Their Stories

Post-acute COVID-19 syndrome, Thyroid disorder and Respiratory disorder

3.12.2021 – Dizziness

3.26.2021 – It could be that I have long haul Covid, because I do, but its been an utterly exhausting week. Im just so tired ALL the time. It was normal long haul last week exhausting this week.

7.4.2021 – I have long haul Covid and Im wondering if Im going to end up in disability.

10.1.2021 – I have long haul Covid and it wont go away. Its destroying my life. I cant afford a dr to tell me they dont know how to help me

4.2.2022 – I'm still suffering from long haul with breathing and exhaustion being an issue. I've also lost a lot of hair and I'm seeing a Dr about my thyroid

Nausea, Dizziness and Fatigue

2.5.2021 – This was when I first got the vaccine, but it had slipped my mind that I had not reported it. But after receiving the vaccine, a few hours after and the following day I felt very spaced out and zoned out. This lasted about 2-3 days and I apologize for forgetting to mention that prior to today.

2.12.2021 – Sunday night I became really dizzy and light headed and nauseous. This continued with fatigue and a very strong headache to Monday and Tuesday and became less severe on Wednesday.

Joint stiffness, Diarrhea and Lymphadenopathy

2.11.2021 – Swollen lymph node at the base of my neck just above my collar bone

2.12.2021 – Swollen lymph node at the base of my neck, just above collar bone on the side I got the injection

2.13.2021 – Swollen lymph node at base of neck just above collar bone on the side of my body I got the injection

2.14.2021 – Swollen lymph node at the base of my neck, just above my collar bone on the side I got the injection

2.15.2021 – Swollen lymph node at the base of my neck, just above the collar bone on the side of the body I got the injection

2.16.2021 – Swollen lymph node at base of my neck

3.23.2021 – Diarrhea for several days this past week

5.11.2021 – I am not sure if its related but on the same side that I got the vaccine, my hip has been hurting. The joint feels stiff, started about 3-4 weeks after the second vaccine shot and hasnt gone away or gotten any better.

8.10.2021 – Diarrhea

Brain neoplasm, Death and Rash

2.10.2021 – Symptoms due to cancer treatment

2.12.2021 – Symptoms due to chemo treatment

2.13.2021 – Symptom related to chemo treatment

2.16.2021 – Symptoms related to chemo treatment

3.10.2021 – Fatigue due to cancer treatment

3.13.2021 – Symptoms due to cancer diagnosis/treatment

3.14.2021 – Unsure if related to chemo treatment or the shot

3.15.2021 – Still unsure if related to injection or cancer treatment Appointment with oncologist

3.16.2021 – Unsure if related to shot or cancer treatment

3.17.2021 – Symptoms could be related to chemo treatment

3.26.2021 – New brain tumor and rash on head, hospitalization (most likely due to cancer treatment)

4.22.2021 – Shortness or breath and headaches, related to cancer diagnosis

6.10.2021 – My father (b)(6) passed away May 7, 2021 Hospice

9.8.2021 – Patient passed away 5-7-2021If you have any questions feel free to contact me at this number, I am his daughter. Hospice

3.10.2022 – Patient passed away May 7, 2021

Exercise tolerance decreased, Injection site swelling and Injection site pruritus

1.22.2021 – Nothing major.just suddenly the area was itching and raised after a few days when it hadnt been before. Seems to be improving now.

2.7.2021 – Just a little more difficult to workout. Get tired more quickly from that.

2.25.2021 – Itching at sight of vaccine after it seemed to heal about 2 weeks after getting it. Is getting better tho. No redness

10.30.2021 – Wasn't able to sleep last night despite sleep medicine

12.2.2021 – Nadal congestión, headache, sneezing

Ear swelling, Fluid retention and Middle ear effusion

3.15.2021 – Runny nose

4.19.2021 – Asthma and fluid retention. Went to my doctor she gave me a steroid shot, antibiotic shot and lasix. Feeling much better! This was on 15th and 16th.

4.23.2021 – I had joint pains on 21st and 22nd.

4.25.2021 – Feeling hot and eR and neck pain

4.26.2021 – Trouble breathing and tightness in the chest. My physician had to give me anothet steroid injection and a chest x-ray.

4.27.2021 – Left ear pain

4.28.2021 – Ear pain and shortness of breath. Follow up

5.12.2021 – Wheezing, chest pressure and pain onleft upper chest pentrating through to back and shortness of breath. Fluid in ears, red and swollen.

5.19.2021 – Chest tightening and shortness of breath. Heart rate rapid.

5.26.2021 – Extreme fatigue, pain and swelling in shoulders and neck. Shortness of breath She put me on antibiotics and is scheduling a ct scan of my chest.

4.23.2022 – Lightheaded, papatations, nausea fatigued

Diplopia and Headache

3.12.2021 – Third morning after shot I woke with double vision.

3.13.2021 – Still having double vision.

3.14.2021 – Still have double vision.

3.21.2021 – Double vision is causing headaches.

6.6.2021 – I woke with double vision the third morning after receiving the Phizer shot. About ten weeks later I began regaining my normal vision. Now two weeks later almost full recovery. I believe the problem was due to receiving the shot. Appointments with ophthalmologist and nuro ophthalmologist.

Menstrual headache, Blood disorder and Carpal tunnel syndrome

3.7.2021 – Increased carpal tunnel numbness

3.9.2021 – FYI in previous days Ive reported joint pain and numbness but you should know I have osteoarthritis and carpal tunnel already just made it a bit worse

3.11.2021 – New numbness shooting up left heel but not sure if its related to vaccine or newest adventure into osteoarthritis lol

3.27.2021 – My osteoarthritis has remained much worse than usual as had my Carpal Tunnel in my hand

10.17.2021 – Menstruation headache

4.8.2022 – Mild venal stroke due to clot on or about 2/22/22, cause is yet undetermined- but likely the BFO and or clotting issues. Several negative Covid tests during the period before and after stroke (18 migraines and 18 tension headache days in 40 days) Stroke as described above

Pulmonary pain, Bone pain and Injection site reaction

5.5.2021 – It's only been perhaps 2 hours since i recieved the first vaccine.

5.6.2021 – I just feel somewhat fatigued and have a headache. I can't say I feel bad yet i don't feel good.

5.7.2021 – I still don't feel good. I'm quite fatigued and yet I've done very little. I had many reservations concerning this vaccine and spoke at length with my sister, who is a nurse and has been for many years. She'd stated that PFIZER was the only vaccine she'd take and that's why i too insisted on the same. I have many muscle aches still feel a tightness in my chest like pain in my lungs that used to accompany pneumonia. My muscle/ body aches areas more than moderate yet not what I'd call severe, but they are bad.

5.12.2021 – Wondering if people that have negative reactions to the first injection also have trouble with the second injection?

6.2.2021 – Pain in left arm began b4 the needle was removed from my arm and it hurt from the shoulder bone halfway to my elbow. I've been extremely dizzy although it's a bit better today. I've felt as though i was in a fog also. This dizziness and foggy feeling

8.27.2021 – Since second vaccine i have muscle cramps and charlie horse's. Every night. I've been taking otc potassium and still have 2 to 5 cramps per night. I've had these since I recieved the 2nd shot.

Pharyngeal ulceration, Ulcer and Oral mucosal blistering

3.12.2021 – Very painful White mouth sores in mouth and in throat, feels like in eyes too. Had to go to the doctor because it has been getting worse for 5 days now and very painful. Immediate care

4.1.2021 – Worsening symptoms past 4 weeks. Mouth ulcers, blisters, inflammation. Feel it in my throat and sometimes my ears. On my tongue as well looks as if part of it is burnt off- can feel that in my mouth. Steroids and other topicals did not work

4.3.2021 – Continuation of painful mouth sores and ulcers and feels like on and off raspy voice and my throat hurts on and off.

Prothrombin time prolonged, International normalized ratio increased and Blood glucose fluctuation

4.29.2021 – I've had elevated blood glucose readings ever since the first modern dose without any change in my eating pattern. My daily readings have jumped to over 400 average since vaccine from 148 average for the previous 90 days before the vaccine.

6.17.2021 – My blood glucose readings still have not stabilized since the first Moderna shot. My average readings for 120 days before the shot were 148. My average reading since the shot is 472 with no change in eating patterns.

Seasonal allergy, Impaired work ability and Contusion

3.18.2021 – I don't know if the tiredness is from shot or seasonal allergies. It has been very windy here, I think it is more allergy related.

4.8.2021 – I have felt better after my 2nd shot than I did after my 1st. My arm is a little bruised but not sore like the 1st shot.

4.11.2021 – I did bruise at the site where I got my 2nd shot. This did not happen with the 1st shot.

4.6.2022 – Rapid & PCR test came back positive for Covid, I was tested on January 4th 2022. Flu test was negative. I received my 1st booster on 12-30-21. Fortunately, it was a mild case, I did miss 4 days of work. No long haul issues.

Arthropod bite, Eczema and Gastroesophageal reflux disease

4.19.2021 – Headache and body aches/chills were extreme all day the day after the shot. Chills are gone today but headache and body aches are still around

4.20.2021 – It should be noted that one week after my first Moderna shot I got a red rash that itched and lasted for a week. Then, two weeks after shot one, I got bug bite looking eczema bumps on my hands and feet including the bottom of my feet.

4.24.2021 – Some acid reflux feeling for the last couple days

Menstrual disorder, Injection site rash and Injection site swelling

1.9.2021 – Today a rash appeared around the injection site (day 7) red, raised, itchy. Have heard this from at least 6 other friends who received this vaccine -All on day 7 or 8

1.17.2021 – I reported a red, raised itchy rash around injection site that started day 7. This became larger and away from injection site. Lasted day 8 and 9. Then went away. At least a dozen other nurses I work with had same thing.

2.1.2021 – It is 48 hours since my last dose-on 1/30 had fever, chills, headache, nausea, muscle aches

2.2.2021 – Period came unexpected-not due. Probably unrelated but heard this from others as well

Benign prostatic hyperplasia, Urinary tract disorder and Pollakiuria

3.12.2021 – Increased need to urinate

3.26.2021 – Mild soreness at injection site only one or two days the past week.

12.26.2021 – Slight increase in urination

12.27.2021 – Slight increase in urination. Short duration of colic.

1.13.2022 – Positive test for COVID19

9.27.2022 – Gas, lasting several hours

9.28.2022 – Mild gas

9.30.2022 – Mild gas, slight increase in urinary frequency.

10.1.2022 – Temperature elevated to 98.9 for about 6 hours. Increase in urinary frequency.

10.30.2022 – Urinary symptoms due to BPH. Urine culture was negative; referred to urologist for follow up, including prescription medications.

12.25.2022 – Prostate Cancer

Intervertebral disc protrusion, Muscle twitching and Depression

4.16.2021 – Mild headaches

10.1.2022 – Since my booster on September 17, I have experienced varying levels of back pain in an area where I have disc bulging and herniation.It came "out of the blue" the day after my booster.My Dr informed me this could have been triggered by the booster.

10.8.2022 – Still experiencing tremors and shaking episodes. Just had one actually. It lasted about 15 minutes. I'd like someone to contact me so I can give a better description.

10.15.2022 – I'm still experiencing a back flare-up with pain, inflammation and muscle twitching. Several physiatrist and physical therapist appts. Next I will see a neurologist.

Concussion, Mental impairment and Feeling of body temperature change

3.30.2021 – The night following the 2nd vaccine I developed severe Rigors for at least 4 hours.

3.31.2021 – 4 days ago developed severe headache

4.27.2021 – Hot and cold sensations

5.4.2021 – Headache unable to think

5.11.2021 – Headache, off balance, vision changes, cold and hot flashes- constantly, difficulty thinking trying to get appointment with a neurologist

6.29.2021 – I did fall and diagnosed with concussion...but prior to the fall I had developed a very bad headache. I have Chills, and feel feverish on and off all the time, besides much watering from my eyes besides taking allergy and use of dry eye medications

2.25.2022 – Body aches-stiffness lower extremities..knees especially... increase in glucose levels...and stage 1 kidney disease... unsure why Contacting nephrologist

4.14.2022 – Tinnitus is louder.. and some increased knee swelling Outpatient rheumatologist

4.30.2022 – Swollen knees.. increased tinnitus

9.24.2022 – Left shoulder pain..the 2nd vaccine hurt when injected... pharmacist said it WAS the Fluad and because it's thick and creamy she had to push it hard. My arm is still painful...and weak. (b)(6) at (b)(6). (b)(6) provided the Vaccines.

Dialysis, Conjunctival hemorrhage and Rash vesicular

1.31.2021 – Small amount of discomfort when I move my arm

2.3.2021 – Upset stomach Conjunctive tissue bloody

3.17.2021 – Rash on lower back

3.24.2021 – Rash on lower back with blisters started Wednesday & starting to clear up

5.26.2021 – Body aches

2.24.2022 – Lethargic & Achy all over in January - inflation & sweeping in legs, took Motrin and felt better

5.18.2022 – Head cold which has progressed to earach & sore throat Took a home Covid test with negative results

8.3.2022 – Had to start dialysis Dialysis center after hospital

10.7.2022 – Upset stomach

Limb mass, Dehydration and Hypersensitivity

4.20.2021 – Dehydration

4.23.2021 – Had a horrible body shut down resulting from Amoxicillin for infection? I doubt however its related to the vaccine but worth mentioning I guess? Still trying to recover w/plenty of yogurt/and rest and hydration w/H2O.

7.9.2021 – Allergic Reaction to some unknown household item and/or a growth on left pinky toe thought was bunion but is obviously not? Sent to ER by Ambulance (terrible service only received a prednisone injection & told to take benadryl...now N.P. wrote RX 4/P

Polymyalgia rheumatica, Edema and Ophthalmic migraine

2.18.2021 – These symptoms are chronic, probably not vaccine related

2.19.2021 – Routine headache and aches

9.7.2021 – Ocular migraine Referred to ER from doctors office

10.28.2021 – Muscle more sore in the arm of vaccine site. Painful to lift the arm now.

11.11.2021 – Head cold

12.30.2021 – Numbness and tingling in hands and feet, dizziness, near fainting, shortness of breath. For 10 days immediately after the booster I had severe fatigue and body aches, lessened appetite, but no fever In person visits to cardiology to make sure it wasn't my pacemaker or my heart, have an echocardiogram scheduled for next week. Seen by neurologist also

3.31.2022 – Hep C, anemia,

4.28.2022 – Was in symptomatic atrial fibrillation, not new but was a worsening and I could only rest in bed for a day. I don't think it was related to the vaccine

5.12.2022 – Worsening ankle and feet edema

10.6.2022 – Diagnosed with polymyalgia rheumatica and started treatment Office visits in July, August , and September. Emergency room visits in June.

11.4.2022 – Nosebleeds, bruising, fatigue, headache Office visits

11.11.2022 – I'm even more fatigued, not sleeping well at all. Saw my primary care provider last Friday, cardiologist last Wednesday.

Anal hemorrhage, Hemoglobin decreased and Blood pressure decreased

4.9.2021 – I had started bleeding during my bowel movement after the vaccination. but i did not connect this with the vaccination because i had this happened before, and it isually goes away in a day or 2. But this has persisted every day for the past week, and is getting quite heavy at every bowel movement. I also had somw confuaion on the first 2 daya of the vaccinated but that seems to have been reaolved now.

4.10.2021 – My bleeding during bowel movements is still continuing

4.17.2021 – My bleeding during every bowel movement conti nues since after the vaccination. It is a birght red bleed. I have been to 2 doctors, my haemoglobin had dropped to 10.2, and my blood pressure had hover below 90/ 60. I feel fatigue.

4.24.2021 – Tired

Bed rest, Diarrhea and Injection site pain

2.12.2021 – I have, in effect flu-like symptoms. If I was working (Im retired) I would have stayed home. Ive been in bed resting most of the day and now at 3:45pm am beginning to feel better. The injection site is more painful with this second shot. Ive been icing my arm most of the day and that too is much improved.

2.14.2021 – In hindsight on Fri and Sat after the vaccine on Thursday I had mild diarrhea. Early Sunday morning it worsened so that I was up several times between 3:00 and 7:00am. By 11:00am it subsided.

Fibrin D dimer increased, Diverticulum and Diverticulitis

7.30.2021 – Chest pains- went to my cardiologist today, said I was ok

7.31.2021 – Strange stomach pains I never had before, feeling of wanting to pass out. Regret being forced into thus vaccine

8.3.2021 – Weird pains in my stomach, like severe cramping.

8.10.2021 – 4th trip to er. Still have diarrhea, now have diverticulitis and diverticulosis . D-dimer is high, unknown blood clot. Had to get hydrated 3 times now. All started after vaccine. Aches and pains still present.

1.25.2022 – I got covid. My pcr on a Monday said negative, went to er shortness of breath and that Wednesday they did pcr and less then 24 hrs it came back positive. Had fevers 104, severe body pain, chills, had to go to er to get hydrated several times.

Wheezing, Heavy menstrual bleeding and Menstruation irregular

9.1.2021 – Dizziness shortly after but it went away

9.22.2021 – Dizziness

9.24.2021 – Some mild dizziness and heavy menstrual cycle that was earlier than expected

9.25.2021 – Sore throat Dizziness and heavy menstrual cycle that came early (Im never early or late) also had my period last vaccine only three weeks ago so it has to be a side effect from the vaccine which is concerning since there is no warning of this. Went for sore throat and stuffy nose

9.26.2021 – Sore throat/wheezing

9.27.2021 – Sore throat

Tendon rupture, Basal cell carcinoma and Acupuncture

2.26.2021 – THE INJECTION SITE IS ALSO HOT WHERE IT IS RED..

3.9.2021 – Diarrhea, continued joint pain especially in my left shoulder (injection arm) and both knees, and fatigue.

3.16.2021 – Continuing pain in my joints, especially my left shoulder, right elbow and my knees. I have been seeing an acupuncturist. Acupuncture

3.24.2021 – My left shoulder continued, very painful. I was concerned about SIRVA. I had a shoulder x-ray that showed osteophytosis in the acromioclavicular joint & mild degenerative changes. No soft tissue changes seen. RX 5 mg preidsone pain is gone in 2 days X-ray

3.30.2021 – Left shoulder pain diagnosed as related to pinched nerve in neck. Ortho consult tomorrow for bone spurs and slight degeneration in the left shoulder.

4.16.2022 – I noticed the large red circle at the injection site yesterday after I had submitted my report.

10.11.2022 – I received a flu shot yesterday. I felt tired this morning and my right arm is very sore where I got the flu shot.

10.13.2022 – Shortness of breath, rapid heart beat, very high blood pressure

Ear infection, Lymph node pain and Sinusitis

2.8.2021 – Sinus infection and outer and inner ear infection on same side as injection site

2.17.2021 – Swelling of lump nodes in armpit and chest on side of injection

2.18.2021 – Pain and swelling in lymph nodes on and around arm pit, chest up to collar bone and bicep of injection site arm

2.19.2021 – The lymph node swelling is still in my armpit and is moving down from my bicep to above and below the elbow.

2.20.2021 – Swelling in lymph nodes is lower, but still in armpit and bicep and elbow

8.16.2021 – Cold symptoms, no fever

Injection site scar, Breast feeding and Swelling

12.31.2020 – I'm breast feeding and my son started with fevers overnight - doesn't seem to have anything else and no sure if it's related.

1.26.2021 – My injection site pain and changes is actually below the injection site at a previous BCG scar.

1.27.2021 – Redness and pain is actually at bcg scar below injection site

1.28.2021 – All of the swelling/pain/itching is at bcg scar not injection site

1.29.2021 – All symptoms are around bcg scar not injection site

1.30.2021 – All symptoms at previous bcg scar not injection site

Breast mass, Chest discomfort and Arthralgia

2.12.2021 – Ive been having fairly intense joint pains which were not something Ive experienced before.

3.5.2021 – Increase in headaches and continued joint pain.

5.21.2021 – Breast lumps began appearing in both breasts. Not in lymph nodes. Actual breasts. I had the first dose in my left arm and the second in my right. Waiting results on diagnostic scans just done yesterday. Ultrasound shows 6 lumps in left breast. Diagnostic mammogram and ultrasound done at hospital after visiting doctors office.

11.3.2021 – Pressure in my chest. A heaviness.

Acne, Menstruation delayed and Menstrual disorder

6.22.2021 – I havent had my period when I should have. (Its been 62 days.) Im not pregnant. Though of course it could be unrelated to the vaccine.

12.5.2021 – Sore around my armpit/lymph nodes there

1.14.2022 – Ocassional headache

10.20.2022 – Period seems to be late

10.31.2022 – My period was 8 days late. I also had facial flushing for a couple of days and achier joints, with no other noticeable factor that changed other than I'd had the vaccine recently.

11.14.2022 – My period this cycle came quite a bit early (day 20). Normally my period is pretty regular, but since the bivalent booster, my cycles have been off.

11.21.2022 – Still feels like my hormones are out of whack. More acne, menstrual cycle has been off the last 2 times.

Herpes virus infection, Oral herpes and Edema peripheral

12.6.2022 – Right Arm pit swelling(moderate) and slightly painful, left arm pit swelling is mild and not painful

12.7.2022 – Right arm pit swelling(moderate amount). Left arm pit slight swelling. Not painful. 200 mg Tylenol taken for moderate headache to get through work

12.8.2022 – Right arm pit swelling is mild- moderate. Have multiple herpes lesions on upper and lower lip and chin

12.9.2022 – Right arm pit moderate swelling left side mild swelling. multiple cold sores on lower, upper lips and chin

12.10.2022 – Right arm pit moderate swelling, left arm pit slight swelling multiple cold sores on upper , lower lips and chin

12.12.2022 – Right arm pit swelling moderate, healing cold sores