Their Stories

Hyposmia, Hypogeusia and Bone pain

1.15.2021 – Felt the worst about 5 hours after shot.

2.4.2021 – Dizzy but symptoms arent as bad as by night of first dose

2.5.2021 – Nerve pain and numbness in arms and legs. Activated my Transverse Myelitis

2.6.2021 – Nerve pain snd numbness as it caused a flare in my chronic Transverse Myelitis

2.7.2021 – Numbness and nerve pain as (b)(6) flared

2.8.2021 – Numbness and nerve pain from it flaring my Chronic Transverse Mielitis

2.9.2021 – Nerve pain

2.11.2021 – Nerve Pain

2.4.2022 – I had Covid in October! My taste smell are still not fully back! Brain fog and bone main remains

Cold-stimulus headache, Frequent bowel movements and Neck mass

8.4.2021 – Not at this time

8.6.2021 – Slight soreness at needle entry

8.18.2021 – Strong headaches

8.28.2021 – Dizziness and chest pain

8.29.2021 – Very bad headache like brain freeze

9.8.2021 – Bad headaches and sore stiff muscles and joints.

9.16.2021 – Bad joint and muscle pain and stiffness. Also very strong headaches with some dizziness. Sometimes Tylenol 500 mg helps , but not much lately. Will increase my Zinc, Vitamin D3, Magnesium and C

10.6.2021 – Extreme chest pain and sore joints and a feeling of hot and open nose breathing. Headaches and sore throat sometimes

2.23.2022 – For over 3 months my BM'S have been very watery, gas-sy, with rumbling like bursting and grayish every day, and i truly mean every day, morning, afternoon and night. I'm awakened with growling, rumbling and gray loose watery BM'S with lots of gas.

8.25.2022 – Extreme Headaches especially in the early morning and still lumps on my neck. Sometimes very painful. Doctor sent me to a ENT who said to put warm towels on my neck. Problem still here every day. It's a new problem, never had this before vaccine.

Angina pectoris, Musculoskeletal chest pain and Anxiety

1.29.2021 – Heart but I dont know if its just my anxiety from getting the shot

1.30.2021 – Heart/that area has hurt

1.31.2021 – Heart pain

2.1.2021 – Heart palpitations

2.2.2021 – Heart tightness

2.4.2021 – Chest pain. Went to Urgent Care. Was told it is chest wall pain. Im not sure if its from the vaccine but I didnt have pain until after I took it.

2.5.2021 – Chest pain. Doctor said its chest wall pain and gave prescription.

2.14.2021 – I went to the Doctor with chest pains. She said it was chest wall pain. I am still on medication from it. It still has not gone away completely since getting the vaccine.

Lymph node pain, Lymphadenopathy and Pain in extremity

2.26.2021 – I have some leg aches but not sure if thats because of the vaccine or simply for driving half the day.

2.27.2021 – I experienced the fatigue and body aches more yesterday around 5p and currently feel better.

10.2.2021 – My underarm lymph nodes are really swollen. Same side I got my injection.

10.3.2021 – My lymph nodes are still swollen under my armpit!

10.4.2021 – Lymph nodes under armpit has gone down in swelling every day but still an issue. Less pain and discomfort.

10.5.2021 – Armpit lymph nodes are way better and less swollen. I'm about 90 % better.

10.6.2021 – Lymph nodes way better today. 95% better but I have some lingering tenderness and mild discomfort

Eustachian tube obstruction, Skin exfoliation and Upper-airway cough syndrome

2.17.2021 – Itching at injection site on days 6 and 7.

2.24.2021 – Migraine(?) headache

4.7.2021 – Peeling hands and feet

4.15.2021 – My palms and feet are peeling, for no apparent reason. No clue if its related.

9.3.2021 – Post-nasal drip and scratchy throat

10.30.2021 – Injection site is warm to the touch. Post-nasal drip and a sore throat developed todag

11.3.2021 – Sore throat and nasal congestion

11.12.2021 – Diarrhea

12.10.2021 – Eustacian tubes are clogged

1.28.2022 – Nasal congestion

4.29.2022 – Sore throat, cough, nasal congestion

Spinal meningeal cyst, Breast mass and Fall

9.8.2021 – Perineural cysts found on my spine. Causes lower back pain. Doc says I probably had them all my life. Pain started after a fall.

11.15.2021 – Head cold and cough after being on a 7 day cruise. Am going to take a Covid test in a while just to make sure it's just a cold.

11.23.2021 – Bad head cold and cough after a weeks cruise to western Caribbean. Never got off the boat. Covid test was negative, apparently it's just a head cold.

1.24.2022 – Lump in my left breast Diagnostic imaging

Hostility, Breast cancer stage IV and Metastases to lymph nodes

4.30.2021 – Went in store with mask a few hours after shot. Felt sudden tiredness, sluggish, joint aches, some gastric and respiratory discomfort, light sweat and odd prickling sensation. Got my things and out quickly. Took drop of peppermint essential oil on tongue and most of these symptoms quickly subsided. Nothing more after several hours but sore shoulder and general fatigue

5.1.2021 – I feel like I rode a horse for Pony Express 50 miles nonstop while pursued by bandits and hostile natives, then climbed to top of nearby 9500' mountain peak all with no preparation for such strenuous effort. Also despite fatigue I was wide awake last night, difficult to sleep. Now I feel like the evil witch who cursed Sleeping Beauty did a number on me and I would love to sleep for a hundred years.

5.3.2021 – Very fatigued, with insomnia again. When I finally fell asleep I soon woke at 3 am in a sweat despite the room being quite chilly.

11.12.2022 – Tingling in arm

Renal mass, Colitis ischemic and Clostridium difficile infection

3.21.2021 – I regret that this is coming today (Sunday), since I had the vaccination on Friday. Almost precisely 12 hours after the injection, I had a severe nerve pain from the vaccination site down to my left wrist. I then began chills, nausea, fever, fatigue, joint pains, muscle aches, and a facial rash. Today, I am left with only extreme fatigue, some muscle aches, and a small headache. I hope to be over it all by tomorrow.

6.18.2021 – Eye infection, resisted antibiotic (Doxycycline); has seemed to respond to Erythromycin ointment, though not 100%, yet. Emergency ophthalmology appointment twice

9.17.2021 – I have had C-diff since late July, and it caused ischemic colitis. I am still on Vancomycin for the C-diff. In a scan to look for diverticulitis, doctors found a mass on my right kidney.

Apathy, Food poisoning and Abnormal dreams

3.15.2021 – Ive been having very restless sleep with anxious dreams for the past week. I have no idea if its related but I thought I would join the survey just in case.

4.16.2021 – Today I have a headache. Last weekend, starting on Saturday night - a week and a day after my second vaccine, I had an upset stomach, diarrhea, slight fever and fatigue. I was down all day on Sunday and felt 80% better on Monday, fine after that.

5.7.2021 – Right after I did my last check-in, I got an upset stomach, diarrhea, and felt yuck late Friday night and half the day on Saturday. I think it may have been food poisoning, though, as the friend I had dined with was also feeling ill.

6.9.2022 – Cold/flu symptoms, dizziness

11.25.2022 – On Monday I was very lethargic. I didn't feel like doing anything at all, no energy. By the evening I got some energy back and was fine. On Tuesday my husband was down with fever and chills and tested positive for Covid that evening. I tested neg.

Bone contusion, Fall and Wheezing

4.24.2021 – Asthma acting up. Wheezing and coughing

4.26.2021 – Asthma acting up

4.27.2021 – Asthma still acting up.

4.28.2021 – Asthma still acting up

5.5.2021 – Yesterday my arm hurt mildly at the injection site for about 15-30 minutes

7.21.2021 – Got a cold flying home from my sisters funeral. Not covid- got rapid and more thorough tests Pulmonologist

11.3.2021 РI had diarrhea one day (Monday). It was about 4 days after a concert we went to, but have had no other symptoms. I suspect the salmon pat̩ we had for dinner before the concert had gone bad.

4.27.2022 – Bruised ribs. I fell on Sunday Nurse hotline

Lower respiratory tract congestion, Ligament sprain and Pulmonary congestion

3.30.2021 – Mild headache, minor nasal and chest congestion, occasional cough - probably related to COPD and not the vaccine

6.9.2021 – Sprained knee and related inflammation

11.11.2021 – Coughing upon waking, sneezing, headache, nasal congestion, stomach upset

12.29.2021 – Bronchial congestion

4.15.2022 – Minor coughing

5.14.2022 – Congestion sneezing coughing slightly elevated temp (not fever level) minor sore throat seems to be starting fatigue (could be from heat and insomnia). 2 negative home COVID tests in the past 3 days.

10.13.2022 – Minor chest pain/angina

12.9.2022 – Sniffles nasal congestion

Nerve compression, Skin discoloration and Nodule

3.8.2021 – The whole area that is swollen is black/blue/purple

3.17.2021 – My whole arm is swollen. I have a red 3 inch circle around the vaccine site that turns purple and grows larger the more i move my arm. The pain in the joints of my arm is a steady 6 of of 10 with pain medication.

3.24.2021 – Severe swelling and pain in arm

4.14.2021 – The seeking in my arm has gotten to the point it is pinching the nerve in my elbow. I still have increased pain, believed from swelling in my shoulder. A small lump/nodule had formed under my arm between the elbow and shoulder.

6.2.2021 – The swelling has now spread further on my arm. Office visit- many

Neurological symptom, Influenza like illness and Vertigo

8.8.2021 – Runny nose, sneezing, headache

10.25.2021 – In less than 48 hrs after 3rd vaccine dose, I had severe nauseousness & vertigo like symptoms that lasted for 8 days. I did go to my GP & got some medications. Symptoms went away for over 2 wks & came back. I have now had 4 days of nauseousness. Dr appt with my GP

12.25.2021 – Cough, muscle aches, headache, runny nose, fatigue, chest pressure

5.15.2022 – I had 3 days of nauseousness, flulike aching, chills & very sore arm this past Tues-Thursday.

10.16.2022 – Occasional episodes of vertigo like symptoms

Purpura, Blood blister and Rash erythematous

3.10.2021 – Had my shot on 2/24. Had an incident happen on 3/7. Had severe pain in my left hip joint that came out of nowhere requiring me to use a cane to get around. I dont take pain meds but i took tylenol and the next day it was gone.

4.5.2021 – Have red dot rash with purpura spots like blood blisters. Had one from 1st vac but didnt know it was from the vac. This time had 3.

4.14.2021 – Keep having a purple spot appearing on my arms. Looks like a blood blister. They were on my right arm. Now one just apoeared on my left arm. Never had this in my life until i took the mederma vacine.

4.26.2021 – Still getting purpura spots. No one ever calls to ask me wuestions, so why even send me this STUPID message# Primary care doctor

Abdominal tenderness, Gastrointestinal pain and Body temperature increased

1.10.2021 – Moderate, think may be due to arthritis

1.11.2021 – No

1.22.2021 – Saturday 1/16(8days after vaccine,) elevated temp 99.4,tender belly, diarrhea, tired. 1 Tylenol, temp 99.1, slept on off all day. Sunday temp 99.1, then 98. Belly less tender, diarrhea less-called out of work, Covid swab negative

1.30.2021 – Mild Muscle aches and tiredness are a basically a norm for me which do not interfere with my normal activities so am not checking them as symptoms

2.2.2021 – Although I am feeling quite tired, I do not think it is from the vaccine, just doing too much including shoveling!

12.2.2021 – Sneezing and runny nose with little stuffiness

4.30.2022 – Dry unproductive cough for approx 3-4 weeks and very tired. Went to my PCP, he did not see any reasons for the cough-no post nasal drip or congestion in lungs. Was sent for chest X-ray which thankfully was negative. Dr put me on Benzonatate "pearls" Office visit with PCP

10.4.2022 – A day or two after the Bivalent booster on 9/21/2022 I had an evening and morning of intestinal cramping, with a bit of diarrhea and vomiting-only that might and next morning?otherwise nothing

Telemedicine, Dry eye and Ocular hyperemia

4.10.2021 – Back pain - upper and lower back

4.11.2021 – Red, itchy eyes started one day post 2nd dose. Took Benadryl but still red and itchy

4.12.2021 – Rash is not at the injection site, but about 2 below it. The rash below injection site itches. Red, dry, itchy eyes. Telehealth visit today. prednisone was prescribed but Im not sure that I should take it.

4.13.2021 – Eye redness and irritation has improved

4.14.2021 – Rash is still below the injection it still itches but seems to be shrinking in size

4.15.2021 – Rash is going away. It is now only in a 1x1 spot about 5 below injection site

11.21.2021 – Warm at injection site

11.22.2021 – Pressure in center chest.

11.24.2021 – 4 inches Red rash from injection site and below injection site

11.25.2021 – Area of rash down my arm from injection site is about 4" x 6"

11.26.2021 – Rash from injection site down my arm to elbow

11.27.2021 – Red rash from injection site to elbow

Disturbance in attention, Ear discomfort and Vision blurred

1.18.2021 – Difficulty focusing/concentrating. Hard to do my job today.

1.29.2021 – Tiredness, sore throat on right side and right ear bothering me Tuesday through Thursday this week. Today is better- sore throat is less noticeable.

11.7.2021 – Mild lightheadedness for a few days

6.23.2022 – Was covid positive from 6/5/22 to 6/16/22. First negative test 6/17/22

6.24.2022 – Light headed

6.25.2022 – The injection site feels warm, I've felt warm most of the day and my head feels light headed and feel like i want to sleep

6.27.2022 – Light headed and dizziness

12.15.2022 – Stuffy nose., congestion, headachy, tired/fatigued.

Macular degeneration, Muscle discomfort and Eye disorder

4.24.2021 – Extremely tired and muscle soreness

5.18.2021 – On and off muscle soreness in both arms and shoulders

1.2.2022 – Muscle and joint discomfort and little pain in shoulder and arms.

1.16.2022 – Left eye issues

3.13.2022 – Left eye leaking blood with no underlying medical issues prior to 3rd vaccine. Also energy level is lower. seeing 2 doctor's

6.14.2022 – Left eye issues Medicare

12.14.2022 – Developed eye issues macular degeneration. I have no history of diabetes or high blood pressure. This issue started after i received covid vaccines

Adnexa uteri pain, Premenstrual syndrome and Arthropathy

3.12.2021 – Blurred vision (a sensation of being crossed eyed for a few moments, it was something I've never experienced before)

3.24.2021 – Six days after the vaccine, I became very fatigued. I kept falling asleep. That same night, the lymphs under my arm started to hurt. It was painful for 2 days. Then my arm started to hurt and itch around the vaccine area.

4.9.2021 – Sinuses and throat feel very dry and irritated.

5.12.2021 – Headaches every day and my stimach often feels sick, sometimes to the point of vomiting.

5.19.2021 – I noticed I get fatigued more easily.

10.6.2021 – About a month after the 2nd shot i started having pain in my rt ovary that lasts days. I get it every month. I haven't had any female issues or a period since before covid. Now i get symptoms of my period is going to start but no actual period.

4.8.2022 – My joints hurt. I did not have this before the vaccines.

6.25.2022 – Stomach bug/fever, joint issues and high sugar level. I will be going to the doctor June 28th to check about the issue with blood sugar and joint issues. In office appt

Nail disorder, Inflammatory marker increased and Paresthesia oral

3.26.2021 – Thirst. Strange tongue feelingas if thickened or coated. Dulling of taste.

3.27.2021 – My skin feels hot like I have a fever, but Im fine. Checked twice today and no fever.

3.28.2021 – Having the same hot feeling as if feverish without a temperature, but much diminished today

10.9.2022 – I see to be having slightly elevated temperatures in the evenings. Nothing over 100, usually 99. And it doesn't last long.

10.27.2022 – Low grade fever, occasional stomach cramping & diarrhea

Stickler's syndrome, Knee operation and Knee arthroplasty

3.2.2021 – Migraines

3.3.2021 – Fibromyalgia

3.4.2021 – Fibromyalgia, (b)(6) Syndrome

4.1.2021 – Fibromyalgia, Stickler Syndrome

4.15.2021 – I feel very warm and very tired.

4.29.2021 – Sinus infection Office visit

6.24.2021 – Went to ER with neck pain, headache and feeling very hot. They did not find anything but said I probably had a virus.

10.16.2021 – A cold

12.20.2021 – Stuffy nose and congestion.

5.25.2022 – Diarrhea and congestion Pcp

8.24.2022 – Worsening of IBS Office visit

9.15.2022 – Fibromyalgia Stickler Syndrome Arthritis

10.7.2022 – Knee surgery

10.14.2022 – Knee replacement

Renal pain, Head discomfort and Paranasal sinus discomfort

3.20.2021 – Dizziness, general itchiness

3.23.2021 – Intermittent dizziness

3.25.2021 – Intermittent dizzily

10.29.2021 – I had the booster a whole week ago. By 8 hours later I had lower back pain muscle aches and chills but no fever. My head felt really heavy and I had sinus pressure All lasted until the following night

3.30.2022 – Tinnitus

3.31.2022 – Lower back pain

4.1.2022 – Kidney pain

4.2.2022 – Still have kidney pain and still have tinnitus (since a few hours after vaccine).

4.3.2022 – Kidneys still hurt, still have tinnitus

4.4.2022 – Still mild kidney pain, still have tinnitus

9.8.2022 – No

Suture insertion, Sluggishness and Aphonia

1.7.2021 – Had one episode of gastrointestinal discomfort in the middle of night. Was very intense for very brief period of time.

1.12.2021 – I've been constipated since vaccine. No change in diet or med regiment

2.2.2021 – Odd feeling in torso area; stitches.

2.6.2021 – I feel really drained. This shit better work.

2.7.2021 – I still kind of feel like trash

5.4.2021 – Exhaustion; dragging feeling.

2.4.2022 – For a period of roughly a week; sore throat, loss of voice, slightly labored breathing, cough, fatigue.

Oxygen saturation decreased, Breast pain and Flatulence

4.21.2021 – Shot was 2 days ago. Symptoms and degrees varied between both days & x of day. My reporting is based on today only. Ok?

4.23.2021 – Foul smelling gas, w/out eating anything out of the ordinary....

4.25.2021 – I have had swollen glands off and on all 7 days and forgot to put that down.

4.26.2021 – Swollen lymph glands in neck

5.24.2021 – Sore/achey breasts and under upper arms and arm pits, somex burning feeling, somex itchy - all intermittent not continuous, but throughout the day. Same stuff happened a couple weeks back but to a lesser degree so I didn't think too much of it. But

6.6.2021 – I answ'd the first x u sent this 6 week survey; but it didn't have an I don't know response for 1 of the ?'s ....I have no idea if the symptoms r related to vaccine. I'm just reporting all things new.Burning & painful under arms & breasts-10 days

7.19.2021 – Cough, sore throat, headache, diarrhea, asthma I found my primary to see if I needed to have a covid test before I go in for my annual physical in 2 days into days.

10.20.2021 – My asthma is much worse, every day now. prev 15 d/yr 02 down to 80-83 for 12 hours 1 day. (Rapid test was negative even w/ horrific cough.) O2 often in the low 90's now. They have added 2 new meds to help me & a consult with an allergist this week. & my PCP 3x

Eye inflammation, Food allergy and Cognitive disorder

3.11.2021 – Inflammation of eyes

3.12.2021 – Eye Inflammation

3.30.2021 – Severe acne breakout on entire upper body

4.8.2021 – Joint pain in elbow remains, and seems to have extended to wrist and fingers as well as shoulder. Hinders sleep and daily activities but doesn't prevent.

5.6.2021 – I believe tendinitis in my right arm- elbow and wrist. Various intensities of pain. Primary care physician

9.23.2021 – I became allergic to tree nuts. Specifically pecans. Just being complete, even though unlikely related.

7.13.2022 – Cognitive decline after covid infection. Primary Care Physician

Hepatic cyst, Allodynia and Initial insomnia

4.20.2021 – Allodynia. Paresthesia possibly unrelated. Some insomnia. Chills werent as bad as Ive had in the past.

4.21.2021 – Slept from 127am to 339pm, havent gotten out of bed yet but did have some breakfast. Probably slept so late since I had so little sleep the past few days. Night before vaccine I had 4 hr 38 min. Night after vaccine 2 hr 19 min. Nap later that day for 1 hr 3 min. Woke up feeling sweaty. But I had a fever of 100.6 and at 1249am (last time I checked before falling asleep). Assuming fever broke in the night. Temp was 98.1 at 906am and then 97.9 at 321pm. Having some itchiness at my pre-existing eczema flare sights. Probably unrelated to vaccine.

4.22.2021 – Itchiness due to eczema. Probably unrelated to vaccine. Also pain at injection site is just soreness to the touch.

4.23.2021 – Itchiness at pre-existing eczema flares. Doubt related?

5.10.2021 – Right (opposite side of injection) cervical lymph node enlargement 1cm. Probably unrelated as different side from both injections. Doc ordered (bacterial/strep) throat culture it was negative.

5.27.2021 – Passed a kidney stone. Abnormal CBC and urinalysis. Have had kidney stones before.

7.25.2021 – sleep difficulties (waking middle of night and sometimes falling asleep. Possibly due to pain Or restless legs). Muscle and all over pain. Including soles of feet. Recently diagnosed with small liver cyst, two more kidney stones CT and ultrasound for kidney stones.

5.11.2022 – arm pit pain on both sides. Possible other lymph node pain.

5.12.2022 – Lymph node pain in multiple sites (opposite side of body from shot). Swollen arm pit. Possible increased restless leg syndrome symptoms. No fever but temp at one point 99.3

5.14.2022 – Neurological: possibly restless leg syndrome flare, but at times so bad felt almost like akathesia. Lead to insomnia. Flexiril didn't relieve symptoms, had to take Ativan. Rash on arm but not at injection site.

5.15.2022 – Severe restless leg, aleve and flexiril didn't help. Tramadol provided slight relief. Insomnia.

5.17.2022 – Insomnia due to pain and restless leg

6.21.2022 – Weight gain. Possible increase in appetite. Migraine today. Body aches/muscle pains.

Dyspnea exertional, Dyspnea and Lymphadenopathy

3.27.2021 – Nothing as of yet.

3.28.2021 – Really feel short winded

3.30.2021 – For some reason I had a sore throat this morning and the gland on the right side of my neck was swollen nothing painful just noticeable maybe Allergies.

4.1.2021 – Breathing Issue when walking short distances never experthis before. Have to sit in a chair when cooking due to shortness of breath.

4.2.2021 – Continuing to have shortness of breath. It happens when I walk short distances. Maybe its a mild reaction to my vaccines.

4.24.2021 – For some reason I have been experiencing shortness of breath when standing for 30 minutes or longer periods of time. I will contact me Primary Doctor so we can get to the bottom of this issue. I did not have this issue before I got my vaccine.

Erythema of eyelid, Hordeolum and Blister

4.8.2021 – Swelling in left arm where injection site was and itching : applied alcohol on injection site ans also had some numbness in left arm.

4.29.2021 – Stress from arm pain brought out shingels on left leg . its a patch of blisters i think its shingles because they have came out before when i had stress

7.17.2021 – Stys on both eyeelids / red stys under eyelid and stys on bottom eye lid. Red painfull appeard after i had shotts

10.14.2021 – I have had STYS on my eyelid since my shots

Gingival pain, Throat tightness and Asthma

3.18.2021 – Scratchy throat and coughing

3.23.2021 – Coughing and tightness in my throat.

3.24.2021 – Coughing and some shortness of breath.

4.7.2021 – My allergies have been awful. I cant help but think that is one of the reasons for the way I feel. I have an allergist and have been taking my meds for that.

9.15.2021 – I had bronchitis and asthma.

2.24.2022 – Sinus infection and extreme pain in my upper gum. Clinic visit and to see a dentist

5.5.2022 – I have a sinus infection. Saw ENT yesterday and got antibiotics.

Gingival disorder, Tooth disorder and Stress

2.25.2021 – Yesterday day of shot - occasional dizziness.

3.17.2021 – Slightly lightheaded 1-2 hours after.

3.20.2021 – No

6.16.2021 – Mostly upset stomach and lack of consistent appetite. For about a week. It could be anything. It could be stress.

9.15.2021 – Stomach issues. Upset stomach and pain in left side of navel. Could be anything. Getting a CT scan in a week. Just a doctors visit to get a CT scan

10.12.2021 – Just a tooth or gum issue. Not related to booster.