Their Stories

Taste disorder, Parosmia and Anosmia

9.11.2021 – Diminished to loss of sense of smell and taste. Had bad cold in July. Lost smell and taste at that time. And still do not have it. Comes and goes. Tested negative for Covid.

11.1.2021 – Sore throat

11.3.2021 – Coughing have a cold

11.17.2021 – Most food smells awful. Meat tastes awful. Prior to this had loss of smell and taste. Have tested negative for CoVid. This has started prior to booster

11.26.2021 – Sense of smell is distorted. Meat smells like rotting food with a chemical smell. Meat tastes like it smells. Fruit tastes and smells bad. Some days it is worse that others

Fear, Facial paralysis and Bell's palsy

4.12.2021 – I went to my MD today and they diagnosed me with Bells palsy I went to my MD and saw my nurse practitioner

4.17.2021 – I gave Bells palsy..., facial paralysis is frightening Ive gone to my MD and received a steroid shot as well as a prescription for ACYCLOVIR

4.29.2021 – Well I have Bells Palsy, shooting pain in my eye, occipital bone, neck and jaw Chiropractor and meds for MD

5.6.2021 – My right eye is now much larger than my left eye I know no one there really cares but Ive gone to see my chiropractor

5.13.2021 – Tingling in my cheek and above my cheekbone I dont know that anyones actually reading this but in the beginning my MD gave me a steroid shot as well as antibiotics, I have been going to the chiropractor a couple of times a week every week for six weeks to help with the nerve pain as well as the shooting pain in my occipital bone and under my ear and my jaw bone, it is definitely helping but my right eye is still huge. I can close it now and it blinks but still not at the same time that my left die does

Genitourinary symptom, Tongue discomfort and Glossodynia

1.5.2021 – UTI symptoms today12/27 and 1/2: inexplicable localized swollen bottom lip, tongue pain (burning)1/2: pins and needles feeling moved around to localized areas of my body (couple fingers, chin, foot, head, etc)Symptoms resolved in 24-48 hrs.

1.14.2021 – It's like I felt a couple weeks ago. Spots of dull pain, tingling, numbness, or itching that bounce around my body. Felt lightheaded right after the shot.

1.17.2021 – Swollen, tender lymph node under left arm

2.25.2021 – Random bouts of nausea.

7.15.2021 – Uti, depression, pain and weakness in arms, tingling and numbness in hands and fingers

Feeling hot, Musculoskeletal stiffness and Pruritus

11.11.2021 – itching on different areas that caused almost raised red areas reaction when scratched

11.13.2021 – Warmer than usual. Back of the neck and some stiffness. Pain is pretty much gone on injection area.

11.14.2021 – All good

11.15.2021 – I don't know if any of this has got to with vaccine. Just felt crappy today. Warmer then usual. Especially the back of my neck and still itchy and body aches.

11.18.2021 – Back of the neck warm and stiff. Cold like systems

Vertigo, Chest pain and Dizziness

8.8.2021 – Light headed

9.17.2021 – Beginning on Sunday night, I have felt dizzy, almost like I have vertigo or lost my balance. I felt that way for about 3 days. I do fell much better today.

9.24.2021 – I have been battling what feels like dizziness or vertigo since Sunday, September 12th. It seems like it is getting better today, but I have had a few spells of relief before it come back again.

10.1.2021 – Very dizzy. Im scheduled to see cardiologist on Monday for dizziness as what feels like vertigo. Also experiencing tiredness, and chest pain. Chest pain is about a 2 on scare of 10. But still getting looked at. Going to see cardiologist on Monday.

Hallucination, olfactory, Sinus disorder and Pain in extremity

3.14.2021 – Feels like a sinus issue.

4.4.2021 – Have had sinus issues for weeks.

4.11.2021 – Several weeks ago I notice the smell of smoke that wasnt there. It developed over time into sinus issues. My doctor had me take a COVID test that was negative. Antibiotics did not help it. Not sure what it is.

5.30.2021 – Sinus issues.

10.28.2021 – I got this booster several weeks ago. I am beyond Ann the issues you have listed. I did have a sore arm and was tired the next day. Otherwise no issues.

4.29.2022 – Sinus issues

Delirium, General symptom and Diplopia

5.4.2021 – Shortness of breath- Asthmatic on nebulizer

5.5.2021 – During the night I had an event that made me feel like a high fever and delirium and/or onset of bad asthma attack. Event like none other. Shortness of breath and panic

5.7.2021 – First ever vaccine that I had side effects from

5.8.2021 – Still unnecessarily anxious and short of breath

5.9.2021 – I believe I may be a long hauler undiagnosed as I have been deathly ill with Covid symptoms all year

5.10.2021 – Shortness of breath continual- eyesight still momentary double-vision and headaches pretty unbearable

5.11.2021 – Still have extreme shortness of breath

6.1.2021 – 12 hours after shot feel like hell!

Head injury, Concussion and Fall

4.3.2021 – Within hour of getting vac, could feel face getting "fuzzy", went home ~ as time wore on , more mind foggyness - kept track and by about 12 hours afterwards strutted to clear. Much better, no grogginess in morning...

4.20.2021 – Oddly enough, teeth hurt...?

4.23.2021 – Evening of injection, became very cold, then started vigously shaking before midnight. Continued for three hours and well into trying to get to sleep . Slept most of following day ~ mild mild but continued trembling into night , to only trail off by afternoon Friday. Food tastes altered. I've been coffee drinker for decades and for past two days coffee tasted horrid. Leaned over and accidentally smelled garlic salami - instantly wanted to throw up, but successfully fought waves of sensation. Had nothing like this after first injection

10.19.2021 – Occasional, recurring dry cough Concussion ~ fall due to broken sidewalk, striking head against fence post

12.22.2021 – Very stiff ~ all joints hurt ~ can't get warm

1.3.2022 – Continuous coughing ~ phlegm in chest and coughed up ~ runny nose, pain under eyes and behind right ear ~ for past three days Don't think related to my vaccination on 20th ~~~ I'm masked but on MD eastern shore ~ mos everyone in public are maskless

1.20.2022 – Fatigue (lingering since start year) and sensation of room spinning (5 days)

1.24.2022 – Continuing balance problems since start of year ~ difficulties setting a level horizon, Since start of year, two occasions of room spinning sensation longest lasting 20 mjnutes~ vertigo?

6.9.2022 – Headaches ~ lethargy: lessened over course of three days after shot

Dry skin, Nodule and Injection site induration

4.8.2021 – Have a hard painful knot about 4 inches below injection site.

4.12.2021 – Unusual headache when I went to bed last night.

4.13.2021 – Rough patch of skin the size of a quarter 2 below injection site

4.21.2021 – Woke up at 3:00 am on 4/17 with pain and swelling in right hand and wrist. Couldnt make a fist, hold anything or use hand in any fashion. Iced it with Tylenol all of 4/17 and bought a wrist brace. 4/18-swelling and pain reduced 1/2-cont w/ice, bra

4.27.2021 – Sudden onset of pain, swelling, stiffness in right wrist and hand on 4/17/21. Followed by left thumb swelling & pain. 4/26-left knee pain. Office visit with primary care

Scleroderma, Pre-existing condition improved and Abnormal feces

2.5.2021 – Headache is mild. Some slight dizziness early in the day. Neither were strong enough that I had to leave work. Headache comes and goes

2.6.2021 – Large red swollen area around the injection site about 5 x 3. Mild pain in center of back

2.7.2021 – Redness and swallow swollen area has increased to about a 4 x 6 area. Perimeter is a darker red than the center which is more pinkish.

2.9.2021 – Swelling in feet redness continues to spread lengthwise into the sides kind of like a spider bite. No pain.

2.10.2021 – Redness receding. Swelling not as bad, but hardening instead of soft. No pain when touched.

2.11.2021 – Minimal swelling. Redness gone.

2.26.2021 – Strange, mild itching on top of hand and wrist On arm where inoculation was. Probably unrelated.

3.8.2021 – Slightly light-headed.

3.10.2021 – These were yesterday symptoms. It would not let me submit my symptoms yesterday. Today its just the redness and swelling in my arm. Moderate pain in arm.

3.13.2021 – Swelling mild, but still some pain if rested. At injection site only. Yesterday and the day before I had itching in lower arm of injected arm, but it would not let me submit

4.12.2021 – Diarrhea

4.19.2021 – After bowel movements, theres a unusual residual fluid, reddish brown, that makes it difficult to wipe clean. Not drippy just a small amount. Probably not related to the shot. Thought Id mention it anyway.

Adverse drug reaction, Bronchitis and Injection site swelling

2.24.2022 – Bronchitis Rheumatologist in person

5.29.2022 – Feel great- just a bit sore and swollen first 48 hours at injection site but could still sleep on it

5.30.2022 – Moderate fatigue but did my weekly Tocilzumab 162 mg injection last night- more tired than usual today

6.2.2022 – Began last night at 10 pm but could have been Mexican food..

6.27.2022 – Sore throat

11.26.2022 – Mycrobacteria lung infection w 2 fungus due to my immunosuppresants Bronchoscope, multiple appointments w rheumatologists, pulmonologists, infectious disease

Gastrointestinal tract irritation, Throat clearing and Musculoskeletal pain

12.19.2020 – Insomnia, tinnitis, and mild-moderate posterior neck pain (unsure if related to vaccine)

12.20.2020 – Still have neck pain, which nay akso have been mild headache the past 3 days.

1.9.2021 – Temp max at~ 2330 on day of vaccine (Fri Jan 8) was 102.6 after chilks and rigors. Jaw pain/tight neck and back muscles following that. Abd pain is mainly upper quadrants, intermittent feeling of intestines "on fire." Also neck musculoskeletal pain.

1.10.2021 – Fever broke during the night after approx 30 hours. Headache subsided after40 hrs. Slept most of day following vaccine injection.

4.9.2021 – Not sure if this is related or not, but both my husband and I have had mild but persistent GI irritability (after eating) since getting vaccinated, with the abdomen feeling like it is occasionally on fire. No history of this in past.

4.16.2022 – Vomiting yestetday after check-in completed

10.14.2022 – Mild nasal congestion, sneezing, mild headache, scratchy throat. Roommates all with bad coughs, only 1 of 5 tested + for CoVID today

10.20.2022 – Sore throat, cough, headache, fever, nadal congestion, runny nose. CoVID + on Oct 16. Symptom onset Oct 14. Vaccine booster Sept 29. Also cohabitating with Flu A + person

12.29.2022 – Persistent and increasing bilateral tinnitis since getting vaccines. Truly distracting, with not much relief available. (Neglected to list this symptom previously) Audiologist

Nail deformation, Nail bed disorder and Onychalgia

3.25.2021 – Slight nerve tingley in a small area of my thighs. y

3.29.2021 – Not sure if it my allergies but i have had a slight cough. No breathing problems.

3.30.2021 – I have a persistent cough now but not sure if it is allergies.

4.6.2021 – Persistent chronic cough with yellow sputum. I had a negative COVID test on 4/2/21. Prescribed zithromax on 4/5/21 and a cough suppressant medication.

12.6.2021 – Earache

1.24.2022 – Cough, nasal congestion

4.25.2022 – COVID in January 2022

4.29.2022 – One of my nails is turning upwards and hurts on the side of the mail (cuticle)

4.30.2022 – One of my nail beds (third finger, right hand) is turning slightly upward with slight discoloration.

5.1.2022 – Right hand, third finger nail bed a bit warped and slight discoloration

5.3.2022 – When I had the fever it may have caused my right hand, third finger nail bed to not only curve upward but I just noticed a vertical slight crack in the nail.

5.31.2022 – Cough, fatigue

6.7.2022 – Cough for a week

7.26.2022 – Diagnosed with osteoporosis requiring medication.

Oxygen saturation decreased, Memory impairment and Alopecia

2.7.2021 – Low O2 reading

2.9.2021 – Fever ( cold sores)

2.11.2021 – Fever ( cold sores) healing

3.5.2021 – Fever

3.7.2021 – Rapid heart beat- last few days- down(better) today.

3.25.2021 – Memory - and i dont think its normal aging. But handling it - being more aware

4.8.2021 – Memory- seems like I'm forgetting or habing a hard time recalling sometimes

4.15.2021 – Hair loss-

6.3.2021 – Memory recollection sometimes

4.19.2022 – Cold sores on nose. Healing.

4.20.2022 – Forgot to mention I had a fever after the booster. Ok now. Arm better. Fever blisters healing.

4.27.2022 – The arm that the vacccine was injected in really hurts when i use it. Also weakness in the arm.

5.11.2022 – Arm still hurts!

5.19.2022 – Arm that the shot was given in still hurts and feels weaker if used...

Impaired healing, Eye disorder and Amnesia

1.26.2021 – Brain fog, memory issues, aching joints, red knot & swelling in arm at shot site, dizziness

2.2.2021 – Rash, fatigue, brain fog, memory issues

2.10.2021 – Dizzy, difficult to concentrate, memory issues

2.13.2021 – Dizziness, brain fog, memory

2.14.2021 – Dizziness, memory, brain fog

2.15.2021 – Brain fog, memory

2.17.2021 – Eyesight blurry, brain fog, memory

2.24.2021 – Eyesight issues that I did not have before the 2nd shot. Difficulty reading or seeing computer screen.

3.5.2021 – Still having balance, memory, & eyesight issues, & rash.

3.10.2021 – Eyesight, balance, & memory issues

3.17.2021 – Eyesight issues, memory issues, balance issues, rash, body & skin not healing from minor cuts or scrapes.

3.25.2021 – Eyesight & memory worsening. Balance issues, Rash. Skin not healing. Lack of energy.

5.12.2021 – Menstration is not stopping & is extremely heavy at the beginning of the period. The bleeding reduces but does not stop so I am having continuous periods. I am still having much worse eyesight & some balance issues.

Sensitization, Irritability and Feeling cold

4.1.2021 – I feel super cold and dizziness, my head is hurting so much

4.2.2021 – My head hurts very much taking Tylenol every 4 hrs. Two capsules 500 my each so taking 1000 my. 1 Tylenol won't help my pain so I take two capsules which help ease my headache

4.14.2021 – Everyday have diarrhea, lost of appetite not getting good sleep because of stomach has most of the time

5.5.2021 – Always getting migraines since I got the second shot

5.12.2021 – Since I get my shot I always have headache, diarrhea and very irritable and sensitive

Urinary tract discomfort, Incontinence and Cystitis

1.14.2021 – No appetite. I suspect i have a UTI - Increased frequency & burning sensation when urinating, incontinence.

1.15.2021 – Multiple urinary problems. Diagnosed today w/bladder infection.

1.22.2021 – Nausea, vomiting, extreme exhaustion & weakness possibly due to new antibiotic &/or interaction w other peescription drugs. Antibiotic was prescribed by PCP for UTI.

2.5.2021 – Extreme exhaustion, lack of appetite, dehydration likely caused from UTI that wont go away & side effects of antibiotic in combination with my other daily meds.

5.8.2021 – Congestive heart failure that was diagnosed Oct 2020 has become more advanced, more acute.

Breast mass, Breast tenderness and Breast pain

3.25.2021 – I discovered a lump in my breast. Also I have pain in my breast and under my arm. I read where you can get lumps under your arm. Is this related? Lump is in my breast.

3.27.2021 – My breast and under my arm.

3.31.2021 – Swelling in my lymph nodes. Pain. Went to the ER.

4.5.2021 – 102 degree temp. Vomiting and diarrhea.

4.12.2021 – Still have swollen lymph nodes

5.19.2022 – My right breast has painful knots and general tenderness. Under my arm into my armpit. I've had to have a mammogram and ultrasound due to a lump in my breast after the vaccine but this is getting worse.

Balance disorder, Vertigo and Dizziness

3.19.2021 – Its only been three hours since the shot this afternoon.

3.20.2021 – Dizziness!

3.21.2021 – Vertigo went away yesterday after about 14 hours

3.22.2021 – Slight vertigo.

4.9.2021 – Extreme dizziness

4.16.2021 – Severe vertigo, for which I saw the doctor, has continued all week yet beginning two days ago I began seeing noticeable improvement.

6.18.2021 – Vertigo

9.18.2021 – Vertigo and decreased ease of balance In person doctor visits. Also physical therapy sessions focusing on the vestibular

Influenza, Lymph node pain and Axillary pain

3.17.2021 – No.

4.14.2021 – Three days post injection, lymph gland in left armpit got very swollen and tender. Only lasted for 24 hours. It was a left arm injection. No issues today.

5.16.2022 – I forgot to report this, but from 24 hours after the shot until now, the lymph gland(s) in my left armpit were swollen. A little tender to the touch as well. Today the swelling is nearly gone and sensitivity is gone.

11.11.2022 – Chills, fever, headache, cough and head congestion. I tested positive for COVID-19 on 10/5 and just when I was feeling better I caught the flu.

Injection site nodule, Injection site induration and Bone pain

4.17.2021 – I have a golfball size knot where i got my second shot yesterday

4.18.2021 – My body ached all night i I wrapped myself in a heating blanket it helped a little. I took tylenol and just layed still my body ached so bad i wanted to cry i didnt want to move. My body felt my bones were breaking other then that a the knot below the injection site i was sore there. Its still hard and warm to the touch. I still a little achy hopefully tonight is better then last night i didnt sleep at all.

4.19.2021 – Stayed in bed today from missed sleep on Saturday and sunday i feel fine. My arm (knot) is going now from the injection site

4.20.2021 – I still have a small knot below injection site swellong and sorrness gone.

Injected limb mobility decreased, Injection site discomfort and Injection site pain

3.8.2021 – Injection site is stiff -- more effort needed to raise my arm

3.9.2021 – I realize I have had chills pretty consistently for the last 4-5 days. Definitely part of the fatigue.

7.1.2021 – Have had pain at injection site since the first shot on March 2 that has not abated. There should be another question asking if we continue to experience previously reported symptoms.

9.30.2021 – My arm still hurts at the injection site. We need an option to report on issues experienced at the time of injection that have not abated.

6.11.2022 – Pain at injection site

Skin warm, Swelling and Injection site warmth

1.28.2021 – Warmth around the swelling and redness

1.29.2021 – Warmth on the swollen red injection site

1.30.2021 – The pain is very very light and only there when you touch the area by the vaccine and has gone down significantly from day 1, the redness has gone down from day 1

1.31.2021 – Redness has significantly gone down!

2.10.2021 – I had a red, warm, swollen rash, where the vaccine site was. It was some times itchy, but not to the extent where I was uncomfortable or itching excessively/all day.

2.25.2021 – Just feeling overall groggy, stiff but not in pain, and didnt have much of an appetite today

8.25.2021 – COVID 19

2.24.2022 – My husband and I both had symptoms of head colds back in December. After Christmas. We received negative rapid results but never got our PCR test results back.

Irritable bowel syndrome, Gastrointestinal disorder and Muscle spasms

1.22.2021 – Leg pain both legs before sleep. Theraworx took pain away within 10 minutes. Could have nothing to do with vaccine? Will see tonight. No part n during day yesterday and today

1.23.2021 – Fine-all good

1.24.2021 – Left Leg muscle pain early in AM in bed. May have nothing to do with vaccine.

2.5.2021 – Leg pain during night

2.17.2021 – Just received 2nd vaccine 15 minutes ago

3.24.2021 – Have had night leg cramps on and off. Have prior history of IBS-stomach diarrhea issue today. Perhaps IBS attack-not from Vaccine-I hope

3.31.2021 – IBS attack

8.19.2021 – Got the Moderna Booster shot on Monday.Arm all red where shot was given. Getting better today. Less redMuscle aches in legs during night and while exercising in pool today

5.12.2022 – Stomach issues Have had IBS for many years and had 2 stomach issues including this morning. Had a lot salad and quinoa with Chumas /pita last night that I don't usually eat. Thank Feeling better now.

Mouth ulceration, Oral pain and Stomatitis

4.7.2021 – Headache & vague icky feeling YESTERDAY, 4.75 hrs after shot. Took 2 aspirin, it went away.

4.9.2021 – Slight itchiness YESTERDAY, after vcheck was done

5.5.2021 – Lack of appetite, malaise, kept waking up at night due to discomfort of fever

5.8.2021 – Moderately swollen lymph node at base of neck on side of injection. Also, mild soreness on roof of mouth has turned into sore. May not be related to

5.11.2021 – Dime-sized ulcer on roof of mouth healing slowly. Never ever had similar sore, not caused by any known injury.

5.12.2021 – Sore on roof of mouth still not healed

5.19.2021 – Minor ear infection

Gastroenteritis viral, Vomiting and Back pain

1.28.2021 – I have had a sense of doom a few times. I don't know if it's related.

2.4.2021 – My back hurts, but I'm prone to back injuries, so I don't think it's related to the vaccine.

2.24.2021 – I had the symptoms above, PRIOR to the vaccine.

2.25.2021 – I took 500mg of Tylenol about an hour before taking my temp. Also, I had joint and muscle pain before the shot.

2.25.2022 – I had a stomach virus the past few days with vomiting, diarrhea, and fever, along with muscle and joint pain.

Rash erythematous, Tremor and Feeling hot

12.28.2020 – Runny nose

1.13.2021 – Feel warm

1.14.2021 – Shaking

1.27.2021 – Pain on right chest and back shoulder when breathing deep.

2.3.2021 – Frequent joint pain on left and right shoulders and neck. Joint pain on hips. There was a time joint pain on fingers and wrist. The. When joint pain on right shoulder is moderate to severe right chest is painful and when breathing it is painful

2.10.2021 – Joint pain felt in my toes, feet, hip joints, shoulders, fingers and wrist. I feel fatigued all day.

4.14.2021 – Body pain and joint pain

7.14.2021 – Whole body Fatigue, joint pain, muscle pain, head ache, red pin rashes, stiff neck.

1.13.2022 – Frequent joint pains. Especially on the lower back, hips, shoulders

Joint range of motion decreased, Upper respiratory tract infection and Neck pain

2.4.2021 – Back of my neck has been achy

2.22.2021 – Tired headache

3.8.2021 – Fatigue

5.3.2021 – I had a sinus infection. Feeling tired

9.5.2022 – My left arm has been hurting which is where the vaccine was administered on July 22. My range of motion is limited! My right arm where the second vaccine was administered 8/22/22 does NOT hurt.

9.5.2022 – Left arm hurts with limited range of motion. Left arm is where the vaccine was administered 7/22/22.

9.27.2022 – My arm still hurts ?the shot was administered 7/22/22!

Lung disorder, Burning sensation and Injection site swelling

3.11.2021 – Had shot in left arm. Pain is light, soft ache more towards back of left shoulder. Very light burning sensation in shoulder joint.

3.12.2021 – Left shoulder very sore on back side. Dull ache in upper arm all day. More ache when moving arm. Bit tired now. Been about 16 hours since shot.

3.14.2021 – Left upper arm -above the injection site- is finally not not sore anymore. Was able to sleep on my left side last night with no issues.

3.18.2021 – Have had light pain in upper arm where I got the shot last week. Have felt a couple of times in last 24 hours. Pain Level 2-3 for 3-5 min, then it's gone.

4.8.2021 – Light achiness in arm I got the shot in. Right arm upper arm a little achy too

4.10.2021 – Area swollen just below injection site. Bit red too. Soreness subsiding.

7.8.2021 – Occasionally I get an urge to cough. Maybe once or twice a week. No specific time. It just comes out of the blue. This is not a shallow-type cough. Its deep. Like someone squeezes my lungs. Started maybe 2 months ago. I cough and then it's gone.

Sleep deficit, Mental impairment and Pelvic pain

4.1.2021 – I have not been sleeping well since the shot.

4.15.2021 – Runny nose

4.16.2021 – My infection site isnt just red, there is a large oval rash on it. The pain Im experiencing is the back of my neck and I still have the sniffles

5.5.2021 – Having trouble sleeping

5.12.2021 – Extreme pain in the area of the pubic bone and lack of sleep

5.26.2021 – Uti infection. And lack of sleep

10.8.2022 – I got the bivalent booster on 10/5. On 10/6 I felt terrible. Chills, pounding headache, trouble thinking, body aches. On 10/7 I'm pretty much back to normal

10.9.2022 – Head is Still a bit foggy