Their Stories

Intermenstrual bleeding, Alopecia and Menstrual disorder

4.11.2021 – Cramps

4.17.2021 – Diarrhia, stomach cramps

7.2.2021 – My cycle is still changed. I get cramps 4-5 days ahead of my actual menstruation, and this is very unusual. I also have more cramping around ovulation, and my bleeding pattern has changed somewhat.

10.1.2021 – Rapid hair loss began in July and stopped at the end of August, but I have also lost a lot of weight due to diet change. Period still different with spotting and cramping beginning much earlier before actual menstrual flow.

Cluster headache, Diarrhea and Nausea

10.9.2021 – I have been in a cycle of cluster headaches since 9/29. This a severe cycle but I don't think it is due to the booster. I have gotten clusters for 30 years in spring and fall. My original Pfizer vaccine were March and April with no clusters.

10.10.2021 – The headache is the cycle of cluster headaches I am in. But improving

10.11.2021 – Think my cluster headaches cycle is done for now

10.20.2021 – Moderate Diarrhea, fatigue, and nausea. Started last night. I haven't been out of the house for 2 weeks. Husband fully vaccinated and booster too. He works but wears mask

10.18.2022 – Diagnosed Covid on Sept 6. Got monoclonal antibodies on Sept 9

Arrhythmia, Cardiac flutter and Quarantine

5.11.2021 – Heart flutters, shortness of breath, ache in chest, tingling in feet and hands, heart monitor showed continuing daily afib and tachycardia for 8 days straight in March 2021

2.9.2022 – Starting 1-6-2022 & for about 3 weeks after, I had Cough, congestion, fatigue, muscle aches, hoarseness, sorethroat. No fever. I rec'd 3rd Covid vaccine dose (Pfizer) 10-22-2021. I tested Covid positive 1-8-2022 & 1-17-22 & isolated til negative

Wheezing, Hot flush and Hypersensitivity

1.21.2021 – Hot flashes

2.18.2021 – Sinus infection. Allergy symptoms

2.25.2021 – Still have sinus infection- do not feel it is related to vaccine Talked with my NP colleague for antibiotics

1.21.2022 – COVID- Headache, nausea, aches, chills, sweats, and sinus congestion I am a doctor- called in meds

6.4.2022 – I had COVID again. Cough, shortness of breath, fatigue, wheeze, back pain and headache. All resolved now- got inhalers, took Paxlovid x2.5 days, and prednisone, and ibuprofen

Ear congestion, Laryngitis and Productive cough

3.22.2021 – Diarrhea

5.31.2021 – Allergy like sxs- fatigue; congestion in ears, nose; headache. Felt feverish at first but no temp. Was bad for a couple days and now feels more like normal allergies

8.30.2021 – The usual- allergy stuff like congestion, headaches. Recent mild sore throat and headache; COVID-19 rapid test was negative.

5.27.2022 – Basic head cold stuff. COVID test was negative (rapid home test)

10.31.2022 – Sinus congestion, laryngitis, productive cough, possible ear infection for first few days.

11.7.2022 – Got COVID. Fever, fatigue, headache, nausea, cough, shortness of breath, occasional chest pain when coughing, severe congestion.

Bradykinesia, Skin reaction and Skin discoloration

4.23.2021 – Feeling weird

5.9.2021 – Just feeling weird

5.10.2021 – Feeling a little weird

5.14.2021 – Feeling weird, tired, moving slower than usual

5.29.2021 – I had an allergic reaction to the last vaccine, the doctor called it a delayed local reaction to the immunization. Arm swollen, discolored, hot to touch and felt inflamed. Today is day 6 and I still have the same symptoms, current on meds

6.6.2021 – Same as last week, armDiscolored, hot to touch pain and swollen

6.12.2021 – Same as before, delayed reaction to my left arm. Swollen, discolored, feels hot to touch,

Skin discoloration, Decreased appetite and Headache

3.19.2021 – Pain is too strong a word, but the area where the vaccine went in is a little tender today. Not bad at all tho - not nearly as bad as the Shingrix vaccines were!

4.9.2021 – Little appetite today ( but hey, I could stand to lose some weight!) I think the headache is sinus/allergy related; I get those this time of year. My normal temperature is 97.4 so 98.8 is like 100 for most other people.

10.9.2021 – 3 small skin spots that I think are eczema. Doubt this has anything to do with vaccination or COVID. But it's new - never had eczema before also never been 55 before so there's that.

Arthropathy, Gait disturbance and Abdominal pain upper

2.5.2021 – Back ache, but I think it is unrelated to the vaccine

3.17.2021 – I had terrible cramping in my stomach yesterday, 3/16.

4.7.2021 – I have had headaches every morning this lady week. Also the last 3 days, a low grade fever (99.0) that doesnt last. A little tired too. Have been working long hours staring at a computer, so it most likely is unrelated to the vaccine.

11.5.2021 – About to have hip replacement surgery, 11/9 and my hip is getting increasingly worst, painful to walk.

Pupillary disorder, Anisocoria and Mydriasis

3.14.2021 – Was gardening though!

3.22.2021 – Keep smelling something like gas in air

3.29.2021 – Smelling gas line smell that does not exist

4.7.2021 – Headaches continue and smell odours no one else smells

4.12.2021 – Pupillary abnormality. One larger than other for approx 10 hours.

4.19.2022 – Odd dizzy forgetful spells

5.2.2022 – Had episode of extreme abdominal pain lasting approx half hour last night after dinner that finally resolved with no subsequent issues.

7.4.2022 – Bursitis right hip and knee

Loss of consciousness, Dehydration and Injection site warmth

4.2.2021 – A week ago, my arm turned very red, was warm to the touch with swelling and itched. This was all at the injection site. It lasted 2 days. It did not incapacitate me. I felt like the vaccine was just doing its job.

4.6.2021 – I passed out and my husband called the paramedics. They checked all my vitals and did a portable EKG test, checked my blood sugar Everything checked out but they said I was dehydrated. I have been drinking a lot of fluids since this episode and Im feeling much better. I still feel fatigued. My husband called an ambulance when I passed out. I was not transported to the hospital.

5.3.2021 – Lightheaded

11.18.2021 – Chronic coughing , low grade fever and body aches

Sensitivity to weather change

5.20.2022 – The symptoms noted above are chronic and due to fibromyalgia and degenerative disc disease of the lumbar spine. . Symptoms today are typical and none that I can attribute to the vaccine

5.21.2022 – Symptoms listed above are chronic. No change after vaccination

5.22.2022 – Chronic symptoms that are no worse than prior to vaccination

5.24.2022 – Chronic conditions

5.27.2022 – These are chronic conditions. The stiffness and muscle pain are worse today but joint symptoms are about the same. I've found that low pressure systems tend to cause an increase in my symptoms. A low pressure system that came in yesterday brought hig

6.3.2022 – Fibromyalgia flare due to low pressure system that stayed around for several days associated with heavy pine pollen drop. Experienced severe widespread pain, excessive fatigue and muscle and joint stiffness

Coccydynia, Lymphedema and Pelvic pain

3.11.2021 – Tired, very slight nausea, and a not quite headache...could be nerves from the shot process

3.12.2021 – Slight chest/ belly pains...fleeting...and a headache not quite there.

3.13.2021 – Teensy headache, almost gone

3.14.2021 – Improving

3.15.2021 – Lymphodema left arm, severe lower back paim

3.16.2021 – Very bad lower back, seems to radiate through pelvis. and coccyx bone ...not a normal thing for me

4.22.2021 – Mainly fatigue, light congestion...slight headache. Could be coincidental cold maybe. Joint pain is normal level not elevated.

4.29.2021 – Slight upper respiratory issue maybe sinusitis

5.13.2021 – Fatigue

7.1.2021 – Im not sure the shot and issue are relatedwill update if it continues.My daughter is having continuing menstrual changes since the shot(same dates as me) she is not getting this survey so reporting here. Dr office

4.1.2022 – Pneumonia ( not Covid - tested negative at home and also next day was tested both quick and PCR at a urgent care facility) Diagnosed cold/ upper respiratory infection - no antibiotics just otc cold Breast calcifications just follow up in 6 mos. Plus regular Dr 5 days laterwhere diagnosis was pneumonia got antibiotics

Trigeminal neuralgia, Pain in jaw and Eye pain

1.21.2021 – Kinda weird but, I've developed an area of sensitivity, numbness and pain about two inches wide from the right side of the top of my head down through my right eye, cheek and jaw. No loss in ability to move or droopiness on that side but it's getting a bit more intense as the day goes on. Started on Tuesday with just sensitivity.

1.23.2021 – Trigeminal Neuralgia symptoms

1.24.2021 – Trigeminal Neuralgia or possibly Shingles

Vulvovaginal pain, Road traffic accident and Ear infection

5.8.2021 – I think I have an ear infection (unrelated to vaccine)

5.9.2021 – My snatch hurts

12.2.2021 – Neck pain, possibly lymph node pain

12.11.2021 – Having some vulvar / clitoris pain (I have vulvodynia so it happens from time to time)

12.16.2021 – Dude I got in a car accident so my neck hurts AND my snatch is numb on account of a keratin pearl removal procedure earlier today Gynecologist

12.23.2021 – Still some clitoris pain left

10.1.2022 – Clitoral pain flare (again - this happened the last time I got a Pfizer shot in 2021 too)

12.24.2022 – Gang I still am experiencing local labia minora/ clitoral hood swelling & redness that my local doctors & dermatolgist dont know what it is going to see a pro in March

Asthma, Injection site pruritus and Pruritus

2.18.2021 – Not diarrhea but more frequent times in the course of the day. I did experience an episode of itching but a Zyrtec took care of that

3.25.2021 – Itching of left arm

4.8.2021 – The vaccine site continues to each from time to time I take allergy pills and it subsides

4.22.2021 – The site is itching more and seems to be spreading. I have asthma. I seem to have congestion so I dont know if my cough is worse because of the weather or the vaccine

Butterfly rash, Immunodeficiency and Pleurisy

4.3.2021 – Low grade fever, sniffles, malaise

4.9.2021 – sinus and sniffles

4.30.2021 – extreme fatigue and pleurisy since Tuesday 4 days but I have lupus and got caught out in the sun for an hour Tues by mistake so probably a lupus flare.

5.7.2021 – lupus flare most likely due to accidental sun exposure, butterfly rash, extreme fatigue, pleurisy, migraines. Got monthly infusion fir Benlysta and was treates for flare with added methylprednisolone by IV, 150 mg during infusion at my rheum office. infusion methylprednisolone

7.2.2021 – pneumonia, but negative COVID PCR test on a batch test from CVS pharmacy. I got tested because I am on immune suppressors including Benlysta monoclonal antibody infusions monthly (B-cell depleters) and methylprednisolone, both for lupus.

6.20.2022 – cough. low pulse, low fever, vomiting diarrhea

9.23.2022 – cough moderate

12.23.2022 – severe cough, severe congestion, low pulse oxygen (92), headaches, negative rapid tests for COVID and flu at the Urgent Care. Could not get script for cough medicine filled due to national shortage. Pharmacist helped me find Mucinex DM, Allegra D.

Sensitive skin, Paresthesia and Pruritus

4.7.2021 – Internal itching of entire body, pins and needles prickling of entire body, very bad pins and needles sensation for 24 hours

4.8.2021 – Pins and needles prickling causing itching all over my body constantly

4.9.2021 – All over body itching and tingling

4.10.2021 – Itching all over

4.11.2021 – Still some over all body itching and sensitivity but not as much as the past five days

4.13.2021 – Major itching had reduced but skin seems extra sensitive to every little touch from clothing etc.

Burning sensation, Abdominal discomfort and Paresthesia

3.18.2021 – About 4 hours after I got the vaccine I had pins and needles sensations all over my body that came and went. They started on my fingers. Days later I felt burning sensations or stinging and itchiness. No rash or redness. Its been 10 days and Im still experiencing them but not as frequent. I realize this could be anxiety but want to make sure before getting my 2nd vaccine. I read some blogs where others experienced the same thing for weeks. I had only arm pain for 12 hours afterwards.

4.13.2021 – Continued paresthesia from the first vaccine. Not sure if its due from stress or mast cell activation.

4.23.2021 – Still having gastrointestinal issues off and on ever since the 2nd vaccine. Hard to get my system back on track once I get IB issues.

4.30.2021 – Paresthesia is worse yesterday and today.

Oligomenorrhea, Intermenstrual bleeding and Cold sweat

4.16.2021 – Felt like I was having cold sweats off and out, also felt like inside my body was really hot

10.14.2021 – Menstrual cycle has lasted 10 days or more. I start spotted 2/3 days before cycle starts then after day 7, start spotting again.

6.7.2022 – I have had a cough, congestion & sore throat for past 3 days

6.26.2022 – Sore throat, headache, fever and body aches

6.28.2022 – Body aches, headache, sore throat

11.22.2022 – Headaches off and on. Congestion and stuffy nose. Menstrual cycle is still irregular or lasting up to ten days.

Rash erythematous, Rash pruritic and Limb discomfort

3.28.2021 – Red itchy rash lower left arm as of Saturday 3/27/21. Previous rash has subsided

4.1.2021 – Rash on lower left arm

4.8.2021 – Redness and itching on lower right arm.

4.10.2021 – Itching and redness lower right arm

4.26.2021 – Developed welt with skin reddening on upper right shoulder. Welt on injection site.

5.1.2021 – Developed welts and skin reddening with itching on upper right shoulder and neck. Also welt and reddened skin on lower left arm.

5.8.2021 – Welts with reddening on upper back and right wrist. Itching on both.

5.19.2022 – No

Increased appetite, Contusion and Injection site bruising

1.20.2021 – Red round spots that look like rash an inch or so under injection site that feels warm, bruised injection site, Increased appetite

1.21.2021 – Bruise, rash like spot underneath injection site thats itchy once in a while and a little warm

1.22.2021 – Bruise at injection site, warm red patch under injection site

1.25.2021 – Bruise at injection site

2.1.2021 – a little bit of SOB

2.8.2021 – increased headaches

2.16.2021 – Dizziness

2.20.2021 – Bruising

2.21.2021 – Bruising at injection site

2.22.2021 – Bruising on injection site

5.17.2021 – A little bit short of breath more

8.17.2021 – Sometimes I feel like Im having dyspnea but not concerning

Dry skin, Tachycardia and Productive cough

4.8.2021 – Sweating like a fever breaking, but no fever

6.9.2021 – Cold symptoms for two daysRunny noseCongestionPhlegmHeadacheNo fever but felt feverish

12.21.2021 – Shortness of breath and mild contesting l congestion almost certainly tied to allergies. I took a BinaxNOW at-home COVID-19 test and got a negative.

12.23.2021 – Congestion

12.24.2021 – Congestion subsiding

1.8.2022 – Shortness of Breath Tachycardia

6.17.2022 – Recurring patches of dry, itchy skin, mostly on arms and legs. This comes and goes. First started before my last check-in. General practice doctor prescribed Hydrocortisone.

Abdominal distension, Dyspepsia and Abdominal pain

1.4.2021 – No, and I have had some if these symptoms since having COVID early in December

1.25.2021 – I was a little achy last night after I had already answered the questions for yesterdayp

1.27.2021 – None today, but after I had already answered yesterday, I was really tired and had abdominal pain as far as bloating, indigestion. Some nausea but gone today

2.15.2022 – Chest congestion, cough, fatigue,back ache

4.14.2022 – The day after my 4th shot my arm was sore and I was very fatigued for about 24 hours

Ocular hyperemia, Eye pain and Vision blurred

2.26.2021 – Stiff neck

2.27.2021 – Odd that most of the stiffness is only on my right side same side as injection. I have two knee replacements and the right prosthetic is very stiff which is usually is not. Also outside lower thigh area is sore and feels as though I walked into something which I know I did not. Additionally my right eye which had developed a pain and bloodshot area yesterday shortly after receiving vaccine is A bit sore and not focusing 100%. I just took some x-strength Tylenol for the first time since receiving vaccine it is helping somewhat.

3.26.2021 – Stiff neck, slight dizziness

Tendon pain, Disturbance in attention and Swelling

2.26.2021 – Glands in neck mildly sore.

2.28.2021 – Glands in neck mildly sore

3.9.2021 – The arm the shot was put in started throbbing with a deep ache from the shoulder down to the wrist yesterday. Felt like it was in my tendons. I did no physical activity to cause this. Tylenol, ice, heat didn't help. Couldn't concentrate. Went to bed.

10.9.2021 – Under arm pain

10.10.2021 – Under arm is moderately sore and slightly swollen.

10.12.2021 – Pain under the arm. Slightly swollen under arm. .

10.14.2021 – Mild underarm pain. No swelling

10.15.2021 – Under arm mildly sore. No swelling

10.8.2022 – Migraine headaches

11.12.2022 – Lymph node pain under arm & collar bone area

11.13.2022 – Swelling/liquid sack above clavicle nearest shoulder that got the shot

11.14.2022 – Swollen lymph node above clavicle, nearest shoulder

11.15.2022 – Swollen lymph nodes above clavicle, nearest shoulder

11.18.2022 – Lymph node swollen again above clavicle

12.24.2022 – Heart palpitations, achy clavical area returned.

Constipation, Gastrointestinal disorder and Abdominal pain

4.6.2021 – I recently finished chemotherapy. So I have some baseline fatigue. But none additional today.

4.30.2021 – I am not sure if I mentioned fatigue yesterday. By the end of the day I was exhausted. Today in the middle of the day I needed to take a nap. I believe my fatigue is someone increased over my post chemo fatigue

5.3.2021 – I think each day I have had fatigue. Some days I fill out the questionnaire earlier, but by the end of the day I really lose my energy. Again my chemo therapy that I finished a few weeks ago could contribute to this fatigue as well.

5.19.2021 – I havent mentioned these symptoms because I believe they were associated with side effects of chemotherapy. But I have had intermittent abdominal pain and constipation. And now I realize it began to worsen a week after my first injection.

7.28.2021 – I finished chemo three + months ago. That was within a week of having my vaccine. I have experienced some G.I. issues. Im not sure if theyre from the chemo or may have been related to the vaccine. I spoke with the oncology office. I didnt explicitly ask about the vaccine.

Visual processing disorder, Glossitis and Exercise tolerance decreased

3.16.2021 – Tongue was a bit raw last night. Mid tongue taist/textureis off today

4.15.2021 – No middle and front of tongue dull. Metallic taste in mouth

4.27.2021 – Bad pain in lower abdomen. Felt like muscle pain after a hard workout. Nothing happened that would account for this pain. Almost went to doctor. Pain in upper abdomen on right side as well. Once again, nothing that could explain pain.

5.11.2021 – Pain comes and goes in upper right-middle abdomen at lower rib.

7.13.2021 – Migrane - never had before. Disrupted visual processing.

Syringe issue, Macular edema and Coating in mouth

2.5.2021 – Heart palpitations, high BP and pulse, had to go to the ER.

2.12.2021 – The vaccine syringe malfunctioned and syringe content spattered onto my hand. I was offered a gauze pad to dry it. I stated concern about how much (if any) vaccine got actually inoculated and staff told me not to worry and declined to inject me with part of another dose. They said that I had 80% protection with the first dose and I should be OK. I am not sure I am protected. What can I do? What can you do to @help?

2.14.2021 – The vaccine leaked so I will need another shot. How do I get it?

2.15.2021 – There was a vaccine administration error/leakage so I am in need of a repeat shot for my 2nd dose of Moderna. So far unable to make it happen!

2.16.2021 – In need of a repeat second dose of Moderna as the syringe malfunctioned. Nightmarish to try and get it!

2.17.2021 – Syringe malfunctioned on 2nd shot. Need a replacement shot ASAP!

2.18.2021 – Syringe for Moderna 2nd shot malfunctioned and I NEED to get a replacement shot ASAP.

2.19.2021 – 2nd shot syringe malfunctioned and I am in need of a replacement shot ASAP!!!

2.13.2022 – Received the Moderna booster on 10/25/21. A couple of days later I started experiencing burning gingiva, white spots inside the mouth, and the inside of my mouth, specially the palate, were extremely sensitive. Dentist and PCP

7.5.2022 – Since 6/20 I started having a mild shingles-like rash. As this happened after the 2nd booster and I also had a HZV Luke reaction in my mouth after the 1st booster, there may be a link here. Cortisone cream helps with rash/ itch. Seeking med care.

11.29.2022 – The vision in my left eye deteriorated. There was retinal bleeding and then CRVO with macular edema, treated with Avastin. On 11/17 I suffered a total posterior posterior vitreous detachment. Doctor visit, specialist, ER and a second retina specialist.

Body temperature decreased, Eye pruritus and Mobility decreased

2.25.2021 – my temperature has gone from 96.2 to 96.9 since the shot

2.26.2021 – Just pain in arm. Temperature steady

2.27.2021 – normal temp is 96.5 temp normal now

3.2.2021 – i've had awful itchy eyes and runny nose; had to double up on zyrtec dose

3.18.2021 – my temp is normally 96.5 or so

3.19.2021 – my normal temp is 97.4 so 98 something is a fever. i have the chills so bad spent the day in bed; actually shivering

3.23.2021 – just depression from the shooting in (b)(6)

3.24.2021 – just still sad over the shootings (b)(6)

3.25.2021 – feeling completely normal thanks for your interest!

10.1.2021 – my temp is normally 96.3

Viral infection, Arthritis and Swelling

4.6.2021 – My knee pain has been worse

4.20.2021 – I had nausea, diarrhea, chills, fever, redness and swelling, and body aches that were mlderate to severe from the 16th-18th

5.20.2021 – My spinal degenerative disc disease and knee degeneration from arthritis are getting worse. Being sent for a second opinion at a new pain management doctor. Saw my orthopedic surgeon for steroid injections in knee and pain management dor third epidural shot in lower spine.

12.20.2021 – I caught a virus that's been going around.