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Their Stories

What v-safe registrants wrote to the CDC after their Pfizer or Moderna shots, in their own words. Each card is one person, with all of their free text. This page shows only the longer stories: the 116,000 people who wrote at least 400 characters in all. The text is as the CDC released it, except that email addresses and phone numbers are hidden. You get a random set of these people on every visit.

Shuffle

Central serous chorioretinopathy, Abdominal tenderness and Mass

5AQ-14675-65173

– Feeling "off" feeling weak

– Developed what my optometrist calls Central Serous Chorioretinopathy. It's a pita. Left eye and therefore vision overall feels like you are looking underwater. Never happened before and don't know if related. Drs In-person visit with referral to a specialist

– central serous chorioretinopathy Drs referral to specialist

– central serous retinopath Office visit then specialist visit

– Recently had lower intestinal cramps that you couldn't touch w/o pain. After two days.....gone. Then I got sniffles, runny nose, cough (no congestion) feeling weak, sneezing, clammy, heating up and cooling down. All lasted 5 days In person Dr visit

– Got Covid. Bump has formed under the back of my skull. Like a lump Office visit and possible surgery

Hysterectomy, Aphasia and Weight increased

5AQ-63754-86853

– Fatigue

– Ive had a hysteroscopy w d&c, colonoscopy and a full hysterectomy - I feel dreadful but none related to my cv vax

– I had a full/complete hysterectomy

– I am also get migraines & am 16 days post op complete hysterectomy so my symptoms overlap

– Relating to my hysterectomy probably-Exhaustion/extreme fatigue, mild chills/sweats, headache

– Fatigue, ibs, increased difficulty with remembering the right words, depression, weight gain

Gait inability, Contusion and Abdominal discomfort

5AQ-65859-37051

– I have a quarter size browse on my arm

– Now the Bruise is the size of a half dollar

– Sum sweating and a bruise th size of a half dollar

– Sweating

– Head and neck pain upset stomach low energy just not feeling good

– The shoulder where I got my shot I'm having joint pain

– Feeling yucky no energy just feeling bad every morning I do take pain medication and when I take my medication I feel somewhat better but not great

– Tired neck and shoulder pain and stabbing pain in my lower back that at times it keeps me from walking

– Fatigue joint pain and not leaving my house much

Submaxillary gland enlargement, Rhinalgia and Sensation of foreign body

5AR-17888-34404

– I have been feeling like there is a lump in my throat but I think it is due to muscle tightness because if I massage my neck and shoulders it feels better. It did make it hard to sleep, though.

– I still have a tiny bit of a lump in my throat but it is mostly cleared up.

– Limited rom in injected arm,

– One swollen gland under chin and one slightly sore patch inside my nose.

– I have a sore spot in the inside of my right nostril that's a little tingly, and the gland at my jaw is feeling a little enlarge so I suspect I have the beginnings of a cold sore. I've had flare-ups in that area for years and it's always like this.

– Yeast infection.

– Swollen fingers, possibly tendinitis.

– Slight feeling of head/sinus pressure/headache and some leg aches in a leg that had a fracture in the past, but have had the same issues before due to weather changes and those also took place while this was going on. Repeated Covid tests negative.

– dry mouth, feeling thirstier than normal

– Very bad Charlie horse last night woke me up but I also wound up standing at a show for a long period of time earlier in the evening with a mask on so may have been dehydrated.

– Covid

Near death experience, Anaphylactic shock and Arthropod sting

5AR-18314-15183

– This was actually for 1 week after my vaccination that I didn't report. After 1 week I developed an itchy rash on the upper arm of where I received the shot. I believe this is called covid arm. The rash went away after a few days.

– I just received the 2nd shot a few minutes ago.

– I don't know if it's related to me getting the vaccine but on July 2nd I was twice bitten in the face by a wasp and went into severe anaphylaxis shock. I almost died. Ambulance took me to the hospital. Never had a reaction before. Vaccine related?

Psoriatic arthropathy, Blood glucose decreased and Injection site reaction

5AR-20498-58754

– Muscle and joint pain on left side from shoulder to ankle

– Mild insomnia

– Burning ache in left shoulder. Chest aches last night. Extremely tired after a simple task.

– Feeling off this morning not like my self

– not feeling like self. Fatigue sets in around 3pm daily

– Noticed in the last 2 minths that my blood sugars have been lower. Some days a little more tired then others.

– Sometimes tired and experiencing low blood sugars. Noting serious.

– Low blood sugars then normal

– Large red warm welt near injection site. On and off warmth and itchy.

– Psoriatic arthritis diagnosis

– Psoriatic arthritis Normal doctors appointments

– Psoriatic arthritis

Esophageal achalasia, Hyperesthesia teeth and Mouth ulceration

5AR-47015-48377

– With first shot- mouth ulcers. With second shot- teeth pain. Every tooth. Horrible headache and sinus teeth pain.

– Teeth sensitivity.

– Teeth ache.

– Teeth mildly still ache like sinus infection.

– Sinus infection. Started antibiotic treatment today.

– Sinus infection. On antibiotic now.

– Sinus infection, bronchitis/productive cough

– Aches/Nausea day after. Teeth pain 36 hours later. Lump, pain a d red itchy circle around injection site since shot 5 days ago.

Ligament pain, Atrial flutter and Tendon pain

5AR-63919-58229

– Loss of smell and taste since my 2nd Moderna vaccine.

– Predawn to bedtime headache.

– Headaches

– Tooth ache. Dentist urgent care

– Tendon and ligament pain in left forearm añd bicep requiring physìcal therapy Prìmary care physcìan

– Had 4 days of gastro-intestinal flu June 11-14 even with vaccination. Have not had influenza in 15-20 years.

– Tired all day long every day.

– Near perpetual daily frontal lobe headaches for the last week.

– Persistent frontral lobe headache continues.

– Stinging frontal lobe headaches Primary care physician

Wisdom teeth removal, Bipolar disorder and Trismus

5AS-14023-14569

– Heart rate increased earlier in the day, slept it off, woke up to it being gone, though it feels a little quicker now again, but not like earlier today

– Light increased heart rate briefly earlier, pressure in stomach that isn't pain or nausea, though latter is likely gastrointestinal problem I've had since my appendectomy 3 years ago

– Typical mild stomach discomfort likely related to past appendectomy

– My arm pain is about a 7 or 8, if i lift it too high. Otherwise, the pain is moderate/mild, so I'm resting it. I alao have a sensitive stomach, so that might contribute to the abdominal pain. Trying to rest more today.

– The diarrhea is unlikely related to the vaccine; I have had stomach issues since my appendix came out three-four years ago, so eating certain foods can cause it because my stomach/intestines are now very sensitive and more susceptible to becoming ill, such as having more pain, nausea, gas, or diarrhea than a normal person would, in terms of frequency.

– I got a bacterial infection in my throat along with cold-like symptoms and am taking antibiotics, which are helping.

– Menstrual cycle, recovering from bacterial throat infection

– Allergies, otherwise persistent throat bacterial infeciton, not sure; allergy medication seems to help.

– Allergies, seem to be clearing up a bit though. Also, just usual gastrointestinal problems sometimes I've had before the vaccine.

– Random numbness on and off in arm the last 6-8 weeks, infrequent and likely related to a physical injury sustained 6-8 weeks ago, with fewer incidents of numbness as time goes forward, seemingly.

– Acid reflux (unrelated), increase in bipoalr depression (unrelated), increase in anxiety (unrelated), month-long cough (unrelated; from acid reflux)

– Got COVID-19 from unvaccinated family member.

– Trismus acting up (had wisdom teeth, including one impacted, pulled at the end of last year).

Poor quality sleep, Feeling hot and Insomnia

5AS-18799-19392

– Also felt hot. Felt tired but couldnt sleep at times.

– I felt a bit warm in the early part of the day. Also didnt sleep as good as usual over night but definitely better than the 1st night after receiving the vaccination.

– Feeling just a tiny bit off, received vaccine approx 8 hours prior to this checkup

– All relatively mild but aided and eased by taking Tylenol this morning and then at lunch

– Have cold like symptoms. Cough, runny nose, and sneezing. Took a Covid PCR test on Monday 12/6/2021, results are pending.

– Had Covid in July, 2022

Neurological symptom, Visual impairment and Tremor

5AS-32079-95266

– You people need to be aware of the neurological symptoms! Stop avoiding the conversation. I had visual tremors physical tremors that didnt exist in the natural. It felt like I was standing in the ocean and getting pummeled by waves at one point and today I had shaky tremors both visual and physical this is three days after the vaccine

– YES!! The neurological visual and physical tremors!! You Need To Address these Neuromuscular symptoms!!

– My arm is Still SORE where I received the shots!! That's not normal!!

Respiratory syncytial virus infection, Hot flush and Feeling hot

5AS-32560-63099

– Yesterday afternoon and last night, I felt like I was having warm flashes, as opposed to hot flashes. It might just be a coincidence.

– I have a headache but I had it before getting my 2d dose if the vaccine

– I Dont think my symptoms are related to the vaccine. The headache is sinus-related, and the nausea was from taking Rxs & OTC vitamins/supplements on an empty stomach. The diarrhea may be related but it only occurred one time

Anosmia, Ageusia and Muscle spasms

5AS-74195-34783

– Headache

– Headaches

– Headaches, muscle spasmsLast question on here: do I believe the vax is causing my health problems-there should be an option for not sure because who really knows??? Naturopath

– I tested positive for covid on January 3rd, I lost my sense of smell & taste on and off for several weeks, I had a headache, congestion & sore throat for several days, with a fever & chills for only one day. Everyone in my immediate household got it

Dysphagia, Hypersomnia and Pneumonia

5AT-13461-37172

– Cant stay awake

– Diagnosed with pneumonia May be an odd coincidence with shot #2

– Feb 13 diagnosis severe reaction to shot #2 vaccine, high fever rigors.m. EMT to hospital pneumonia, in hospice care now. Doctors do not think he will survive

– (b)(6) continues to suffer from the pneumonia, and swallowing problems that he had on the day after his 2nd vaccine shot.His doctors say this will not improve. He spent 5 days at a Hospice house and now has at-home-Hospice care.

– Weak, sleep a lot, must use a Walker, I am in At-Home Hospice care. I got very sick the day after shot #2 of the Moderna Vaccine and went to the hospital, then after a few days admitted to Hospice From hospital to Hospice

– The day after my second covid shot I went to the hospital, have swallowing problems and was sent home with at-home hospice care. I am not expected to live very long.

Rheumatoid arthritis, Bone pain and Gastroesophageal reflux disease

5AT-26276-38702

– Loss of appetite

– Light sensitive headache

– Fatigue is up, plus bone ache & fever. I have fibromyalgia & had RA; this is just a flare up, probably triggered by the vaccine.

– Sore throat, sinus drainage

– Acid reflux and GI distress. Doctors office visit

– I have fibro and now migraines; I doubt the booster is responsible.

– Weather migraine most likely

– Sinuses started running

– My sinuses started running within half an hour of injection and are still clearing.

– Sinuses are finally drying up.

– Fibromyalgia is in flare-up.

Joint swelling, Swelling and Chest pain

5AT-27683-99345

– Minor itching in between armpits and shoulder

– Slight itch between armpit pits and shoulder, anterior

– Sore throat. Right clavicle still has swelling around sternoclavicular joint. Doubtful related to vaccine.

– I doubt it's related to vaccination, but I have had some discomfort on the right side of my torso. Sometimes it appears to be coming from the mid torso toward the back, but other times the pain seems to be in the mid right torso, toward the front.

– Mild sore throat, ended up testing positive for covid. Six weeks later, mild chest pain, ended up testing positive for covid a second time.

Impaired work ability, Balance disorder and Upper-airway cough syndrome

5AT-28237-68440

– 03/12, very weak in walking. 03/13, very weak and muscles achy. 03/14, very weak with achy muscles.

– My drippy nose sniffles were heavier than the 15th and 16th but a Claritin pretty much stopped the drip for most of the day.

– To put into context, I was hospitalized with sepsis in January this year and am utilizing OT, PT, and Speech therapies as well as working full-time since March 1. It is all exhausting but since the vaccination my overall exhaustion and weakness has been compounded. I really had to return to work too soon. I did to save my job. So the vaccine AND my weakness from after-sepsis has increased.

– General overall weakness that I felt I could barely get through the work day. I had a physical therapy appt at day's end and could not keep a balance on actions I performed before - my strength and balance was way off. My muscles were achy.

Hypoglycemia, Diabetes mellitus and Blood glucose increased

5AT-30341-86743

– Slight ache at vaccine site

– Low blood sugar issues first 12 hours after receiving the injection. I am not diabetic, I have reactive hypoglycemia and the vaccine seemed to make it more difficult to maintain an adequate blood glucose level. I was able to maintain it by drinking juice frequently and putting honey periodically under my tongue. Problems are resolved though after 12 hours.

– High blood pressure

– Elevated heartbeat

– Fatigue, sore throat, slight fever

Reproductive tract disorder, Mouth injury and Oral candidiasis

5AU-13905-29416

– Lymph nodes in armpit swollen in arm where I received shot.

– Upset stomach

– Extremely tired and headache

– Oral Thrush and mouth sores

– In went to the doctor for a severe urinary tract infection and I still have unbearable mouth sores which I also sought medical attention for.

– No monthly period since 2nd vaccine. Its been 3 months.

– Still having issues with my mouth. Mouth sores and cuts on inside of cheeks.Had to see a doctor for reproductive issues specifically no period for months. Physically going to the doctors offices

Therapeutic response unexpected, Chills and Headache

5AU-18299-73157

– Just texted you my thermometer shows 93.7 temperature. But I am fine in fact I just took my run and I'm going to try to work. I'm certainly able to do my life and day so thank you all for everything you did.

– Made a mistake using your app and I apologize. I feel fine but yes For two days after the shot I had a headache and I still have the chills but I came in with them so it's possible it is something else like menopause. Thank you guys for doing a phenomenal job.

– Still totally off-the-wall the way I came home. This is the most energy I have ever had. My family is wondering if they gave me steroids by mistake. This is not a joke I've never felt like this and I've taken multiple runs and nearly slammed into the house when I drove home. Thank you

Impaired work ability, Brain fog and Vertigo

5AU-26310-07425

– Relief at having the vaccine

– Headache and suddenly very tired in the mid-afternoon. So tired i fall asleep at computer. So i go take a nap, 20-30 min. Then back to work. Last few days.

– A day of vertigo so extreme i stayed in bed all day and could not work. Used the epley maneuver during the day (12 times) to effect relief which allowed movement and work the next day.

– Vertigo

– Some vertigo, better than yesterday

– Foggy brain

– Classic cold symptoms: headache, sore throat, cough, runny nose. Office visit

Weight bearing difficulty, Arthropathy and Loss of consciousness

5AU-26763-99069

– I am exhausted, I slept 12 hours then worked 2 hours and passed out again for 2 hours.

– Still really exhausted, could have slept most of the day!

– I don't know if it is related to the vaccine but it hurts under my left rib when I breath in deep.

– My left elbow hurts again (feels like tennis elbow) started about a week after I got first shot and worse when I woke up this AM. Cant even lift half full milk carton out of fridge. Not sure if connected but never had this issue before

– It's just the pain in my left elbow that feels like tennis elbow but having hard time lifting everyday objects.

– My left elbow is still in serious pain like I havent had before even with 6 shoulder surgeries. It feels like someone hit my elbow with a sledge hammer

– My left elbow hurts so bad I literally cant even lift a glass of water without so much pain and fear I will drop it. If I flex my wrist, its super painful, if I move my thumb, its painful. Basically everything is painful. I have had 6 shoulder surgeries and this is on the same pain level of shoulder dislocation before my final corrective surgeries. If someone could contact me thats great bc I want to know if others having this.

– My elbow is still messed up,hurts so bad I cant grab a cup & drink without pain & almost dropping it. Never had elbow issues until I got vaccine. I have had 6 shoulder surgeries so I know what real pain is and Im not exaggerating about this.

– My elbow is still messed up. Feels like its dislocated, but isnt. Only thing different was getting vaccine on L side both times.

Oxygen saturation decreased, Neuropathy peripheral and Confusional state

5AU-32214-13221

– Pain up the neck into the jaw on the side of the injection. Resolving after 8 hours.

– Severe fatigue. Could not walk without support. Could not climb or descend stairs. Lasted 24 hours followed by 50% improvement, but fatigue is still unresolved.

– Brain fog

– Dizziness, brain fog

– Chest pain/pressure, vertigo, brain fog

– Confusion, brain fog

– Brain fog, confusion

– Heart racing to 135 bpm while at rest. Oxygen dropping repeatedly to 94-95%, though it never dropped below 96% even when I had Covid in December. Diarrhea on a couple of days.

– Severe leg fatigue and cramping without exercise. Brain fog.

– Increased neuropathy, fatigue, and headaches.

Urticaria, Erythema and Pruritus

5AU-81078-56964

– Sore arm at site of injection

– Extreme itching up arms and legs. No eruption of hives on or under skin or around injection site. Dr said it was delayed reaction and put me on prednisone.

– Itching has spread to feet which turn blood red when Itching starts. Legs and knees continue to itch. Telephone call with dr. Gave me prednisone and have taken all of prescription but itching persists and just started on top of feet and back of neck

– Still continue to have itching from initial shot. Dr. recommended not to get 2nd Moderna shot and wait several months and get J&J shot

– Dermatologist said I have hives from 1st Moderna shot Visit to doctor

– Still breaking out in hives from 1st shot.

Bowel movement irregularity, Hypoesthesia oral and Paresthesia oral

5AV-17205-87907

– Recurring bouts of hives.

– Persistent diarrhea, it started the day after my shot and I have not had a normal bowel movement since.

– Swollen and painful lymph node in the armpit of the arm vaccine was given

– I have been lightheaded and dizzy. I am winded easily and extremely tired.

– I got COVID. Had extremely high temp., muscle and body aches, severe fatigue, sore throat and gastrointestinal issues.

– I am having numbness and tingling on the left side only of my tongue, bottom lip, lower cheek and jawline. I have been to the doctor and they are running tests but have not yet found the cause.

Gingival disorder, Viral infection and Gastroenteritis viral

5AV-23789-13042

– Light headed right after getting vaccine

– Cold virus

– Viral infection

– Viral infection since 4/17. Still have symptoms but took a Covid antigen test from home and it came out negative but usually when I get a virus I have symptoms for 4 weeks. Sometimes I have to get medicine from my doctor to get over it.

– Congestion, runny nose, sneezing and some coughing which is now starting to improve. Because of a shortage of antigen tests prior to Christmas could not test for Covid but my spouse had the same symptoms and he tested negative.

– Gum disease

– Stomach virus

Pharyngeal hypoesthesia, Lip pain and Pharyngeal paresthesia

5AV-73722-33383

– Numbness and tingling in throat. Lips felt like they was swollen but not and felt very numb like a bee sting

– Throat was sore

– Profuse sweating all over body. Felt hot and very tiered

– Right armpit very painful. Slight swelling no redness or knots. Lower spine painful difficult at times to work

– Lymph nodes still tender under arm into rt breast

– Lymph nodes under right arm and neck area continues to be tender

– Fever, cough, extreme running nose, chest congestion, headache, fatigue

Myofascial pain syndrome, Skin mass and Diverticulum

5AV-91577-61808

– Blood pressure higher than normal

– Hot flashes today, but temp only 97.2. I don,t normally get hot flashes, 75 yo

– Shortness of breath

– Rash is on the arm but goes beyond the site and is raised and has a few bumps. Reminds me of hives Ive seen. Never had hives before. Size is 4 inch by 8 inch. I called the clinic admin office 2 hours ago to find out if i needed to do anything. No one has called back yet

– Pain in shoulder above vaccine

– Mild joint and muscle pain neck, upper back and legs. Minor haedaches

– Sciatica increased pain level Chiropractic and myofascial relief

– Severe cramping in one foot. Gastrointestinal cramping.

– Skin bumps on back

– Slight cough, skin irritations (did not have before), itching eyelids, gastrointestinal problems Mentioned in tele visit

– Skin problems, headaches

– Weight gain

– A little dehydrated

– Shortness of breath, stomach

– Diverticulosis. In-patient

– Diverticuitis eas hospitalizef

– Sleeping

– Internal mouth sores

– Throat infection

– Tired

Nail candida, Onychomycosis and Skin discoloration

5AW-12004-69144

– swelling in my arm, about the size of my palm

– Last Wednesday, my left arm, the arm of the vaccine was turning red, swollen, itchy and sore. It got worse throughout the day. Called my doctor, he told me to ice it and take an antihistamine. This went on until Monday. Today, a little color is all.

– Around the end of February, some of my fingernails started lifting from my nail bed with a fungus underneath. I have not done anything different with my nails or taken any new medication. Im treating with an over the counter topical drops.

– Chest congestion

Motor dysfunction, Movement disorder and Loss of personal independence in daily activities

5AW-28902-19805

– Lymph node in the injection arm site is swollen and painful

– Hands and lymph node are swollen

– Swollen lymph node and fingers (unable to bend/make a fist) in my arm were I received the injection.

– Lymph nodes are swollen unable to fully use my left hand due to excessive swelling.

– Swollen lymph nodes and fingers

– My hands are continuing to swell up while Im sleep as well as when I walk for long periods of time. During these time I have experienced pain in my fingers in addition to not being able to bend my fingers.

– Swelling and stiffness in my hands more on the injection side. Making it difficult to perform some activities in the mornings.

– Swelling in finger (left hand site of injection), cause difficulty bending and grasping. In office visit

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