Their Stories

Monoplegia, Dysphagia and Sleep disorder

3.19.2021 – Right hand doesnt work, cant type, sensations are weirdeverything it touches feels like steel wool. Pain on right side of head, neck, throat, and arm. Could not sleep on right side for two weeks. Hard to swallow. It hurt to touch my hair on right side. So I got 2nd vaccine also on right arm so Iwould still have use of one hand.

3.22.2021 – I cant use my right hand. Right shoulder hurts. Cant raise arm over my head to do yoga posture, cant keep arm on floor to support me in seated posture (it buckles). When I try to put the mask on the right hand cant do the right ear. Head

3.29.2021 – I cant use my right hand. My muscle where I got the vaccine is still sore. When my right hand touches something it feels like steel wool.The right side of my neck is still tender. And I feel slightly dizzy. I can. However, sleep on my right side.

Pneumonia mycoplasmal, Poor quality sleep and Sinus disorder

2.18.2021 – Feeling tired and in fair condition could be due to not sleeping well last night. Mentioned mild injection site pain today, which I discovered after trying to sleep on my right side (injected arm). Because I typically sleep on my back or left side, didn't realize mild site pain had remained.

9.7.2021 – Got bad head cold from spouse (no fever; had sinus issues, fatigue, cough). He was worse so he went to doc, who diagnosed mycoplasma pneumonia (no COVID) & prescribed antibiotics. After 3 wks feeling poorly, I got treated & was prescribed antibiotics

Altered state of consciousness, Amnesia and Loss of consciousness

3.20.2021 – The pain and swelling in my arm was intense a couple days ago. Eight hours after the shot I couldnt use my arm and had to go to bed due to fatigue and the feeling that I was getting sick. Felt that way two days. I was fine and then a week later the swelling started.

4.10.2021 – Had to lay down and nap about 90 minutes. Taking Tylenol.

10.6.2022 – The day I received my shot I became very fatigued and had all over body pain several hours after the shot. It lingered throughout the next day, but did not keep me in bed. The previous shots put me in bed. This injection had lighter side effects.

Axillary mass, Brain fog and Peripheral swelling

4.11.2021 – Slight swelling of glands in my neck

4.12.2021 – My neck glands are a bit swollen. Also I had a sore throat last night.

4.16.2021 – Right neck gland was a bit swollen in the morning.

4.25.2021 – One day neck glands a bit puffy. One day really tired.

10.31.2021 – When I got my Tdap booster on August 8th. 2021 in my left arm it swelled a lot and hurt a lot. I also have a mass in my left armpit I am going to get an ultrasound on in the next week or two.

5.11.2022 – I felt so bad the two days after my booster that I forgot to let you guys know I got the booster so I could report those initial 2 days. Do not now how to let you know about the past.

10.4.2022 – Brain fog, light headed

Hypoesthesia oral, Rash pruritic and Hypersensitivity

4.5.2021 – On the night of the 29th, where the shot was given, it was a little swallow and became itchy. The next day much bigger, red and itchy. That night it measured 2 1/2 all around. The next day it measured 3 1/2 all around. It was itchy and and round. I went have it checked out.

4.26.2021 – Tip of my tongue feels a little dumb.

4.27.2021 – Im taking Benadryl to keep down the allergic reaction.

4.30.2021 – My shot arm was aching today.

5.7.2021 – Still having random round bumps appear on the shot arm. . I take Benadryl and they go away. Its been 2 1/2 weeks since my vaccination. Yesterday was really tired and thats when I felt and saw the bump. Today feel better but the bump is still th

5.14.2021 – I have had bumps appear on shot arm at times itching and then bumps go away. I have headache today.

5.29.2021 – My shot arm at times itches but no new bumps.

6.3.2021 – Just itching spontaneously on the shot site.

Injection site discomfort, Urticaria and Injection site erythema

3.25.2021 – Just slight soreness at injection site but no different than the flu shot

4.16.2021 – Last night realized had small welt and quarter size redness at injection site. No pain, normal shot soreness. Was reduced by this evening. No redness or soreness, just very small welt

5.15.2022 – For 3rd, had swollen lymph nodes/soreness in arm pit that got shot. No issues with 4th dose

10.19.2022 – Injection site sore but not painful

11.1.2022 – Sore throat, light cough, no fever

Bronchial edema, Scratch and Paranasal sinus inflammation

1.15.2021 – Sinus at back of throat feeling a little inflamed like the start of a cold. Also chest congestion /bronchial swelling like COPD and asthma is

2.4.2021 – These symptoms were from last night. Felt like I was getting a cold or flu. Also my heart was racing for about 90 minutes. Today I felt better. Just tired and fatigued

8.4.2021 – Still itch where myInjection went into my arm. Only a couple times a day I have to scratch to relieve the inch. But its not a constant inch. Its like a momentary thing.

Abnormal sensation in eye, Dry skin and Musculoskeletal chest pain

4.21.2021 – Chills,some body aches, and feeling very warm or hot but my temp was 97.5. It went away in 24 hours.

9.8.2021 – Possible myocarditis, severe coughing for a few weeks then it went away and then shortness of breath and very bad pain in my left rib cage. Doctor put me on prednisone which has helped me to breath and the rib cage pain is almost gone. I had an xray

12.1.2021 – Cough, pain on my left side by my rib cage it hurts,I had the same condition the beginning of September. The doctor said it might be myocarditis and gave me prednisone and it seem to clear up. Now it's back. My pulmonologist

1.26.2022 – Sore throat,tired,body aches for 2 days Couldn't smell anything

Axillary mass, Influenza like illness and Lymphadenopathy

4.5.2021 – No

4.9.2021 – Cough, congestion, flu like

4.10.2021 – Flu-like congestion, cough

5.3.2021 – Rapidly growing mass in/or/near lymph node in armpit of arm that received the vaccine. First detected 4/29 as hard subcutaneous mass 1/4 in diameter. Is now greater than 1 in diameter. No pain in response to touch or pressure. Contact for Mor

7.5.2021 – Still have a ropy, enlarged lymph vessel protruding from my left armpit (first became prominent 3-1/2 weeks after 2nd dose).

Edema, Mood altered and Electric shock sensation

5.6.2021 – A 4 long red patch near the injection site, then a 2nd patch with an itchy hive in the center formed nearby. The 1st patch is lasting a week, the 2nd only lasted a few hours. Body aches, weakness, fatigue, headaches, brain fog, waking hot, chills.

5.20.2021 – Foul mood, brain fog, fast heart rate

5.21.2021 – Unable to sleep, sweating, electric pain & numbness (mostly left arm & hand), fast heart rate, short of breath, dizzy, irritable, sore throat, weird taste, pre-existing eczema flaring

5.22.2021 – shortness of breath, sore throat

5.23.2021 – fast heart rate

5.24.2021 – Chest pains, sore & hard swollen neck lymph nodes

5.25.2021 – sore hard swollen neck lymph nodes, sore throat, brain fog/confusion, some sense of smell impairment

5.26.2021 – sore swollen neck lymph nodes, fast heart rate, shortness of breath, still sweating profusely

5.27.2021 – sore swollen neck lymph nodes, fast heart rate, shortness of breath, brain fog/confusion, sore throat

11.18.2021 – new = psoriasis worsened = eczema, asthma

12.10.2021 – a little numbness at injection site, brain fog, couldn't sleep, sore lymph nodes in neck, GERD

12.11.2021 – brain fog, little sleep, body aches especially being the ribs & shoulders & neck & jaw, sore & swollen lymph nodes in neck

12.12.2021 – some brain fog, sore/swollen lymph nodes in neck, some GERD

12.13.2021 – brain fog, sore/swollen lymph nodes in neck, GERD; all symptoms lessening

12.14.2021 – some brain fog, sore/swollen lymph nodes in neck, GERD

12.15.2021 – mild brain fog, mild sore/swollen lymph nodes in neck

12.16.2021 – sore lymph nodes in neck, some GERD

12.30.2021 – arthritis in my fingers flaring for the first time fibromyalgia flaring dermatitis flaring feverish (weird) my pcp is too busy to schedule an appointment with me right now - I will discuss the arthritis with them as soon as possible

1.6.2022 – the new arthritis is continuing to progress, & the pre-existing dermatitis is continuing to flare more (my pcp still doesn't have time to see me, but I did let them know that it's occurring & that I need to talk to them about it)

1.13.2022 – the new arthritis is progressing (including more swelling & edema, pain, increasing bone on finger joints, & it also seems my eyesight may be affected) (sleeping a lot & staying in bed 14-16 hours, but still drained) still waiting for my pcp & me to have time to schedule an appointment for me

1.20.2022 – progression of arthritis need help from psychologist, pcp, & rheumotologist

Hypersomnia, Impaired work ability and Nausea

1.13.2021 – I registered late. I did not register the day I got my shot but I would like to report that I started feeling fatigue the evening of my shot in Jan. 6, and then the morning after my shot on Jan 7. I woke up with chills, headache, body aches, fatigue and nausea. I called off work that day and slept the majority of the day. The following day Jan. 8. I still felt somewhat tired and had a slight headache. However by Saturday all side effects had subsided and I have been fine since.

Balance disorder, Gastrointestinal disorder and Asthma

2.27.2021 – Runny nose, swollen sinuses, off-balance, bronchitis-like cough, no fever, for the past 5 days.

3.9.2021 – My fibromyalgia seems to be acting up

6.8.2022 – Sweats

6.10.2022 – I've been having sweating episodes for the past few days after the booster

6.12.2022 – I've had an out of breath feeling since getting the shot. Like asthma.

7.11.2022 – I got some sort of horrible GI illness. 100.4 fever, body aches, HORRIBLE headache, nausea, stiff neck, and the worst diarrhea ever. Got a 15 minute Covid test after the fever went down, and a flu test, both negative. I'm still sick with diarrhea. My Dr's office tested me in their parking lot, then when the test came back neg, they had me come in.

Sciatica, Arthralgia and Pain in extremity

2.17.2021 – Also felt much better yesterday, but healthchecker cancelled too soon

2.18.2021 – Actually feel MUCH better than BEFORE the second shot???

2.28.2021 – Hip and leg pains, quite bad, mainly left side. Possibly some malaise. Not clear these are vaccine related

3.7.2021 – Still have sciatica pain in left leg

4.21.2022 – Tired and achy , but doing a lot of cleaning

10.15.2022 – Had Covid in August. Standard symptoms - cough, slight fever, fatigue, feel miserable for 2 1/2 weeks. 2 positive Covid tests. No medical intervention needed.

Skin abrasion, Sinus disorder and Sneezing

3.10.2021 – Two days after my vaccine my bottom lip was chafed & split. I never checked my temp because I didn't notice I was hot. My lips are never chafed so I believe that I had a fever on March 7, 2021

3.28.2021 – I've had a faint headache more often usual every other day.

4.2.2021 – I have a light headache

4.21.2022 – I have been tired for 5 days

5.28.2022 – Sneezing, runny nose, headache, body aches, a little nauseous, sore throat, sinuses feels a little drafty.

Eyelid rash, Skin swelling and Emotional disorder

5.5.2021 – Itching all over. Extremely emotional. Increase of hot flashes. Vivid dreams.

4.22.2022 – Facial swelling and rashes, especially eyelids and neck. Sought help from healthcare provider for this because of the swelling, redness and puffiness for no apparent reason. Eventually subsided but have had it come back on at least a few occasions.

11.16.2022 – Have extreme fatigue since Covid dx and am still fatigued from it. Still have dry skin and rash issues around eyes and face.

Narcolepsy, Bed rest and Lyme disease

2.17.2021 – May be from post Lyme Disease

2.18.2021 – This was more than post Lyme today for certain

2.19.2021 – Diarrhea was mostly yesterday and ab discomfort

2.20.2021 – I think my symptoms now are post Lyme disease

2.21.2021 – Dont know what is going on

3.1.2021 – Weird fatigue and / or overwhelming sleepiness where I fall asleep anywhere

3.8.2021 – Lightheaded

3.9.2021 – In bed all day drinking lots of water, tylenol

3.10.2021 – Weak, shakey

3.11.2021 – I have joint and muscle pain but I believe it to be from post Lyme and fms now

3.12.2021 – Sleepiness still bad left eye lid has twitched and felt like the eyeball itself jerks since vaccine day 2. Forgot to mention before. Affects my vision. It is frightening.

3.13.2021 – Fatigue & constant falling asleep much better although I could not wake up this morning. Slept 2 3/4 hrs longer than I should have.

3.15.2021 – I have not checked abdominal pain before because it was not constant but I have been having intermittent an pain for several days

3.22.2021 – Overwhelming sleepiness. Fall asleep anytime anywhere. Fatigue. Joint pain but sleepiness did not get better

4.5.2021 – My body wants to sleep all day and a nightLife is precious and mine is getting slept away.

4.21.2021 – Chest pain

9.6.2021 – Unusual Pain for summer. Severe pain mist the time

Sensitive skin, Lethargy and Tenderness

5.11.2021 – Had rash on neck I didnt connect to report previous few days. Since I forgot to sign up sooner wanted to add only sore arm for first shot but much fatigue and body sensitivity in first days after dose 2

6.17.2021 – Stuffy nose, sneezing, sore throat, lethargy and sensitivity to touch (rode on a plane, likely a cold)

11.2.2022 – Armpit itch and pain bilaterally, rash and sensitivity on trunk - I thought I had shingles but urgent care thinks it's vaccine reaction

Sepsis, Nephrolithiasis and Upper respiratory tract infection

4.8.2021 – Asthma-like symptoms

5.14.2021 – Sepsis and kidney stone in hospital

7.7.2021 – Recurrent UTI.

6.16.2022 – Loss of taste; covid test negative

7.12.2022 – Within 12 hours of the most recent booster, I lost my sense of taste. It lasted 2-3 days. 4 days ago, this recurred for the 2nd time. Both the first and second recurrences lasted about 36 hours. In my life, I had lost taste & smell once before.

12.17.2022 – I am on low-dose chemo for autoimmune problems. Don't know how much is vaccine & how much is other problems.o

Sinusitis, Lymphadenopathy and Nasopharyngitis

8.4.2021 – Swollen lymph node over collarbone

8.7.2021 – Swollen lymph node over collarbone, it's slowly going down

8.8.2021 – Swollen lymph node over collarbone, it's about 50% smaller than at it's worst

8.9.2021 – Swollen lymph node over collarbone, going down very slowly

11.3.2021 – Head old / sinus infection symptoms. Currently being treated for sinus infection, but at Dr now checking for pnemonia. Did covid test today to be certain of what is going on. (2 at home covid tests were negative) At urgent care because reg Dr was booked

Fibromyalgia, Eye pain and Ageusia

4.19.2021 – My normal is 96.8, so 99 is 2.2° up for me

5.18.2021 – My eyeballs hurt

5.19.2021 – I forgot to mention yesterday that my sense of taste was impacted. It's better but not totally back today.

5.20.2021 – I have chronic daily headache and fibro, so my headache, general pain and fatigue probably aren't related to the vaccine.

5.21.2021 – Those are fibro symptoms, almost certainly

11.15.2021 – Vomiting, then fever and loss of taste. Birth resolved within a week.

1.3.2022 – Cold symptoms: stuffy nose, achy

Gait inability, Coronary arterial stent insertion and Loss of consciousness

2.4.2021 – Dizziness

2.6.2021 – Yes. I had surgery on my left shoulder over a year ago and there has been a return of pai in the area where a screw was placed to hold the muscle in place after it was cut away.

2.19.2021 – Extreme pain in my left eye.

2.26.2021 – Face feels like it is on fire and extreme dizziness

3.11.2021 – Numbness in left shoulder in area of surgery of November 2019

3.25.2021 – Back pain more than usual. Wife also. She got 2d shot day before me.

4.1.2021 – For some reason my weekly allergy shots seem to cause me more pain. Also did dizzy spells are mor common.

5.27.2021 – Chest pains requiring hospitalization. Stress test and echo plus cath procedures for Friday 28 May 2021.

8.26.2021 – Severe back pain. Pain so bad unable to walk had to call EMS & go to ER. Severe dizziness and have fallen several times. Chest pain. Had to have a stent put I. Heart

2.25.2022 – Hip and back pain. Runny nose. Tiredness.

5.30.2022 – Upset stomach

7.23.2022 – Covid

10.22.2022 – Pain in right side. Possible surgery in the next month on Gallbladder.

Insomnia, Lymphadenopathy and Pain in extremity

12.30.2020 – Arm pain started around 15:00 the day of the vaccine and became moderate in severity as the evening progressed. This symptom appeared after yesterday's check in where I reported none. Fatigue was also in the evening the day I received the vaccine. Today arm is less sore and no noticeable fatigue. I have also felt a slight sore throat, very mild feeling of swollen glands in my neck which just feels like I'm having a mild immune response.

1.24.2021 – Some difficulty sleeping overnight due to discomfort

1.29.2021 – No headache so far today. Headache yesterday evening after yesterdays v-safe check in. Could have been due to several other things.

Oral herpes, Arthralgia and Pain in extremity

2.14.2021 – A patch of cold sores on my jaw.

2.15.2021 – Cluster of cold sores still on jawline

2.16.2021 – I dont have arthritis, however my thumb joints have hurt since Ive gotten the first Covid vaccination.

2.25.2021 – I thought my thumb joints were getting better but just today they seem to hurt a little more.

3.11.2021 – My thumb joints are hurting a bit more.

8.12.2021 – Ive mentioned that right after my first vaccination I developed pain in my thumbs it is now in my wrists. Ive never had the start of arthritis and there is no arthritis in my family. Im wondering if this is a residual from the vaccinatio

Brain abscess, Bacteremia and Pneumonia

2.21.2021 – Just so you know vaccine I believe no symptons ass before. Though I'm getting over pneumonia with symptoms still there though drs all encouraged the 2nd vaccine. Now their saying it likely exacerbated the pneumonia since my body is fighting to huild antibodies for both

8.15.2021 – In between 1st and 2nd shots got pneumonia, bacterenia then brain abcess. In hospital 4 months. Never had covid. Still in PT recuperating. Drs said take shot which Im sure my body fighting 2 things did not help.

Anosmia, Ageusia and Tinnitus

3.13.2021 – I had COVID-19 last August - headaches, loss of sense of smell and taste have been ongoing

3.14.2021 – Headache and ringing in ears are probably related to having past Covid-19

3.15.2021 – As I have noted some symptoms relate back to when I had COVID-19- the tiredness today has been less and back to normal. I have scheduled my second shot.

3.16.2021 – No symptoms that I attribute to the vaccine

3.18.2021 – There are none related by me to the vaccine. I do have ongoing symptoms which I relate to having had COVID-19.

3.19.2021 – I believe the rash which has existed prior to the vaccine is related to having had COVID-19 which is why I have not mentioned it before

4.12.2021 – I have had a lower backache since the day after my shot. Had not had a backache before. I have ringing in my ears and headaches which I attribute to my having had Covid19 several months ago

4.13.2021 – Still have lower back pain - it started after the shot but I can't state that it was caused by the shot. Otherwise I am ok.

4.14.2021 – The only symptom possibly related to the shot is lower back pain which manifested post shot.

Myalgia, Injection site pain and Arthralgia

1.4.2021 – Just a little sore

2.15.2021 – Severe pain at the shot site radiating from there up my arm across my shoulders and down my left arm, it hurts when I try to move them. Is this norm? Its the second day. (b)(6)

2.22.2021 – Severe pain in left and right biceps up to both shoulders. Ive had the same pain for almost 10 days. Please contact me if this is heard of in others

3.1.2021 – Extreme pain in both arms and shoulders for last 12 days and ongoing

5.3.2021 – Severedibilatateing pain in left shoulder and bicep Doctor visit

2.1.2022 – Continued pain in my left shoulder from my second Moderna shot in Feb 2021

Pruritus, Arthralgia and Pain in extremity

4.6.2021 – Sore throat

4.8.2021 – Itchy torso

4.10.2021 – Slightly sore throat

5.2.2021 – Mild Joint pain in my left thumb and right index and middle fingers.

5.7.2021 – Continued joint ache in my fingers on right hand and thumb on left. Mild aches

5.14.2021 – Mild Joint pain in the thumb, index and middle fingers on my right hand and thumb on my left hand.

7.6.2021 – Seem to be a little more forgetful on things. Also a feeling of tiredness cones and goes.

10.1.2021 – I received my booster shot on Wednesday 9/29 and I had the same symptoms. Fatigue, joint pain and headache

Joint swelling, Injection site warmth and Injection site rash

10.27.2021 – Last Thursday, 10/21/21 my upper right arm where I had the vaccine became quite hot with a slight rash, which lasted 6 days. It is still warm, not quite as hot. I am concerned. 1st vaccine: 10/13/21. No fever. Otherwise feel OK, a bit tired. I called my Dr. office. Prescribed a cream. Made it worse. Stopped using cream.

11.3.2021 – This morning, November 3, I went to Urgent Care. I have swelling on my Right knee. I will put ice and compression on it. If not significantly better, I must have an ultrasound this Friday, November 5. No fever.

11.11.2021 – My pulse is a little fast: 90-95 bpm.

11.12.2021 – Fast pulse. First thing in the morning, it was 107.

11.13.2021 – Fast pulse.

11.17.2021 – Fast pulse episode

11.18.2021 – Fast pulse rate

2.10.2022 – Where I was vaccinated, the injection site still feels warm, and sometimes I feel a pain down in the muscle where I got the shot. It's somewhat concerning, but I feel OK otherwise.

Dyshidrotic eczema, Migraine with aura and Aphthous ulcer

3.9.2021 – Migraine pain

3.11.2021 – Migraine aura twice today, which has never happened that frequently before.

3.19.2021 – Ten days of feeling crappy: exhaustion, stomach pain, headaches, three migraines, cough, congestion.

4.8.2021 – Migraine; two days in duration (unusual for me in frequency & duration).

4.20.2021 – Canker sores in mouth two separate times, for the first time ever.

4.22.2021 – dyshidrotic eczema on sole of foot

3.25.2022 – Increased headaches, increased migraines, dizziness, changed periods.

Respiratory tract irritation, Pulmonary pain and Constipation

3.1.2021 – I had a round small circle that was hard and flat for 2 yrs. Now it has risen into a bump that i can feel when on my back or otherwise. It's worrying me and I'll see a PMC Dr and ask for a referral to dermatologist this week. Can't get in yet. Doesn't seem like emergency. I've never had skin cancer if that is what it is or might not be that.

3.11.2021 – After first vaccine, I had a cyst on my back. Taking prescribed Augmentin. It's getting better. I'm tied today because my Dr ordered a fasting blood test for today and didn't sleep much so I'm not sure my symptoms are at all related to the Modena vaccines

3.12.2021 – Headache might be caused because I couldn't have my coffee yesterday. It's gone now that I had coffee.

3.15.2021 – Tried from changing the clocks i think

10.25.2021 – Injection site from very painful to better in several hours

10.27.2021 – Constipation

4.24.2022 – I took a home test in Feb and April 18 as my lungs felt like they were hurting feeling raw, but tests were negative and it may have been the dust storm events we were having in Las Vegas.

5.11.2022 – Runny nose

12.24.2022 – Fever, dry cough, no sense of smell or taste. Very uncomfortable. Exhausted