Their Stories

Multiple sclerosis, Hypogeusia and Memory impairment

4.6.2021 – I have been have extreme Multiple sclerosis fatigue

4.27.2021 – My multiple sclerosis has been symptomatic since the day after the second dose. The fatigue and numbness seem to be diminishing every day.

5.4.2021 – My multiple sclerosis has been generally aggravated.

5.12.2021 – A lot more memory issues relating to my MS. I stopped taking My immunosuppressive drugs so I could get vaccinated. I have not restarted my MS drugs

5.18.2021 – MS related symptoms of a personal nature

2.19.2022 – Sick for approx 3 weeks. Sinus congestion, sore throat, very low energy, no fever, diminished sense of taste. Covid tests not available at the time. This was first three weeks of 01/2022.

5.23.2022 – Fatigue. I assume it is related to my multiple sclerosis.

Neuralgia, Arthralgia and Fatigue

1.30.2021 – Mild fatigue but not inconsistent with cenotaph/immunotherapy (IOW not necessarily related to vaccine)

2.19.2021 – hip pain--probably unrelated (either arthritis or related to cancer treatment)

2.26.2021 – Note that I had pain before vaccine--not related

2.28.2021 – Some of these pre-dated vaccine; probably unrelated

3.1.2021 – Pre-existing; probably unrelated to vaccine

3.3.2021 – Note that above were pre-existing; probably unrelated to vaccine

3.4.2021 – Pre-existing--probably unrelated to vaccine

3.5.2021 – Pre-existing, probably unrelated to vaccine

4.2.2021 – Nerve pain in arm/hand (ulnar nerve?)

Motion sickness, Concussion and Energy increased

2.3.2021 – Morning after shot, bright rash on upper chestlasted about 4 days;2nd morning after shot, had red splotchesand swelling 3 inches below injection which lasted 4-5 days

2.10.2021 – Swollen red itchy arm approx 2 inches below injection site. Also some diarrhea experienced. Area appears to be decreasing to splotchy, more than bright red. Much thanks to DH doctor who called me. DH doctor phone call

2.25.2021 – Drippy nose

2.26.2021 – Restless during nightly sleep

2.28.2021 – More energy today

3.1.2021 – Sleeplessness

2.24.2022 – Had a fall w/concussion 3 weeks ago. Vertigo still occasionally; also some car sickness. Improving; headaches have decreased.

Wheezing, Productive cough and Anxiety

3.18.2021 – Withdrawal from gabapentine with anxiety, chills, lack of appetite

5.13.2021 – Vomiting, diarrhea and fever for two/three days. Very weak

8.12.2021 – Chest pain left side radiating to neck and underarm. Seen in ER. Heart ok after tests. Referral to primary

10.6.2021 – Joint pain can be overuse

10.28.2021 – Congestion, wheezing, increased coughing

11.4.2021 – Cough wheezing congestion. On prednisone and antibiotic

3.31.2022 – Full body rash

9.30.2022 – Persistent productive cough with wheezing, sneezing and tight chest.

Vitamin B12 deficiency, Vitamin D deficiency and Hiccups

3.31.2021 – Sinus pressure behind eyes

4.1.2021 – Sore throat and swollen neck glands

4.2.2021 – Light headed

4.3.2021 – Stuffy nose

4.4.2021 – Sore throat, runny nose

4.14.2021 – Exhaustion and flare up of fibromyalgia

4.28.2021 – Sinus pain, nosebleed

4.29.2021 – Toes are swollen and red.

4.30.2021 – Toes swollen, feet feel numb.

5.2.2021 – Congestion, nosebleed

5.3.2021 – Swollen feet and legs with pain

5.11.2021 – Exhaustion

6.3.2021 – Fibromyalgia flare, joint pain

6.11.2021 – Migraine headache, severe Fibromyalgia flare, muscle tightness, joint pain.

10.28.2021 – Hiccups

10.28.2021 – Psoriasis flare that has not subsided Office visit with PCP

11.11.2021 – Psoriasis flare up

4.27.2022 – Vitamin B12 & Vitamin D deficiencies Primary care Doctor visit

Body temperature increased and Pyrexia

1.24.2021 – No

2.21.2021 – Last night my temperature got as high as 102.92, but by morning had dropped to 100.04, then later to normal

2.22.2021 – I had a low grade fever all day yesterday ( 99.5-100), most of the day ,but today it is back to normal.

12.5.2021 – Had a strange fever for about 24 hours with no other symptoms. To be safe, I got Covid and flu tests yesterday. I have not gotten results back yet.

6.26.2022 – All these symptoms happened the two days after my shot on June 19 and 20. I am ok a week later, but I have been very I'll after my last three shots. The only one I didn't have a severe reaction to was the very first one in Feb. 2021

Body temperature fluctuation, Tendon pain and Lung disorder

3.3.2021 – I forgot to say yesterday that I had covid last March and have had longhaul symptoms since.

3.5.2021 – I had a fever last evening but was locked out before I could report. It was low grade.

3.8.2021 – Ive had temperature dysregulation since getting covid March 2020

3.29.2021 – On the evening of the 23rd I had joint and muscle pain, fatigue and low grade fever until 3/26/21

3.24.2022 – I got COVID again. My lungs deteriorated even tho I didn't get sick in my lungs.

10.28.2022 – Muscle and tendon pain

Rash pruritic, Insomnia and Pruritus

1.7.2021 – Had reaction minutes after receiving. Was given 50mg Benadryl via IM Where I got vacinnr

1.13.2021 – Doctors visit

1.21.2021 – Rash all over back neck stomache hips legs chest. Keeps getting worse and worse.

1.28.2021 – Rash on legs neck chest back stomache hips. Very very itchy

2.4.2021 – Rash is everywhere now. Non stop itching. Cant sleep. Even neck itches so bad that if effects my breathing. This is horrible. And just gets worse.

2.11.2021 – Rash everywhere Was out on steroids

2.18.2021 – Started second dose of steroids this week.

4.8.2021 – Rash. Itchiness

Increased upper airway secretion, Oropharyngeal discomfort and Cardiac flutter

4.1.2021 – Thirst for water, mild sore throat, mild chest congestion

4.2.2021 – mild sore throat, mild chest congestion

4.3.2021 – mild sore throat

4.5.2021 – mild chest congestion

4.21.2021 – some heart flutters, mild tingling in lower lip

4.22.2021 – mild throat discomfort, mild chest congestion

2.13.2022 – Chest congestion, mucous in throat

2.14.2022 – Mild chest congestion, mucus in throat

2.17.2022 – Throat discomfort

3.11.2022 – Recurring mucus in throat

3.25.2022 – Pain in right shoulder

8.12.2022 – discomfort in chest area, heartburn, abdominal pain, throat irritation, coughing, fatigue

Ventricular extrasystoles, Specialist consultation and Atrial fibrillation

2.17.2021 – slightly sore at injection site

2.19.2021 – Last night, 36 hours after the first dose I had atrial fibrillation. This is the first time in over two years. Can't say for sure that the vaccine is the reason but it sure seems like it. The event lasted about 3 hours. There have not been any other significant events. Not certain at this point whether I will get the second dose. I feel Ok now.

3.31.2021 – Having SVEs and PVCs with more frequency. Didn't have thise before the first vaccine shot. For that reason will not be taking the second shot in the near future. Went to see my primary care physician and also cardiologist.

Erythema of eyelid, Periorbital swelling and Injection site urticaria

3.24.2021 – Had some loose stools. I also noticed an area under my left eye thats a little swollen, red and itchy. The skin burns a little. Not sure exactly what that is from.

3.25.2021 – Still some swelling under my left eye And still feeling a little off in general. But nothing extreme.

3.26.2021 – Just red puffiness under my left eye

4.5.2021 – Raised hot welt on arm where I received injection

5.10.2021 – Continued stomach issues and datigue

5.24.2021 – Still tired , occasional nausea, and stomach irritation/ diarrhea

5.31.2021 – Still get nauseous feeling in my stomach from time to time and still get tired

7.19.2021 – Sensitive in my right front side area near waist and continue to be tired

Joint noise, Feeding disorder and Hypoacusis

4.21.2021 – Light headed ness exhausted. Severe dry mouth

4.28.2021 – Severe dry mouth. I have dry mouth normally but this severe.

4.29.2021 – Severe dry mouth

5.3.2021 – On a good unexpired note. My cough and shortness of breath for 2 1/2 yrs just about gone since getting my vaccine

5.11.2021 – severe vertigo & nausea sat-Mon.Unable to eat/drink water.today(tues) i went to work.In bed 3 days.I do have vertigo. was the worse ever in 18 yrs. my Homeo remedies usually end it,not this time. One trigger is medications. Amoxacillin 1st trigger

5.18.2021 – vertigo still having but better; joints now clicking, vomit slowed way down. Have throw up pan with me at work when i went back to work last Tuesday through today. Extremely tired still. Work ok but at home unable to do any but rest

5.25.2021 – Plugged up ears getting worse. Sounds muffled. Vertigo still comes And goes headache worse some days Joint pain comes and goes

6.1.2021 – Ear blocking is still there. worse when I bend head down or up and mild headache starts, gets the start of vertigo-mild. put head in normal position and stops, ears stay blocked. Sounds like under water. Still fatigued ,no stamina. finger joints pop

1.26.2022 – my balance is off - difficulty keeping balance walking but sitting ok or lying down is ok

1.27.2022 – Balance

1.28.2022 – balance

2.18.2022 – Extreme fatigue

Parosmia, Paresthesia and Asthenia

2.10.2021 – A horrible smell in my nose

2.12.2021 – Sneezing

3.11.2021 – Headache current has last 3 days.Tingling to burn neck to finger tips that started with the headache.

3.16.2021 – Continued dull headaches and tingling in my shoulders and arms.

3.25.2021 – A constant headache that at times is painful enough to take a Tramadol for minimal relief. Tingling in my extremities causing weakness. Personal physician

5.11.2021 – Long lasting headacheTingling in my extremities

Telemedicine, Injected limb mobility decreased and Irritability

3.12.2021 – Grumpy/agitated

3.13.2021 – Grumpy

3.16.2021 – Couldnt sleep since 3 AM.

3.23.2021 – Hives on my vaccination arm, on my opposite forearm, on my vaccination side of my body upper leg, on my back and bottom. It came and went off and on for three days. Benadryl helped some. A video appt with Doctor confirmed it.

4.6.2021 – My right arm is itchy and sore. My right leg aches. I feel agitated.

9.7.2021 – My right arm where I had the injection is causing trouble. Im having difficulty lifting my arm. This has been going on for a couple of weeks and happened early on after my injection first happened.

Anemia, Pain in extremity and Headache

3.14.2021 – I have anemia and just finished period so the headache may be from those factors.

3.16.2021 – May be skewed by anemia.

3.18.2021 – May be skewed due to anemia

4.5.2021 – I am also expectes to start my period this week and am anemic, so that may skew results.

4.6.2021 – Today was my first day of period, so along with the anemia, results may be skewed.

4.7.2021 – I do have anemia and it is my period week. Results may be skewed.

4.8.2021 – It is period week and I have anemia, so data may be skewed.

4.10.2021 – It is towards the end of my period week and I have anemia, so data may be skewed.

4.11.2021 – Last day of period

4.19.2021 – My legs are still sore, but again may be from anemia.

Hypoacusis, Ear congestion and Abdominal distension

12.29.2020 – Improving. Just tired / aches

10.3.2021 – Sweating; just really off for 18 hrs now; needed to stay home but had to work as a private RN today- so I will check that I went to work. But quiet day

10.11.2021 – Very tired

10.18.2021 – Low energy in general. More than usual.

3.29.2022 – Severe inner ear hearing loss 65-70% left ear only with feeling of fullness. MRI pending. Symptoms became uncomfortable last few months (after booster). I did not associate this with vax Right side test was 25% age related with no discomfort. My Doctor's office RE: left ear & then audiologist

4.14.2022 – Had to leave work.

4.15.2022 – Intermittent abdominal discomfort / bloating

Tinnitus, Vertigo and Asthenia

3.2.2021 – An he. After my shot I felt nausea and weakness. It lasted about an hour and I have felt good since

5.14.2022 – vertigo and tinitus. These symptoms have started after my 2nd Covid-19 vaccination. I don't know if there is a correlation. The vertigo seems to have gotten temporarily worse after each of the 2 boosters. I am doing physical therapy for the vertigo

5.18.2022 – Ringing in my ears and vertigo

5.25.2022 – Tinitus in both ears. I have also experienced vertigo, but it was helped with physical therapy.

6.8.2022 – The tinnitus is getting worse

7.27.2022 – Still have tinitus and some vertigo, but am very weak.

Injection site scab, Gastric ulcer and Adverse drug reaction

3.13.2021 – None

3.16.2021 – There is a white circle around the injection site

4.2.2021 – Sinus pressure, most likely from pollen allergies. I get this fairly often

4.9.2021 – My arm s still sore and there is a small scab at the injection site that continues to return

4.23.2021 – I feel feverish sometimes and another weird feeling in my head and chest I cant really describe. Maybe like pressure

6.11.2021 – Regular stomach painMy arm is still sore to the touch, but not badly

11.4.2021 – Shoulder and neck pain from yesterday is slowly getting better

11.7.2021 – Stiff neck and shoulders

11.8.2021 – My shoulders and neck and back are sore

11.15.2021 – My neck and upper back and shoulders are very sore and have been since a few days after the booster. I get a daily headache, sometimes dizzy

11.22.2021 – Very sore neck, shoulders and back Sometimes feverish Strange tight and sore feeling in my throat

12.8.2021 – Back and shoulder pain

2.1.2022 – I didn't feel well at all

Axillary mass, Limb discomfort and Body temperature increased

1.14.2021 – Arms feel heavier, and I'm feeling a bit tired but I got the vaccine during my lunch time and didn't think to bring a snack. It could easily just be hunger.

2.10.2021 – Significantly swollen lymph nodes, mostly on the side where I got the vaccine. Noticed the lump in my underarm a couple of nights ago when trying to sleep and putting some pressure on my arm. Lymph node in neck a little swollen too. The other side appears normal. But I've had to sleep on my right side to avoid irritating the swelling of the lymph node and the swelling at the injection site.

2.6.2022 – I got COVID 19 in January 2022. I developed a sore throat, cough, slightly elevated temperature but never hit 100*, congestion both nasal and chest, sneezing, headache, body access, and fatigue. No loss of taste or smell. I have since recovered.

Arthropod bite, Swelling and Feeling hot

8.31.2021 – Lymph node above collar bone & a stuffy/runny nose

9.1.2021 – I have had a headache since my second dose that was three days ago . I woke up with bumps that look like bug bites around my arms/hands i dont know if its a bug bite or if its from the vaccine woke up with them the day after VERY itchy

9.4.2021 – Still have bump above my collar bone

9.7.2021 – Stomach just feels upset and I feel hotter/warmer than usual but no fever

11.28.2021 – Arm hurts like when I first got vaccinated but only occurs randomly. I'm also very itchy and still have lymph node two of them to be exact.

Food intolerance, Sjogren's syndrome and Irritable bowel syndrome

3.29.2021 – Persistent itching in my neck, scalp abs now arms. IBS increased as well as sleeplessness and fatigue. I cannot discern whether it is youd, sjogrens or arthritis since the symptoms started prior to the first vacccine. Booked Dr. who manages my anemia for blood tests. Also called to see my rheumatologist.

4.12.2021 – Back pain

7.13.2021 – Stomach related - having surgery in August. Unlikely related. I have mixed connective tissue along with multiple surgeries. Doctors officer, multiple procedures with abesthesia

10.11.2021 – Chronic fatigue, migraines, sciatica, skin rashes, confusion & lack of taste, smell with decrease in vision on left side, intermittent breast pain on left and increase in sensitivity to foods, meds & pollen. I have 5 mixed connective disorders. PCP & specialists in office

Musculoskeletal stiffness, Nausea and Pain in extremity

1.21.2021 – When I woke I my arm felt like it had a metal plate in it from my shoulder to my elbow. After several hours of moving it around., my arm is now sore

1.22.2021 – When I first woke up I felt odd.. my nose was daring a lot like I was getting a cold.. a bit nauseaous just feeling odd. After getting washed and moving around everything went away and now I feel fine

1.23.2021 – While I was sleeping last nite, my throat was sore and my arm hurt but after awaking and getting dressed all the symptoms went away and I feel fine

Pollution, Osteoarthritis and Wheezing

4.6.2021 – Well I have Asthma and air quality is real bad today so anything I feel today so far is just that so far not from the 1st dose vaccine

4.7.2021 – Intermittent wheezing but air quality is bad today and I do have Asthma so dont know if its related to the vaccine necessarily

4.8.2021 – I kind of hurt all over but I really can't tell if it's from the vaccine or that I have osteoarthritis throughout my body but feels more painful today

4.9.2021 – Im still very tired feeling and sleepy just cant seem to nap though

4.10.2021 – Not today thx

4.13.2021 – Could be due to allergies today but who knows for sure

5.4.2021 – I just got this vaccine about 45 minutes ago so ask me these questions tomorrow but later on today like tonight may be different though

5.5.2021 – Chills come and go I dont feel feverish but who knows for sure as I have other issues not related to vaccine going on

5.6.2021 – The chills come and go so I didnt check box because it could be my A/C I dont have a lot of pain or muscle pain but I still have it though

5.7.2021 – No thanks

5.8.2021 – Nope

5.9.2021 – I have lower back pain today

5.11.2021 – No

Pain management, Cardiac failure congestive and Feeling of body temperature change

5.9.2021 – Back pain, neck pain, heavy breathing, slightly off balance when standing or walking , feeling like my body is very heavy, alternating feeling really hot where I'm sweating and feeling so cold I'm shivering/ shaking uncontrollably

5.12.2021 – Along with headache since my injection, back of head extending down back of neck continues

5.13.2021 – Headache at back of head going down onto back of neck continues

5.14.2021 – Headache going down back of neck continues

5.15.2021 – Still the same

5.23.2021 – Headaches (back side) continue daily and down the back of my neck. Right upper arm, site of injection, full ache in muscle, outer and inner side of arm.

5.29.2021 – Continuous headache 24/7, mainly back side on left. Goes into neck and stretches to the entire left side of my head. Causes ear pain and eye pain on the left. Also somebody aches. Being treated by my PCP, and have a brain MRI scheduled for June 11th. Appt with PCP

1.22.2022 – I believe my symptoms are related to my J & J May 2021. Have had continuous symptoms and appts with multiple MD's. Seeing Neurologist at (b)(6) I in (b)(6), Ohio

1.23.2022 – As I reported yesterday, symptoms ongoing from J & J fromm May 2021. So serious side affects from my Moderna booster.

1.24.2022 – Due to adverse reaction to J & J May 2021

1.25.2022 – All symptoms related to J & J vaccine May 2021

1.26.2022 – All symptoms related to J & J vaccine from May 2021 In last 8 months, seen by PCP, Pain management, PT, and local Neurologist. Multiple procedures. Now with (b)(6) Neurology (b)(6)

1.27.2022 – Reported previously

1.28.2022 – Previously reported due to J & J, not Moderna booster

Bone pain, Injection site discomfort and Parosmia

1.4.2021 – Brief sweating episode ( approximately lasted 10-15 minutes after 1 hr of being vaccinated), used fan to cool off; loose stool ×2; joint pain only in the left shoulder;

1.5.2021 – Still slightly sore at the injection site

1.23.2021 – Scratchy throat only with headache episode

1.29.2021 – Some discomfort/pain in the left arm at the injection site. No reddness or swelling.

1.8.2022 – Loose stool, but not full diarrhea;

1.13.2022 – Very sleepy, more than yesterday

1.14.2022 – Feels like want to sleep at all times

2.18.2022 – Very tired, bone aches

7.8.2022 – Unable to tolerate smell of certain foods, especially smell of frying

Autoinflammatory disease, Incisional drainage and Procedural site reaction

4.15.2021 – Rheumatoid arthritis.

4.16.2021 – Ear pain

4.18.2021 – Severely inflamated cyst near shoulder on same side as injection site.

4.19.2021 – Surgical scar (epidermal cyst) near the injection site, potential abscess forming.

4.20.2021 – I&D in abscess on left shoulder Ambulatory Surgical - I&D

4.21.2021 – Significant pain and inflammation in surgical site

4.22.2021 – Surgical site pain

5.20.2021 – Acute inflation of the upper chest, shoulders and ribs.

5.27.2021 – I am having a severe auto-inflammatory episode in my upper body (shoulders, armpits, chest wall, ribs). Unprecedented in magnitude, level of inflammation, pain and duration of the episode relative to 12 years of having RA and HS. High dose of steroid

6.3.2021 – Continued inflammation of joints, axilliary area and ribs. Taking a 2-week course of prednisone and anti-inflammatory medicatiion. Reactive arthritis assumed as the source of the inflammation.

6.10.2021 – The auto-inflammatory response caused a severe RA flare, inflammation of the rib-cage and of a cyst in the back. Surgical intervention was required for the cyst, in addition to prophylactic antibiotics, and oral and injected steroids.

6.17.2021 – Continued auto-inflammatory reaction ribs, shoulders and hips. Improving with Oralia be injected steroid treatment.

Hot flush, Productive cough and Pruritus

2.15.2021 – hot flashes

5.15.2021 – I have had a very bad itch, on my scalp. I had a hair salon check, and no bugs were there. Finally, after beginning to take allergy medicine, Zirtec, the itching subsided.

12.9.2021 – Heavy chest congestion, lots of phlegm. No fever, and I have tested negative for covid with a lateral flow test.

4.19.2022 – The symptoms, after the booster were very strong, much more than after any others. I has 101 fever, for 3 days, and body aches and pains.

Body temperature increased, Heart rate increased and Abdominal discomfort

3.6.2021 – I feel like I am recovering from some kind of serious illness.

3.18.2021 – The grade fever, intestinal distress, general malaise.

3.25.2021 – Upper right quadrant abdominal pain with some temperature elevation and increased pulse rate.

4.4.2021 – Some fever break type sweating

5.12.2022 – Mild sore throat and congestion I suspect allergies.

5.26.2022 – Sinusitis, swollen lymph glands, sore throat, and general malaise. Negative Covid test.

10.20.2022 – Persistent low level stomach pain. Low energy.

Soft tissue disorder, Radiculopathy and Eyelids pruritus

6.2.2022 – Pain immediately on injection L shoulder/upper arm up into neck and shoulder blade feels like hit bone or nerve, injection was higher on arm than past ones, hurts to move shoulder, hurts even when still, limited to injection site/shoulder/neck

6.4.2022 – L upper arm shoulder scapula neck still hurt new calf spasm woke me

6.5.2022 – L shoulder, scapula, neck pain

6.6.2022 – L shoulder scapula neck pain hand numbness

6.7.2022 – L shoulder scapula neck pain hand numbness; facial swelling on awakening then peels

6.8.2022 – Shoulder scapula neck pain hand numbness

6.9.2022 – Shoulder neck arm scapula pain hand numbness

6.16.2022 – Burning itchy peeling face/neck rash, swollen eyelids,numbness stiffness L hand. Neck, back and scapula pain.

6.23.2022 – Neck spine scapula shoulder pain, arm hand stiffness tingling marked, arm hand worst on awaking, spine scapula worsen over day, Eyelid facial swelling on awakening, itchy eyelid facial skin peeling burning over day. Hearing seems worse. Fatigue back

6.30.2022 – Neck shoulder scapula back pain arm hand tingling, peeling itchy swollen skin rash face neck

7.9.2022 – Eyelid facial swelling persist; worse face neck burning flaking itching peeling allergist mentioned angioedema. Face hot to touch intermittantly. Still tingling L arm hand L shoulder slightly better.

9.1.2022 – Worsening spine and soft tissue neck pain and tenderness, worsening tingling numbness pain L shoulder and arm, worsening facial pain and itch, L hip radiculopathy

12.1.2022 – Furthur worsening itching, skin rash, (face neck chest, arms hands) neck/spine/back/shoulder pain, tingling arms/legs,L supraclavicular and neck lymph node swelling,still there since August,?atrophic hypervascular thyroiditis,parotid gland abn on u/s Neck & spine imaging

Sensitivity to weather change, Seasonal allergy and Menstruation delayed

4.2.2021 – I get headaches frequently, so I really dont think its an effect of the vaccine.

4.18.2021 – I didnt mention it before because it didnt occur to me, but I did miss a period after my first vaccine.

4.22.2021 – I was having seasonal allergy symptoms before I got the shot and now that its gotten colder again and even snowing, my sinuses are a little congested

4.23.2021 – Allergy/sinus symptoms. Sinus headache, stuffy nose, congestion.

4.25.2021 – I dont know if this is still allergies or a cold or what, but my sinuses are really congested and Im really tired