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Their Stories

What v-safe registrants wrote to the CDC after their Pfizer or Moderna shots, in their own words. Each card is one person, with all of their free text. This page shows only the longer stories: the 116,000 people who wrote at least 400 characters in all. The text is as the CDC released it, except that email addresses and phone numbers are hidden. You get a random set of these people on every visit.

Shuffle

Urinary tract disorder, Formication and Micturition urgency

637-15502-61572

– Skin crawling, tingling tounge

– My finger joints were swollen upon waking.

– My tounge is tingling again. Also, my feet are tingling now. Have never had these symptoms before vaccine.

– I feel strange. My tounge is still tingling and my feet. Feel very nervous but tired. I'm just not myself. Hope this doesn't last long.

– Still feeling nervous. Still have tunge and feet tingling

– I ran a fever on 3/11/21 of 99.5°F for about 24 hours, my normal is 97.4°F. Snice then I have been fine.

– Since vaccination my skin has a tingling/crawling sensation, including my tongue. Have others reported this side effect?Also, not previously reported because I didn't put it together. I had sever breast tenderness, post menopausal, has subsided now.

– Mild tingling over body

– Burning pain when urinating, urgency to urinate. Gums bleeding when brushing teeth, I have good teeth and gums, twice yearly cleanings.

– Skin tingling/crawling like with the first shot. Also, my gums aren't bleeding anymore, but they are sore. Gorgot to put tgese in yesterday's report. My RheumatoidArthritisis flaring up. Haven'thad a flare up in at least 5 years. And my last blood work taken 2 days before second shot came back elevated. My number hasnever been this high..

– Skin crawling/tingling. Urinary irgence is getting worse again. Just dont feel normal

– Skin crawling/tingling. Gums still sore. RA still flaring up.

– Same as reported in prior days

– My Rheumatoid Arthritis is still flairing up and getting worse. I have no energy, extreme fatigue and depression. It is a chore to shower, I'm weak. This is concerning. How long are these symptoms lasting in others? Can someone please call me? Am going to call. Have been eaiting for symptoms to subside. Really, what can they do?

– Extreme fatigue. My RA is flairing up. Feel sick all the time. Should have never got the vaccine. Is this going to last? Can someone please call me? (b)(6) In office

Wound, Sjogren's syndrome and Neuropathy peripheral

637-23484-48126

– Slight soreness at injection site

– Dry eyes and dry mouth due to autoimmune Sjoegrens Syndrome seem to be worse.

– Hard to tell if vaccine related because I have Sjoegrens Syndrome with same symptoms.

– Above symptoms mostly related to Sjoegrens. Dry eyes and dry mouth have been more severe since vaccine.

– To Doctor -UTI. Starting antibiotics. No fever. Visit with PA. In office.

– Joint, muscle pain probably due to my pre-existing Sjoegrens Syndrome.

– Joint pain. Sjoegrens Syndrome.

– Above symptoms are associated Sjoegrens

– Tetanus shot for puncture wound on hand.

– Neuropathy in three fingers of right hand Neuropathy in feet worse.

Tendon pain, Neuralgia and Tenderness

637-23540-04875

– on November 7 2021

– Numbness seems to be migrating to my arms.

– Nerve pain in both arms from your maiden biceps to wrist. Back and stomach numbness getting a little bit better.

– The tendons in both my forearms are sore and tender to the touch. Cannot stretch out my arms without a sharp pain in biceps and wrist.

– I still have numbness in my forearms from the Moderna booster shot. The sever pain and sunburn sensation around my abdomen and numbness in my thigh muscles is gone. Concern of long term numbness in my forearms.

Migraine with aura, Alopecia and Rash pruritic

638-15187-02687

– Migraine aura

– I developed an itchy rash approximately 1 - 2 inches below the injection site, it began 9 days after the vaccination. My arm also became swollen coincident with the rash. The rash is still there today. The bruise at the injection site returned.

– Continuing itching, swelling and redness below injection site, heightened anxiety, headaches, muscle and joint aches and pain

– Sinus congestion

– Moderately severe migraine-type headache with aura, runny nose, joint pain

– Headache today. Headaches have continued off and on with varying intensity since receiving the first and second doses of the vaccine. Also still have some itching below the injection site that comes and goes.

– Fatigue

– Anxiety

– Increased anxiety, insomnia

– Insomnia, anxiety

– Higher blood pressure

Rheumatoid arthritis, Ear pain and Respiratory tract congestion

638-19446-49457

– Not sure if this could be a flare up to his rheumatoid arthritis

– Again not sure if it's flare up from the RA

– I ended up testing positive for covid 19 and presently I am hurting because of my rheumatoid arthritis I was unable to get my second infusion because I had covid-19 okay Monoclonal antibody infusion as well as infusions for rheumatoid arthritis was unable to go for the second infusion due to having covid

– Think I am having a rheumatoid arthritis flare up

– Test positive for covid on 9/13/22. Bad cough, congestion, ears hurt at the end

Back disorder, Muscular weakness and Nasopharyngitis

638-32255-89928

– Left leg feels very weak. Takes an effort to lift it.

– Im concerned that I didnt have the vaccine injected. Didnt feel anything and I certainly did the first time. Suspect the person who was doing the vaccination didnt know what she was doing and messed it up

– I have a cold.

– Not related to COVID. Back problems

– Unrelated back problems

– Tired, cough, breathing

– Tested positive for COVID

– Not related to COVID

– Dry cough lingers.

Motion sickness, Fall and Atrial fibrillation

639-27710-58895

– Felt carsick on the way home, like when you get hungry. Went away as soon as I ate something.

– hard time sleeping last night. very tired today

– migraine headache, but have had these in the past. seems to be okay at this time.

– Dizziness from inner ear

– Fell and possibly broke rib. Blood pressure and heart rate went up after this. When I went to doctor for the blood pressure and heart rate EKG showed that I was in atrial fibulation.

Polymenorrhea, Dysmenorrhea and Menstrual disorder

639-32362-72793

– I got my period For the first time in a year and a half, 2 days after getting The vaccine

– I still have my period that started a couple days after the vaccine (the cramps started the day of). Not sure if getting the dose in the same arm as my birth control insert had any affect on that.

– I got my period for the second time in 3 weeks.

– I think the vaccine messed with my birth control implant. My periods have been very often and unregular since I got vaccinated

Lymphadenitis, Lymph node pain and Axillary pain

63A-18699-36506

– Pain in my left underarm due to inflamed lymph nodes ( this happened to me once before following a flu vaccine)

– Lymph node inflammation in left armpit (had shot in that arm)

– Lymph nodes still inflamed but not as painful

– Still have slightly inflamed lymph nodes but getting better

– Nausea, chills, dizziness and fatigue that lasted for 4 days. Took an at-home test that was negative. Thinking it may have been the flu. Not sure. Talked to my doctor but didn't go in to the office. Been fine since.

Allergy to chemicals, Hypersensitivity and Urticaria

63A-20928-96970

– Unusual mild itching without rash on back.

– Mild itching on more body areas than yesterday. Both arms and legs and back. No rash.

– Major allergic reaction to memory foam furniture. Severe hives only, no respiratory symptoms. 3 weeks after booster. Almost completely resolved now after 3 courses of oral steroids and antihistamines. Never had similar reaction previously.

– I had COVID-19 at the end of August.

Eye hemorrhage, Lower respiratory tract infection and Tremor

63A-26838-83257

– Shaky & lightheaded

– Broken blood vessel in left eye. Swollen left lymph node on left side.

– Increased heartburn at night, low grade temp at night

– Extreme dizziness for since midnight.

– Extreme dizziness started again this morning. Lymph nodes in left neck swollen & painful.

– Dizziness throughout night, neck pain & head pain significant overnight.

– Dizziness & nausea during night & until noon. Urgent care yesterday due to continued dizziness.

– Dizziness during night. Less then previous days.

– Mild intermittent dizziness

– Increased flares of hemicrania continua

– Fever

– Fatigue 2-3 days a week since vaccine

– Headache Fatigue

– Fever, cold like symptoms, chest infection for 5 days. Negative raps Covid test.

– Continued cough/bronchitis

– Increased episodes of dizziness

Ear dryness, Eyelid skin dryness and Eyelids pruritus

63A-27717-22558

– I have small fiber neuropathy, my symptoms have worsened somewhat since my first vaccine, dont know if coincidental or result of.

– Dry itchy skin around eyes, my legs and hands have begun to show signs of neuropathy progression, not sure if related to 1st vac. of 1/19.

– no

– continuous shock-like buzzing tingling sensation in toes of right foot A new symptom for my small fiber neuropathy

– still slight tingling of toes (small fiber neuropathy)

– same as previously noted: slightly worse neuropathy symptoms in feet and hands (burning and tingling)

– very painful burning feet (neuropathy) and hands last night, dizziness, worse side effects so far.

– Tuesday evening 3/2 had the worst night - pain in toes of both feet and ankles; right root the worst, had to take extra gabapentin and use strong pain relief.

– Pain, sensitivity and burning in hands, burning and sensitivity in feet, burning and incessant itching on neck.

– tested positive for herpes 1

– Developed sjögrens symptoms of dry mouth, eyes, ears, skin and vertigo and very stiff neck which come and go.

– I've had the "burning mouth syndrome" return -I'm not positive it was caused by my 2nd Pfizer vaccine but many Sjögren's symptoms after that time period which I had never had before and I have always been very healthy in the past.

Abnormal menstrual clots, Gait disturbance and Dysmenorrhea

63A-28708-25315

– My legs are dragging when i walk my arms i can barely lift over my head

– Dizzy felling faint

– Leg pain in foot and lower calf

– 2 days after receiving the vaccine i started my period wich was not my time to start i am never a heavy bleader on my period i have been very heavy with cramps my periods my while life have only lasted 3 days i am still heavily bleeding

– Pain right foot and leg continued period with large clots size of quarter and half dollar very heavy bleeding

Rheumatoid arthritis, Nausea and Dizziness

63A-29563-49510

– Slight fatigue

– Last night I felt bad, like I would feel if I was getting sick, everything hurt. Today that was gone. Also I suffer from RA so I alreafy have joint pai, but it definitely made it worse.

– A little lightheaded

– After I filled this out yesterday, I felt way worse in the evening. Today so-so. I also have RA which causes the joint paon already. But it has made it worse.

– Lightheaded

– Mildly lightheaded

– Nausea started last evening and lasted until early morning

Ocular discomfort, Rash macular and Upper-airway cough syndrome

63A-30435-38618

– An hour after the shot I had severe pain, plus swelling. I still have both today, but the pain is not as severe.

– Sore throat, probably from normal post nasal drip

– I dont think it is related to the vaccine because I have had it prior to getting it. But I think I should mention that I got a rash under my breast that looks like an allergic rash.

– Runny nose from allergies

– Skin around area not fully red, but is blotchy. Swelling is worst symptom.

– Pressure behind right eye. Opthamologist, who ordered a scan, which showed nothing. Symptoms continue, so am escalating to my primary care doctor.

Pituitary gland operation, Nasal irrigation and Pituitary tumor benign

63A-36108-88536

– I have a pituitary adenoma for many years that they watch and am experiencing new vision changes.. I'm waiting for test results to see if I need surgery to remove the adenoma.I hope not .

– Had surgery 4 days ago to remove pituitary adenoma. It's been awful.

– Just had surgery to remove a pituitary adenoma on Monday

– I am post pituitary adenoma surgery trans sphenoid (feb 14) and have developed fever and green mucus . Antibiotic and steroid via nasal irrigation's and also oral antibiotic are helping. Surgeon said this happens a lot post op and to be on the watch for it.

Sports injury, Irritable bowel syndrome and Taste disorder

63B-12278-20329

– I had significant pain at injection site prior to the shot due to a sports injury FYI. Not sure how much was from the shot.

– Actually I think Ive been tired for a few days. Probably should have checked that box earlier.

– Past few days some IBS style GI issues.

– Had Covid typical symptoms Not serious but lingered Have pretty much recovered I think ( havent exercised yet) smell and taste not normal yet. Was around unvaxxed people with covid - my vaxxed family never got it.

Coronary artery stenosis, Atrioventricular block and Blood glucose decreased

63B-15981-94668

– I had slightly elevated temp (99.3) and chills. I run low in the 97 range.I had a headache but I had it before the vaccination, but waited to take Excedrin until about three hours after the vaccine yesterday 2/1

– I woke up in the middle of the night with nausea, then I had trouble falling back to sleep. When I got up, I had to rush to the bathroom with loose bowels, then two more subsequent runny ones, but feeling better this afternoon

– I have type II diabetes. I dont know if its connected in anyway to the vaccine, but my fasting blood sugar was 144, but 3 1/4 hours later, before lunch, I had a reading of 79 and 83 when I double checked. It has never been that low

– My temp is normally under 98. Its 99.4 right now. Arm still a bit swollen and painful to touch or raise, but much better today.

– Abdominal pain and nausea was last night and into morning

– The night after my last check in, I was having chills, then in the middle of the night, I woke up in a sweat. I have also been having stomach pains on and off since I received my second shot.

– I cant say whether its related to the vaccination, but I have been having digestive issues again, like heartburn/acid reflux. Also sneezing & runny nose-allergies?

– Fatigue, back pain in the right upper quadrant for a week so far, not sleeping well

– After my check in yesterday, fever went up to 102° F before I took Excedrin, then it started to slowly go down

– Pain along both sides of my neck

– I had joint pain and neck & low back pain

– Fatigue, some joint pain

– I have not been sleeping well and feeling fatigued, postnasal drip and headache almost every morning.

– Vertigo, nausea, chills, headache, stomach pain below sternum the back, low grade fever

– Pain in the armpit of the arm of the injection

– Soreness in the armpit of vax arm. Didn't have it with the other 3 vaccines

– Soreness under the arm where the vaccine was given and also at the side of the vaccine

– Starting 7/12, I got a headache, sore throat, sniffles & few sneezes. Took home test, neg. 7/13, all minus headache plus tired & 100.6 7/14 woke w/101.9, bad aches, scratchy throat, cough from irritation Test neg on NAAT C19 test & flu test better

– Sniffles, fatigue

– diarrhea

– Digestive issues, diarrhea Fatigue

– Mild cold symptoms, headache, sinus pressure, fatigue, low-grade fever

– Burning sensation front of upper arms and across chest in the middle of the night. Insomnia, muscle soreness Getting a stress test and an endoscopy. Not sure about the question whether vaccine caused symptoms on the next to last question

Pulmonary pain, Paranasal sinus hypersecretion and Body temperature increased

63B-16641-25241

– Sore throat

– I picked up a cold, My symptoms were fatigue, runny nose, sinus drainage, sore throat, a little cough. I tested negative for Covid

– I had headaches for two days in a row

– Sinus pressure and discharge, body aches, fever of 99, fatigue

– Post nasal drip, maximum fever of 101.1, chills, body aches, fatigue, intermittent loss of taste and smell, loss of appetite, very productive cough with mostly white phlegm, feeling of not having as much room in my lungs, one day of sore lungs

Myalgia, Chills and Fatigue

63B-17822-09173

– I get headaches frequently so not sure it is vaccine related and may just be tired due to the holidays

– This survey did not check in the day of my second dose or the day after. I did experience fatigue, chills, headache and muscle aches for alittle over 24 hours (received the vaccine at 12:30 and symptoms started at 5 or so. Able to manage with Tylenol but it did change my plans. Very thankful for the vaccine!

Ophthalmic herpes zoster, Swelling of eyelid and Eye swelling

63B-26478-70459

– The morning after I received the vaccine, I awoke with a red and swollen right eye. I experienced extreme tearing and moderate pain in the eye, as well as a continuous runny nose. All symptoms were gone by early afternoon.

– The morning after my 2nd dose, I wokeUp with a terrible outbreak of shingles that covered the right side of my face from under the brow to my cheek bone. My right eyelid was covered and my eye nearly swollen shut. It took over a month to to clear Ophthalmologist

Fluid retention, Joint swelling and Depression

63B-28840-79473

– Weird metallic taste, food, drinks or just licking my lips taste like Ive been sucking on a metal pipe

– Little congestion and runny nose

– Still have light metallic taste

– Metal taste in mouth

– High heart rate

– Sneezing and runny nose

– Swollen neck glands

– Swollen glands

– Anxiety, retaining water had a swollen gland

– Anxiety & depression Swelling in anklesSevere heartburn Couple of calls to primary Dr

– Been sick with sneezing, cough stuffy nose

Sensitivity to weather change, Pulmonary congestion and Secretion discharge

63B-92078-80268

– Light headed

– Dizzy

– Difficulty breathing. Nasal snd sinus congestion. Tightness in the lungs. Cough with white snd sometimes yellow mucous. Went directly to my provider

– Cough and chest and sinus congestion that turned into bronchitis Dr office treatment

– Extreme joint pain and burning sensations

– Diarrhea and nausea and vomiting last night

– Vertigo. I had covid in late December 2019. It did damage to my inner ear. When I get the vaccine it triggers the vertigo. Also weather changes can trigger it like last week

Dry throat, Paranasal sinus hypersecretion and Sinus congestion

63B-98087-74640

– Very dry and very sore throat/ causing coughing

– Dry and sore throat. Sinus congestion and drainage

– Still have my sinus congestion and sore throat

– sore throat (not as sore as it's been). Mild sinus congestion.

– Sore throat gone. Still a little scratchy. Not bad.

– My shot sight started hurting again; about a week ago, to current. As if Id been punched, leaving a deep painful to the touch bruise, (the feeling you get after getting a shot). Its weird.

– Ive developed a sore throat the last 4 days. It feels very similar to the one I developed for the first 11-12 days right after I received the second shot. ( I dont know ifs related or not, I dont go many places very often other than home

Balance disorder, Joint swelling and Blood pressure increased

63C-27265-80131

– Hbp. Rapid heartbeat

– Very slight dizziness in the am.

– Swelling in legs and ankles. Occasional am very slight dizziness.

– Very slight dizziness/slight chest discomfort

– Axlite dizziness.

– Headache, some nausea

– Swelling legs, ankles and feet. Small headache.

– Extreme tiredness. Headache. Pain and swelling in legs and feet. Aching joints. Brain haze.

– Heart rate still too fast at times. On medication.

– A little chest pain. A little off balance.

– BP seems to be higher since vaccine.

– Some dizziness.

– More tiredness and dizziness sometimes.

Tooth abscess, Ear congestion and Gastric disorder

63C-92302-74804

– The diarrhea was prior to vaccine.

– Vaccine in right shoulder. Occasional (new) joint pain in the right shoulder, but also recovering from adhesive capsulitis in that shoulder.

– Fever off and on. Stomach still questionable, but doing okay.

– Tooth abscess (unrelated)

– Had significant flu like symptoms for 2 days after the second vaccine. But, I don't think current symtoms are related to vaccine.

– Haven't had menstrual cycle since Sept 18, but could be related to other things. Also sinus infection, but I tend to have those chronically.

– Ear stuffiness/infection. Will see doctor this week.

Parosmia, Bronchitis and Injection site warmth

63D-22584-50474

– Sore throat

– Scratchy throat, sniffles

– Shoulder joint pain. Needing physical therapy to treat. Physical therapist

– Contracted bronchitis. Symptoms lasted 2 weeks. Covid test was negative. In person Dr. Office visit

– Injection site feels quite hot.

– Injection site feels hot to the touch.

– Since the shot, I have been smelling cigarette smoke where there is none. It isn't all the time - it comes and goes.

– Headache, nausea

Oral pruritus, Furuncle and Lip blister

63D-26192-35692

– Acne / boils around my facial hairline. Blot clot/radiating pain in my chest, back, & head.

– The worst frontal lobe headache ever. Aspirin is helping. Still having chills. Now having some dizzy spells and pain behind my eyes. Very lethargic and lots of cramping in my pelvis, neck, legs and back. Messaged my PCP MD.

– Fatigue, low grade fever, chills, headache, pain in chest, sore throat, sneezing, runny nose

– I had an allergic reaction to the vaccine. Itchy throat & mouth, and warmness through my head & neck. Went to ER to get reaction to calm down.

– Super tired eyes and cold like symptoms

– Lots of gas & lower back pain

– Very blistering lips & shortness of breath.

– Left Eye is swelling up and giving me pain where I had a laser barricade surgery last year. Chills.

– Heart pain & tightness in my chest

– Heart & chest tightness and numbing sensations in lungs and neck.

– Pressure in my left frontal lobe area of my head.

– Lots of sensation in my brain frontal lobe. Headaches and also shortness of breath and lung pain.

Renal tubular necrosis, Cholera and Gastrointestinal bacterial infection

63F-11134-23221

– Sleeping

– Extremely tired

– After the 1st 2 days, I felt like I had the flu or a bad RA flare and couldn't stay awake. I was like that for about a day and a half. However, since then, I'm ok. I just feel like I'm trying to get a sore throat, but I don't have one.

– Extreme exhaustionVery bad sore throat I've been in bed for a week. I'm trying to get in to see my Rheumatologist. If I can't by tomorrow, I am going to the ER

– Sore throat, post nasal

– Throat and swollen glands

– Sore glands

– Very bad sore throat. CoughEarachesSinusesStuffed noseGreen phlegm

– Severe diarrhea!Severe sore throatEarachesBad post nasal drip*I was sent for a COVID-19 test, which was negative. The doctor put me on a Z-Pack & Promethazine. I finished Zpack February 15, 2021.I still have the bad diarrhea every time I eat.

– Earaches, sore throat, bronchial cough

– I contracted an intestinal infection from eating raw oysters. (Vibrio cholarae bacterium) I had to go to the hospital and am still on antibiotics. It was very bad. I'm on immune suppressive meds due to systemic RA.

– My BP is all over the place.

– Severe diarrhea

– I had Covid-19 beginning January 15th. I had nausea, fever, and severely sore throat and ears. I had fever for 8 days and the sore throat and ears for two weeks. Now, I just have fatigue.

– I have severe systemic RA and am in a flare.

– Severe RA flare PCP VISIT/NEPHROLOGIST VISIT

Cholecystectomy, Eczema and Rash

63G-18279-63998

– My rash is a bit worse. Also, I continue to have headaches from time to time, and the headache last Thursday was particularly painful.

– I can't remember exactly when my last check-in was. In late May I was diagnosed with excema. It's not 100% gone, but it's significantly improved now. I still use the Triamcinolone cream and Cera Ve moisturizing cream.

– I had to have my gallbladder removed yesterday. outpatient surgery

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