Their Stories

Cervical radiculopathy, Radiculopathy and Post-acute COVID-19 syndrome

4.4.2021 – poor sleep

4.16.2021 – pain between left scapula and spine and in neck (muscle spasm?) accompanied by headache since 4/3, ranges from moderate to severe for past week.

4.30.2021 – nerve pain

5.14.2021 – continued severe nerve pain

5.21.2021 – intense nerve pain

5.30.2021 – increased nerve pain, c7 and c8 nerves left side

6.4.2021 – nerve pain, radiculopathy

6.11.2021 – Cervical nerve pain, radiculopathy

8.1.2021 – Diarrhea, numbness in heels, possible Parsonage Turner Syndrom.

6.11.2022 – extreme fatigue, diarrhea

6.18.2022 – low back spasm/pain

7.9.2022 – extreme fatigue

8.27.2022 – SARS-coV-2 symptoms & positive test result yesterday

11.26.2022 – nerve pain in hands

Acne, Ocular hyperemia and Menstruation delayed

8.7.2021 – I have experienced abnormal menstrual cycles since my first vaccination. Abdominal pain as well as diarrhea have also been a major issue in addition to fatigue!

8.15.2021 – Severe abdominal pain and delayed menstural cycle

8.27.2021 – Missed menstrual cycles in addition to scratchy throat plus blood shot eyes. Extreme bloat as well as fatigue!

9.4.2021 – Headaches, abdominal pain, diarrhea, body aches as well as a missed menstrual cycles.

1.22.2022 – Abnormal menstrual cycle

7.6.2022 – Abnormal menstrual cycle and acne in addition to extreme bloating

Candida infection, Drug hypersensitivity and Ear swelling

3.9.2021 – Heart palpitations this evening

4.8.2021 – Foggy Head

7.8.2021 – I have Thrush so sore throat. Diagnosed by doctor. Regular office visit

10.25.2021 – Had metallic taste and itching in throat for about 30 mins.

10.27.2021 – Cold sore came out

10.28.2021 – Cold sore getting better

11.8.2021 – Yeast infection

10.13.2022 – Epigastric issues but think from spice ate

10.14.2022 – No Im good.

10.25.2022 – Ear pain and sore throat

11.1.2022 – My throat on the left side has soreness and note that my left ear feels swollen inside. I have Sinus drainage so the Nurse Practitioner diagnosed sinus infection. Only have two days left of tetracycline so thinking its something else. ??

Respiratory tract infection, Dysgeusia and Rash

4.3.2021 – I doubt it is related but the last 3 days I have developed a rash near my arm pits.

4.13.2021 – Shortness of breathe

4.30.2021 – I missed putting down in my 1week check in that I experienced a rash again near my under arm. Like the first time it was mild and lasted about 3 days. I am wondering now if it was related to the vaccine.

11.24.2021 – Metallic taste in mouth

5.25.2022 – Severe back pain, not related to covid

10.23.2022 – Headache and fatigue I think related to a sinus infection.

12.17.2022 – I ran a fever December 11 and 12. I took a home COVID test which was negative. I had a lot of congestion. I call my pulmonologist and was put on prednisone and a Z-pake. I have asthma and COPD so we think I had a flair up unrelated to the vaccine.

Blood cholesterol increased, Renal pain and Musculoskeletal discomfort

3.16.2021 – Face tingling and a little itchy. Very mild symptoms.

4.8.2021 – Sore and swollen lymph node under my left arm, the arm in which I received my shot.

4.9.2021 – Sore swollen lymph node under left arm; in which I received the vaccine

4.20.2021 – For approximately 24 hours: Fever of 101.Extreme exhaustion and lethargy. Deep aching discomfort in my lower abdomen, hip joints, and across my shoulders up into my neck and head. Left hip joint continued to hurt for 2 days. Had to use cane

3.26.2022 – I contracted COVID-19

4.21.2022 – I woke up with my right kidney hurting at about 5 out of 10.

4.30.2022 – Diarrhea and bloating, fatigue

Hordeolum, Injection site bruising and Sinusitis

2.18.2021 – Black n blue at injection site still there 7 days after.

3.27.2021 – Right side of body right shoulder, outside of right hand, right knee, right ankle are painful. Im seeing my family doc on April 5

2.11.2022 – I was diagnosed Covid positive on January 19. Since then I had fever and cough but at this time I am fully recovered.

10.1.2022 – On day of shot I had both pain and fever

12.21.2022 – I had a horrible sinus infection last week. Doctor put me on azithromycin . Starting to feel better.

Arrhythmia, Heart rate irregular and Dehydration

1.18.2021 – Not yet. I only got it an hour ago

1.22.2021 – Feelings of severe dehydration, arrhythmia/irregular/fast heartbeat

2.1.2021 – I've been dizzier than usual, and my heartbeat has been more irregular than usual. I also feel random burning at the vaccination site and sometimes through my body a couple times a day.

2.9.2021 – Racing heart. Increased from usual 50s to high 80s bpm

2.10.2021 – For about an hour I felt burning in my muscles of shoulders, arms and back of my neck, like there were icy hot patches on my skin.

2.11.2021 – Muscle burning in arms near the shoulder

11.22.2021 – Severe dry mouth

Cold sweat, Hypoesthesia and Dizziness

2.12.2021 – Lightheadedness

3.5.2021 – Minor numbness in left arm and face, but this happens with most vaccines I get. It passes within an hour or so, and already has for me as I got the shot over 2.5 hours ago.

3.7.2021 – Clamminess

1.2.2022 – Severe fatigue, but it was only temporary. It lasted less than a week.

9.22.2022 – I cannot separate my autoimmune issues easily from what new symptoms I may have, so I'm just going to say none. But I feel rundown. The shot may have triggered a flare. It will pass. It isn't ruining my days.

Loss of personal independence in daily activities, Rash erythematous and Mobility decreased

2.25.2021 – Unable to get clear in my head-dizzy and very out of it.

3.30.2021 – I just typed a lot and lost it. In a nutshell, yes I want to add something. Forgive me for not having any other organisation to vent to, but thank you for any attention given-and the work that you do. I appreciate you. To start, I had a pretty bad reaction to my 1st dose, which caught me by surprise after hearing that I would only have to worry about my 2nd dose giving me any side effects. It has been the opposite for me. I am just now (since late yesterday) having any side effects from my 2nd dose. I was terminated from my job due to being so sick with a fever (my thermometer broke, but I was boiling my husband told me), extreme lethargy, dizziness, arm pain so bad I couldnt life my arm, dizziness, etc. I could not go into work and was sick for at least 36 hours with all but fever, which lasted through the night and morning following my injection. I needed my job, loved my job, and now have to figure out what to do and why I lost my job over doing the right thing to protect myself and all around me. Is this so rare that i am the only employee to be terminated for being out of work after receiving my 1st dose? Please give me some sort of peace over this unfairness. Thank you!

3.31.2021 – Today the soreness I have been experiencing for the past 3-4 days seems to be less. The red rash inside my elbow seems to be growing smaller. I am unable to use my arm the way I could before this developed, but I am not worried that it wont return to normal in the next few days. I am still trying to understand why this has developed after having no side effects until several days after my 2nd dose, when almost every other person with similar issues experienced it after their 1st dose. Is this rare that I had much worse side effects like fever, nausea, dizziness, lethargy & not much ability to do anything but stay in bed following my 1st dose for at least 24 hours, rather than having it after my 2nd dose & having nothing much in the way of side effects until 4-5 days after my 2nd and feeling so much soreness in my arm, no strength, with a red itchy rash inside my elbow that is still here & has been for 4 days? I am trying to learn more about COVID arm & the reasons I may be dealing with this. Please let me know if you have any additional information on what my experience is with it and why so I can know for future health concerns. Thank you.

4.28.2021 – I still have some discomfort in my arm (the arm in which I received both doses). I havent complained about it due to thinking it would go away, but it has been over 1 month since my 2nd dose and I still have issues with my arm being sore.

Bone swelling, Pharyngeal swelling and Musculoskeletal chest pain

4.2.2021 – Chest sore

4.3.2021 – Sore swelling upper part of sternum. Noticeably swollen. Sore when pushed and when I bend over.

4.4.2021 – Rib cage pain swelling over upper sternum

4.5.2021 – Rib pain swelling over upper sternum

4.6.2021 – Rib pain and swelling near sternum

4.7.2021 – Sore swollen rib and sternum

4.21.2021 – Swelling at sternum and between collarbones.

4.22.2021 – Swelling/lump at sternum and between collarbones

4.23.2021 – Swelling at sternum and between collarbones

4.24.2021 – Swollen area at throat. Swollen gland on neck. Swollen area over sternum. Throat feels congested.

4.25.2021 – Swelling at neck and sternum

4.26.2021 – Swelling at sternum and collarbones

10.22.2021 – Dizziness

11.4.2021 – Diarrhea and UTI

Bedridden, Respiratory disorder and Feeling cold

4.21.2021 – I was freezing and couldnt get out of bed.. I was having trouble breathing but not as bad as when I had Covid . now my back is killing me.

5.17.2021 – Im still having breathing issues.. its not from the vaccine its from Covid. I had Covid in October 2020 And ended up on an inhaler. And I dont know if its the weather or allergies my breathing is horrible and I am on the inhaler again

10.18.2021 – Horrible migraines and pains in my arm down to my hand where I got the shot Neurologist

5.25.2022 – I'm tired all the time. I've had issues with breathing ever since having Covid in October 2020. No matter what I try

Impaired work ability, Asthenia and Injection site pain

1.27.2021 – Soreness in arm and shoulder

10.22.2021 – There has been some pain around the injection site. It had seemed to disappear. It's not bad enough where it interferes with use of the arm.

7.1.2022 – I tested positive for COVID on June 7, 2022 by a home test. I still don't have 100% of my energy back but doing better. I returned to work, working partial hours starting June 15. I started back to full time June 20.

9.21.2022 – Pain around injection site

9.22.2022 – Pain around injection site.

Lymphedema, Neuropathy peripheral and Joint stiffness

2.9.2021 – Lymphedema and neuropathy bothering me more than usual - weather related.

4.13.2021 – lymphedema (pelvis & legs); myalgia & stiffness of neck, hands and back - all from arthritis and late effects hysterectomy, chemo & pelvic radiation. Unrelated to injection. Thankful to be fully vaccinated ON resident RN working in MI. Lockdown in my city preventing ongoing massage and therapy making disabilities from former front lines cancer treatment worse.

Bursitis, Bone pain and Lymph node pain

9.6.2021 – Left lymph node tender to touch under ear

9.7.2021 – My lymph nodes on the left side in my neck are still sore

9.8.2021 – Lymph nodes are better

11.6.2021 – For about a month both of my arms hurt In my muscles and my bones. Developed bursitis in both elbows. I don't know if it has anything to do with the shot.

12.25.2021 – Both my arms hurt and ache. I have pain lifting my left arm when they are aching badly. That's the arm that received both vaccines.

Cluster headache, Injection site hypoesthesia and Injection site pruritus

5.25.2021 – Injection arm keeps having numb episodes.

6.24.2021 – Day immediately after vaccine ran fever of 101, severe joint pains and headache. Pain and headache lasted about 36 hours after fever broke. Injection site has remained sore, itchy and periodically numb for the last week.

7.16.2021 – Cluster headache. Doubt it has anything to do with vaccine - prone to migraine already.

9.17.2021 – Acute gallbladder attack. Fourth in three years. PCP has referred me for surgery evaluation later this month. In person visit with PCP

6.19.2022 – Occasional heart racing and shortness of breath. Very fatigued.

Abnormal menstrual clots, Sinus pain and Heavy menstrual bleeding

4.26.2021 – Swollen lymph nodes in both armpits, but really swollen, aching, and sharp pain on the shot side armpit.

4.27.2021 – Armpit lymph node swelling is down. Almost gone.

5.19.2021 – I think it's allergies maybe, but no runny nose or anything.

5.22.2021 – Im taking antibiotics, but not related to shot. Dr thinks I picked up sinusitis over the past couple months.

6.12.2021 – Sinus pressure and pain. Probably a cold or allergies or nothing.

6.28.2021 – Going to check with my dr to see if extra large clots and heavy bleeding is normal during a monthly for someone my age over the last couple of months.

5.15.2022 – High blood pressure

Bile duct stone, Pancreatic cyst and Biliary obstruction

2.2.2021 – Red itchy rash started last night from neck to groin area, front and back. Took a benedryl and used cream on whole rash area called Triamcinolone Acetonide Cream USP 0.1% and again today and it's al.ost gone.

2.3.2021 – Last night after going to bed had severe pain in the bottom of my sternum. Really hurt for about 20 minutes. Got up and walked around until it stopped

2.15.2021 – Cyst on pancreas, severe pain and in hospital 5 days.

2.28.2021 – Runny nose

3.2.2021 – Rash at site 5"x5", rash on neck and under breasts

5.30.2021 – In hospital 10 days. Gi, bowel, ulcers, cysts on kidneys, stones in bile duct, blockage., hard to swallow.

Swelling face, Balance disorder and Hypersensitivity

3.20.2021 – I had a strange taste in my mouth last night after the second dose and have some tingling in two fingers (but I'm not sure the latter is connected to the vaccine). Also I have pain in the back of my shoulder on the vaccine side into my neck (mild).

3.21.2021 – back of shoulder and neck on side of injection

4.16.2021 – I have had muscle pain in my neck. I am also suffering more than usual from allergies (which may be because it's just a bad season). The only other thing is a bit of numbness in the fingers in the right hand.

4.23.2021 – I have very bad seasonal allergies. I am now being treated for what appears to be a sinus infection. Taking antibiotics. No connection to COVID.

4.30.2021 – I had a sinus infection, which I think was a result of a bad allergy season (trees and flowers)

6.18.2021 – Headaches and fatigue. Also pain in the back of my left upper shoulder and neck. I'm sure none of this is vaccine related. But the fatigue is very pronounced.

10.9.2021 – A bit of sweatiness.

10.10.2021 – nasal congestion and some heaviness in my chest.

10.15.2021 – A little sore throat on the left side.

1.7.2022 – I have a swelling over my eyebrow that seems to be associated with a 40 year old scar. I have not been to the doctor, but I don't think it has anything to do with vaccines. I merely point it out since it is new.

6.8.2022 – I had an episode of severe vertigo on waking in the morning this past Sunday. It passed and I felt a bit unsteady during the day but no other problems after.

8.3.2022 – Extra tired, also a bit uncoordinated. Sounds ridiculous, I know. Regualr doctor visit in person and bloodwork

9.26.2022 – I have a significant ache in my neck on the side of the shot, since the first day. It goes into the top of my shoulder, but my arm does not hurt.

10.3.2022 – I have a sustained pain in the neck muscles on the side of the vaccination. It's not worse, but not better. I did have pain when having the other shots (COVID) but the pain was better after about a week. Just reporting.

10.17.2022 – The pain in my neck on the side of the injection. I'm not sure what that is.

10.24.2022 – Neck pain in the left neck

12.19.2022 – I finally got the covid. I had symptoms and a postive test this past Friday, the 16th. I had a bad sore throat and heavy congestion, some cough, and great fatigue.

Pain in extremity

1.10.2021 – Right after I got the vaccine in my left shoulder, I noticed that I was having pain in the other arm right about the same area where I got the shot in my left shoulder. It was mild, so I ignored it. This morning, I was doing some gardening, pulling weeds with my right arm, the arm began throbbing, with radiating pain down the entire arm. It was so bad that I had to stop, take an Advil, and lie down. My next door neighbor, a doctor, suggested that I write to V-safe. I should also mention that I have been healing from a rotator cuff injury in my right shoulder but it was almost 100% better. It is possible that my symptoms are unrelated to the vaccine but I did begin feeling the symptoms almost immediately upon leaving the clinic where I got the shot, i.e. within 15 minutes of getting the vaccine.

1.11.2021 – The pain in both arms has subsided. I'm fine and on the mend. But it was odd that I had pain in both arms and it worse on the non injection arm.

Anosmia, Ageusia and Nasopharyngitis

1.9.2021 – I have primary adrenal insufficiency or Addison's Disease Saul during the night when my cortisol levels were low I got very ill when I got up I had to take more Cortizone then usual double my dose and it made me feel able to get up on my feet but still sick

1.21.2021 – Well last Wednesday I began to feel a little tired by Sunday Ive caught a cold head cold that is and by Monday I completely lost my My sense of taste and smell so I went and got a quick Covid swab and now I am awaiting the results and waiting and

1.30.2021 – Yes I am recovering from COVID-19 testing positive on 18 January 2021 and I had some bronchitis symptoms as of 27 January but today I feel somewhat better with that symptom

Feeling of body temperature change, Sleep disorder and Paranasal sinus discomfort

2.11.2021 – A bit light headed briefly 2 hrs after

2.16.2021 – Slight sore throat and congestion

3.13.2021 – Kept waking up overnight. Tylenol doesn't work for me much.

3.14.2021 – Able to sleep overnight and have full range of motion

3.19.2021 – Sore throat. Don't know how I caught a cold wearing a mask all the time so likely allergy related since nearly spring.

9.10.2021 – Head cold: coughing, stuffy nose, ringing ears, no fever but feel chilly then feel too warm. Had a sore throat last night out of the blue and some random sinus pressure the past few days off and on but was fine until last night's sore throat.

12.1.2022 – Caught a regular old cold. Have never tested for covid, much less tested positive. My head cold is mild.

Mandibular mass, Eyelid infection and Swollen tongue

1.11.2021 – Swollen submandibular lump nodes both sides. Slight posterior tongue swelling near the base on lateral borders.

1.12.2021 – Tongue still sligg DH rly swollen on posterior lateral borders.

1.30.2021 – Headache in frontal portion of my head. Rapid heart beat earlier today.

2.10.2021 – Left infraorbital notch, plus lower lid margin and surrounding skin

2.11.2021 – Left lower eyelid infection

2.13.2021 – Left eyelid infection

2.21.2021 – Headache on Wednesday, Thursday, and Friday that started mid morning and lasted until about 4:00 each day.

Phlebitis superficial, Thrombectomy and Axillary lymphadenectomy

1.20.2021 – My arm is slightly achey. Only near shot area.

1.24.2021 – Not sure if this has anything to do with shot but I keep smelling smoke. I know...weird.

2.10.2021 – Its only been 4 hours since I had it.

3.18.2021 – My asthma seems to be kicking up. Its Spring so thats a possibility. Worse in the morning. Im also having very high anxiety lately. That tends to worsen my asthma. Dr appointment tomorrow. Appointment is tomorrow

5.12.2021 – I have breast cancer now. Numerous tests and consultations

8.11.2021 – Breast cancer diagnosed in April. Lumpectomy done in June and lymph node removal too. Lymph nodes negative. Radiation therapy completed last week. So many numerous tests and appointments required for this condition I have had hospital out patient surgery and in person visits along with video appointments.

9.30.2021 – I just had ultrasound because they thought I had blood clots. Turned out to be superficial phlebitis. Pretty painful. Right leg above knee. Some of my symptoms above are because Ive started new meds in the past week for my breast cancer treatment.

12.25.2021 – Had a blood clot (superficial) removed from leg. Had my vaccine. 3rd one. Many headaches. It's all being dealt with. Migraine type stuff.

Heart rate irregular, Atrial fibrillation and Heart rate increased

5.5.2021 – I have afib. 2 weeks after the ist shot i'm experiencing shortness of breath my heart rate fluctuate up and down between 158 70s .My cardiologist thought I needed a cardioversion but when I went to the hospital It was regular . Still short of brt

5.7.2021 – Still short of breath i have afib. Doc. Recmnd go to emergency after EKG showed blockagee

5.8.2021 – Only short of breath

5.10.2021 – Still short of breath

5.30.2021 – Excellarated heart rate. 140 bpm. I have a thick heart left ventricle. I sang & danced the night b4. Go figure. I took meds amoreodorine 2 days to reduce it . I think vacine aggravated my condition. One with heart issues be advised specifically.

8.5.2021 – I tested positive for covid july 20th i have fully recovered. I took 1st shot of the Pfizer vaccine. In april.per doc. Hold off on 2nd because of heart afib.

Neuralgia, Sleep disorder and Arthritis

4.2.2021 – Red & hot at site. Headache on and off. Very tired but cant sleep. Upset stomach with diarrhea today. Havent gone anywhere.

4.18.2021 – Muscle spasms

5.14.2021 – Fatigue

5.23.2021 – Joint pain

7.16.2021 – Tingling sensation on surface of my skin on face arm and leg.

10.15.2021 – Issues sleeping and fatigue

12.17.2021 – Headache Joint pain

12.26.2021 – Weird sharp quick nerve pain in random places and red knuckles on hands.

5.21.2022 – Joint & muscle pain.

5.28.2022 – Joint inflammation.

6.6.2022 – Joint pain worsening and right arm from elbow down goes numb on and off throughout the day.

Cardiospasm, Skin wound and Impaired healing

3.29.2021 – Intermittenly hearing throbbing/swishing sound.

3.30.2021 – No appetite

4.2.2021 – I still have one area of my body that hurts and even more so when its touched or I lay on it. Ive not mentioned it prior, as I dont think a vaccine could cause this. It was really bad the day after, but its persisted. I feel the pain is less, so im not too concerned about it

4.14.2021 – I've not felt well past 2 days. Fatigue, joints very sore, not up to doing things. My stomach hurts also.*(I can't see how any of this is vaccine related)

5.3.2021 – I continue to have most joints aching or hurting to varying degrees. Seems worse at night and/or mornings. Some days it feels as if my bones hurt/ache also, mostly it's the bones in my arms and legs.

5.10.2021 – A small skin wound and a scrach in skin isn't healing after 3 week period. At Doctor's office.

4.1.2022 – Over past few months, I've had occasional heart cramps. They go away after several seconds. If this contunues, I'm setting an appt. with my PCP.

Pharyngitis, Skin burning sensation and Respiratory tract infection

2.17.2021 – Felt feverish this morning but no fever

2.25.2021 – Shortness of breath. I have asthma

3.16.2021 – Scalp burning/tingling off and on

3.24.2021 – Ear infection and sore throat

3.31.2021 – Throat and ear infections

9.8.2021 – Eyes red and burning, bloodshot especially outside corner or eyes

12.29.2021 – Eyes bloodshot, left more than right

12.30.2021 – Bloodshot eyes- better than yesterday

1.25.2022 – Covid positive. Nasal congestion, runny nose, headache.

2.1.2022 – Possible pneumonia after COVID-19 infection

12.30.2022 – Respiratory infection Primary physician

Arthropod bite, Therapeutic response unexpected and Diarrhea

1.30.2021 – Note that the arm pain is largely when I lift the arm to the side, not if I raise it forward.

2.21.2021 – When the pain was greatest, last night, my persistent nasal infection suddenly cleared up for a few hours. Go figure....

3.6.2021 – Fatigue. But a contributing factor was having to spend two days picking up debris after a neighbors tree fell in our yard!

5.25.2022 – What look like, and probably are, bug bites, maybe 20 or 25 of them.

11.19.2022 – Loose stool.

Photophobia, Muscle twitching and Secretion discharge

3.9.2021 – I have a large welts on a very big varicose vein just above my knee which is very tender and itches really badly and it erupted very quickly.

3.13.2021 – Face twitching, light sensitivity, head rush

1.3.2022 – I'm being tested for subacute thyroiditis which some research shows can be caused by the vaccine or potentially by my booster shot. I'm supposed to have several blood test and see my doctor again and she will follow up. The symptoms include a swolle As mentioned a test and yet on schedule follow up visit

10.14.2022 – I tested positive with symptoms of Covid on 9.30.22. M'y symptoms were headaches, coughing sneezing, runny nose, excess mucous draining, body ache and fatigue. I was put on Paxlovid which I took for 4 of the 5 day course due to developing severe stom

Blood glucose decreased, Psoriasis and Blood glucose increased

2.26.2021 – Blood sugar is elevated

3.19.2021 – Blood sugar went low

3.21.2021 – Psoriasis is spreading quickly

3.23.2021 – Psoriasis still spreading since about 5 days after 1st dose

3.24.2021 – Psoriasis spreading

4.2.2021 – Psoriasis is spreading. Headache

4.9.2021 – Psoriasis still spreading

4.16.2021 – Psoriasis continues to spread

4.30.2021 – Psoriasis still spreading but not as much as it had been. I started using Skyrizi which seems to be helping. I already had been in a flare but it got a lot worse more rapidly after the vaccine.