Their Stories

Postural orthostatic tachycardia syndrome, Blood pressure fluctuation and Hypotension

2.17.2021 – Strange taste in mouth, not sure if its associated or not

2.26.2021 – I have POTS.,The past week my blood pressure has been extremely low. Ive fainted twice despite working hard to hydrate and get the right amount of salt. I was in the ER last night. My neurology thinks this may be an immune response to the vaccine.

3.13.2021 – I have POTS and my blood pressure is lower than usual. My normal blood pressure is 96/65. Today it has not been above 90/60. Lowest reading 83/55

3.15.2021 – Loss of appetite Since my first shot deregulated my bp I had a scheduled saline infusion to keep me out of the ER

Poor quality sleep, Sleep disorder and Bronchitis

4.15.2022 – Post-vaccination mild achiness, headache; moderately sore and red arm at injection site. Resolved in 48 hours.

4.27.2022 – Non-COVID (PCR and rapid zag test negative) bronchitis, flu-like symptoms x past 5 days.

10.7.2022 – Flu-like, worst 8-24 hours after bivalve the booster, better with naproxen 440 mg, 90% better today. Similar to prior COVID vaccinations.

11.9.2022 – Bronchitis last week, improving. Negative COVID rapid Ag tests x 2.

Throat irritation and Headache

4.15.2021 – I didnt feel lightheaded, but this morning shortly after getting up I suddenly felt like I needed to sit down, (its hard to explain...like my whole body just wanted to go down. I literally walked my hands across the counter until I got to a chair. After a few minutes sitting I was fine.

1.21.2022 – occasional headache. occasional scratchy throat.. I have tested negative so far. Husband tested positive this week and is currently isolating from me.

Hordeolum, Pain of skin and Musculoskeletal chest pain

3.18.2021 – Light headedness

4.13.2021 – Dizzy

4.15.2021 – I think I forgot to report in on a few days prior...did have symptoms before...today is best day

4.19.2021 – Stye (eye)

5.3.2021 – Joint pain (not sure if there's any connection)

5.10.2021 – Sore throat

5.17.2021 – Weird rib painDepressionSensitive areas on skull

7.14.2021 – Joint pain Regular wellness visit

10.11.2021 – Joint pain

11.16.2021 – Hand pain/numbness/stiffness (since initial shots)...may not be related at all...but so far have not figured out the cause

11.25.2021 – Joint pain...generally comes & goes...was worse today... Especially in arms & hands...not sure if it is vaccine related...could be something else. But so far I have not pinpointed the cause.

11.30.2021 – Random shooting head pains

Night sweats, Chills and Pyrexia

2.25.2021 – After Shot update: OMG! Just prior to the 12 hour mark I was only experiencing sore arm by the shot, thats it nothing else. At exactly 12 hours into the time I received the shot, (10:38 pm) it started. Chills, 100% body aches, headache, night sweats and a fever of 101.6, all at once! Absolutely the worst night of my life! Fever is now gone, chills remain, and every inch of my body still is in pain!

2.26.2022 – Received a positive Covid-19 via a home test on 1/1/2022, while on vacation in (b)(6). Thankfully I'm vaccinated and had my booster so I had little to no symptoms at all.

Tremor, Muscle spasms and Lymph node pain

3.16.2021 – My arm has started to hurt where I had the shot.

3.23.2021 – Sore arm

3.31.2021 – Lower back pain, involuntary muscle spasm, involuntary shaking with chills.

4.1.2021 – Lower back pain

4.2.2021 – Swollen lymph nodes in neck,very sore neck with lymph node swelling, sore lower back

4.3.2021 – Swollen, tender, and sore lymph nodes-especially at neck.

4.4.2021 – Swollen lymph nodes in neck that are tender and sore

4.5.2021 – Lymph nodes in neck are swollen.

4.6.2021 – Swollen and tender lymph nodes in neck

6.29.2021 – Lymph nodes co to us to be swollen.

9.28.2021 – Ongoing swollen lymph nodes since vaccine

Abdominal mass, Specialist consultation and Heart rate increased

1.4.2021 – Missed check in yesterday - had a slight headache yesterday. None today.

1.5.2021 – My heart rate has increased (according to my Apple Watch) by about 10 beats per minute on average.

1.6.2021 – Still higher than normal heart rate

1.7.2021 – Heart rate still elevated but better.

1.24.2021 – Developed a mass on lower left abdomen. It began 3 days after vaccine. Sought medical advice after a week. Not sure what caused it and am currently under care of pcp. Pcp

Hangover, Drainage and Discharge

3.19.2021 – Tingling in mouth and none...has subsided

4.11.2021 – Drainage, cough

4.13.2021 – Sinus drainage and related cough persists...no idea if related

4.14.2021 – Still sinus/drainage/cough, no idea if related or not

4.15.2021 – Still sinus/drainage/cough no idea if related or causing the headache tiredness above

4.16.2021 – Sinus issue getting better

10.24.2022 – Have a hangover today and didn't sleep, not sure which of my symptoms are attributable to what

11.26.2022 – Congestion sneezing intermittent minor cough, watery eye

12.5.2022 – Tested negative on home rona test. But had peircing headache behind/above left eye, minor congestion/drainage. That has passed but experiencing some diarrhea. Not sure what it is.

Nasal dryness, Muscle strain and Impaired work ability

3.15.2021 – Scratchy throat.

3.17.2021 – Scratchy throat & mild cold symptoms

3.18.2021 – Scratchy throat

3.26.2021 – Sneezing & headachepossibly allergies but uncertain.

4.19.2021 – Its possible that the redness on my back was caused by a heating pad but its round, whereas the pad is rectangular. I thought it was worth mentioning. My back went out this morning & I had to call out at work.

4.20.2021 – Back pain continues from yesterday when my back went out. Not sure if its related or not.

10.21.2021 – Post-nasal drip + dryness for a couple of weeks, and my back went out yesterday (inability to work below caused by back pain, not cold symptoms)

10.22.2022 – Coughing off & on for the last 3 days; could be allergies

Tendon disorder, Dizziness postural and Eye irritation

3.14.2021 – Burning eyes

4.2.2021 – Light headed

4.7.2021 – Tinnitus has worsened since second vaccine.

4.14.2021 – Had a few days of lymph node sensations, not really pain. One day of muscle and joint pain.

5.19.2022 – Light headed, nausea

5.26.2022 – Pressure in head when standing up, dizzy Dr appt

6.3.2022 – These are new as is vaccine, not this week. Shoulder, arm pain. Positional dizziness, pressure in head, dizziness, nausea, balance. Dr appts

6.22.2022 – Rotator cuff issues and head pressure/dizziness upon standing.

Pulmonary mass, Increased viscosity of upper respiratory secretion and Injected limb mobility decreased

4.29.2021 – I have sore Swollen throat

4.30.2021 – Started my period, sore throat and mouth

5.1.2021 – Lost smell sour milk taste in my mouth sore throat

5.4.2021 – All my mucus thick and hard to get out

5.13.2021 – I delivopef a rash and infection on my back on the same side as shot had to go get antibiotics and can barely lift my arm

5.27.2021 – My neck and shoulder in the shot side swelling and stiffened up

6.10.2021 – My neck and shoulder swelled up and stiff had a set of antibiotics now going to pain management and physical therapy

7.29.2021 – They found small noodles in both my lungs

10.28.2021 – I got the booster with the flu shot I am still throwing up, running fevers, my arm, neck and face are swollen

Mental disorder, Feces soft and Weight decreased

2.1.2021 – The vomiting was last night, after breaking out in drenching sweat. Temp confirmed fever mid-day yesterday. Light-headed. Still queasy today w/chills still. Weak. Soft stools and weird dreams day 3.

2.2.2021 – Fewer dreams and not as strange. Slept much better last nite. Able to resume light eating w/o nausea. Light-headedness about gone.

2.3.2021 – Weird dreams def ended; slept well. No light-headedness but weak. Still xxx fatigued. Mind is much clearer. Temp normal tho up last nite after almost normal during the day.

2.26.2021 – HA very, very slight - just enough to notice. I was already quite tired before the shot due to insufficient sleep.

2.28.2021 – Injection site barely sore but the booster reactivated my *first* injection site! I'd had a significant reaction there, and discoloration and tenderness was present before i got 2nd shot.

3.1.2021 – Arm pain even less than mild, but still a bit noticeable.

3.3.2021 – I have a few of these symptoms but they aren't due to my shot - at least, not directly. After my first shot and a week of getting over side effects, I found myself having quite good energy. That is even more pronounced this time. I have lived with ME/CFIDS and fibromyalgia for 30+ years. I have better and worse days, weeks and months. I believe the kick to my immune system from the cv vaccinations has tamped down on several latent viruses i carry (including norovirus and herpes VI) and consequently, am feeling more energetic than i was going into my first shot. I'm enjoying this immensely. I've heard that long haulers getting vaccinated are having their symptoms finally ease, and I'd say I'm experiencing something similar.

3.4.2021 – Early evening i realized my eyes were aching, a strange sensation. A couple of hours later, i have a slightly scratchy throat. This is how the flu sometimes starts for me. I've had very little exposure to anyone recently, and it was outside... it was brief and we kept our distance from each other. I'd forgotten to put a mask on, but being outside, wasn't really worried. Maybe it's just allergies - hoping so. My temp was elevated just a bit early in the day.

3.5.2021 – Forgot to report that after 1st shot, my neck lymph nodes were swollen and very sore for more than a week. They flared again this week but allergies bad. My symptoms are not from the booster shot, tho, I'm certain. I have some chronic conditions and I overdid this past week and now paying for it.

8.27.2021 – Extreme loss of appetite. It was present as of mid-March but continues to be present w/ a fair amt of nausea. Have my sense of smell tho some foods taste different since 2nd shot. Lost 25# in 4.5 months.

Visual impairment, Secretion discharge and Wheezing

4.2.2021 – Have had headaches and for 1 days my arm at the vaccine site itches like mad!

4.10.2021 – Very tired and the headache is back.

4.16.2021 – Chest feels a bit tight

4.19.2021 – Feeling pronounced joint pain in my fingers

4.20.2021 – The headache is stabbing in the side of my head.

4.21.2021 – Have had a mild cough for pat 2 days

4.30.2021 – Hav had a wheezy cough for the past 7 days. Have not had that ever before the vaccine.

5.21.2021 – Headache and upset stomach.

5.28.2021 – Severe joint pain in back and legs.

7.16.2021 – Migraines

10.15.2021 – Respiratory virus? Light fever, mucus cough, nasal congestion for over 2 weeks. Negative Covid test.

11.6.2021 – Headache not helped by Tylenol or ibuprofen

11.23.2021 – Migraine headaches daily

11.30.2021 – Constant headaches

12.7.2021 – Severe headaches daily

12.14.2021 – Headaches daily!!!!

2.1.2022 – Frequent Migraine headaches

4.19.2022 – Daily headaches

4.27.2022 – Continued migraines daily since booster

6.22.2022 – Eye sight is much worse since last booster

9.21.2022 – Severe headaches

Injection site discoloration, Confusional state and Irritability

5.11.2021 – Forgot to mention this in my check in yesterday that Sunday night I noted the injection site felt far warmer than the rest of my skin. It tapered off a little yesterday and is almost gone today. Basically felt like a fever isolated to my skin just around the the injection site; about the size of a Kennedy $0.50 piece.

5.12.2021 – Injection site is not warm to touch anymore

5.13.2021 – Injection site is now a large bruise

5.14.2021 – Still bruised at the injection site

5.15.2021 – Injection area still bruised; looks more discoloured and hoping that its just temporary

6.2.2021 – Confusion

6.3.2021 – Very grumpy

6.4.2021 – Injection site is hot to touch

6.5.2021 – Lymph nodes still swollen under my injection arm (RT)

6.8.2021 – Still feeling really irritable

6.15.2021 – Its the same that happened after the first shot: my PMS is HORRIBLE!! Beyond what Ive ever had before in my life! Ive started my PMS phase several days earlier than normal and its far far more intense. Again, same as last month after firs

Muscle injury, Stress fracture and Exostosis

3.2.2021 – Very slight redness

3.13.2021 – On March 7 I experienced a pre migraine aura that lasted about an hour from 6:30 to 7:30pm. Woke up at 1:30 am with a horrible migraine. Never had anything like this in my life. Ct scans w contrast which next day affected area of vaccine. Tender, swelling & red.

3.30.2021 – Headache in am - now gone

6.26.2021 – Pinched nerve in back/left leg. Painful heel pain in left foot. Physical therapy for back/ referral to podiatrist.

9.25.2021 – Pinched nerve in my back; had physical therapy to relieve. Developed bone spur in left foot and was diagnosed with plantar fascia. Have new orthotics and doing well now. Psychical therapy

3.27.2022 – Insufficiency fracture of left leg femur thigh; hamstring tear; torn meniscus left leg knee. Do not know how it happened. Woke up December 8 ish and could not move my leg. Pain & swelling. Had booster on December 1, 2021 Dr. Office

6.1.2022 – Have been diagnosed with insufficiency fracture of femur left leg Ct scan, mri

12.4.2022 – Left arm pain/stiffness. Had cortisone shot October 5. Doing physical therapy. Dr. Office visits

Joint noise, Tension and Arthropathy

3.24.2021 – Took the shot in my left arm. Maybe 25 minutes after leaving the site, left arm felt a little odd, not pain, more like a light version of an extremity falling asleep. I referred to it as dead arm. Lasted maybe an hour. Nothing out of the norm than that.

3.25.2021 – Just feel a little drained and a slight/ annoying headache. Slight aching pain in knees and shoulders.

4.14.2021 – Did feel what i call dead arm once home. Best way to explain is similar to washing up and you slept oddly on your arm. Arm felt numb and a little bit off tingling.

5.12.2021 – 1 to 2 headaches a day. Slight pains in my neck, i have to remember to relax my shoulders/ lower neck. Just feels tense all the time until i remind myself to relax my shoulder muscles and neck.

7.14.2021 – Last 6 to 8 weeks with a soar neck. Unsure if related. But never had this sort of discomfort before. Feels like a pinched nerve or pulled muscle.

10.13.2021 – Stiff popping neck. Tension in shoulders.

Vitamin B12 decreased, Injection site nodule and Anemia

3.11.2021 – Itching and redness not at round the immediate site

3.13.2021 – I felt warm

3.14.2021 – My chills were at a minimum. No fever

3.15.2021 – None

3.25.2021 – My right arm was achy.

4.1.2021 – My lymph nodes under my left arm are swollen. That is the same arm I got the vaccination shot. My right arm is a little achy and stiff.

4.10.2021 – Fatigue and tiredness

4.11.2021 – Tiredness

5.20.2021 – Joint pain

7.8.2021 – My lymph nodes were swollen under my left arm. The arm that I received both doses of the Moderna vaccine.

Dark circles under eyes, Oxygen saturation decreased and Swollen tongue

2.28.2021 – Numb. Oxygen below 90

3.1.2021 – Heartbeat 111. O2 improved since yesterday; lowest today was 89. Improved from numbness and swollen tongue to fever. No perspiration.

3.3.2021 – Lymph nodes swollen. Last night low oxygen, 83. I did not report yesterday because you said only once a day, and you would not let me update the report Monday March 1st, because later that day I had 101 fever the rest of the day. Yesterday I was in a fog of dizziness. Today, everything just hurts.

3.6.2021 – Swelling of lymph nodes

3.9.2021 – Swelling near lymph nodes

3.19.2021 – Dark circles under eyes.Fatigue.

International normalized ratio decreased, Diabetes mellitus inadequate control and Cardiac failure

2.12.2021 – Very tired

4.17.2021 – He already has heart failure and just seems more irritable and unstable in his feet. He had an echo and we go in for the results Monday. Not new problems just standard check ups.

6.4.2021 – INR is going down blood sugar is high unstable and falling

3.5.2022 – My husband (b)(6) contracted Covid in January and died due to the infection and his underlying heart and health conditions. Hospitalization and hospice care.

Gonorrhea, Sexually transmitted disease and Gastrointestinal disorder

4.14.2021 – Joint and muscle pain. I very much doubt it has anything to do with the vaccination.

4.21.2021 – Worsening intestinal and pelvic issues, as well as lots of positional pain in wrists, elbows, shoulders, and neck. I do NOT think any of this was caused by the vaccination.

4.28.2021 – I do not think these symptoms are related to the vaccine; I have them regularly planned appointment with primary care, unrelated to vaccine

6.9.2021 – Contracted gonorrhea. Unrelated to covid or its vaccine.

10.27.2021 – Bowel issues, increased itchiness. Nothing to do with the vaccine.

Plantar fasciitis, Seasonal allergy and Gastroesophageal reflux disease

3.18.2021 – Stomach/chest/back pain similar to serious reflux. Did not go away after taking Peocid AC, 30 mins later I took Zofran 4mg and that helped eith the stomach pain. I did not felt nauseous, but a lot of pain.

4.6.2021 – Also, I am currently dealing with seasonal allergies.

5.4.2021 – Circular rash around the vaccination area (has been there since Sun 5/2)

11.11.2021 – Itchy throat

11.12.2021 – Lymph node pain

11.13.2021 – Lymph nodes pain (armpit underarm area)

11.14.2021 – Lymph nodes pain;

11.15.2021 – Upper back ache; underarm lymph node pain

11.11.2022 – Plantar fasciitis, Migranes

Motion sickness, Autoimmune disorder and Anosmia

4.3.2021 – Dizziness, autoimmune disorder flare-up

4.4.2021 – Dizziness

4.20.2021 – Flare-up of my auto immune disorder happened within 2 days after vaccine and got much worse over the past week and a half. Slowly stating to heal to where I can sit for awhile on the genital lichen sclerosus

5.4.2021 – Flare-up of Autoimmunine Disorder

5.5.2021 – Autoimmune disorder flare up

5.13.2021 – Extreme nausea, dizziness and motion sickness that comes in waves and while riding in vehicle. Headaches off and on, also. Both started 1-2 days after vacc.

7.28.2021 – Difficulty breathing, loss of smell, runny nose, hacking cough, ectreme fatigue

4.28.2022 – Body aches, headaches, dizziness

Painful respiration, Sleep disorder and Blood pressure increased

10.2.2021 – On Sept 29 when i got the shot I felt headache and muscle aches for about 24 hours

12.29.2021 – Mild sore throat, body aches, fatigue, no fever. After 3 days I took a rapid covid test because we were planning to go to dinner at our daughter's house. The test was clearly negative. I felt better a day or two later.

4.15.2022 – Odd pain/pressure in center of my chest starting 2nd day after shot, gradually dissipating over last 4 days. Now only feel it when I take a deep breath.

4.16.2022 – I continue to feel a mild pressure/pain in the center of my chest, more when laying down or when taking a deep breath...making it hard to get a good night's sleep

4.18.2022 – The chest pain I've been feeling since the shot seems to be completely gone. I feel fine!

10.11.2022 – Sore throat, headache, body aches, sneezing, fatigue. At-home Covid test was negative. Five days after first symptoms I felt back to normal.

Gingival recession, Oral mucosal exfoliation and Gingival disorder

3.10.2021 – Itchy throat and lung pain that may or may not be related to the shot.

3.11.2021 – Abdominal pain is gas and constipation which is more likely due to medication and diet.

3.12.2021 – Insomnia. Shortness of breath and itchy throat. Probably unrelated to vaccine.

3.16.2021 – I don't think either of those are vaccine-related.

4.6.2021 – Insomnia and awful gas over the last week.

4.8.2021 – Acne increased after both shots, but first one wasn't permanent and I don't expect the second to be, either.

4.27.2021 – Not sure if related to vaccine, but sudden problems with my gums peeling and coming unattached. Due to nowhere being open and possibility of medication or vaccine reaction, went to ER. They did nothing and said see the dentist, which I cannot afford.

5.4.2021 – Good except, gums are receding and peeling suddenly. I see a new floater in my eye. I did go to the ER just to be sure it wasn't mediation or vaccine related. I was told to see dental and eye specialists I may have trouble affording and scheduling.

5.13.2021 – Gum problems, gum recession, especially bottom front teeth.

Extrasystoles, Peripheral swelling and Injection site pruritus

4.28.2021 – A lot of itching where I received 1st vaccine.

4.30.2021 – Arm was swollen down to the wrist and it felt like i had carpel tunnel syndrome for about 12 hours

5.28.2021 – A lot of itching at thr injection site. I've had it since the shot but it continues to itch and isn't going away.

6.15.2021 – Continuation of the itching at vaccine site, and I have noticed a lot more itching on most of my body. Not sure if it's vaccine-related, but it's not typical for my body so i wanted to mention it.

1.28.2022 – Intermittent heart palpitations/feels like heart skips a beat sometimes

Body temperature increased, Peripheral swelling and Erythema

2.28.2021 – . Temp is elevated for me. Normally I run high 96s-low 97s. Yesterday temp got to 99.1. Stomach feels off

3.1.2021 – I would like to report a reaction I had to my first shot. Eight days after, I woke up with a two inch swollen red lump on the armWhere I received the vaccine. It was extremely itchy and lasted about three days. I have since read that this is being called Covid arm and should be reported. So far I have not had the same reaction after this second shot but it may be too soon since the other reaction didnt appear until day 8.

Cataract operation, Vitreous floaters and Hypoacusis

3.4.2021 – a.m. fasting glucose was high 163

3.13.2021 – Headache concentrated at left temple. Discomfort at Carotid artery radiating up to jaw and left temple.

12.1.2021 – Headaches; decline in vision and additional floaters. Cataract surgery sceduled for 12/29/21. Decline in hearing. Emergency visit to ophthalmogist.o

1.26.2022 – Lot's of mucous/congestion between pharnyx snd larynx...allergies ...I think! Had cataract surgery on December 29th, 2021.

Protein urine, Giant cell arteritis and Polymyalgia rheumatica

2.9.2021 – Rash is on my thigh. I had nausea at 5pm.

2.11.2021 – Nauseated all day...

2.25.2021 – Overall body pain. I think its a Rheumatoid arthritis flare up. Im concerned about getting the second vaccine.

3.4.2021 – RA flare up. Pain all over. Feet, legs, hands, arms, neck and back pain. I get the second vaccine Tuesday, March 9th. Im really nervous about getting the second vaccine.

3.18.2021 – I also had my first Humira injection on Monday.

4.6.2021 – Kidney infection My general doctor

11.24.2021 – Palpitations and rapid heart rate. Wearing holter monitor. High levels of protein in urine.

2.25.2022 – Temporal Artetitis (Giant Cell) Polymyalgia Rheumatica flare up. Doctor office

8.27.2022 – AFIB and Giant Cell Arteritis

Confusional state, Muscle spasms and Neck pain

8.11.2021 – Confusion

8.18.2021 – Bad headache

8.25.2021 – Headache, neck, back, shoulder, arm pain

9.1.2021 – Still having headaches & muscle pains in shoulders & neck. Now experiencing cramps in my legs. I had to go to urgent care this past weekend for all of the above including sharp shooting pains in my head & chest.

9.8.2021 – Same symptoms as before. Horrible neck, back, shoulder pain with headache

8.4.2022 – I have COVID, fever, headache, coughing, sneezing, runny nose

Seasonal allergy, Injection site warmth and Somnolence

5.2.2021 – Yesterday, after my vaccination and after answering this Vsafe questionnaire, I felt extremely tired and had chills, and took a four hour nap in the middle of the afternoon. When I woke up I was slightly feverish.yesterday, after answering this via safe questionnaire, I felt extremely tired and had chills, and took a four hour nap in the middle of the afternoon. When I woke up I was slightly feverish. Add today, the day after my vaccination, except that when I woke up the vaccination site was quite warm, but I would not say swollen. Now, 3 PM, nothing unusual. Possibly sniffling more than usual, but it is hayfever season.

5.6.2021 – Nothing unusual: I have had chronic headaches and brain fog for years, and particularly since the forest fires in summer 2020.

5.7.2021 – hay fever

5.8.2021 – nothing unusual, just a normal hayfever headaches

5.29.2021 – bad hay fever

10.30.2021 – shortness of breath, dizziness