Their Stories

Skin discomfort, Alopecia and Arthritis

4.10.2021 – Light headed, heart palpitations, minor chest tightness

5.8.2021 – Headache, arthritis flare

5.25.2021 – Fatigue

11.13.2021 – Hair loss, new alopecia spot appeared. Minor inflammation on face. New, mild rash and skin itching/discomfort.

12.22.2021 – Increased frequency of headaches and increased joint pain- but not uncommon during this season on a typical year

1.4.2022 – Increased hair loss (history of alopecia triggered by immune modulating treatments)

6.6.2022 – Hair loss

Menopausal symptoms, Menopause and Mood swings

4.28.2021 – Sudden-onset nausea all day today (no possibility of pregnancy), unusual and no known cause

10.6.2021 – 3 weeks ago, I started getting hot flashes, insomnia, mood swings, & severe breast tenderness. Never had hot flashes before, except from Clomid 8 years ago. My doctor thinks it's early perimenopause at age 40. Not saying the vax caused it, but FYI!!!

4.7.2022 – Early peri-menopause symptoms are now DAILY. Having hot flashes every evening and all night long. My last menstrual cycle was 60 days long. This is all new since I got my vaccines.

Injection site discomfort, Dysphonia and Sleep disorder

2.18.2021 – Mild Dizziness

11.1.2021 – Minor soreness at injection site but not painful.

11.2.2021 – None

12.5.2021 – Sinus infection. I get a lot of sinus infections with fall allergies.

10.7.2022 – Elevated blood pressure

10.12.2022 – Hoarse, sore throat

10.19.2022 – High blood pressure is continuing, as well as sleep disturbances (which may be caused by the high blood pressure). The average is 20-30 points higher on the top number and 10-15 higher on the bottom than the month before I got the booster

Injection site mass, Pharyngeal swelling and Arthritis

4.13.2021 – I have had a flare up of my Arthritis and Fibromyalgia

4.20.2021 – I have Hoshimotos Thyroid Disease, Rheumatoid Arthritis, Psoratic Arthritis and Fibromyalgia. When my body is fatigued etc... they tend to flair up.

4.23.2021 – Is it normal to still have a lump on the vaccinations site?

5.1.2022 – I took the shingrix #2 vaccine and have been sick ever since. Ran a 102.8 fever, chillls, body aches, tiredness, swollen throat etc...

10.7.2022 – Arthritis

Palpitations, Chest discomfort and Back pain

12.24.2020 – I had covid 10/19.. Hospitalized 10/25 for 1 week.. Still have tightness in my chest, some heart racing, shortness of breath and cough. Day after shot I had a fever spiking over 100. Sharp pain in my back. Teeth chattering chills. Today's answers for the survey are for today. Much worse yesterday (day after vaccine).

12.26.2020 – Shortness of breath and cough

12.28.2020 – I still have shortness of breath and cough from when I had covid.

12.31.2020 – My 'new normal' of shortness of breath and cough after having covid-19

1.14.2021 – Cough

1.15.2021 – I am a Covid long hauler. I believe what I'm still experiencing is that and not after effects of the vaccine.

Visual field defect, Skin exfoliation and Psoriasis

1.13.2021 – Visual scotoma in last 24h, lymph node swelling under vaccine side arm, ocular muscle pain when looking off of center axis

1.29.2021 – GI cramping and upset, with no changes in diet or hydration.

2.5.2021 – Some mild bilateral pain in the breast and underarm area likely lymph nodes, but transient and hard to isolate.

4.9.2021 – GI upset, generalized cardiothoracic and upper extremity joint pain.

10.15.2021 – After subsiding for a week or so post-booster, returning joint pain in ankles, wrists, fingers and elbows similar to that felt in the week immediately following booster dose.

10.22.2021 – Joint pain, psoriasis (face), intermittent gi upset and pain.

11.5.2021 – Joint pain and psoriasis are worse

12.31.2021 – Recurring joint pain and dry facial skin patches across forehead and cheeks.

4.1.2022 – Chronic joint pain, general fatigue, scaly psoriatic type patches on face, low energy levels

10.1.2022 – Frequent joint pain in knees, ankles, elbows, hands. Seems to be random in intensity and location and present on more days than it isn't.

10.11.2022 – The night of the injection I had random myalgias that would move throughout my body. As I would change positions to alleviate the cramping, they would move to another muscle bundle. 2-3 sited sites were active at a time for 6 hours.

10.20.2022 – Unknown respiratory illness. Negative for strep, influenza, and COVID by rapid and PCR testing.

11.3.2022 – Possible thrush, unsure

11.12.2022 – Chronic sore throat and dry cough

11.18.2022 – Chronic cough and muscular pain at base of tongue.

Myositis, Muscle disorder and Nervous system disorder

2.27.2021 – Sore muscles and joints

3.4.2021 – I have inflammation going on in my muscles and joints.

3.11.2021 – Swollen lymph node in my armpit of the arm I got a shot in. Both arms, wrist and hands have tingling and going numb throughout the night and day.

3.14.2021 – The joints in my hands and wrists are swollen, numb and tingling. They are worse at night so I have slept hardly at all with the throbbing in my joints.

3.16.2021 – They severe joint pain in my arms, wrists and hands. My hands feel like I put them in fire.

3.16.2021 – I still have the swollen fingers they are numb, hot and tingling.

3.23.2021 – Joint and muscle pain in my wrists and fingers. Swollen fingers.

4.7.2021 – I still have numbness and tingling in my fingers and wrists

4.14.2021 – Joint and muscle pain in my neck , hands, fingers and wrists. Tingling and falling asleep and swollen fingers.

4.20.2021 – Still have the muscle and nerve issues in my shoulders, wrist and hands and fingers. Swollen fingers tingling and numbness.

Executive dysfunction, Sensory overload and Distractibility

2.16.2021 – wakefulness at 330 am, then fitful sleep

3.23.2021 – I would t call it brain fog but its adjacent. I feel like my executive function has been affected in the last week - Im easily overstimulated, struggling to find words or bits of knowledge.

6.8.2021 – 2 weeks of brain fog post 2nd dose (I am s/p COVID positive in January 2021). I also had break-through bleeding after vaccination but typically have no cycle secondary to IUD

9.9.2021 – Poor attention span, easily distracted, brain fog I had some mild symptoms like this when I had covid in January 2021 but it came back significantly for 2 weeks after my second Pfizer dose and sporadically every since.

3.9.2022 – Brain fog, trouble concentrating/executive dysfunction, migraine

Heat exhaustion, Trigger finger and Injection site nodule

12.2.2021 – Slight headache on two different days.

6.2.2022 – Feel like I have a knot at the injection site, if this is swelling then it is mild.

6.3.2022 – Slight pain in upper jaw as if I have been grinding my teeth but have not been grinding teeth since day 2 and 3 along with headache.

7.13.2022 – Heat exhaustion symptoms due to unusually high temperatures it' has taken about a week to fully recover. Currently under a doctor's care. Health visit to primary doctor

Blood alkaline phosphatase increased, Pericarditis and Appendicitis

3.25.2021 – Fever, chills, abdominal pain, diarrhea

3.30.2021 – At first my arm was sore for 1 day. On Day 9 the injection site was red and warm and about 4. On Day 14 i had fever(99.4), chills, abdominal pain, and diarrhea. It lasted for about 36 hrs. On Day 17 the injection site was larger and very red

4.30.2021 – On 26-Apr-2021 I had profound fatigue, malaise, and abdominal pain, similar to my previous rxns to both vaccines, except no fever. Continued through 27-Apr-2021, and was resolved on 28-Apr-2021. No remaining symptoms.

10.8.2021 – Appendicitis, pericarditis, nephrolothiasis

4.9.2022 – After each vaccination, I had the expected fever and body aches, but also severe abdominal pain. Since Jan 2022 I have had 2 episodes of fever and abdominal pain just like I had post-vaccination, but with ALP up to 2.5 x ULN. U/S and CT both negative

Blindness, Skin tightness and Photopsia

3.25.2021 – Gastrointestinal/lower abdominal pain and aching

3.30.2021 – Lower abdominal aching pain, feelings of either constipation or loose bowels

11.13.2021 – At one point I experienced symptoms of either almost passing out or a precursor to the partial complex seizures I used to experience: flashes of light in my field of view, loud buzzing/ringing in ears, loss of vision, then extreme fatigue afterward

12.3.2021 – Tightness in L armpit area (shot received in L arm).

11.12.2022 – Brain fog

Scalloped tongue, Anesthesia oral and Tongue ulceration

4.19.2021 – Covid tongue. Scalloping on the sides, painful ulcer under tongue, numbness and loss of taste. Teeth somewhat numb too

4.20.2021 – Tongue still isnt 100% but improving from yesterday.

4.21.2021 – Tongue is almost healed. Most taste has returned.

4.22.2021 – Tongue stillNot back to normal. Getting kinda worried about it

4.23.2021 – Tongue tip still not regained all taste or sensation. Cotton mouth behind lips.

5.9.2021 – Throat and chest sore from coughing yesterday

5.13.2021 – I think Ive lost some taste sensitivity on my tongue.

5.14.2021 – Lost of taste on part of tongue

Tongue movement disturbance, Middle insomnia and Sleep disorder

6.16.2021 – I had a mild sore throat when going to bed and woke up with the most painful sore throat I have ever had in my life. I couldn't even move my tongue

6.18.2021 – Stuffy nose

6.19.2021 – Intense coughing

6.20.2021 – Stuffy NOSE

6.28.2021 – I've gotten very sick in the past few days. Constant headaches, neck and back pain I've been bedridden and practically unable to sleep

7.5.2021 – I was bedridden with a high fever, constant head, neck, and shoulder pain, a lack of appetite, and general suffering for an entire 5 days. I got the flu

Respiratory depression, Blood glucose fluctuation and Limb mass

4.22.2021 – Yesterday, the day after the vaccine, I had bad dizziness. Called my doc as instructed on the cdc website. She ignored the call. I tested my blood sugar repeatedly and found that it was low, then high, then low, and so on. This was in a span of 10 minutes between checks. It went on for a couple of hours. I was also dehydrated. So, i drank a gallon of water. The situation finally stabilized.

4.24.2021 – Blood sugar is elevated

4.26.2021 – My spouse and i are both having the following symptoms - depressed breathing, dizziness, nausea, ringing in ears.

4.27.2021 – Metallic taste in mouth, loss of taste, dizziness, excessive gas, somewhat depressed breathing

5.12.2021 – Chest congestion

5.13.2021 – Dizziness and eye redness

6.8.2021 – Vertigo worsened

8.11.2021 – I now have a lump in my injection arm shoulder joint. Orthopedics

Eye disorder, Vitreous floaters and Visual impairment

3.17.2021 – Last night at dinner time I developed a floating spot on my right eye which is still here today. Not sure it is related but this never happened to me before.

3.18.2021 – The spot floating in my right eye is still present. Again this is new to me but not sure it is related to the shot. I will see a doctor if it does not clear by the weekend.

3.19.2021 – Eye still a problem. Will see an eye doctor next week to check it out. Again it happened about 24 hours after 1st shot. But not sure it would be a related event.

3.20.2021 – Eye still the same.

3.29.2021 – As previously noted I developed a spot on my eye. Since last update I developed a 2nd spot. Not sure it is related to the shot but I never had this before the vaccine & it happen about 26 hours after the shot. Eye doctor

4.12.2021 – I had the shot a week ago. I had sore arm fatigue headache and itching on the 3rd day.

Toe amputation, Foot operation and Stent placement

9.21.2021 – Nerothopy which causes my right leg to drag and the pain is so bad ialso suffer from a botched left hip replacement both knees bone on bone for 3 or 4 years and Vericose veins. Waist down i suffer tremendously and need someone to help me with chronic Doctor appointment

3.25.2022 – Surgery on right foot as I had cross over's and they amputated the second first toe. 6 weeks recovery then they doing the other foot then another 6 weeks. Another surgery to remove the other stent.

Pneumonia, Brain fog and Abdominal pain upper

5.11.2021 – 10am shot, 3pm muscle ache in biceps, 4pm fog cant think strait.

5.12.2021 – Painful cough

5.13.2021 – Stomach ache maybe not related.

5.14.2021 – Insomnia

5.19.2021 – Chest, left shoulder and lower back. Lower back for the last three days. Chest and shoulder just recently.

6.11.2021 – May not be related but I came down with apparent aspirated pneumonia after anesthesia during routine colonoscopy. May not be related to vaccine

5.11.2022 – Caught Covid - probably omicron - symptoms were no worse than a bad cold.

Food intolerance, Gastrointestinal pain and Peripheral coldness

2.27.2021 – Last night my feet were like ice. Wrapped them in heating pad and they still wouldnt warm up. Had difficulty sleeping last night.

3.12.2021 – Digestive disorder.

4.2.2021 – More digestive issues, more frequent migraines.

11.1.2021 – Balance issues

12.5.2021 – Pain throughout digestive system

1.30.2022 – Digestive issues. Indigestion, upset stomach, food sensitivities. Goes away and returns.

5.1.2022 – Sore throat, swollen glands, low grade fever, painful neck from jawline down, feeling unwell.

Gleason grading score, Reproductive tract procedural complication and Procedural intestinal perforation

3.14.2021 – Slight bruising

3.16.2021 – Irritated eye

3.17.2021 – Cold sore on lip and irritated eye (both left)

6.13.2021 – High blood pressure

9.12.2021 – Low grade prostate cancer (gleason 3+3) diagnosed mid-May. Probably long-existing.

11.22.2021 – Some sneezing and a little coughing.

4.20.2022 – earache, right side

5.11.2022 – Lower back pain

9.22.2022 – cough

10.25.2022 – Sneezing, very mild sore throat. Covid antigen tests all negative

11.2.2022 – Trigeminal neuralgia episode, been having them for years, almost certainly not related to covid vaccine.

Aortic stenosis, Ejection fraction decreased and Multiple sclerosis

2.18.2022 – Diabetes controlled by diet and exercise (a1c = 5.5), mild aortic stenosis with Ejection velocity of 2.0 M/S

3.24.2022 – I have a cold (uri). Home Covid test negative. Sneezing, coughing, myalgias. No fever or shortness of breath. Actually I'm feeling better today than yesterday.

3.31.2022 – Allergies (seasonal) and/or gradually resolving URI symptoms. Covid tests negative x2, normal (99%) O2 sats, no fever. Nasal drainage, dry cough, sneezing, laryngitis all gradually getting better. Scams x 8-10 days.

Cystitis, Hypersomnia and Ear discomfort

3.10.2021 – Just sore on arm where injection went in

3.13.2021 – Just my knees hurt.

3.14.2021 – The headache might be sinus problems from allergies

3.16.2021 – I ache and slept all day

4.5.2021 – The night of the injection I had a low fever, chills and was real tired.

5.12.2021 – My sinuses are bothering me, my ears feel full, have a drip down my throat & scratchy feeling in my lungs. It may be allergies. I have a condition called vestibulitis & it has flared up! Bladder infection too. I am a mess.

Hypersomnia, Sleep disorder and Muscular weakness

2.23.2021 – No

2.26.2021 – Congested nose!

2.27.2021 – Slept entire day....20 hours

3.8.2021 – More fatigue, migraines, some dizziness; I had a COVID test and it was negative.

3.15.2021 – Severe heartburn

3.16.2021 – Severe leg pains and weakness

3.17.2021 – Night sweats. ( not menopausal)

3.21.2021 – Slept about 18 hours

4.19.2021 – Extreme fatigue and sleep disruption which is causing foggy thinking

10.9.2022 – Extreme overall weakness

10.10.2022 – Overall weakness still

10.11.2022 – Extreme overall weakness and malaise

10.13.2022 – Very tired; overall weakness

10.14.2022 – Weakness

10.22.2022 – Weakness and exhaustion

Intervertebral disc disorder, Hyperesthesia teeth and Nodule

4.13.2021 – Blood pressure is up

4.29.2021 – A not behind both ears. Started last Saturday. Right side not larger then left with tenderness at knot and going down right side of neck. Also smaller pea size knot at base of scull, tederness has moved towards front of right ear close to the face ja

5.27.2021 – A week into 2nd covid vaccine my upper and lower back molars were a bit achey n sensitive to heat n cold foods n drinks. Almost to 4th wk. They are feeling better.

8.5.2021 – I have disc problem with my back. My right leg gave out on me at one point. And lower right leg was numb. Both is now getting better. Now see a nuerosurgeon

Groin pain, Cardiac flutter and Pain of skin

3.16.2021 – Mild to moderate Chest pain

3.17.2021 – Mild chest pain

4.7.2021 – Rapid heartbeat, fever

4.8.2021 – Sore throat, sensitivity/pain to touch over body, cough, light headed

4.9.2021 – Skin is painful to touch, dizzyness, light headed, shortness of breath, dry cough

4.11.2021 – Groin pain

4.12.2021 – Chest flutter/dry cough, continued chest pain/discomfort

5.11.2021 – Chest pains, exhaustion, loss of sense of taste, headache Scheduled Appt but booked for weeks

5.24.2021 – Continued chest pains and leg pains Have to wait 2 months for first available doctor appointment

7.9.2021 – Neck pain and hand weakness

4.6.2022 – Insomnia

Odynophagia, Quarantine and Brain fog

1.29.2021 – Lymph node swelling under jaw on same side (L) ) as shot.as

1.30.2021 – Lymph nodes under jaw are resolving.

2.1.2021 – Gladular swelling, some pain in swallowing both on L side.

9.15.2022 – Brain fog

10.10.2022 – Minor sore throat, runny nose. I took a home Covid test today, 10/10/22, and tested positive for Covid.

10.26.2022 – Light symptoms started 10/25, home tested positive for COVID on 10/26. I suspect it is Paxlovid rebound. I am quarantining for 5 days. Will wear mask for 10 days from start of symptoms.

Hepatic enzyme increased, Painful respiration and Pulmonary pain

1.13.2022 – Pain in back LL side. Let flank pain. Chest pain/ pain in lungs when breathing. Deep Burning, throbbing, constant. Shaking Sweating Shortness of breath Racing Heart Dizziness Arms/hands/ Legs weak, Appointment scheduled.

1.14.2022 – Pain in lungs when breathing. Pain in Lower R flank, pain in ribs, pain in legs that fell like big clots moving, pain in back between shoulder blades.

1.15.2022 – Hives on face and chest, feeling flushed, sweating, pain in chest, pain in back. Right flank pain.

1.16.2022 – Right flank pain, chest pain, leg/muscle cramps

1.17.2022 – Flushed swollen face with hives burning to the touch.

1.18.2022 – red, flushed rash over face and torso. Pain in leg muscles. Sweating

1.19.2022 – Flushed red swollen face, Right flank pain

2.9.2022 – Elevated liver enzymes for 3 weeks. Hives on face for 3 weeks.

Cyst, Swelling and Tinnitus

1.16.2021 – Yesterday headache and fatigue, I hadnt registered yet with this

2.7.2021 – Yesterday much of the pain was in the neck, shoulders, and upper back. Now today thats much less but on the right side (incidentally the side I received my injection, the upper back side of the shoulder in the lower neck muscle has a painful lump. It resembles a cyst and is sore and is unde my brastrap. Not sure if this is related.

2.8.2021 – More swollen and tender now on back right neck shoulder area. Think it is probably a lymph node.

2.12.2021 – Still swollen lymph node and for the last week tinnitus in my right ear.

Ataxia, Balance disorder and Anxiety

1.24.2021 – Arm pain with movement

3.1.2021 – More fatigue than usual last few evenings

3.16.2021 – More fatigue earlier in the evening, and tired when awakening.

3.30.2021 – More early evening fatigue

4.21.2022 – More fatigue than usual 2days after vaccine

4.24.2022 – Anxiety

5.4.2022 – Increased itching, less energy

5.16.2022 – Increased itching and rash

5.27.2022 – Increased fatigue several days. Pruritis (increased itching.

7.24.2022 – Continuing ataxia

10.19.2022 – Severe itching has continued, and also increased balance and coordination problems. I have had CT scan, MRI (brain) which were wnl. Have had lab work, so far normal limits. I have seen Dermatologist, Allergist, and Neurologist, and so far no answers!

Viral infection, Dysphonia and Productive cough

3.8.2021 – Just had one sharp pain in my lower arm for a second and had a tiny headache for just a minute. Feel great.

4.1.2021 – The rash was new. I was there this morning and seems to be gone now. Was on both of my arms.

6.28.2021 – I am in the 8th day of a pretty bad viral sign of/long infection... I got tested for covet on the 2nd day and had a negative test.. Energy coming back today but I'm still very stuffy, horse and have some stuff coming up from my lungs. Covid drive-up test

Skin warm, Urticaria and Pruritus

4.10.2021 – I have been having hives lately all over my body. It is very itchy and skin feels hot. The only way it goes away is by taking Zyrtec D which last 24. Once its effectiveness expires the hives reappears.

4.17.2021 – Hives are tremendously all over my body and very itchy. I am taking antihistamines every 2 days to relieve my misery.

6.5.2021 – I developed intense hives all over my body, and everyday that did not go away unless I take antihistamines. Went to she an allergist doctor who prescribed me antihistamines.