Their Stories

Polycythemia vera, Eye allergy and Ophthalmic migraine

2.27.2021 – I have polycythemia vera. Had first vaccine on Feb 4. Had blood work on Feb 9. Blood #s were higher than normal. Doc had me come back on Feb 23 for recheck of blood. Blood was back to my normal. Just blood lab work

3.20.2021 – Itching

6.3.2021 – Eye allergies Regular eye appointment

11.4.2021 – Dizzy

11.9.2021 – Nausea and tiredness

11.16.2021 – Itching of right eye which might be allergies. Zatador does seem to help for a while.

1.27.2022 – Have been experiencing a little neuropathy.

10.18.2022 – My tinnitus seems worse since the vaccine

10.19.2022 – Occular migraine

11.7.2022 – I have been having more occular migraines. I have a history of them before the vaccine. Eye doctor in person visit

Testicular swelling, Atypical pneumonia and Groin pain

3.20.2021 – Itching, swelling, redness, aching at injection site.Experience of more fatigue after exertion that I never had before.

4.10.2021 – Extreme fatigue

4.12.2021 – I have autoimmune disorder

5.5.2021 – I have noticed that even on good days my energy level is poorer. I still get chores done..but fatigue is becoming more pronounced. Will make an appt with my doctor.

10.6.2021 – walking pneumonia in august. tia , July 28th

11.13.2021 – Low blood oressure

11.20.2021 – Heart palpitations that I almost passed out. Weak, hungry afterwards

4.24.2022 – More fatigued and fuzzy headed at times.

5.9.2022 – Whole right arm is VERY sore. Thats the arm of vaccination. I continue my ormal activity, hoping to work out soreness. I still awaken in the morning with soreness, and start all over again.

7.10.2022 – Bone on bone hip joint. The one thing that i have not mentioned, which continues, is the extreme soreness at shot sight in right arm. Fatigue..is it just normal for old age?

10.11.2022 – Gtoin, hip and low back pain. Walking is difficult. Waiting for bone density test.

10.28.2022 – Right hip pain quite painful and difficult to move freely.

11.25.2022 – RSV

Asthenia, Nausea and Pyrexia

2.19.2021 – Yes. I had an issue the day after the injection. I woke up in the morning feeling a little bit nauseous, I got up to go into the bathroom and I started feeling extremely nauseous, I went into the bathroom and did what I had to do and came out and was still feeling nauseous but then I was starting to feel very weak, so I sat down on a chair we have in our hallway. My husband was downstairs in the kitchen having coffee, too far for me to shout. So I figured Id go back to my bed, but I was feeling more nauseous than I have ever felt in my entire life. I got up off the bench and went to head to my b bedroom, and my legs gave out from under me and I just collapsed. I did not lose consciousness, but I completely went limp, smacking my head into the door jam, I was still extremely nauseous. Thankfully I had my phone and told Siri to call my husband, which I did. After a few minutes it began to pass, and I was able to get up off the floor and then I Soli started to feel better and the nausea never came back. The weakness never came back. I did run a low fever for the rest of the day, which was yesterday, today I woke up feeling Fine, like I never had the shot

Facial paralysis, Bell's palsy and Injection site bruising

2.10.2021 – On day 8, the injection site (which had completely returned to normal) started itching, turned red and swollen. It was mild and lasted for about 3 days. It has returned to normal now and no other symptoms.

3.8.2021 – Theres a slight bruise at the injection site

8.30.2021 – I had Bells Palsy which started on June 23rd. I had complete paralysis on the right side of my face for about 3 weeks. I am completely fine now. It started about about 3.5 months after my second shot. No idea if its related or not. PCP visit

Musculoskeletal stiffness, Migraine and Lymphadenopathy

4.1.2021 – Stiff neck

6.30.2021 – Got a regular cold, maybe RVS. And have worse migraines. Dont think theres any connection to vaccine though. Thank you for you services. Neurologist

11.18.2021 – Swollen lymph glands on neck, side of injection. 2 1/2-3in diameter

11.19.2021 – Still have swelling of lymph nodes on neck, 2 1/2 in

11.20.2021 – Still lymph swelling

11.21.2021 – Still lymph's swollen, receding, but now like a harder knot

11.22.2021 – Slight swelling left in left neck lymph

11.23.2021 – Slight swollen lymphs, almost gone:)

11.24.2021 – Lymph almost gone

Platelet count decreased, Restless legs syndrome and Intermenstrual bleeding

8.12.2021 – Restless legs

8.23.2021 – I have thrombocytopenia and my platelets were at 94 as of 8/4/21 and dropped to 68 as of 8/17/21. Headaches started 8/15-8/18, which is why I was prompted to check my platelets. Call doctor and had platelets checked. Advised to retest a few days prior to 2nd vaccine.

9.13.2021 – Platelets decreased to 30k. I am currently on dexamethasone 40mg 4 day pulse. Unable to get vaccinated at this time.

9.24.2021 – Platelets lowered started dexamethazone

10.24.2021 – Headaches

3.20.2022 – Longer period and spotting with more cramping.

Photopsia, Skin warm and Body temperature increased

7.22.2022 – Temperature 99.9 F

7.26.2022 – Flashing lights in outer corner of left eye.

7.29.2022 – Arm is warm to touch.

8.5.2022 – Consistent temp of 99.9 F in the morning which is not typical at all of her. Her evening temp are similar but does not go above 100.2 F.

8.13.2022 – She continues to have a daily temperature of between 99.9 F in the morning to 100.2 in the evening. Her normal daily temperature before the Covid booster was between 96.7 - 97.9 F.

8.19.2022 – It's not worsening but she continues to have a daily temperature of 99.3 -100.1 degrees F.

11.4.2022 – No

12.10.2022 – Diarrhea and nausea

12.18.2022 – Sneezing, runny nose, sore throat.

Induration, Rash papular and Acne

3.20.2021 – Wish I had found this site earlier. Within 12 hours my arm swelled up at infection site. Hard and painful. About 5 inches in diameter. Couldnt move arm. Still hurts pretty bad but improving a bit since Thursday. My arm is so swollen pictures Ive taken look like its deformed.

3.23.2021 – I thought I broke out in a few pimples. But they started multiplying. My chin. Side of my cheek and by my ear is red with raised red bumps that are itchy. I have never had a facial rash before so not sure if its vaccine related or not. Taking Zyrtec and out on a steroid cream

Vomiting, Nausea and Headache

2.24.2021 – Headache sever overnight but more moderate now. Cannot find anything that will get rid of it frustrating!

2.25.2021 – Headache comes and goes. When will it stop? Cannot get any meds to work. Meds making me nausead.

3.25.2021 – Over the weekend I had headaches throwing up Saturday through Monday (2 straight days without it stopping. It was so bad that I ended up in the hospital emergency room.

5.20.2021 – Two hospital emergency visits for not being able to stop vomiting for many days. Also, for my annual drs physical exam the blood work showed NO ANTIBODIES even though I have had BOTH SHOTS and also had reactions to the shots. Second test-same

Luteal phase deficiency, Food intolerance and Mobility decreased

8.29.2021 – Close to period. So I'm usually already in a low leutal phase

10.4.2021 – Stomach aches 24 hrs no fever

10.9.2021 – Cold is going around slight dry coughing

12.18.2021 – Cold

4.5.2022 – Was sick with flu like symptoms was down for a full week is still regaining normal regimen with food. Slight fever the first day constant throwing up for a full week. Food sensitivity, had one migraine and sensitivity. Minor diarrhea. 90% healthy ER was unable to see him they were beyond booked

Arteriosclerosis, Knee arthroplasty and Musculoskeletal stiffness

2.5.2021 – I had a knee replacement Feb 18. Sx from this likely caused stiffness

2.6.2021 – 3 weeks post knee replacement.

2.7.2021 – Little tired. ( like from my knee surgery)

2.8.2021 – PT today. Since vaccine cant find info on percocet and Covid vaccine. I have resisted using tylenol Am and pm Curious Post knee replacement surgery.

2.10.2021 – Only knee replacement recovery pains I think

3.11.2021 – Slight symptom of light headed. Vaccine given today

4.15.2021 – Very stiff neck. Had xray. Arteriosclerosis. Off an on for last month.

Rhinalgia, Oral pain and Dyspepsia

1.10.2021 – Loss of appetite

1.23.2021 – Chest pain on inhalation

1.30.2021 – Joint pains, fatigue and generalized weakness

2.7.2021 – Constant headaches

2.20.2021 – Chest pain when I cough

4.10.2021 – Extreme joint pains and intermittent loss of taste

7.10.2021 – Cough, soreness, body aches, headache, generalized pain, swollen feet Outpatient anesthesia procedure

1.9.2022 – Cough sore throat fever body aches chest pain

1.9.2022 – Cough sore throat chest pain fever body aches

1.11.2022 – Soreness body aches, sore throat coughing chest pain

1.18.2022 – Body pains, fever, sore throat, shortness of breath

2.1.2022 – Headaches, body and joint aches and pains, sore throat

3.22.2022 – Sore mouth and nose Heart palpitations Severe headaches

6.21.2022 – Swelling in both legs, and heart burn

12.21.2022 – Constant nausea, weakness, headaches, aches and pains. Loss of taste and smell intermittently

Cardioversion, Atrial flutter and Heart rate increased

2.13.2021 – Elevated pulse

8.13.2021 – Cough and sniffles 4 days after attending Stanley Cup finals! (Indoors with 19,000 unmasked people!) on July 13 got tested positive for covid!

5.14.2022 – Cough and sniffles, no fever.Just have a cold! Tested 3 days in a row and all negative for covid! Husband had cold previously and all his tests were negative for covid

5.21.2022 – Worsening. Still have a very bad cold but all COVID tests negative. Also not flu (went to doctor yesterday). No flu-like symptoms - no fever, no body aches. Also x-ray showed no pneumonia.

Ear congestion, Hypersomnia and Tinnitus

2.11.2021 – Only slight arm aches in injection arm only.

2.12.2021 – Soreness in upper left arm

2.14.2021 – Injection site soreness has diminished a lot.

3.16.2021 – Slight dizziness past 24 hours. Increased tinnitus (preexisting condition) symptoms.

3.18.2021 – Sore neck and shoulder muscles. Unsure if related.

3.19.2021 – Tired. Have some neck muscle soreness.

3.20.2021 – Feeling need to rest & sleep a lot.

4.10.2021 – Achy, tired, stuffy ears. Spring allergy symptoms, but more pronounced this year.

6.12.2021 – Fatigue, heart palpitations, asthma symptoms, very occasional unusual whole-body allergic sensations. Not sure if any of these are related to covid vaccination. I have had the first 3 symptoms prior to 2020.

Skin warm, Peripheral swelling and Muscle spasms

4.23.2021 – On Tuesday 4/20 I got a baseball sized red, swollen, itchy, very warm bump on the arm that got the shot. It lasted less than 12 hours.

4.30.2021 – Painful cramping in my hips, one side is constant pain causing me to limp, and the other side just a nagging soreness. Pain level fluctuates between 6 to 9, the worst being at bedtime and through the night. Also painful cramps in my calves and feet.

5.21.2021 – Also had the sweats at the same time I had the chills

Menopausal symptoms, Vascular pain and Lymphadenitis

3.16.2021 – Right side of leg (got my vaccine on right side) feels like I strained a nerve or have knotted nerves and causes pain when walking/standing/stretching

3.17.2021 – Painful Nerve Pain in my right leg from ankles to hip (same side of injection)

3.18.2021 – Lymph node inflammation in left arm & intense nerve pain in right leg for 3rd constant day after vaccination

3.19.2021 – Intense pain in my right leg (side of injection) possibly relating to my nerves. Have had this ever since the day following the vaccine

3.24.2021 – Pain in right leg (side of injection) veins have been in intolerable pain for a week after the vaccination

4.15.2021 – Bruising on the injection site

4.12.2022 – #NAME?

International normalized ratio increased, Heart rate irregular and Atrial fibrillation

1.29.2021 – My INR shot up from 2.5 one week ago to 5.8 today. I have no change in my diet, medications, or anything. Additional laboratory testing

1.30.2021 – As reported yesterday, my INR shot up from in-range 2.5 to a 5.8 on 1/29/21. My 1st (Moderna) vaccine was 1/26/21. There has been no change in diet, medications, etc. Could the vaccine cause this jump to a critical INR level? Phone, then laboratory for blood tests

2.1.2021 – As reported in previous check-ins, my INR shot up from a stable level of 2.5 to a CRITICAL level of 5.8. The ONLY change in critcal parameters was the fact that I received my first vaccination on 1/26/21. Could this be a direct reaction? I need a response prior to my second vaccination Lab work, phone calls

2.2.2021 – Moderna called me regarding my critical INR jump post vaccine. Thank you.

3.3.2021 – High heart rate 110s to 132 thus far, irregular heartbeat (understand I do have afib on & off, but not high heart rate. I just had the shot about 9 am this morning.

3.4.2021 – High heart rate reported yesterday has slowly decreased today and at 2:16 CST dropped below 100 to 90's & high 80's.

3.31.2021 – ER/Hospitalization due to Heart Rate in the 190s due to AFibrillation with a rapid ventricular response (RVR). My AFib is a pre-existing condition.

9.3.2021 – Worsening of my preexisting conditions unrelated to the vaccine. Regular in person dr sppts

3.3.2022 – Repeated Sinus infections, 99.5 % Afib instead of random occurrences Periodic appts with my regular doctors

Optic nerve injury, Tension headache and Eye disorder

3.24.2021 – Swollen lymph nodes under armpit, congestion, difficulty hearing from one ear

3.25.2021 – Swelling in lymph nodes in armpits, congestion/difficulty hearing in one ear

3.26.2021 – Some congestion and swelling of lymph node under armpit

3.28.2021 – Congestion

4.26.2021 – Head congestion and ringing in ears

7.12.2021 – Currently investigating eye-related issue impacting my optic nerve as well as some migraines

10.11.2021 – Migraines, eye dryness, tension headaches

4.12.2022 – GI issues, development of new allergies, migraines

Tooth restoration, Tooth fracture and Energy increased

12.20.2020 – Increased energy levels the last two nights and fatigue toddays

12.22.2020 – Two fractured teeth occurred Monday at lunchtime and likely from mechanical injury that is unrelated to vaccine . Dentist to repair teeth

1.11.2021 – Feeling hot/flushed, passive sweating

7.9.2021 – I had a terrible cold in early June, that was different than any other cold I have had before and on days 3-6 I lost my smell/taste. I did not ever have a true fever, but definitely felt body hot/cold, night sweat, etc. I stayed home, no test sought.

Exercise tolerance decreased, Insomnia and Asthenia

3.4.2021 – Runny nose that started today.

3.5.2021 – Have had two sleepless nights after getting the shot which seems odd for me. Still continuing with slight runny nose but not as bad as yesterday.

3.7.2021 – This is not too huge of a problem though I might as well mention it. Since getting the vax I have had a hard time getting to sleep, every night since getting the shot. My coffee consumption has not changed, and I continue to exercise as usual. Normally I can go to sleep relatively quickly, but not so since the shot.

4.1.2021 – Brain fog

4.2.2021 – Runny nose

4.21.2021 – Need to mention that since 2nd vaccine shot I fatigue faster and more regularly when out jogging than before the shot. I jog about 3 times a week for past several years & see a decline in my stamina since the shot. Hoping it is just temporary .

4.28.2021 – Still want to mention that I continue to exercise by jogging but feel I tire out more quickly. I hope this is just temporary.

5.5.2021 – Still want to mention that my stamina for jogging is still lagging. I keep thinking it will come back, but still waiting for that. I jog about 3 to 4 days a week.

Goitre, Thyroid mass and Body temperature decreased

8.22.2021 – My normal temp is 96.8. Feel feverish

8.23.2021 – Low back pain scitica worse

8.25.2021 – Pain swelling heat around injection site started last nightand hip and back pain got worse

8.27.2021 – Heat still in arm shot area

8.28.2021 – Still some heat in shot arm

9.5.2021 – Balance issues and headachesArm shot still sore to pressure

9.12.2021 – Temp normal 96.6 to 97.6. Shot arm area has heat this time also

9.18.2021 – Last 2 days not report are same as today

10.2.2021 – Arthritis is worse last 3 days hurts to walk so bad especially yesterday and today

10.10.2021 – Still have bad arthrits pain

10.17.2021 – Artritis still bad

10.25.2021 – Arthritis still not improving now back is starting also

9.11.2022 – Thyroid nodules and swelling getting checked into Back sciatica worser Still have joint and muscle pain Get severe cramps in legs and feet middle night Primary dr and endocrinologist

Lip blister, Oral herpes and Feeling hot

1.30.2021 – Headache basically on the left side of the head same side as the vaccine was administered left arm

2.1.2021 – Head was on the right side of the head extremely painful I the ear area

2.5.2021 – Horrible stomach ache running to the bathroom several times during the day and night

2.12.2021 – Congestion

3.2.2021 – Fever blisters on my lips

3.4.2021 – Face and neck from day one see my Dr today She put me on prednisone for five days to see if the rash will leave

3.5.2021 – My doctor spoke subscribe to prednisone for the rash I have on my face and neck my face still gets extremely warm

4.9.2021 – Continuing red face and neck area very hard at times comes and goes

11.5.2021 – My face gets super red and hot just like it did with the other two Covid shot

Sensation of foreign body, Dysphagia and Lymph node pain

6.3.2021 – pain in underarms due to auxillary lymph nodes swelling along with swelling of the inguinal and cervical lymph nodes (no pain except when pushed against)consistent headaches

6.8.2021 – more severe headaches especially on the forehead/right side

6.15.2021 – lymph nodes are still swollen and painful

6.22.2021 – the lymph nodes are still swollen. it feels as I am being choked from the outside. I feel it when I swallowed and it's uncomfortable but not obstructive. The pain in the underarms also increased

6.29.2021 – Lymph nodes are swollen and I've notice that it gets worse when I talk more. it's hurts mostly on the right side and often feels strained. I feel lumps in my throat when I swallow.

12.29.2021 – swollen lymph nodes in neck and underarms

1.14.2022 – swollen lymph nodes

Vomiting, Diarrhea and Chills

4.13.2021 – The first three days were horrible!! Much worse than when I had Covid in January.

4.14.2021 – This system is a joke. At no point have you even tried to gather information about the first 3 days after being vaccinated. My fever was 105.6 for two solid days. I hadvexyreme vomiting, diarrhea, chills body and head aches. My first dose was a nightmare experience. Having experienced Covid in January, this was 1000 times worse!!!! You are not tracking pertinent information!!!!

Abdominal distension, Tremor and Abdominal pain

5.4.2021 – Caused by my other health problems. I have Fibromyalgia, PMR, Rheumatic issues, Digestive issues, etc.

5.13.2021 – Coughing

5.20.2021 – No energy, no appetite, shaky, exhausted, all over body pain, headache, stomach pains, etc

6.3.2021 – Weakness, shakiness, lack of appetite,

5.8.2022 – Deep muscular pain in my right side of back that goes up to shoulder. Feeling bloated and stomach pain, after eating anything all the time. No Health Insurance! Medicare Only!

Blood pressure fluctuation, Blood pressure decreased and Vertigo

3.20.2021 – Fast heartrate, tingly/prickly skin (no rash)

3.21.2021 – My heartrate is higher than normal for me, 90-110

6.18.2021 – Vertigo Physical therapy

9.18.2021 – Vertigo June 16 and June 18, 2021 Physical Therapist

3.22.2022 – Joint pain Physical Therapy

11.5.2022 – Experienced vertigo. The last time I had the vaccine, I also experienced vertigo. This did not seem to occur immediately after the vaccine, but a month after. Office visit to ENT doctor

12.31.2022 – My heart-rate is often high (90-100), even when I'm not doing anything, and my blood pressure has dropped sometimes less than 105/70. I have a history of high blood pressure, but now it fluctuates.

Throat tightness, Abdominal pain and Injection site pruritus

4.9.2021 – Yesterday felt fatigue and abdominal pain and some itching where I got the shot - but didn't seem significant enough to report

4.12.2021 – A bit each day of itching where I got the shot, temporary abdominal pain past couple of days, headache end of the day for a couple of days - none of which seemed worth mentioning

7.7.2021 – Tight throat, vertigo . . . . probably due to heat My primary care physician

10.30.2021 – Stomach pain late yesterday afternoon

Polymenorrhea, Menstruation irregular and Pruritus

3.31.2021 – Had extremely sore arm from the location of the shot, some rashes and itching, body aches and chills, but no fever for about 24 hours after 2nd dose

9.8.2021 – Irregular periods. Never had this issue before. But started to get periods every 2 wks. Not sure if this is vaccination related or various things as age, but heard other friends who had similar issues after vaccinating.

3.10.2022 – More frequent headaches after booster shot

Anaphylactic shock, Thrombocytopenia and Petechiae

4.12.2021 – I was admitted into the hospital with anaphylactic shock after my vaccine and had seizures and a severe drop in platelets ICU

4.13.2021 – I am still on steroids from the anaphylactic reaction I had from the 2nd vaccine I have an Ultrasound scheduled for my spleen and liver due to the thrombocytopenia I experienced after the vaccine while in the hospital

4.14.2021 – Continued brain fog. Bruising of my skin. Petichia My hospital stay in ICU was from April 8 the day of injection to April 11 due to thrombocytopenia

5.15.2021 – Right Upper Extremity numbness and Lower Extremity. Neck pain. Head aches. Horrible fatigue

Pain in jaw, Rash erythematous and Flushing

2.11.2021 – About 30 minutes after the injection, my face got very flushed, more so on the left side which is the same so I had the injection on. I had red bumps and felt quite real warm. That lasted about 2530 minutes. Then I had a pressure in both temples, noticeable but not debilitating. I also had boggy thinking and tiredness. Some achiness today I would say is mild. Yesterday I had job pain on both sides and I have that eight

2.12.2021 – Slight upper jaw pain last night, early this morning,