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Their Stories

What v-safe registrants wrote to the CDC after their Pfizer or Moderna shots, in their own words. Each card is one person, with all of their free text. This page shows only the longer stories: the 116,000 people who wrote at least 400 characters in all. The text is as the CDC released it, except that email addresses and phone numbers are hidden. You get a random set of these people on every visit.

Shuffle

Groin pain, Swelling and Muscle spasms

5KG-14246-21345

– Dizzy and Weak

– Felt dizzy for about 3 hrs this morning

– Extreme weakness yesterday for about 5 hrs after the shot

– Severe shoulder pain & collar bone swelling Before bedtime last night and this morning

– Pain in both shoulders have pain in my groin makes it hard to lift my leg I worry the 2nd shot is too close to the 1st shot Pain is more than moderate but not severe

– Cramp in my groin makes it painful to raise my left leg

– Horrible cramp in my groin that makes it painful to lift my leg. Started the morning after my 2nd shot

Massage, Periarthritis and Sleep disorder

5KG-22208-41897

– Tingling at my left toes

– Not sure if related with vaccine, had tingling at my left toes first day. Its been in-off pain on my right foot, near the ball of foot

– Heaviness in raising my arm

– Mild Dizziness & hard time to move/lift arm and shoulder

– Arm & Shoulder painful if rotate and raised

– Shoulder pain and hard to move back side position

– Motor (movement) of my left shoulder still experiencing pain. Hard to sleep on the left side(where the shots done), hard to clip the brassiere. Not sure if it will go back the ease of moving it. That is the reason I select yes.

– Shoulder pain and movement is hard and limited.

– pain and hard of movement on my Shoulder since first dose and now its worst. Pain is now Down to elbow. Might make an appointment with my primary if pain continues

– Cough and cold lasted longer than last year

– Shoulder pain has not subside. Extreme pain on muscles, too.

– Extreme Pain in my shoulder. Hard to hold my hand hang and carry heavy stuff.

– My arm and shoulder pain persists since the first COVID vaccine. I even massage and do my exercises that PT thought me. I've seen orthopaedic thinking it might be arthritis, but it's not.

– Shoulder pain extreme. Pain is on and off. No finding from the doctor

Plantar erythema, Seasonal allergy and Skin warm

5KG-24209-73276

– On Day 18 after vaccination, I had sudden sharp pain in area of injection site. Upper arm then ached, woke me during night and was sore and stiff all of next day. By next AM (day 20) arm pain completely gone. Had none of this post vax until that day.

– Probably seasonal allergies-related. Headache, lightheaded, dizzy, fatigueon one day. Resolved next day.

– Congestion, headache, runny mose

– My arms at the injection site randomly become very tender and sore to touch. Not associated with any obvious activity.Sore enough that it hurts to raise my arm. Very localized at injection site, ~3x since vaccinated.No edema/erythema. Interesting.

– Palms and soles of feet itching. No rash, just hot and red. Intermittent. Not able to link to anything yet. Planning to follow up with MD.

Generalized edema, Swollen tongue and Neuralgia

5KH-31745-83287

– Inflammation/swelling in my entire body (very noticeable in my hands, feet and even my tongue)

– Severe inflammatory response - swelling from head to toe especially in my feet and hands. Dry mouth.

– Im still experiencing moderate swelling/inflammation most noticeably in my hands and feet

– Mild residual inflammation but its not painful in my feet like it was the first few days after I received the vaccine.

– Inflammation - swelling in my body especially my feet

– Painful inflammation - my whole body feels swollen especially my feet

– Full body inflammation thata activating nerve pain

– Dizziness and Dry Mouth

– Major and relentless fatigue

– Extreme fatigue, brain fog and I lost a lot of my sense of taste and smell. These health conditions developed from getting COVID-19 (Delta Variant) not from the vaccine. However, the vaccine protection dropped off before I could get the booster.

Pharyngitis, Hordeolum and Tachycardia

5KH-32517-53724

– Bruising in the injection site, loss of appetite, loss of taste and smell.

– Loss of appetite, loss of taste and smell.

– Dizziness, swelling on feet and hands, (5 days), insomnia and itchiness all over body.

– Shortness of breath and insomnia.

– My insomnia is getting worse!!!! My taste and smell are starting to comeback.

– Dizziness, fatigue, diarrhea.

– Urinal track infection

– My tachycardia attacks are getting worse up to 200 bpm. Headaches are lasting almost all day.I am exhausted and tired all the time!

– Tachycardias are getting worse up to 220

– Fatigue

– Insomnia, sty in my eyes

– Insomnia, sleeping problems.

– High fevers, ear and throat infections, shortness of breath.

– Shortness of breath

– Vertigo, diarrhea headaches Home visit

– Loss of taste

– diarrhea, vomit, headaches

Rash vesicular, Blister and Joint swelling

5KH-41574-46483

– My symptoms were more severe yesterday

– This app is a day behind. Today is day three since I had my shot. Yesterday which would have been day two I started out the day feeling okay and then I started getting a fever around 1:00 in the afternoon and had a fever for the rest of the day and e

– A few days ago, I started getting red blisters on both of my hands. May or May not have anything to do with the vaccine

– I have a terrible painful rash with blisters on both of my hands

– I still have the painful blistering rash on both of my hands, front and back now it seems to be getting worse

– The day after my vaccination September 19th I could barely move I had a temperature that went up to 103.3 also my whole arm from my shoulder down to my elbow was swollen red and achy the whole week

– Both of my feet and ankles are swollen for the last week

– Both of my feet are still swollen

Endometriosis, Pancreatitis and Autoimmune disorder

5KH-61720-92371

– Inflammation. Injection site is very warm to the touch. Pancreatitis is aggravated. Breast tenderness

– An increased heart rate and less variability. Also an increase in endometriosis pain

– Pancreatitis and endometriosis both are sources of discomfort. Prior to the vaccine neither presented a problem for at least a year. Definitely an autoimmune flare up from the vaccine

– Still have increased heart rate and diffuse pain confirming inflammation

– Autoimmune continues to flare up

Body temperature decreased, Disturbance in attention and Arthralgia

5KH-71018-47165

– No

– Cough likely unrelated to Vax

– Feel feverish but do not have true high temp. Just 97.6

– Headache for the last week or twoAlso slight difficulty concentrating or staying on task.

– Unsure if this is vaccine related but as no other meds have changed... just mentioning.Have been outside 1-2 hours each of a few days over last 2 weeks, sun seems to be an issue fairly soon. It is not red and surn burn but pink, maybe like allergy

– Aches in fingers and joints

Renal cell carcinoma, Renal neoplasm and Lip erythema

5KJ-17946-45335

– My lips felt tingly and I got a red line around part of my upper lip, but not for long.

– My face got really red and tingly for like 30 minutes after the shot. I had taken a Benadryl 30 minutes before the shot. Glad I did. It went away by the time I got home. Lips tingly too and my face felt hot.

– Liver pain

– Gallbladder and liver issues pain, gallbladder symptoms

– Gallbladder issues and liver swollen. Both hurt. Got ultrasound. Waiting on results tomorrow

– Ive been having gallbladder symptoms. Ive even passed gallbladder stones in the toilet. They did an ultrasound to look at my gallbladder. They ended up finding kidney cancer. / a tumor on my rt kidney. Its new, because it was not on my last

– I have gallbladder issues and renal cell carcinoma now. They said its a very new tumor based on past scans.

Impaired work ability, Abdominal discomfort and Vomiting

5KJ-20811-31245

– Monday, January 11th I had a hard time sleeping, got less than 4 hours of sleep and was unable to go to work the next morning. Hard to tell if related to vaccine or not. I don't usually struggle with sleepless nights. I'll continue to monitor my sleeping patterns.

– I took vitamins this morning on an empty stomach. I had breakfast about 30min later. Within 30-40min I had an upset stomach, nauseous and ended up vomiting and having diarrhea at work.

Rash erythematous, Rash pruritic and Hypersensitivity

5KJ-21351-69168

– My shot arm became itchy and warm for three days. Things are fine now and I was able to manage the itchiness with an antihistamine.

– Nausea and muscle aches

– I have a rash from poison ivy that is being treated with steroids. Visit to doctors office

– The rash from poison ivy is expanded across my chest and left side of face. Taking steroids that have helped with the redness but not the itching.

– Yes I found out I have a Anagal and am adjusting my diet.

– My arm is still a bit sore after 2 weeks, I also have a bump where they gave me the booster. I've also had a harder time sleeping the last 2 weeks, not sure it's related but thought I'd mention it.

– I had an allergic reaction to something I ate.

Thyroid pain, Graves' disease and Thyroid disorder

5KJ-37042-73741

– A week after vaccine arm got red swollen and very hot at injection site then very itchy for 2 days - delayed reaction. a day of thyroid flare up hard to walk fast, up stairs, extremities felt very weak/heavy. Could be unrelated- hx of Graves disea

– Possible gout in big toe- still some thyroid issues off and on. Likely unrelated to vaccine

– Bad sinus infection, Tested positive for covid- severe fatigue, sore throat, runny nose, lost smell, headache, short of breath, chest pressure, diarrhea, weakness, feel like passing out, brain fog, Graves' disease thyroid symptoms flare

Vertigo, Pruritus and Diarrhea

5KJ-92982-25630

– I had diarrhea & chills on Saturday. Gone by Sunday. No fever.

– Diarrhea, headache

– Itchiness on my back but no sign of rash.

– Dizzy or vertigo feeling

– Itchy feeling on my back.

– Had my 2nd shingrix shot yesterday. Joint ache, headache, chills. Similar but not covid related.

– In the 24 hour period immediately following the shot, my body aches & joint pain were much more pronounced. Today, back to mild.

– Feeling light headed. Monitoring. Checked bp & in appropriate range 119/73.

Left ventricular failure, Compression fracture and Spinal fracture

5KK-12241-61879

– I feel it's unrelated, but i'm in diastolic failure, per cardologist. Otherwise I'm fine thanks. Cardologist clinic.

– A little soreness in muscels

– It's no unusual for me to have these symptoms.

– Shortness of breath. High blood pressure. Unsteady in walking without walker assistsnce. I have an app't with my cardiologist 3-3-21 for follow of distolic heart failure (followup). Happened to have a checkup app't.p app"t already. The visit was in the Dr.'s office.

– Dehydrstion; compressiom fracture lower back; constipationHospstilzed; then rehab now home revoberimg.

– Pneumonia/covid 19

– Chest pains & joint pains in elbow to my finger tips with numbness in hands & fingers. Dr. visit @ office pluse i hsve home health care.

Eye pain and Headache

5KK-23838-04928

– Ive had a few very short duration pin prick pain behind my left eye. Lasts 2-3 seconds then gone. When I was younger Id get headaches that felt like pin sticking in back of one eyeball. Tylenol and hot compress would alleviate in 15-20 minutes. I dont know if those were sinus or what. I no longer have them and rarely have headaches. Ive been on blood pressure meds for years so maybe those pre-med headaches were related to BP.

Forearm fracture, Ligament disorder and Tendon disorder

5KL-67182-49170

– Sinus pressure & swelling - I have Fibromyalgia and chronic systemic inflammation (likely SLE Lupus). The facial & sinus swelling was triggered by the vaccine. The first morning after, it was severe enough that I lost my sense of smell for the day. This is the following day, and the area around my eyes is no longer swollen, I've regained most of my sense of smell, but do still have increased sinus pressure and swelling. I believe the vaccine temporary flaired up the autoimmune response. I also believe my fatigue is more related to the vaccine flairing up the chronic fatigue element of my Fibromyalgia, than directly related to the vaccine itself. Today, it is moderate, but yesterday it was severe.

– I fell and fractured my radius and ulna bones at my wrist Wed night after my first shot (Mon). Hence not reporting. I couldn't differentiate symptoms. I don't believe there was any more of a reaction than reported. ENT sx abated by Thurs/Fri.

– Broken Arm, Fibromyalgia Future Outpatient Orthopedic Surgeon Visit - post ER

– Sore throat, sinus pressure & inflammation

– Migraine episode, likely weather related (pre-existing chronic condition)

– Fatigue, sore throat, injection muscle pain

– I was sick with a sinus infection type sx and fatigue/malaise for 4 days after the shot. My current SX are due to my Fibromyalgia.

– Sinusitis, no Covid

– New combo booster caused Levaquin-type tightness of tendons & ligaments for a week.

Urinary retention, Fall and Ear infection

5KM-13907-75447

– Bruises around right inguinal lymph nodes

– Swollen lymph nodes

– More chest pain

– Increasing fatigue, muscle pain/weakness/spasms

– Trouble voiding bladder. Going to consult with urology soon

– Ear infection

– I got my bivariant booster and a flu shot during the 2nd day of my last period. This month, I started my period 10 days early. I am not concerned since I am not trying to get pregnant but felt important to report

– Been falling down at times, I don't know if it because of a preexisting neurological issue or if the vaccine made it worse. Regardless, I am glad I got vaccinated

Injection site pain

5KM-30713-57152

– No

– Muscle in left vaccinated arm had some strong twinges of muscle pain

– The muscle in my left arm where the Covid shot was given is very sore. Hurts to move my arm.

– I had my shot in my left arm and that muscle in the top part of my arm keeps hurting I have had no problem with my three other shots but this last dose I don't know if it acted up my fibromyalgia but my muscle in my arm it's just sore and if I use it

Specialist consultation, Musculoskeletal discomfort and Sleep disorder

5KN-14315-31188

– Mild sore throat

– Axillary lymphadenopathy

– Axillary lymphadenopathy / shoulder ache

– Still experiencing axillary soreness since 2nd injection Waking me at night, soreness is constant, not relieved with NSAIDS.

– Lymph nodes under arm (injection side) are more sore. They were just aching but now Entire arm is painful. Shoulder to wrist.

– Continued axillary lymphadenopathy and pain on injection side. Pain radiates to my wrist/hand and across my chest. Radiology study

– Continued axillary pain radiating to hand with occasional discomfort across chest of injection arm. Ultrasound showed enlarged axillary lymph node with near complete loss of fatty hillum Radiology study

Thalassemia, Morning sickness and Transfusion

5KP-12277-68853

– Joint pain is on my left side only (the side where I chose to take the shot)

– I felt tired and sleepy (and other pregnancy symptoms like morningsickness) , also my menstrual period was delayed for a week ..

– I had a repeated sudden pain in my left side mid chest .. pain was sharp and sudden but didn't last for long just a minute or so then it comes back after an hour

– Injection site is stiff/hard and dark colored

– Energy level is lower than usual. Sometimes I feel that my breathing is slightly heavy/ difficult. Note: I have thalassemia which could be one of the reasons of my symptoms.

– Last week I had common cold symptoms. I was fatigue with stuffed nose but no high temperature.

– Runny nose then Lost of taste and smell. Tiredness.

– Miscarriage Fainting, blood transfusion

Increased need for sleep, Mental fatigue and Feeling of body temperature change

5KP-20136-84764

– Felt a slight buzzing sensation within an hour of the shot. Last 3 or 4 hours.

– I'm being feeding really tired over the last two weeks. Needing more sleep rgan normal.

– Cough and mucus. I have had difficulty clearing tge mucus for a few weeks. I've had sore throat for the past week and have run hot and cold. I been home sicj fir three days becauae I feel foggy and drained.

– Cough, fatigue and shortness of breath. Mental fatigue has been hard. Have had trouble tracking my thoughts.

Muscle atrophy, Splenomegaly and Vascular pain

5KP-23773-36888

– Vein tingling

– Mild throat pain

– Gas

– Diarrhea, abdominal pain, cramps, flank pain, back pain, fatigue, ear ache, muscle aches, vein pain, throat pain, throat clearing, trembling, hand shaking, slurring, muscle collapse, lethargy, dizziness, drowsiness, severe headache

– Gallbladder stones (ultrasound), enlarged spleen (CT scan), flank pain, headaches, muscle aches, extreme fatigue, weakness, GI issues, IBS-C.

– Acquired gallbladder stones, enlarged spleen, INS-C, brain fog diagnosed by new CT scans before vaccination. Exhaustion, cough, lung pain, shortness of breath, dyspnoia, sleepiness, extreme back pain, gallbladder pain, kidney pain, muscle aches.

Ear discomfort, Tinnitus and Ear pain

5KP-24023-84206

– Roaring (tinnitus?) of the ears 3 weeks after 1st dose of Moderna vaccine. My internist is referring me to a ENT doctor

– I had told some friends 2 to 3 days after my 1st dose Moderna vaccine on 17Mar21 that I had a bad headache and felt pressure in both ears. The pressure never went away, headache did. About 2 1/2 to 3 weeks after that, I started having roaring in ears Also scheduling an appt to see a ENT on 18May21

– Louder roaring in ears. Ears ache, headaches Going to see ENT on 18May21

Breast pain, Epistaxis and Somnolence

5KP-29664-12873

– Tired and sleepy

– I have been experiencing nosebleed it's only in one nostril on the left side. I had one experience where that nostril bled for 2 hours. I sometimes think that it comes from me wearing my mask however I do wear my math whenever I leave my home.

– Yes I experienced a mild case of the covid-19 I experience chest and breast pain. My doctor sent in a prescription for me to have a breast exam the test came back okay but I still had the pain then a few days later I came down with the covid-19

Alopecia, Bronchitis and Hyperhidrosis

5KP-30592-56724

– Have some soreness in my arm. Some tiredness, but not enough to stay home from work.

– I experience chills & tiredness last night, but woke up feeling better today.

– My hair has thinned. Since Delta has become active , I have experienced a few symptoms on occasion, but they would only last a few hours, then be gone. Headache, chest tightness, sore throat, vaccinated arm ached, but not all of these at one time.

– 9/28 day of vaccine, felt fine, arm sore that evening. 9/29 didnt feel good, arm sore, but worked, took ibuprofen, sweated a good bit that night. 9/30 felt better, arm a little sore, worked. 10/1 felt better, arm a little sore, worked.

– January 2022, I had Bronchitis

Migraine, Diarrhea and Oropharyngeal pain

5KQ-13413-93345

– I often have headaches and this was very mild. It could have been unrelated to the vaccine.

– Yesterday- after filling out my v-safe form I developed a migraine headache. I hadnt had one in over 2 years. I had a classic migraine, visual aura followed by headache. No different in character than what I usually get.

– Some achiness- but it is something I have had before the covid vaccines

– Sore throat and diarrhea

– Sore throat, loose stools

– I had a migraine with aura today.I usually have about 1-3 a year. Interestingly, I had one the day following my 2nd Covid vaccine. This was 4 days after.

Grief reaction, Gastroenteritis and Stress

5KQ-13786-90244

– Headache has gotten much worse in last few days. Not sure if it is vaccine related or stress from mother passing away due to small cell lung cancer

– Headache

– I had gastroenteritis (nausea, vomiting, diarrhea, elevated temp) but nothing specifically COVID related. All COVID tests (at work, doctor's visits, at home test kits) were negative. I had to wait for two negative tests before returning to work.

Breast tenderness, Joint stiffness and Musculoskeletal stiffness

5KQ-23269-15828

– Lower back stiffness and knee stiffness more than normal

– Still some stiffness in lower back and knees, not as severe as yesterday, when it just progressed as the day wore on.

– I had one 24 hour period started Wednesday 2/10/21 where I again had severe stiffness in my lower back. This also occurred 24 hours after my first dose. I treated it with heat. I also took one Advil . This is not normal for me.

– Had headache and knee pain early in day took another Tylenol and feel ok

– I have unusual tenderness in my left breast. I had cancer in this breast 12 years ago, surgery and radiation and have had no issues since. This just started this past week. I am interested to know if this symptom is part of breast issues noted

– Pains, discomfort on right side. Out of rhythm Echo stress test ordered by dr at visit

Weight increased, Taste disorder and Muscular weakness

5KQ-27079-33247

– This is all pretty much how I always feel.

– Flavors seem muted. Not altogether absent, but diminished.

– Inflexibility, pain in hands/forearms when driving or working with things above heart

– Arms hurt really bad.

– I don't know if it's related, but I've just been told I may have hashimotos now. Thyroid ultrasound

– Just tired all the time, hands and forearms weak and numb a lot of the time. Gained a ton of weight. To elaborate on below, I think it's possible it may be COVID or vaccine related. Not that I think it is, but realize it's possible.

Intermenstrual bleeding, Menstruation delayed and Menstruation irregular

5KR-12034-15013

– I had symptoms the day after the shot but the app did not ask me for feedback on that day.

– Sunday evening developed a fever that over 101°. It didn respond to Tylenol and alternated between fever and sweating and chills and shivering the entire night. The next day I felt extremely tired and had brain fog. Tue ok.

– My period is usually regular. I had spotting out of the blue and now it is about 5 days late. There is no way I am pregnant.

– My periods have been off sync

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