Their Stories

Balance disorder, Mobility decreased and Somnolence

4.5.2021 – I felt like I was intoxicated for about 2 hours this morning because my equilibrium was so off.

5.7.2021 – My right arm where I received the 2nd shot has gotten very sore and difficult to lift. I am also having major stomach issues and had a fever on Friday slept a lot.

5.14.2021 – Extreme diarrhea for 2.5 days earlier this week after feeling a bit feverish again the day before.

6.4.2021 – Severe stomach upset with diarrhea and some vomiting in and off over the past week.

2.27.2022 – More stomach upset, nausea, and diarrhea

Visuospatial deficit, Urinary incontinence and Cognitive disorder

4.16.2021 – low back pain (muscles)

4.24.2021 – low back pain

5.1.2021 – Multiple short episodes of dizziness per day, mostly WITHOUT changing vertical position first (!!!), (very odd), mostly while standing or lying down (rarely sitting). I think usually while or shortly after turning? Duration 310 s, frequency 2x8

8.7.2021 – Fatigue & weakness; mild nausea; headache; chills onset was 6 to 8 h after eating shellfish & duration was <18 h my COVID-19 sample taken ~26 h after the meal tested negative.

5.21.2022 – (most likely completely unrelated) 3 or 4 days of bad low-back pain + accompanying moderately severe urinary incontinence resolved with rest; standing & walking or lying flat instead of sitting & slouching; & prescription NSAID

10.22.2022 – *covid-19 (with symptoms of sore throat, cough, fatigue, shortness of breath, poor concentration, fever) * lingering shortness of breath * & new attitudinal vertigo/ dizziness (starting 1 or 2 weeks after negative RCT again) which continues now

Therapeutic response unexpected, Depression and Nasopharyngitis

4.6.2021 – Dizziness, but Im wondering if my symptoms are due to acetone breakthrough in my respirator (long story).

4.9.2021 – I feel fantastic today and I think I was a COVID long-hauler and didnt know it because of my depression history. The first shot seemed to get rid of my fatigue and this is the best Ive felt on a Friday in months.

10.25.2022 – Just a non-COVID cold

11.1.2022 – Just fatigue and depression, may have nothing to do with the vaccination.

Eyelid bleeding, Skin fissures and Grip strength decreased

1.18.2021 – Possible fever at night. Awoke in pool of sweat. Temp normal. Pretty sure nausea is from the headache.

1.19.2021 – Very weird headache - left side of head, face, and brain felt like they were on fire and throbbing for several hours last night; face was very flushed much of the evening too.

2.14.2021 – This system is not set up for real time vaccination outside the exact 28 day recommendation. My second shot was 4 days early. Strong reaction starting the morning after my shot and lasting 24 hours: freezing cold, severe muscle aches, mind headache, fever +2 to +2.8 degrees for 18 hours then it came down slowly over the next 6 hours. I felt like a truck hit me the morning after the vaccine; I was 100% better 24 hours later.

3.3.2021 – 1) Really odd issue with my right ankle buckling or maybe it's a nerve misfiring. Happens going down stairs. Not every time, but often. Right ankle. Feels like it's something with a tendon.2) Very cold in evenings frequently. Like chills with vax

2.24.2022 – Loss of grip strength (better today than yesterday), cotton mouth despite being well hydrated (started evening of shot, lasted about 24 hours. Weird)

5.24.2022 – Eyelid inflammation likely NOT due to vaccination.

8.23.2022 – Bleferitis (both eyes) and cracked eyelid (crack is inflamed and bleeds) controlled by topicak steroid-antibiotic ointment.

Menopausal symptoms, Postmenopausal hemorrhage and Tinnitus

6.26.2021 – Tinnitus

6.27.2021 – I had tinnitus after the first dose, but I don't know that I mentioned that. All symptoms were milder after the second dose compared to the first.

7.8.2021 – Hormones

7.15.2021 – Hormones are still not normal. Another female riend also had fluctuating hormones. Both agree that this was worse when we had Covid.

7.22.2021 – My coworker and I both had hormonal fluctuations. It was worse with Covid; then I felt like I did at the end of pregnancy. With the shot it feels more like going through the change again. Seems to be stabilizing.

8.5.2021 – I'm postmenopausal and I started my period Tuesday. Something weird is happening with my hormones. Going to doctor next week. Weird things also happened when I had Covid. Going to Obgyn next week

9.23.2021 – Went to the gynecologist. No abnormalities found to explain my period. Haven't had a cycle since- no acne, breast tenderness, bloating, etc. No known reason for my hormonal abnormality. Seem to be back in menopause.

Appetite disorder, Amnesia and Toothache

1.19.2021 – Leg pain; difficulty concentrating

1.20.2021 – Appetite seems off today. I still have upper right back and right chest pain

1.21.2021 – Still back and chest pain on the right side. Its getting some better

1.22.2021 – Same as before

2.22.2021 – Hair lossLeg painDiagnosed with COVID 11/23/2020

3.22.2021 – Continued hair lossTeeth/jaw painTiredness

5.10.2021 – Tooth pain; joint pain; chest pain; tiredness; hair loss; blurry vision; sleeplessness at night; trouble remembering; thinking clearly

8.9.2021 – New joint pain, headaches continue, hair growth but now its curly and thin Several face-to-face doctor appointments

Post-acute COVID-19 syndrome, Therapeutic response unexpected and Dyspnea

4.7.2021 – Worsening SOB and nasal congestion

4.9.2021 – SOB. Dizziness. Cough. Chest and nasal congestion. Im a Covid long hauler. So many of my symptoms are simply stable.

4.11.2021 – I have post acute Covid/long haulers syndrome. With the exception of the first 24 hours, I have not had any vaccine related symptoms except mild tenderness at the injection site. All of the other symptoms are not from the vaccine and should not be included in your data. However, your questions ask my symptoms, not my vaccine-related symptoms. Im concerned that this method of data collection is not gathering all the data accurately which may have a negative impact on the vaccine stats.

4.12.2021 – I have other symptoms related to post acute Covid syndrome

4.13.2021 – Only my post acute Covid symptoms which are chronic since October

4.14.2021 – Only symptoms from my post acute COVID-19 syndrome

4.28.2021 – No symptoms from the injection 1.5 hours ago

4.29.2021 – Lightheadedness

5.4.2021 – The vaccine has improved, but not resolved, my long haulers/post acute symptoms

6.9.2021 – Slight worsening post acute Covid symptoms. These had initially improved (not resolved) after my first Pfizer vaccine.

Fear of disease, Stress urinary incontinence and Arthropod sting

1.19.2021 – Injection site feels mildly warm and tender when gently pressed...but it is not red.

2.10.2021 – Headache, Sore throat, extreme salivating in a water bottle, coughing

2.11.2021 – Even all my teeth hurt. Sweat so much I changed pajamas 3 times. My clean hair dried stiff with so much salt from sweating. My front tooth has a chip from chattering chills. Hard to swallow with swollen glands and sore throat. I pray future boosters will not have such severe after effects.

2.13.2021 – You apparently do not want to know, when you say this expired

2.14.2021 – Fever blisters lips, nasal inside and outside, swollen nose tip, coughing, excessive mucus and saliva.

2.16.2021 – Heart rythmn irregular, swallowing difficult.Brain fog, dizziness, muscle spasms at night, nightmares everynight since 2nd shot, sore throat, earache since shot, night sweats, blurred vision, cough so hard causing incontinence, getting scared this sickly feeling will not end. Should not have gotten vaccine

2.23.2021 – Coughing, heaviness on my chest, excess saliva and mucus, pains in right chest, weakness, fatigue, diarrhea

8.10.2021 – Wasp or bee sting right hand swelling. Also I still have after Moderna innoculation excessive night coughing from phlegm and saliva.

Muscle rupture, Middle insomnia and Stress

3.27.2021 – I just got the shot today so it is too early to know

3.30.2021 – ringing in my ears. (Also the day after the shot which I didn't report.)

4.1.2021 – tinnitus, woken from sleep with stress attack

4.3.2021 – tinnitus

4.24.2021 – Vertigo every morning.

10.3.2021 – Back and hip pain for 2 weeks still not resolved. Not sure if it has anything to do with the vaccine, though.

12.3.2021 – Sinus headaches almost every day and plugged up ears. I don't usually have sinus headaches.

4.17.2022 – Upper back pain on and off. Possibly from irritated stomach

4.26.2022 – Torn muscle in back. Sore throat that keeps coming back

5.3.2022 – Upper back pain, tingling in toes possible disc rupture

5.17.2022 – Extremely high blood pressure 203/113 at the doctors office. It has been climbing steadily since I was boosted. Usually around 135/85. Looking at my records it rose after my last booster but not as high

Sinusitis, Injection site pain and Nasopharyngitis

3.1.2021 – It may be that I have just gotten a mild cold/sinus infection, began last Friday, probably has nothing to do with the vaccine

3.4.2021 – Slight soreness near where I got the shot

3.9.2021 – Seems more like a bug bite though early in the season for that

9.29.2022 – Got COVID in early July while on a cruise, pretty sick with a fever for one day then only mild symptoms. Did continue though to test positive 12 days out but no symptoms by then

Corneal lesion, Inflammatory bowel disease and Anal incontinence

2.27.2021 – Still dizzy

2.28.2021 – Sniffles

3.1.2021 – Dizziness

4.2.2021 – Severe IBS. cannot keep bowels from dumping. Taking Imodium and lomotil Bad smell. May be C-diff coming on.

4.9.2021 – I have a lesion on my right eye, and it looks like a second one is developing there, too. Specialist doctors office

8.29.2021 – I have had to go to the ER TWICE for rxs for UTIs. At one point, they admitted me for an overnight for IV antibiotics.

12.31.2022 – Fell and tore my rotator cuff, but y'all want to hear that husband and I both got the COVID in November and we're very ill ?. He was in ?? hospital 6 days, rehab for over three weeks. I was home but quite ill. We are both ok now. B Husband hospitalized

Oropharyngeal discomfort, Throat tightness and Musculoskeletal chest pain

3.19.2021 – The headache started within 1 hr of vaccination and only on the right side of my head. Right lung had tightness and right side of my throat.My nose also was stuffy. Sharp pain in my right arm pit lymph nodes, shoulder and neck pain with right side of the neck lymph nodes swollen and sore. When the pain in the arm pit occurred it was approximately 4 hrs after vaccination. Then severe pains running across my right rib cage. All these additional symptoms occurred yesterday. Stomach issues started around midnight on day of vaccination and continued today 19 March.

3.20.2021 – I think I forgot to report that after the vaccination I had a metallic taste in my mouth

4.3.2021 – Diarrhea

4.8.2021 – Stuffy nose and throat felt restricted slightly for about 3-4 hrs.

4.9.2021 – On 08 April had metallic taste. Today my right arm pit and lymph nodes are swollen and very sore even into my left breast. (Left arm used for vaccination)

4.11.2021 – Lymph nodes and left arm pit ( injection arm) still swollen and very sore even into the left breast

4.12.2021 – Left arm lymph nodes and side of breast are still swollen and sore.

4.22.2021 – Low grade fever Round 99F and fatigue since last check in Vaccination arm itching -mild

5.6.2021 – Leg pain in the calf

Endometrial disorder, Postmenopausal hemorrhage and Viral infection

2.14.2021 – Resting heart right about 5 bpm higher than usual.

2.15.2021 – Resting heart rate as shown by my watch is still about 5 bpm over normal

9.12.2021 – Uterine bleeding from growth after 20 years in menopause with no bleeding. Aortic valve leak got a little worse.

4.28.2022 – Cough, runny nose

5.26.2022 – I have had random hives for the past 17 days that come and go. For the past 5 days I have had a virus caught from my grandson.

10.20.2022 – Covid and post Covid syndrome

Exercise tolerance decreased, Pain in jaw and Asthenia

2.15.2021 – I am just feeling very fatigued, but I doubt its connected to the vaccine.

2.23.2021 – Sore left jaw

2.27.2021 – I dont feel so bad but have very low strength and stamina while exercising

3.8.2021 – General malaise kinda achy.

3.23.2021 – Im not sure if it even relates to the vaccine, but since I received the second dose (maybe even before) I have been mildly achy, headachy, and fatigued. I usually work out at high intensity for over an hour. Now I struggle through 30 easy minutes.

Upper-airway cough syndrome, Insomnia and Lymph node pain

5.30.2021 – Dizziness

6.19.2021 – Insomnia

12.17.2021 – 2 illnesses: -runny nose -sore throat, nasal congestion, post-nasal drip

2.7.2022 – Swollen and painful lymph node under shot arm

2.8.2022 – Swollen and painful lymph node in armpit of shot arm

2.9.2022 – Swollen painful lymph node

2.10.2022 – Swollen lymph node under shot arm

2.12.2022 – Swollen lymph node in armpit of shot arm

5.6.2022 – Nasal congestion

9.25.2022 – Swollen painful lymph node in armpit on shot side

9.26.2022 – Swollen painful lymph node under shot arm

9.27.2022 – Swollen painful lymph node under arm on shot side

9.28.2022 – Swollen lymph node

Swelling, Erythema and Pruritus

4.30.2021 – Dizzy

11.8.2021 – Red, swollen, itch on neck and collarbone

11.9.2021 – Redness, swelling, itching on neck near collarbone

11.10.2021 – Swelling, redness, itchy on neck by collarbone

11.11.2021 – Swelling neck by collarbone

11.12.2021 – Slight swelling in neck by collarbone

2.5.2022 – Swelling lymph node in collarbone area with red & itch collarbone/neck/upper chest area mostly on injection side. Began on 12/25. Similar to reaction after booster (11/5) except won't go away. Saw doc. Claritin since 1/13. Better but not gone.

Corneal dystrophy, Immunosuppression and Rheumatoid arthritis

1.9.2021 – My normal temp varies between 96 and 97 so I've had significant fever even with high doses of Tylenol.

3.11.2021 – I take monthly infusions for rheumatoid arthritis and it seems like my arthritis has worsened since the vaccinations and I cant seem to shake a cough or tiredness since the first dose in January.

8.5.2021 – I had surgery and was tested for antibodies to the vaccine, twice, and both tests were negative. I am immunosuppressive and the vaccine didnt work for me.

4.16.2022 – Extremely tired since

4.28.2022 – Tired

9.22.2022 – I got Covid and was very sick for several weeks and still feel sick.

11.26.2022 – Chest pain

12.7.2022 – Fatigue

Viral skin infection, Nail discoloration and Vitamin D deficiency

2.10.2021 – Wheezing. Extreme skin sensitivity.

3.7.2021 – Wheezing. Hands are extremely cold

3.9.2021 – I still have cold hands

3.10.2021 – Still have really cold hands

3.11.2021 – Still have cold hands

4.10.2021 – Brain Fog. Has happened the last month since vaccine #2. Couldnt put my finger on it until I spoke to my doctor

4.17.2021 – Still brain fog

6.5.2021 – Depression.

9.4.2021 – Depression Vitamin D deficiency.Still have brain fof

11.29.2021 – Depression. Little bit of wheezing

12.6.2021 – Migraines. Depression. Sleep loss.

1.31.2022 – Fatigue. Depression. Viral outbreak across the face.

5.2.2022 – Vaccine related. A sensation of dead arm sometimes in the left deltoid. FYI I did just have my second booster today

5.2.2022 – Just had fourth dose three hours ago. Ask me tomorrow

5.5.2022 – Blue fingernails Waiting for a call from NP

5.6.2022 – Blue fingernails still

5.7.2022 – Blue fingernails

5.8.2022 – Fingers are still blue.

5.9.2022 – Fingernails are still blue

8.1.2022 – Covid

Mobility decreased, Migraine and Lymph node pain

11.9.2021 – Painful and swollen lymph nodes under left arm - same arm as shot

11.10.2021 – Pain and swelling in lymph nodes under left armpit - same side of arm with shot

11.11.2021 – Mild swelling and tenderness in lymph nodes under arm that received shot

10.28.2022 – I had Covid. I tested positive on August 23, 2022 and had symptoms for about 2 weeks - sore throat, runny nose, sneezing, significant fatigue for 4-7 days (slept in bed for three days straight), one day severe headache/migraine

Pain of skin, Urticaria and Decreased appetite

2.20.2021 – Rash is slightly worse.

2.27.2021 – Hives/rash that comes and goes ever since the vaccine. Skin itchy and sensitive to touch and breaks out in hives when touched or scratched. Saw physician 2/23/21. Started Zyrtec once a day. No hives since 2/25/21. Regular Office visit

3.6.2021 – Still have light rash unless I take Zyrtec antihistamine

3.13.2021 – Hives but controlled by daily Zyrtec

3.20.2021 – Severe back and joint pain

2.6.2022 – Slight rash from original vaccination has developed into consistent rash/hives and wider area, fatigue, loss of appetite after booster

Pharyngeal ulceration, Mouth ulceration and Ear pain

1.12.2021 – The lymph nodes in my armpit are painful

1.14.2021 – The lymph nodes in my armpit are still very tender in the same arm in which I received the vaccine

10.31.2021 – Painful lymph nodes in armpit and breast

11.2.2021 – Swollen and tender lymph nodes, sore throat, nasal congestion

11.3.2021 – Sore throat, nasal congestion

11.4.2021 – Sore throat and stuffy nose

11.5.2021 – Nasal congestion

4.30.2022 – Head congestion, sneezing, sore throat, mouth and throat ulcers, ear pain, mild cough

11.4.2022 – Severe lymph node pain

11.6.2022 – Severe lymph node pain and swelling

11.7.2022 – Moderate lymph node pain

11.8.2022 – Moderate lymph node

11.9.2022 – Lymph node pain and swelling

Synovial cyst removal, Goitre and Respiratory syncytial virus infection

12.30.2020 – Head rush within about 2 minutes of injection

1.4.2021 – Hyperactive bowel sounds

1.16.2021 – Thickening of the supraclavicular notch for the past 1 1/2 week. I have experienced a cold (cough, sore throat, runny nose) and was tested for COVID.

1.23.2021 – Increased heart rate

2.5.2021 – Swelling in my thyroid area has caused more discomfort.

2.12.2021 – Nasal Congestion and cough

2.19.2021 – Vomiting and diarrhea for about 24 hours

4.23.2021 – Ganglion cyst had to be removed Surgical procedure

1.22.2022 – I had pneumonia and also RSV. Some other virus (covid tested negative) that lasted about 8 weeks. Upper respiratory symptoms,

Musculoskeletal discomfort, Muscle tightness and Neuralgia

12.20.2020 – Upper back spasm/tightness like discomfort

12.21.2020 – Again have had weird upper back sensation. Tightness/spasm around spine. Seems muscular, but intermittent. No other body aches, only upper back, across shoulders and across chest a bit today. This started 5 min after the vaccine Friday and has continued intermittently.

12.22.2020 – Chest and upper back discomfort that is worse today than previous days.

1.9.2021 – Lower back & hand joints, very mild

2.19.2021 – Muscle and seemingly like nerve pain in back mid to low back.

Ataxia, Vomiting and Back pain

2.19.2021 – Fogginess. But thats may be related to the COVID, a lingering effect.

3.16.2021 – Motor control in my legs had reemerged. It as if my legs disappeared and collapsed to the ground. I was able to get up. Also, my stuttering is back. Appointment with Neurologist

3.24.2021 – Back pain. I have had back problems in the past, nut since I received my pfizer shot, my back has gotten an order of magnitude worse. Who knows if there is a correlation or not. But something changed. See a pain doctor

3.30.2021 – Still have a fair amount of loss of muscle control. Neurologist

4.21.2022 – I vomited the morning after. Nausea stayed with me for only about 30 minutes

Generalized edema, Injection site mass and Dysmenorrhea

4.30.2021 – Entire arm from shoulder to elbow solid red and swollen! So painful!

5.1.2021 – My arm from shoulder to elbow is one solid swollen, bright red painful mess!

5.2.2021 – Same issues continue from my shoulder down to my elbow. Pain, swelling & redness

5.30.2021 – Overall pain swelling and stiffness! Awful to try and work through. Don't understand it.

6.6.2021 – My joints sre severely painful and swollen. I still have a lump on my arm from injection site. Just my body hurts.

4.25.2022 – Joint pain and swelling with redness. Tiredness

Photophobia, Abnormal dreams and Visual impairment

4.13.2021 – Insomnia for seven days. Mild headache comes and goes. Sensitive to light. Intense dreams for seven days. Feel hyper alert.

4.20.2021 – My vision has changed abruptly. I have had headaches and insomnia since the second vaccine. Will see my ophthalmologist tomorrow. My neurologist said his patients with headache history have been having headaches since their vaccine. Will see ophthalmologist tomorrow tomorrow.

5.18.2021 – Developed shingles May 15. Went to doctors office May 17 because of abdominal pain. Rash developed May 18.

Thoracic outlet syndrome, Exertional headache and Post herpetic neuralgia

5.3.2021 – Swollen lymph nodes

5.4.2021 – Swollen lymph nodes, post herpatic neuralgia

5.26.2021 – Shingles outbreak

7.28.2021 – Second shingles outbreak, continued low grade fever

10.27.2021 – Third outbreak of shingles (while on suppressive therapy), chest pain, shortness of breath, POTS

5.3.2022 – Long Covid, POTS, post herpatic neuralgia, brain fog, chest pain, SOB

5.6.2022 – My headache is worse when I cough for four days now

5.7.2022 – Cough makes headache worse

5.8.2022 – Cough, chest pain

5.9.2022 – Headache worse with cough, chest pain after activity

5.10.2022 – Chest pain, SOB

5.17.2022 – Swollen lymph nodes auxiliary area, same arm I received booster

5.31.2022 – Chest pain, cough, shortness of breath have gotten worse. Headache worse with cough

8.2.2022 – Numbness and tingling left chin to upper lip area. Chin twitching. Vesicle on chin.

11.1.2022 – Diagnosed with myalgic encephamylitis and mast cell activation disorder

Oral mucosal eruption, Mouth swelling and Facial pain

2.18.2021 – Have a sore throat and congestion, sinus symptoms, nausea and headache.

2.25.2021 – Cough, congestion, saw provider and was negative for Covid, strep and flu. Diagnosed with sinusitis Telegraphy in the parking lot with swabs taken

3.10.2021 – Sore throat and congestion

3.11.2021 – Mouth and throat pain

3.18.2021 – Swollen areas on the roof of mouth, neck pain, congestion, cough, facial pain and pressure, ear pain,

3.25.2021 – Have swollen spots in my mouth, left arm pain, have been to the doctor 3 times in the past week and a half.

4.1.2021 – Bumps in mouth, nausea, dizziness, left arm pain

4.8.2021 – Sores in mouth, shoulder and elbow pain, headaches that wake me up in the middle of the night

Premature baby, Death of relative and Premature labour

4.18.2021 – Metallic taste, cotton mouth, no smell

4.19.2021 – Metallic taste in my mouth

4.20.2021 – Metallic taste, feeling of hot needles in my back and legs

4.23.2021 – My BP has been raised since I got the shot.

5.2.2021 – Psoriasis on my face. I havent had psoriasis since I was a kid.

5.24.2021 – I gave birth to my baby 11 weeks early.

6.20.2021 – Joint pain

8.10.2021 – My joints ache. It comes and goes. And a week after receiving my first vaccine my baby was diagnosed with hydrops which killed him. But the hydrops was an old symptom.

Back pain, Myalgia and Chills

2.2.2021 – 13 hours after vaccination, at 2:00 AM, I experienced chills, headache, muscle pain in both arms, but especially in the injection arm. Chills subsided about 4-5 hours later, and arm muscle pain has continued to reduce. Moderate headache remains, as does lower back pain and side pain.

2.3.2021 – After initial chills starting 12 hours after 2nd injection, and continuing for about 4-5 hours, I again had chills starting about another 12 hours later, again lasting several hours (last night). However, this morning by noon, all symptoms have subsided.