Their Stories

Oral mucosal erythema, Ulcer and Swelling of eyelid

4.13.2021 – Eyelid spasm

4.14.2021 – The rash was a reaction to a lotion Ive been using for weeks that Ive never had a reaction to also an eyelid spasm and a mild Charlie horse

4.21.2021 – Eyelid twitch and swollen eyelid still, full body rash one day, severe shoulder blade pain two days, Charlie horse in calf still but less as time goes on

5.5.2021 – My arm still hurts bad but I find it hard to believe so it may be from something else, I cant believe an injection site can hurt for 3 weeks. Its tomorrow

5.14.2021 – I went to my neurology doctor for worsening neurological symptoms (I thought I herniated my c-3/4) and hes concerned that the vaccine may have caused my chest up numbness, tingling, pain, eye lid spasms and intense brain fog, not another disc hern

7.12.2021 – My neurologist put me on meloxicam for vax side effects. I stopped 4 days and eye twitch and short tingling came back. Back on med and twitch gone, tingling better Lab work

10.28.2021 – So sleepy

12.12.2021 – Sores on chin Cough Red mouth Shrunk uvula

Gastrointestinal disorder, Tinnitus and Diarrhea

12.19.2020 – Swollen lymph node in the armpit

12.20.2020 – Swollen lymph node—mild

12.21.2020 – Swollen lymph node-moderate

12.25.2020 – Swollen lymph node moderate

1.13.2021 – Tinnitus

1.28.2021 – Intermittent diarrhea

4.7.2021 – I had cold like symptoms (runny nose, headache, general malaise) and tested positive for covid on 3/25/21. I had mild symptoms but was still required to stay home from work. Symptoms included fatigue, low-grade fever, and aches.

9.30.2021 – Swollen lymph node, and diarrhea

10.6.2021 – A lot of GI/gut issues

Circadian rhythm sleep disorder, Plantar fasciitis and Sputum discolored

4.8.2021 – Tiredness last night ( + 8 hours after shot. )

4.10.2021 – Stuffy head - but could be seasonal allergies

5.6.2021 – Brain fog, fuzziness, kinda like a bad case of jet lag or hangover

12.10.2021 – I seem to have an elevated blood pressure , not critical and may not be associated but generally 10 points higher both sys and day

12.29.2021 – Bad cold , sneezy stuffy running nose. Some fatigue. Wife tested positive, no tests available in this area.

3.2.2022 – Slightly elevated blood pressure- may be unrelated.

7.19.2022 – Green sputum. Nasal drain , chest congestion. Energy level ok, no fever, no other issues. Negative Covid rapid test. Sinus infection gone bad ?

Abdominal distension, Gastroesophageal reflux disease and Feeling cold

1.22.2021 – Slight Pain on inside armpit only on the same arm where I got the shot.it also burned slightly.Now it feels much better just slightly sore feeling

1.23.2021 – I ticked off muscle and body ache so I would have option to write this -(Slight pain close to my underarm on same arm I had the shot. Off and on

1.27.2021 – No

2.27.2021 – Slight burning at injection site

2.28.2021 – Feeling cold

3.27.2021 – A pain on left side of my head its like a radiating pain from the back end to the front but still just on the left side dull not sharp.It happened a couple times but not everyday.I do not know if it has anything to do with the vaccine

4.10.2021 – Shingkes Drs appointment

6.20.2022 – Swollen extended stomach acid reflux.

Tendon pain, Tendonitis and Joint stiffness

2.22.2021 – Cough/ congestion

2.26.2021 – Right shoulder pain

2.27.2021 – Right hand keeps falling asleep

2.28.2021 – Right shoulder pain, right hand falling asleep

3.3.2021 – Right hand falling asleep

3.12.2021 – Swollen lymph nodes

3.19.2021 – My left lymph node by my collarbone is growing... fatigue is worsening

3.27.2021 – Left lymph node above collarbone has increased in size. Doctor is debating whether to biopsy. Went back to doctor for follow up on 2nd ultrasound

4.3.2021 – Swollen Lymph node is still there lots of tingling in my right hand fatigue is worsening

4.12.2021 – Achilles tendinitis right very soreRight hand falling asleep throughout the day especially night. Left hand pointer finger stiff and painful Physical therapist

5.30.2021 – Tendons, muscles and joints are extremely tight and achy. Achilles especially. Made an appointment with orthopedic doctor

2.26.2022 – Shortness of breath Fast pulse

Cough variant asthma, Asthma and Injection site swelling

4.23.2021 – First day after injection, my upper arm swelled, was red and sore. I also felt very tired, nauseous. For next 3 days, I had redness, swelling and soreness at injection site. No symptoms since.

5.14.2021 – Sleeplessness and increased asthma. Havent slept through the night in a week. Wake due to asthmatic coughing.

5.21.2021 – Waking up coughing in middle of the night. Some coughing during the day. Lungs feel tight. Probably asthma due to grass pollen, but reporting it anyway.

Concussion, Pulmonary embolism and Irritable bowel syndrome

4.14.2021 – Fainting

4.16.2021 – Still dealing with my concussion from blacking out and continued shortness of breath

4.17.2021 – Concussion

4.20.2021 – Concussion and pulmonary embolism

4.27.2021 – Acid reflux from PE medications

5.11.2021 – Head pain, visual issues, gastrointestinal issues like reflux, chest pain, ear pain

5.18.2021 – Worsening concussion symptoms from my syncope right after the vaccine

5.25.2021 – A lot of dizzy ness from my concussion

7.13.2021 – Major stomach issues like IBS and cramping, in addition to my concussion symptoms from my syncope and continued chest pain/shortness of breath

10.12.2021 – Regular heart palpitations

Dysmenorrhea, Menstrual disorder and Axillary pain

5.3.2021 – This last month my menstrual cycle was very strange. I had very bad cramps for three days instead of my normal schedule. I'm normally very regular and am not pregnant. I wish I had known how it can affect menstrual cycles. I was freaking out until I talked with a friend who complained about the same thing.

11.30.2021 – There's pain in my armpit? It's pretty mild

12.1.2021 – Armpit is still painful

12.20.2021 – Menstrual cycle was weird. It was more painful than usual.

Injection site mass, Epistaxis and Limb discomfort

3.28.2021 – I have had bloody discharge from nose for 2-3 days. I have never had this problem before. I also have what looks like outputs on left upper leg and lower right leg. Dont know cause of either.

3.29.2021 – Nose bleeds have ended. Reddish marks remain on legs. (Cause?).

3.30.2021 – Rash still on legs. Told by nurse practitioner it is from vaccination. She has seen others.

3.31.2021 – My legs began hurting much greater than normal last night and it is even worse today. Reddish patches are fading.

4.14.2021 – After the first vaccination I had a small outbreak of recurring shingles. Didnt think much about it because I do have them maybe every 9-10 months. Took medication and all cleared. Then after 2nd vaccination I have now broken out in a larger patch Refill of medication

10.23.2021 – Lump at injection site

10.27.2021 – Small outbreak of shingles. Had same occurrence 2-3 times after second vaccination. Doctor thinks it's related to vaccination. I had no outbreaks (after clearing up) during months between 2nd and 3rd vaccination.

11.12.2021 – Slight nose bleed two days. Same thing happened after second vaccination b

7.7.2022 – Joints, especially knees and fingers are aching a lot and very painful. Pain Clinic

Eyelid irritation, Injection site rash and Injection site erythema

3.18.2021 – Sore lymph node in armpit, on side where I got my injection. Started yesterday.

3.19.2021 – Strangely, my injection site is sore again. I still have tenderness in my armpit lymph nodes on that site.

3.26.2021 – About day 6, my injection site began getting sore again. I developed a large red rash about the size of a grapefruit. The rash disappeared after about 4 days.

4.10.2021 – My symptoms began about 8 hours after the shot. I was very sick during the night. Feeling better today.

4.12.2021 – I just feel weird, strange lightheadedness, off. The inside of my lower eyelids have a mild burning sensation. Insomnia last night which is unusual for me..

5.14.2021 – Sore neck for the last several days. I don't know what caused it so I am just mentioning it.

Memory impairment, Gastrointestinal disorder and Asthma

2.25.2021 – Tingling sensation in my arm.

3.18.2021 – Tingling in hands and feet (I got it with first shot too)

4.15.2021 – Headaches and difficulty breathing -- probably just allergies. No fever.

12.27.2021 – I have COVID. Tested positive. Stuffy nose, tired, have to periodically use my inhaler, periodic nausea. Started with sore throat & headache, but those are gone now.

3.28.2022 – Memory issues since I had COVID at the end of December. Asthma has gotten worse since then as well.

5.6.2022 – My allergies have been off the chart. I've also been having GI issues, especially loose bowels. I took a rapid COVID test to make sure it was not COVID, it was negative.

Injection site warmth, Injection site rash and Anosmia

1.22.2021 – I feel good, but developed a rash at injection site on day 8. Hot slightly itchy. Lasted about 5 days

2.26.2021 – Body aches, felt inflamed

8.6.2021 – 3weeks after 2nd shot, inflammation lower body. Same as in the past when recovering from having shingles. Had blood work when the inflammation came back after my vaccine. Everything was negative. Did test positive for antibodies at that time. 3/5/21 Visit to primary care physician

10.25.2021 – Had fever 101F headache and body aches Friday night through Saturday night

Gastroenteritis viral, Productive cough and Abdominal pain

1.9.2021 – Sore throat

1.17.2021 – I had a sore throat, phlegm and nose/sinus congestion, and a very slight dry cough. Tested negative for COVID. Felt like a seasonal cold that lasted less than a week.

1.31.2021 – Diarrhea for the past 2 days

3.6.2021 – Nausea and abdominal pain for one day (not menstrual cramps)

2.6.2022 – I have been sick about 3 separate times with cold like symptoms (sore throat, runny and stuffy nose, cough) but no positive covid test. I also had a week long stomach bug with a fever, vomiting and nausea, and dizzness in October 2021.

Vomiting, Lymph node pain and Myalgia

1.22.2021 – Very sore lymph nodes axillary same arm as injection Allergy shots, postponed

1.23.2021 – Same arm as injection axillary lymph nodes very sore

10.13.2021 – On first day after injection did not know needed to register with you, was too sick to do anything. No other area to report this but less than 6 hours after shot felt nauseous, chills, body aches and headache, by next day was vomiting and nausea seve

10.15.2021 – First day post 3rd vaccine, vomiting, chills, fatigue, muscle pain. Second day fatigue and mild nausea. After that fine.

9.24.2022 – By this time for last booster I was vomiting so this is much better

Injection site rash, Injection site pruritus and Injection site erythema

1.16.2021 – Prior to my shot, following doctors advice, I took Tylenol. I took more at dinner and at bedtime and at breakfast the following day. During that time I had no noticeable pain or itching at the injection site. After stopping the Tylenol the pain and itching became noticeable. This is not a problem.

1.18.2021 – Eczema-type silver-dollar sized itching patch around the injection site.

1.19.2021 – Continuing eczema-like redness and itching around the injection site. Better since I applied hydrocortisone.

Laryngitis, Hypersensitivity and Injection site erythema

2.11.2021 – On 2/10/21, I had pain in my left arm at and below the injection site aching for about 2 hrs-then nothing at all. No redness, tenderness, etc. I made an appt with a cardiologist for f/u

1.28.2022 – On 1-23-22, I had nasal congestion, an itchy throat, runny nose. It kept me awake overnight but improved by the next day. I took 2 rapid COVID tests that were both negative. It was likely allergies.

2.4.2022 – Laryngitis, nasal congestion, dry cough

7.1.2022 – COVID 19

Transurethral bladder resection, Transitional cell carcinoma and Micturition disorder

1.29.2021 – Hematuria, lower back pain, lower abdominal pain, frequent micturition

1.31.2021 – Gross Hematuria. Urologist appointment scheduled

2.1.2021 – Hematuria

2.16.2021 – Coughing, fatigue.

3.10.2021 – I have now been diagnosed with cancer of the bladder. Call [phone] Procedures

4.28.2021 – Urothilial carcinoma bladder and kidney Surgery- cysto TURB

7.27.2021 – Urothilial Carcinoma. 2 TURB SURGERIES. Waiting for BCG Therapy. 2 surgeries- CystoTURBT

11.15.2021 – Runny nosec

5.16.2022 – Urothelial carcinoma Surgery

11.15.2022 – One day post op bladder cancer - 6th surgery . Diagnosed since Covid vaccine. Surgery #6

Osteoarthritis, Tinnitus and Muscle spasms

1.12.2021 – Joint pain likely due to my osteoarthritis

1.13.2021 – May be due to osteoarthritis & coming weather change.

1.16.2021 – Slight headache, brief episode of nausea

1.18.2021 – No more than my usual joint pains

1.19.2021 – Joint pain no more than usual. 1 brief episode of nausea.

2.9.2021 – 1 night of multiple leg cramps that woke me each occurrence.

4.14.2021 – Noticeably worse tinnitus bilaterally.

7.16.2021 – Tinnitus about the same as last report. Worsening of my pre-existing osteoarthritis, now officially diagnosed as such.

Arthritis, Lethargy and Upper-airway cough syndrome

3.15.2021 – Redness and itching at injection site starting on day 10

3.22.2021 – On day 10 I awakened with the injection site red and itching. That has resolved leaving a quarter sized darker spot at the injection site.

5.2.2022 – Post nasal drainage, so in the morning I woke up with chest tightness, coughing and generally feeling lethargic for a couple of days.Arthritis became more painful. For the first time, an episode of severe pain related to spinal stenosis. Dr's office

Thought blocking, Memory impairment and Impaired work ability

5.2.2021 – The redness around the injection site is about 2 inches wide and it got redder overnight from yesterday. I took a Benadryl but Im not sure if its any smaller or less red.

5.3.2021 – The red rash around the injection site is about as big as the size of my palm. My doctor told me to keep taking Benadryl and Tylenol and let her know if it doesnt stop getting bigger. I left a voicemail for my doctor and her office called me back.

5.4.2021 – The red circle around the injection site is a lot less red and not nearly as swollen as before.

5.5.2021 – Redness is completely gone, it just itches now.

5.6.2021 – Redness is completely gone, there is no lump at the injection site anymore.

11.7.2021 – Yesterday I had chills, but it wasn't until after I had already completed the check in for that day.

6.4.2022 – My entire left arm was sore from the top of my shoulder to my fingers. The injection site itself didn't hurt much, the rest of my arm hurt more.

12.2.2022 – After having Covid, I noticed that I lose my train of thought more or forget what I got up to go do. It has impeded my work a little, but I can still do things. It just takes a bit longer.

Upper-airway cough syndrome, Abdominal pain upper and Nasal congestion

12.7.2021 – FYI - Today is the first day since receiving the booster in which I have no hip pain. It began on Day 2 - left (injection) side - upper abdominal and hip pain. It was moderately painful and so worrisome, but not enough to impede normal activity.

12.23.2021 – Cough, stuffy nose

12.31.2021 – Head cold is much worse. Stuffy, runny nose post nasal drip, some cough. Some light chills

1.8.2022 – Head cold took a turn for the worse last week. It's better now, but not gone.

12.2.2022 – Cold, cough, congestion

Paresthesia

2.6.2021 – A little tingling in the left side of my neck and face about an hour after the vaccine

3.7.2021 – when I woke up this morning I felt some body aches as if I had a fever, although I did not have a fever. I am feeling better now than I felt in the morning, the aches seem to be going away.

3.8.2021 – I woke up with the aches the day after my second vaccine dose (Sunday) I did NOT have a fever but that was the type of body aches I had. I took Tylenol and the pains went away, but came back later in the evening after the Tylenol wore off. I took Tylenol before bed Sunday night and woke up today (Monday) feeling fine.

Electroencephalogram, Sleep study and Narcolepsy

1.13.2021 – Swollen fingers on injection side arm

1.26.2021 – Worsening exhaustion. Feels like it has not gone away and has become worse since the second injection. A neurology sleep specialist is scheduling a multi day sleep study to see what may be going on! Sleep clinic - neurologist- sleep specialist - pending

2.18.2021 – Ive been increasingly tired and fatigued, more forgetful than usual with many things: and even have gotten to the point of trailing off mid-sentence and forgetting what was saying. Im going to be having a sleep study on Friday overnight for them to monitor brain activity

1.12.2022 – Extreme fatigue - got a narcolepsy diagnosis. Persistent hand tremors. Confusion and lack of awareness of what's going on. Chronic migraines. Nerve pain.

6.1.2022 – Fatigue has worsened. I now get excessively sleepy from the sun, and temperature changes in the weather.

Tendon pain, Muscle fatigue and Impaired work ability

2.14.2021 – I had fever the day after the shot and ached and was sore

10.30.2021 – The shot site is so itchy.

11.1.2021 – My shoulder and neck area on the arm I got the shot is hurting in the muscle/ joint area, right side.

11.11.2021 – My neck muscles/gland started hurting last Friday. Lifting my arm, turning my neck causes pain. I've had to use my opposite arm the most in my work but was able to keep working.

11.17.2021 – My neck muscles on the injection site side is still very sore and tender to move my neck. I'm using salonpaas to help. Most of my arm tires out quicker as I work. I'm using an ace bandage to give it support to work.

12.8.2021 – My neck muscle and right arm continue to ache, I still wrap my arm with an ace bandage to do my work.

1.26.2022 – Still dealing with pain in the muscle going up to the right side of my neck and honestly my muscle on the right arm is not as strong prior to booster.

5.18.2022 – My right neck still has mild pain since the last vaccine.

5.20.2022 – The lymph nodes under the armpit where I guu on t the shit hurts

5.21.2022 – Lymph nodes still hurt

5.23.2022 – FYI my normal temp is 97.7

5.24.2022 – Fever is only in the evenings now. Headaches are worse in the evening. Lymph nodes in neck still hurt. I think that's causing the headaches.

5.25.2022 – My headache is constant, and dull pain.

6.1.2022 – Fever came back every night and my lymph nodes in neck are painful. Makes it uncomfy to lay

6.8.2022 – The right arm muscles, tendons, lymph nodes hurt a lot Cortisone injection in right shiulder

Alice in wonderland syndrome, Mastocytosis and Ataxia

4.11.2021 – Light headedness

4.12.2021 – Light headed, dizzy

4.13.2021 – Dizziness

4.14.2021 – Dizzy, fainting feeling

4.16.2021 – Dizziness, intermittent loss of taste and smell

4.23.2021 – Worse dizziness leading to two falls and worsened

4.30.2021 – Passed out

5.1.2021 – Wheezy cough, dizziness/lack of coordination

5.2.2021 – Alice in wonderland syndrome, brain fog, dizziness

5.3.2021 – Alice in wonderland syndrome, brain fog, weakness

5.4.2021 – Alice in wonderland syndrome, chest cough

5.5.2021 – Alice in wonderland syndrome, brain fog

5.7.2021 – Alice in wonderland syndrome

5.14.2021 – Joint pain, brain fog, heart arrhythmia, had to visit ER

5.21.2021 – Anaphylaxis

5.28.2021 – Anaphylaxis, chesty cough

6.5.2021 – Increased number of anaphylaxis, heightened allergies and need for an inhaler

6.11.2021 – Asthma

8.1.2021 – Shaking hands uncontrollably, anaphylaxis, vertigo, nausea, loss of taste, smelling burnt plastic, heart palpitations, faintness, brain fog, increased allergic responses, shortness of breath, confusion, difficulty walking

10.29.2021 – Diagnosis of mastocytosis from physician. Increase in hEDS symptoms- thumb and scapula dislocating. Anaphylaxis from environmental trigger. Chronic fatigue, feelings of faintness, loss of muscle control, full-body ache, cognitive issues. Not working

4.30.2022 – Vaso vagal while driving

Skin reaction, Menstruation irregular and Injection site swelling

2.8.2021 – I had a delayed injection site reaction beginning day 8. I had and still have swelling, redness, and pain. The swelling has gone down a little, but I now have a swelled ring around the injection site, giving off a bullseye appearance.

2.17.2021 – Swelling,pain, and tenderness of arm pit lymph node on arm I received vaccine

2.18.2021 – Swollen lymph node in armpit where vaccine was received

2.20.2021 – Swollen and painful lymph node in arm pit

5.17.2021 – #NAME?

12.19.2021 – Swollen Lymph Nodes under the arm

12.20.2021 – Swollen Lymph Nodes under arm of injection. Overall body soreness and pain.

Hemiparesis, Menstruation delayed and Muscular weakness

5.8.2021 – Muscle weakness in left leg. (Shot was in left arm.)

5.9.2021 – Muscle weakness in entire left leg on side where i got shot.

5.10.2021 – Muscle weakness in entire left leg, same side as shot.

5.11.2021 – Muscle weakness in entire left leg. Same side as shot.

5.12.2021 – Muscle weakness in left left. Shot in left leg.

8.4.2021 – Late menstrual cycles, remnants of muscle weakness. No one is talking about these things. These need to be included in list of possible side effects .

Vestibular migraine, Restless legs syndrome and Middle insomnia

3.6.2021 – Fri Day 1 (shot 2:05p); 9p - shot site now severe pain during ROM; side sleeper: bothered; finally got to sleep 4am Sat. Sat: ROM now works but still moderately painful.

4.3.2021 – Temp up 2° overnite to 99.3°F from usual norm 97.x°F

11.17.2021 – SYMPTOMS: 11/16/21: Fitfully slept the night. 11/17/21 @ 12Noon: Low-grade fever: 99.9°F. ,(Usu: 97.x°F) Injection site: sore, swollen. very tired, chilled. 11/17/21 @ 5p: 100.9°F, headachy, chills gone.

11.18.2021 – 11/17/21 cont: 5p: 100.9°F, very tired, headachy. 7p: 100.5°F, very tired, headachy. 2 Tylenol 325 ea. Peed a lot all day. Slept thru nite. 11/18/21: Woke up fine.

11.19.2021 – NOTE: I selected bogus answer so I could add data to text box. 11/17,18,&19 I cked "aches" box: =false. Cking "None," then adding text field data gets red error msg. (ONLY field you provide to add data that doesn't fit elsewhere. Poor design!)

11.20.2021 – Can't tell you more; this text box inadequate.

11.22.2021 – Legs restless when trying to fall asleep. Waking up more than usual.

4.22.2022 – Heartburn, legs achy at night.

4.26.2022 – Woke up off-balance (not dizzy); predates all covid vaccine shots; current diagnosis: vestibular migraine recurs wks., mos., ea. episode lasting hrs. to several days.

9.11.2022 – 1st 2 nights: slept more than usual.

Joint dislocation, Massage and Intermenstrual bleeding

3.20.2021 – I feel like Im warm, but I do not have a fever.

3.24.2021 – Pain in my armpit/lymph node?

3.25.2021 – Pain in armpit/lymph node?

3.26.2021 – Pain in Armpit/lymph node

11.22.2021 – Armpit/lymph node pain

11.23.2021 – Armpit pain

11.26.2021 – Armpit lymph node pain

11.27.2021 – Breakthrough bleeding

11.20.2022 – Had Covid end of July and have had depleted energy, get short of breath easily, and still can't smell everything that I could before.

12.19.2022 – Numbness and tingling in my arm and fingers

12.24.2022 – Fingers are still numb

Lymph node pain and Lymphadenopathy

3.20.2021 – Lymph node swelling at clavicle area closest to arm I got the injection

3.21.2021 – Lymph node in clavicle area still swollen and tender to touch near arm of injection

3.23.2021 – Still have swollen, sore lymph node in my clavicle area

3.24.2021 – Still have swollen lymph node at my clavicle but slightly better

3.25.2021 – I still have a swollen lymph node at my clavicle on the side where I got the shot. And about same not any bettrr

3.26.2021 – Lymph node still swollen but better