Their Stories

Total lung capacity decreased, Mouth ulceration and Glossodynia

3.17.2021 – Hot flashes

3.18.2021 – Severely dehydrated. Cant drink enough water.

4.3.2021 – Migraine

4.5.2021 – Sores in my month ans tongue

4.6.2021 – Sores in my mouth, more migraine

4.8.2021 – Drop dead exhausted. Brain fog.

4.23.2021 – 4 days with a fever over 101*, then 3 days with a fever over 100*. Headache, exhaustion, Saw my doctor in person

4.30.2021 – Difficulty breathing, congested, sore throat, fever, exhausted, cough

5.14.2021 – I have a cough that wont go away. Sinus congestion, i have lost lung capacity Saw my doctor in the office

10.2.2021 – Exhaustion-constant, migraines have increased in frequency and duration, i have a cough that wont go away, numbness in my arms and hands, blurry vision, weight gain. In office visit, labs, procedure

4.2.2022 – Colds are more severe than pre covid. I trsted positve for covid in december. Chronic fatigue is worse. See my doctor

Abdominal discomfort and Abdominal pain upper

4.28.2021 – No feel better than yesterday

4.29.2021 – No it seems like every day now Im just feeling better

5.2.2021 – I had horrible stomach pain Friday night into the am I ended up throwing up about 1 gallon fluids only. It was horrible and my stomach has been making growling sounds. Since my 1st shot of course Ive been off my methotrexate for Lupus since 3 weeks prior to my first shot. I see my general practitioner on Tuesday super haps shell figure it out. Anyways I do feel better today than I did yesterday of course. I kind a lost my appetite but I think that would be normal.

Paranasal sinus discomfort, Productive cough and Night sweats

12.25.2020 – Night sweats

12.26.2020 – Sinus pressure, phlegm, nose congestion, backache do not think this is related to vaccine, husband started with cough and phlegm yesterday, daughter sneezing and has a stuffy nose.

12.27.2020 – Stuffy nose, sneezing, sinus pressure, do not think this is related to the vaccine. My husband just found out he tested positive for Covid today.

12.28.2020 – Not from vaccine, Sinus pressure, sneezing, phlegm. Husband positive Covid, went to get tested today waiting on my results.

12.29.2020 – I have a positive Covid test, headache, stuffy nose, sneezing, phlegm

12.30.2020 – Positive Covid test, sinus pressure, phlegm,

Rash papular, Feeling cold and Rash pruritic

2.21.2021 – Injection site is raised, circular, very itchy, and quite red

3.7.2021 – On the day of my first vaccine, I developed a painful, itchy, swollen rash that lasted 3 days. It went away and came back on day 7 for about 4 more days. It still itches from time to time and there is still a little redness.

3.21.2021 – Just a feeling of malaise. Felt like I couldnt get warm no matter how many blankets I wore. Covid arm has returned. Limbs had a restless achy feeling (feet/legs).

3.23.2021 – I feel a little out of it, like I have some brain fog.

11.17.2021 – Malaise

11.18.2021 – Anxiety

Abnormal menstrual clots, Nightmare and Vaginal hemorrhage

4.18.2021 – Nurse and paramedics at vaccination site

4.19.2021 – Vaginal spotting, dizziness, Vivid dreams, nightmares, anxiety, increased heart rate

4.20.2021 – Dizziness, headache

4.23.2021 – Headache seems to be getting worse. Dizziness. I called my doctor for guidance. They havent called me back yet.

5.5.2021 – Worsening dizziness, nausea, difficulty staying asleep

5.11.2021 – I had an EXTREMELY heavy and painful menstrual period. My periods are normally light with no cramps. I almost went to the hospital with how severe my cramps were. I was passing large clots and bleeding through pads and tampons. This has never happene

Deafness, Specialist consultation and Tinnitus

12.30.2020 – headache and tinnitus

1.6.2021 – Tinnitus pending appointment

1.21.2021 – Rigors starting ~10-12 hours post vaccine injection and lasting 24 hours, now resolved.

2.4.2021 – improving fatigue, tinnitus, and headache

2.10.2021 – Your question does not allow for follow up of ongoing symptoms. Selection bias! still +tinnitus symptoms

2.17.2021 – Your program is designed to under report conditions, since it only asks for new symptoms, not continuation of previously reported symptoms.Tinnitus now on 80mg of prednisone.

4.14.2021 – Tinnitus following second vaccine injection. This required prescription medication intervention, RX Prednisone. With moderate, and welcomed, improvement in symptoms of tinnitus, but not resolved. I am now towards the end of the taper dose.

7.14.2021 – I was on long-term steroids, prednisone, secondary to adverse events of the vaccination. Im now off the prednisone, but its been a rough ride, with fatigue and myalgias.A hearing test demonstrated moderate to severe hearing loss, improved on HB

Impaired work ability, Mobility decreased and Oral herpes

3.12.2021 – Fever blisters

9.24.2021 – Recent cough

10.29.2021 – Very dizzy

10.31.2021 – Dizziness and swelling at my neck and collarbone and arm I have a call into my dr have not heard back yet.

11.1.2021 – Swollen lymph nodes

11.3.2021 – Very swollen lymph nodes Dr called in steroids last night, started today

11.4.2021 – Severe lymph node swelling started steroids Will have in person appointment tomorrow with dr

11.13.2021 – Was treated for swollen lymph nodes and missed several days of work was hard to turn my head.

Cerebral atrophy, Inner ear disorder and Pulmonary congestion

2.13.2021 – Brain Fog

3.12.2021 – Lack appetite

3.13.2021 – Awoke slight brain fog gone now

6.10.2021 – A dizzying feeling comes and goes. PCP referred me to therapy, (waiting for call from them) as PCP suspected inner ear issue. Saw PCP at annual health visit 6/9/21

9.9.2021 – Short term memory lapses. Had a brain/ cranial scan MRI. Radiologist reports from scan noting atrophy. There is a scheduled Tele visit with a neurologist 10/04/21

6.25.2022 – No, feel great!

12.21.2022 – Sneeze, cough, nasal and lung congestion.

Middle ear disorder, Ear tube insertion and Sputum increased

2.3.2021 – Metallic fish taste from 12 minutes after injection to about 3 P.M.

2.4.2021 – Had my right ears tube replaced. Popping and headache.

2.5.2021 – Right ear is hurting where Dr. put the tube yesterday. This is expected.

2.6.2021 – Fell on ice twice. Could be middle ear is messed up from tube insertion.

2.7.2021 – Ear does not hurt as much today, but still have the mild headache.

2.8.2021 – There is water in ear, but dissipating plus extreme cold last evening. This could cause the headache.

2.10.2021 – Phone quit yesterday,

2.25.2021 – Limbs felt like dead weight. Desire for a ton of pizza, but know the outcome . Very dizzy. These symptoms seem to be dissipating.

2.26.2021 – Sinuses are draining like crazy. Shakey when I rise. Some dizziness. Body aches are very intense.

2.27.2021 – Tired and fatigued is severe, but seems am recovering.

10.11.2022 – Sneezing, runny nose

10.12.2022 – Runny nose, thick phlegm in throat, spit a lot.

10.13.2022 – Coughing, sneezing, a lot of phlegm, sit a lot too

10.16.2022 – Phlegm subsiding, still spitting, and runny nose not as intense

10.28.2022 – Very sore back from mid to butt.

Costochondritis, Musculoskeletal chest pain and Swelling

2.23.2021 – Feeling pain on lower part of my chaste. specially when I am sitting on the chair, feeling like swollen.

3.27.2021 – I feel pain and information / pressure under my ribs and pain in my middle back. I do have a tackling throats and cough sometimes. I dont have a cold symptoms like runy nose. My lungs Are clear. These Pain and pressures are worse when I sit. Visit Dr. Too. I am taking 24 hours allergy medication.

9.8.2021 – Pain and inflammation under ribs and middle back. Rash in my body and inflammation around ankle and foot. Dr. Visits and CT scan

3.11.2022 – I have a pain and inflammation under my rib and Middle back. Primary Dr. And others

Abdominal pain, Chest discomfort and Insomnia

3.12.2021 – Tiny amount of tingling an hour to 2 hours after

3.15.2021 – Swollen lymph node in armpit on side vaccine given

3.16.2021 – Swollen lymph node in armpit. Same side as injection.

3.17.2021 – Lymph node still swollen in armpit

4.2.2021 – Tingling in arm

4.4.2021 – Swollen lymph node with pain

4.5.2021 – Swollen painful lymph node under arm

5.8.2021 – Fever chills low fever

7.2.2021 – Abdominal pain, diarrhea, fever

4.3.2022 – Congestion, fever, abdominal pain, chills, insomnia, headache, chest pain, heaviness in chest, breathing difficulties

Nausea, Pain in extremity and Fatigue

3.10.2021 – The nausea is very mild. Tiredness moderate.

3.11.2021 – Just want to note that I planned for 3 days off, and that was a good thing.

3.12.2021 – The tiredness has begun to wear off and though I woke with arm pain, it was gone by mid morning.

3.13.2021 – I seem to be back to normal.

3.16.2021 – I am not sure if it has anything to do with the vaccine but I am unusually tired today.

3.17.2021 – Still a bit tired but better than yesterday.

5.24.2022 – Unusual fatigue, feeling off, but not overtly I'll, for the past three days. Tested negative this morning with government issued Covid-19 home test.

Rash papular, Rash macular and Hypoesthesia oral

12.31.2020 – The "rash" I'm checking was on the front of my shoulder,a few inches away from the injection. It was an irregular, reddish blotch with some raised white spots, like a hive. That was last night. It is fading today. Not a problem, just weird.

1.2.2021 – This came on suddenly around 5:30pm

1.4.2021 – I had a few days where my tongue seemed partially numb. But not today.

1.21.2021 – My tongue feels tingly or numb. Some soreness around my neck, a strange, slightly woozy feeling, like the aura of a bad cold or flu. I don't want to drink because I feel nauseated and nothing tastes right.

1.22.2021 – Tingling tongue

1.25.2021 – Brain fog. Unusual trouble with word recall, recall of events, trouble focusing. Also runny nose and sore throat. Those have been coming on for a few days. I had not really associated them with the vaccine. Today I learned that a person I had contact with last week is covid positive and get husband is pretty sick with it

1.26.2021 – Numb/tingling tongue,. Brain fog, trouble with word recall. And focus.

1.20.2022 – I had a bad cold or flu type illness in October. My son and husband were sick at the same time. My son and I had negative COVID tests. My husband tested positive. He received monoclonal antibody treatment. I believe my test was a false negative

Post-acute COVID-19 syndrome, Sputum discolored and Productive cough

3.28.2021 – Mild, occasional dizziness

3.29.2021 – I am a COVID19 Long-hauler

3.30.2021 – Im a COVID19 long-hauler

4.13.2021 – Im a COVID19 long-hauler, often have fatigue

4.14.2021 – Extreme dizziness & ringing in the ears

4.15.2021 – Dizziness

4.16.2021 – Intermittent dizziness

4.17.2021 – Long-hauler

4.18.2021 – COVID19 Long-hauler

4.19.2021 – COVID19 Long Hauler

5.25.2021 – Increased fatigue, headaches & backache

10.12.2021 – Stuffy head, headache, cough producing thick yellow mucus, minor aches, fatigue

5.21.2022 – No

6.19.2022 – Increased neck & back pain; increased fatigue Outpatient rehab

11.19.2022 – Common Cold Since yesterday (11/18/2022)

Nonspecific reaction, Specialist consultation and Poor quality sleep

3.3.2021 – I had a slight rash in my neck 2 weeks prior to vaccine. It was going away. Mow it is a bit worse and is itchy. A call to my dr. Benadryl was recommended. If that doesnt help well have a Telegraph visit after a few days.

3.5.2021 – I have a rash in my neck that has gotten worse. I had this rash before my vaccine. It was going away. I went to a doctor for it and because I had it before the vaccine he didnt think it was related to the vaccine. I have a cream for it now and its getting better. I was out of town caring for parents so I went to a clinic by their house.

3.6.2021 – Still have rash on my neck.

3.8.2021 – Skin doctor appointment

4.2.2021 – Im not sleeping well. I wake up several times during the night. I usually sleep all night with no problems.

4.3.2021 – Not sleeping well, waking up several times a night . So Im tired during the day.

Photophobia, Vertigo and COVID-19

2.7.2021 – Mild intermittent vertigo

2.12.2021 – Moderate intermittent vertigo

2.20.2021 – Worsening moderate vertigo which has improved in the last two days to mild and then minimal vertigo. No other symptoms I would possibly attribute to the vaccination.

4.12.2021 – Headaches

4.17.2021 – Resumption for a few days of vertigo and dizziness that had appeared earlier after vaccination. Not as bad now as it was then.

6.12.2021 – Two weeks of unrelenting migraine headaches, after months of only very isolated migraines. Possibly due to vaccination, but it started up too long after 2nd vaccination. Otherwise health doing well.

11.2.2021 – Eyes sensitive to light, mild

11.5.2021 – Moderate eye sensitivity to light

11.19.2021 – Mild sensitivity of eyes to light and headache

12.5.2021 – Fever and fatiguefor last two days that has appeared to resolve

Red blood cell abnormality, Red blood cell count increased and Cyst

5.22.2021 – Blood work was a little off and dr Had me get an abdominal ultrasound and now I need to get an MRI for a cyst in kidney and heterogeneous liver (already had fatty liver before vaccine)

9.30.2021 – Yes, the evening I received the shot (9/27) until Wednesday (9/29) early morning, I had chills, fever (99.9), lymph nodes in my armpit hurt, arm really hurt, I was nauseated, and tired. Overall had a much worse reaction than the other shots.

10.11.2021 – Slight earache, maybe toothache, underarm lymph nodes hurt. Dr put me on antibiotics. Finished yesterday, symptoms are starting up again. Will see dentist if they get worse.

11.8.2021 – Red Blood cells are off, waiting in more test results

3.28.2022 – Possibly Bursitis. Hips/knees/legs get very tight and stiff. Hurt when I stand up after sitting for a while. Once I get moving it's better. Starting physical therapy. Red blood was high a couple of times. Last tests all good. Office visit to orthopedic and hematologist and physical therapist

Upper respiratory tract infection, Brain fog and Lymphadenopathy

12.24.2020 – Axillary adenopathy

12.25.2020 – Auxiliary adenopathy is resolving Arm pain is gone

1.7.2021 – It's only been a couple hours since I got the shot

1.8.2021 – Foggy head but it got better

9.28.2021 – Adenopathy axillary - similar to first shot

9.29.2021 – Adenopathy is subsiding

5.21.2022 – Really fuzzy thinking. Glad I have today off work

5.22.2022 – Foggy head

5.24.2022 – Cloudy head but getting better

6.10.2022 – Weird intermittent fuzzy head but who knows if it's related to vaccine at this point. No Covid

10.10.2022 – I had aches and runny nose for weekend after vaccine , mild fatigue , nothing more

12.30.2022 – Uri

Syncope, Thirst and Dry mouth

1.20.2021 – Very dry mouth/cotton mout, extremely thirsty had to drink a lot of water more than usual

2.2.2021 – Everyday now I have experienced throbbing headaches and have had to take Tylenol every other day due to the headaches. They normally appear different times during the day but always at night around 7-8pm.

3.9.2021 – Ive experienced the same sweating, nausea, chills, trembling, nausea, anxiety.

3.16.2021 – I have had extreme anxiety which occurred one day after the second vaccine. Sweating of the back, palms.

3.30.2021 – Anxiety has risen, fainting spells

5.25.2021 – High anxiety

Induration, Skin warm and Swelling

2.21.2021 – Red round skin on/around vaccination site 7 days after injection. Skin hot to touch, hard bump under skin. Better by day 10.

3.10.2021 – The pain, redness, swelling in arm is migrating down my arm each day. Its as if the fluid did not disperse and is slowly moving down arm due to gravity. Weird.

3.6.2022 – Fever, cough, body aches, exhaustion for about a week a couple months ago. I had 4 negative Covid tests, but my spouse tested positive at same time.

Myalgia, Chills and Arthralgia

1.6.2021 – The daily check-in arrived late and timed out before I could reply Monday and Tuesday. Sunday the day I got my vaccine I had a slight fever 99.4 it broke at 4:30 in the morning I fell asleep with aches and pains in my joints muscles and had the chills no headache no nausea. I figured you would want to know about those symptoms and I wanted to report them but the login timed out. Monday Tuesday and today I am symptom-free and have been. I feel great and so much less stressed simply having had the vaccine thank you so much for making this possible I look forward to the second injection

2.2.2022 – Standard symptoms of aches and pains slight fever and sore muscles there were five different exposures in between different vaccines as I'm done I'll hygienist but overall healthy and safe

Dysmenorrhea, Heavy menstrual bleeding and Abdominal pain

4.7.2021 – Sneezing a lot

12.9.2021 – Severe cramping, much like period cramps even though it's two weeks earlier than I would typically experience period cramps

12.13.2021 – Brief intense cramps much like period cramps even though it is not the time of month when I would have period cramps

12.29.2021 – Extremely painful and unusually heavy period

1.5.2022 – Runny nose, headache, diarrhea, just started after traveling for the holidays, scheduled a PRC COVID test 2 days from now. Also, persistent sharp abdominal pain, like period cramps but worse.

1.19.2022 – Worsening abdominal pain, currently experiencing a period that is significantly more painful than usual

6.8.2022 – Got COVID

Complex regional pain syndrome, Blood urine present and Nephrolithiasis

3.24.2021 – I honesly didn't have a symptom till about 8 hours after vaccination. I Could not sleep all night, i had a fever, chills and my arm hurt bad. I've had some problems with RSD and it can make something minor worse..

3.26.2021 – I don't think i checked in yesterday. I am much better today, only moderate today.

3.27.2021 – Some unexplained weird bruises.

3.30.2021 – Blood in urine. I dont think it could be related but i have never had that before. I will wait till tomorrow and see.

4.6.2021 – Kidney stones, swollen painful ankle, however pain goes away when not swollen. No injuries. Still red at shot site especially when cold.I am not sure if things are all related, but seems like it.

4.13.2021 – Still short of breath, tired, but that is more from covid than the shot I think. I did end up with a kidney stone. I was blaming on the vaccine. Before I knew what it was. I don't know if it is a side effect though. I postponed my 2nd due to vacation

4.29.2021 – Blood in urine. Not a uti

6.22.2021 – Kidney stones, a little bit if everything. I haven't been good for months.

3.24.2022 – I had Covid again

Hypoesthesia oral, Skin warm and Menstruation delayed

1.24.2021 – On day 7 I had dine size swelling and redness to left upper arm. Day 8-11 had large swelling, redness, tight, warm to touch area. Day 12-13 swelling vegan to decrease until gone.

2.7.2021 – Brain fog

2.9.2021 – Yesterday i had slight chest congestion and a dry cough; today that feeling is gone

2.10.2021 – Last night I felt pressure on my chest and when inhaling it made me cough. I also felt a tingling numbness to my tongue when layind down.

2.14.2021 – Cough, chest tightness

8.8.2021 – Sick with headache, fever, chills, congestion, sore throat

11.22.2021 – Sore throat

11.23.2021 – Runny nose

2.20.2022 – I was sick for about 2 weeks with migraines and congestion. Never had a fever and used an at home rapid test which was negative. My period is also late this month but pregnancy test was negative.

Extrasystoles, Middle insomnia and Blepharospasm

4.9.2021 – Overnight my heart began to race while asleep. It woke me up.

4.12.2021 – My left eye lid has been twitching for the last 10-12 hours

4.13.2021 – My left eye lid continues to have spasms throughout the day, but not as frequently as yesterday

4.27.2021 – Frequent heart palpitations/skipped beats. One event even woke me up at night. The heart palpitations dont seem to be happening as often as they were last week.

5.2.2021 – A couple of instances of skipped heart beats today

5.3.2021 – A couple of heart palpitations today

5.4.2021 – Heart skipped a beat once today

5.5.2021 – I woke up with a sore throat

Cataract operation, Apathy and Depressed mood

3.24.2021 – Pain kicked in 9 hours after injection.

3.25.2021 – Injection site pain has gone down to minor; I can touch it without feeling any ache.

5.4.2021 – Vertigo attack: three days now

3.23.2022 – My legs feel weak; I have no energy to do anything or any inclination to get going. Feeling sick depresses me; I turn on the tv but don't watch any program. I'm not getting enough sleep: I either can't fall asleep or wake up too early.

5.2.2022 – None

6.7.2022 – Fatigue, feeling weak, no strength. Had to go back to bed, slept for several hours . Didn't feel like doing anything! No motivation. Positive note: no temperature. I feel much better today.

Induration, Swelling and Asthenia

3.17.2021 – I feel grateful.

3.18.2021 – Its a hard lump that hurts when touched. Not interfering with work or other activities.

3.19.2021 – The swelling has gone down now. Still pain on touch but less today.

3.21.2021 – Injection site Slightly tender when touched.

3.22.2021 – Only uncomfortable when I press the site . Probably almost all gone .

3.23.2021 – Exactly one week after my second shot there is no pain or discomfort.

3.16.2022 – Sore throat, congestion, coughing, fatigue, weakness, dizziness , NO fever Had: Pfizer #1 on 2/23/21, Pfizer #2 on 3/16/21 and Pfizer Booster on 10/23/21. Never got questionnaires after Booster. No side effects after Booster.

10.17.2022 – I got the Pfizer Bivalent vaccine on 10/7/22. Only tiny soreness the next day when I raised my arm. Best one so far- not even redness, swelling or pain.

Knee arthroplasty, Anemia and Depressed mood

2.4.2021 – Feeling slightly depressed

2.21.2021 – Sort of depressed. Slight limitation on nreathing

2.24.2021 – Slightly depressed

2.25.2021 – Slight anxiety

3.27.2021 – This may not be from the vaccine, but I am light headed as if a fog and hard to focus. This may be a cervical disk not aligned. This has been going for weeks

8.21.2021 – Atrial fibulation ( rapid heart beat) found during my knee replacement) which may not have any connection to vacination but is new Knee replacement

2.21.2022 – Anemia and tiredness. Had a right knee replacement

Skin ulcer, Dyskinesia and Impaired healing

4.9.2021 – The feeling of fever was akin to a hot flash. About five-minute duration

4.15.2021 – My glucose fell from about 167 to 54 in an hours time while I slept from excessive tiredness.

5.12.2021 – Cramps in the calves of my legs at night.

5.13.2021 – Coughing

5.21.2021 – Bruise at injection site grew large and is only very slowly shrinking.

6.18.2021 – Diabetes more uncontrollable.

8.8.2021 – Small pimple-like sores on my face, head and torso. They itch until opened and do not heal quickly.

11.5.2021 – Arm and leg muscles jerking, sometimes moving my entire are or leg. Restless leg syndrome at night. Because of this I cannot sleep well.

5.10.2022 – More Depression and anxiety

Upper respiratory tract infection, Peripheral swelling and Rash

2.4.2021 – On day 7 after vacc, (day 35 after Covid) erythematous rash and swelling hands & feet. No systemic signs. Is this a post Covid rash OR is it post vacc reaction in someone who HAD COVID? I am a physician.

2.12.2021 – Reported on Wednesday; rash/hand & feet swelling 7 days AFTER vaccination. Lasted 7 days. Am I in the system twice as I got message on Wednesday for weekly report?

2.16.2021 – Caught a head cold/URI from my grandkids

2.17.2021 – Still have a URI with nasal discharge

2.18.2021 – Head cold (unrelated to vaccine)

2.19.2021 – Resolving URI

2.20.2021 – Resolving coincidental URI