Their Stories

Arrhythmia, Syncope and Limb discomfort

3.4.2021 – Slight soreness and heaviness in upper arm where I received the vaccine.

3.6.2021 – Still a very mild soreness in my upper arm.

3.7.2021 – Swollen gland on my neck, below right ear, that hurts. Telephone call with nurse

3.10.2021 – Shortness of breath for the past 4 days. Heart palpitations too.

3.11.2021 – I didnt sneeze today and realized that Ive been sneezing 5-6 times every day, since getting the vaccine. This is also the first day that my breathing has felt almost normal and not constricted.

6.3.2021 – Increased incidents of heart arrhythmia. I also had other severe symptoms 3-8 days after my 1st shot including fainting, shortness of breath, and arrhythmia which I was unable to report at the time.

9.2.2021 – Itchiness.

Heart rate irregular, Body temperature increased and Abdominal pain

3.5.2021 – My normal temp is 97.8. Body aches were very bad. Chills were bad.

3.6.2021 – Going back: first day, after 3 hrs felt and heard blood pressure in temples. After 4 hours had funny heartbeat, not arrhythmia but uncomfortable, a bit off. This all was gone after about 5 hours after it began. Again, this was the first day, a couple hours after getting vaccine.

3.7.2021 – Not really a rash, but redness on cheeks and nose

3.18.2021 – Over the last week I have had a few off days, kind of all over achy, and blah. Shoulders and arms kind of achy and a little numb. Dont know if it is related, but it isnt normal for me.

3.26.2021 – Three days temperature 100.6 highest, normal 97.8. Body aches, chills, sweats, no appetite, 1 day diarrhea. Had to stay in bed. Not at all normal for me. Have not been exposed to anyone.

10.9.2022 – Slight diarrhea and v slight belly ache x 2 days. Thought it might be Safeway fruit tart bought on sale. That was only "different" food. ????

Crying, Depressed mood and Anxiety

5.14.2021 – Out of breathe when moving around

5.17.2021 – Only think I have notice is I am extremely hot and sweat all the time!!!! Another symptom that I notice is I do notice that the last couple of days well Since Friday I have been extremely depressed and crying a lot, I didnt know if the vaccine has had any data on if it can affect moods at all but I definitely feel like it could have affected mine

5.20.2021 – still feel anxious and depressed

Throat clearing, Chest discomfort and Sneezing

3.24.2021 – Possible flared an existing condition. I sneezed twice, coughed some like I needed to clear my throat a few times and was a little short of breath.

3.25.2021 – Felt some short of breath this morning and pressure in my chest but not too bad now at 5:00pm. It feels like symptoms Ive been dealing with since 2015, so I dont know if its a flare up or from the shot. Ive had muscle and joint pain since 2016.

4.22.2021 – My back has felt like it has a mild sunburn

4.27.2021 – I have a daily headache, muscle and joint aches and pain and fatigue for 5 years, not related to the vaccine

Intermenstrual bleeding, Neuralgia and Menstrual disorder

2.20.2021 – The day of the vaccine and the day after were the worst with a fever both days and body aches that were debilitating. I suffer from CFS/ME, fibromyalgia, G6PD, anemia.

2.21.2021 – Nausea comes and goes as does headache. All symptoms felt since second dose: fever, headache, nausea, body aches, rash at injection site, sore arm, chills,

8.19.2021 – Menstrual cycle has changed

11.21.2021 – Pain in my underarms and nerve pain on my arm where I got my vaccine

11.27.2021 – Shoulder and arm pain in arm where I received the vaccine

12.4.2021 – Early period/ spotting

Osteoarthritis, Fibromyalgia and Arthritis

1.23.2021 – Went on a 3 mile hike. Starting to feel a bit achy. 4:30 p.m. but could be my fibromyalgia and osteoarthritis

1.24.2021 – But did go on a 3 mile hike yesterday

1.27.2021 – With weather being rainy and cold joint pain could be because of that. Osteoporosis arthritis

1.29.2021 – Arthritis Joint pain severe my right foot has been severe the pass 3 days. I received shot in my right arm. Energy good!Swelling stiffness

2.5.2021 – Pain in abdomen. Nausea and diarrhea

Muscle mass, Tooth disorder and Limb injury

2.4.2021 – My arm around the site is sore but better today.

2.6.2021 – Fatigue and Diarrhea Yesterday

3.23.2021 – Actually my left arm has been sore, it remains sore. It is noticeable as I raise my arm.

11.12.2021 – I may have a sinus infection , some breathing issues. I took an antihistamine and used a Albuterol Sulfate HFA inhaler. I do not feel well but I am able to complete my daily tasks. My eyes are burning, may be due to allergies.

11.26.2021 – Some swelling in the right temple. My physician has been aware, I had one small indicator showing a rise for a possible autoimmune disease. Dr checked many areas and nothing showed up. I will see a Rheumatologist on March 15th. I was put on Prednison

5.23.2022 – Not sleeping well

6.2.2022 – A persistent left sore arm where I received the vaccine, it started a week ago.

6.23.2022 – I appear to be retaining fluid. I do not use salt and I am trying to drink more. My legs and knees show the fluid retention. I will see my physician in July.

6.30.2022 – I am getting therapy for a fall I had in February. I didn't feel well afterwards. I stopped to get a gift. I felt weak I left. I picked up lunch I came home and took my BP, it was low, this is not normal for me. maybe it is the cuff, I'll check it.

8.18.2022 – My left arm has been sore and there is a lump in the upper arm muscle dice my shot. My big toes have been swollen red and painful. My physician put me on an anti inflammatory medication. I have felt fatigued, definitely not with my regular energy.

Coccydynia, Muscle swelling and Diverticulitis

3.6.2021 – 8 days after my vaccine, my shot area became extremely itchy and I had a bump. Nothing major and it was barely visible by morning, then it went away.

3.23.2021 – Awakened early morning by a few areas that were painful.. tailbone and underarm area - below/front - top side of breast. On ejection arm side. Today underarm area still uncomfortable and swollen.

6.21.2021 – May 24 was diagnosed with diverticulitis. (1st time). I am not saying it was due to the vaccine; I do not know what prompted it. Plus visit with GI

6.10.2022 – A little swelling and tenderness in my armpit and outside of my breast in the arm I had the injection. (Lymph node area). I had this before with the Moderna vaccine.

6.11.2022 – Still have tenderness and swelling in armpit area (lymph node); same arm as vaccine.

6.12.2022 – Lymph node still a little tender, but not as bad as before.

Neurodermatitis, Thyroiditis and Skin disorder

4.11.2021 – Thirst

4.13.2021 – Sore throat; cough

4.15.2021 – Dizziness

4.16.2021 – Sore throat

5.14.2021 – Fevers continue, along with fatigue and headaches

7.9.2021 – Low BP, with occasional faintness

10.8.2021 – Thyroiditis In office with my primary doctor

4.9.2022 – Frequent chills, low-grade fevers, body aches, fatigue, chest heaviness, mild chest pains that go to my shoulder blade

6.3.2022 – Heart palpitations, fevers, near syncope episodes, brain fog, overall weakness, long haul covid? Phone calls with Dr

Polymyalgia rheumatica, Ophthalmic migraine and Joint stiffness

3.11.2021 – Occular migraine for about 5 minutes. I get them now and then, so not sure if vaccine related

7.2.2021 – Muscle and joint pain and stiffness in bilateral shoulder and hip areas.

12.10.2021 – My polymyalgia rheumatica has flared up in the last week, more aches and stiffness. Belivef it is due to a reduction in prednisone dose starting Dec.2 per my rheumatologist's direction and not the booster shot.

6.16.2022 – More aches and pains in shoulders, hips, knees and feet. Fatigue.

7.7.2022 – Polymyalgia rheumatic is flaring up.

Photopsia, Asthenopia and Muscle twitching

1.28.2021 – Pain in under arm area. Very sore

1.30.2021 – Tingling needle like pains in my feet and various parts of my body. Heavy eyelids, pressure in my head. My head feels really strange. Almost like its made of rubber. I have a strong feeling that I need to lay down and relax. Very abnormal for me. Ive never felt like this before.

1.31.2021 – Tingling in feet, pressure in head, seeing numerous tiny lights flashing around when I look up at the sky. My symptoms are quite concerning. Im going to the doctor this week.

2.1.2021 – Pressure in head, issues focusing with eyes, mouth feels like its twitching when talking, seeing flashing lights when looking at blue sky, I feel like Im in an alternate reality. The vaccine seems to have affected me neurologically. I have a Doctors appointment at 8 am tomorrow morning.

Specialist consultation, Cold sweat and Oral herpes

1.24.2021 – Coughing/sweating in bed, took Covid test Negative. Really bad symptoms.. Ruined my weekend. Will be going to my primary doctor Monday when open

1.26.2021 – Still sweating at night, back is now aching from cough so much. Did get a prescription yesterday to stop the coughing. Primary doctor gave me a prescription to stop the coughing. Hopefully when the coughing stops my back will be ok.

1.27.2021 – Still getting cold sweats at night,back aching from cough so much, fever blisters around my mouth ache. Over the counter medication to help fever blisters around my mouth/nose area

Abulia, Injected limb mobility decreased and Joint swelling

4.2.2021 – Severe lower back pain that began 6pm on 4/1/2022

4.3.2021 – Very painful low back pain

4.4.2021 – Severe low back pain

4.5.2021 – Low back pain

5.5.2021 – On the 8th day I had nausea and vomitted. The nausea lasted 48 hrs. Also a really bad headache at the same time.

6.2.2021 – Ankles and feet are severely swollen

6.8.2022 – Neck pain

6.10.2022 – Lightheadedness, dizzy

6.27.2022 – Diarrhea

7.11.2022 – Lightheaded, dizziness, diarrhea

7.18.2022 – Headache Knee pain

10.26.2022 – Vertigo, dizziness

11.2.2022 – Low back pain. Lightheadedness. Dizziness. Pain when moving left arm when dressing.

11.16.2022 – Left arm still hurts sometimes. Get lightheaded sometimes. Extreme fatigue and body pain.

11.23.2022 – The bottoms of my feet feel numb and are painful. A lot of fatigue. Brain fog, difficult to make decisions. Muscles and joint pains. Headaches

11.30.2022 – Fatigue, headaches, brain fog, body and muscle and joint pains

Oligomenorrhea, Taste disorder and Heavy menstrual bleeding

5.15.2021 – At first I just thought it was a cold but I never had allergies before And I realized that my symptoms were allergy related. Not sure if this is from shot or related but very odd. No taste either-well its bufered

5.20.2021 – Since my last check in things are the same I am experiencing allergy like symptoms that Ive never experienced before and I have no known allergies and after 2 1/2 weeks of this I finally called the doctor and will be going Friday tomorrow the 21st

10.30.2021 – Menstrual cycle is heavier and lasts Significantly longer than my average 4 day menstrual cycle

Polycystic ovarian syndrome, Autonomic nervous system imbalance and Cardiac murmur

1.19.2021 – Weakness

2.2.2021 РSj̦grens flare up

2.16.2021 – My dysautonomia has been awful. It was well controlled with medication before the 1st vaccine. Ive noticed that ever since the vaccine, all of my dysautonomia symptoms have been worse. I pass out often, heart races, etc

2.18.2021 – I have blacked out multiple times since getting the second dose (I have dysautonomia that has significantly worsened since my first dose). My autoimmune issues have been awful. I feel like Im dying.

2.24.2021 – My POTS/Dysautonomia has been bad since the first vaccine. I went to my cardiologist and pulmonologist today and they said the vaccine probably caused a flare up.

3.10.2021 – Bad headache, fatigue, swollen lymph nodes, ear ache. I dont think it is from the Covid vaccine, rather a flare up in underlying health issues (Sjogrens)

11.17.2021 – I have had intense migraines, I have struggled to think and form sentences. Not sure if it's from the vaccine or my underlying conditions (Sjogren's, pots, renal tubular acidosis)

8.18.2022 – PCOS, heart murmur

Conjunctival hemorrhage, Body temperature increased and Injection site warmth

1.16.2021 – Circa Jan. 11, nine days after I got the vaccine, the area of the shot became a bit raised, red, warm, and itchy for 3-4 days. It didn't affect function. Fine now.

2.3.2021 – Last night, about 14 hours after my shot, when I was in bed, I was shivering and my teeth were chattering. I toughed it out.

2.4.2021 – Yesterday afternoon my temp got up to 100.8 but today is back to 97. I'm reporting for the last 24 hours, not just the 14 hours today.

10.1.2022 – Morbid hypertension. No htn before. Had a bad bout of Covid-19 after attending a reunion in late April 2022. I blame that. Had a subconjunctival hemorrhage, checked BP and it was over 180. On meds, now controlled. Had Covid-19 x 2 this year.

12.31.2022 – After a bout of Covid-19, I developed morbid hypertension and now I'm on two medications for that. My BP was over 180 and I burst blood vessels in my eye.

Intermenstrual bleeding, Menstrual disorder and Insomnia

12.8.2021 – Insomnia - actually began the day after I received my booster but I did not make the connection until it had occurred 4 days in a row which is highly unusual for me.

12.13.2021 – Difficulty sleeping

12.24.2021 – Slight sore throat, congestion, aches. Husband tested positive for COVID. I have received 2 negative tests 5-7 days after prolonged direct exposure.

1.7.2022 – Menstruation started four days later than it typically does and experienced more days of spotting than usual.

Oral herpes, Urticaria and Ear pain

1.29.2021 – Fever blisters on corner of lips(I never get these) Called my dr

1.30.2021 – Fever blisters on corner of mouth Called dr office

2.6.2021 – 2 rounds of major hives that covered my entire body. First episode was day eight after vaccine #1. Second episode was day eleven

2.14.2021 – Hives all over body 16 days after vaccine. Third major hive episode since vaccine I have never had hives in my life

3.9.2021 – Hives all over

3.16.2021 – Hives all over body on day 19 after vaccine #2

3.30.2021 – Hives all over body

4.6.2021 – Hives all over trunk, legs and arms that lasted 60min after taking Benadryl

5.25.2021 – Hives over most of body

10.27.2021 – Earaches in both ears

11.9.2021 – Major headache on 11/5(day 11 after booster) This headache is the worst headache I have ever experienced. So bad ai contacted my doctor after hours

12.7.2021 – Horrible Nausea and worst headaches of my life(and I suffer from cluster headaches.

1.25.2022 – Tingling in a finger tip

4.26.2022 – Runny nose earache

Glossitis, Injection site vesicles and Glossodynia

1.14.2021 – My tongue swelled but has gone down.

1.15.2021 – My tongue is still a little swollen but is smaller and not as sore and raw feeling

1.16.2021 – The injection site has blisters

1.17.2021 – The swelling and soreness of my tongue has improved the injection site is still blistered and one piped today

1.19.2021 – Swelling in tongue gone but still sore and raw feeling

1.28.2021 – Mussels and joints are still hurting

2.13.2021 – Nagging headache, still having joint pain and some sore mussels

4.5.2021 – Off and on diarrhea

2.22.2022 – Cough that won't go away i I go tested I don't have Covid sinus issues, allergies to but that is getting better. Cough has stayed.

5.10.2022 – Eye have burned for the last two days

10.16.2022 – When I got the shot my arm swelled sided up on my skin fever and

10.19.2022 – Coughing phlem

Sinus disorder, Sinus congestion and Chest discomfort

1.24.2021 – Eve of day 3 - fatigue and headache - slept it off

1.25.2021 – Severe congestion. Tested positive for Covid-19 To get COVID test - which came back positive.

1.26.2021 – Sinus congestion, still isolating due to positive covid antigen test on 1/25

1.28.2021 – Still in isolation for positive COVID diagnosis. Feeling chest pressure and coughing - sinus related symptoms have declined.

2.4.2021 – Symptoms associated with positive COVID-19 diagnosis. Sinus congestion, chest congestion, low grade fever, chills, etc.

12.23.2021 – Runny nose, congestion

12.24.2021 – PCR test came back positive today. Sniffles and minor congestion.

12.25.2021 – Runny nose. Some congestion.

12.27.2021 – Light congestion - particularly in the evening.

Oscillopsia, Balance disorder and Body temperature increased

4.10.2021 – Redness is on arm below injection site and was there yesterday, too.

11.8.2021 – Occasional problems with balance and sensation of objects moving back and forth quickly (not room spinning). Seems associated with head movement, especially in bed and on rising from bed. Improves throughout the day each day. Started November 5.

4.20.2022 – After yesterday's report I had a slightly elevated temperature and nasal congestion. Both were gone this morning.

5.9.2022 – Gastrointestinal discomfort May 4 to May 8, including 2 bouts of diarrhea and one incident of vomiting. (Home Covid test was negative.)

Injection site warmth, Abdominal pain upper and Injection site erythema

1.22.2021 – None, was the easiest most organized event with APD

2.3.2021 – At day 20 I developed a large red circle around the injection spot that was sore to touch and very hot. Lasted two days and went away. Did not keep me from working

3.1.2021 – Now not sure that nausea is vaccine related

5.26.2021 – Chronic diarrhea, severe stomach cramps

2.24.2022 – Had booster yesterday I have had bad headache, muscle aches, fever, nausea and my hurts so bad I can't use it or lay on it. Very fatigued. Feel like I did in December when I actually had covid

Sinus disorder, Migraine and Injection site pain

3.8.2021 – I had migraine during the night while sleeping. But this may be due to my migraine issues.

4.4.2021 – On the day, March 31st after getting shot 2 hrs it was sore and through night. On April 1st, I was very tired and had low grade fever. Then during the sleep very bad migraine. Then Friday, April 2nd felt great with very mild sore from shot.

4.28.2021 – I think I may have sinus issues and not sure if this related to COVID-19 issues???

Grip strength decreased, Nerve injury and Poor peripheral circulation

1.14.2021 – Tingling like its a sleep as if I laid on it and I didnt have circulation in my hands, fingers, arm about one hour After I got the shot.

1.18.2021 – My hands and fingers have been swollen and not much circulation one hour after I got the shot and I cant hardly close my hands. Poor circulation and joint pain.

1.28.2021 – Its been 16 days since I got shot. My arm where shot was given is still swollen, red and hurts. Been putting ice on it, Taken Benadryl, and 800 mg of prescription ibuprofen. I had an allergic reaction one hour after getting the vaccine & fatigued.

5.13.2021 – Swollen hands and they are hard to open and close and hurt along with tingling and tingling in my arms. That started happening as soon as I got the shot an hour afterwards for both doses of my Moderna shot.

8.13.2021 – I took the vaccine shot of Moderna, my arms and hands swelled severely and I lost some feeling in them. Since my shot in February, I have trouble opening and closing my hands and my joints hurt along with my leg joints and muscles. No problem. My regular physician doctor visit

2.11.2022 – Nerve damage in my right arm, both hands and shoulder. It feels like the vaccine in the deltoid muscle hurt muscles/nerves. it's affected my nerves in my arms,shoulders hands. I can't straighten or lift arm up due to nerves, muscles hurting badly.

Dry throat, Taste disorder and Throat irritation

1.23.2021 – Had wierd taste in back of throat (medicine type taste) last night and into this morning. Lasted about 16 hours. Its gone away.

3.25.2021 – Pain in arms and legs. Fatigue

5.17.2022 – I have had pain in my right arm. This has been here for about a month. I didn't discuss it earlier, because I didn't think it was related to my shot, but I decided I should report it, in case. Primary doctor check up

5.24.2022 – Sore throat. Probably related to cpap machine.

7.12.2022 – Scratchy, dry throat

Ear congestion, Peripheral coldness and Bone pain

11.4.2021 – Very bad weird headache. My cheek bones hurt, my nose bone hurts, my eye socket bones hurt, the bones right in front of and right in back of both ears hurt.

11.18.2021 – My ears & nose were stuffed up. My head feels like it's going to explode. I had chills, a fever & diarrhea. I have a really weird sensation in my rib cage, both arms & my face. It feels like they're cold (but they aren't). and heavy.

11.27.2021 – The really weird cold feeling has spread to my neck, face and upper back. I still have it on my arms and rib cage.

12.4.2021 – 2 days of throwing up 2 days of diarrhea 2 days of full body chills I still have the really weird cold sensation over most of my body now.

1.20.2022 – Not so much new, but a relapse for a week of that really strange cold feeling in the upper part of both arms (but the arms not feeling cold to the touch.

4.23.2022 – Throwing up, diarrhea, chills, horrible headache

4.30.2022 – fatigue, chills, headache

5.7.2022 – Lingering fatigue

Varicose vein, Ovarian cyst and Menstruation delayed

6.12.2021 – 1st shot my period was almost a week late. With this 2nd shot I'm going on 2 weeks late, yet experiencing all the normal menstruation signs, minus bleeding. I am NOT pregnant nor is there a chance i might be.

6.26.2021 – Varicose vein on my labia (happened before when i was in labor with my son) as well as really irregular periods

7.4.2021 – Feels like I'm constantly PMSing, which seriously I've never had! Bloating, cramping, terrible headaches etc.

7.11.2021 – Now my period was a week early and very unexpected! Like I had to leave work!

8.28.2021 – Cysts in my ovaries

Granuloma annulare, Skin discoloration and Arthritis

4.29.2021 – My lower back and knees ache and hurt. I suspect the lower back to be my kidneys but my test results came back normal.

5.19.2021 – My knees hurt so bad i am taking Ibuprofen every 3 hours. Pain wakes me up 3x a night. Lower leg numbness and swelling. Knees and ankles so stiff and sore it is hard to walk but it comes and goes.

6.16.2021 – Fatigue, lathargy and brain fog came back. The knee pain was gone but some stiffness came back. My breathing has become worse, but not as bad as when i had covid.

11.3.2021 – I had the spots on my caves that appeared when I got my vaccine diagnosed. They are Grabuloma Annulare.

Nodule, Injection site induration and Lacrimation increased

3.25.2021 – Redness, hard, swollen hot to touch. Injection site.

4.6.2021 – Arm feels hard and a little tender at site.

10.5.2021 – I had a reactions to my Dpt vaccine which previously never occurred. Swollen glands under arms and sore joints.

11.20.2021 – Glands under injection arm are swollen

11.21.2021 – Glands under arm still swollen but less than yesterday

11.22.2021 – Swelling under the arm is almost gone

11.23.2021 – Very mimor pain to touch and swelling almost completely gone

2.17.2022 – Tenderness to glands under arm Had sonogram of breast tissue after mammogram

4.2.2022 – Swollen glands under arm

4.3.2022 – Overheating & chills, arm is warm at injection site, symptoms were worse last night

4.5.2022 – Still minor swelling at injection site, no pain.

11.5.2022 – Swollen glands under my arm

11.7.2022 – Feel like im overheating

New daily persistent headache, Hypoacusis and Wheezing

3.26.2021 – Right ear pain, tinnitus, muffled hearing

3.27.2021 – Right ear muffled hearing and tinnitus

3.28.2021 – Lymphadenopathy right axilla , right ear muffled hearing/pre and post auricular pain, tinnitus

3.29.2021 – Right axilla lymphadenopathy, right ear muffled hearing and tinnitus, right ear pre and post auricular pain

3.30.2021 – Right ear muffled hearing, tinnitus and right ear pre/post auricular pain right axilla lymphadenopathy

4.13.2021 – Daily Headaches

4.20.2021 – Lightheaded dizziness fatigue headache

5.4.2021 – Headache

12.8.2021 – Dizziness/lightheaded

12.10.2021 – Lymphadenopathy right armpit

12.11.2021 – Clavicle and armpit lymphadenopathy

12.12.2021 – Right arm pit lymphadenopathy

12.13.2021 – Right armpit lymphadenopathy - pain

12.14.2021 – Right armpit lymphadenopathy and pain

12.22.2021 – Intermittent Chest pain/soreness.

3.9.2022 – Chronic GI upset

8.16.2022 – Feeling lightheaded

8.17.2022 – Lymphadenopathy under right armpit (arm had injection)

8.18.2022 – Right armpit lymphadenopathy and tenderness