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Their Stories

What v-safe registrants wrote to the CDC after their Pfizer or Moderna shots, in their own words. Each card is one person, with all of their free text. This page shows only the longer stories: the 116,000 people who wrote at least 400 characters in all. The text is as the CDC released it, except that email addresses and phone numbers are hidden. You get a random set of these people on every visit.

Shuffle

Eustachian tube disorder, Ear hemorrhage and Arthropathy

4Z2-99467-81227

– Shortness of breath

– Brain fog increased

– Brain fog

– The morning after i got a really odd left ear bleed that wouldn't stop so i plugged it with kleenex until it coagulated. Everything seemed ok until this morning when I noticed that I could feel the inner ear & eustacian tube discomfort beginning. Using hot water & q-tips i gently tried to clean away what felt like a plug. I went through about 20 2x-ends of hot watered swabbing removing dried bloody bits but never was able to clear the plug. So it feels less wonky but not the usual/normal either I consider it coincidental as it makes no sense for the vaccine#1 shot to cause an earbleed. It doesn't feel like I blew out the eardrum that would be major noticeable.

– Ear bleed stopped, interfered with gabapentin

– The first 48hrs interfered with my gabapentin that i take for permantly damaged bracial plexus from an accident

– brain fog, and shortness of breath

– cotton breathing

– breathing is a bit cottony a little short of breath

– Breathing vapors of paradichlorobenzene that settled like a fog in our bedroom overnight from trying to kill clothes moths.

– Blew out right hip, replacement scheduled for end of October '22

Dysstasia, Disorientation and Impaired work ability

4Z3-17878-08382

– Diminished appetite

– Fever, nausea, dizziness, disorientation, body aches, body chills, severe headache, loss of appetite, inability to work or do anything but sleep or lay in bed. Saw primary care doctor in person, blood work

– I have had the same symptoms as my last check in and they are continuing and seeming to be more frequent. Primary care doctor visit, FMLA application

– Same as they have been.

– About to lose my job for a sick days I have had. I understand mistakes happen. But someone needs to help me. Dockers won't see me. Please

– Fever, nausea, worsened headache, body pain, Disorientation, dizziness, inability to stand. Why is there not unsure option for the last question? I'm marking yes for unsure. I am under house arrest so I am afraid to get medical care.

Petechiae, Tension headache and Deafness

4Z3-31108-91769

– I got petechiae all over my body, had CBC test done (its OK). Every other day I get pulsating headaches (back of the head and temples). During these episodes hearing in the right ear gets worse, theres slight numbness in the face, brain fog.

– Tension headaches persist. Period was heavier, but the next one was normal. GP

– Petechiae keep appearing on my body. Last blood test was normal (in May). Insomnia and depression (due to unrelated cause).

Swelling face, Taste disorder and Dry mouth

4Z3-33930-68266

– Dry mouth and a weird taste in the back of my throat

– Sore throat and stuffed up nose

– Headache, sore throat, body and muscle aches, runny nose

– Swelling on my face where I have dermafillers

– I had a mild swelling yesterday in the areas where I had derma fillers but it is mostly gone today. Still a little Swollen

– Congestion

– Congestion that feels like a sinus infection.

– Frequent Migraines. But likely completely unrelated to vaccine. Most likely due to crazy weather.

Renal cyst, Cerebrovascular accident and Diabetes mellitus

4Z4-15834-46394

– Mild pain in my left. arm. I do not kniw uf it arthritis or the pain is associated with the vaccine.

– Numbness in my left arm, with numbness and pain all the way to my fingers. It has awaken me out of my sleep. I will make appointment to see my doctor.

– My left foot felt as though It was having a stoke and it was so painful and it became swollen. I cannot put a shoe on. I am going to a foot doctor as soon as I can find one that accepts my health plan.

– My left arm down to fingers goes numb periodically as well as my left foot on the big tie side swells up and severe pain periodically.

– Runny nose, sneezing and coughing

– A severe cough and tested for diabetes and it was positive and a cysts on my kidney Dr's appointment

Tenderness, Swelling and Edema peripheral

4Z4-24353-57733

– Have a very slight swelling front of under arm (lymph glands) on same arm as vaccine. Noticed 2nd day, only slightly tender to touch. Still a little swollen, no pain or discomfort. ,

– Same small swollen area lymph gland front of right underarm. No pain or discomfort.

– Same as before, slight swelling right underarm lymph gland. Less swelling today.

– Same slightly swollen lymph gland as previously mentioned.

– Lymph gland swelling less today.

– Sore throat, cough

Tremor, Body temperature increased and Muscle spasms

4Z4-26715-60560

– I'm not sure I'll get the opportunity to say this, but I had a low-grade fever every night for 11 days after the fourth shot (second booster).

– I have had a low-grade fever every evening (99.0-100.4) since I got my #2 booster. My normal temp is around 97.7. Last night I had chills, even though my temp was only 99.8. I couldn't stop shaking so I had to take 2 Advil to be able to sleep.

– My cough has gotten worse, but I believe this is due to allergies (asthma). It's a dry cough and I go into spasms and can't stop coughing. I still have a low grade fever every night (as high as 100.1 this week) and often get chills. It's scheduled for next week.

Groin pain, Gait disturbance and Injection site pruritus

4Z4-26979-50205

– Only itching left leg ( Area of the injection)

– Left leg pain and itching( area of vacine)

– My Headache is like Migraine( left side) and the pain continues from the neck to the shoulder, also pain in the left leg (area where the vaccine was given)

– It's little difficult to walk, some nausea, a few symptom of dizzy. I take vitamins and medicine for Pain.

– runny nose, fever some days, my doctor prescribed antibiotic

– I still have some pain around the area where the vaccine was injected, that is, I can feel some slight inflammation that causes cramps in my left leg (the injection was given on the left foot).

– Continue with leg pain . Yesterrday I fall at the bathroom

– Citoplasma Reactive.

– A Little tired

– Dizzy

– flammation and pain in the groin area of the left foot where the vaccine was given. also pain and inflammation of the axillary area and chest.

– Heavy headache

Wound secretion, Ear infection fungal and Otorrhea

4Z4-39329-70742

– Arm is sore and warm to touch ,

– Arm still warm to touch

– Arm sore

– Arm still sore

– Arm sore (slight burning sensation near area)

– symptoms reduced (arm sore)

– Weird pain on right arm (I dont know how to describe slight discomfort/numbness)

– My left foot has blisters ,scaly, warm to touch, and red

– A lot of Clear fluid on my right ear (crusted when dry)

– Ears ooze (nasty painful crater wound on face with pus) lower right nymph node swollen and sore . Left foot has crazy leopard circles

– Ear drainage & crusted (cant hear on right ear), I hear ringing 24-7 and staph infection.

– Ear fungi (flakes) Reg dr visit

Middle insomnia, Diarrhea and Nausea

4Z5-21698-60542

– After i reported yesterday morning, i came down with a fever theat hivered around 100+ a little until this morning. I felt terrible yesterday ..sever body aches, joint pains, nausea and general malaise. At 830 pm i had a horrendous bout of severe diarrhea and went to bed shortly thereafter. Woke up around 0430 this am fever was almost gone and went back to sleep. At 0800 got up and felt much better. No meds were taken during all this. I was unable to document the things that happened later in the day after having filled out the questionnaire earlier yesterday so i am providing the information from last night (3/2/21) today

Oral herpes, Injection site pruritus and Injection site erythema

4Z5-37419-83257

– Swollen, red, sore arm at the vaccination site. It lasted for three days. On the 4th day it itched and rashy for a couple days and now it is fine.

– Back ache

– Body rash. Neck, back, stomach, arms, shoulders

– Trouble sleeping, swollen gland in my neck, cold sore

– Rash only on my chest now. Constant sneezing and head congestion. Not sure if it is the vaccine or something else

– Constant runny nose

– I'm still very tired.

– Very achy joints

Ammonia increased, Social avoidant behavior and Communication disorder

4Z5-49507-88642

– His Memory is worse, and his Parkinsons Walk is also. His Liver problems make his brain functions unpredictable, especially when he doesnt eat properly, and take his medications. He has been throwing them up after taking, makes it worse. Doctors appointments

– More problems walking than usual

– Better than yesterday, walking sometimes better sometimes not, Fatigue

– Walking problems continuing, exhausted all the time, sleeping , grouchy, listing problem solving skills

– Sleeping more caused mealtime to change. He skipped some of his Meds.

– Walking and thinking worse. Trouble dressing himself and getting in and out of bed. He started Home Physical Therapy

– Didn't feel well several days, didn't eat much, missed several doses of Lactulose and other medications. Had shaking and balanced problems after urinating. Now has home Health and Physical Therapy visits.

– Confusion, dementia, falling, sleeping most of the time, is now Hospitalized, loss of bladder control, not eating or drinking anything. Hospital unable to get a stool sample to test

– Cloudy thinking, moved to Nursing Home from Hospital for Physical Therapy, Nausea, Throwing up, unsteady on his feet and falling. Increased Confusion, Depression, Withdrawn, shaking, less communication even for things he wants Hospital then Nursing Home

– Complete Liver Failure, and intermittent trips between the Hospital and nursing home for not responding, when Ammonia levels in the blood are too high. Bed sores, limited function in multiple areas

– He Died Nursing Home and Hospital

Peripheral swelling, Erythema and Anosmia

4Z6-20754-71337

– On day 9 arm was swollen, inflamed, painful & itchy. Severe fatigue & headache for 2 days. Inflammation started going down. Today is day 14. It has happened again. Red area is larger than before. Severe fatigue & headache again. I feel pretty crummy

– Tested positive for Covid on 8/7/21. Severe sinus congestion, severe headache, vertigo, fatigue, loss of taste & smell, fever for 5 days. Still have vertigo, headache and mild fatigue.

Crying, Depressed mood and Visual impairment

4Z6-28962-95147

– Dizzy like rapidly descending elevator

– Itchy watery eyes -harder faster heartbeat -foggy brain

– Left neck and jaw pain

– Easily winded

– Bummed -weepy -crying jags past 3 days

– Happened last time as well2day felt extra weepy, sad, bummed

– 99 degree temperature swollen glands sore throat runny nose/sinus congestion wet productive cough

– Abdominal cramping/ diarrhea/easily winded: rapid heart beat, sweats and chills

– Sinusitissweats/chills easily winded and out of breath

– Swollen glands in neck

– Sinus congestion- post nasal drip- productive cough-

– Headache- temperature- vision problems

– Wheezing cough, shortness of breath, sinusitis

Bronchitis, Lymph node pain and Injection site pain

4Z6-59347-25280

– Very slight aching in injection arm. 8hrs post shot.

– My lymph nodes ay the bottom of my left neck are swollen and painful starting this afternoon. I got my shot in the left arm. Have telehealth appointment todsy pending.

– My lower left neck lymph node is still swollen, but only slightly painful to touch.

– My lymph node in my left neck is still swollen but not painful unless I touch it a lot

– The lymph node at the bottom of my neck (left) is still swollen, yet not painful.

– Left lower neck lymph node is still pea sized and slightly tender to touch. I have a physical appointment with my doctor Monday.

– Had severe bronchitis requiring abx and steroid inhailer x 2 weeks. Had negative rapid Covid test.

Cardiomyopathy, Heart rate increased and Dyspnea

4Z6-65798-07412

– Increased heart rate (100-130 BPM) compared to my usual heart rate of 77-90 while seated or standing

– Fatigue

– Shortness of breath, beginning in July. I initially thought it was related to poor air quality due to forest fires, but the air quality improved, and my breathing is worsening.

– I was diagnosed with non-ischemic cardiomyopathy, likely a consequence of COVID-19, but in no way related to the vaccine (I got sick before the vaccine was available)

Tendon disorder, Hypoesthesia oral and Muscle spasms

4Z7-18783-19964

– Immediately after shot a mild amount of numbness in roof of mouth

– I had bad muscle cramps in legs and extreme soreness on the bottom of feet for approximately 4 days but is almost gone now

– Pain in the bottom of my feet again. I had this same delayed response after the 1 st shot which lasted approximately 2-3 weeks

– My feet pain has increased planning to make appt with doctor tomorrow Appt with primary

– Trouble with tendons in feet Pt, bought orthopedic support and finally had surgery

Sinus congestion, Insomnia and Lymph node pain

4Z7-22095-76787

– Sinus Congestion, none this year before #2 Vaccine

– Trouble sleeping. Up every hour all night.

– Mild sore throat for last day & a half. Forgot to report it yesterday. Fine today

– Very enlarged lymph node above collarbone same side of the body as injection.

– Residual giant swollen lymph gland on same side of body as injection. Lymph gland is just above collarbone. Tenderness has gone way way down. It is still in enlarged.

Sensation of foreign body, Stress and Facial pain

4Z7-22456-46246

– I had a strange group of Covid-type symptoms altered smell, headache, lump in throat, shortness of breath/trouble breathing, diarrhea .for one day, on Monday Feb 22. Felt better the next day. Other reasons most likely explained the symptoms.

– Sinus headache most likely

– Sinus headache and dizziness. I doubt Covid vaccine related, but who knows.

– Sinus infection

– Sinusitis

– Heart palpitations and chest pain. (Probably muscular in origin?).Worsening fatigue and sinus headaches (probably due to horrid allergy season)

– Stress-related hypertension, possible heart and prostate disease. Not vaccine related. Doctors office last visit

– Runny nose.

– Sore throat, sinusitis

– Mold allergies (not Covid)

– Headache

– Sinus headache and facial pain, not related to Covid.

– Seasonal allergies.

Adnexa uteri pain, Breast swelling and Abdominal pain lower

4Z7-24157-59111

– Tingling in my neck and arm

– Muscle cramps

– Feels like my blood pressure is high. I have pressure in my whole face. Overall just very uncomfortable.

– Migraines, body aches and bone pain

– Extreme fatigue, bone pain and muscle pain. Migraines, longer than normal period and muscle twitches around my mouth. Family doctor

– Numbness in my arm

– Arm numbness down the injection arm

– Vaginal bleeding, numbness in injection arm

– Vaginal bleeding- not period related. Arm numbness in injected arm

– Vaginal bleeding- not period related. Bruising at injection area. Numbness in arm

– Vaginal bleeding- not period. Large Bruising around my injection. Arm numbness.

– Vaginal bleeding- not period. Bruising around injection. Arm numbness

– Extreme bone and muscle pain. Extreme fatigue. Daily vaginal bleeding unrelated to menstrual cycle. Insomnia

– Nausea and vomiting

– Fibromyalgia flare. Intense muscle and bone pain. Sharp pain in lower abdomen/ovaries. Migraines

– Painful swollen breast on the same side as the injection.

Rheumatoid arthritis, Dyspepsia and Bronchitis

4Z7-25259-68290

– Joint pain is probably from rheumatoid arthritis

– Joint pain is from my rheumatoid arthritis

– Probably my rheumatoid arthritis

– Cough

– Joint pain is probably from my rheumatoid arthritis

– But it's pain normal for my rheumatoid arthritis

– But I have rheumatoid arthritis

– Having a flare of my rheumatoid arthritis. I had my 2nd shot about 10 days before my last Orencia infusion.

– Burning stomach

– The first 2 wks after moderna booster I had some mild chest pains.

– I had bronchitis last week, but was tested and did not have coronas virus.

Eye color change, Blood urine and Renal disorder

4Z8-19026-15999

– My eyes feel tired and hurt cant work on my computer screen like im used to. My left eye feels awkward and see small black dots

– My kidneys hurt alot

– Had blood in my urine had to go to hospital and almost was hospitalized. They did ct scan and they couldn't find reason for my infection so they started me on cipro for 21 days. They think it may be protisitis (sorry dont know how to spell it.)

– Went to emergency for kidney problems about t months ago and i still dont fell well. Spend 7 days in hospital and 30 days recovering. Was feeling better but my pain is back been off medication for about 2 weeks now.

Cellulitis, Skin warm and Lacrimation increased

4Z8-22964-58995

– Constant runny nose, watery consistency; irritated throat due to post nasal drip. Resolved completely in about 24 hours

– Redness about 3 inches below injection site

– Red/warm upper arm a couple of inches below the injection site is larger today than yesterday

– Red and warm on upper arm about 3 inches below injection site. Area continues to enlarge, now about 4x5 inches

– Red and warm area, about 5 inches square, about 3 inches below the injection site on the same arm

– Covid arm is fading, no longer warm to touch

– Only a faint outline of the Covid arm reaction remains, and it's not at all warm

– "Covid arm" below the injection site, happened after shots 2 and 3, and now after 4. Didn't look after the first shot.

– Cellulitis in right leg

Lymph node pain, Sinusitis and Lymphadenopathy

4Z8-27723-99428

– Swollen lymph nodes near injection site

– Several swollen lymph nodes on the same side as the injection

– Several swollen lymph nodes on neck, collarbone area, shoulder area, and groin region on the same side as injection

– Swollen and painful lymph nodes (on same side as the injection sight; right side) in armpit, shoulder, collar bone, neck area, and groin region

– Several swollen lymph nodes on the right side

– Swollen lymph nodes on right side

– Swollen lymph nodes on neck on under arm on same side as vaccine site

– Swollen lymph nodes in neck, underarm, collar bone region, and groin on same side as injection site

– Frequent sinusitis

Musculoskeletal pain, Vertigo and Neck pain

4Z8-67180-67370

– Lymphadenopathy & pain culminating in 3 days of severe pain from neck, through right scapula, into shoulder joint/upper chest & armpit, accompanied by fatigue. Note, pain is on opposite side from injection site. Symptoms resolving, but still residual

– Sudden dizziness & vertigo started 3/30/21. It has recurred every few days, lasting from a few minutes to over 8 hours, in varying intensities. Follow-up to ER with NP.

Connective tissue disorder, Muscle spasticity and Skin tightness

4Z9-12533-65981

– Only pain if I lean over and lean

– Spasticity numb

– Muscles in ankles and calves tight

– Muscles tight/ spastic arches of feet ankles and up to mid calves.

– Feet ,ankles and calves still spastic

– Feet,ankles and calf muscles spastic

– Muscles tendons tight lower legs

– Still tight feeling in lower legs and ankles, feet

– Tight feeling ankles feet

– Legs have continued to be tight with all muscles and connective tissues. If there is a bandaid that fixes this issue please let me know.

– Additional tightness feet ankles calves,hips. Not letting up.

– Muscles, connective tissues in feet and legs are tighter and not improving. Getting worse!

– New symptoms had to go to Dr. Arterial Dopplers scheduled to check swelling in feet. New symptom. Walking difficult. Annual visit with Dr. Cold feet and leg weakness. He thinks arterial Doppler testing

Premenstrual syndrome, Rotator cuff syndrome and Menstruation irregular

4Z9-14562-26760

– Injections site pain came back a bit. It's a bit sore to touch and sometimes hurts when I move my arm.

– I've had pain at the injection site and in my left shoulder since my 2nd vaccination shot that is sometimes is better, sometimes gets worse, but has not completely gone away. Dr. suspected a rotator cuff injury but no confirmation. Asked my regular Doctors about it.

– Have gotten my period a week early every covid vaccine which is very unusual and it's way worse than usual each time.

– Dizziness

– Sinus pressure

Eye discharge, Eczema and Eye swelling

4Z9-17816-99131

– Feels like I have the Flu

– Chest tightness

– Chest swelling aching when sneeze

– Mucus & ear discomfort (crackling sounds)

– Pressure in right ear, swollen left eye, swollen sternum, & blurred vision. (b)(6) Dr office visit & labs

– My eyes keep running and mucus, awful cough

– Extreme allergies to MY DOG! Daily mucus from my eyes, and now taking daily meds for this new serious allergy to my dog. Dr visit limited contact user as well

– Swelling of sternum and painful sneeze attacks Reg Dr visit @ (b)(6) clinic

– Blurred vision, and increased eczema

Tinnitus, Chills and Rhinorrhea

4Z9-24389-04570

– Ringing in my ears

– Still have the ringing in my ears

– Still have the ring in my ears

– Still have the ringing Lin my ears

– I still have ringing in my ears

– Plus the ringing in my ears. Yesterday I also had chills in the evening and 99.7

– Ring in my ears

– Still have the ringing in my ears Have appointment for March 10

– Ive been forgetting to mention that I continue having ringing in my ears since the first shot Hearing center

– Runny nose

– Sore throat and cough

Middle ear disorder, Deafness unilateral and Deafness

4ZA-12823-97106

– I developed tinnitus shortly after my first vaccine and it worsened after the second vaccine. I have also had about 30% hearing loss in my right ear over the same time. I am not aware of any other potential causes. Steroid treatment both orally and through injection in my middle ear. Will have hyperbaric treatments starting this week.

– I am being treated for Tinnitus. Not 100% sure that it is related to the vaccine, but think so. The onset of this condition started shortly after my first shot. It is now a consistent ringing and I have suffered 30% hearing loss in my right ear. Hyperbaric treatments, steroid shots into my middle ear.

– Hives or itchy rash on my back, which started with my booster. Visit with my internist.

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