia

5.24.2021 – Leg twinges. Increased fatigue

6.7.2021 – Severe fatigue continues

6.21.2021 – Bubbly feeling of twinge-like sensations moved from legs to arms

11.12.2021 – Fibromyalgia

5.10.2022 – Cold-like symptoms. Woke up with sudden symptoms: very runny nose, but also congested. Run-down feeling. Strange headache. No fever. No sore throat. The day before I could not taste my tuna salad. Felt sickish for 3-4 days. I've had much worse colds.

Rib fracture, Muscle strain and Hypoesthesia

2.17.2021 – May not be related, but I developed numbness at the end of my right thumb shortly after receiving the shot in my left shoulder. More than 24 hours later, I still have very mild numbness in the right thumb.

4.13.2021 – Diarrhea from food poisoning. No fever, no vomiting, no cough, no respiratory symptoms, no headache, no undue tiredness. Resolved within 24 hours.

6.8.2021 – I broke two ribs in a fall. Not COVID related.

10.12.2021 – Fever, cough, runny nose, body aches, sore throat.

3.29.2022 – Very bad head cold mostly on left side of head. Strange stabbing headache on left side; ER visit ruled our big issues, recommended seeing neurologist if headaches continue. They have slowly abated. I tested negative thruout using rapid tests @ home.

6.3.2022 – Sore throat, congestion, occasional headaches, coughing.

6.17.2022 – I have COVID. Aches, fever, cough, sneezing, insomnia.

11.4.2022 – Strained muscles or broken ribs

Oxygen saturation, Peripheral arterial occlusive disease and Crohn's disease

2.15.2021 – But I do have Crohns disease.

2.16.2021 – Increased BP, pulse rate and decreased O2 saturation. Phone consult with cardiologist

2.18.2022 – Nocturnal leg cramps

2.18.2022 – Wondering about new nocturnal leg cramping.

5.24.2022 – Symptom: Angina Diagnosed as Peripheral Artery disease. Not overweight, low cholesterol, normal BP, physically active. May not be connected. Have one stent so the did a heart Cath to give the above diagnosis. May be coincidental. Just a though. Regular Cardiology Visit.

Hypoacusis, Deafness and Balance disorder

3.20.2021 – A little foggy in the brain (lightheaded)

3.26.2021 – I still have a small amount of nausea in the morning and a consistent mild headache at the brainstem location. brainstem

5.1.2021 – My ears are ringing constantly and louder than before the vaccination.

6.18.2021 – My tinnitus has increased in loudness, my hearing has diminished significantly, I am having problems with my balance and constant dizziness, and I feel nauseous most of the time. I have seen my PCP, a ENT, I am going to therapy for the dizziness and balance, and I am scheduled for a brain scan.

9.20.2021 – Increase in tinnitus loudness, Increased symptoms of vertigo, increased dizzyness and balance problems, increased loss of hearing.

10.28.2021 – Balance and dizziness when I woke

12.3.2021 – Severe Dizziness

4.15.2022 – No

Acupuncture, Sputum discolored and Paranasal sinus hypersecretion

4.1.2022 – Yellow Sinus drainage for about 2 months in December and January.Leaving me with new issues to deal with.How would I have any idea if this was or is related to side effects from the vaccine? Currently I am experiencing a loss of taste and smell. ENT, then sought out Acupuncture which was the MOST beneficial of anything I tried. Western medicine seems to be expensive and counterproductive.

11.3.2022 – Sporadic Diarrhea and nasal congestion. No stomach upset.

11.24.2022 – Congestion in nasal passages, tickly throat, feeling very tired, stomach upset and just not right.

12.1.2022 – I have an overgrowth of yeast and stomach/intestinal issues. I deal with this periodically. It correlates with eating refined sugar. Might Other ingredients in vaccine help trigger this?

Medical device implantation and Nasopharyngitis

5.16.2021 – I have had a cold for about 5 days.

5.24.2021 – I just had some worsening of my chronic pain condition.

10.11.2021 – Respiratory discomfort. Pain. Complications due to my CRPS & degenerative disc disease dx(s). In person visits with PCP and other specialists.

1.10.2022 – Medication pump installed. Several major orthopedic concerned; possibly both require surgical intervention. Outpatient Surgery, MRIs, & in-person office visits

4.13.2022 – Orthopedic complications

Tonsillar hypertrophy, Lower respiratory tract infection and Body temperature increased

3.28.2021 – Swollen tonsils and lymph nodes under my jaw

3.29.2021 – Lymph nodes in neck are still a bit swollen, but are no longer sore.

3.30.2021 – Lymph nodes under chin still seem a little swollen, but are no longer sore

10.29.2021 – I got the shot on 10/25. Starting that day, and continuingfor 2 more, my injection arm was quite sore, I had chills, headache, and fatigue.

4.12.2022 – My normal temp is 97.2, so therefore 98.7 is like 100.1 for someone who is normally at 98.6

10.15.2022 – Swollen tonsils

10.16.2022 – Tonsils still a little swollen

11.23.2022 – Seems to be a chest cold only.

Iliotibial band syndrome, Piriformis syndrome and Musculoskeletal disorder

4.15.2021 – Just had the shot two hours ago

4.16.2021 – Faster heart rate ( I have atrial fib this made it faster)

4.20.2021 – Related to bursitis of hip not vaccine

4.22.2021 – Left hip left knee left ankle. Agony. Visit to orthopedic got lidocaine and prednisone shot into hip

4.29.2021 – Severe pain left hip down thigh left ankle numbness burning on thigh , chills, same area I had shingles before, cant lift leg cant walk cant do anything Office visit to orthopedic, tele health to primary

5.15.2021 – TotalInflammation of the left leg plus periformis syndrome hip bursitis and iliotibial band syndrome and terrible pain in joints of hands and knees and pure liquid diarrhea. Feel sick.

7.15.2021 – Tickle in mid-chest with slight dry cough and pain in back of chest Slowly getting better with my inflammatory lupus response and going to PT so I can walk PT

10.14.2021 – Worsening atrial fibrillation Pleurisy Pericarditis Terrible Joint pain Shortness of breath Saw cardiologist in person and several telegraph visits with prinary

10.15.2021 – Pericarditis pleurisy costochondritis worse atrial fibrillation and joint pain

11.30.2021 – Pleurisy Cellulitis Toe infection Shoulder pain Joint pain Office visits

8.30.2022 – Unstable blood pressure and heart rate, dizziness

Obstructive airways disorder, Hemoptysis and Tonsillar hypertrophy

1.11.2021 – Had a patchy histaminergic rash last night over entire body with moderate pruritis. Resolved in 2 hours from initial onset.

1.12.2021 – Non productive cough for the past 2 days. Sometimes has metallic taste but no blood or sputum produced.

1.13.2021 – Nonproductive cough with taste of blood x4 days

1.14.2021 – Nonproductive cough

1.15.2021 – Sore and swollen throat. Nagging non-productive cough

1.22.2021 – Swollen tonsils starting Jan 13 but thought nothing of it. This progressed over MLK weekend to involve mult lymph nodes and cervical chains. Got severe enough to cause dysphagia and sig. airway restriction. Had to go to ED on 1/19 for IV Decadron.

1.29.2021 – Still recovering from post-dose day 5 cervical lymphadenopathy requiring ER treatment for dysphagia/breathing problems. Swelling now improved after IV steroids in ER, but still have nagging cough/bronchitis symptoms. 2 neg COVID tests back then.

2.5.2021 – Continued nagging cough w/ pain where the lymphadenopathy was that previously required IV dexamethasone and ED treatment.