Their Stories

Photosensitivity reaction, Musculoskeletal discomfort and Injection site erythema

5.1.2021 – Swollen lymph nodes

5.2.2021 – Swollen lymph node

5.12.2021 – The lymph node by my collar bone that was very swollen 2 days after my shot still has a little discomfort it pain when I move my shoulder or neck a certain way.

5.26.2021 – I think I have sun sensitivity at the injection site. Where I got the shot (at least I'm pretty sure it's the spot, can't be 100% certain) was finally exposed to sun, and it's reddish and a little sensitive.

Fibromyalgia, Respiratory tract infection and Anosmia

3.21.2021 – Right hip pain

3.23.2021 – I am starting to think my Fibromyalgia reacted to the vaccine because the symptoms I now have are very similar to when my fibro acts up

3.24.2021 – Again, I believe the vaccine may have triggered my fibromyalgia

9.17.2021 – Developed severe respiratory infection! CoVid tested neg x 3 but I cant imagine it not being Covid - had ALL symptoms Ive heard of including loss of taste and smell!!!!! Lasted 2+ weeks. I had a flare up of my Fibromyalgia - 1st in many

Ear congestion, Sinus headache and Balance disorder

2.1.2021 – Dizziness when I first got up this morning - moderate

2.2.2021 – Very slight dizziness or unsure balance a couple of times. This happened after I moved quickly.

2.3.2021 – I had a mild headache last night. However, I think it was just a sinus headache due to my chronic sinus congestion. It is not unusual for me at any time of the year.

2.6.2021 – Mild ear congestion

10.21.2022 – Sinus congestion

11.22.2022 – Chronic nasal/sinus congestion (many years) seems a bit worse

Endovenous ablation, Phlebitis and Peripheral venous disease

2.9.2021 – Swollen lymph nodes in neck

2.12.2021 – Soft tissue pain on R front calf from years ago (which had gone quiescent) ramped up again the day after injection. Still painful & swollen)

5.10.2021 – Pain around R eye and on R cheek. In person appointments with opthamologist, dentist, endodontist

8.9.2021 – Trouble breathing. Went to ER.

2.8.2022 – Venous insufficiency. RF ablation of great saphonous veins in each leg. Debilitating painful, on-going phlebitis ever since. In person office visits & lots of scans

Cardiac monitoring, Hypoesthesia and Paresthesia

2.11.2021 – Last evening I started to feel numbness in my neck and jaw. Off and on until bedtime. Some residual today, but only left side of neck and jaw. Barely noticeable unless I think about it. Also felt a mild burning sensation in my left arm around the injection site.

2.12.2021 – Still having intermittent left cheek/jaw numbness Had a cardiac work up (EKG, CXR, labs...all negative)

9.10.2021 – Left ear numbness, warmth started mid July. Not sure if I reported it earlier. Continue with intermittent tingling/numb sensations in left leg and left face. Saw a neurologist. MRI of brain on 7/20/2021 negative.

Arthritis reactive, Blue toe syndrome and Hemoptysis

10.17.2021 – Fluid in hands

10.19.2021 – Swelling/fluid inhandz

10.23.2021 – Fluid and swelling in my hands knees and feet and and bruising. In addition to my toes are bluish

10.28.2021 – Coughed up blood clots

11.6.2021 – Dizzy

11.7.2021 – Fluid in my hands and feet

11.8.2021 – Hands are swolken with fluid

11.15.2021 – Made appt with Dr for thurs

11.27.2021 – Reactive arthritis. Currently on 20 mg Prednisone daily. Started at 10mg. Then went to 15mg and now on 20mg. Still swollen hands and feet In person visit

12.6.2021 – I have what they believe to be reactive arthritis from the vaccine. I am referred to rheumatology.

12.11.2021 – Reactive arthritis Rheumatologist

5.7.2022 – Worsening reactive arthritis

Ligament sprain, Hematochezia and Stomatitis

5.14.2021 – Chest has felt congested, get out of breath from normal exertion. Also, yesterday after check in, had fever of 99.7 around 5:30pm and was feverish most of the evening.

5.18.2021 – Headache likely due to neck issues rather than vaccine

8.10.2021 – Seasonal allergies; tachycardia (probably recurrence); blood in stool (new symptom of existing hemorrhoids). Fair today due to lack of sleep last night (happens sporadically, no change from pre vaccination)

12.6.2021 – Last night fever spiked to 101.2, fever broke around midnight. Normal temperature after about 10am today.

12.7.2021 – Tenderness in armpit on the side where injection given (first noticed yesterday after check-in)

12.8.2021 – Tenderness in armpit by injection site

12.10.2021 – Intestinal gas

12.25.2021 – Sore on roof of mouth earlier this week

3.5.2022 – Sprained ankle, seasonal allergies

Allergic sinusitis, Pulmonary pain and Weight increased

3.6.2021 – Standing sinus issues (long term issue) not made worse from shot. Still slightly congested.

3.10.2021 – Mild sinus congestion *(likely from change in temperature)

3.11.2021 – Standard Allergy/Sinus issues from sudden warm weather.

3.20.2021 – Massive fatigue, sinus infection, muscle cramps, rapid weight gain. (Went to urgent care, they tested bloodwork and said i have signs of a strong viral infection, not covid, not flu)

3.29.2021 – Pain in Chest & Lungs similar to total body muscle pain. But feeling slightly better than yesterday. Tylenol helps a little.

Glossitis, Oral pruritus and Tongue disorder

4.10.2021 – At vaccine shot site: redness, swelling, heat, itching for 3 days (size 1-1.5 inch diameter circle) then a rash plus itching (~2 inch uneven circle) . It lasted from my last check-in (when it felt fine) till 04/08.

4.24.2021 – Light-headedness since shot (5 hours so far); itchy throat, tongue-swelling, slight difficulty breathing (started just after shot, lasted 1.5 hours)

4.25.2021 – Lightheadedness / dizziness ; also I have not been hungry all day

4.26.2021 – Very lightheaded and dizzy today. Anytime Im not lying absolutely flat and still, I feel like my head is spinning.

4.27.2021 – My tongue is still swollen from my initial allergic reaction. I was so tired the last few days I didnt realize that was why my mouth felt funny. Its not so bad that I cant breathe but quite a bit. It also hurts. Still Lightheaded / dizzy, that hasnt improved. Still not hungry, though I can eat.

4.28.2021 – Dizzy / lightheaded. Still have a swollen tongue from the allergic reaction just after my shot

4.30.2021 – Im still having an allergic reaction - tingling mouth & tongue, swollen tongue. It is not better even though Im now taking double the regular dose of Allegra (1 pill morning + 1 at night). Today I even had to take 1/2 a Benadryl at one point. Also: the same thing was happening yesterday too. (I forgot to put it in this field sorry)

5.1.2021 – Tongue still swollen, mouth somewhat itchy, still taking double dose of allegra

5.8.2021 – My tongue is still swollen and I have had a series of painful enflamed papillae on and under my tongue. Also the top and side of my tongue just hurt and feel raw all the time. My doctor thinks the acid level in my mouth is high; Im trying to fix i

5.15.2021 – Still have symptoms matching descriptions of covid tongue from 2nd dose of moderna: swollen, pain on surface, pain & ridges on sides from tongue pushing against teeth. Hydrogen peroxide rinse, no-SLS toothpaste, & triamcinolone help but dont

Hypertrophy of tongue papillae, Pharyngeal erythema and Feces discolored

1.9.2021 – Irritated throat. Dont feel well.

1.10.2021 – Not feeling well. Norm temp is 96.8. Ferl hot inside but skin cool. Loose stools but still formed. Low energy

1.20.2021 – Sore throat with red streaks and dark red. Enlarged taste buds in the back of tongue and very red. Loose stools light colored. Feverish no fever. O2 90-93 when up n moving one day. Telehealtg scheduled for tomorrow. Rapid covid negative more result thurs.

1.27.2021 – Strep throat Injection at office

2.5.2021 – Dry cough

2.6.2021 – Loose stools irritation in mouth and throat

2.8.2021 – Body radiates heat at night still

2.9.2021 – Radiate alot of heat at night its like baking insidee

2.10.2021 – Bedtime feverish no sweating continues

2.3.2022 – Nausea loose stools stuffy sinus

12.9.2022 – bad cough, sinus infection

Pericardial effusion, Pericarditis and Migraine with aura

3.24.2021 – Flushed face, shortness of breath

9.21.2021 – Had to go to emergency room9/19. They thought it was clot in lungs. CT scan didnt show anything. Did some cardiac enzyme tests. Negative. Thought it could be pleurisy. Feel better today 9/21/21

11.6.2021 – Had fever chills joint pain body aches almost 24 hours later. Felt great first 24 hours. Then not great from 5pm til 1am But feel fine today. Kinda have pain under left arm like lymph node

11.8.2021 – Mild swelling underarm lymph gland feels less swollen today than yesterday Had an aura (vision) migraine headache without the headache. Vision was messed up for about 20 minutes. Couldn't see on focus point with it changing over the course of 20 m

11.9.2021 – A little swelling in feet. Unsure if related at all.

11.11.2021 – Only thing today is swollen (slightly) ankles/feet

11.4.2022 – Pericarditis/pericardial effusion in June 2022. Hospitalized twice for 4 day stay each. Had pneumonia during this period as well. Doctors were unsure of cause. They also told me I shouldn't get the covid booster yet.

Adrenal disorder, Vestibular migraine and Weight bearing difficulty

4.27.2021 – Woke up not feeling well, long before my shot.

6.1.2021 – Brain Zap most likely from taking an SNRI

6.8.2021 – Vestibular migraines, brain zaps, tinnitus, and dizziness possibly caused by my SNRI or by worsening SSCD.

10.26.2021 – Arthritis in knees

4.27.2022 – 1) Lost sense of taste for a week in March, tested negative for Covid on 2 home tests, getting better 2) severe knee arthritis flare up also in March, could not bear weight, slowly getting better

5.22.2022 – Felt unwell this past week. Suspect anemia or adrenal fatigue. Headache, stomachache, brain fog, tinnitus, extreme fatigue, muscle weakness, palpitations, sensitivity to light.

6.5.2022 – Food poisoning

8.1.2022 – UTI, and interstitial cystitis flare ups

10.3.2022 – Lightheadedness about 15 minutes after the vaccine

10.31.2022 – Terrible migraine

11.7.2022 – Headache, malaise, brain fog

Gallbladder operation, Oral discomfort and Photophobia

2.3.2021 – Ringing in my ears

2.5.2021 – Ringing in my ears.

2.6.2021 – Hot flashes all night last night

3.2.2021 – Allergic. Breathing issues. Could be seasonal.

3.9.2021 – Rash on my face and other body parts.

5.25.2021 – Pain, redness and swelling at injection site exactly 2 months after 2nd injection. It passed about a week later.

12.25.2021 – Gallbladder surgery

4.25.2022 – Due to Shingles Vaccine given the same day as Covid Vaccine I developed a mild case of shingles of the mouth and face. Not due to Covid vaccine.

5.2.2022 – Contracted shingles of the mouth from shingles vaccine. Food and drink something burn like lemon juice on a cut.

7.11.2022 – Fatigue, light sensitivity, cough, congestion.

Injection site warmth, Peripheral swelling and Erythema

1.30.2021 – Arm got red and swollen and line down arm. I did rub the injection site as there was just a red dot after rubbing it the line appeared and it was a bit swollen and warm

2.6.2021 – I forgot to put this down the last time but for about two weeks now Ive had A little bit of swelling under my arm on my left side where I got the shot I did go just to have it checked and thats what they thought it was from

2.15.2021 – Swollen glands in neck and armpit

2.16.2021 – Swollen glands

2.17.2021 – Swollen glands armpits

2.18.2021 – Some swollen glands

Body temperature increased, Chills and Pyrexia

9.30.2021 – The day following my flu shot and Covid booster I did experience chills and a fever of up to 101 that lasted for about 12 hours. The next day the chills and fever were gone and have not returned. Getting two vaccines, I dont know if it was one or

8.1.2022 – No

8.3.2022 – After I checked in yesterday, I checked my temperature and I actually had a low grade fever (99.8). Continued about the same until bedtime. My normal temperature is about 97.6. Today my temperature is back to normal.

Visual impairment and Parosmia

1.29.2021 – My sense of smell seems off again. Things smell different than they did, especially foods. I also feel like my vision has worsened over the past few months. Not sure if that is from past COVID infection, the vaccine or something else.

4.9.2021 – I feel like my vision has worsened and I continue to have altered smell since my second Covid shot. Otherwise I feel very well, but coffee stinks like burnt rubber and most hot foods smell like sour garlic.

Lyme disease, Bell's palsy and Feeling hot

3.31.2021 – Feel hot throughout the day but no fever. Surely unrelated

4.30.2021 – Mild headaches on a daily basis for about a week. Low grade fevers no greater than 99.5to be safe, I am getting a Covid test tomorrow. I have been volunteering 3-4 days/ week since February at a vaccine clinic. Wore 2 masks .did screening.

2.3.2022 – Nasal congestion for nearly a week. Got rapid and PCR tests 72 hrs ago. Both negative. Then 1 1/2 days symptom free and nasal congestion has returned. Have used Flonase, Xyzal and Afrin. Only used Adrian 2 days in a row, skipped a day; used this AM

8.7.2022 – I have Lyme disease with a related Bell's type palsy.

12.8.2022 – Headaches. I got my High dose flu shot a week ago.

Muscle rupture, Rotator cuff syndrome and Night sweats

3.23.2021 – My normal temp is 97.3 so I have a slight fever. My arm of injection is swollen twice its size above the elbow. It hurts when touched or moved

3.25.2021 – Neck hurts

3.26.2021 – Sweating

4.6.2021 – Chills and diarrhea that lasted all weekend. Headache intermittently

4.13.2021 – Diarrhea, sweating

5.11.2021 – Headache, runny nose, sweating, fatigue

7.20.2021 – Diarrhea and low fever

11.7.2021 – Torn bicep and rotator cuff. Night sweats

12.26.2021 – Had what is assumed flu

9.10.2022 – Sore throat, pain in arm that got shot when I move it at all.

9.11.2022 – Headache and neck ache

Neoplasm malignant, Balance disorder and Ageusia

3.5.2021 – The joint pain and fatigue were present before the vaccination from chemo. The headache was right after vaccination.

3.6.2021 – The joint pain, muscle pain and fatigue were all present before the vaccination probably from chemo treatments.

3.7.2021 – These symptoms (joint pains, muscle aches and fatigue) were present before the vaccination and are related to chemo treatments.

3.8.2021 – Current symptoms are from chemo treatment.

3.11.2021 – Joint pains, Muscle aches and Fatigue are the result of chemo treatments.

3.12.2021 – Joint pains, Muscle pains and fatigue are related to my chemo treatment.

3.30.2021 – The joint pains, muscle aches and fatigue are related to chemo treatments.

3.31.2021 – The joint pains, muscle aches and fatigue have been from cancer treatment, but they seem especially bad today.

4.1.2021 – Those three items joint pains, muscle aches and fatigue have been from cancer treatment.

4.2.2021 – The joint pains, muscle aches and fatigue are a result of cancer treatment.

4.4.2021 – The joint pains, muscle aches and fatigue are from the cancer treatment.

4.5.2021 – Joint pains, muscle aches and fatigue are from cancer treatment.

4.6.2021 – Joint pain, muscle aches and fatigue are from cancer treatment.

3.31.2022 – Can't remember when you contacted me last, but on Feb. 1st I had a test result of positive for Covid. I was very sick, weak, trouble breathing, no appetite, aching in legs and some joints, headache, loss of full taste, and dizzy/ no balance.

Seasonal allergy, Taste disorder and Chest discomfort

1.28.2021 – Scratchy throat

1.31.2021 – Something wrong with this site yesterday and I wanted you to know I had body aches yesterday.

2.25.2021 – A little bit of a funny taste in my mouth

2.27.2021 – Just one time of diarrhea

4.1.2021 – Started yesterday with some Chest heaviness and a little short of breath.

5.27.2021 – Seasonal allergy symptoms but seem to be more severe than last year. I have no idea if its related to the vaccine. I dont think so but for your research I will answer the questions

Somnolence, Chills and Rhinorrhea

2.1.2021 – Yesterday, the third day after the shot, I had severe shivers, chills, and my temperature got up to 101.6.

3.2.2021 – I had 102° around 6 PM yesterday. That was after I reported to you yesterday

4.4.2021 – I have an occasional cough.

9.23.2022 – I slept most of today.

9.28.2022 – I chose none here, so there should be NO follow up question

9.29.2022 – I did not report any symptoms, so the follow up question should not be asked.

12.23.2022 – Cough, runny nose Went to my ENT doctor. You should have an option to check that someone went to see the doctor.

Multiple sclerosis, Bursitis and Muscle tightness

2.28.2021 – I have Secondary Progressive MS. Dx in 1988 as RRMS. Might be interesting to note for data collection. I am an RN.

3.11.2021 – Subacromial bursitis Evaluated by physician. Redness swelling pain on palpation and movingTook Aleve and resolved after 5-6 daysFelt it was related to placement of injection too high Home visit

3.26.2021 – Muscle quivering Increase in MS symptoms numbness tightness spasticity movement

3.27.2021 – Symptoms peaked at 26-38 hrs and continuing to improve.

Cardiac flutter, Disturbance in attention and Joint swelling

3.13.2021 – Ear pain, swollen lymph nodes, sore throat

3.14.2021 – Sore throat

4.16.2021 – Sore throat, chest congestion, swollen glands in my neck, headache, fluttery heart. Covid test

10.1.2021 – Swollen joints especially in my hands.

4.4.2022 – I had a nasty upper GI/Lower GI illness with severe headache. Home Covid test was negative. I'm still struggling with concentration, joint swelling, and eye pain. These are regular but come and go. I've no idea if related or not.

Irritability, Tremor and Sinus disorder

2.6.2021 – Irritability

2.1.2022 – Had Covid last week. Low-grade fever, sore throat only at night, just rundown. Nothing more serious. Had the Moderna booster October 30, 2021. That made me very sick. Over 102 fever, severe shaking.

10.30.2022 – Starting about three weeks ago, flu like symptoms: malaise, low-grade fever, no appetite, tiredness, especially at night. After a few days, this morphed into sinus issues, still nighttime tiredness.

Influenza like illness, Sinus congestion and Abdominal pain upper

8.6.2021 – I've been having headaches and nausea that I never get. They are lighter than the headaches i was having after vaccination1 and 2.

8.20.2021 – I continue to have moderate headaches which are not normal for me. I take Tylenol and the symptoms go away. They appear randomly.Over the last 10 days, I have also had sinus congestion and mild fatigue. I treated these symptoms with decongestant.

10.8.2021 – I developed cold/flu like symptoms with headache, sinus congestion, body aches and chills. I took over the counter sinus discongestant. The rapid covid teat on September 13 was negative. I recofered fully in about a week.

1.7.2022 – I had stubborn headache, sinus congestion, sneezing, runny nose, nausea, stomachache, muscles pain, body chills and fatigue for two weeks in December. The rapid test at a drive through facility was negative 5 days after the symtoms started.

Fall, Lymph node pain and Back pain

1.15.2021 – Nausea for 4 hours the day of the first dose. Mild soreness in arm of injection today

2.26.2021 – Experienced a fall 2/24/21 and ER visit

3.5.2021 – Fall on ice with complications Physical Therapy

3.12.2021 – Continuing pain related to a fall incident 2/24/21 with follow up treatment Physical therapy and additional clinical test

3.22.2021 – Back pain related to a fall 2/24/21 Physical therapy

5.9.2021 – Have had a consistent pain in left side. Unsure if related to a fall . Have an upcoming appointment with a healthcare professional . PT. Also have an upcoming doctor visit

2.6.2022 – I received my Pfizer booster in Oct and had experienced lymph swelling (axilla) and pain. Ultrasound

Bone erosion, Synovitis and Foot deformity

4.27.2021 – Tired and fatigue

7.28.2021 – Ive experienced bleeding for 5 months, polys and fiboroid found in uterus. Polys have been surgically removed. Also my allergies are worse than last year. I e been coughing on and off and congested since April. Had many tests done, have been seeing my primary doctor for the past 3 months in person. Had surgery in June 2021.

1.27.2022 – Nerve pain and swollen foot Saw my podiatrist and Ortho doctors they recommended mri

4.28.2022 – First metatarsophalangeal joint: Moderate hallux valgus deformity. Mild first MTP joint osteoarthrosis. Small erosions noted at the medial head of the first metatarsal. Mild synovitis. Hallux-sesamoid complex: Ovoid T1 and T2 hypointense hypointense Office visit and MRI

Bronchiolitis, Blood iron decreased and Muscle tightness

3.29.2021 – Tightness around upper arm including vaccine site

4.12.2021 – Rash/hives over abdomen and upper arm Also have to see dermatologist

4.19.2021 – Developed a rash/hives about a week after first vaccine.

4.20.2021 – Continuation of rash reported yesterday

2.7.2022 – Extremely low iron levels, possibly due to a slow bleed. My cardiologist has ordered tests to investigate. In office medical visits and test

5.19.2022 – Runny nose, congestion, sneezing Appointment today for Covid test

5.23.2022 – Had a positives Covid test on 5/19

Eye irritation, Poor quality sleep and Sinus pain

3.9.2021 – I had itchy, burning eyes on March 5 that continued until March 8.

3.10.2021 – Sinus feels raw

3.11.2021 – Sinus is still feeling raw and irritated

3.18.2021 – I have had insomnia since I got my shot, sleeping only 4-5 hours per night. I have had to take a sleep aid. Prior to my shot, I was sleeping well and have generally always slept well. Burning eyes and sinus have improved.

3.25.2021 – I feel worse because I still have insomnia. This started the night after my vaccination. In the past, I have most always slept well.

Vision blurred and Brain fog

2.5.2021 – My symptoms over the 3 days following my injection were difficult to manage. I am better now but I will fill out the survey from the perspective of the days following my second injection.

5.7.2021 – Some days I have a foggy head and it is impossible to focus. Some of these days are worse than others. Occurs 2-3 times per month. Life is stressful and work is stressful. These episodes seem to be something other.