Their Stories

Mouth swelling, Mouth ulceration and Oral pain

5.22.2021 – Mouth ulcer swollen and swollen lymph node

5.23.2021 – Painful Mouth ulcer- swollen and red... Bothering gland and ear ache.

5.24.2021 – Mouth ulcer

6.12.2021 – Mouth sore developing

6.14.2021 – Brain fog

6.15.2021 – Brain fog, mouthsore

6.25.2021 – Each new day I have a new headache Left lymph node still swollen.

7.2.2021 – Chills/ shivering, runny nose, nasal congestion, cough, fatigue, sneezing, sleeplessness, brain fog, swollen left lymph node, watery eyes, feverish

7.16.2021 – Swollen neck Lymph node is not getting any better

7.23.2021 – Unusual menustral cycle.Swollen neck lymph node STILL an issue and now has been sore.

9.12.2021 – Headaches, fatigue, cough. LYMPHNODE IS STILL SWOLLEN

12.10.2021 – Headache, sore throat. Lymph node STILL SWOLLEN since vaccination

Injection site pain, Arthralgia and Cough

8.31.2021 – Shoulder in the arm that had the Phizer vaccine was given has gotten sore more then what it was prior to the shot. Othereise all else is normal.

10.1.2021 – Sore shoulder where shots 1 and 2 were taken and just sore at the injection area of number 3 shot.

10.19.2021 – Just continued right shoulder pain when sleeping. Has been since the first shot but did not mention in previous check ins.

12.28.2021 – Slight cough only after family gatherings where 7 have reported COVID positive with mild symptoms.

Secretion discharge, Pneumonia and Paranasal sinus discomfort

2.7.2021 – No

9.8.2021 – Traveled to Wisconsin to visit family 1st week July. Had breathing & congestion.Went to local hospital emergency room for medical attention. Diagnosed pneumonia. Lasted 1 month. This was followed by bad case of flu in August lasted 3 weeks.

10.30.2021 – Symptoms of cold, sneezing, runny nose,

10.31.2021 – Cold symptoms

12.12.2021 – Constant cough, headaches, constant nasal pressure, mucus, blowing nose. Tired. Believe it's a severe cold.

Post-acute COVID-19 syndrome, Respiratory tract infection and Vision blurred

2.5.2021 – Tight chest. Next day, blurry vision. Both incidents were brief, then gone in a few hours.

2.16.2021 – Tightness in chest

2.18.2021 – Tight chest

3.29.2021 – Asthma/allergies to spring pollen

10.6.2022 – Dizziness

10.7.2022 – Slight dizziness in a.m.

10.8.2022 – I have had long Covid since mid-April.

10.9.2022 – Slight lymph node discomfort

10.11.2022 – Coughing yesterday and half the night

11.2.2022 – Gut issues, seems to relate to green vegetables. Have had off and on since early April, part of 'long' Covid(?).

Lichenoid keratosis, Body temperature decreased and Feeling cold

2.15.2021 – Rash on arm of shot. Noticed last Thursday AM; quite red but not itchy. Clearly more each day and now almost gone with just a few small lumps. Feeling sickly but no extreme symptoms except lowly temperature than usual 97.1 high to 94.8 low.

3.3.2021 – Light headed

3.6.2021 – Slightly dizzy

3.9.2021 – Still slightly dizzy but better than yesterday

3.23.2021 – Dizzy and low body temp easily getting cold and fatigue

3.4.2022 – LICHENOID DERMATITIS From vaccination

Skin reaction, Skin disorder and Skin discoloration

3.25.2021 – Tingling lips and tongue. Scratchy throat began one hour after injection

3.26.2021 – Tingling mouth tongue face, whirring sound in ears, itching.

3.29.2021 – Swelling in knees.

3.30.2021 – Swelling of both knees which began Sunday with no trigger.

3.31.2021 – Itching chest and back. Knees still swollen.

4.1.2021 – Knees still swelling. Itchy

9.23.2021 – Likely recurring NeuroLyme which I had in 2020. Awaiting results bloodwork. Visit office of Lyme Doctor

11.2.2021 – Beginning 10 hours after booster and lasting for 36 hours I had fever over 100 and chills and headache and body aches. I was not surveyed by visage at that time.

5.21.2022 – Sore throat

11.1.2022 – Skin patches are developing on upper chest, leg, arm

11.2.2022 – Skin issues in patches but not everywhere. Is that same as rash?

11.9.2022 – Skin reaction that began about 4 days after the shot that i reported last week - the number of patches have increased. I had a similar reaction several years ago after Prevnar 13 vaccination, that time it continued for 17 months.

Telemedicine, Stress and Depression

1.24.2021 – Some of above, but except some real arm pain for 3 days and some general malaise, I believe the other symptoms are sadly due to current anxiety anti-COVID-19, anti-mask, anti-vaccine roommate which hopefully is almost done on 2/1. I have worked many years with Dr. Fauci on HIV vaccines and more tangentally with Dr. Walenski and many others, so I am just living in a very anxiety-ridden place and hope done on 2/1. To be honest, also, anxiety too that I missed your first two surveys where I had a lot more arm pain, but do not regret vaccine. Thank You.

1.26.2021 – May have been the chipolte burrito.

1.27.2021 – Just a general malaise since vaccination, but most likely related to a difficult living situation with an anti-vax roommate that will change on 2/1 and other life stressors. All vaccine dose #1 issues have been mild, to date, and very grateful for vaccine. I continue, and will always, basic public health measures of mask, distance, and hand washing measures. Thank You.

1.28.2021 – I attribute this to my very anti-COVID19, anti-mask, anti-vaccine roommate and I am moving this Sunday. I am very grateful for the vaccine and I plan on doing a lot of vaccine service work after my 2/18/2021 Moderna 2nd booster shot. Thank you so very much.

2.18.2021 – Very mild general malaise, short-lived thus far, and not of any real concern.

2.21.2021 – Strange cough that seems to have subsided within 12 hours and probably due to cold weather and a lot of life stressors. I'm not toi concerned and not convinced related at all to vaccine. PS: (b)(6) site is amazing and really now very efficient. Thank You.

2.22.2021 – Mild cough and some depression, but a lot of life stressors so doubt related to vaccine. Thank You.

2.24.2021 – I did have one bout after 1st dose and two bouts after 2nd dose of rather severe acute depression. It was not something I have had in years and I got through it. I did not think it could be vaccine-related, but I just learned that depression and anxiety is a listed long-term sequelae with PASC or long-term conditions amongst some people who were actually infected with COVID-19/SARS-CoV-2. Ergo, I thought that it is worth a mention. Thank You. I managed to work through it, but it was strange. I also had my routine telehealth appointments with my psychiatrist and my psychologist which helped a lot. I do not regret getting the vaccine. Thank You.

8.19.2021 – Just more bouts of exacerbated or deeper and more frequent bouts of depression for which I am prone. Seems more often post-vaccine, but I doubt necessarily related and I do not have any regrets about getting the vaccine. I have a great psych team. Tx

11.1.2021 – Some depression, but not as intense as after first two doses. Still glad to be vaccinated and no regrets thus far.

4.19.2022 – Some arm pain after second booster, but nothing more than expected and not particularly bothersome.

4.23.2022 – Only arm pain that passed post-first Glaxosmith Shingrix inj 50mcg vaccine dose Lot # (b)(6) on 4/20/2022.

Lung disorder, Gait disturbance and Impaired work ability

4.28.2021 – Pain in my legs. I started having the pain in my right leg soon after my shot and its been getting worse now its in both legs. I didnt think about putting these two together as a side effect until now. Im having a hard time walking and working Called my dr today. They are returning my call tomorrow

4.18.2022 – My health issues has been getting worse since I got Covid last December 2021. I have chronic asthma and haven't been able to recover fully. I was just hospitalized April 12th for 4 days due to lung and breathing issue. I'm unable to work fully.

Back disorder, Gastric disorder and Limb discomfort

4.29.2021 – Rash on spine but also had last Shingle shot 2 weeks before last Covid vaccine. Been have nerve issues with both arms but I think it is the shingle shot rather then the Covid. I barely bumped my funny bone and could hardy pick up groceries, just odd. In person doctor visit

5.11.2021 – Back went out after traveling to Hawaii worried I had blood clot. Stomach issues, diarrhea off and on since shot. Husband who had shot and back went out after we got back from Hawaii, our backs went out maybe from being inactive for a year.

Uterine polypectomy, Vitamin D decreased and Disturbance in attention

3.23.2021 – I am fighting cellulites in my ankle from some shards of glass being lodged in for a few weeks i saw my dr yesterday and was started on antbitics but i feel like my immune system is run down

4.11.2021 – I think from just feeling so tired still I get kind of spacey or fuzzy brained i just feel like i have to concentrate more than normal like not being able to multi task as well as normal

4.6.2022 – Extream fatugue but that is due to just having blood work and discovering my Vitamin D level being extreamly low In person Doctors office visit

5.10.2022 – On going fatige not related to covid low vit d level taking Rx supplent 1× week have 5 more weeks recheckw/bloodwork again IN PERSON PCP

11.9.2022 – Female menstrual issues non cancerous polyp removed from uterus via hysteroscopy 9/13/22

Lichen planus, Oral disorder and Throat clearing

3.20.2021 – Progressive itching starting on face, tingling lips then whole mouth numb, started coughing & clearing throat frequently

4.24.2021 – Taste is weird

10.16.2021 – 2 different skin rashes, mouth lesions. Haven't confirmed diagnosis yet but suspect new onset of lichen plants or lichenoid condition and possible inverse psoriasis. Primary care dr, dermatologist, dentist, endodontist, referred to oral medical dr for further evaluation

Tinnitus, Ear pain and Lymphadenopathy

3.16.2021 – Im not sure if this is related but I felt fine this morning before the shot. My throat is a little sore on the left side and I have a ear ache. I took some aspirin as I wasnt sure if it was OK to take ibuprofen or not.

3.17.2021 – I am experiencing a sore throat and slightly swollen gland on my left side and also have a earache on my left side. Im taking Advil twice a day and so far it is managing the pain

3.18.2021 – ear ache and sore throat

5.11.2021 – My ears have been ringing really bad. I have always had ringing in my ears but since the shot it has gotten worse.

Pneumonia, Muscular weakness and Urinary tract infection

2.9.2021 – Face a little red, but no fever

2.15.2021 – Loose stools the last two days

3.31.2021 – After my first shot, I got a urinary tract infection. First one in over 60 years. Dont know if it is a coincidence, but Im being checked for another urinary tract infection following my second shot. Very strong smelling urine. Waiting on res A urine sample was left at doctors office. Awaiting results. Very strong smelling urine like after the first injection. Note: (b)(6)

9.10.2021 – Urinary, treated for pneumonia, weakened legs and strength, more joint pain than before the shot Doctor did a home visit to assess how to treat

Sleep deficit, Initial insomnia and Feeling jittery

4.10.2021 – Symptoms may or may not be vaccine related as I'm sore from exercise and need to catch up on sleep.

4.12.2021 – Feelings of nervousness (jittery nerves) for no real reason

4.21.2021 – Chronic inability to sleep leading to fatigue and headaches, sometimes nausea

4.30.2021 – Couldn't sleep last night

6.10.2021 – Fatigue during the day, and insomnia at night, that standard remedies aren't fixing

7.29.2021 – Irregular periods Chronic fatigue

4.29.2022 – Difficulty falling/staying asleep at night Daytime fatigue In person consultation

12.5.2022 – Anxiety, heart palpitations at night

Cortisol increased, Breast tenderness and Pain of skin

4.12.2021 – Only just got the check-in tool, so wanted to mention: within 30 sec of getting the vaccine, the injection site (~2 in diameter) began to swell and grow warm and red. Had to stay 30 minutes to make sure swelling went down and was local, which it did quickly (~15 min). Later, injection site felt like I had been stabbed with a serrated blade and then hit with a bat for the whole night. Left axillary lymph nodes also became swollen and sore. Next day (4/10), felt feverish and generally under the weather all day.

4.13.2021 – Axillary lymph nodes in left side still swollen

5.8.2021 – Skin sensitivity

11.5.2021 – Elevated cortisol

11.23.2021 – Felt like I got hit by a truck. Even lying down hurt everywhere. Skin hurt as well. I was super cold, couldn't get warm, and couldn't stop shivering for hours.

11.24.2021 – Swollen lymph nodes

12.27.2021 – Tested positive for COVID-19. No known contact with anyone infected. Thought it was allergies at first, but rapid tested before an appointment. Confirmed with PCR later. Scratchy/itchy throat, some coughing due to itchiness, and some congestion.

10.26.2022 – Sensitive skin

10.28.2022 – Armpits/breasts a little sore, feels like swollen lymph nodes

10.29.2022 – Swollen lymph nodes (armpits, breasts)

10.30.2022 – Breast tenderness, moderate

10.31.2022 – Breast tenderness

11.7.2022 – Breast pain. It started as tenderness, but now it's a little bit throbbing at the sides of my breasts.

Vomiting, Back pain and Diarrhea

3.6.2021 – Sore arm even after ice and heat

3.10.2021 – Arm still a bit sore but improving

4.3.2021 – Just felt like I was run over by a big truck

4.4.2021 – A lot better then yesterday

4.5.2021 – Still very achy . Hip knees and back . Still looking for the truck that hit me!!

4.6.2021 – Feeling a bit better but still achy

4.16.2021 – Last Saturday evening. Not sure if related but horrible vomiting.For about 2 hours then diarrhea. . It was 8 days after the vaccine booster . So I do not know if it was or should be a contributing factor

Dermatitis allergic, Seasonal allergy and Injection site rash

5.2.2021 – Shortly after I completed my last check-in: Return of severe fatigue for ~2 days. Shortly after that: Pain, rash, swelling, some itching at & around injection site. As that got better, some pain under arm (same arm) that is now almost gone.

5.10.2021 – Somewhat fatigued and mildly lightheaded for about half a day.

5.17.2021 – Congestion (possibly due to pollen allergy, but it was before I was outdoors)

5.18.2021 – Congestion

5.20.2021 – Lightheaded, a bit dizzy. This all started yesterday but I was so tired I missed v-safe checkin

6.14.2021 – Lightheaded. Fatigued. Congestion. Headache.

6.27.2021 – Severe seasonal allergies.

8.17.2021 – Severe seasonal allergies and allergic dermatitis (allergic reaction on skin). Working with dermatologist to determine cause.

Aura, Impaired driving ability and Ophthalmic migraine

3.21.2021 – Since 2nd shot have had 2 optical migraines. No pain but really amazing auras that last 15 to 20 minutes.

4.5.2021 – 3 optical migraines...mostly involving left eye. My retinologist says several of his patients had them after the second shot.

11.13.2021 – Sore throat cough

4.23.2022 – Optical migraines from time to time. Never had one before the second dose.

9.1.2022 – First optical migraine today since second covid shot Only lasts 20 minutes but unable to read or drive etc

Pharyngeal swelling, Diverticulitis and Head discomfort

4.6.2021 – Rash started immediately after getting the shot. Second and third day was the whole arm.

5.13.2021 – I have a cramp on my left starts on my spine to my neck across the shoulder blade to my elbow. Started 5days ago.

5.19.2021 – Head pressure, light headed as if I got out of a roller-coaster.

5.26.2021 – Muscle spasm/cramp on left arm and shoulder.

7.30.2021 – Throat hurts is a little swallowen.

12.25.2021 – Sore throat and ear discomfort

12.26.2021 – Sore throat

1.13.2022 – Sore throat, watery nose, nausea, headaches

6.27.2022 – Diverticulitis

Nasal congestion and Oropharyngeal pain

5.1.2021 – Nasal congestion & sore throat on/off the last 4 days - possibly due to pollen and being outside most of days working in yard. No fever or other unusual symptoms.

5.8.2021 – Occasional sore throat and nasal congestion yet could be related to pollen outdoors. Saw family doctor to rule out strep throat from possible exposure in week prior. Negative on strep, then tested for CoVid, negative also.

2.13.2022 – On 1-15-22, I got CoVid booster - since I'm taking immunosuppressive medications. I took rapid CoVid test on 1/25/22 and was positive. PCR Lab test confirmed positive on 1/26/22. Mild symptoms overall and feeling better after 2.5 weeks.

Eustachian tube dysfunction, Eructation and Cerebrovascular accident

4.30.2021 – Neck and shoulder soreness on the same side i got vaccinated

5.2.2021 – Vaccinated arm only slightly swollen

5.3.2021 – Slight sore throat I keep forgetting to mention

5.18.2021 – Joint soreness in leg on the same left side where I got vaccinated

5.22.2021 – Belching a lot ;slight burning at the top of my stomach

5.23.2021 – Extremely dizzy, unable to balance; headache, body ache, ear ringing on side of injection

5.24.2021 – Dizziness / Vertigo /Ears ringing

5.31.2021 – Eustachian Tube Dysfunction due to clogged ear Appointment with ENT doctor

6.21.2021 – Vision not as clear, still experiencing fatigue, belching and ringing ears, and lightheaded which I've been ignoring until now

11.15.2021 – Rash on both ears, in scalp, on lower back, behind left leg and around neck on both sides now.

5.17.2022 – Slight Stroke 12/20 & 12/21 in 2022

Hyperesthesia, Heavy menstrual bleeding and Abdominal discomfort

1.13.2021 – Upset stomach

2.13.2021 – Still a bit sensitive to touch but otherwise good

2.15.2021 – I worked out on Saturday, it was a light workout, and i still have muscle soreness a bit more than what should be for the workout but i am ok.

5.10.2021 – I have had a cold, but was tested and it was not COVID. I just had a stuffy nose and sore throat for a few days and am well now.

11.17.2021 – I tested positive for COVID from a family member I live with. Headache, stuffed and tired

10.27.2022 – Cough

Head discomfort, Hot flush and Hypertension

3.21.2021 – Chills and shevers all over my body for once but lasted about 20 minutes. chills wore off in about 20 minutes but my head was still very heavy for some time after that.

4.7.2021 – high blood pressure. Pressure in the brain

4.26.2021 – Brain pressure, hot flashes and nausea

5.17.2021 – nausea and hot flushes

7.7.2021 – Unusual and different headaches with brain pressure and unusual hot flashes; feels like someone is pouring hot water over my brain; face turning red when this happens and severe sweating at that time along with nausea. doctors visit in person

Edema, Osteoarthritis and Cellulitis

3.19.2021 – Brief self limited cardiac arrhythmia lasting about 2 hours. Probably atrial fib

5.7.2021 – Had a sinus infection

8.6.2021 – Increased knee pain from degenerative joint disease

1.24.2022 – Presumed Covid 19. Sore throat, and runny nose. The other 5 members of house tested positive for Covid

6.15.2022 – Runny nose

6.20.2022 – Allergies with sneezing and runny nose

6.27.2022 – Old, cough , wheezing

8.15.2022 – Asthma. Then edema from steroids and a cellulitis due to edema breaking the skin and infection. Now fine. Is it with PCP

Hypoglycemia, Blood glucose decreased and Diabetes mellitus

1.11.2022 – Don't know if it's related to vaccination or not but I am a type 1 diabetic and it has been much more difficult to control my blood glucose post vaccination.

1.19.2022 – 1) Slight irritation/pain (feels like pressure)on each side of neck. Doesn't happen very often and is gone within a matter of seconds. 2) BG levels seem more difficult to control (type 1 diabetes)

1.30.2022 – My second dose and my second instance of having my blood glucose go extremely low.

1.31.2022 – Got hypoglycemic with no insulin in my system. I am a type 1 diabetic. This happened after my first dose also. Why?

Body temperature increased, Asthma and Anosmia

3.15.2021 – Headache could likely be from lack of sleep due to time change!

3.22.2021 – My asthma cough grew worse starting at about the time of the second dose. And my sinuses were more clogged than usual with headaches. However, at first I attributed those symptoms to my dads death the day after. Unsure of cause: stress, vac or ill

4.19.2021 – Chronic headaches - I kept thinking they werent related to the vaccine, but now I wonder. Ive had headaches ever since I got the second vaccine. (Stress factors other than the vaccine made me think not related. But Im reporting it in case.)

9.6.2021 – I have COVID-19. Due to Hurricane (b)(6), I had to evacuate to (b)(6). Was exposed there on Sunday, started experiencing symptoms on Wednesday. Confirmed with doctor on Friday. Mild fever under 100, very stuffy nose, headache, loss of smell.

Concussion, Hyposmia and Quarantine

11.4.2021 – Inability to focus

1.28.2022 – Covid-like symptoms (cough, fever, sore throat, fatigue, diminished smell) beginning Jan 5. PCR test was negative but doctor advised it was likely Covid and recommended quarantine for 10 days. Still have lingering cough/congestion.

10.29.2022 – Covid May 2022, cough lingered until October, took trelegy for 3 months to improve asthma symptoms ER visit October 2022 due to concussion unrelated to Covid Bivalent booster 10/28/22-body aches, fatigue, fever, local swelling

Depression, Diarrhea and Headache

2.28.2021 – Occasional headaches

10.29.2021 – I teceived the first Shingrix vaccine yesterday.

1.24.2022 – Diarrhea x 1mo but it has subsided. GI more sensitive than it used to be. I have no idea what has caused it.

4.26.2022 – I never mentioned it in previous checkins because i always suffer with increased anxiety/depression during the winter months. After thinking about it, i decided to mention that my anxiety/depression was greater this past winter than typical.

Lymphovenous bypass, Therapeutic embolization and Paracentesis

4.13.2021 – Increased congestion, cough, tight throat, ear pain, chest tightness

4.16.2021 – Lack of appetite ever sincr vaccine, didn't realize the timeline until now.

4.24.2021 – Cough increasing (chronic occasional cough but this is more than normal). Increased postnasal drip. Chest feels tight and heavy. Increased fatigue.

5.1.2021 – Chest feels a bit tighter, shortness of breath increased (chronic but increasing as the day goes on). Dizzy

5.2.2021 – Chest tight and hurts/burns, Throat tight, increased cough, thick post nasal drip, deep breaths are hard

5.8.2021 – Rosacea flare that started several weeks ago (just got dx so not previously reported)

5.22.2021 – Malaise, increaswd fatigue, headaches, feel utterly rundown.

5.29.2021 – I believe they're due to other things. fatigue, worsening rosacea, dizzy spells, headaches, heavy chest, joint pain. Some days ok others not.

6.5.2021 – Fatigue. All over body and joint pain. Locking joints. Constant stuffy/semi-runny nose unrelated to allergies (pollen count only 0.5 and it's much worse than a count of 10). Cough. Heavy chest. Rash on chest

6.12.2021 – Weak, extreme fatigue, terrible allergies, chest feels panicky and tight.

10.30.2021 – Prior dx diseases symptoms have greatly increased. Chylous ascites leaking faster. Cough has been bad for a few months. Extreme fatigue, lightheadedness, sinus congestion. Allergies markedly worse this year for no reason, no relief from treatment.

5.1.2022 – Pulmonary embolism, dvt, Pulmonary embolism, paracentesis with blood pressure problem, thoracic duct bypass, lymphatic emoblizstion

Systemic inflammatory response syndrome, Polymyalgia rheumatica and Movement disorder

2.5.2021 – I think the nurse who gave me vaccine injected my shoulder joint. I cant lift my arm. Its very painful. Plus I feel crummy, headachey, fatigued.

2.20.2021 – Extreme fatigue

2.23.2021 – My arm problems are secondary to the poor technique of vaccinator whi jabbed me in an active shoulder joint.

2.19.2022 – Based on labs ordered by my dr. I seem to have a highly inflammatory response to booster I seem to have developed polymyalgia rheumatica but the dx has been incertain because of high inflammatory reaponse and array of symptoms. I also had a full work up by Infectious Disease Dr