Their Stories

Initial insomnia, Pollakiuria and Contusion

1.24.2021 – Was up all night because I had to urinate 4 times.

1.28.2021 – Increase in bruises. Dr. has ordered a platelet test to check to see if the bruising is being caused by a low platelet count. Dr. scheduled office visit for day after I called

1.29.2021 – Bruising: waiting for platelet count results to see if bruising is caused by low platelet count

2.5.2021 – My legs felt weak and shaky. My skin is itchy and I have a rash.

2.25.2021 – Loss of appetite.

2.26.2021 – Loss of appetite

3.9.2021 – Legs weak and shaky.

3.29.2021 – Unable to fall asleep. Tossing and turning all night.

Allergy to venom, Eye pruritus and Urinary tract infection

2.27.2021 – In the last 11 days, 2 days of extreme tiredness all day. 10 days apart. Several naps each of those days and 12 hours of night time sleep.

3.22.2021 – Nausea

4.3.2021 – Runny nose, itchy nose, itchy eyes, coughin, phlegm...due to spring allergies

6.5.2021 – Yearly Blood test result show rise in glucose, eos, low creatinine

9.6.2021 – Urinary tract infectionModerate allergic reaction to wasp stings

3.8.2022 – Runny nose, sore throat, chest congestion Covid test at CVS

Paranasal sinus inflammation, Muscle twitching and Rash erythematous

5.19.2021 – Slight sore throat

5.20.2021 – Slight Sore/angry throat. Seems i *almost* have a cough

5.21.2021 – Lower back (kidney area) ache at night, dry cough, chest burning a little bit

5.22.2021 – Slight residual sore throat / cough

5.23.2021 – Slight sore throat / slight cough

5.24.2021 – Slight cough / sore throat

6.1.2021 – Loss of smell (and thus) taste. Can still tell bitter/sweet. Seems to be coming back very slightly with phantom smells after 5-7 days or so.

6.11.2021 – Sinuses felt a bit enflamed yesterday

6.22.2021 – rash on right buttock/thigh that started about a week ago. Thought it was a bug bite but it spread so now its about 6 inches across, oval, red and very itchy. Could be heat rash, fresh water parasite, or jock itch. Also bottom lip twitches.

Plasma cell myeloma, Swelling and Bronchitis

3.23.2021 – I am a veteran and have multiple myeloma. This first shot, I have kept busy moving the arm and body. No aches, no stiffness. I will start medicines on this cycle so I will be vigilant about any noted change.

4.15.2021 – Yesterday after the survey I began to have the itching, swelling fatigue and chills

5.10.2022 – Bronchitis, sinus infection fevers of 102.5.

7.6.2022 – I had bronchitis, sinus infection, covid in May. I had had Evershield shots in April. I had the shots to mediate the covid. In Mid June another sinus infection and lots of diarrhea.

Piloerection, Bradyphrenia and Tachycardia

8.25.2021 – I didnt notice at first but since I got vaccinated, Ive been having multiple episodes of piloerections daily. My entire body is affected, usually lasts about 1-2 minutes.

8.26.2021 – Total body piloerections multiple times daily since the shot.

8.27.2021 – Still with piloerections daily and last evening I had 3 bouts of squeezing chest pain that lasted seconds.

9.11.2021 – Slight fever a few hours after the shot yesterday, episodes of piloerections throughout the day again

9.12.2021 – Had brief chest tightness last night.

9.13.2021 – My temp normally runs between 96.6-97.4 so it was up a degree.

10.15.2021 – Brain fogthinking is not as sharp. Calling it "Vaccine Brain."

12.10.2021 – Squeezing chest tightness on and off for approximately 30 mins. one evening.

3.11.2022 – Tachycardia, elevated BP, SOB

Injection site mass, Injection site rash and Injection site swelling

1.9.2021 – Metallic taste in mouth, for 30 min starting 10 min after injection

1.23.2021 – Around 1 week out, a bright red, swollen spot at the injection site reappeared. Well, the lump at the injection never fully went away but it had gone mostly away and then it came back with itchiness for about 6 days. Still itchy today but not red.

5.7.2021 – Oddly enough, the same rash/bump/warm area I got with my covid vax appeared when I had a nexplanon inserted. Have never had that reaction before the covid vax to anything including a previous nexplanon insertion.

Musculoskeletal stiffness, Asthenia and Lymphadenopathy

3.26.2021 – I am so unbelievably tired and slept the entire following day. Otherwise, I feel fine.

4.16.2021 – Felt off all day

5.15.2021 – Left swollen lymph node in neck Dr appointment

5.20.2021 – The joints in my right and left fingers have become incredibly stiff and sore. I have not had this issue ever before. It has gradually become worse over the past few weeks. Dr appt

7.15.2021 – Lump still in lymph nodes in neck and my energy has been negative 0 since I received vaccine.

Flank pain, Muscular weakness and Insomnia

2.11.2021 – Insomnia till very early in the morning

12.14.2021 – Lower back pain, weakness in the legs and side pain at the waistline on the left side.

4.23.2022 – Mild to moderate pain in the arm at injection site

4.27.2022 – No

5.6.2022 – Back pain for 4 days.

7.22.2022 – Cough and runny nose. I tested negative and the following day had no similar symptoms. I also have allergies and attributed those stmt to my allergies after the negative test.

11.29.2022 – I fought a cold with a cough. I tested twice in the past 2 weeks to be sure it wasn't COVID with negative results both times. Head cold with mild congestion and cough that seems to be improving daily with rest and hydration. I stayed home.

Lymphoma, Breast mass and Neck mass

3.30.2021 – Hoarseness

4.2.2021 – Bowels have been loose since injection.

6.28.2021 – Enlarged lymph nodes in armpit. Lump in neck. Had ultrasounds of both areas. Doctors feel it's related to the Pfizer vaccine. Ultrasounds will be repeated in August. I am terrified that the vaccine has caused Lymphoma. Primary MD visit followed by ultrasounds.

9.27.2021 – Enlarged lymph nodes under arms, armpit, neck, breast. Have had 4 ultrasounds and 1 mammogram as a result. Incurred $420 expense in copays. Not happy about this. Office visits, Breast Health Clinic and hospital outpatient testing.

3.29.2022 – Lump in breast resulting in biopsy. Results were negative, Thank God. Tinnitus in left ear. Knee pain - x-ray was negative for fracture, so possible soft tissue inflammation. Doctor's office visits

Hematemesis, Neurological symptom and Presyncope

1.25.2021 – Some morning ~faintness, slight dizziness. More heart palpitations than usual.

8.19.2021 – Increased finger tremors and other sx that make me suspect I have Parkinson's. Office visit with PCP to get referral to a neurologist.

4.22.2022 – Chest cold. Productive cough. Sometimes mildly chilled. Tired. Home self-test = antigen rapid test negative (as expected) 2 days ago. Rec'd 2nd Moderna booster = 4th shot 3/31/22.

9.29.2022 – 1. Hematemesis. Endoscopy 2 wks later: later negative. Atributed to use PRN meloxicam 7.5 mg. 2. Very rapid heart rate and repeated near fainting epidodes. A fib Dx'd and Rx'd with blood thinner. Office of my cardiologist for the rapid rate. They transported me to ER after some evaluation.

Nasal pruritus, Cardiac flutter and Palpitations

1.16.2021 – The headache feels like I have been clenching my teeth almost. In the temples. The bidy aches got better after soakinf in Epsom salt bath and moving around. They were moderate and became mild as the day went on. I did take motrin for the headache.

1.17.2021 – Slight headache still in the temples

2.15.2021 – Itchy nose, sneeze a few times

11.5.2021 – Last night, my heart was racing like anxiety and then I got dizzy and nauseous. I drank lots of water and laid down and went to bed early but my heart kept fluttering.

Joint range of motion decreased, Mobility decreased and Limb discomfort

3.11.2021 – My arm is difficult to move. I had trouble sleeping last night, and I am unable to move my arm unless Im assisted. Using the muscle of my shoulder hurts.

3.12.2021 – I can barely move my arm/ shoulder.

3.13.2021 – My arm/shoulder is still in pain and barely moving. It hurts to move my left arm.

3.14.2021 – My arm/shoulder is still a bit stiff. Gradually getting better.

3.15.2021 – My arm/ shoulder is still in pain and Im having trouble with full range of motion.

3.16.2021 – Arm is feeling better. I have more range of motion but slight pain still.

3.19.2021 – My arm has full range of motion now and there isnt much soreness.

3.25.2021 – My arm was getting better but its now feeling uncomfortable again. Im not sure whats going on but certain movements hurt and just standing or laying down causes my arm to ache.

4.1.2021 – Really fatigued and lethargic

Weight increased, Abnormal dreams and Muscle tightness

5.27.2021 – I had an abnormally heavy period after my 1st covid shot.

5.28.2021 – Vivid dreams, possibly hallucinations, insomnia

5.29.2021 – back pain, extremely tight muscles around my middle back

5.30.2021 – lymph node in my armpit in the arm I received the shot has been swollen since the first shot, it is quite large now

6.24.2021 – Heavier menses.

7.1.2021 – I have had the severe stomach pain again. It lasted almost 12 hours this time and was debilitating.

7.8.2021 – I have unexplainable weight gain. I still exercise every day and haven't changed what I'm eating.

Joint injury, Gout and Conjunctivitis

3.21.2021 – Expelling mucous overnight / stomach pains

3.25.2021 – Swollen / red eyes

4.18.2021 – Swollen eyes / pink eye type reaction

4.19.2021 – Joint pain in my finger and rash on my forehead

5.5.2021 – My middle finger joints are still painful from 3 days after 2nd shot. It has not abated.

5.12.2021 – My right hand middle finger continues to have joint pain never felt before until 3rd day after 2nd Pfizer shot.

5.28.2021 – Gout flare up

5.25.2022 – Knee damage (not Covid related)

11.24.2022 – Had Covid 19 again in mud-September 2022 for a week. I had a sinus infection for 2 weeks in November, 2022 as well. I'm now back to health.

Emphysema, Neuropathy peripheral and Rheumatoid arthritis

1.22.2021 – All symptoms started yesterday around 3pm, peaked a little after midnight, and are now almost gone.

1.28.2021 – Lymphadenopathy in the left axilla and left side of the neck.

2.18.2021 – Sore throat and headache on and off for a few days.

10.30.2021 – Lymphadenopathy

12.8.2021 – Chest pressure and shortness of breath

4.27.2022 – Probably unrelated to vaccine. New diagnosis and extreme flare up of rheumatoid arthritis-all joint swelling, burning pain in feet/toes.

10.7.2022 – Fatigue and joint pain

Platelet disorder, Platelet count increased and Platelet count decreased

3.20.2021 – 3/12 2nd vaccine. 3/15 blood work showing significant drop in platelets to 86. Coincidence? Contacted my doc re platelet issue. Won't hear until next week.

4.9.2021 – Platelet count at 86 3 days after 2nd shot. Thought this might not be a coincidence since I have never had platelet issues before. Office visit

4.23.2021 – I have written this before but hoping you will hear me. My platelet count dropped to 86 after receiving my 2nd vaccine. My vaccine was 3/12. My blood work was 3/15. Lab work and visitm

9.10.2021 – Drop in platelet count.

Breast discharge, Breast mass and Cardiac flutter

7.2.2021 – Moderate dizziness

7.4.2021 – Pounding heart when I woke up.

7.5.2021 – Heart fluttering off and on

7.6.2021 – Heart palpitations

7.7.2021 – Heart sometimes fluttering and pounding

7.8.2021 – Chest tightness and random shooting pains in upper torso.

7.9.2021 – Chest tightness, palpitations

7.3.2022 – I've had nothing but problems since the day I received the vaccine. I've had heart palpitations, chest pain, dizziness, nausea, abdominal pain, digestive issues, and now nipple discharge and a lump on my breast that I am getting imaging for next week

Rash pruritic and Rash

2.28.2021 – rash isn't in one spot, but pops up in different places, fades and pops up somewhere else. It's mostly on my arms, legs, back of my ears, and butt. It started 8-9 days after the both vaccinations. The first rash had amost faded by the time I got my second shot. Eight days after my second shot, it started again.ot, it

3.9.2021 – Same itchy rash that started 9 days after my second shot. A little more persistent this week

Tongue coated, Glossodynia and Dry mouth

1.25.2021 – Light headed

1.28.2021 – The chills come and go. Headaches come and go also

1.31.2021 – None today

5.21.2021 – Very dry mouth. Tongue sticks to roof of mouth. And thick white stuff on tongue. Went to ENT specialist 3 times. Told me to rinse with biotin and use Polaris drops. Nothing they can do. Meanwhile I have a hard time sleeping. Help. ENT specialists

8.20.2021 – Very bad dry mouth 5 office visit to Ent

2.19.2022 – Very dry mouth and sore tongue. Went to specialist 5 times. Determined that there is no more he can do. Could be an auto-immune disease from either shot or having Covid. Very hard to live with. Regular office visits

Rash vesicular, Limb mass and Oxygen saturation decreased

3.5.2021 – The rash was tiny red dots with clear blisters that itched a lot on the left forearm and on the right leg above the ankle---that area on the leg also had swelling and a noticeable lump about the size of a quarter.

10.1.2021 – I had a moderate rash with the 1st shot so took allergy meds for the next two shots and had only mild reactions both times.

10.5.2021 – Yesterday I had mild fatigue or tiredness, but didn't mark it

10.13.2021 – Got a bit dehydrated. Urinalysis showed UTI

10.27.2021 – Muscle weakness and arthritis pain. I had 4 discs fused in 2015, and both knees had replacements in 2017. I was unable to take my anti-inflammatory meds for a few days because of changing my blood pressure medicine, so could hardly get out of bed.

4.25.2022 – Just recognized that I am a little dehydrated---as I think about it, I think I have been a bit dehydrated each time I have had a shot. Nothing unusual---I always run "easily dehydrated". It may just be a combination of all my meds.

5.4.2022 – For 2-3 days I was very tired.

7.20.2022 – I had to go to the hospital for oxygen on June 12th---I had Covid. My whole family got it.

Sucrose intolerance, Disorientation and Infection

4.16.2021 – Just an ear ache which is making my jaw hurt. No idea if this is connected, but I havent had an ear ache or infection in about a decade

5.21.2021 – Ive just noticed a lag in energy. I dont know if its the heat, or poor sleep, but I just seem to drag

7.30.2021 – Specifically, a problem with digesting unrefined sugarsthey seem to go right through me.

4.30.2022 – Just bouts of dizziness or a sense of disorientation not related to food, beverage or standing up suddenly.

Blindness transient, Dizziness postural and Swelling face

3.27.2021 – When I woke up my whole body felt swollen. I could visibly see my face puffy. My arm and leg (on injection side) felt like this after getting the shot yesterday, but by the time I woke up it was my whole body. It mostly went away within 24 hours of getting the shot.

4.9.2021 – My shoulder started hurting again on about day 8 for about 3 days

4.24.2021 – Lightheaded and dizzy when standing

4.25.2021 – Light headed and dizziness

4.26.2021 – Dizzy, lightheaded

4.27.2021 – Dizziness

4.28.2021 – Dizzy

12.24.2021 – Ear ringing, vision going black, fainting

1.6.2022 – Fatigue

3.24.2022 – Dizziness, fatigue, loss of smell

Terminal ileitis, Angiopathy and Parainfluenzae virus infection

12.22.2020 – Stuffy nose, post nasal drip

1.1.2021 – Cough, sneezing, runny and stuffy nose, post nasal drip, sinus pressure, nasal burning/dryness

2.2.2021 – Chest pain, palpitations, nasal congestion, nasal discharge, fatigue

2.9.2021 – Chest pain, continued short of breath. Now have apt w cardio dr

7.18.2021 – High wbc and platelets. Iron def anemia requiring 2 iron infusions. Terminal ileitis. Parainfluenza, etc

9.30.2021 – Diarrhea after vaccine

10.26.2021 – Joint pain, ulceration in small intestine since having covid in dec. period changes w heavy bleeding since 3rd vac, elev plts

9.14.2022 – Had covid again and now pulmonary artery enlarged and back to rheumatology.. no symptoms related to the shot that I know of. Had covid after first shot by a week, then got second shot day 12 after that. Then 3rd shot sept. Covid again early aug 2022

Blood urine present, Cystitis and Upper respiratory tract infection

4.17.2021 – Fatigue, but I had a tetanus shot on April 13 and did not experience extreme tiredness until after that shot.

9.25.2021 – Fever of 101.4 a few weeks ago.

12.9.2021 – I think that I may be getting a cold, but it seems unrelated to the moderna booster sh

12.10.2021 – My poor health appears to be unrelated to the booster. Have blood in the urine; probably from a UTI.

12.11.2021 – I have a bladder infection and am taking antibiotics. I believe that may be causing the fatigue.

12.13.2021 – Bruising at injection site.

3.8.2022 – Sore throat

12.9.2022 – Had a cold or some other type of upper respiratory infection in October. It was not covid, as I tested negative for it.

Urticaria, Edema peripheral and Lymph node pain

1.13.2021 – I have a small swollen lymph node on the underside of my upper arm where I received the vaccine. It's a little tender to touch. It is about the size of a pea. I have also had a few hives here and there.

2.10.2021 – Swollen lymph node in my left armpit area

2.11.2021 – Still have a swollen lymph node and swollen soft tissue in my left armpit area but slightly better than yesterday

2.12.2021 – Still have swollen lymph node in left armpit, less painful and decreased in size

Muscle twitching, Muscle spasms and Pain in extremity

1.2.2021 – Left thigh hurts. Started 12 hrs after the shot

1.21.2021 – My left thigh has been hurting intermittently since my first shot

1.22.2021 – Left anterior thigh is painful at times. Never had this until my first shot.

1.24.2021 – My left anterior thigh has intermittent pain since first shot... My left arm has intermittent spasming near the elbow

1.25.2021 – Intermittent left anterior thigh discomfort, and left muscle twitch in upper arm.

2.3.2021 – Muscle twitch in left arm increased. No seizure type activity.

Cognitive disorder, Amnesia and Brain fog

2.5.2021 – Loss of appetite

2.8.2021 – Cognitive fog

3.9.2021 – Still a bit foggy brained

4.8.2021 – My cognitive functioning is dulled. I am making mistakes that are out of character. My fear and trepidation may be aggravating what I perceive as a decline in memory. I am frightened that I might not rebound intellectually.

6.3.2021 – I am just pulling out of foggy brain. It scared the bejesus out of me. I am almost 64 and it felt like I was sliding into dementia.

6.5.2022 – Good poisoning? Nausea diarrhea

10.21.2022 – Fatigue

Telemedicine, Neuropathy peripheral and Paranasal sinus discomfort

1.21.2021 – Yesterday started to have delayed reaction at my injection site and was not feeling well/generally tired, on off mild headache, sinuses irritated) Still waiting results of E-visit

2.26.2021 – Had fever, nausea, vomiting, chills, and a splitting headache for 2 days after second vaccine. Fine by day 3 & thereafter

8.12.2021 – bilateral ulnar and median neuropathy. This actually started around time of my 2nd vaccine and is an ongoing problem. I doubt it is related but thought I'd still mention it. Doctor visits and occupational therapy, orthopedics specialist

Genital blister, Genital discomfort and Nasal mucosal blistering

3.23.2021 – Blocked nostrils and Pressure on forehead and nose

3.24.2021 – Pressure from the forehead down to the nose

3.26.2021 – Dizziness, pressure in the frontal head

3.27.2021 – Mouth and nose sores

3.30.2021 – Some dizziness

4.6.2021 – Sometimes not feeling well. Nausea. Stuffy nose. Churning stomach. Itchy throat. Occasional dizziness.

4.13.2021 – Occasional and steady cramps on my left leg.Rash and blisters in mouth, nose and genitalsItches in the throat.

4.21.2021 – Mouth and nose sores, leg cramps, occasional stuffy and runny nose, not feeling bodily sometimes.

4.27.2021 – Feel cold and hot. Sweating while sleeping. Itchy throat. Blocked and runny nose.

4.28.2021 – Night sweat, tightening f the chest, severe headaches, blocked nose, genital skin irritation.

4.29.2021 – Rashes in mouth and tongue. Headache and dizziness, tightening of the chest

4.30.2021 – Tightness and pain in the chest, fever blisters and sores on my tongue, some dizziness, sinus, allergy like running and blocked nose. I am yet to schedule with a doctor

5.1.2021 – Multiple sores in my tongue, flu-like symptoms. Some dizziness Yet to get appointment with the doctor.

5.2.2021 – Sores in the nose and tongue, not feeling too well, some dizziness, runny nose one time and stuffy nose the next, allergy-like feeling Yet to see the doctor

5.3.2021 – Have appointment

5.10.2021 – Not feeling too well. Feeling sleepy, some allergies, occasional sneezing and someild headaches. Yet to see the doctor

5.18.2021 – Not feeling fine, Flu-like symptoms, Escalated blood pressure, Weakness in the legs and arms, Blocked nose, occasional tightening of the chest. Some headache. Scheduled appointment with the doctor.

5.26.2021 – Occasionally not feeling well and some funny symptoms Doctor's visit scheduled.

6.9.2021 – Shape pain on the right of my back behind my stomach.

7.30.2021 – General body aches and pains. Some loss of taste. Running nos e and stuffy nose.All these symptoms started since after I got the vaccines. Seeing my personal physician.

Productive cough, Dysgeusia and Chest pain

12.30.2020 – Weird mouth taste metalic

12.31.2020 – Chest pain

1.11.2021 – Chest painPhlegm

1.18.2021 – Chest pain, phlegm, fatigue, muscle aches

1.26.2021 – Worsening muscle aches, worse brain fog, as well as extreme fatigue,nausea, chills. All these have been on-going symptoms for me after being positive for COVID in March of last year. I am not sure that i wall proceed with 2nd dose. In clinic primary

2.1.2021 – Severe muscle aches and joint pain, extreme fatigue, SOB I was positive COVID in March of 2020, with lingering intermittent sx, aka long hauler.

2.8.2021 – Occasional extremely painful muscle aches and joint pin as well as headaches. I was positive COVID in March of last year. I am a COVID long hauler. The vaccine made my sx worse as well i started having new sx, super intense! Therefore i have decide