Their Stories

Dizziness postural, Facial pain and Rash erythematous

2.23.2021 – Swollen lymph nodes hot to the touch on left side of neck

2.24.2021 – Swollen lymph nodes on left side of neck, some mild pain on left side of chest and left side of face late last night and early this morning.

2.26.2021 – Mild left chest pain

3.1.2021 – Cramps

3.9.2021 – Spells of dizziness on getting up or with movement from standing to walking

3.30.2021 – Large red rash that began to scale and peel under arm where vaccination was received following swollen lymph nodes in the underarm area that began soon after vaccination.

7.26.2022 – Chest pain

8.1.2022 – Chest pain, left side

8.25.2022 – Dizziness sometimes

Hernia, Periorbital swelling and Back disorder

3.26.2021 – Having pain in/at one of my knee replacements. Doctor relates it to back issues. To begin PT in 2 weeks.

8.13.2021 – Hernia and intestinal discomfort with ocassional diarrhea and/or mild constipation. Physician in office exams

12.29.2021 – Feel as if i was developing a cold; puffy eyes, runny nose, a feverish feeling but no fever. Lasted a couple of days then appeared to go away. After two days symptoms reappeared for one day. I did get a PCR test and am waiting for the results.

3.30.2022 – Shortness of breath. Doctor visit

Dyschezia, Bradykinesia and Abdominal distension

3.17.2021 – Dizziness.

4.5.2021 – Dizziness

4.6.2021 – Brain fog, balance insecurity, dizziness

4.8.2021 – Constipation; slower, more deliberate movements to offset imbalance.

4.9.2021 – Imbalance and dizziness

4.19.2021 – Pain in upper right arm, not constant but sharp when arm extended and moved back.Fatigueon a scale of 10, rate at 4.

5.16.2021 – Bowel movement is increasingly difficult ranging from constipation and diarrhea. The lower digestive tract passes gas and feels bloated with pain at times.

Joint injury, Sinus operation and Sciatica

3.10.2021 – Shoulder aches. Left worse than right. Left deltoid is vaccination site. Very uncomfortable.

3.17.2021 – Fatigue, shoulder aches

3.24.2021 – Left sciatic pain( low back and down left thigh)

5.19.2021 – Cough; sciatic nerve pain

12.28.2021 – Fever, chills, cough, sore throat, aches, loss of smell and taste, diarrhea, headache.

3.29.2022 – Fever, cough, congestion, loss of taste and smell, extreme fatigue, body aches.

4.27.2022 – Headache and nausea.

5.4.2022 – Nausea

5.18.2022 – Right side sciatic pain Chiropractor

7.6.2022 – Sinus surgery. Same day surgery.

10.7.2022 – Knee injury. Unrelated to COVID. Orthopedic Doctors office

Skin mass, Generalized edema and Trigger finger

4.24.2021 – Slept alot

4.26.2021 – Pain at elbow joint on left arm where vaccine given

5.14.2021 – Dizziness

5.20.2021 – Sleeping all day

5.27.2021 – I was having recurring chest pains, on & off. I went to ER to get checked & also do CT with contrast to check for PE.

6.5.2021 – Fever, side & abdomen pains.

6.18.2021 – Sleepy all the time, doze off sitting up. Also itching on back, hands, legs. Leg, ankle arm swelling where itching.

8.12.2021 – Lumps underneath the skin on bones, ankle, knee, elbows, shins, etc that itch terribly, but are not a breakout on the skin, its from within. Tried steroid dr. Prescribed for other allergic breakouts. Worked for 4 days then started intense itching aga

11.11.2021 – I continue to get raised lumps under my skin which becomes extremely itchy & sometimes painful. I take Claritin antihistamine at night which helps itching so I can sleep. Never had anything like this before! This actually started in June.

5.13.2022 – Still having extreme itching with no bites, hives etc. Just swollen itchy areas all over body. Developed a 'trigger finger which I can't straighten out. Very painful thruout my hand, waiting for orthopedic appt. Primary care physician after urgent care.

Impaired gastric emptying, Costochondritis and Chromaturia

4.21.2021 – Seizure the day of injection, vomiting early wee hours next day. Nausea and headache yesterday and tody.

5.4.2021 – Persistent nausea and vomiting. Severe abonimal pain. Saw my PCP and my VNA Nurse. Did not want to spend hours in the ER while feeling misable waiting to be seen.

5.9.2021 – Still dealing with the persistent nausea and fatigue, and taste buds seem to be off for some foods.

5.16.2021 – Nausea, urine is dark yellow, fatigue and sense of taste is still off. Pcp ordered another urinalysis

5.23.2021 – Exhaustion, shaky PCP told me to go. Turns out was dehydrated from my previous symptoms that I reported.

7.19.2021 – Itchy on my upper chest, back and arms. Stomach cramps, diarrhea, vomiting and sparatic chest pains.

10.17.2021 – Shortness of breayh, fatigue, muscle aches, headaches.

4.18.2022 – Persistent sinusitis, gastroparesis, costroconditis, facial pain, daily headaches and more frequent seziures.

Cystitis interstitial, Breast cyst and Photopsia

4.17.2021 – Constipation

4.18.2021 – Started the fever and vomiting after i did my check in last night. And tylenol brought the fever down. Vomited oncebut didnt eat much. Lymphnodes on left side where i got my shot, and neck/arm pain on that side is worse than everywhere else.

4.19.2021 – I know most people get diarrhea but I've been constipated for 3 days. Had night sweats all weekend and last night. This morning I was much worse than I am now. Ive gradually started feeling better as the day went on and my injection arm still hurts and my neck and back..but no more nausea, vomiting or fever.

4.20.2021 – Was tired this morning for work, took a nap on my lunch break. Left shouder, injection site and neck still sore. Had an ocular migraine-flashes of light in corner of vision and a wicked headache. Last time I had this same headache, was a few weeks ago after my first shot. Took excedrin after my nap and my headache went away- feeling pretty good right now, finally had a BM this morning, but still slightly constipated. Minor abdominal pain.

4.21.2021 – Day started with mild headache that lasted through lunchtime and went away. Left arm injection site is still mildly sore. Otherwise ok

4.22.2021 – Have not had a normal Bowel movement since my shot. This morning had severe abdominal pain, lower back pain. Had a small b.m. that was almost like diarrhea. Took a nap on my lunch break again. Currently have a horrible headache, my left shoulder muscle hurts up into my neck amd up into my head and its all making me nauseous.

4.26.2021 – I did yardwork all weekend and my allergies are out of control. Im sure thats why im sore and have a headache.

5.10.2021 – Ocular migraines again. Flashes of light in my vision and a bad headache. Ive had two since my last check in. Also the day after my last check in my left arm muscle twitched/spasmed for an entire day.

10.19.2021 – Diagnosed with interstitial cystitis back in July. I also keep getting muscle pain in my left arm where my vaccine was injected. Its an ache that goes from my shoulder to halfway to my elbow.

4.18.2022 – Chronic Headaches and pain in left breast. They found small cysts on mammogram. Achy joints like im in a nonstop fibromyalgia flare up.

Tendonitis, Loss of personal independence in daily activities and Muscular weakness

3.1.2021 – In the past week I have had a rash on my arm at injection site and a slight feeling of weakness in that arm. This does prevent me from doing anything just aware of it. No bruising, fever, chills, etc. May be unrelated but don't remember injuring it.

3.22.2021 – Right arm where i received vaccination has some muscle weekness. Not at injection site. Muscle weekness in raising arm up to horizontal. May not be related to vaccination, may have dtrained it, but its been persistent.

3.29.2021 – Still have upper arm pain. Seems skme sort of tendonitis.

Sensation of foreign body, Breast mass and Aphonia

3.10.2021 – Stomach ache/mild nausea Monday, 3/8. It only lasted a few hours and I couldnt work during the time. Once it went away, I was able to return to my usual virtual work duties. Not sure if its related to vaccine, seems unlikely but worth mentionin

3.18.2021 – Scratchy throat/ losing voice

3.19.2021 – I lost my voice yesterday and it still hasnt come back.

3.22.2021 – Sniffles and occasional blurry vision

3.31.2021 – Earache

4.14.2021 – I have a lump in my throat/neck... maybe a swollen lymphnode.

4.21.2021 – Runny nose, cough

12.31.2021 – Concerning breast mass- Irregular mammogram and ultra sound- probably unrelated- but concerns were on same side as vaccine injections so maybe worth mentioning). Ultra sound/Biopsy

Atrial fibrillation, Limb discomfort and Swelling

3.4.2021 – Pain and discomfort in my legs and feet but I do not think it is because of the vaccination. I have bad veins and I had a bad fall last year and I'm 75 years old.

8.19.2021 – Bad episode of atrial fibrillation. I was in the hospital for 3 Days in July, but I am doing well and fine now.

9.30.2021 – Swelling under the armpit and across my chest

10.1.2021 – Still swollen under my arm on the left side where the shot was given but not quite as bad

Sacral pain, Hypopnea and Neuralgia

3.23.2021 – Fibromyalgia, Sjogrens Syndrome, Monoclonal Gammopathy with awful neuropathy, Type 2 Diabetes, Hypothyroidism, Chronic Pain

3.24.2021 – Am I supposed to report symptoms that I always have, or just new ones that started since I received my first COVID-19 vaccination?

3.25.2021 – I also have Fibromyalgia & arthritis AND its a rainy day, so Im not sure if my increased aches, pains, and fatigue are related to my injection or the conditions I have had for quite some time, well before my vaccine injection.

3.28.2021 – I dont think these are related to the vaccine, though.

3.29.2021 – They ones I checked are most likely my usual symptoms of arthritis, fibromyalgia, & MGUS and NOT related to the vaccine

4.1.2021 – I have other conditions that cause these symptoms quite frequently, so I doubt they are due to my covid vaccination

4.22.2021 – Other conditions: MGUS, Sjogrens Syndrome, Fibromyalgia, Diabetes Type 2, Osteoarthritis, Chronic Pain & Fatigue, Hypothyroidism, Small Fiber Neuropathy (not associated with Diabetes)

5.27.2021 – A rash on my scalp, seemingly all over

4.16.2022 – Lumbar spine, S.I. Joints, & sciatic nerves are very painful, and have been getting worse for the past few months.

9.20.2022 – Extremely sore throat, malaise, lethargy, body aches, headache, very low energy, shallow breath, runny nose, post-nasal drip, excessive sleepiness, positive RNA Covid test result at urgent care center, secondary ear infection

Chronic active Epstein-Barr virus infection, Hyposmia and Memory impairment

4.12.2021 – Sense of smell is off

4.13.2021 – Very dry mouth, localized itching on foot, vision, impaired memorychanges

4.14.2021 – Very thirsty

4.15.2021 – Severe fatique all morning, now very very tired

4.16.2021 – Low apetite

5.16.2021 – Cough

5.17.2021 – Change is taste. Less taste.

5.17.2022 – Since beginning the vaccine series my reactivated EBV progressed to Chronic Active EBV. I'm immune suppressed due to Chronic Lyme Disease already and this vaccine made my immune suppression worse. Nine days after receiving my last Booster Dec 2021, I I try to avoid hospitals

Skin lesion, Rash macular and Oropharyngeal pain

3.16.2021 – I have some skin lesions like red or dark red spots in certain areas of body. My dermatologist is looking into this to see what the issue is. showed up after second shot. It was one or two to begin with, but about a dozen now, but not increasing now

3.31.2021 – The lesion/red spots I mentioned in my earlier report is still there. Still not sure if it is due to vaccine or doxycycline antibiotics I was taking prescribed by my dermatologist. I will be seeing my dermatologist on April 22nd.

10.20.2021 – Having sore throat since yesterday and checked in with CVS clinic today. They are checking for strep throat and asked me take OTC cold/flu medication.

Mitral valve incompetence, Cardiac murmur and Presyncope

2.2.2021 – Nausea and fatigue for 1 day

2.14.2021 – Occasional feelings of heart racing

2.16.2021 – Felt much more sick after first vaccine. Always have thought I had mild case of COVID In February 2020. GI problems & loss of taste , followed by respiratory symptoms including feeling like a belt was being tightened around my chest.

5.26.2022 – Experienced possible COVID toes post COVID exposure at daughters wedding 5/14. Was exposed to COVID at wedding but tested negative on 5/20 & 5/22. No other symptoms. Did take day off work 5/20 saw MD for red swollen toes. Swollen toes resolved 1 wk Red swollen toes post COVID exposure

6.1.2022 – After COVID exposure at 5/14 wedding, Red swollen toes on right foot 5/18, saw MD 5/20, took day off from work 5/20, tested neg for COVID 5/19 , 5/20 & 5/22. Red swollen toes resolved themselves.

10.21.2022 – Mitral valve regurgitation found during recent echocardiogram Was tested due to heart murmur and episode of presyncope.

Oxygen saturation decreased, Blood pressure increased and Hypertension

1.1.2021 – High BP and HR with simple ADL and short distance. At rest ~120/80mmhg 60-70bpm. With activity(i.e 15ft walk, using bathroom, brushing teeth) went up to 157/106mmhg 136bpm. I could feel my heart beating fast thats why I started monitoring my vitals. Last check, my O2 started desaturating to 92% with activity; normally around 95-96% with activity after covid vaccine.

1.15.2021 – On day 9, I had palpitations while working and have to go to ER to get my EKG check. My BP went up to 160s/90s with HR around 130s.

Taste disorder, Parosmia and Rash pruritic

3.1.2021 – Nasel congestion and sneezing

3.13.2021 – I have developed a rash thats itchy. I am still struggling with extreme fatigue. Coughing and shortness of breath.

4.17.2021 – My left shoulder were I got my 2nd Moderna vaccine on march 27th is still painful and hurts to move or use my arm.

4.24.2021 – My left arm is still painful from the Moderna vaccine I got on march 27th.

5.9.2021 – Sore arm from moderna vaccine march 27th.

9.25.2021 – Still can't smell or taste correctly. Extremely tired all the time,heart palpitations,short of breath and slight cough

5.6.2022 – Chronic dry eyes

Red blood cell sedimentation rate increased, Orthostatic hypotension and Sensitivity to weather change

4.9.2021 – Tender lymph nodes

4.12.2021 – Diarrhoea

4.14.2021 – Intermittent diarrhoea since slightly BEFORE immunization

4.29.2021 – Lymphadenopathy (ipsilateral). Mild

4.30.2021 – Lymphs nodes are less swollen but still palpable

5.1.2021 – Fatigue is likely unrelated

5.2.2021 – Fatigue not related, strenuous exercise (late onset)

5.3.2021 – Pain lower limbs

5.21.2021 – Pharyngodynia

6.9.2021 – Headaches

7.28.2021 – Fatigue, athralgia (morning, resolving later) pharyngodinia + a bit of dysphagia, difficulty concentrating basic chemistries cbc ok Many confounders (change in rx, weather/AC)

4.28.2022 – Fatigue, artho- myalgia couple days low grade fever

5.28.2022 – Fatigue. Increased ESR

Induration, Nodule and Tenderness

1.16.2021 – Hard and painful nodule (2 cm) on the bicep of left arm, it's not at the injection site. The nodule is very painful to touch and had just appeared the morning of the 5th day after receiving vaccines.

1.17.2021 – Nodule on left arm on the bicep still present and seems to be more painful. Pain is severe and radiating to left shoulder. Pain is worse with movement and extension of the arm.

1.18.2021 – nodule on left bicep still present and painful.

1.25.2021 – The nodule (1.5 cm) on bicep of left arm has not gone away. Pain on the left arm around nodule, redness and swelling appear around nodule from time to time.

Feeling hot, Tinnitus and Paresthesia

3.10.2021 – Headache for a few days. Manageable tho.

3.17.2021 – Have had a headache now for a little over 2 weeks.

3.24.2021 – Continued bad headaches

5.19.2021 – Since last check in developed intermittent tinnitus and tingling in arms

8.18.2021 – In between 3-6 months since Moderna shot #2 headaches heat and pressure continued and tinnitus began. Peaking around month 5. Its been awful. Only in the last few weeks have some of these vax symptoms relented after almost 6 months.

Muscle tightness, Impaired work ability and Flatulence

4.14.2021 – Can't focus my eyes, feel like I'm in a cloud and daze

4.15.2021 – Neck muscle are tight and hurt. Stomach pains just before diarrhea. Hard to focus my eyes and I'm in a daze

5.4.2021 – Neck muscles are real tight hard to turn my neck. Started 3 days ago. This is not normal for me

5.31.2021 – My neck muscles are getting tight and giving me real bad headaches about 3 times a day now. Still having a lot of aching joints and muscles. Passing gas a lot and stomach gurgles a lot. Was i supposed to get another covid test done?

6.7.2021 – Get very tired and keep falling asleep in my chair today on my day off, muscles get tight,neck muscles get tight and gives me headaches several times a day. Still get diarrhea. Still have not been retested for covid was i suppose too?

6.15.2021 – My neck muscles getting real tight causing me to get bad headaches happening 4 to 6 times a day. I still getting tired all the time i have to push my self at work to get my job done. My joints anache all the time that might be the reason i get tired

Polymorphic eruption of pregnancy, Kidney infection and Cystitis

1.21.2021 – Currently 37 weeks pregnant. In the past week have developed a severe pregnancy rash and currently being evaluated for cholestasis of pregnancy. Frequent OB follow up in person and virtually

1.27.2021 – Officially diagnosed with PUPPP rash which has spread since time of vaccine

1.28.2021 – Continued spread of recently diagnosed PUPPP

2.21.2021 – Fever, body aches Waiting for follow up appointment with primary care

2.28.2021 – Diagnosed with bladder/kidney infection and intermittent fever. Currently on antibiotics.

11.2.2021 – Sinus congestion and sore throat

11.16.2021 – Nasal congestion and sore throat

Menstrual disorder, Sinus congestion and Rhinorrhea

4.5.2021 – Prolonged heavy menstrual cycle. It is much more than I have experienced in my life.

4.23.2021 – Light headed, malaise I emailed the primary care to let him know of symptoms and that it seemed to me a good sign that my immune system is in battle mode. The RN emailed me back with suggestions of Tylenol.

4.26.2021 – Runny nose

11.7.2021 – Fullness in my sinuses.

11.28.2021 – I had the shingles vaccine on Tuesday of Thanksgiving week. On Wednesday I was tired and just did not feel well...it was a general feeling of malaise. I was a bit nauseous as well. It got better on Thanksgiving and went away by Friday.

Pericardial effusion, Supraventricular tachycardia and Memory impairment

2.20.2021 – Had pain on injection arm and couldnt sleep on that side last night.

2.21.2021 – tight neck muscles

4.2.2021 – Got migraine yesterday and had brief memory impairment.

9.24.2021 – Diagnosed with Paroxysmal supraventricular tachycardia and pericardial effusion.

3.26.2022 – My palpitations have increased. I seem to wake up between midnight and 6 AM several nights a week once or twice with the palpitations. It usually lasts an hour or so an episode. I believe the vaccine contributed to this as I never had any before. Office visit with cardiologist NP.

Vasospasm, Type IV hypersensitivity reaction and Skin lesion

1.22.2021 – I had a delayed hypersensitivity reaction at the site of my injection including erythema, warmth, and itchiness with satellite lesions as well beginning at day 8 and then resolving day 10 after the injection. Full diameter approx 8 cm

2.12.2021 – These symptoms persisted from Thursday 4-today feb 12

2.17.2021 – Non resolved sob and fatigue resulting in ekg that was abnormal. Scheduled for ECHO and Stress test

3.17.2021 – I had MI according to EKG done after symptoms doe, CP days 5-11 post vaccine # 2. Negative stress consistent with dissolved thrombus vs Vasospasm. Residual intermittent fatigue and dyspnea still present

Breast swelling, Breast tenderness and Muscle tightness

3.1.2021 – My blood sugar has been high the last couple days. Im not sure if that is related to the vaccine though. Just thought Id mention it.

3.17.2021 – Headache and tight muscles/soreness in arm and back of neck.

3.18.2021 – General ill feeling related to fever

4.21.2021 – Breast swelling and tenderness

6.16.2021 – Extreme aches in muscles and joints. Ive not ever experienced this before. Im controlling the pain with combo of Tylenol and Advil. I think it might be lessening a bit because Im needing meds at longer spans. Ive done nothing to cause th

Breast pain, Muscular weakness and Erythema

3.10.2021 – Pain in right breast near nipple area on 6th and 7th

3.15.2021 – Yesterday on 3/14 I had sharp pains on the outside of my left breast near the nipple area. A few days prior I had the same pain but in the outside right breast near my nipple.

3.30.2021 – Left hip and lower back aching like flu symptoms

4.1.2021 – Itching and redness around chest, neck, and upper back.

7.2.2021 – I have developed sore weak muscles in my arms. The symptoms started more than a month ago. I thought it was related to a statin I take for cholesterol, but symptoms have not improved since I quit taking the medication.

Skin burning sensation, Hypoesthesia and Paresthesia

1.21.2021 – Skin on fire on my left thigh and prickly skin causing mild pain and numbnesd

1.22.2021 – Still have the prickly skin on my left thigh but hopefully will subside soon. Never had this before vaccination.

1.23.2021 – Still experiencing strange prickly skin and had same symptoms on my right hip

8.12.2021 – I still am experiencing a numbness in my left thigh that causes a tingling sometimes very sharp. This started day after vaccination and never had this sensation before. Doctor has no explanation but didnt test for blood clot.

Pulmonary mass, Eczema and Nodule

3.9.2021 – No

3.10.2021 – None

3.12.2021 – Unable to lay on left arm b/c pain and swelling & felt soft lump/bump in armpit against bones. Also pressure on left side of shoulder on left at base of neck.

3.13.2021 – Left armpit feel like holding a ball in it and painful when arm pressed together and cannot lay on left shoulder/arm.

3.14.2021 – Took Tylenol, swelling reduced and underarm pain reduced. Able to lay on l.shoulder with minimal discomfort.

4.8.2021 – Latent eczema caused itching but not severe.

4.5.2022 – Pressure in my chest, sometimes causes shortness in breath. Cardiologist did many test; not heart. Chest X-rays showed small nodule , not uncommon. Recent health dept clinics' exam shows alls well. Maybe long Covid-19??

7.20.2022 – Intermittent pressure in my chest since 2nd Covid-19 event last year. Cardiologists many tests found nothing, except occasional congestion but no cold. Chest X-ray showed nodule but not unusual. It persists and worse if I am laying down and around No primary Dr so went to the health Dept clinic, nurse practitioner gave option for X-ray but not happy w/service.

Musculoskeletal discomfort, Limb discomfort and Gastrointestinal disorder

2.5.2021 – Some shoulder discomfort above injection site which was relieved by one dose of Tylenol.

2.24.2021 – I had chills, fatigue and muscle pain in my legs on Feb. 23. Slept most of the afternoon on the 23rd.

3.8.2021 – Constant discomfort in lower extremities. Sore, warm to hot, occ. throbbing. I should have reported these sx sooner as I began noticing an increase in sx just after my second vaccine.

5.24.2021 – Constant pain/discomfort in my lower legs. Exercise makes it a little more acute. Sleeping can be difficult. Have had cardiology and primary care screenings. I have had an EMG ( normal ). I have had a normal arthritis panel. I cannot take NSAIDS. Primary care, Physiatrist

2.22.2022 – GI sx Physician office

Loss of personal independence in daily activities, Vomiting and Lymph node pain

11.4.2021 – Some pain in the armpit/inside of the arm when those muscles are used.

11.5.2021 – Still has a bit of pain in the armpit area, but more on the arm area than near the body. Has gotten a lot better today and almost completely gone. It only hurt when he used that arm to make certain movements.

11.25.2021 – Pain in the armpit (lymph nodes?) in arm that he received the vaccine. Similar to how he did with his first dose. Got better as day went on. Resolved faster than it did with the first dose.

5.21.2022 – Arm pit lymph node in the arm he got the injection in is very sore. It was sore with his previous shots, but this one seems to be more sore than the previous shots.

5.22.2022 – Armpit lymph node pain in the arm where he was vaccinated. Pain was bad this morning, but seems to be getting better as day has gone on.

5.23.2022 – Lymph node in the arm pit of the arm where he got the shot still is swollen, but doesn't hurt nearly as much. He vomited late last night, which may or may not be vaccine related (who knows). He had to miss school as a result today.

5.24.2022 – Lymph node in armpit of arm where he got the shot is still a little bit swollen, but it doesn't hurt much anymore.