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Their Stories

What v-safe registrants wrote to the CDC after their Pfizer or Moderna shots, in their own words. Each card is one person, with all of their free text. This page shows only the longer stories: the 116,000 people who wrote at least 400 characters in all. The text is as the CDC released it, except that email addresses and phone numbers are hidden. You get a random set of these people on every visit.

Shuffle

Joint swelling, Sleep disorder and Insomnia

4GB-26143-97622

– I am waking up at 3:00 am with the joint and muscle pain. Last night I was up for 3 hours due to the pain with medication not helping.

– Im still waking up in the middle of the night with joint and muscle pain.

– I have Covid arm now. Its all from my shoulder to my elbow and is swollen. The symptoms started at day 11 after my shot. It is now day 15 and is worse today. I have been taking Advil for the swelling.

– The muscle and body aches are waking me up in the middle of the night and keeping me up for several hours.

Eye pruritus, Hypersensitivity and Somnolence

4GB-60287-31785

– I feel a bit groggy like I'm in a bit of a haze That's not really a good description, but it's hard to describe, maybe like a slight buzz would be a way to describe it.

– I think I'm having a really bad allergy attack tonight. Itchy eyes then a horrible runny nose and then vomiting but now it seems to be quickly subsiding. Other than that a pretty normal day and it seems like tomorrow could be a normal day. Called out

Back pain, Myalgia and Chills

4GB-62221-70366

– None

– Yesterday was the first day after my shot. Felt feverish, chills, muscle aches, fatigue. Took Tylenol and Motrin which helped. Much better today.

– I felt fine yesterday morning. Thought I was fine. Then about 4pm I got chills, body ache fatigue. I took two Motrin and laid down. Today I am feeling fine as of 2:30 pm

– My lower back is killing me. I always had slight lower back issue but they seem to have worsened.

– I had the omicron strain of Covid

Tongue discomfort, Injection site mass and Injection site induration

4GC-13431-72944

– Burned upon injection. About 5m after tongue went fuzzy and tasted it (like mri contrast). Felt a bit discombobulated.

– Bruises on top back of both calves, below knee- haven't injured thag part pf body or anything to have softball sized bruies on both legs- just odd.

– Haven't had a solid bowel moment since day after shot, borderline diarrhea but not to frequency of dehydration. Fever still comes and goes.

– On-going fatigue, exasperating depression, muddled mind, feet remained swollen, hard bb-ish size lump at injection site, consistently tender left flank (kidney)

– Blood pressure elevated, dizzy spells

Premature ovulation, Eustachian tube dysfunction and Ovarian cyst

4GC-14136-09645

– Swollen gland under armpit of arm that received 1st dose

– Severe Left lower quadrant pain

– Headaches every day or every other day since receiving first vaccination

– Swollen gland painful in armpit on side where I received the vaccine

– Swollen lymph node under arm, vaccination side

– Ovarian cyst, headaches, blocked ears, eustation tube dysfunction

– Headaches and i ner ear pain... similar to that of 2nd dose Scheduled ent condult in February

– Rec'd booster, ovulated 1 week early, positive pregnancy test, awaiting viability of pregnancy

– Had miscarriage. Received vaccine during ovulation Required surgery 2x

– Had miscarriage after getting covid 19 vaccine

– Pregnancy

Autoimmune disorder and Urticaria

4GC-25816-03965

– Hives in the areas were tight fitting clothes are. Belt area. I have had an underlying autoimmune disorder where I get hit spots and hives if I do not take Zyrtec ever 3-4 days. I now have to take daily to keep them manageable.

– Hives have become worse. Have been put on a tapered prednisone corse. Starting with 60 mg per day.

– Finished the coarse of prednisone and hive have returned. Have not been able to manage them without Zyrtec and bengals have to benaydryl

Polymers allergy, Allergy to chemicals and Feeling jittery

4GC-30629-66789

– On the day of the vaccine 10 to 15 minutes into it I had two quick episodes of blurry vision followed by a fainting sensation. Within the first hour I had another quick episode of blurry vision and tightness /swelling feeling in my throat. Within the first hour I also had tingling in my ears and a feeling Of numbness in my face and lips. That episode was quick. After about two hours the only symptom that persisted was the tightness/swelling in my throat. The only way I could explain it is that I could feel the inside of my throat when I swallow. Because of the swelling/tightness feeling in my through Im not sure what to do about my second dose. A nurse practitioner at my primary Doctors office recommended not to take the same vaccine for my second dose. I need to find out what to do. My dr. Had not given me a clear answer.

– Yes, during my first Covid vaccine my throat got very tight, I would even say swollen. I previously wrote all my symptoms. From quick episodes of blurry vision to quick episodes of tingling sensation on my face. I would like to know if Its safe for me to take the second dose of the Pfizer-BioNTech vaccine. I contacted my primary the day after the vaccine as I was told to do by the nurse who gave me the shot but I have gotten to answer. Please help.

– I now experience the following symptoms after taking Tylenol. Chills, myalgia, uneasiness in my body, feel very tired, sleep a great deal. These symptoms last for about two days and then they go away.

– My Average blood pressure has always been around 120/70. This past weekend it was at 100/70. I know that its at normal range, however, I felt some of the same body internal jitters/uneasiness, palpitations, & soar throat.

– I have visited two allergists and it seems that I have developed an allergy to polyethylene and propylene glyco as well as polysorbate 80 and any of their derived names. I Feel a constant inner vibration and a feeling of pins and needles at times. Primary Dr. and two different visits to allergists.

– I have developed a sensitivity to any product with polyethylene glycol, propylene glycol, polysorbates. The symptoms that I mostly feel are headaches and a jittery feeling inside my body. I have been to allergist and a neurologist. Visited two allergists and a neurogustvwhobdud an MRI but nothing abnormal was found.

Sensation of blood flow, Loss of personal independence in daily activities and Head discomfort

4GC-45334-03437

– Leg (hamstrings) cramps/ spasms

– Head pressure and hearing blood pumping. Really strange. It was so loud. Took BP 115/73 pulse 65.

– Loud rumbling GI track

– Sinus drainage, headache, coughing, chest congestion, felt a heavy feeling one night while standing like my body sinking or being pulled down was able to call coworker to standby in case I passed out. Pins/needles and burning in hands/arms

– Noticed balance issues. When I lean forward or bend over I have to adjust my center of gravity to keep from falling over. This is happening several times a day in recent months. Highly like it's unrelated, but I just noted I'm really concerned now.

– Haven't been sleeping. No matter how exhausted. not as productive as I'm used to being. find everything takes longer and I stay at work 12 - 16 hours to do what I usually do in 8. Really has been like this since Oct/Nov. weird & hard to explain.

Nausea, Injection site pain and Dizziness

4GD-15527-08874

– Arm wasnt sore around the location of the needle, but it was sore today.

– I made a mistake in putting the date of the 2nd dose, it should have been 2/9/21.. Yesterday was the really tough day, the 10th! By today I am feeling almost completely back to normal. So I will answer today but add notes about yesterday at the end.

– Very slight, however noticeable nausea.

– Not sure if it is related to the 2nd booster, but I felt more tired, and slightly dizzy sometimes.

Pigmentation disorder, Eye disorder and Ocular discomfort

4GE-10881-73170

– Spots out of the corner of my eyes, like Im seeing a fruit fly for a second or two. Lots of them as my vision moves.

– Spots in eyes still

– Spots are getting better, but not gone yet

– Still have the spots in my right eye

– Spots in my eyes and added wooziness , on all prior reports. The spots make a sense of dizziness.

– Still have spots and dizziness.

– Still have spots in my Right Ill I literally got them on the way home from getting my first vaccination I did not have their prior that would be any Green Lake large coincidence if it wasnt on the shot but I am going to go get it checked out in the house because its not a good sign of anything

– Dont know if Im just getting a cold or ? Im developing a cough with nasal congestion, Post nasal drip and a lot of phlegm.Which keeps me from going out.

– Spots in my eyes

Lip blister, Lymphedema and Photophobia

4GE-25144-63899

– Eyes sensitive to light, ears hurt, lymph nodes and glands swelling

– Blister on lip, rash on back and injection site

– Lymph nodes and glands enlarged and hurt, hives on stomach, rash on back, lip blistered, side of neck tender

– Lymph nodes and glands slightly swollen

– Non injection arm swelled today -lymphedema

– Non-injection arm has swollen

– Non-injection arm swelling, lymph nodes enlarged under arms, by collar bones and breast

Ataxia, Shoulder fracture and Amnesia

4GE-28123-18583

– Want to report symptoms after first shot

– Significant exacerbation of fibromyalgia pain and wooziness .This happened after first vaccine also in addition to significant exacerbation of itching from Auto-immune skin disease (Lichen planopilaris).

– All these symptoms are worse: fibromyalgia pain,Brain fog, tinnitus, headaches, dysequlilibrium,Exhaustion and prurits from auto-immune skin diaease. This makes work and normal activities difficult to do.

– Progressive weakness, pain, neuropathy, dizziness, memory loss, ataxia. Actually fell and broke shoulder. Exams by Specialists

Epigastric discomfort, Muscle twitching and Flatulence

4GE-31070-32203

– Injection site soreness is the only symptom I experienced.

– None

– All these symptoms occurred later last night, none today.

– Nausea was in the evening, last night.

– Last night

– None :-)

– None.

– Weird muscle twitching on the right and gas like pain in upper abdomen just under the rib cage. Doubtful that it's related to the vaccine, although never experienced before.

– No symptoms

– Gastric discomfort high up by diaphragm

– Diarrhea and gas

– Slight indigestion

– Was exposed to an idiot who tested positive for Covid this week. I'm testing negative so far. Have had vertigo at times and upper chest feels a little tight for the past 3-4 days. No airway problems. Will test again tomorrow.

– Atrial fibrillation for 1.5 hours after a bout of the stomach bug.

Injection site discomfort, Paranasal sinus discomfort and Injection site swelling

4GF-10425-32551

– slight localized soreness at injection site

– increased localized soreness around injection site overnight, sore with movement & to the touch

– soreness around injection site diminishing today

– injection site soreness almost gone

– soreness at injection site faded within 3 days

– soreness around injection site only lasted 3 days

– escalating soreness around injection site.

– escalated soreness around injection site

– injeciton site soreness dissipated in two days

– Arm pain around the injection site & in the axillary lymph nodes.

– Slight chills approximately 18 hours post injection, 24 hours post, soreness at injection site diminished, axillary nodes remain sore, only marginally diminshed. s diminished

– axillary nodes soreness/pain & swelling persists, discomfort at injection site negligible

– Axillary nodes remain swollen, swelling only slightly diminished, soreness negligible. Injection site pain gone.

– Axillary nodes swelling & discomfort not completely gone yet.

– axillary nodes swellling diminished, but persists.

– Moderate pain and swelling in the axillary nodes on the side of the injection site

– Persistent redness, swelling, and pain of the axill ary nodes on the same side as the injection site. Spreading redness and increased itching around the injection site. ary nodes on the side of the injection site. Redness

– Axillary nodes (on the same side as the injection site) remain swollen, the redness is diminished, and the pain is abating. A ~3"x3" amorphic red patch surrounds the injection site which is still slightly swollen and sore.

– Axillary nodes still swollen but less sore. Injection site soreness, itching, &swelling gone , redness persists but is diminished

– Axillary nodes on same side as injection site remain swollen, but no longer painful. Redness around injection site almost gone, soreness is gone.

– Axillary nodes swelling persists, but diminishing. Diffuse redness around injection site almost gone.

– axillary node swelling on the same side as the injection site persists but is diminishing.

– Sinus pressure, possible upper respiratory infection

– low grade fever, congestion, cough, followed by positive covid test monoclodal antibody treatment

Hypokinesia, Injection site pain and Pain in extremity

4GF-20100-52796

– Only feel pain when I lift my arm (that had injection) up enough to lift elbow out.

– Pain on arm which got vaccine is substantially less than 2nd day. Resting & catching up on sleep has really helped

– Pain at site of injection now only when it accidentally gets bumped or hit.

– Arm/site of injection minimally sore only at direct site of injection. Entire arm no longer sore. Tiredness believed to be seasonal allergies related.

– Sore throat, congestion & headache. Think it's allergy related & just started last night after being in (b)(6), TX area & now in (b)(6), TX area.

Shoulder operation, Massage and Mood altered

4GF-28895-70272

– Just feeling a bit off. Not ill, just off.

– A supraclavicular lymph node has popped up on my vaccine side (left)

– Still have supraclavicular lymph node on vaccine side. May be Slightly smaller and it is not sore anymore.

– No change to left supraclavicular lymph node.

– Still have my lymph node. No change from yesterday.

– Still have the supraclavicular lymph node. No change.

– Lymph node on vaccine side still there. Above clavicle. Left.

– Increased tinnitus in left ear- vaccine side.

– Lymph node at collarbone on vax side is back.

– Just kind of out of it. And a bit delicate emotionally for no obvious reason.

– Supraclavicular lymph node is back on vax side

– Supraclavicular lymph node persists.

– Lymph node at collarbone still doing its thing.

– Supraclavicular lymph node still hanging tough.

– Superclavicular lymph node on vaccine side is once again palpable and sore. May have other lymph node action going on in my axilla- as I feel some tenderness there too. Slight tinnitus in left (vaccine) side ear as well.

– Supraclavicular lymph node is less sore but still about the size of a marble.

– Still have my supraclavicular lymph node on vax side. No longer tender and may be a bit smaller. Still intermittent tinnitus in vax side ear. Received craniosacral therapy from an LMT for headache.

– Supraclavicular vax side lymph node still persists, but is less prominent and no longer tender. Tinnitus is now intermittent instead of constant.

– Tinnitus and supraclavicular lymph node on vax side are diminishing.

– Had some nasty viral infection back in January- but 6 negative COVID tests for it so whatever it was, it didn't appear to be COVID. Very steep like in presentation, but negative strep test as well.

– Had major shoulder reconstruction surgery 7/1/22. Then caught COVID 2 wks into recovery Outpatient surgery at hospital, and follow up in office visits

– Had a huge systemic inflammatory flare- lasted about 5 days- pain in both feet, right ankle, both knees, right hand and left wrist. My Dr was unsure of whether it was a post vax immune response but couldn't rule that out

Abdominal pain lower, Anosmia and Ageusia

4GF-28905-03327

– Rash on face I think from eating fresh ginger also stomach sick from fish I think that was bad

– I had a terrible headache the next day and I felt exhausted for 2 days I also had nausea and vomited on Saturday I feel much better today

– Just coughing

– Still sneezing and coughing also pain in lower abdomen and back Doctor and chiropractor

– I tested positive for COVID-19 about 4 weeks ago had sneezing cough headache diarrhea achy fever lost smell and taste all for about 8-9 days Received antibody infusion still have a little cough and have to use an inhaler

Oropharyngeal blistering, Tongue blistering and Dysstasia

4GF-33768-57448

– Some breath and coughing issues with my asthma

– I feel really tired, but unless I'm half dead I will come to work. I can't afford to stay home.

– I had an unusual symptom I forgot to mention that started Monday that I thought nothing of until my coworker developed the same with hers. Ive got blisters underneath my tongue and in the back of my throat

– My arm feels like its on fire

– I went to work and had to leave I was so achy and weak I couldnt stand up I called the nurse at my pcp and also spoke with my pharmacist

– Breathing problems. Have to use my rescue inhaler

– Asthma symptoms seem to be worse

– My body feels disconnected and not quite right and my headache is horrible

– Feeling dizzy and lightheaded

– Ive a cough that wont go away. And Ive an appointment with my Pulminory doctor Monday Visit Monday 3/15

– Wheezing and shortness of breath Seen my pulmonologist for breathing issues

– Worsening cough and shortness of breath Heart and lung doctor

– Severe facial pain around my eyes and nose

– It itches and burns horribly

– Lost voice, uncontrolled cough, body aches low grade fever and headache

– I've had COVID Family doctor and pulmonologist

Hyperventilation, Induration and Neck mass

4GG-16685-67191

– Hard nodule between right (shot side) clavicle and shoulder, with pain extending into shoulder. 2 days persistent

– Nodule still in shoulder. Size and hardness same, pain has lessened to only dull ache when prodded. Also have cold (probably unrelated) with fatigue, mild cough, and excessive sneezing.

– Loss of taste late night of the 28th, restoring through 29th, seems fully recovered today

– Haven't been able to take a deep breath without pain since at least the 30th. Last night tried holding my breath, only lasted 10s before I started blacking out. Today is worse, get dizzy immediately if I stop taking regular breaths or stand up.

– Still get dizzy easily, pain from lungs to lower jaw on deep inhale.

– Deep breaths still slightly painful, less dizziness

Ovarian failure, Feces pale and Chapped lips

4GG-18127-42697

– cold nose, shoulder pain in opposite arm that is moderate compared to rest of pain. No reason for left shoulder pain.

– Mild headache

– Light tan colored poop Ive had it since the day after vaccination but now its starting to concern me. But its not like its white or chalk so hopefully it will go away soon.

– Weird pain in upper middle abdomen

– Headache maybe unrelated

– Extremely chapped lips not Norma

– Concern I didnt get the real vaccine because my arm didnt even hurt. No symptoms of the second one my arm didnt even hurt

– Weird pain in left side of neck and shoulder. Doesnt feel like muscle feels like vein pain.

– Heart palpitations

– Got diagnosed with ovarian failure

Pulmonary congestion, Joint swelling and Muscular weakness

4GG-25477-35145

– Nonu

– None

– Coughing, congestion in lungs runny, nose and fatigue. I did a self test for Covid three days ago and it came back negative I went to urgent care yesterday and they say I have the flu. They tested again for COVID-19 but it will be a couple of days be

– No

– Bloodwork done on me recently showed me to be ANA positive. I will be seeing a rheumatologist doctor in a couple of weeks. I also am having some swelling in the feet and ankles and weakness in my legs. I am currently seeing a neurologist for that. I have seen the neurologist three times in the past month and his office.

Food poisoning, Injection site bruising and Abdominal pain upper

4GH-12572-68190

– I forgot to mention from previous days. 24hrs after shot strange stabbing pains in feet and fingers. Not pins and needles. Subsided over night. 48 hours after shot stabbing pains in fingers again not in feet this time. Subsided over night. No further pains so far.

– Stabbing pains in hands and fingers

– Mild stomach ache. Resolved quickly. Stabbing pains have stopped for the time being

– Bruising at injection site

– Food poisoning

Pelvic pain, Thrombosis and Tinnitus

4GH-24670-93256

– Cough

– Ringing in ears, cough, runny nose, tired

– Fever, congestion, cough, foggy brain, chest pain, fatigue...all the COVID symptoms except loss of taste and smell

– No rash, but I do feel itchy

– Itching

– Arm pit lymph node pain

– Fever, chills, horrible cough and congestion

– Pain in arm pit area of injection arm, inflamed gland in pelvic region (may be unrelated but just happened this weekend)

– Pain in pelvic region, possible cyst or lymph node flare up

– Vulvular blood clot removed

– Congestion, headache, cough

Hypoesthesia, Nasopharyngitis and Respiratory tract congestion

4GH-26124-90096

– I have a cold with sore throat and runny nose. I likely caught it from my daughter. She tested negative for covid both times using the otc Abbott BinaxNOW antigen self test.

– Congestion, runny nose, coughing, and body aches from cold I got last week.

– Caught a cold from family members - sore throat, runny nose, coughing, and achy

– Periodic numbing sensation from right ear to middle of chin and neck area below. Started approx. 10/9 in smaller area, but has expanded and seems more frequent at times.

Mast cell activation syndrome, Blood glucose decreased and Specialist consultation

4GH-30908-84012

– Nasal congestion, like when you get a cold. Also, fatigue could be from when I had covid in Dec-Jan since I had long-haul fatigue symptom before vaccination.

– Could be the covid fatigue Ive had since I got covid late December

– Heart palpitations, up to 5 PVCs in 30 seconds. Am seeing a cardiologist. Will wear heart monitor too

– Heart palpitations

– Heart palpitations. Weak, similar to low blood sugar, but ate well.

– Heart Palpitations

– Started an inhaler, Flovent, on advice of pulmonologist. Now have hoarseness and dizziness. Still struggling with Covid fatigue and heart palpitations. GP, cardiologist, pulmonologist

– Laryngitis, but perhaps it is caused by steroid inhaler prescribed by pulmonologist who is trying to help with my long-covid lung issues.

– Indigestion- but possibly related to steroid inhaler with dairy powder, Flovent Discus. Upon stopping Flovent my laryngitis went away and my energy is better.

– Continuing: Fatigue, palpitationsNew: Hair shedding

– My allergies have gotten very bad, Mast Cell Activation Syndrome. Am schedule with Stanford covid clinic

Lymph node abscess and Lymphadenopathy

4GK-19198-63873

– I have developed a lump on my collarbone area on the left side. I am assuming a lymph node. It is on the same side that I received my shot. I do not believe it was there yesterday morning as I didn't feel it when I showeded. I found it last evening while getting ready for bed. Unsure if I need to call my healthcare provider.

– Lump in neck, assuming lump is a lymph node. On same side as the arm I received my vaccine in. I did call my PCP who feels may be vaccine related and to watch for now. They did not see me in person.

Hypersensitivity and Fatigue

4GK-26795-51841

– I have had extreme fatigue since getting the vaccine but I sometimes have it from RA so I didnt report it

– I went to ER had steroid Pepcid and Benadryl iv

– This despite taking 50 mg Benadryl every 6 hrs symptoms return if its stopped

– Still taking 50 mg Benadryl

– At check up with lung specialist discussed symptoms

– I have had Covid antibody test and have zero although fully vaccinated since I had a severe allergic reaction don't know what to do. Am immunocomprimised.

Speech disorder, Gait disturbance and Wheezing

4GK-31774-38129

– I was found positive for COVId and hospitalized. April 18, 2020 ...... cant enter correct year below. I am a long hauler with COVID lungs in all 4 lobes. BP has been high and uncontrolable, achy legs, chronic coughsWheezing, been on several pred

– Higher blood pressure - difficult to get under control. Chronic leg and feet pain. Unable to sleep or stand and walk for periods if time. Still issues with breathing and talking.

Catarrh, Loss of consciousness and Dry mouth

4GK-81075-17305

– Cotton mouth and dry mouth.

– Sudden moments where I feel like I can't catch my breath

– Increasing amount of pain where I got the shot and it generates this way all the way down to my fingertips and then an travels up my shoulder to the middle of my chest like I'm ready to have a heart attack I passed out and I woke up this still contin

– Trouble breathing from The Continuous mucus buildup no infection at least once a week extreme pain in my left arm traveling from my shoulder to my fingertips from my shoulder to the left side of my chest frequent headaches

Eye symptom, Speech disorder and Bell's palsy

4GL-29805-85192

– Very bad right ear infection and sore throat.

– I have severe Bells palsy affecting my right side of my face and eye. My eye does not blink, I have difficulty swallowing and speaking. My right ear hurts and I have face and head pain right sided.

– Continued issues with Bells palsy

– Pain in ear and jaw on side of face effected by bells palsy. Continued Bells palsy.

– I had Covid which resulted in headaches lots of fatigue, congestion, body aches and cough

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