Their Stories

Memory impairment, Disturbance in attention and Parosmia

1.4.2021 – Dizziness/lightheadedness; all s/s occurred on 1/3 at approximately 0300-0900

1.7.2021 – Altered sense of smell

2.6.2021 – Nausea and vertigo yesterday 2/5, no s/s today

2.20.2021 – Severe fatigue, inability to concentrate, brain fog, forgetfulness, depression like symptoms, intermittent nausea, poor efficacy of ADHD medication despite dosage adjustments per PMHNP Mental health care provider for med adjustments

3.13.2021 – Varying symptoms with unpredictable onset. Nausea, headaches, sob, fatigue

Increased appetite, Electric shock sensation and Skin irritation

2.10.2021 – Brief fogginess 45 minutes after injection

3.1.2021 – Mild pain in my fingers and hand, on the same side as the shot.

3.4.2021 – Large desire to eat, constantly; also chilly, but not having actual chills

3.5.2021 – Temporary nasal stuffiness and related allergy-type issues

4.12.2021 – Moderate fatigue around the same time each day, corresponding with chilliness and moderate brain fog. Allergies?

5.31.2021 – Weight gain

11.9.2021 – Moderate brain fog

11.18.2021 – Increased menstrual bleeding (almost continuous, with short breaks for three weeks). Itching of face, neck, and scalp, and development of skin sensitivity (irritation where anything makes contact with skin). In person doctor visit

11.4.2022 – Electric crackling sensation radiating from face to extremities and stomach, followed by pain and intense vomiting and diarrhea.

Pharyngitis, Laryngitis and Paranasal sinus hypersecretion

1.11.2021 – Rash/hives and redness with itching has return mostly on my chest. Thete is a little on my neck and back. I jave used some new skincare products on my chest, neck and face. I akso jave had some professional facials since all these symptoms started.

1.23.2021 – Allergy symotons when I was in the woods today. They got better when I git out if there.

1.24.2021 – The nught I received the shot I ran a high fever with a hadache, loss of appitite and fatique thatlasted all the next day, and my energy and appitite didn't return until Thursday afternoon. I recieved the shot on a Tuesday around 12:30 pm.

1.26.2021 – One spot on my leg itched, but there are no visible signs of a rash.

2.9.2021 – Snifles, headache and fatique

4.21.2021 – Sinus congestions,fatique, slight cough with sinus drainage. I had a sore throat when this started about 10days ago.

7.20.2021 – Bronchitis, sinus infection, throat infecton and rar infection.

1.19.2022 – COVID Sinus congestion, mild sore throat, mild laryngitis, mild headache

Obstructive airways disorder, Eye discharge and Localized infection

3.23.2021 – A runny nose. If you stiffness .

5.11.2021 – I get tired quicker and have a constant early morning Mucus.

6.1.2022 – Tightness in bronchial tubes, infection in nasal , muscle aches, clear a running fluid from nose (b)(6) allergy clinic

12.2.2022 – I have a cold sore throat for one day lots of sinus and drainage from the eyes. Then it would move from the chest to the throat to the head sinus areas for about three weeks now it's breaking up and feeling better

Allergy to chemicals, Hangover and Hypersomnia

3.4.2021 – Could taste vaccine right after injection. I have chemical sensitivity.

3.5.2021 – Had trouble sleeping last night

4.2.2021 – Felt hungover

4.4.2021 – I missed yesterdays check in to clarify my severe chills started 10 hours after injection which was actually Day 1 after I had already reported. Yesterday I felt somewhat nauseous but otherwise ok

4.5.2021 – Could not sleep last night. Similar to first night after 1st shot but this was night 4.

4.30.2022 – Had severe chills and needed to sleep hours 9-22 following receiving dose 4 w Pfizer, similar to Moderna reaction

Tongue movement disturbance, Muscle atrophy and Nasal dryness

1.13.2021 – The itching is now further down my arm, a bit past my elbow.

1.14.2021 – I've had headache and muscle pain BUT these were pains I had prior to the vaccine, therefore unrelated.

1.16.2021 – No but you should know that the muscle/body aches that I have are pretty typical for me even without a vaccine.

1.17.2021 – Left sided headache/migraine

1.18.2021 – (The headache may be related not to the vaccine but to my chronic issue

2.10.2021 – Dry stuffy nose

2.11.2021 – Swollen supraclavicular lymph nodes on same side as shot in arm

2.12.2021 – The supraclavicular lymph node pain and swelling has greatly reduced and is now mild and tolerable.

2.18.2021 – The headache is likely NOT related to the shot. I am Very prone to headaches

2.23.2021 – Stomach pain for a day or two, but perhaps it was due to something I ate?

3.2.2021 – Left sided throat and left ear pain for approx 3 days ending about 2 days ago. Then very fatigued. But the ear and throat pain seemed like it might be allergy related.

12.19.2021 – A chronic cough precovid cough is slightly worse.

10.11.2022 – Left thigh bone pain, but this was occurring intermittently prior to vaccination, as well.

10.13.2022 – No but FYI the headache and fatigue were occurring before the vaccination.

11.4.2022 – Worsening muscle pain & atrophy in back muscles, shakiness, twitching in tongue & left shoulder, & intermittent numbness and tingling in parts of extremities. I have no idea what is causing these symptoms. They've been going on for many months.

Menstruation delayed, Productive cough and Ear pain

4.21.2021 – After my First shot, my menstrual period was 9 days late. I havent been late in over 10 years.

11.28.2021 – Earache and sore throat but attribute that to beginnings of a common cold

11.29.2021 – Sore throat/earache but most likely due to an impending cold

11.30.2021 – Sore throat and earache but assuming it's from an impending cold

12.1.2021 – Earache & sore throat tho most likely from a cold

12.2.2021 – Earache and sore throat continue, still assuming from an underlying cold

12.3.2021 – Earache & sore throat

12.18.2021 – Congestion, runny nose, sneezing, phlegmy cough

Breast pain, Lethargy and Erythema

3.7.2021 – Itching/redness was yesterday;didn't last long. Injection site a tad tender.

3.8.2021 – *Very* minimal tenderness @ injection site

3.10.2021 – Pain on right breast earlier this afternoon but no more. Weird. Breast cancer on that breast in 2017 but not in lymph node. Small tiny area was successfully removed. 4 weeks radiation. Was a sensitive area for awhile. But no discomfort in right breast area for a couple years til this afternoon but the soreness now gone. WEIRD.

4.2.2021 – Feel lethargic; woke up in middle of nite, got up and head felt woozy for a few seconds...then went away.

Oral mucosal exfoliation, Asthenopia and Oral pain

1.29.2021 – a bit flushed in the cheeks

1.30.2021 – tired eyes

2.23.2021 – just an occasional tired feeling.. comes and goes, nothing major.

5.21.2021 – I had an irritation olin my mouth for two weeks that I have never had before.. Began around May 5th.. very painful, very dry mouth, some sloughing on gums. Could be a reaction to cinnamon in my coffee but have no idea. It is pretty much healed no

10.1.2021 – i want to report I had a lot of symptoms the day after my vaccine but all were hone within 24 hours. Sore arm, fatigue, brain fog, feverish, headache.

4.15.2022 – only on the day after my injection (Apr 9 ) did I experience headache, joint pain, tiredness. a bit feverish. took tylenol all was gone the next day.

Vibratory sense increased, Nervousness and Head discomfort

1.13.2021 – Mildly itchy skin intermittent

1.17.2021 – Palpitations

2.5.2021 – Foggy brain, shaky

2.7.2021 – Shaky, lightheaded/dizzy

2.8.2021 – Shaky, head pressure. Lightheaded

2.9.2021 – Shaky, lightheaded

2.16.2021 – It actually started the 5th with body shaking and lightheadedness, but also have not been able to sleep since about the 10th off and on. Have felt nauseous off and on, headaches off and on, and my body has a tremor or internal vibrating feeling.

2.24.2021 – Insomnia with shakin in my body and lightheadedness. Worse. Started on 5th, 3 days after vax though.

3.2.2021 – Still shaky, lbody vibrating sensation, lightheaded intermittently, which started the 5th, not quite 3 days after vax.

3.9.2021 – Body shaking, especially in neck and head is very noticable. Has been ongoing since just after vaccine and seems worse at times. Headaches persisting and head pressure.

3.16.2021 – Shaky, body tremor since 2.5 days post vaccination. Pressure in head, headaches.

5.4.2021 – Fatigue, shaky/vibrating sensation, fuzzy head since Feb 5th.

2.2.2022 – Continued issues with inflammation in my body

Breast tenderness, Breast pain and Tenderness

4.2.2021 – I had a weird taste in my mouth at one point out of the blue which lasted five or ten minutes but then went away. I hadnt eaten anything for a few hours before so it seemed strange.

4.5.2021 – Joint pains limited to neck area. Could be unrelated

4.22.2021 – I only got the second shot an hour ago so still a bit early to see symptoms appear

4.24.2021 – Tender and sore lymph nodes in underarm of arm with injection that has spread to the breast

4.25.2021 – Underarm and breast still a tad tender but much better than yesterday and feeling a lot better overall

4.26.2021 – Slight soreness in underarm and breast area of side where injection took place

Joint stiffness, Musculoskeletal stiffness and Hypoesthesia

3.6.2021 – Dizzy

4.16.2021 – Pain and stiffness in hands

4.30.2021 – Since the 2nd shot, I have had major pain and stiffness in my right hand. Came on very suddenly so not just old age arthritis which comes on over time.

5.7.2021 – Pain in my hands is really bad. Especially in the morning. Meds and Voltaren dont help.

6.25.2021 – My joints are so painful and stiff. It takes me 10 min of opening and closing my hand before I can even get in the shower to wash my hair.

9.24.2021 – Numbness, pain and stiffness in hand. Joint pain.

Erythema and Paresthesia

1.29.2021 – After the shot, tingling in the hand of that arm. Slightly up the arm. Went away in about 30 minutes.

1.31.2021 – Yesterday after the check-in, redness on my neck opposite side of injection site. Gone after 20 minutes or so. Today, some mild tingling in the big toe same side as injection site. Faded away over the day, so no real when did this stop

2.1.2021 – The tingling in my toe and into my foot came back. Took several hours, but eventually went away. Have had no problem since I got up at 5:00am Central time.

2.2.2021 – More of a nuisance than actual pain or aches. Currently not much of a bother

Induration, Injection site nodule and Nodule

1.9.2021 – Swollen nodule next to injection site

1.10.2021 – I still have a hard nodule next to injection site. It hurts when it is pushed in.

1.11.2021 – Still have a hard nodule- it's getting a little smaller

1.12.2021 – Still have small nodule next to injection site

1.13.2021 – Small nodule next to injection site still

1.21.2021 – My nodule turned red and was hot to the touch. Then it spread past the markings I drew around it. This was about 9 days out after having it. The next day it got better.

2.6.2021 – Rash at the injection site

Polymyositis, Eye disorder and Respiratory disorder

3.2.2021 – More of a runny nose than this morning. No idea if this is vax or allergies

3.3.2021 – More easily winded than usual, had to cut down on activities.

3.4.2021 – Brusing around one eye, continued diminished respiratory capability, odd complete loss of appetite.

3.7.2021 – Still having eye problems, possibly ingrown lashes or another irritant as a reaction to vaccine

3.8.2021 – Eye situation may be improving

3.17.2021 – General itching

3.23.2021 – Probably starting a polymiositis flare but not as bad as last fall.

4.9.2021 – Im having a Polymiositis flare. Am I crazy or is it a little better this week.

Polymyositis, Dermatomyositis and Muscle atrophy

6.11.2021 – Diagnosed with polymyositis. Weakness of leg, hip and back muscles .

6.20.2021 – Experiencing more upper body weakness and lower back ache. Not able to sleep thru the night due to insomnia, sleeping about 3 to 5 hours a night. Being treated for polymiositis with 20 mg prednisone and 200 mghydroxychloriquine, both twice a day.

6.29.2021 – I experienced an allergic reaction to the hydroxychloroquine. Am now resting and awaiting for the rash to go away from my neck, chest and back. My walking and stability doing stairs has not improved. Unable to sit for long periods.

7.4.2021 – Now diagnosed as polidermamiositis. Experiencing rashes, bruises and breakout on face. Scheduling a CTA for a possible PE, scheduling a biopsy of muscle tissue, as well additional blood tests. Cannot sleep more than 3 or 4 hours at night due to meds. Follow up appointment with my rheumatologist as well as a phone check in with my primary doctor.

8.22.2021 – Experienced a lot of muscle pain in my back, as my protein levels are gradually returning to normal and the muscle tissue regenerates. My prednisone dosage has been decreased to 30 mg a day now. Taking Tylenol for the pai and heating pad, as needed.

Dry eye, Eye pain and Injection site erythema

4.16.2021 – Lafternoon on 4/9 (7th day post vaccination), arm pain started to come back after days of feeling fine. Pain was worst that night thru midday 4/10. Red slightly swollen patch at vaccine site, a bit itchy. Pain almost 100% gone by midday Sunday 4/11.

5.1.2021 – Sore/dry eyes. Slight dizzy/faint feeling for a brief period (around same time as nausea).

12.16.2021 – Peak fever was ~36 hours after shot, Tuesday night, 101.2 - did not get a V Safe text Wednesday though to log that. Large red patch at injection site seems to have only appeared last night, 48+ hrs after the shot

1.12.2022 – Some fatigue, very slight fever & slight sore throat - but PCR & rapid Covid tests came back negative

1.17.2022 – Sore throat, slight headache, slightly elevated fever. Negative rapid at-home test though.

6.17.2022 – Covid-like symptoms but NEVER tested positive, starting a few days after close exposure to someone who developed symptoms & tested positive later that same day. Light symptoms 3 days after exposure, felt better day 4, then worse days 5-7. All neg 3-7

12.15.2022 – Caught Covid

Injection site warmth, Injection site swelling and Injection site pruritus

4.28.2021 – 8 days after receiving first dose, my arm swelled up around the injection site. It felt sensitive and itchy, and it was warm and red. This lasted about 3 days before receding. Disappeared entirely after another 3 days.

5.19.2021 – The day after my second vaccine, I experienced aches and pains all over my body, and had a mild fever. This continued until the third day. Fourth day I was just tired and Covid arm appeared at the injection site. 5th day I woke up with a terrible headache and swelling expanded at the injection site. I used ice packs on it. 6th day I feel fine except slight swelling g at injection site that makes it uncomfortable while exercising.

Adenomyosis, Infertility and Orthostatic hypotension

12.24.2020 – Intolerance to cold in my fingers...outside x1 hour with gloves on in 45 degree weather (seasonally warm), and fingers were freezing, red, and puffy/stiff. No idea if this is vaccine related or just a new thing for me, resolved after going inside and warming up but reoccurred during second outdoor outing

12.28.2020 – Scattered red, flat, pinpoint to trunk, not itchy or painful

1.15.2021 – Runny nose. Rash scattered red pinpoint to trunk, same as on day 5 after first vaccine. Not itchy or painful. Rash did not cross midline and was opposite from injection side with second dose

1.16.2021 – Cough

1.21.2021 – Swollen glands upper body vaccine side

2.3.2021 – Since vaccine 1 I have had frequent orthostatic hypotension. This started the night after my first vaccine and improved about a week after and has since remained steady occurring 1-2x per day. Did not appear to improve or worsen after second dose.

11.25.2021 – Swollen lymph nodes

5.25.2022 – Infertility

10.5.2022 – Swollen lymph nodes, improving

Eye operation, Presyncope and Anosmia

3.3.2021 – 14 days after the shot I feel tired, weak, on verge of fainting, had to lay down. Still have redness on arm around vaccination site, short of breath. I am on medication for heart failure.

4.6.2021 – Body aches all over -- back, legs, arms, neck.

10.18.2022 – No

11.14.2022 – Tested positive for COVID-19 on 11/10/2022. Treated in ER with Bebtelovimab. Prescription for Benzonatate.

11.21.2022 – I have been sick with Covid for two weeks beginning Nov. 7. Can't smell or taste anything, cough, sore throat, body aches, runny nose, shortness of breath.

Sinus disorder, Gastrointestinal disorder and Abdominal pain

2.17.2021 – Rash on arm that had shot. Its very itchy and also rash on back.

3.3.2021 – Have had a swollen lymph node on collarbone since week or so after first shot but didnt relate it to vaccine, but maybe it is related. Reg PC appt. May get uktrasound

7.30.2021 – Sinus and congestion and cough

4.12.2022 – Stomach off

4.14.2022 – I think the above is from a flu bug. As far as abdominal pain and diarrhea.

4.15.2022 – Think that is from a bug or diverticulitis flare.

5.15.2022 – Covid symptoms

Craniocerebral injury, Depressed mood and Feeling cold

2.1.2021 – I already had fatigue before getting the vaccine; it is the same before and after

2.3.2021 – Depression/sadness, aversion to going out and seeing other humans

2.4.2021 – Depression, desire to not go out among people, cold (96.1F oral with a wool coat and scarf on at home)

2.6.2021 – Depression, avoiding people

2.23.2021 – I know 98.0 doesnt seem like a fever but my body temp range is 96.4-97.6. 98.0 plus chills is a fever for me.

3.14.2021 – Cold/flu symptoms of sore throat, runny nose, sneezing, fatigue, brainfog

5.23.2021 – Hit my head and have mild TBI, back spasms because of sleep posture, sore throat from allergies and dry air. Nothing related to COVID

8.22.2021 – Sore throat, fatigue, sneezing, mild neck stiffness

10.19.2022 – Cold/flu viral feelings: 7 day long fatigue, joint and muscle pain, fatigue and brain fog. But, took 2 at-home RAT and one naso-pharyngeal swab PCR test on day 5 which was negative for COVID-19, influenza A and B, and RSV, so prob a Cold

Dark circles under eyes, Intervertebral disc degeneration and Spondylitis

3.13.2021 – My eyes are puffy with dark circles this morning.

4.4.2021 – Swollen lymph nodes in arm pit

4.30.2021 – Fatigue and headaches

10.1.2021 – Ive developed psoriasis in the armpit where that enlarged lymph node was from the shot. I already have scalp psoriasis before I got the shot.

10.15.2021 – I had insomnia last night

10.17.2021 – Eyes ache

4.13.2022 – I have developed arthritis in my lower back. I've never had any pain like that before. Not sure what caused it. Yeah

10.27.2022 – I have had degenerative disc disease diagnosed along with osteoporosis in the past year. It

Ovarian neoplasm, Injection site paresthesia and Injection site hypoesthesia

3.12.2021 – I have a UTI bladder infection

3.19.2021 – uti but likely unrelated to vaccine

3.26.2021 – dizzy and woozy first hour after shot - they had me stay 40 min at clinic

4.2.2021 – uti

5.7.2021 – uti wont go away

10.22.2021 – dizziness, light headed, throat tight

10.24.2021 – tingling weak arm (injection arm)

10.25.2021 – tingling and numbness in arm where i got shot

10.27.2021 – some numbness in injection arm mild

11.26.2021 – hive breakout but it is ok now

4.23.2022 – delayed menses but probably just due to age

10.23.2022 – weird consistent pain in upper right thigh

12.8.2022 – covid infection

COVID-19

3.7.2021 – Do you think that my blood type A might explain why my symptoms are worse than those of my husband (B)?

11.7.2022 – I just tested positive for Covid!

11.8.2022 – I have Covid, so any symptoms have more to do with that than with the shot.

11.9.2022 – This is supposedly day 6 of my very real Covid infection.

11.10.2022 – Covid seems to be waning, hopefully. This is day 7.

11.11.2022 – I am now day 7 since Covid onset.

11.12.2022 – It seems my case of Covid is slowly abating.

11.13.2022 – Covid seems to be nearly over. I will test tomorrow.

11.14.2022 – Still testing positive for Covid on day 10 since onset.

Myasthenia gravis, Ligament sprain and Fatigue

3.12.2021 – None

3.17.2021 – Nothing other than fatigue/ tiredness. I am able to do things moderately but I just feel tired all most of the day so rating the symptom is I guess mild .

3.18.2021 – No, just want to say that I am less fatigued today which hopefully is indication of hitting the downside of it.

4.16.2021 – I sprain my thumb and had to go to SSM Uugent Care.

6.11.2021 – Hospitalized from May 4, 2021 until May 11, 2021 for episode of Optical Myasthenia Gravis

3.12.2022 – Flair up of Myasthenia Gravis causing hospitals stay

Immune system disorder, Swelling face and Feeling cold

9.6.2021 – The right side of my face swelled up so much it looked like I had the mumps!

9.11.2021 – After my face swelling went down 5 days after my 2nd shot, I began to feel cold like. It got better fit a day or two, but now its back. I have no idea whether any of it is related, but did happen after my second shot.

10.2.2021 – I have been lethargic since my shots. Also something weird is happening with my immune system. I cant get over this post nasal drip and phlegm going on a month now. My doctor

Psoriasis, Eczema and Swelling

11.1.2021 – Very mild redness, swelling and soreness today. I think the vaccine makes my eczema worse. So thankfull for the vaccine!

11.2.2021 – Increase in eczema

11.10.2021 – My eczema and psoriasis are worse. That happen with the initial Covid vaccines too. Lasted several months before, not quite back to normal when I got the booster. Since the booster they have gotten worse again. Very thankful for the vaccine!!

7.27.2022 – The vaccine always causes a psoriasis flare that lasts for many months. The flare has improved but not gone away from the previous vaccine. It will get worse in the coming days from this vaccine.

11.8.2022 – Psoriasis has gotten worse

11.20.2022 – Psoriasis flare is worse

Back pain, Lymphadenopathy and Fatigue

3.27.2021 – Lower back hurts some (around my tailbone)

3.30.2021 – I have been tired this week. Could be other reasons?

4.18.2021 – I had back pain with the first and have it again

4.19.2021 – Back pain (around hip area)

4.30.2021 – Feeling exhausted not sure if its the vaccine or something else.

7.17.2021 – Swollen lymph nodes in my neck on side of shot and in the back of my neck at scalp. Having an ultrasound of them in a week.

10.15.2021 – My lymph nodes in my neck on one side (the shot side) have been swollen since getting the vaccine. It went down then came back. I had an ultrasound. It may just be coincidence, but it did happen after the vaccine.

Corneal disorder, Parathyroid disorder and Parathyroidectomy

6.3.2021 – I have severe poison ivy over a lot of my body.

10.21.2021 – Problem with calcium levels and parathyroid levels. Osteoporosis specialist

11.12.2021 – I have a cold

4.2.2022 – Problem with parathyroid. I had a partial parathyroidectomy last Thursday, March 31, 2022. Surgery at Surgery Center of (b)(6)

5.26.2022 – A problem with the cornea of my eye. Doctor appointment

7.12.2022 – I have an eye problem. Also I have a cough. Dr. Visits for my eye.

10.13.2022 – I became blind in my left eye. Several ophthmalogists

11.18.2022 – Upper respiratory symptoms, running nose, cough.