Their Stories

Lupus-like syndrome, Systemic lupus erythematosus and Rheumatoid arthritis

1.7.2021 – I have Lupus & RA, it seems to have caused the lupus to flare. I've been in bed since tues night, day 2.

1.8.2021 – The vaccine seemed to cause my (SLE) Lupus to flare.

1.25.2021 – Last time with the 1st dose, I had a fever the 2nd day. Then got sicker after that. It flared my lupus so I was off the next 3 days on fmla & no pay for 2 of those days.

1.26.2021 – I have Lupus (SLE) & RA

1.27.2021 – The vaccine still seems to aggravate my Lupus and possibly the RA too

1.30.2021 – The lingering headache day after day is aggravating. I get migraines ever since I was 6, so its not like that, its different. Its not horrible, it just keeps hanging around though. The nausea is getting better. Its always been sort of slight but in waves. Ive not noticed it to be bad today at any time. I was able to sleep late today too since I was off work, so that helped with the fatigue.

3.4.2021 – Migraine for a few days. Small Rash to abdomen & upper thighs, but that is probably lupus related. Still have fatigue. Muscle & joint pain also got a bit worse/flare.. But again, I have bad fatigue, joint/muscle pain a lot with my Lupus (SLE) & RA.

8.29.2021 – Large painful lymph node in armpit of right arm that I received vaccine in.

8.30.2021 – Painful large lymph node under right axilla, same arm as vaccine. Also, I have SLE Lupus & RA. Im on immunosuppressant injections (Benlysta) every week for Lupus.

9.12.2021 – Just still have increased fatigue and today another headache. But also with having Lupus, it could be due to that, too. I dont work on Saturdays or sundays so I was at home all wknd.

Contusion, Injection site bruising and Tinnitus

3.4.2021 – It really bruised where I got the shot. It is in medium size bruise.

3.5.2021 – Bruise and really sore

3.6.2021 – Bruise

3.8.2021 – Bruised

3.24.2021 – Been having headaches, buzzing/noise in my head/ears, earache Doctor's appointment at clinic

9.1.2021 – Have noises in my ears since February when got first shot. Didnt realize it til just the last month or so that it is related to the vaccine. Now they are saying it could be a life time thing for me. Ugh I hate it. Office visit

Mass, Feeling of body temperature change and Vision blurred

1.30.2021 – No

2.5.2021 – Lower back pain

2.15.2021 – Right side of neck was hurting And headaches

2.20.2021 – Short Blurry vision

3.15.2021 – Running noses Pain in lower backHod and cold spells Headache

3.31.2021 – Shoulder , arm and neck painNot sure if its related to vaccination

8.30.2021 – Champs in the hand Muscle spasm alongside my back also Headache

3.1.2022 – I have started getting back pains neck pains also got a lump on my right show the area it what else have our receive after the vaccine headaches that's it

Loss of personal independence in daily activities, Flatulence and Sinus disorder

3.8.2021 – Dizzy

3.11.2021 – Gas flaunt

3.14.2021 – Intestinal issues

3.17.2021 – Chill

3.27.2021 – Feeling feverish nauseated dizzy and maybe a little headache but I think that could be caused by the dizziness. I have been able to get around but not to do my usual chores and I was thinking about seeing the doctor yesterday but I didn't go because

4.7.2021 – Sinus congestion probably allergy related but not the stomach

4.10.2021 – I'm pretty sure that the symptoms I'm having are allergy related

4.11.2021 – Just allergies but that's not relating to the shot

4.12.2021 – Sinus again I'm thinking allergies

4.5.2022 – Sore throat, breathing tightness, sinus allergy related I'm sure if I show a fever I will test just to r/o covid

4.5.2022 – My problems have been allergy related with sinuses and sore throat I have been taking my temperature just to make sure that if I did show a fever I would take a home test just to make sure it's allergies & not covid

Glomerular filtration rate decreased, Middle insomnia and Tremor

3.21.2021 – Arm sore at injection site, got worse as the day went on but got better by morning. Still sore but not bad today.

3.24.2021 – I woke up in the middle of the night feeling sweaty, shaking, chills around 4:00 in the morning. Woke up in the morning around 10:00 fine.

4.11.2021 – I woke up in the middle of the night my head was soak & wet, had the chills. When I woke up in the morning it was gone but I have a mild headache.

4.17.2022 – I have kidney disease before the covid vaccines I was stable at stage 3 now I am stage 4 with food restrictions & my EGFR has gone down. I suspect it's because of the vaccine.

Injection site nodule, Injection site mass and Neck pain

2.25.2021 – Only muscle soreness where shot was administered.

2.26.2021 – Last night, I had a mild headache, some muscle soreness in my arm & neck, and was more tired than usual; however, I had also not slept well the night before. So, I'm not sure what caused these symptoms. As of this afternoon, the headache, injection site soreness, & tiredness have mostly gone away, but the soreness in my neck muscles remain.

3.27.2021 – Neck muscles ached after both shots for about 24-48 hours.

3.29.2021 – I noticed a lump/knot at the injection site. It may have been there since the shot, but I hadn't touched that area since the shot.

11.8.2021 – Soreness under arm and armpit that received the shot

Breast cancer, Nasal congestion and Injection site pain

3.5.2021 – Slight headache and fatigue, though normally feel tired some days. Slight feeling of being a bit off/

3.18.2021 – Mild sore throat with congestion for the last couple of days.

3.31.2021 – Mild sore throat

5.8.2021 – Diagnosed on May 3 with Stage 1A breast cancer.

6.24.2021 – Surgery for breast cancer. Am so very glad I was able to get these vaccines before this diagnosis and my future treatments. It is one less thing for me to worry about.

3.25.2022 – Did get a booster covid shot in 10/2021 Diagnosed with early stage breast cancer in May 2021. Completed surgery, chemotherapy and radiation treatments.

7.26.2022 – Head cold, stuffy nose, minor sore throat and slight cough. No fever, pulse ox always good.

10.20.2022 – slight pain at injection site but only when I touch the area.

Joint instability, Crohn's disease and Sleep disorder

12.24.2020 – Awakened from sleep 9 hours post vaccination with a severe muscle cramp in left calf

12.25.2020 – Late entry: on the evening of vaccination, in addition to a very mild headache, I experienced several minutes of a pounding heartbeat, did not return since.

2.17.2021 – Swelling in my fingers; headache

7.14.2021 – Chest, epigastric pain. Shortness of breath. Not cardiac or pulmonary related per MDs

11.23.2021 – Severe right hip pain

2.22.2022 – Tested positive for COVID 12/28/21 Crohn's flare 1/25/22

7.3.2022 – Bilateral hip pain and hip joint instability

7.24.2022 – Bilateral hip pain

12.11.2022 – Achy joints. ? Crohn's flare. Not likely d/t vaccine Persistent soreness at vaccination injection site, whenever I lay on my upper arm. Last booster 10/2022. Why the persistent soreness after vaccine booster??

Conjunctivitis, Sleep disorder and Injection site erythema

3.17.2021 – Conjunctivitis

3.18.2021 – Pink Eye . Eye is same side of body as shot.

3.19.2021 – Lingering conjunctivitis not improving with tobramycin drops

3.20.2021 – First eye is better, second isnt. May be a coincidence but havent had conjunctivitis since I was 6.

4.18.2021 – Redness starting just below the injection site has spread down to the elbow.

4.19.2021 – Rash now down to the elbow. Shoulder pain woke me up, difficult to get back to sleep. It was better during the day due to 800mg Ibuprofen.

Swelling, Erythema and Throat irritation

1.26.2021 – No

1.30.2021 – Itching started day before yesterday. Mild symptoms sonI didnt attribute it to vaccine. A little more itching yesterday. This morning even more itching. A rashon my face, neck, ears. I do carry an EPI pen. I took one Benadryl. Not helping.

1.31.2021 – Rash, redness, swelling, and itchy scratchy throat. I had to go to ER. Reactions to Moderna Vaccine. Went home with Prednisone, Pepcid and Benadryl.

2.10.2021 – I have been experiencing adverse reactions for past two weeks. I will not be taking 2nd vaccine. Dr office

Procedural site reaction, Lymphadenectomy and Limb mass

3.19.2021 – Just strange all over brain fog

3.20.2021 – Soft bowl not diarrhea not normal

3.21.2021 – Also arm where previously had sentinel node biopsy was swollen. Unusual for me .All joints on both hands were hurting and looked swolen. I took an alive today and last night

3.22.2021 – Swelling of arm where sentinel lymph nodes were removed because of breast cancer. I never had this swelling before only since 2 nd vaccine. And joints of fingers sore and swelling

3.23.2021 – Opposite arm from injection where I noticed swelling like lymphodima that hand is tingling all day I keep massa and trying to drain lymph nods. And still finger joint pain

3.24.2021 – Arm where lymph nodes were removed still feeling not good. Tingling and swolen fingers and arm slightly. But tingling non stop

3.25.2021 – Tingling in right arm still and feeling like its asleep fingers aching sent note to my oncologist for advice

3.26.2021 – Fingers on hands hurt took pain med Tingling in right arm still swelling comes and goes

4.10.2021 – I went to the doctor last week because of arm swelling and tingling down arm and lumps on finger. She thinks vaccine caused inflimation we are waiting to see if it goes away. Swelling seems less tingling still present and lumps that came right after Doctors office

4.16.2021 – Very tired needed to go to bed after work. Had poison ivy last week but also got a strange different rash around dot different from ever before mother had a similar rash when she was reacting to a medication Lump on finger less mild pain in joint

9.17.2021 – Right now Im sick trying to get a covid test but Im unable to . Tried all week. On antibiotics and cough syrup . Did at home test . No fever or loss of smell. Only lasting effect of shot was lump on finger .

Axillary pain and Dyspnea

1.27.2021 – Deep pain in armpit (mild), possibly lymph node

1.28.2021 – Mild deep pain in armpit same side as injection (left shoulder). Feels like a lymph node.

3.29.2021 – For some reason I have felt short of breath withour exerction the past two days. Not terrible enough to warrant going to the doctor, but noticeable.

5.17.2021 – Shortness of breath at rest. Had to go to the ER because primary care thought I was having a pulmonary embolism. Now am on symbicort because asthma like symptoms. Since this new inhaler, I have been able to breath well.

Blood glucose decreased, Presyncope and Myocardial infarction

3.10.2021 – Echocardiogram today showed dramatic decrease in ejection factor.

3.14.2021 – UTI

4.6.2021 – Two hours after shot I developed severe heartburn. It lasted about four hours. This was highly unusual. No change in diet that would have caused it. Concern that it might be heart related caused me to limit my activities.

4.7.2021 – Heartburn and low glucose (52) and difficulty getting it to rise

4.9.2021 – I have a UTI Urogynecologist office

4.10.2021 – UTI, low blood pressure, low blood sugar

4.11.2021 – UTI LOW Blood pressure

4.19.2021 – Multiple joint and muscle aches and weakness

4.26.2021 – Intense joint pain in right wrist, right fingers, right hip, neck, left shoulder. Intense enough to wake me during the night. Muscle cramps in calves, very sore upper left arm and left rib cage. Worsening daily over last week. No known cause.

5.3.2021 – Extreme Low blood pressure. In person at doctors office.

5.10.2021 – Chills and vomiting

5.17.2021 – Extreme shakes and vomiting.

5.29.2022 – UTI severity increased. Required a second antibiotic.

6.19.2022 – UTI for about 6 weeks

10.17.2022 – Weakness to the point of about to pass out

10.25.2022 – Diarrhea

Hypoesthesia and Paresthesia

1.21.2021 – Numbness upper arm, neck and face on side of vaccine

1.22.2021 – Numbness on left side of injection, arm, neck and face. Tingling in arm and hand

1.23.2021 – Numbness on left side, face, arm and leg. Some tingling in hand

1.24.2021 – Numbness on left side vaccination site of body. Face, arm and leg body,

1.25.2021 – Numbness and tingling on side of vaccination .

1.26.2021 – Numbness and tingling on side of injection like if Ive had novocain

1.27.2021 – Numbness and tingling on side of vaccine injection CT scan and MRI

1.28.2021 – Numbness left side of my face going all the way down the left side of my body to my ankle. Tingling

Pulmonary pain, Renal pain and Sluggishness

4.28.2021 – Kidneys hurt so I started Pedialyte and drinking more water

4.29.2021 – Kidneys stopped hurting, just a little vertigo but I can handle it, havent been hungry appetite gone I still feel strong

4.30.2021 – It was for one whole hour of sensation of chill. I timed it. But I think Im coming out of my fever but weird how it comes and goes.

5.10.2021 – My side has been hurting and so Im drinking water but it wont quit hurting.

5.20.2021 – A- lot of Irritation my entire body feels like an oven . I took two Tylenols and Im laying down sweating it off None I dont insurance Ill wait it out. That is what I mostly do. Because I have no insurance.

5.21.2021 – Stiffness but Im moving around and hydrating

5.22.2021 – Continual sweating like a fountain unusual for me unless I have a fever but I take Tylenol every 8 hours

5.23.2021 – My side hurts. I think its my kidneys not really sure.

5.24.2021 – Diarrhea

5.25.2021 – I just feel strange not sure how to explain I feel strange on my health but just do

5.26.2021 – Kidneys hurt trying to hydrate

6.9.2021 – Side hurting a lot and body aches

6.16.2021 – Sluggish and side hurting. Dont have insurance so I try to take care of it myself

6.23.2021 – Confusion, sluggish

6.30.2021 – I feel like Im going crazy because I feel like Im losing my mind. But I had Covid April 3, 2021. I waited 14 days I got diagnosed negatively then I waited 12 days and I took my COVID shot, then my second shot. I feel like Im losing it somet

8.20.2021 – Back pain mid back right shoulder muscle cant describe if its my lungs or muscle pain. Problems breathing from time to time and catching my breath. Headache but no fever. Headache comes and goes. But just might be stress.

11.17.2021 – Forgetting things hear and there. I never use to forget things.

Eczema, Dehydration and Blood pressure increased

4.19.2021 – Just feeling really dehydrated though Im upping my water intake

5.26.2021 – Ive noticed an occasional stabbing pain and sensitive to the touch at the injection spot from the first shot. ( whether nerve or muscle? ) I had the first shot in the left arm and second shot in right arm. No issue from right arm

10.13.2021 – Severe joint pain and worsening of existing joint pain. Exhaustion is still an on going issue that flares up unexpectedly ( not due to exercise ) Blood pressure is elevated and episodes of heart racing. I suspect Covid related not later vaccine

4.16.2022 – Eczema like rash that I've never had before. Worsening joint pain.

Injection site hypoesthesia, Disorientation and Eye irritation

1.13.2021 – Stiff neck

1.14.2021 – Burning and numbing sensation at injection site, and its surrounding tissues, involving biceps and deltoid.

1.15.2021 – Sever congestion, dizzy, disoriented, eyes tearing and burning, swelling, all over my body burning

1.19.2021 – Symptoms Similar to sinus infection

1.27.2021 – Body ache

2.11.2021 – Limp Muscle at injection site. Could not raise my arm for 5 days.

5.7.2021 – Headache

8.4.2021 – Depression

2.3.2022 – 15 days of excruciating headache. I was extremely foggy and disoriented. I was so affected, it was hard for me to seek more help or go get tested

Body temperature decreased, Asthma and Bronchitis

2.25.2021 – I had extreme exhaustion when I went to drive back home and two days later a raging headache for a day after my first vaccine. I am scheduled for a week from today for #2. I have developed what I think is bronchitis this week, esp bad today.temp 96.7

3.10.2021 – Had some respiratory stuff over the last week, but am asthmatic so saw Dr. on Monday.

4.3.2021 – Brain gog since second vaccine but slowly improving

9.2.2021 – Asthma went on prednisone

10.1.2021 – I had fever, chills and terrible nausea for a day and a half. Gaining strength today.

5.15.2022 – After booster I had fever, chills, flu like symptoms, and slight nausea but not as bad as the last one. This lasted three days and then ended

Breast tenderness, Musculoskeletal pain and Breast pain

1.24.2021 – Jan8th around 12:30pm I almost passed out with extreme weaknesses & inabilty to move or even hold head up. Was taken to Local Urgent care who referred me to ER

1.27.2021 – Left neck, area behind ear, left lower jaw, armpit & left-anterior side of breast very tender & sore. Dr appointment scheduled for Monday.

2.3.2021 – Shortness of breath & lightheadedness

2.17.2021 – Worse left sided pain today

4.7.2021 – Intermittent stabbing pain atleast once a wk, around Left chest, clavicular area, left side of neck & left scapulo-thoracic area. Intermittent DOE with SOB, however relieved with rest or if i stop taking during the episode. Intermittent palpitation

7.7.2021 – SOB, DOE, fatigue, headache, left sided chest pressure & pain

Thirst, Hypoesthesia and Paresthesia

1.13.2021 – Just very thirsty since receiving the vaccine, felt as if I was going to get a fever but I did not.

1.15.2021 – I feel as if there is a swollen area under the armpit

1.16.2021 – Getting a little tired more than usual, my whole body feels like I have been working out, I have not attended my gym since the vaccine I am planning on starting on Monday.

1.20.2021 – Unusual headache through the night and the morning .. took some ibuprofen for the headache

3.2.2021 – All of a sudden I am sneezing without a cause even while I am in bed, or inside of my car, just random and its continuous sneezing I am not allergic to anything

3.23.2021 – I get tingling on my left hand and numb ness on my fingers from time to time my left arm is where the first shot was administered. As if I am hitting my funny bone all the time

Mesenteric artery thrombosis, Cholelithiasis and Hematochezia

1.25.2021 – Dizziness

1.29.2021 – Had racing heart and blood pressure went up

3.5.2021 – I woke up with a headache and chills early this morning. It was in the 60s so not sure why the extreme chills. I took extra strength Tylenol and felt better, and no more symptoms.

3.26.2021 – Diarrhea for two days.

5.14.2021 – Severe insomnia

8.14.2021 – Had blood clot size of grapefruit in stomach, but could find no source of bleed. Had bloody stools, had gallstones, gallbladder removed. Have kidney stones.

5.26.2022 – Been having a cough that is lingering

6.23.2022 – Coughing , sneezing and congestion.

8.11.2022 – Cough, headache, extreme fatigue, joint pain, diarrhea

11.10.2022 – Was having joint pain and chest pain.

12.5.2022 – Swelling under my arm in the lymph node area and pain in joint of arms.

12.15.2022 – Coughing and stuffy nose

12.22.2022 – Had fever of 100.6, cough and congestion. Also had sneezing. Took two Covid test both have been negative.

Ear swelling, Dry eye and Thirst

2.1.2021 – Headaches

3.2.2021 – Intermittent bouts of all over body aches.

3.8.2021 – Seeing MD for dull left side CP, r/o muscular. SOB on exertion. Long standing symptoms prior to getting the vaccine. Thank you.

9.28.2021 – Joint pain all over

11.30.2021 – Ringing in ears. Ear pain with swelling. Separately, I had horrible body aches secondary to receiving a Dtap booster shot and an MMR booster shot; both in same day. They were worse than any COVID vaccine side effects I ever had.

Abdominal pain upper and Injection site pain

3.18.2021 – Problem left shoulder where vaccinated. No significant tenderness initially after vaccination. Have had a mild deep ache with certain reaching movements that I started to notice a few days after. Not improving. Not severe pain. But is worrisome.

4.4.2021 – Left shoulder still not doing well. Have been doing shoulder exercises recommended by PT's online. Certain reaching movements hurt. Not seeing any improvement.

9.17.2021 – Upper abdominal pain.

Sensitivity to weather change, Sinus disorder and Anxiety

1.20.2021 – Anxiety cause I can't be sure I will get my second shot!

1.22.2021 – Anxious extremity so

3.4.2021 – Sinus and headache but it could be from the weather changes. Let's be real

3.18.2021 – Bottoms of feet are numb and tingling day and night but worse at night at least more noticeable and irritating.

4.1.2021 – Feet still numb and tingling do not know if related to shot I am an avid exerciser

2.18.2022 – My hands sometimes get numb after third Shot. My feet are still numb from fist two.

6.2.2022 – Feet and now hands Continue to feel numb tingly.

Edema peripheral, Lymph node pain and Axillary pain

2.24.2021 – It happened within a week of my second shot, I did not relate it to the vaccine until 2 weeks ago after talking to my Dr. I had lymph node swelling under my arms and on one side of my throat

11.2.2021 – Pain and swelling to left armpit area

11.3.2021 – Large amount of swelling to left armpit area

11.4.2021 – Left armpit area still swollen and sore

11.5.2021 – Still have swelling to left armpit area

11.7.2021 – Slight swelling to left armpit area

11.8.2021 – Small amount of swelling to left armpit

Injection site warmth, Injection site swelling and Injection site pruritus

12.28.2020 – moderate pain site of injection on right upper arm

12.29.2020 – Soreness at site of injection

1.13.2021 – My last check in jan 4 didn't received anymore text messages but the next day vaccine area was itchy then very painful to lift my arm and throbbing pain in muscle of right arm one week later next day my arm was fine no symptoms at all

1.25.2021 – Moderate to severe pain left arm site area

1.26.2021 – Severe pain injection site warm touch

1.27.2021 – Swelling and hot touch injection site

1.28.2021 – Pain injection site

Menstrual disorder, Menstruation irregular and Lymphadenopathy

1.25.2021 – After both the first dose and the second dose of the vaccine, my period started way early (day 23 & 24). This is extremely unusual. Only other time it happened was when I was sick with what was most likely COVID (including sever pneumonia). When it happened again this time, I thought it might help to report this sign.

12.17.2021 – Swelling in the lymph node close to injection site

1.11.2022 – Period started early. This is exactly the same reaction I had after the first two vaccine doses. After that, it returns to my normal/exactly on time.

Hand dermatitis, Blepharospasm and Eczema

12.28.2020 – Eczema started to flair up day after vaccine

1.6.2021 – Worsening eczema

1.14.2021 – I passed out briefly as my temp started to suddenly increase— while it didn't register high I felt incredibly flushed— likely vasovagaled.

1.15.2021 – Lymphadenopathy swelling of left axillary lymph node and painful to palpitation. Joint pain in knees and bilateral iliac crest.

1.17.2021 – Yesterday, I continued to have flushing/hot flashes with temp spiking to 99-99.7f and then back to normal a few minutes later.

7.16.2021 – Worsening eczema on my hand. While I had some issues prior to vaccination, the areas & frequency affected are now increased. Unclear whether this is r/t the autoimmune system response that is triggered w/ eczema and/or immune pathway w/ the vaccine.

11.13.2021 – Feeling flushed

11.14.2021 – Flushing. Additionally, enlarged and painful axillary lymph node - feels like a golf ball.

11.15.2021 – Within 20 minutes of my vaccine my right eye started intermittently twitching to a noticeable extent that it's bothersome. For the past four days this hasn't changed. Thought it was a fluke but it's continued and hasn't gotten better.

11.17.2021 – The lymphadenopathy still remains under my left arm though the pain has improved.

Ventricular tachycardia, Initial insomnia and Poor quality sleep

2.15.2021 – Had a little trouble sleeping last night

2.18.2021 – Just slightly nauseous for a few minutes and more tired today but I also got less sleep last night

3.6.2021 – Dumbly tummy

3.8.2021 – I seem to be a little gaseous but not a significant problem

3.10.2021 – Had trouble sleeping last night

3.11.2021 – 2nd night of not sleeping well. Mind very active and to relax and fall asleep. Also left arm in particular is sore (where I got shot but entire arm.

3.18.2021 – Some tiredness, injection arm continues to be sore

10.4.2021 – Lower back pain

10.3.2022 – Heart ventricular tachycardia Dr visits; ep study

Venous valve ruptured, Peripheral venous disease and Respiratory disorder

3.19.2021 – Very foggy brain

3.20.2021 – Foggy brain. I work using high end computer graphics. Takes me twice as long to get work done but seems to be getting better each day

3.21.2021 – Foggy brain and dizziness

3.22.2021 – Still some foggy brain but better than yesterday

3.23.2021 – Still foggy brain but better than yesterday

4.27.2021 – I never use to get headaches. Now i get them every couple days. Theyre at the very top of my head. Ive been using meditation techniques to quell them. Takes 10-15 minutes to deal with them. Interrupts my work day but am able to work afterwards

9.28.2022 – Difficulty getting full breath and exhaling fully without coughing Primary care physician who set up pulmonary test