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Their Stories

What v-safe registrants wrote to the CDC after their Pfizer or Moderna shots, in their own words. Each card is one person, with all of their free text. This page shows only the longer stories: the 116,000 people who wrote at least 400 characters in all. The text is as the CDC released it, except that email addresses and phone numbers are hidden. You get a random set of these people on every visit.

Shuffle

Joint lock, Therapeutic response unexpected and Specialist consultation

5SQ-55392-06756

– Asthma and achy joints with some swelling- slightly worse and increasing since received vaccine

– Arthralgia Increasingly worse in both knees. More discomfort behind right knee and occasional catching in left knee.

– Increased arthralias especially in the knees and asthma/respiratory issues. Started on prednisone 6 mg February 15. Office visit with primary care physician

– Arthralgias have been less since getting second vaccination given

– Breathing issues Bad enough to take alupent inhaler

– Better in the last couple of days.

– Knees, hands,Left elbow and right shoulder aching more And unable to go up atairs Visited My rheumatologistAnd received injections and shoulder and both knees.

Somnolence, Chest discomfort and Back pain

5SR-12147-68101

– Last night I had some discomfort in my left leg but Ive experienced that before so Im sure its probably not related.

– Extremely sleepy

– Headache, fever, chills, body ache, swollen and itching vaccination site, swollen lymph node under armpit

– July 29-30 Chills, headache, fever, discomfort in chest, and swollen lymph node

– Swollen lymph node underarm

– Sore throat

– Lymph node not as swollen today

– Underarm lymph node swollen

– Still mildly swollen underarm lymph node

– Low back pain started last Thursday, then also Headache, congestion, runny nose on Friday, Saturday and Sunday

– Pain in throat

Pancreatic mass, Sputum discolored and Discharge

5SR-13975-17842

– Nausea yesterday after I completed Vax check. That is gone today. I'm better than yesterday.

– Relentless sweats all Last night and all day today.

– Severe itching, but no rash or hives

– Insomnia

– Stomach distress

– Breathing problems Followed up with PCP.

– Sinus congestion, drainage and sore throat.

– Bad sinuses with thick yellow mucus, difficult to breathe, chest is tight making it hard to cough up the yucky mucus. Saw my ENT doctor in person

– Difficulty breathing, congestion, nausea, headache, sweats, mild fever...

Abortion spontaneous, Pregnancy and Paranasal sinus discomfort

5SR-19380-46374

– Im also pregnant in first trimester!

– Pregnancy is probably the abdominal pain

– Early pregnancy-low progesterone, slow rising HCG, and baby is measuring small. Only 7.5 weeks along but all began after getting the vaccine.

– Pregnancy - baby stopped growing at 6 weeks pregnant and a heartbeat is barely present at 8.5 weeks. Doctors expect a miscarriage to happen.

– Sinus pressure, congestion, miscarriage happened yesterday

– Abdominal pain most likely due to miscarriage that happened 2 days ago

– Became pregnant

– Pregnancy

Immune system disorder, Systemic lupus erythematosus and Rash

5SR-51535-97071

– I do have lupus- not sure what's going on but may be my immune system has gone into overdrive and that's the issue? Who knows.

– Sore throat, cough

– First, your messages arent daily checks. That is confusing many in our facility and tends to sow seeds of mistrust. Consistency helps a lot here. Second, I have just generally felt run down with intermittent headaches since I got both first and second doses. Better than Covid for sure but this is not going away.

– Rash now on scalp, & behind ears and on nasal area of face

– Reoccurrence of facial rash that I got after vaccine.

Rash pruritic, Herpes zoster and Diarrhea

5SS-26347-56132

– Injection site hurts less than yesterday

– My kids have been sick with a cold and diarrhea and I have developed it too. I have a sore throat, runny nose, diarrhea and fatigue. My kids have not been vaccinated so Im sure its something viral going around.

– Lymph nodes swollen in armpit

– Swelling in lymph nodes in armpit

– Diagnosed with shingles today. Have had an itchy painful rash for about 2 weeks and didnt know what it was.

Feeling cold, Tinnitus and Asthenia

5SS-27777-31934

– I dont think its from the shot but Ive been hearing a lot of ringing lately.

– Idk if this was bc of the vaccine or not but Tuesday night I felt this weird sensation and I got very weak. Then after a minute of 2 I felt like coldness go all over my body. I had a major headache and had to lay down, but I felt better the next day.

– I dont think this has anything to do with the vaccine, but I think I have/had some sort of psoriasis out break on my scalp and arms that Im dealing with.

Skin burning sensation, Burning sensation and Peripheral swelling

5SS-30230-29674

– Tingling sensation in my back and neck

– Itching and tingling

– Burning and tingling on the back of my neck. Woke up with a very strong pain in my right side

– Tingling and burning on the back of my neck by my spine

– Itching and burning on the back of my neck and in-between shoulder blades along with tingling and my right arm swollen

– Very hard time breathing. Felt very heavy and weighted on my chest I called my doctor as I was having a hard time breathing and she prescribed me an inhaler and requesting my medical records from the hospital to see if they missed something

– I had a very hard time breathing. I called my doctor and she prescribed an Albuterol inhaler for me. I was still having tingling sensation and burning on my skin almost every day. Enough to put ice packs on it to deaden the symptoms

– I'm still having tingling and burning all over my body. I also still have a hard time breathing. I'm really surprised that no one has contacted me from the CDC. This vaccine really did a number on me

– Shortness of breath, itching and scratch ing in my throat, tired aches all over

Hematochezia, Sinus congestion and Diarrhea

5SS-31305-40033

– Last night I had stabbing pains in my leg - probably not connected but you asked.

– Pain in my joints especially in the hips and around the knee I had replaced in 2018. I was in an accident in January that combined with a recent work out schedule may be causing the pain but its been worse lately and theres no new reason.

– Sinus Congestion slight runny nose

– Joint pain

– Sinus congestion, occasional head ache, diarrhea, occasional blood in stool.

Rhinalgia, Stomatitis and Musculoskeletal discomfort

5SS-31882-08484

– Night sweats

– I am not prone to headaches. Not sure if its still the vaccine or not but still have a headache periodically through day with neck discomfort and sometimes slight nausea.

– Keep having headaches. Seems odd to still have them. Also have had nerve pain in face with sore in mouth and nose which I get when fighting something.

– Was feeling perfectly fine for 6-7 hours, then had a sudden onset of diarrhea, feeling like I might pass out ...like a shot of adrenaline, with onset of headache.

– Pain in ear and down neck, gland soreness, sore throat. No fever, no chills, just a bit tired and the discomfort- makes one feel yuck.

– Tired, stomachache

– Stomach ache, indignation, loose stool, achy, chest discomfort and pain with inspiration for about 30 min but not so severe I needed to see Dr. ( no shortness of breath with it).

– Just my asthma/wheezing seems to have gotten worse. Needing inhalers more ch more often due to coughing and wheezing.Below question- do I believe my symptoms are from injection- will mark yes but real answer is possibly.!??

– Short of breath/ dry cough/ wheeze

Muscle spasms and Headache

5SS-32258-56448

– Left arm and left leg have had several Charlie horses throughout that side. Nothing on the right. Happened after shot but went away. Resurfaced last night.

– Sporadic headaches only come on the left side. Last, the most, for an hour at a time. Does not consistently happen each day.

– Recurring headaches way more frequently than J have gotten headaches in the past. Happens to come and go daily or sometimes every other day. Mild to moderate.

Sinusitis, Myalgia and Chills

5SS-89016-15828

– Got 2nd shot 3/25, at night was aching all over. 3/26 AM took Advil, took long nap. After dinner, pain came back, took another Advil. 3/27 felt weak feverish, took Advil twice. 3/28 better. 3/29 almost back to normal.

– After a short nap is much better than yesterday

– Some dizziness

– Chill, iciness ,low grade fever, took Advil

– Sinus infection, take antibiotics. This is the fifth day of taking medication.@ During my check up with pulmonologist

– It seems a bit late to receive these questionnaire. My booster shot was 10/23 . 10/24,25,26 were not comfortable. Fever, muscle and joints aching.

Pain of skin, Menstruation irregular and Urticaria

5SS-96639-99903

– A lot of sneezing and I had to take an antihistamine. I also have a mild metallic taste in my mouth.

– Tenderness/achy on the skin inside of the arm that received the injection

– Skin achy and tender on my leg. Had similar pain in my arm yesterday and it loved to my leg. Took ibuprofen and resolved.

– Last night I got a rash/hives on my legs after they were exposed to cold the hot water. This doesnt usually happen. It resolved within 3 hours.

– Muscle spasms in my arm near my elbow

– Occasional aches.

– Interrupted menstrual cycle. This happed before as well on my other shits but I didn't report them.

Injection site edema, Limb mass and Nodule

5ST-10829-00128

– Tuesday I had strong pain in my arm for many hours after vaccine. Wednesday headache, and Thursday until now I have a small ball in the inner part of my arm with a little pain. And also a little pain around my shoulder.

– Small ball in the arm and a little tense in the site of vaccination

– Red spot a little far away from site vaccination and sometimes itch

– Red spot near the vaccine that was growing each days two after vaccination. Then in the four day it disappears but it was itching for three days.

Heart valve incompetence, Edema and Sensation of foreign body

5ST-14779-29143

– Thirst is the only thing I've noticed so far

– Mildly sore muscle at injection site

– Joint pain in the elbow and wrist of the injected arm.

– Overnight feeling like someone was squeezing my throat. Not sure if it is related at all.

– Tightness around throat - like a hand was around it or my shirt was too tight (but no clothing was touching it).

– I have 3 that I didnt tie to this but better share in case. 1. More headaches than normal (I have allergies and get both sinus and migraines normally less2. Racing heart beat at rest has occurred 2x3. Feeling of lump or swelling in throat.

– Diagnosis: Regurgitating tricuspid valve in my heart Edema Other symptoms: hoarseness, tightness in throat, fatigue, exacerbated asthma EKG, Echo with contrast, COVID test

Injection site induration, Rash pruritic and Injection site warmth

5ST-16516-33815

– A hot, itchy, swollen, hard rash around the injection site. Has been there for the last 5 days. Swelling finally went down but the rash and itch still remains. Felt nauseous instantly after the shot but subsided within 48hrs.

– The rash is still there though it's diminished in appearance and the ring is gone, there's still a noticeable redness, no swelling or pain but my right arm is still itchy.

– Fever

Amenorrhea, Menstruation delayed and Muscle tightness

5ST-24765-70804

– Neck pain

– Rapid heart rate

– Change menstrual cycle, high blood pressure

– Chest pains, menstruatal problems

– Hair falling out and chest tightness, rapid heart rate, headaches , muscle tightness, joint pain

– Chest tightness, really bad menstruatal periods , hair loss, headaches

– Hair falling out. Chest pains, menstruatal problem

– Chest pains, neck pain

– Stuffy nose

– Late period

– Missed periods

– Havent had a real period since the 2 Nd dose of the vaccine back in March

– Period going on for 4 weeks

– Coughing , out of breathe, chest pain

Food allergy, Joint swelling and Injection site reaction

5ST-26951-59624

– Mild stiffness at the injection site

– I noticed last night that my ankles were swollen. I do not have that problem, outside of rolling an ankle while hiking or playing sports. Still swollen today.

– Still experiencing swollen ankles, but not to the extent as the last two days. Although, I stand stationary at my work station during the work week. Today, I was working outside and moving around.

– At about 10:00 am I had an allergic reaction to foods that I am not sensitive to. Is it possible the vaccine reacted with food or chemicals with in the processed food?

Pharyngeal swelling, Swelling and Feeling hot

5ST-56673-00922

– I have Parkinson's so I have body aches and cramps everyday. It would be hard for me to tell weather my aches come from the shot or my disease.

– I had some odd swelling in my throat really in the sides of my neck that reminded me of when I used to get swollen glands in grade school. I have Parkinson's and when I get a pain I don't know if it's because of Parkinson's or something else.

– Nausea but probably from my Parkinson's medication.

– Headache, stuffy nose, feeling warm

Gastrointestinal disorder, Injection site swelling and Injection site erythema

5ST-89133-47785

– After vaccination i had pain swelling and redness at vaccination site for 5 days. Day adter vaccination i has a bad headache and muscle ache and fatigue. Day 2 i just had a headache. After that i was fine.

– Did the past month i have been having on and off intestinal issue with occasional bouts of diahrea. Have not yet seen my doctor but will have symptoms continue. I'm unsure whether this is related to my vaccination, probably not.

Hyperventilation, Peripheral coldness and Paresthesia oral

5SU-19442-91477

– On and off tingling and pins and needles sensation that started 6 hours after the vaccine. The tingling is on the left leg and foot, right leg and foot, upper lip, top of head, shoulders, arms and hands. The symptoms stop for a bit and then start up again. This is causing me extreme anxiety, hyperventilating etc.

– Continued tingling sensation mainly in my right arm, both hands and my face. A feeling of pins and needles.

– Still a slight tingling sensation but I feel better overall. Yesterday evening the tingling sensation was very intense and my arms felt numb and cold. My face felt prickly. I was diagnosed with parathesia. If the issue does not resolve over the next week, I have been referred to a neurologist. It does appear today to be getting better.

– Muscle aches

– I still get occasionally tingling sensations in both of my arms. This occurs usually a few times a week and lasts for about 15-30 minutes.

Incision site rash, Dry skin and Dry eye

5SV-17842-95392

– I have been really cold, not chills

– I had muscle cramping beginning at 2 AM, it lasted about 6 hours

– I developed a rash at the injection site (10 days after injection) that spread into a nearby (healed) surgical incision that runs down my arm. It was hot for the first 2 days, then rough and itchy. That is getting better now.

– My skin is sore everywhere, including my scalp. Very thirsty even though I've been hydrating since yesterday, shooting pains, sore breasts

– Still have dry mouth and eyes, regardless of how much I hydrate.

Parosmia, Pyrexia and Oropharyngeal pain

5SV-21501-72182

– I was so achy and sore and exhausted the first 48 hours, I did not notice the shot site until today.

– I smell an odd smell occasionally.maybe once per day.

– Last Tuesday, I had a sore throat, cough, headache, and fever. My youngest son had same plus head congestion. He tested positive but I tested negative. I went to work yesterday, but I felt fatigued all day. Interested today and will know tomorrow. Health department covid test

Meniere's disease, Blood pressure decreased and Hypoacusis

5SV-30341-02644

– Insomnia

– Pressure (headache?) in forehead. Not painful or constant, comes and goes, and worse at night when laying in bed (stomach sleeper)

– From 2/22 through 3/2 I had on and off persistent head pressure, occasional lightheadedness, fatigue, and by the last day, minor head ache/discomfort along with the pressure. I was tested for COVID on 2/26 to be safe, but was negative.

– Low blood pressure, instance of passing out

– Insomnia last night

– Very tired, especially by the afternoon. Overall on and off feeling of being "off". At times I've almost felt like I have a fever, but I don't. On and off headache. Just an overall run down feeling that's abnormal for my circumstances.

– Developed Ménière's disease, intermittent low frequency hearing loss

– Ongoing intermittent low frequency hearing loss

– Discomfort to pain in left side, radiating to upper inner right thigh, then briefly passed out.

Arrhythmia, Rheumatoid arthritis and Somnolence

5SV-41547-35007

– Occasionally I'll get a stong wave of nausea. Maybe once a day but it only lasts for a few seconds.

– Fatigue, feeling sleepy

– Body aches- joint and muscle pain and stiffness.

– Joint flare ups, ankles, wrist shoulder, hips

– I was diagnosed with rheumatoid arthritis after having several flare up which was not typical for me within the last 4 months. Had to see a rheumatologist and got lots of blood work done.

– Irregular heart rhythm.

Arthritis reactive, Uveitis and Tendonitis

5SV-76145-28868

– It has only been one hour so symptoms may change.

– No

– Sinus pressure and drainage Extreme fatigue

– Reactive arthritis (suspected)Tendon inflammation General malaise and feeling unwellUveitis Sore throat Muscle weakness Somnolence Orthopedic doctor, gynecologist

– Received an additional booster because I had a cortisone shot. The vaccine gave me fever and severe joint pain for 2 to 3 days. I was very sick but had negative covid test. Joint pain is still present. Have increased brain fog.

Nausea, Chills and Oropharyngeal pain

5SV-82613-31945

– I did a large amount of hiking and climbing up and down hills and ice formations on Sunday and Monday. I believe these aches are due to those activities. I took some ibuprofen this morning and felt better

– Yesterday afternoon and evening I felt chilled, a little nauseous and had a headache. I feel better today

– I started a new job on Thursday last week and had a horrible headache Friday evening and did not feel well but I had missed two days of my estrogen replacement and after two days back on it - Sunday- I felt better. There were no other symptons

Oral disorder, Retching and Taste disorder

5SW-11864-05661

– Dry heaves and cough

– Bad taste

– The foul taste in my moth persists. Ive had muscle weakness come on suddenly such that my legs buckle under me.

– A rash that started five days after the vaccine worsened. The itching is furious.

– Continued bad taste Continued itching all overLesion in my mouth Dentist to rule out causes for bad taste and lesion

– A lesion in my mouth. Difficulty breathingSudden headaches

– Breathing issues

Injection site discomfort, Injection site pain and Headache

5SW-12689-00699

– Id initially discounted this, but Ive realized that at least once a day & perhaps more I have twinges of discomfort at the injection site. They dont really rise to the level of pain & are short-lived, but they do get my attention.

– I continue to have, usually several times a day, twinges of discomfort at the injection site. They dont quite rise to the level of pain, but they are annoying & Im getting concerned that they continue 3 weeks after my second shot.

– Ive had a headache following oral surgery yesterday. Also, the twinges in my left arm at the injection site continue.

– I thought the discomfort at my injection sight had finally stopped, but it reoccurs on a regular basis & can be very annoying. Its not something Ive sought treatment for but its concerning that it continues to happen.

Limb deformity, Hand deformity and Ear disorder

5SW-13332-63505

– Two weeks ago started having ear aches- left ear same as shot. Now the ear seems bloated inside.... not sure if related to vaccine but inset was after injection and symptoms have generally worsened (persisted).

– Extreme fatigue.

– Arm pain/ seems odd this far past injection. Muscle pain too... both arms and overall body. And fatigue persists.

– Extreme exhaustion no explanation for it. Sleeping 14 hours and still dog tired during day. Memory fog too. Just really not myself at all. Muscle aches and cramps that distort my arms, hands. Unable to hold items without cramps.

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