Their Stories

Blood triglycerides increased, Renal impairment and Therapeutic response unexpected

3.5.2021 – Fatigue

3.13.2021 – Extreme shoulder pain

3.15.2021 – Extreme pain in shoulder

3.16.2021 – Shoulder pain

3.18.2021 – Shoulder pain in bursa

3.19.2021 – Shoulder and upper arm pain

9.10.2021 – Increased anxiety and depression. Increased vertigo and falls. Phantom smells. Changes in tastes of food and drink. Memory and concentration difficulty that interferes with work tasks. One interesting improvement - increased math skills. Intensive outpatient treatment care for anxiety and depression.

3.12.2022 – Low renal function, high blood pressure, high triglycerides. Doctors office, lab

Alopecia, Lymph node pain and Sneezing

1.13.2021 – 24 hours post injection I had significant symptoms general malaise head ache low fever

1.18.2021 – Slight runny nose has been ongoing

2.3.2021 – Listed reaction occurred 7 hours after injection and continued unabated for 28 hours

2.4.2021 – Lymph nodes painful and slightly swollen on side of injection

2.5.2021 – Lymph node pain and swelling under injection arm

2.6.2021 – Lymph nodes under injection arm tender and swollen

5.3.2021 – Hair loss Endocrinologist

2.1.2022 – Runny nose. Sore throat General tiredness sneezing

Blister, Hypotension and Dehydration

12.27.2020 – Sneezing, runny nose x few days

1.6.2021 – Hypotension, dehydration, migraine 1 day after blood donation. Headaches/possible migraine 3 consecutive days prior to blood donation.

1.14.2021 – Axillary tenderness on same arm as injection; I forgot to report it yesterday. Decreased appetite.

1.11.2022 – Mild fatigue ongoing. Headache, injection site welt, nausea, and increased fatigue following Shingles vaccine 1/6/22. Developed new allergy to hormone replacement therapy patch last month: welt, blisters, itching, addressed by ObGyn.

Clostridium difficile colitis, Induration and Neck mass

4.7.2021 – Allergies and my left shoulder is sore, but not directly at injection site. I dont think is related to the vaccine.

4.16.2021 – I also have diverticulitis

4.17.2021 – There is a hard painful lump located where my neck meets my shoulder. Am guessing swollen lymph node? Also i have diverticulitis right now that contributes to my physical misery.

4.18.2021 – The lump where my neck and shoulder meets feels slightly bigger and more sore today. Still being medicated for diverticulitis so symptoms may mix.

4.19.2021 – Painful lump where my neck meets shoulder still there, no change. Already have diverticulitis. May have c-diff again and being tested for it. Woohoo.

4.20.2021 – I have diverticulitis and am being tested for c-diff, which is likely where most symptoms are from. I still have that painful marble size lump where my neck meets shoulder :(

4.21.2021 – I have diverticulitis and am being tested for c-diff. Those are likely causing the symptoms. I still have that lump where my neck meets shoulder but it is not as painful as it was.

5.5.2021 – Been very dizzy past 24 hours, dont know why. Don't know if related to vaccine or something else. Haven't been dizzy like this in some time. It is not pleasant.

10.13.2021 – Just another diverticulitis attack. Most likely unrelated. Antibiotic prescription

Ocular myasthenia, Esophageal motility disorder and Esophageal obstruction

1.8.2021 – My arthritis is acting up

1.13.2021 – Confusion

1.14.2021 – Ocular myasthenia graves flare

1.15.2021 – Ptosis bilaterally from myasthenia

1.16.2021 – Ptosis bilaterally improving.

1.17.2021 – Ptosis bilaterally

2.9.2021 – Worsening autoimmune symptoms ptosis. Muscle weakness.

2.25.2021 – Abdominal pain, diagnosed with celiac disease. Developed antibodies to celiac and thyroid. Increased ANA.

7.15.2021 – Sacroilititis, difficulty swallowing vocal changes. Increasing general weakness.

9.29.2021 – I was diagnosed with generalized myasthenia gravis LRP4 + and have not been able to swallow. Esophagus Manometry showed lower esophagus obstruction and a motility disorder. Tests

10.3.2021 – weakness, trouble swallowing, headaches, double vision, trouble hold head up (flare of myasthenia symptoms mostly), difficulty sleeping

11.26.2021 – RUQ pain, Increased LFTs, hepatocellular inflammation on MRI MRCP and dilated biliary ducts AND CBD Radiology, labs

Smoke sensitivity, Wheezing and Asthma

8.28.2021 – Asthma worsened significantly, likely due to the fires and air quality issues.

12.6.2021 – General allergy symptoms - running nose, sneezing, asthma acting up a bit more than usual Severe headache - not like usual cluster and migraine headaches, this headache spanned from eyebrows up, across ear to ear. Most severe headache I've ever had

12.22.2021 – Asthma issues worsened - heavy chest, wheezing, some shortness of breath. Corrected by albuterol inhaler and Ipratropium bromide/albuterol nebulizer treatments.

5.13.2022 – Vertigo and migraine issues, overheating very easily

Ophthalmoplegia, Myasthenia gravis and Diplopia

1.1.2021 – Worsening of Myasthenia symptoms with weak eye muscles and blurry vision

1.2.2021 – Myasthenia symptoms were slightly pronounced from baseline but controlled with Mestinon.

1.31.2021 – I don't know if related or not.

2.1.2021 – I do have to temporarily go back on Mestinon.

2.22.2021 – Worsened my Myasthenia Gravis control: muscle weakness and double vision. I hope I return to my baseline.

1.26.2022 – I tested positive for Covid today after having 3 full strength Moderna vaccinations.

Lymph node pain, Axillary pain and Injection site pain

3.1.2021 – Tenderness under left arm, the same arm in which I received the vaccine - happened 1 week and 1 day after vaccine. Possibly a swollen lymph node. It hurt in my armpit. Muscle also seemed to be tight in upper arm. Pain went away in 2-3 days.

4.6.2021 – Soreness in arm and underarm. Difficult to tell if it is muscle pain or joint related. More like swollen lymph nodes or nerve related. Really weird feeling. I don't want to risk worsening the condition by constantly feeling underarm lymph nodes.

5.2.2022 – Painful and tender lymph nodes under arm

5.3.2022 – Still have tender lymph nodes under left arm

Nodule, Muscle tightness and Flushing

3.16.2021 – Face got flushed about an hour after the vaccine. Lasted about an hour.

3.18.2021 – Swollen lymph node in left armpit (vaccine side)

4.7.2021 – Sweating, heart palpitations

4.12.2021 – Since the injection side arm soreness disappeared, the muscle in my same side shoulder has been in a knot. Didnt think to mention it until my neighbor mentioned she and her husband have the same thing going on in their shoulders on the vaccine side. Just feels like a really tight muscle but its been like this for about 4 days.

Ankle arthroplasty, Fecaloma and Abscess

2.26.2021 – OA, RA, APLAS, SFN, Dysautonomia ,COPD

3.1.2021 – ankle replacement surgery due to arthritis is pending for MARCH 11

3.3.2021 – Usual daily complaints.

3.11.2021 – Stiff neck, shoulder and arm pain. Still have hard lump at injection site. Presently hospitalized for a broken ankle reconstruction surgery.

3.18.2021 – One week ago, I had a total ankle replacement. I have experienced a lot of pain and am taking Oxycodone. None of these symptoms are related to the COVID vaccine to the best of my knowledge.

4.1.2021 – I had a new cast put on my right leg. It is painful. I also torn the IT band in left ouser thigh. I have bruising on my left arm where vaccines were given and-two palpable bumps. (b)(6) HOUSE CALLS

4.8.2021 – Terrible leg pain post-op right ankle replacement.

8.28.2021 – Decreased mobility due to total ankle replacement secondary to severe degenerative joint disease. Lower back pain. Iliotibial band pain, tightness and abscess on right side. Pain management, rheumatologist, physical therapy, orthopedic surgeon

2.25.2022 – Covid Omicron Positive 1/14/2022 Continue to have symptoms of stiff neck and shoulders, back pain, nausea and vomiting, fatigue and overall weakness. Had upper endoscopy and colonoscopy due to fecal impaction and dysphagia 2/24/22

11.15.2022 – Back pain from severe L5-S1 foraminal stenosis, moderate to severe inflammation, urinary tract infection. Pain management center.

Influenza and Pain in extremity

3.30.2021 – Felt like I had the flu

3.31.2021 – Dont know where to put this but my symptoms besides the arm pain lasted a full 24 hours from first onset (3 am to 3 am) so symptoms werent all of the time since last check in

4.1.2021 – Probably not related but I had a case of poison ivy that started before I got the second shot and it had started to go away before the shot and now for the past couple of days its been getting a little worse and today it started getting a weird reaction and I went to the doctor to get prednisone. Again this is probably unrelated but felt like I should report it

Palpitations and Pain in extremity

4.6.2021 – My arm got terribly sore about a week ago. Hurt to the point that I could barely move it. Took Aleve for several days. Much better now but not 100%. May not even be related to my vaccination, but I don't remember straining or twisting my arm.

4.13.2021 – I was in the ER this morning with heart palpitations, possibly caused by a medication, not from vaccine. Only reporting it because it's a health condition. Feeling fine now. Wearing a heart monitor.

Injection site swelling, Injection site pruritus and Pruritus

1.6.2021 – Have had mild pain ( only when pressing site)which has been steadily decreasing, but today more sore and now itchy for first time

1.13.2021 – On about day 8 or 9 after first vaccination, the injection site swelled substantially and was very itchy for a couple of days. Was painful if pressure applied. Gradually got back to normal...still a bit sore at injection site if pressure applied

2.5.2021 – These symptoms appeared jan 28...dont see a way to report past symptoms...This is 1st checkin Ive received since vaccination...I had a pretty bad reaction the morning after 2nd vaccine. Fever of 103.1 , chills, nausea, fatigue, very sore at injection site. Only lasted about 3 hours, then I was fine except for pain at injection site that gradually diminished over the next few days

2.17.2021 – Have had diarrhea for last few days...unsure if related to vaccine. Worst day was Feb 13

2.24.2021 – Not new or worsening, but still experiencing diarrhea. Not sure if related to vaccine or not?

3.3.2021 – Still have diarrhea...had to come home for afternoon

Gastrointestinal stromal tumor, Neoplasm malignant and Feeling of body temperature change

2.3.2021 – Felt fainty this morning

2.8.2021 – Fainty/dizzy feeling

2.16.2021 – Cold/hot- but no temp; no energy; not hungry; extremely tired; felt in a fog; body/back aches; tight tummy feeling Phone call to my doctor for advice; had a rapid COVID test but was negative; told t o push fluids/rest- if not feeling better soon to call back for an appointment

9.2.2021 – I started having horrible abdominal pain and after seeing my doctor was diagnosed with cancer in March, 2021- a GIST tumor: Gastro Intestinal Stromal Tumor. My regular doctor and then an oncologist

Telemedicine, Musculoskeletal stiffness and Neck pain

2.5.2021 – It could be something I ate. But I want to thank all who are involved.

2.14.2021 – Not sure, but my husband and I have had a pain in our necks. Right side, below the hairline in the back for a few days. He has had a headache. Which he never gets. Going to take an ibuprofen tonight to see if that helps.

2.22.2021 – I have had the neck pain for a few weeks. Right back from the nape to the trapezius

2.23.2021 – Still stiffness in my neck. I put a warm poultice on it last night. A little better.

2.24.2021 – Still a pain in my neck.

2.25.2021 – I still have the right neck pain.

2.28.2021 – Still a pain in my neck. Right side.

3.21.2021 – I have had lower back pain for over a week. Suspected UTI. Doc did not respond. So I stopped by her office. Urine test showed 25,000- 50,000 bacteria in my urine. Took meds. Back still hurts. Neck still aches since 1st vaccination walked into office and saw Dr.

4.25.2022 – The end of a cruise. I was negative on the evening of 4/3/22. I got Covid symptoms on 4/4/22, I thought it was allergies. I tested positive 4/5/22 Tested negative 4/15/22. I was still positive at 7am 4/14/22. None of our family got sick. we facetimed

10.25.2022 – I got Covid 4/5 to 4/15. But it was very mild. I did contact my physician from Facetime. I just stayed home.

Disturbance in attention, Balance disorder and Herpes zoster

3.29.2021 – Im just so very tired!

3.31.2021 – Headache that wont go away chills constantly.

4.2.2021 – Off balance,fog brain trouble concentrating

4.16.2021 – Leg aches really bad,super tired,headache every morning!

4.23.2021 – Headache that wont go away and legs hurt really bad I saw my MD and she advised me not to get the 2nd vaccine due to symptoms after the 1st vaccine.

6.27.2021 – Headache,Shingles,Back pain sever and leg pain sever.super tired,No fever!

9.24.2021 – Ive had a stroke,leg pain,cough that wont stop

Anosmia, Ageusia and COVID-19

3.30.2021 – I had Covid in Nov 2020 and have not had any taste or smell since Nov 12th. Have they done any studies on how long this will last? Thank you

4.1.2021 – Ive reported this before but I had Covid in November and havent had any taste or smell for 5 months now!

7.15.2021 – This isnt a new symptom but I had Covid back in the beginning of November & I havent had any taste or smell since then nine months. Are there any studies that are being done or any suggestions that you can give me to help me regain my taste & s

Gallbladder operation, Tooth abscess and Cholelithiasis

2.25.2021 – the feverish is more like overheated/hot flashes. My hot flashes stopped 10 years ago so I think this is the vaccine kicking in.

2.26.2021 – The feverish is more like being overheated/hot flash that lasts maybe a few minutes. Ache at injection site rather than pain.

3.15.2021 – Dizziness that went away after several hours

3.19.2021 – Feverish feeling is more of an overheating or hot flash feeling that doesn't raise my temperature but is uncomfortable. This happened on Wed. Thurs. And Fri.

4.17.2021 – Constant nausea and gas. Headaches centered on the crown of my head. Neither prevent daily activities but are bothersome.

6.12.2021 – I run a low grade fever every afternoon. 98.7° or so. My temperature is normally around 97°. Frequent headaches. Get tired a lot. I didn't used to have these symptoms.

10.2.2021 – Itchy back. No rash.

10.4.2021 – My toes were extremely cold on the inside and wouldn't warm up even with heavy socks on.

10.8.2021 – High anxiety, jittery feeling

11.13.2021 – Headaches at least once a day. Nausea some days and not others.

4.20.2022 – Rash is really itchy and is now in several different areas.

4.29.2022 – Daily headaches, mouth sores, feeling antsy at times, depressed at others

Sputum discolored, Lower respiratory tract infection and Sneezing

2.7.2021 – Both arms exhibited moderate pain during the night. Better during the day.

2.8.2021 – Only at night

12.14.2021 – Headache, runny/stuffy nose past 6 days.

5.29.2022 – Had headache and cold like symptoms

6.5.2022 – Developed some congestion with sneezing, cough and occasional green sputum. Basically a cold. No SOB. everything else is ok.

7.31.2022 – Chest cold. Lasted 1 week upon my return from a 5 day cruise to Bermuda. Antigen test negative twice tested during that week.

Abdominal pain lower, Musculoskeletal pain and Musculoskeletal discomfort

3.4.2021 – Ache and discomfort at left shoulder blade and left part of lower neck

3.5.2021 – Very mild discomfort and ache in left arm injection site and shoulder blade

4.7.2021 – On APRIL 6 ( day after second vaccine) I had chills, body aches and headache across my eyes and temples. Today none

4.8.2021 – Minor discomfort at injection

6.6.2022 – Cough, tire easily, occasional sharp pain in lower left abdomen, runny nose constantly , took at home Covid test

Hypomenorrhea, Disorientation and Abnormal dreams

3.21.2021 – Feeling of disorientation, strange brain fog and weakness for the last two days

3.22.2021 – Loss of appetite, weakness, spacey/foggy feeling, difficultly focusing on work

3.30.2021 – Worsening insomnia, dreams, worsening diarrhea, dry mouth at night, sour taste at night. Wasnt able to sleep at all last night. Feeling very upset by this. Its has now been two weeks since my 2nd dose and just want to feel better.

4.6.2021 – Arm weakness/numbness (not the arm that the shot was given)

4.13.2021 – SEVERE INSOMNIA. CANNOT SLEEP PROPERLY, MORE THAN AN HOUR OR SO AT A TIME. ONLY 2 OR 3 HOURS OF SLEEP AT A TIME. DESPERATE FOR HELP. HAD NO SLEEPING PROBLEMS BEFORE THIS SHOT.

4.22.2021 – The insomnia caused by the shot has been very frustrating. The fact that no one from the CDC has reached out to me is disappointing. I had an appointment with the chief of sleep neurology at UPMC as he confirmed this insomnia was due to the vaccine

4.27.2021 – I never had insomnia before this vaccine. I was evaluated by the chief of sleep neurology at (b)(6) and he says it is related to the COVID vaccine. The insomnia is awful. Could someone please contact me??

6.15.2021 – Insomnia continues as a result of the second dose of covid vaccine. I am being treated by the chief of sleep neurology of UPMC and a sleep therapist who both concur this insomnia is a result of the vaccine. I work for Pfizer Vaccines also.

9.14.2021 – Menstruated cycle has significantly changed since the vaccination - flow has been reduced by more than half. Insomnia has continued and I am still being treated. Neurologist confirms insomnia is vaccine related. Both ears ring and hum.

COVID-19 treatment, Joint lock and Nerve injury

4.9.2021 – NECK PAINS, JAW SORE NO ONE SEEMS TO HELP

4.10.2021 – hands and toes joint stiffness and aches

4.11.2021 – Stiff hands, toes burn, body aches

4.12.2021 – Hard to sleep still

4.21.2021 – Continuous leg, knee, ankle and lower back aches, body soreness

5.19.2021 – Body aches right side of body still, light headed Medication for nausea and pain

6.2.2021 – Nerve pains , same n dr gave me meds, but idk Recovery covid at cedars sinai

6.18.2021 – Nerve pains excists still, have seen or communicated with 4 doctors for covid recovery and joined a study, xray, ultra sound, new Rx too Referral for PT, xray , ultra sound

5.7.2022 – Problems with hearing ate worse, hand joints swollen or locking, eye sight is worse, nerve damage is worse

5.20.2022 – 5/14/22 broke 5th metatarsal while walking pathway at beach walk area, already had nerve pain now i have more

Joint range of motion decreased, Pulmonary embolism and Injected limb mobility decreased

2.19.2021 – Lightheaded a little dizzy

2.20.2021 – Increased ringing in ears. I have tinnitus - ringing unusually sustained and loud

2.21.2021 – Loud sustained tinnitus unusual for me

3.12.2021 – Loud tinnitus whine in right ear. I have tinnitus but not constant or this loud

3.13.2021 – Accelerated heart rate maybe 15 minutes

3.15.2021 – Fuzzy brain, limited range motion arm that had shot cant lift above head or hold up long enough to wash hair. lift

9.10.2021 – Pulmonary embolisms, shortness breath

Chronic inflammatory response syndrome, Coronary arterial stent insertion and Irritable bowel syndrome

2.24.2021 – I did have a day or so of general malaise and achiness. Kind of like a mild flu. I took tylenol.

5.12.2021 – Abdominal pain diagnosed as IBS

4.24.2022 – Cough, nausea, muscle aches

5.1.2022 – Severe flu like symptoms... cough, congestion, sore throat, muscle aches, chills, and headache.

5.22.2022 – Had COVID, took paxlovid, and had rebound symptoms for 6 days.

10.9.2022 – Physician recently diagnosed me with chronia inflammation syndrome as it took me over 2 months to recover from episode of bronchitis.

Lower respiratory tract congestion, Temporomandibular joint syndrome and Respiratory symptom

3.5.2021 – Neuropsych - strange dreams - sleep difficulty (I normally never have sleep issues, even with fever)

3.25.2021 – Disproportional Malaise, Vague feeling of about to get sick, has been occurring for past 2 days

4.3.2021 – Mild urticaria - unclear etiology

9.15.2021 – TMJ arthralgia

10.4.2021 – Generalized fatigue

10.13.2021 – Headache

5.24.2022 – Mild reactivation of urticaria specifically in area of Lyme-confirmed tick bites that occurred two years ago

8.16.2022 – 1. At end of June I was in France on river cruise and experienced 36-48 hrs of fever & fatigue with no other symptoms. Others on boat were COVID positive with similar symptoms. At end July had 2 days fever, 10 days URI sx, COVID test negative x 2

Tenderness, Injection site swelling and Injection site pruritus

2.22.2021 – Day 8, the injection site skin was red, raised, swollen, and itchy. This lasted for about 3 days. Today, no longer swollen, raised, nor itchy. There is only very faint redness; nearly gone.

6.7.2021 – Dizziness for 5 days

11.12.2021 – Got my booster day before yesterday. Yesterday, I was miserable. Same symptoms as post 2nd vaccine shot. This time, the pain was twice as bad. Tylenol didn't help. Ibuprofen at night helped me sleep. Today, I am 80% better. Still a little achy

11.13.2021 – Tenderness in left armpit

4.29.2022 – Runny nose, body aches, chills, fatigue.

Fascicular block, Osteopenia and Sacral pain

3.20.2021 – Scratchy throat, facial flushing and scratchy inner ears

3.21.2021 – No

3.26.2021 – This might be chronic or related to something else. It's mostly my legs and back

4.3.2021 – A little generalized malaise and minimal neck lymphedema

4.10.2021 – Facial/neck flushing

4.11.2021 – The bottom of my feet hurt/ached

4.12.2021 – Tinnitus for 2 days

12.4.2021 – None

1.5.2022 – Nausea, diarrhea.

3.2.2022 – Some nodules on lung scan.

4.22.2022 – Some sort of vesicular rash to right chest area, bilateral axila areas, a few on the abdomen.

4.29.2022 – Rash

5.6.2022 – Chest rash Office visit to dermatologist

10.7.2022 – Osteoarthritis, osteopenia, left fasicular block. Dr. Office visit, In person.

12.1.2022 – Sore throat, headache, runny nose.

Gingival recession, Respiratory tract infection and Eczema

2.5.2021 – Mild increase in heart rate, but not concerning.

3.10.2021 – Did not see "rash" on the list earlier; have had various eczema-like rashes, mostly on arms and legs, since first shot. Got worse with second shot.

6.4.2021 – Degradation/recession of gum line. Dental appointment

9.3.2021 – Had an unidentified respiratory infection that cleared up with antibiotics but that may be now coming back. I used to never get sick, but now I'm sick every other month. Getting pretty tired of having a stunted immune system. Get rid of these masks.

Flank pain, Aphonia and Brain fog

4.2.2021 – I dont feel to eat food, only drink water or tea

9.30.2021 – Pain in my lower left side, had to go to ER and got test run and a CT scan, but noting was found, so have to follow up with GYN and or another doctor.

7.28.2022 – Uneasy feeling on my head, dizzy feeling

7.29.2022 – Foggy and somewhat dizzy

10.21.2022 – I thought I had Covid a few weeks ago as my voice was going in and out, no major pain but I had some congestion. So I took the test at home and it was Negative.

Bone loss, Blindness transient and Synovial cyst

10.2.2021 – VERY Slight tenderness st vaccination site only when touched

12.30.2021 – Had bone density test - diagnosed w osteoporosis. New prescription to slow osteoporosis bone loss

5.10.2022 – Congested L sinuses,,fever, chills, headache, sore throat, coughing, nausea, vomiting, body aches, lower legs numbness, diarrhea, chest tightness, shortness of breath, exhausting fatigue, weakness,,left ear ache Did rapid home test and Covid detected

5.17.2022 – Muscle pain in hips, legs, feet and tingling that started in feet and was moving up thighs, diagnosed at hospital ER with Covid myalgia. R/o clots and r/o GBS taking extra strength Tylenol and Motrin for the pain. 11 hours at ER - 6 waiting and 5 w labs, IV, and meds

7.5.2022 – Painful gross hematuria, UTI, shortness of breath so used rescue inhaler in addition to asthmanex, fatigue Lab test metabolic panel, urinalysis/urine culture - having CT scan and cystoscopy this week