Their Stories

Serum sickness, Lip pruritus and Oral pruritus

3.2.2021 – I felt a little chilled, fatigued and headache yesterday (forgot to report) but great today. Also I had a little allergic reaction when I got the shot which resolved except my lips are still itchy and a little swollen

3.3.2021 – Just a little nagging headache

3.4.2021 – Im still having some burning sensations in my face and itchy lips from the initial allergic reaction. I felt achey and fatigued on and off but mostly feeling great.

3.13.2021 – Last Sunday night my injection site swelled and became itchy and my ears started itching. On Monday I had some sort of massive allergic reaction. I am told it was serum sickness. Still on the mend, but not feeling great.

3.20.2021 – Im am still stuggling with many symptoms from developing serum sickness from the vaccine (according to the allergist). Itching of lips and face and mouth. Racing heart. Ear congestion. And burning in my hands and itchy eyes and very anxious

8.28.2021 – I am still having some weird allergic symptoms. I tried to get off my antihistamine and a lot of my symptoms post shot came back. I met with allergist again. Back on high dose antihistamines.

Tendonitis, Breast pain and Feeling cold

3.3.2021 – Mild headache 1 day after

3.26.2021 – Couple of sharp pains left front head it went away.

3.27.2021 – At bedtime was feeling cold put on extra blankets feeling better today

9.23.2021 – Right ankle tendinitis In office visit and ultrasound

10.10.2021 – Lymph nodes tenderness underarm left arm received injection

10.29.2021 – I have a slight headache today.

7.5.2022 – In July 1st I developed a rash that made a planned weekend getaway very unpleasant. However feeling much better after checking out of hotel early for urgent care visit. Undetermined rash prescribed 20mg prednisone for 3 days. Today no rash.

9.25.2022 – Awaken with dizziness this morning. Ate breakfast, taking it easy for the remainder of the day.

Hyperacusis, Ear discomfort and Urinary tract infection

1.6.2021 – A fullness in my ears may be due to my seasonal allergies.

1.13.2021 РI have developed a fullness in my ears, tinnitus, and mild dizziness. I am more sensitive to loud noises. I believe these symptoms are due to new onset M̩ni̬re's disease.

2.17.2021 – I am experiencing ear fullness, mild sensitivity to sound, and a high pitched ringing. I have not experienced any vertigo. I had similar symptoms with mild vertigo after the first dose. That was the first time I had experienced these symptoms.

8.1.2021 – Urinary tract infection

Dehydration, Urticaria and Vomiting

2.12.2021 – 9 days after the injection, I began experiencing hives. I have had Chronic idiopathic urticaria for 8 years. This may be the beginning of a flare cycle.

2.19.2021 – Worsening hives. I am in a flare of Chonic Idiopathic Urticaria.

2.28.2021 – Hives are worse than yesterday

3.1.2021 – Hives continue

3.5.2021 – Hives continue, unrelated vomiting and diarrhea

4.9.2021 – Hives (Chronic Urticaria) flare is still worsening. Taking more meds to try to control it. Also hospitalizedt for vomiting/diarrhea/dehydration. Testing shows celiac type damage to stomach, inflammation of duodenum, and rapid gastric emptying.

5.29.2022 – Worsening hives

Adverse drug reaction, Feeling cold and Tremor

5.19.2021 – Some of my symptoms (at this point) may be due to migraines and not the vaccine.

6.5.2021 – Dizziness, trouble sleeping, overheated and cold at different times

6.6.2021 – Weakness, dizziness

6.8.2021 – Weakness, dizziness, shaky

12.3.2021 – I had migraines before the vaccine, but they developed into chronic/daily a few months ago. It is likely related to changes in birth control, not the vaccine. Saw various doctors to treat migraines (gynecologist, neurologist, etc)

1.13.2022 – I had a severe migraine that was likely due to medication changes

Rheumatoid arthritis, Asthenia and Myalgia

1.3.2021 – Thought i would mention something. I have severe Rheumatoid Arthritis. My rheumatologist gave me the ok to get the Pzizer shot. The only downside is that i now have to hold off on my weekly Methotrexate injections which means i will miss the next four injections. Am hoping that my RA doesnt flare up

1.22.2021 – My 2nd shot was Jan 18. Over the next several days myvtemp went as high as 102.6. Lots of achiness, weakness, muscle and joint pain, foggy brain. I also had severe RA flares as i needed to be off my RA immuno-suppresive medications befor and after the covid shot series. Doing better but not at 100% am about 60% of my baseline

Food interaction, Red blood cell abnormality and C-reactive protein increased

1.6.2021 – My whole body itched for about 4 hours after the shot.

1.21.2021 – Symptoms not daily but have had a few days that it was bad, Diarrhea, Headache, fever, body aches, fatigue.

2.16.2021 – Fever blister which always requires anti-viral tablets to heal. I had shingles and ever since then I have this problem. If my immune system isnt as strong as it should be, this happens.

5.4.2021 – My fasting blood glucose is showing prediabetes, it could be diet and stress though.

8.3.2021 – Diagnosed with uveitis. CRP 4 times higher than normal. Another test re. Red blood cells sinking in test tube way above normal. Definitely have systemic inflammation but none of the normal inflammatory / autoimmune diseases have been detected.

Sensitivity to weather change, Emotional disorder and Skin irritation

1.30.2021 – Started menstrual cycle

1.31.2021 – Second day of menstrual cycle

2.1.2021 – Still on menstrual cycle

2.2.2021 – Menstrual cycle

2.26.2021 – Menstrual cycle started today- loss of body heat, back pain not related to Covid-19

2.27.2021 – Second day of menstrual cycle- symptoms not related to covid: lower back pain, headache, some fatigue

2.28.2021 – Third day of menstrual cycle- symptoms are not related to covid.

3.1.2021 – Fourth day of menstrual cycle

3.2.2021 – Fifth day of menstrual cycle- headache checked above is due to atmospheric pressure from the high winds

3.3.2021 – Sixth day of menstrual cycle

5.26.2021 – Season allergies (pollen): sore throat, headaches, runny nose, hard to swallow and breathe.

1.6.2022 – Slight runny nose

7.7.2022 – Dry skin, irritable and itchy after touching a bush. In addition, certain fertilizer bags cause scratches. A high mosquito rate hasn't helped. Heat fluctuating along with humidity has attributed to this condition. Will be going for appointment tomorrow

Injection site hemorrhage, Pollakiuria and Injection site bruising

4.5.2021 – When I received the shot the pharmacist said she thought she hit a fibrous part of the muscle. It bled more than usual and developed a bruise which has decipated. I woke up this morning with a red line on the back of my thigh. It was itchy and I put hand lotion on it and the itchiness subsided. The red line looks like it has decreased since this morning. Because it's on the back of my thigh, I can only see it in a hand mirror so it's hard to tell how rash like it appears. It is a straight line of redness and not a mark that's spread out.

6.30.2021 – Further problems with urinary frequency. Cystoscopy at uroligist office.

5.13.2022 – Muscle in arm where I received vaccination continues to hurt when I stretch my arm in certain positions.

Palmar erythema, Livedo reticularis and Blood blister

2.11.2021 – Yesterday around 6:30 PM left ear was red and very hot. Felt agitated. Took 25 mg Benadryl. At 9:00 PM saw rash on upper chest and upper back. Blood pressure high. Took another 25 mg Benadryl. In morning rash mostly gone and blood pressure normal,

2.24.2021 – RashHivesItchingRunny noseAgitation in office visit -Family Physician who then referred me to Allergy doctor

3.10.2021 – Arms are blotchy

3.11.2021 – Tightness on scalp, rash both knees, rash on hairline, clothes felt scratchy, left thumb bright red, mottled skin on back of both upper arms, lips tingling

3.13.2021 – Itching, restlessness

3.14.2021 – Restlessness, itching

3.15.2021 – Left ear and palms were red, mottled arms, hives, high blood pressure, tingling in arms, skin sensitive- clothes felt scratchy Phone call to doctor for prescription for rash

3.16.2021 – Mottled arms

3.24.2021 – Rash on left neck since Day 1 of the first vaccine shot. Rash has gotten worse since the second vaccine shot. Now it is on both sides of my neck, my chest and upper back and back of my knees, spreading to stomach. Doctor has me on 3 antihistamines. Office visit- After first shot and before second shot.

3.31.2021 – Rash is still on neck and upper back. It flares up and goes to my upper stomach and sides, then receeds. There is a red ruddy patch of skin on the back of my neck about 5 inches across with uneven borders. Itching on arms and legs.

4.7.2021 – Itching and hives on left collarbone today. Scalp is very sore. Rash has been on back of neck since Feb 10.

4.14.2021 – Hives on 3 days this week. On left sde of face, left ear lobe, left inside forearm. Still have rash on back of neck that appeared on first day of first shot and has never left.

4.21.2021 – Two days this week , the rash expanded from the back of my neck to my upper chest, upper stomach and upper back.

6.10.2021 – Rash on back of neck, with bumps ,and on scalpItching.Rash has been there since the day I received the first shot.A few episodes of rash on chest and upper back that would last for about 24 hours 2 office visits. One with an allergist and one with a dermatologist

9.13.2021 – Blood blisters inside mouth

Depressed level of consciousness, Blood sodium decreased and Heart rate increased

5.25.2021 – Sodium levels dropped , was quickly yanked off of Carbamazepine for temporal lobe epilepsy and put on Zonisamide. 2wks to style and now I feel better than three years ago!!! Dont know if this Na decline was accelerated by Covid19 Vax . Lucky scheduled checkup with neurologist, did battery of labs and Uh-Oh, Sodium level is crashed!! Doc called with emergency instructions to AVOID going to ER or Hospital.

2.23.2022 – Apparently EXTREMELY DIFFICULT to diagnose repeating episodes of sudden onset violent vomiting & liquid diarrhea, rapid heart rate, extreme constipation in between episodes, complete exhaustion and fatigue for 24-48 hrs after vomit/diarrhea episodes.

Uterine hemorrhage, Uterine spasm and Aphasia

8.20.2021 – I'm having some word searching issues and losing my train of thought, similar to when I had COVID. Thick, gel like post nasal drip. Uterine cramps and spotting blood even though my period is 15+ days early. It's interfering with my cycle.

8.21.2021 – Uterine cramping and thick post nasal drip

9.9.2021 – Eye strain and blurriness

9.14.2021 – Uterine cramping and spotting

9.15.2021 – Uterine cramping and spotting when I'm not due to get my period for another 16 days

9.22.2021 – Uterine cramping and bleeding. This started 15 days early for my period and that never happens to me Gynecologist

9.29.2021 – Uterine cramping and bleeding Ultrasound appointment at my OB-GYN

Periorbital swelling, Skin burning sensation and Facial pain

1.29.2021 – Facial flushing at 20 minute mark. Lasted 30 minutes

2.5.2021 – Red swollen painful bag under one eye.

2.12.2021 – Itchy painful rash under right eye, headaches every day, insomnia and exhaustion

3.1.2021 – Louder than usual tinnitus (I always have it; its just been louder ever since getting the vaccine)

3.8.2021 – Red/discolored face rash and swelling under eye/cheek/lips, severe itching on face, burning and tingling sensations across R side of face, fatigue, cold sore outbreak on lips (never had cold sores before). Reported to VAERS.

3.15.2021 – Very sore neck, cant move freely, shooting intense pain. I dont think its related to the vaccine but Im listing it just in case.

8.23.2021 – Red swollen eye. It appeared for the 1st time 7 days after each COVID shot and now recurs at random. Burns/painful, itches, swells, and skin is bright red. Doctors dont know what it is.

10.18.2021 – Swollen lymph node in armpit on same side as injection. Huge and painful.

10.31.2021 – Red, painful burning electric skin around right eye, all the way down my face to my lips, very painful. I had the same reaction exactly 7 days after my first 2 shots too. Never had it before my 1st Pfizer shot.

11.19.2021 – Acid reflux, chest tightness

1.14.2022 – Extreme vertigo, fatigue, migraines (can't remember if I listed that last time but it started 2 weeks after the shot)

4.15.2022 – Vaccine booster triggered shingles on my vestibular nerve. I was out of work for 2.5 months.

10.15.2022 – The swollen burning eye I got one week after each COVID shot has been recurring at random ever since. After my October '21 booster, I spiraled into 24/7 migraine and vertigo and couldn't work for months.

Increased upper airway secretion, Upper-airway cough syndrome and Productive cough

1.5.2021 – Swollen lymph nodes in arm pit of injected arm

2.11.2021 – The day after my second vaccination I felt strong body aches and fatigue. I was glad to have that day off. Both symptoms resolved the following day.

10.26.2021 – Swollen lymph nodes in the armpit of my injected arm

11.8.2021 – A head cold

1.24.2022 – Stuffy nose and phlegmy throat for about 5 days

4.25.2022 – 5 days of runny nose, post-nasal drip, sneezing, and unproductive cough

10.25.2022 – Runny nose, cough, nasal congestion

Injection site warmth, Injection site pruritus and Paresthesia

2.12.2021 – * I am now 2 days out from the vaccine. The day of the vaccine, My face immediately became tingly and this lasted for approximately 2 hours. The day after the vaccine I had a headache, nausea, and fatigue. Today I feel fine.y

8.16.2021 – Booster ( 3rd vaccine) on 8.14.21 of Moderna. Pain at the injection site that evening, but felt fine. Today, 8.16.21 exhausted, fever, joints ache, injection site warm and itchy.

Bladder mass, Bladder operation and Bradyphrenia

3.11.2021 – Sore throat - mild, dizziness - mild

4.9.2021 – frequent head-rushes, minor dizziness

4.11.2021 – heartburn - ongoing stomach

4.13.2021 – Mild dizziness /slow to think, tremor in RH eye ...

5.16.2021 – Fatigue, possibly due in part to extended hours. Coughing up a fair amount of hard to get rid of phlegm -randomly, usually in bed.

5.20.2021 – Sour stomach, heartburn. Continued tiredness, fog, lightheadedness, searching for words and names at times. Dry eyes, RH eye twitching, corrections are changing. Tinnitus seems worse . Gaining weight.

7.8.2021 – Sour stomach & lower GI, nausea, slight headache, occasional minor dizziness, occasional trouble thinking clearly & loss for words . Unrelated mosquitoe & sider bites near left elbow causing swelling, itch & pain.

10.7.2021 – Bladder mass surgery

Head discomfort, Neck pain and Dizziness

1.22.2021 – Woke up a little dizzy yesterday morning. As I work up, it seemed the room was slowly spinning. I slowly sat up, and the spinning slowed. I stood and still felt woozy. As I slowly moved around, the dizziness subsided after about 10 minutes.

1.29.2021 – A little dizzy at times

1.31.2021 – Just a little dizzy from time to time. Mild

3.2.2021 – Head and neck aches, and a woosy feeling. This sound strange, but my mind feels like it is filled with cotton. Have not had this before. After the vaccine, I was dizzy for awhile. Wish I had not taken the vaccine.

3.9.2021 – Still dizzy at time. Constant neck pain. Did not have any of these symptoms experienced now, before the vaccine.

Parathyroid disorder, Mobility decreased and Urinary tract infection

1.27.2021 – Didn't sleep well last night.

2.8.2021 – Friday - Sunday my left arm ached in the vicinity of where I received my shot. It felt like a muscle ache. I ciuld barely lift my arm and the muscle occassionally felt like it let go and relaxed without my control. It's OK today.

2.22.2021 – I feel like my whole body is clenched and I'm looking for a fight.

2.23.2021 – Still have above symptoms, but not as bad as yesterday.

5.20.2021 – UTI with fever

10.7.2022 – Parathyroid issues.

Photophobia, Dyspepsia and Lymph node pain

4.13.2021 – The lymph nodes in my elbow ache. The lymph nodes in my right under arm are swollen slightly.

4.14.2021 – Lymph nodes in my right under arm are swollen, my right elbow aches

5.8.2021 – My eyes are more sensitive to light today.

5.11.2021 – Heartburn but not sure if this is related to the vaccine but Ive not had it very often.

5.19.2021 – Not sure if these symptoms are related to the vaccine but Ive had a runny nose and sore throat and a slight cough for a few days. Im getting better but just thought Id add this since its a new development.

12.10.2021 – Swollen lymph nodes in right underarm area

12.11.2021 – Swollen lymph nodes

12.13.2021 – Lymph nodes are still swollen but the swelling goes down each day

Gastrointestinal viral infection, Irritable bowel syndrome and Diverticulitis

2.25.2021 – Woke up at 5 am with what felt like hayfever (itchy, runny, nose) headache amd sore arm/shoulder. Took Tylenol and was able to get a little more sleep. Headache, etc. better but shoulder and arm still achy and stiff. (Ala tetamus shot!)

8.25.2021 – Intestinal upset, diagnosed by GP as diverticulitis, but Gastro Dr. thinks intestinal 'bug' that set up an IBS situation. Seems to be resolving now. Doctor's office, in-person visits

6.28.2022 – Mild stuffiness after transatlantic flight

8.16.2022 – Tested positive for covid19. Had mild cold symptoms (nasal and chest congestion. Very slight elevated temp (99 for 2 days.) Fatigue.

Decreased interest, Ear disorder and Poor quality sleep

5.10.2021 – Plugged ears. Maybe seasonal allergies, but were not plugged before injection and felt plugged around 30 minutes after. Also very spacey feeling.

5.11.2021 – Spacey. Plugged ears. Tingling skin.

5.12.2021 – Plugged ears. Tingling skin. Tight muscles. Poor sleep.

5.13.2021 – Plugged ears. Light headed.

6.14.2021 – Excessive fatigue onset.

12.27.2021 – Body aches, diarrhea, light-headed distant feeling

2.14.2022 – Headache, fatigue, nausea, body aches

5.16.2022 – Allergies. Much worse this year.

11.16.2022 – Very sick from Pfizer booster. Body aches. Foggy headed.

Abdominal tenderness, Fibromyalgia and Axillary mass

3.27.2021 – Abnormal mammogram 3/26/21

3.28.2021 – My Fibromyalgia makes it hard to gauge what is cause.

4.4.2021 – Swollen lymph nodes in left axillary seen by ultrasound Ultrasound

4.11.2021 – Pain on right upper torso, intense at times. Can still do tasks with Ibuprofen.

4.25.2021 – Swollen lymph nodes remain on the left side and now the right side also. Ive had a tenderness on my right side abdominal area and an extreme pain at times directly opposite that area on my back. I will see my doctor tomorrow.

5.2.2021 – Lump seen by ultrasound on right axillary. Some pain at times. Ultrasound

5.17.2022 – I was extremely dizzy intermittently for four days. Went to hospital.

Back disorder, Injection site discomfort and Wheezing

3.31.2021 – Feeling ok, just getting very tired. About to go take a nap.

4.1.2021 – Wheezing & coughing. Not sure if related . I have asthma too.

4.4.2021 – Sore at injection site but not pain.

10.9.2021 – Sore at injection site, not painful

10.10.2021 – Very tender, swollen area under arm pit on same dude as injection. A little painful

10.11.2021 – Just some pain & swelling under arm

10.12.2021 – Soreness at injection site & under arm

11.19.2021 – Back issues - I'm sure not related to injections. Got facet injections today.

10.10.2022 – Got Covid in May

Lymph node pain, Axillary pain and Lymphadenopathy

1.26.2021 – Slight swelling and mild pain in armpit area of arm that received first dose vaccine injection.

1.27.2021 – Axillary lymph node area under left arm (injection arm) has slightly increased in swelling and mild pain.

1.28.2021 – Still experiencing swelling and mild pain in axillary lymph nodes under left arm (injection was in left arm

4.22.2022 – Exposed to COVID - Omicron on 4-9-2022. Symptoms appeared but tested negative on 4-13-2022. Tested positive for COVID on 4-15-2022. Finally tested negative for COVID on 4-22-2022.

5.6.2022 – Post-Omicron, I have been affected by whole body aches and fatigue.

Gait inability, Peripheral swelling and Arthralgia

5.16.2021 – Joints are really sore. Ive got apt for a specialist for my wrist. Been taking naproxen continuously for a month. Wearing a brace. Lots of pain. My other hand and knees are hurting too

5.23.2021 – Very sore jounts

5.30.2021 – Swelling of hands and legs. Joints hurt all the time. One day my knees will hurt so much I cant walk well. Next day knees are fine but hands are swollen and hurt to use. Tuesday is an appointment for hand specialist.

6.15.2021 – Got a cortezone shot from the hand specialist. I have an appointment today w him to look over blood work concerning inflammation. Hand specialist

8.1.2021 – Inflammation thru out my body. Tested positive for rheumatoid arthritis. Constant pain.

Muscle twitching, Taste disorder and Dysgeusia

4.15.2021 – Strange taste in my mouth all day today.

4.16.2021 – Second day having a strange taste in my mouth.

4.17.2021 – 3rd day having a strange taste in my mouth

5.3.2021 – Tired all the time, occasionally have a tingling feeling in toes or legs.

5.10.2021 – I still have some nerve twitches going on, that Ive never had before, but I consider them minor. Apparently the vaccine is currently working because Covid has hit my office hard and I dont have any symptoms.

7.14.2021 – Coughing to the point of dizziness occasionally.

Diabetes mellitus and Myalgia

3.2.2021 – Not for me, but my 89 year old mother who has Alzheimer was vaccinated at the same time. She experienced confusion and disorientation beyond anything we have seen before on Sunday and Monday.

4.25.2021 – Back muscle aches, but I think it is related to winter/covid inactivity and trying to do spring yardwork.

6.22.2021 – I am having an increase of AFib symptoms since my vaccines. I have had some AFib issues for about 15 years, but it was occasional. Now it is daily. I have a dr appt scheduled. Appt is scheduled to be in person.

9.19.2021 – I have been diagnosed with diabetes in the last two months.

Sarcoidosis, Blood pressure fluctuation and Heart rate irregular

3.11.2021 – A bit lightheaded

3.13.2021 – Light headed

4.28.2021 – Have had increased palpitations and afib lately. Likely due to factors other than vaccine.

5.5.2021 – Bad afibNauseaDiarrhea (which is not new, an ongoing issue)BP and heart rate fluctuations

10.6.2021 – Increase in afib events. Having heart ablation end of the month. Cardiologist and then a electro cardio specialist

4.7.2022 – Sarcoidosis- lymphatic, wide spread mostly chest area. Now have disease induced asthma. Been on Prednisone since 11/21

4.30.2022 – Sarcoidosis Disease Induced Asthma Outpatient biopsy

5.19.2022 – Sarcoid was diagnosed Thanksgiving'21. Have been on prednisone and other meds since then. Have slowly improved but feeling worse past several days. Did COVID home test today - neg. BTW- when you call, if the # was IDd I'd answer it if I could. Saw sarcoid doc shortly before I started to feel worse for a scheduled appt. Saw cardiologist a few days ago for scheduled appt and cardio seems ok.

Urinary tract infection, Hypertension and Pruritus

1.16.2021 – I got a UTI and have the take an antibiotic

1.29.2021 – I developed diarrhea today

3.6.2021 – Extreme fatigue

3.20.2021 – Terrible fatigue Regular primary care

5.15.2021 – Had more problems with my mitral valve putting extra beats in and a little higher blood pressure Saw my cardiologist face to face

11.6.2021 – When I got my shot liquid squirted out when she was giving me the shot. Am I still fully vaccinated?

11.25.2021 – Itching

12.9.2021 – Coughing and chills

12.16.2021 – Fever, cough, cold symptoms

Feces hard, Skin exfoliation and Impaired work ability

3.17.2021 – Felt a little weak yesterday, fell fine and normal today.

3.22.2021 – Swollen lymph node under arm pit on injection arm.

3.23.2021 – lymph node under arm of injection arm better but a small amount if noticeable pain. Seems to be getting better.

4.13.2021 – very mild rash on hands. very mild joint pain in left index finger and ring finger. mild constipation/ hard stool.

4.14.2021 – mild rash on hands

4.16.2021 – rash on birth hands. Spreading across hands and fingers.

4.17.2021 – Rash on hands is clearing. Red flaky skin on hands, somewhat mild pain.

4.19.2021 – Rash is clearing and almost completely healed.

4.13.2022 – Virus of unknown origin; felt like the flu. Legs cramped terribly, fever, chills, headache, incapable to work for 2 days.

7.31.2022 – Inner ear infection