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Their Stories

What v-safe registrants wrote to the CDC after their Pfizer or Moderna shots, in their own words. Each card is one person, with all of their free text. This page shows only the longer stories: the 116,000 people who wrote at least 400 characters in all. The text is as the CDC released it, except that email addresses and phone numbers are hidden. You get a random set of these people on every visit.

Shuffle

Generalized edema, Fluid retention and Weight increased

3PG-94173-59952

– Water weight gain

– Joint pain lessening. Water weight gain disappearing.

– Water weight gain from gen. Inflamation

– Muscle, joint pain and water weight gain deminishing slowly.

– Water weight gain/ gen inflammation-subsiding

– Generalized inflammation/swelling-"water wight gain

– Generalized inflammatory/water wt. gain swelling

– Lingering muscle ache/fatigue.2 days ago sleep improved with slow modest muscle improvement.*Note: I have lived with chronic pain for over 40years and lumbar plexitis since 2017. I am aware of N/M issues.

– While traveling developed edema of hands and lower legs. May have been due to change of diet (high carbs) or BP med side affects.

– Omicron simptoms Day 1 headache Day 2 sinuses Day 3 hoarse throat Day 4 upper respiratory Day 5 gone

Gastric dilatation, Lower urinary tract symptoms and Vulvovaginal mycotic infection

3PH-13680-94579

– Feel irritable

– Liquid filled bumps on right knee -itchy, top of right hand -not itchy

– Stomachache, hard & distended, nausea. Temp max 101.4

– Stomach & intestinal discomfort, vaginal yeast infection

– Light headed, shortness of breath

– Unusual sweating

– Sweating like menopause, short of breath still

– Dizzy, upset stomach, feel sweaty. Strong body odor.

– Bloat, sweating

– Loose stool, UTI symptoms

– Seem to be short of breath more often

– I cant get rid of UTI symptoms. They come & go.

– Recurring stomach & abdominal pain with horrible gas pains, low grade fever 100.4. On& off UTI symptoms

– Sharp pains in left side, lessening but lasting 3 weeks Ultrasound, bloodwork

Poor quality sleep, Limb discomfort and Hyperhidrosis

3PH-15156-37886

– Lightheadedness

– Havent slept much since the shot three days ago am wondering if having type ab pos blood is causing problems sweated a lot last night fell when got up to change clothes be ause of dizziness and skinned my arm at least i did have enough energy to take a a shower for the first time today

– Very tired could not sleep much again last night but did better than previous nights

– Feeling a lot better but if stop taking tylenol feel much worse

– Feeling tired legs feel like they are made of lead

Immobile, Muscle rupture and Eye hemorrhage

3PH-16290-97377

– Sore tongue & mouth

– Mouth & tongue sores Telephone call

– Thumb inflamed, cramped, immobilized. Sudden severe pain started Saturday. It is getting much better. Getting 2nd vaccine 2/13/21

– Right eye severalBroken blood vessels last night

– Arm is very very swollen in the back and had a rash

– Swollen arm of injection arm

– Stomach pain

– Dizzy & I have COVID arm. But Im grateful

– Back pain muscle right side Personal doctor visit

– Eye pain

– back pain right side

– Diahrea

– Fatigue, congestion

– Earache, sinus congestion, headache, foggy On Zpak now

– Still have COVID swollen arm & now tear in glute muscle. Otherwise very good

– Foggy feeling. Headache My internist

Groin pain, Injection site reaction and Lymph node pain

3PH-17043-46445

– Significant pain in both armpits and groin (like lymph nodes).

– Moderate pain in armpits and groin (lymph areas)

– Armpit pain remains (minimal), groin pain has resolved.

– Lymph pain in right armpit only; mild

– Left armpit pain minimal (meant left yesterday, sorry)

– The lymph node pain returned a week later, and was significant pain. I saw my MD and was told it was not infected, so its believed it is a reaction from the vaccine.

– Left arm pit/lymph pain REMAINS, and its quite irritating at this point. I still have moderate pain when arm is fully down at my side, minimal when its not touching my trunk.

Vaginal hemorrhage, Menstrual disorder and Injection site warmth

3PH-31843-09444

– Scratchy throat. Might be from dust. Was cleaning today. Hard to tell what the cause is

– I think this is food poisoning

– Arm feels hot near injection site. I feel feverish. But I don't have a fever. My normal temp is around 97.4

– I had some unexpected menstrual changes

– Armpit on the same side as injection is swollen

– Neck is stiff and lymph nodes are swollen.

– Sore throat and stiff neck.

– Lymph nodes in neck swollen

– Spotting. I did this after the last vaccine as well. It's not major, but it is not typical either.

Post procedural inflammation, Thyroid hormones increased and Anaphylaxis treatment

3PJ-19436-29922

– Had labs done on 1/4/2021with a checkup, including thyroid & levels were a little high so am starting on levothyroxin. No reason to rhink it's related to vaccine.

– Had cataract surgery 2 weeks ago & had lots of inflammation in left eye today. Treated with steroid & antibiotic eye drops. Nit related to Covid or shot.

– Head cold with sinus drainage & pressure, slight cough. It's like my typical winter cold.

– Sinus cold/congestion

Rash macular, Visual impairment and Fall

3PJ-21271-77482

– Vision issues and dizziness.

– Still having problems with my vision at times

– Dizziness. I fell last night and my back and shoulders are sore. Not sure if the dizziness caused the fall.

– Dizziness

– It seems like my arthritis is worse. Also, I am sore in my armpits.

– Coughed during the night and feeling more congested.

– Congestion, tightness in my chest

– Red splotches that itch

– Pain in my neck. Lymph nodes on left side of my neck are enlarged.

– Pain in lower back, nausea Phone call to Dr who gave me an antibiotic

Anaphylaxis treatment, Swollen tongue and Hypoesthesia oral

3PJ-28558-59571

– Itchy throat, swollen tongue, numb/tingling lips, tachycardia

– This morning I was slightly tachycardic but I think that was more of a side effect from the epinephrine I was given yesterday.

– Chest tightness

– Left arm swelling, redness, pain at Injection site, pain into wrist and shoulder, daily Headaches, neck pain,

– Everyday since the vaccine I have experienced neck pain. My neck is extremely stiff. Its sore. It pops all the time. I did not injury it. This is very out of the ordinary. No matter what I do, these symptoms wont go away.

Lip exfoliation, Glossitis and Lip dry

3PJ-30632-24247

– Swollen painful armpit lymph node, dizziness, previous chills

– The nausea continued for 10 days post vaccine. I also had menstrual spotting even though I dont menstruate anymore. The nausea is gone now, but Ive had mild dizzy spells today.

– Cold sore/fever blister on my lip along with cracking dry peeling lips (just like when I had Covid). Still fatigued. Periodic dizzy spells...just like with Covid.

– Mouth sores, tongue rawness, sore throat; continued armpit lymph soreness and fatigue and dizziness

– The tip of my tongue is raw and painful. I continue to have dizzy spells and fatigue. Sometimes my throat still hurts

Glossitis, Glossodynia and Swollen tongue

3PJ-53135-67950

– General itchiness

– Severe insomnia (probably unrelated though?)

– I've had pretty severe lightheadedness for the last 5 days or so. Where i have to sit down so i don't faint. I have had this problem before, but not in several years. I do not know what causes it.

– Concerning and long term swollen tongue and swallowing issues Several dr appts and tests

– Swollen tongue, since last July. Enough to cause rawness, pain

Exercise tolerance decreased, Breast pain and Lymph node pain

3PJ-53609-22854

– Breast pain

– Im a long distance runner, went to the local clinic after my heart rate continued to be abnormally high when I try to do an easy run.

– Chest pain increased this week. Got a chest x-ray yesterday. Unable to exercise due to heart rate issues and chest pain. Waiting to hear back from the lab to schedule an EKG.

– Chest pain still present. Lymph nodes swelled back up and became painful. Still able to only do minimum physical activity and unable to exercise.

Increased upper airway secretion, Night sweats and Injection site swelling

3PJ-57900-91303

– None

– Pain is very slight. Skin around the injection site slightly swollen and sensitive to touch. No interference with day to day activities. Better than yesterday.

– Excess mucus secretion in throat causing cough.

– No

– Have experienced night sweats last two nights. Could be my body is still adjusting my temperature although I don't feel feverish.

– Had another round of night sweat despite not feeling feverish.

Itching scar, Nasal mucosal blistering and Lip swelling

3PJ-88060-24589

– I developed a new rash last Friday and last night out of no my scar from my hernia surgery I had done in 2014 blew up and was severely itching just like my arm last week. Woke up and it was normal. I also had blisters in my nose and lip blew up.

– Ive been having dizziness and headaches. Feeling bouts of vertigo also. I have never had any health issues prior to this vaccine. Now it seems something new each week develops. In office visit with primary

Muscle strain, Depression and Flushing

3PK-23607-61383

– Flushed, but no temp.

– Cough, congestion, headache. It feels like a sinus infection.

– Signs of depression.

– Sinusitis

– I had a bad cough for a week after the booster shot August 11.

– Sinus infection.

– Vertigo and sinus infection. (Both are recurring.

– Rash for 2 days ob my face. Phone call to doctor's office

– Strained ribs

– Sinus infection

– Sneezing, sinus pressure

– Persistent fever and aches. COVID and flu tests were negatve.

Laziness, Apathy and Rash erythematous

3PK-30322-68192

– Loss of appetite but not sick to my stomach nor no stomach pain. Headache and body aches just in left arm and upper neck and shoulders, got better with Tylenol. Just kind of a lazy feeling but did not really sleep all day, just dozed off for about 20 min.

– Still feel more just lazy then tired. Did not nap or sleep but just not motivated to do anything major either.

– Little blotchy patches of red rash couple on face and arms. Not sure if its vaccine related, does not hurt, just appeared from no where.

Arthropathy, Alopecia and Head discomfort

3PK-31416-59736

– I have always blood pressure that is on the low side of normal range. Since the vaccine my blood pressure has stayed between stage 1 and stage 2 hypertension range. We bought a pharmacist recommended blood pressure monitorPlus fatigue

– Tingling in face

– Pressure in head

– Chest pain and raised blood pressure

– Slight chest pain - bowel issues of increased constipation that I forgot to mention previously

– Hair still falling out

– Joints are having issues - hair still falling out

– My hair has been falling out and I can't remember if I put that on my check in. It continues to fall out quite a bit every day.

Motor dysfunction, Toothache and Pain in jaw

3PK-42063-33101

– Yes right after injection tingling feeling in hand of arm where injection was given. Continued off and on for 2-3 hour. 9 hours post injection fingers and forearm ache.

– My fingers in arm of the injection hurt when trying to hold steady a medicine vial when opening.

– Fingers on injection arm hurt with grasping

– Injection arm hand hurts to grasp things and elbow and armpit ache.

– My jaws and teeth are painful. Woke me up from sleep the other night. Not sure if this is related to vaccine. Never have had this issue before.

– Night of vaccine had chills headache body and muscle and joint pain. Tired

Dysmenorrhea, Back pain and Arthralgia

3PL-15354-44528

– I'm pretty sure this is unrelated, but I felt very light headed a few hours after donating blood last week on Sunday. (I don't typically feel like that. I was fine after donating, eating a snack and walking home. A couple hours late, it happened.)

– My right knee hurt a lot on Sunday/Monday (and then progressively less each day.) I can't imagine this was vaccine related. But don't know how it happened so mentioning.

– Minor arm soreness

– Headache for about 6 hours

– Back pain (probably a coincidence though since started this am)

– Tiny bit of back pain left over from yesterday. But way better than yesterday so will probably be gone by tomorrow

– Big headache onecday

– I got period cramps 10 days before my period. That's never happened before (24-48 hours is normal for me.) But it only happened for one cycle and I'm sure it is unrelated to the vaccine.

– I had COVID about a month ago. I recovered. I currently have a headache but that's unrelated.

Disturbance in attention, Muscular weakness and Dysgeusia

3PL-15513-53808

– Strange taste in mouth. Taste like an artificial seeetner. I had it the past two days. Today it is subsiding . I forgot to report last week. The day I got the injection, I had a weird lack of awareness .

– I think I have the Nora iris Joint and muscle pain, nausea and vomiting, severe diarrhea , chills

– Extreme tiredness

– Swollen glands in neck. Sore throat

– Fatigue and muscle weekness

– Runny nose. Scratchy throat and fatigue

– Started yesterday (January 3) Sore throat, headache, joint pain, stuffy nose and earache.

– Last night a sore throat started, stuffy nose and an headache..

– Stomach pain, diarrhea, nausea . It lasted two weeks

– Fatigue

Cortisol decreased, Joint impingement and Urinary bladder hemorrhage

3PL-23249-77382

– Short term Sweats w mild fever. Fever was also less than 3 hours

– No

– Profuse sweating

– Hoarseness Sweats

– Sweating. HPV on my lower lip due to stress

– Sweats

– Sweats hoarseness ear ache

– Fatigue Several GP visits w blood tests

– Fatigue continues to be a issue. My GP referred me to a specialist based on very very low cortisol levels. Follow up w GP post 7 day intense reaction to second Pfizer injection

– Cataract Surgery right eye

– TURP surgery. Fatigue, Bleeding from bladder

– diagnosed with acute bronchitis GP visit

– Fighting a sinus infection

– Common cold virus. It is day 8. I am still working through the chest congestion and sinus drainage. Had a temp of 101 with mild chills and seats for one day.

Hot flush, Hypersensitivity and Feeling hot

3PL-31393-71586

– Hot flashes from menopause stopped on the day I was feverish, returned today.

– Hot achy muscles when sleeping, but I've had that quite often so probably not associated with the vaccine

– Spring allergies

– Shortness of breath, coughing, congestion probably due to pollen/dust allergies

– Sore throat and congestion, shortness of breath, probably from a new allergy to pollen?

– Probably allergy-related, though I've not had allergies like this before

– I had a cold. Sore throat a bit of coughing tickle in my upper respiratory and fatigue. Neighbor had the same thing and got tested and it wasn't covid. So I did not bother getting tested.

– Sore throat, fatigue, hot flashes

Fibromyalgia, Feeling of body temperature change and Tremor

3PL-71393-78182

– Weak and shaking, had covid 8/8/2020. Still tested positive the 3rd week of october. Had an antibody test 2x. Positive for antibodies 10/2020. I have 2 auto immune diseases, fibromyalgia and mesenteric panniculitis. In a lot of pain today. Very sore arm. Got it in my left arm because my fibromyalgia was making my dominant arm and shoulder hurt yesterday 3/19/21. I just feel blah achey shakey and going from cold to sweating. I took 2 Alieves.

Nasal dryness, Nausea and Rhinorrhea

3PM-13536-98980

– Nausea. Bruce 5 days I only had a little nausea. The last three or four days I felt less tired but more nausea

– Just felt a little nauseous but not bad at all. Nose was dry at first but now its moist. All good after 3 weeks thank you

– I go from runny nose to dry nose. Must be the vaccine but not bad cuz it keeps me alive it's good enough

– Dry nose and a little lightheadedness

– Muscle or joint pains is normal occurrence nothing to do with the vaccine. Not better not worse

Hyperhidrosis

3PM-14315-32187

– Due for my menstrual cycle on 1/13/21; this date determines if im pregnant or not

– Sweating.

– Started menstrual cycle

– Menstrual cycle

– Menstruation

– Finishing menstrual cycle

– Wont know if I am pregnant for another 1.5 weeks

– Waiting to see if im pregnant

– Waiting to see if pregnant. Will know 2/8/21 as that is the date of my proposed menstrual cycle

– Waiting to see if pregnant

– Waiting to see if i am pregnant

– Menstrual cycle started 2/7

Petechiae, Platelet count decreased and Contusion

3PM-16373-93532

– Recurring and persistent headaches since getting the second dose. There may be other factors, but these are unusual for me.

– I have chronic idiopathic urticaria, however with my medication it has been 10-11 years since my last reaction. I broke out with no clear trigger and struggled for 3 days to get it under control. I experienced nausea, fatigue, and ongoing headaches.

– I have Immune Thrombocytopenia Pupura (ITP) and my platelets were rising for almost 2 years until I had my vaccine. Maybe it is coincidence but they are dropping again. Fatigue, petechiae, bruising. In person, bloodwork with hematologist

– Increased bruising, fatigue Hematologist

Pneumonia, Migraine and Dyspnea

3PM-25430-39172

– Ive been having severe migraines since the vaccine, they only effect me late in the evening and cause some concern but my temperature is normal and I do not feel fatigued.

– Its just headaches later in the evening that cause dizziness, it almost feels like a blood pressure issue but I have no history of blood pressure issues. Other than that Im 100% okay

– In the mornings Im having trouble breathing, its a similar feeling to walking pneumonia where there feels like there is fluid in the bottom of my lung but after a few minutes of coughing it clears up, the headaches are getting better but still

Plantar fascial fibromatosis, Lipoma and Yawning

3PN-11242-48442

– Slightly stuffy nose. Could be allergies, though.

– Bruise at injection site

– Brain fog

– More recurring headaches than is typical

– More random joint pain than is typical, more headaches than are typical, and fatigue

– Still, the headaches. Still, the joint pain. Still, the fatigue. Then, five days ago, I yawned and my jaw popped (like it never has done so before) and afterwards, a bout of intense TMJ that still hurts as I write this, and has worsened the headaches

– I had an unusually strong immune response to a follow-up flu shot. High fever, shaking chills, lump & red rash on my arm, etc. Might be related to the Covid vaccinations or might not be, but thought you should know.

– Plantar Fibroma; lipoma

Chronic myeloid leukemia, Leukemia and Therapeutic response unexpected

3PN-14811-41382

– I have been on 2 liters of oxygen for 8 years. I am finding that since the 2nd vaccine, I am able to go 6-8 hours with no oxygen AND when I do go back on, I am on 1 liter instead of 2. Go figure

– I continue to spend hours off my oxygen

– After 8 years of being on 2-3 liters of oxygen, I was off my oxygen for 10 hours.

– Fever, very tired, blowing a lot of junk out of my nose. A few foods dont taste right

– I have diagnosed with Leukemia

– I have been diagnosed with Chronic Myeloid Leukemia

– Oxygen is low Infection

Apathy, Flank pain and Paranasal sinus hypersecretion

3PN-23232-98049

– Runny nose COVID test

– I'm struggling with motivation to do household chores. I'm not sure if it's worth mentioning since I have FM and SAD, but I struggle at times. I usually do when the seasons change(along with the weather) but my symptoms have seemed worse lately.

– A little dry cough, increased sinus drainage, runny nose and congestion. I'm more fatigued than normal.

– Pain in my right rear flank, especially when I turn to the right.

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